EFAPH 10th ANNUAL GENERAL MEETING
Sunday, September 14, 2014
Sala Convegni, Palazzo della Gran Guardia, Verona
13.45 Registration
14.00 Welcome
Barbara Butzeck (EFAPH President, Germany)
Robert Sorrill (Associazione Emocromatosi, Italy)
14.10 Recent news on Haemochromatosis from the EIC
Pierre Brissot (EFAPH Scientific Committee, France)
14.25 Activity report 2013 - 2014, approval by voting
Françoise Courtois (EFAPH General Secretary)
14.45
Launch of the European Reference Network Call: which place for
hemochromatosis?
Olivier Loréal (EFAPH Scientific Committee, France)
15.05 Actual Situation on Blood Donation & Hemochromatosis
Graça Porto (President, EFAPH Scientific Committee, Portugal)
15.25 How to recruit new members by new media?
Ketil Toska (Vice-President EFAPH, Norway)
15.35 Quality of life for HH patients
Annick Vanclooster (PhD - Treasurer HVV, Belgium)
15.50 The long way from a local support group to a nationwide patient
organisation – example Switzerland
Gerda Horn (President Haemochromatose, Switzerland)
16.00 Discussion
16.10 Coffee Break
16.30 News from IAHA
Rob Evans (President IAHA, UK)
16.45
A way to sensibilize GPs: a regional Observatory in France
Françoise Courtois (EFAPH General Secretary, France)
17.05 Financial report 2013, approval by voting, Budget 2014
Dag Erling Stakvik (EFAPH Treasurer, Norway)
17.25 Different questions. Conclusions and Perspectives
Barbara Butzeck (EFAPH President, Germany)
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