MAY/JUNE 2014 F R O M C O N N E C T I C U T C H I L D R E N ’ S M E D I C A L C E N T E R F O U N D AT I O N Inside this Issue Nancy’s Run............................... 2 Concorso Cruises to Town......... 2 Meet Our 2014 Champion......... 3 Be a Partner in Caring................ 4 We hope you enjoy Partners in Caring, a bimonthly publication of Connecticut Children’s Medical Center Foundation, prepared especially for friends and patient families of Connecticut Children’s. Read on to learn more about the many programs and services the hospital provides and about our generous friends and donors who help make it happen. Meet Shemar! Targeting Critical Health Issues… UnitedHealthcare Grant Enhances Pediatric Care A $1 million grant provided by UnitedHealthcare will help Connecticut Children’s Office for Community Child Health (OCCH) enhance care delivery and address critical health issues facing children today. The grant, presented at the Medical Center in March, will help the OCCH create a Maintenance of Certification program to train primary care pediatricians in managing chronic conditions, such as asthma and obesity. The grant will also be used to establish the UnitedHealthcare Innovation Fund to assist OCCH in quickly bringing new programs from design to implementation with the goal of replication at the state and national levels. On behalf of Connecticut Children’s, Paul Dworkin, MD, executive vice president for Community Child Health (left), and Marty Gavin, CEO (right), accept the check from Stephen J. Farrell, CEO of UnitedHealthcare of New England. care for children, with an emphasis on healthy child development, wellness, and disease and injury prevention. “We look forward to working with Connecticut Children’s Office for Community Child Health and pediatricians throughout Connecticut to enhance the coordination, delivery and quality of children’s health care,” said Stephen J. Farrell, CEO of UnitedHealthcare of New England. To date, the OCCH has partnered with 10 local, state and regional programs to help community and primary care providers coordinate quality, cost-effective care for children. Programs include Help Me Grow®, the Hartford Childhood Wellness Alliance and the Special Kids Support Center, among others. A first-of-its-kind model, the OCCH provides community-based, coordinated For more information, please visit www.connecticutchildrens.org. New Primary Care Center Opens Its Doors …Page 3 DIABETES & ENDOCRINOLOGY GASTROENTEROLOGY & GI SURGERY NEONATOLOGY ORTHOPEDICS PULMONOLOGY UROLOGY Connecticut Children’s new Primary Care Center officially opened its doors April 7th at its new 76 New Britain Ave. location, expanding access to care for patients and families across the greater Hartford area. “Our new Center will benefit Connecticut Children’s patients and families as well as provide opportunities for increased efficiencies,” said Catherine Wiley, MD, medical director of the Primary Care Center. continued on page 2 Karla Quinones, 5, gives a “thumbs up” with Monica JoyceMontaudy, APRN, during a recent visit at Connecticut Children’s new Primary Care Center. In Support of Connecticut Children’s … Concorso Ferrari & Friends Cruises to Town Dr. Nancy Law’s true passion in life was caring for the children and families of Connecticut Children’s Primary Care Center. The Ferrari Club of America – New England Region will once again host its Concorso Ferrari & Friends event to benefit Connecticut Children’s Medical Center. This year’s festivities will feature an array of exotic cars from Lamborghinis to Maseratis and many more. More than 130 vehicles will be showcased throughout downtown West Hartford during the 14th Annual event to be held Sunday, June 29, from 11 a.m. to 3 p.m. “PARADE OF KIDS” KICKOFF The event kicks off with the “Parade of Kids,” a tradition in which 40 drivers pick up children from Connecticut Children’s Medical Center in exotic cars and drive them down LaSalle Road in West Hartford to the applause of more than 10,000 attendees. Timothy Prete, who is co-chairing the event with Andrew Baldassarre, has been with the organization for the past 10 years and has been involved with Connecticut Children’s Medical Center since his days as a “mini-intern.” Prete says he is thrilled to be able to bring together two things he is passionate about: Connecticut Children’s Medical Center and Ferraris. “What I love most about this event is seeing the joy it brings to people’s faces 11th Annual Run for “Nancy’s Kids” Concorso Ferrari & Friends will cruise into West Hartford on Sunday, June 29th. – particularly the children and their families,” he said. MORE IN STORE Attendees can look forward to new aspects of the event this year, such as a high-end car corral and a designated area for antique cars. The event will run further through West Hartford Center and involve even more local businesses than in previous years. Prete says he hopes that as Concorso Ferrari & Friends continues to grow it will draw in even more visitors and vehicles. In the past 13 years, Concorso has raised more than $950,000 for deserving children’s charities right here in our community. This year’s event will support the stateof-the-art Cardiovascular Care Center at Connecticut Children’s. For more information, visit www. connecticutchildrensfoundation.org or call the Foundation at 860.837.5700. Before her death in 2003, Dr. Law established Nancy’s Kids Fund to help provide families in need with financial support for clothing, food and other assistance. Today, support for “Nancy’s Kids” lives on through the Run for Nancy’s Kids 5K Run/Walk. Runners and walkers of all ages are invited to attend the 11th annual event, which will be held Saturday, Sept. 20, at the scenic MDC West Hartford Reservoir in West Hartford. Proceeds will benefit Nancy’s Fund and the new Primary Care Center at Connecticut Children’s. For more information, visit www. connecticutchildrensfoundation. org/nancysrun, or contact Robin Vidito at Connecticut Children’s Foundation at 860.837.5719 or [email protected]. Connecticut Children’s Opens New Primary Care Center, continued from page 1. CONVENIENT ACCESS Located just minutes from Connecticut Children’s Medical Center, the new facility offers patient families immediate proximity to bus lines, on-site parking and an on-site laboratory, among other amenities. “Our new location is a beautifully appointed facility with more exam rooms and workstations, specifically designed to accommodate electronic medical records, and increased multipurpose space for activities such as group visits and family meetings,” Dr. Wiley said. “Additionally, the new space has been designed to enhance the operational flow of the Center and care of patients. This 2. should result in increased efficiencies and allow our providers to treat more patients on a daily basis,” she explained. Previously located at Connecticut Children’s, the former Primary Care Center was formed 18 years ago when the Medical Center opened at 282 Washington Street. workers and support staff. Patients will keep their same primary care provider.” Hours at the new center will also remain the same: 8 a.m. to 8 p.m. Monday and Wednesday, and 8 a.m. to 5:30 p.m. Tuesday, Thursday and Friday. SAME FRIENDLY FACES While the location of the Primary Care Center has changed, some things will stay the same. “Patients will see the same providers and staff they are familiar with,” said Dr. Wiley. “All staff have moved to the new site – pediatricians, nurse practitioners, physician assistants, nurses, social Connecticut Children’s Primary Care Center began welcoming patients at its new 76 New Britain Ave. location April 7th. Brave and Upbeat . . . 2014 Connecticut Champion Shemar Williams Captures Hearts Lorraine and Donald Williams of West Haven were preparing for the upcoming birth of their son, Shemar, in 2006 when they received some startling news: Results from Lorraine’s prenatal testing indicated that their baby boy would be born with scoliosis, a medical condition that causes a sideways curvature of the spine. Without knowing the extent of his condition, Shemar’s parents and big brother, Brandon, waited and hoped for the best. Shemar was born on Valentine’s Day and quickly captured his family’s hearts. Today, at age 8, Shemar continues to capture hearts. In April, he was named the 2014 Connecticut Champion Ambassador for Children’s Miracle Network Hospitals. Every year, a child with a remarkable medical story from each state is identified and spends the year serving as the face for the millions of children treated in hospitals throughout the country. EARLY CHALLENGES Shemar was born with congenital scoliosis caused by improper formation of the spine in the womb. Although he grew and developed like most babies, the severity of his scoliosis was such that the curve in his spine got progressively worse. With his torso unable to expand, his lungs began to malfunction. By age 3, Shemar and his family made their first visit to Connecticut Children’s Medical Center to meet with Jeffrey Thomson, MD, chief of Orthopaedic Surgery. “Congenital scoliosis is the third most common type of scoliosis, but Shemar’s condition was relatively unusual because of its severity,” Dr. Thomson explained. “Without treatment, the curve would have increased.” Shemar Williams, who was born with a severe form of congenital scoliosis, has been named the 2014 Connecticut Champion Ambassador for Children’s Miracle Network Hospitals. He is pictured here with his mother, Lorraine, and his doctor, Jeffrey Thomson, MD, director of the Division of Orthopaedics at Connecticut Children’s. Dr. Thomson recommended that Shemar undergo surgery to have a Vertical Expandable Prosthetic Titanium Rib (VEPTR) implanted in his back. As an alternative to spinal fusion, the curved metal rod would help straighten Shemar’s spine and separate his ribs so that there was space for his lungs to grow and stretch with each breath. The VEPTR is expandable, so as Shemar grows, the rods are lengthened through a small, two-inch incision in his back. connect with Shemar and explain things to him on his level.” “It permits us to elongate and stretch out the spine a little bit at a time,” Dr. Thomson explained. Since birth, Shemar has had 10 surgeries, and Dr. Thomson estimates that he will need to have surgery every six months until he is fully grown, when he is approximately 12 to 14 years old. “Connecticut Children’s is such a family-friendly place,” Lorraine said. “What makes us happy is the care he receives here.” In addition to Dr. Thomson, Shemar quickly bonded with the nurses at Connecticut Children’s, making his visits a little easier. After his surgeries, many of the hospital staff will come by to visit him and his family and do what they can to make them comfortable. COMFORTABLE WITH CARE Just as Dr. Thomson is happy with Shemar’s progress, Shemar’s parents have been happy with their son’s care. A CHAMPION CHILD As the Children’s Miracle Network Hospitals 2014 Connecticut Champion Ambassador, Shemar is deserving of the accolades and is a true champion who has faced the obstacles in his life with courage and a smile. “Shemar was comfortable with Dr. Thomson and clicked with him right away,” his mother Lorraine said. “As parents, we were relieved at Dr. Thomson’s ability to “He’s very upbeat, very happy and very brave, despite all the surgeries he’s undergone,” Dr. Thomson said. “He’s a wonderful kid.” 3. NONPROFIT U.S. POSTAGE PAID HARTFORD, CT PERMIT NO. 3745 Connecticut Children’s Medical Center 282 Washington Street Hartford, CT 06106 A Proud Member . . . Connecticut Children’s Medical Center is a proud member of Children’s Miracle Network Hospitals. Children’s Miracle Network Hospitals helps to raise funds and awareness for 170 children’s hospitals across North America, helping more than 17 million kids each year. Funds raised through this organization stay in the local community in which they are given. For more information, please visit www.cmnhospitals.org. Be a Partner in Caring Learn more about Connecticut Children’s and receive updates about our initiatives and events. Please visit our website at www.connecticutchildrensfoundation. org/signup and enter your e-mail address to receive our electronic news updates. FAMILY-FRIENDLY CARE: Josiah Claudio, 2, gives Laurie Scheiner, MD, a “high five” at Connecticut Children’s new Primary Care Center at 76 New Britain Ave. NEWSLETTER CONTRIBUTORS: Sharon Napolitano, Senior Editor Kevin McMahon, Contributing Writer Kelly O’Brien, Contributing Writer Ed Jalinskas, Creative Services Michael McCarter, Contributing Photographer Your gift, large or small, makes a difference in the lives of children. Donations towards MAKE A GIFT equipment, technology, TODAY! research, people and programs bring hope and health to those who entrust their care to Connecticut Children’s. Won’t you please consider making a tax-deductible donation today? Your generosity helps us provide our region’s children with the best care possible – each and every day. To learn more, please contact the Foundation at 860.837.5700, or visit our website at www. connecticutchildrensfoundation.org. Partners in Caring is a bimonthly publication of Connecticut Children’s Foundation, highlighting the programs and services of Connecticut Children’s. To be added to or removed from our mailing list, please contact Kevin McMahon at [email protected].
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