Ref
PC1
PC1
PC1
PC
2.12.5
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Membership of the Cancer CPG Terms of Reference and Membership
Head of
October
Achieved; function of Cancer
Clinical Programme Group currently being reviewed to align with work of
Cancer
2013
CPG under review in light of
to include Public Health
Population Health Programme Groups.
Services
current management
representation.
reconfiguration.
To work in partnership with Hywel Dda Public
Health Team to improve services and tackle
This group has been
inequalities, placing emphasis on disadvantaged
dissolved, has been replaced
groups and deprived areas.
with an MDT cancer leads
group, which includes
management representatives
and is chaired by the clinical
lead for cancer services.
Population Health
Alignment of officers to each Population Health
Director of
October
Achieved.
Programme Groups to
Programme Group
Public Health 2013
include representation
from Public Health
Three LSBs operate within Single integrated plans (developed by the LSB and Director of
Ongoing,
Population needs are
the Health Board area
local authority) are in place and Public Health have Public Health starting April reviewed and action plans for
inputted into the outcome measures and are
population health are
(aligned to the three
2013 as
counties of
involved in the monitoring of the SIPs
part of 2013 monitored by the LSBs
Carmarthenshire,
– 17 SIPs
Ceredigion and
Pembrokeshire). The
LSBs meet regularly to
discuss ‘ need’ and the
‘need assessment’ work.
Team Briefings by the
Hywel Dda IMTP, identifies the following as priority Director of
Ongoing
Commenced. Board reports
Chief Executive will
area: tobacco, obesity, sexual health, imms and
Public Health briefings
continue to be submitted on
include briefings, where
vaccinations, alcohol, mental wellbeing and
commenced Screening, Tobacco Control,
appropriate, on Public
dementia awareness.
April 2013
Immunisation and
Health priorities
Vaccinations. Tier 1 targets
for smoking and
immunisation continue to be
reviewed monthly and
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
1
Ref
PC
2.12.5
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
quarterly.
Public Health Directorate
Reducing smoking prevalence and protecting
Pledge to help 5,000 people
Principal
Ongoing:
plan identifies: tobacco,
people from exposure to tobacco smoke
stop smoking or preventing
Officer
work plan
obesity, imms and vacc,
people from starting achieved
refreshed
alcohol, mental wellbeing
Tobacco action plan in place (refresh required in
and reported by June 2013.
and dementia awareness 2013
Smoke Free site policy
to WG
as key areas of work. The • Foundations for Change (F4C) target across
adopted for HDUHB
December
relevant key priorities for
Optimising Outcomes
2013
all 3 counties. Close fits with Strategic
the Hywel Dda area are:
approach to support smoker’s
Implementation Groups.
to quit before surgery
• Hywel Dda Pledge made re: helping 5,000
adopted in principal.
• Reducing smoking
people stop smoking or preventing people from
prevalence and
starting (2015 target)
Level 3 Pharmacy Scheme
protecting people from • Currently monitored at Public Health
(support for smoking
exposure to tobacco
Leadership Team
cessation) introduced in
smoke
• As Population Health Programme Groups
December 2014 following
• Improve diet and
commence, the Tobacco Action Plan will fit
UHB Business Case.
nutrition and reduce
with the transformation work being undertaken
overweight and
and the identified need to increase pre-surgery
obesity
activity and also link with Smoking Cessation
• Decrease alcohol
and our Smoke Free Sites. The Public Health
consumption
Team are working with Public Health Wales
(Stop Smoking Wales) to improve the service
• Increase uptake of
Imms and Vacc rates
model and ensure services are offered more
(including those which
flexibly (as part of Tier 1 discussions). The
have an impact on
Public Health Team are exploring a Level 3
cancer: HPV for
pharmacy scheme for smoking cessation.
Cervical Cancer
Waiting times for Stop Smoking Wales
prevention)
Services are being monitored.
• Increase mental well
Key stakeholders include: local authorities, Public
being
Health Wales, Third Sector, County Voluntary
• Decrease
Councils, Tobacco Network/ASH, Primary Care,
environmental risks
Clinicians and Pharmacy.
Achieved/Will be Achieved
Work Commenced/Making Good Progress
2
Work Not Commenced/Still Significant Risk
Ref
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
(skin cancer
prevention)
Improve diet and nutrition and reduce
Principal
Annual work Hywel Dda Health Board has
overweight and obesity
been assigned a green RAG
Officer - with plan has
• Reducing premature
status against 11 of the 14
links to
been
deaths
Overweight and obesity action plan in place (full
minimum standards of the all
Dietetics/
reviewed
Wales obesity pathway in a
Therapies
and
The team work across all refresh required by end April 14)
recent assessment by Welsh
refreshed
settings. Established
• F4C targets/actions being agreed across all 3
Government (Feb 2014)
for2014/l
links are in place with
counties for monitoring through the Health
2015
Public Health Wales. A
Board Strategic Implementation Group
Work is on-going to meet the
national Consultant in
• Hywel Dda Pledge made re: helping 12,000
minimum standards in
Public Health (CPH) lead
people to lose weight (2015 target)
relation to pharmacological
will be established by
• Fit with Population Health Programme Group
interventions and specialist
Public Health Wales
• Close fit with 3 SIPs
weight management service
during 13/14
• Monitoring in place through the Public Health
provision at level 3 of the
leadership team.
pathway
Strengthen links to
preschools, healthy
Key stakeholders include: local authorities, Public
Obesity integrated
schools and workplaces. Health Wales, Third Sector, Primary Care,
into F4C and SIP priorities
Clinicians and All Wales Leadership Group.
During 2013/14 there will
Obesity is a priority within the
be an increased focus on During 13/14, the Public Health team will explore
Women and Children’s PHG
developing Public Health opportunities to develop further action relating to
and Cardiovascular PHG
links with primary care.
childhood obesity and the obesogenic
enviornment. Links have already been made with
Optimising Outcomes
Public Health Team to
local partners and Public Health central support
approach to support weight
focus resources in specific sought.
loss prior to elective surgery
settings where evidence
for patients with BMI +40
indicates they will be most
kg/m2 adopted in principal
2013/14
efficiently used. These
(Q4)
settings include:
Mapping in relation to
childhood obesity undertaken
• Local authority
and reported through Obesity
settings eg pre
Pathway Implementation
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
3
Ref
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
schools, schools and
Group
school nursing
County level structures and
• Primary care
action plans developed to
• Pharmacy
progress work on the
• Workplaces
obesogenic environment.
• Vulnerable
Principal
Refresh
by
Decrease
alcohol
consumption
populations including
Officer
April 2014
Communities First
Plans in place to decrease alcohol consumption
511 persons in Hywel Dda
refresh required by end April 14)
area trained to deliver
Use Foundation to
screening and brief
•
Brief
intervention
training
roll
out
being
Change approach to
interventions
monitored
reduce health inequalities
• Monitoring in place through Public Health
and improve health
Multi agency public
Leadership team
across the whole of the
awareness raising campaign
• F4C priority in all 3 Counties.
population by
‘Think Safe, Drink Safe’
interventions that create
delivered in
supportive environments. Key stakeholders include: local authorities, APB,
November/December 2013
Public Health Wales, Third Sector, Primary Care,
Clinicians.
Use the Health Board’s
Welsh Health Survey data
‘Helping Group’ to raise
shows that 40% of Hywel
awareness of practical
Dda population drinking
messages around
above guidelines on at least
cancer.
one day a week as opposed
to Wales average of 44%
Increase uptake of Imms and Vacc rates for
Consultant
Plan
Uptake of HPV vaccine in
those which have an impact on cancer ie HPV
Public Health reviewed
girls aged 14yrs x3 doses
Vaccinations
during 13/14 85.3% (Dec 2013)
as normal
3 County Plan in place (refreshed annually)
part of Imms Promotion of seasonal flu
vaccine, especially amongst
and Vacc
• Monitored by Public Health Leadership team
programmes staff with direct patient
and also Quality and Safety Committee
and
contact. Uptake rate 43.4%
• Close fit with 3 SIPs
(Feb 2014)
planning
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
4
Ref
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
• Strong links to the nursing team already
established.
Targets in line with national requirements.
Key stakeholders include: local authorities, Public
Health Wales, Primary Care, school nursing
Increase mental well being
Consultant
Public Health
Public Health Action Plan required
• Close fits with Mental Health Partnership
Board and will dovetail to relevant Population
Health Programme
• Close fit with 3 SIPs
• Links being explored between the brief
intervention portfolio and ‘psychological
management’
To be
completed
by
December
13.
Mental Health Population
Health Group established;
developing actions to
promote mental well-being
April 14 (by
end Q4)
Cancer prevention messages
delivered through HDUHB
‘Healthy Wednesday’
campaigns and through
Healthy Schools Healthy Preschools’ schemes.
Key stakeholders include: local authorities, Public
Health Wales, Third Sector, County Voluntary
Councils, Primary Care and Clinicians.
Decrease environmental risk (skin cancer
Director of
prevention)
Public Health
• This is currently under review for 13/14 - will
be discussed at Public Health leadership forum
given the priority list of actions for the team
• Activity for 13/14 is likely to relate to healthy
pre-school, school setting and proactive
communications activity. The Public Health
Team are already linked to ‘sun safety’ agenda
with the Local Authorities.
Key:
Achieved/Will be Achieved
Work Commenced/Making Good Progress
5
Work Not Commenced/Still Significant Risk
Ref
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Reducing premature deaths
Life expectancy and health
Consultant
Yearly
Public Health review.
inequalities continue as core
• F4C identified life expectancy and health
actions for each county F4C
inequalities as core areas to monitor
action plans.
improvement for all three counties. County
plans are being developed.
All Public Health stakeholders contribute to this
agenda.
Increase screening update • Public Health Wales plans in place – regular
(new local focus) – see
reports received
also section re: detecting
• Link person with Public Health Wales agreed
cancer quickly
• Monthly monitoring in place already through
Public Health Leadership Team
Work with Public Health
• Public Health Wales project on ‘inequitable
Wales to increase
compliance’ – due for completion end of
Screening Uptake
financial year.
(national targets in place):
This links well to the F4C programme given the
• Breast
focus on inequalities and life expectancy.
• Bowel
• Cervical
This is a new priority area for the Hywel Dda Public
Health Team with Public Health Wales as the lead
screening organisation. The overall worst
performing screening area is bowel screening
hence the identified target area. Variation in
cervical screening has also been noted especially
in Ceredigion.
Director of
Public Health
September
13 –
complete
unless
otherwise
noted.
Achieved
Locum CPH appointed to
address screening uptake as
part of role.
Plan for 2014/15 developed
New literature for public
completed.
Community participation work
to improve uptake in deprived
areas, continuing with the
Third Sector project to March
2015.
Lead Cancer
Ongoing
The Health Board
Key stakeholders include: local authorities, Public
Health Wales, Pharmacy, Primary Care, Third
Sector and Clinicians.
PC
The South Wales Cancer
Key:
Achieved/Will be Achieved
Hywel Dda Health Board staff to participate and
Work Commenced/Making Good Progress
6
Work Not Commenced/Still Significant Risk
Ref
2.4
2.5
DC1
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Network will develop an
participates in this initiative
present to the groups.
AHP
implement in partnership
and is working with
with the Health Boards:
Macmillan to develop service
models to meet the
requirements.
• Sharing good Cancer
Rehabilitation Practice
Macmillan funding has been
event annually
secured to recruit an Allied
• An Allied Health
Health Professional to
Professional and
undertake a Health Board
Nursing Head and
needs assessment for cancer
Neck Cancer Pathway
rehabilitation. Further funding
• A Fatigue pathway for
has been secured to ensure
cancer patients
the findings of the needs
• Metastatic Spinal Cord
assessment are
Compression
implemented.
education
(post advertised February
• Cancer key worker
2015).
education event
The Cancer Network will
develop and improve web
based information eg
Cancer Services
Directors.
Roll out of the Public
Health Wales/Wales
Government ‘over 50s’
health check scheme.
50+ health check will be supported by the Public
Health Team (main lead is Public Health Wales).
It is cross cutting work with other lifestyle activity
work. In its initial format, the focus will be on the
Community First area in Carmarthenshire (as per
Welsh Government guidance), however
information is being shared with relevant partners.
Regularly review, plan and Residents across the Health Board are offered the
Achieved/Will be Achieved
Work Commenced/Making Good Progress
7
Public Health
Wales/
Director of
Public Health
Ongoing –
pilot
programme
started
Spring 2014
Add To Your Life programme
(free NHS Wales health
check to help individuals, live
longer, feel better, and stay
healthy and active.
Director of
Ongoing –
Programmes delivered.
Work Not Commenced/Still Significant Risk
Ref
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
deliver screening
following screening services
Public Health programme Report to Q&S committee
programmes as
extant at
(in
due April 2015.
recommended by the
Breast Test Wales
start of this
conjunction
Wales Screening
Screening is provided by Public Health Wales
plan
with PHW)
Committee
mobile units. Uptake in 2013/14:
Ceredigion = 72.4%
Carmarthenshire = 79.6%
Pembrokeshire = 73.2%
Hywel Dda = 76.7%
Wales = 72.1%
Minimum uptake standard is 70%, while target is
80%
Please note that care is required when reviewing
uptake rates in localities because of the rotational
organisation of this screening programme.
Cervical Screening Wales
The cervical screening target standards 13/14 is
80% of eligible women aged 20 to 64 years.
Screening occurs first then commences to
assessment and treatment.
Ongoing –
programme
extant at
start of this
plan
Programmes delivered.
Report to Q&S Committee
due April 2015.
Update of cervical screening in 2013/14 was:
Ceredigion = 75.3%
Carmarthenshire = 77.5%
Pembrokeshire = 77.5%
Hywel Dda = 77.1%
Wales = 78.4%
Key:
Achieved/Will be Achieved
Since 1st April 12, cervical smears taken from
women living in Hywel Dda are transported for
processing at the Cervical Screening Wales
Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
8
Ref
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Laboratory at Llantrisant and returned for
screening and reporting at ABMU laboratories.
The results continue to be issued back to women
as usual.
The HPV vaccination programme is being rolled
out across Hywel Dda.
Bowel Screening Wales
Colonoscopy services are delivered well for the
Health Board and the waiting times for the clinics
are consistently within standard.
Ongoing –
programme
extant at
start of this
plan
Programmes delivered.
Report to Q&S committee
due April 2015.
The first stage of screening uses bowel screening
kits (sent through the post). If further investigation
is required, the assessments are undertaken at 3
sites across Hywel Dda:
For 2013/14 the uptake rate:
Ceredigion = 53.6%
Carmarthenshire = 52.1%
Pembrokeshire = 53.1%
Hywel Dda = 53.7%
Wales = 52.6%
GGH received JAG
accreditation in April 2014.
Ceredigion endoscopy service is already JAG
accredited and the Carmarthen and Withybush are
currently being assessed for accreditation.
All BSW reporting
pathologists now work from a
common base and this has
resolved the double reporting
delays.
Work Not Commenced/Still Significant Risk
Double reporting of cases identified by screening
can cause delay. There is ongoing work around
centralisation of pathology services and consultant
recruitment
Key:
Achieved/Will be Achieved
Work Commenced/Making Good Progress
9
AMD
Pathology
Ref
DC13
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
The reviewing and planning of cancer services will
become an integral part of the role of the new
Population Health Programme Groups.
Increase awareness of the This is a new area of work for the Public Health
signs and symptoms of
Team which will commence in October 13.
Cancer
• Explore working with primary care
communications
Awareness raising/training • Communication work already in place through
- to encourage people to
the ‘Helping Group’, however further
recognise the signs and
opportunities to raise awareness will be
symptoms of cancer and
considered.
see their GP if there are
• Consideration will be required on the impact on
issues.
diagnostics and services
• Consideration will be given to the fit with the
Making Every Contact count approach.
Consultant
Public Health
Director of
Public Health
DC2
Promote better take up of
screening programmes to
meet the best practice
update targets –
particularly targeting those
less likely to take up
screening.
‘Every contact count’ brief
advice training continued
through 2013/14vand
2014/15.
Project to train new
generation locality
Multidisciplinary teams
completed and Report
Drafted for Carmarthenshire
LSB, County management
Team, Feb 2015. Primary
Care Advocates project to
train staff in three Primary
Care Clusters, started Feb
2015.
Key stakeholders include: local authorities, Public
Health Wales, Third Sector, Primary Care and
Clinicians
NB: Prevention section also includes information
on screening programmes.
The Public Health Directorate is linked into Public
Health Wales Activity/projects looking at update
rates.
Commence
d October
13 –
Director of
Public Health
See above re Third Sector
patient participation projects.
The Public Health
Key:
Achieved/Will be Achieved
Work Commenced/Making Good Progress
10
Work Not Commenced/Still Significant Risk
Ref
DC4
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Directorate works with
screening engagement
team of Public Health
Wales regarding
increasing uptake.
Using information to
inform service plans and
provision
DC4
Adopt good practice
arising from the
ABMU/Cancer Research
UK project on attitudes of
people with early cancer
symptoms.
DC5
The Health Board
participates in public
awareness raising using a
number of mediums
including the “Healthy
Wednesday” scheme to
reflect national awareness
weeks and promote other
aspects of health and
well-being.
Key:
Achieved/Will be Achieved
The recently agreed national lead (Consultant
Public Health) in Cancer (for Public Health Wales)
will support Public Health practitioners across
Wales at a local level on issues relating to cancer.
The Public Health Team has relevant information
with Health Board colleagues and relevant parties.
To provide patients with appropriate information
and awareness to contact services when they
notice changes that could be cancer. Encourage
people to be more self awareness and promote
positive attitudes.
Consultant
Public Health
(PHW)
Ongoing
since March
2013
Information provided for
HDUHB by Welsh Cancer
Intelligence and Surveillance
Unit (WCISU) in timely
manner.
Head of
Cancer
Services/Pati
ent
Experience
Manager
Commence
January
2014
Awaiting publication of ABMU
report.
The Health Board will continue to develop,
Assistant
Ongoing
participate and support programmes for awareness Director of
activity
and symptom recognition.
Corporate
Services/Publ
Links to the ‘Helping Group’
ic Health
Wales
Work Commenced/Making Good Progress
11
Regular and ongoing public
awareness campaigns
undertaken within the Health
Board and in conjunction with
Public Health Wales, through
the Health Board's own multiagency HeLPInG Group
(Healthy Living Partnership
Information Group) and its
sub-groups and with allWales partners, including
Welsh Government and the
1000 Lives programme, to
Work Not Commenced/Still Significant Risk
Ref
DC5
DC6
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
reflect national awareness
weeks and campaigns and
promote other aspects of
health and well-being.
Mediums including multichannel public and staff
information campaigns
(including social media),
Healthy Wednesday, the
award-winning Hywel's
House online portal scheme
and promotion of bespoke
health and well-being
initiatives such as No
Smoking, ThinkGlucose,
Alcohol, Nutrition and
Hydration, Lover Your Liver,
Influenza, Choose Well etc.
to name but a few.
Ongoing
Establish a local planned
Improve communication with public by working in
MacMillan
Cancer Information Team
being established. Cancer
programme in line with
partnership with South Wales Patient Forum to
Information
Coinformation officer now in
National Awareness Days establish planned awareness days
Ordination
place Pembrokeshire
for Cancer and related risk
factors to be led by
Team/
Ceredigion, Carmarthenshire
MacMillan Information CoAssistant
post appointed March 2015.
SLA now in place between
Ordination Team
.
Director of
Corporate
HDUHB through the
Services
Volunteering for Health
Scheme and Macmillan.
Raise GP awareness of
In house PTFL (Practice Time for Learning)
GP Practices
PT4L, GP Forums and GMS
symptoms to promote
already in place in GP Practices.
Newsletter continue to be
prompt referrals in line
Clinical
available for clinical and
with national guidance,
NICE guidance summary sent regularly to primary Effectiveness Ongoing
process discussions and the
sharing of best practice.
local pathways and
care.
Co-ordinator
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
12
Ref
DC7
DC8
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
waiting times standards.
2012-13 & 2013-14 GMS QP
Explore monthly updates (bullet point guide) via
AMD Primary October/Nov processes focussed on End
GP newsletter – staggered around early signs of
Care and
ember view of Life and part of this
cancers.
Primary Care to start in
discussion included clinical
Officer - GMS January
diagnosis and the sharing of
2014
best practice. Local
A range of information eg SIGN guidance, etc is
guidelines were developed
easily accessible on the internet.
and implemented in all GP
practices, the differing
GP Forums exist in Pembrokeshire, Ceredigion
outputs were shared.
and Carmarthenshire (3 localities) where the
Consultant
2014-15 GP CND Domain
opportunity exists for clinical colleagues to
will focus on early detection
Dermatologis
inform/advise/interact with primary care.
t
of cancer for lung and
digestive. This will provide a
GPs with an interest in dermatology have regular
structured forum for pathway
MDT meetings with secondary care colleagues and
discussion, peer review and
audit their work.
comparing outcomes.
Introduction of risk
Identify the most appropriate risk assessment tool
AMD –
January
Available assessment tools
assessment tool in
(poss Hamilton Assessment Tool) to help identify
Primary Care 2014
under review – completion
primary care.
those most risk of having cancer within the Primary
rescheduled for March 2016.
Care setting. For inclusion on GMS newsletter as
a standing item.
Design and implement
Standardised and clear proforma for urgent referral MDT Lead
Health Board has participated
in National Reviews of
clear pathways for rapid
of common cancers. The aim is to improve
Clinicians/As
Colorectal and Lung
access to diagnostic
management of USCs by reducing inappropriate or sistant
pathways. Programme of
services and treatment for unclear referrals. In collaboration with South
Director of
patients with suspected
Wales Cancer Network agree diagnostic specialist Clinical
further National Pathway
cancer eg colorectal
pathways with Hywel Dda Health Board.
Services/
events planned and Health
Board will participate in
cancers.
Head of
Improve capacity of rapid access clinics for patients Cancer
these.
Ensure provision of rapid
with red flag symptoms eg post menopausal
Services
access clinics for patients bleeding, haematuria. These cause bottlenecks on
July 2015
Service improvement teams,
with red flag symptoms eg various pathways and are a significant issue with
management team, and MDT
clinical leads reviewing
post menopausal
respect to SAFF target breaches.
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
13
Ref
And
DC9
DC10
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
bleeding, haematuria.
cancer pathways. Access on
USC pathways monitored.
Introduce automatic
review of patients who
have presented with late
stage cancer and act upon
the findings.
Hywel Dda Health Board
will explore the
establishment of a Project
Board to develop a
sustainable oncology
model which operates
across the three counties.
The Project Board will
work with South Wales
Cancer Network to coordinate and deliver high
quality, equitable patient
care.
Key:
Achieved/Will be Achieved
The Health Board is currently working to improve
compliance with the recording of the stage of
cancer at diagnosis. Review of cases of advanced
diagnosis will be commenced as part of the MDT
annual audit cycle.
The scope of the work needed to be undertaken by
the Project Board is currently being worked up.
This will include summary terms of reference,
outline work programme and membership of the
Project Board.
Work areas include:
• Development of an acute oncology model
• Ensuring effective and sustainable staffing
models
• Ensuring activity information is managed
effectively
• Ensuring consistent service provision across
the three counties.
• Exploring cross border issues
• Consideration of medicines management
issues including aseptic units
• Linking into the work being undertaken with
regards to patient transport.
Work Commenced/Making Good Progress
14
MDT lead
clinicians/Ass
istant
Director of
Clinical
Services
Annual
review
Work to improve recording of
staging has been introduced.
This will inform audit of late
presentation during 2015/16.
Achieved
The stage of diagnosis is
routinely recorded as part of
the MDT discussion.
Associate
Director of
Clinical
Services/
Health
Planning
Manager/
Head of
Cancer
Services
Establishme
nt of Project
Board
November/D
ecember 13
Project Board established.
Timescales
for work
programme
will be
determined
at first
Project
Board
meeting
Oncology service review
undertaking in collaboration
with ABMU, final report
pending May 2015.
Funding secured from
MacMillan to provide day
time acute Oncology service
on all four sites.
Out of hours Oncology help
line to be provided by ABMU,
supported by Health Board
funding.
Work Not Commenced/Still Significant Risk
Ref
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
DC10
Develop an agreed
transport protocol to
ensure Hywel Dda Health
Board patients meet the
criteria for PET scans at
UHW
TC1
Develop Health Board
Wide MDTs
Alignment of the Project Board with Cancer
Programme Group and relevant Population Health
Programme Groups.
Currently these arrangements are made on an
adhoc basis often outside the current Welsh
Ambulance Trust contractual arrangements
The Health Board commenced a programme to
integrate county based MDTs in 2010. The
Urology and Dermatology MDTs were already
integrated and since 2010, the Lung, Breast and
Colorectal MDTs have been integrated. These are
3 services which still have county based structures:
Gynaecology: the MDT is expected to
integrate in November 2013.
• Upper GI: the MDT will integrate to reflect
the new service models
• Haematology: will integrate once the
service model for Ceredigion is agreed
The Health Board will empower MDTs to offer
patients the best possible diagnostic, treatment
and rehabilitation care within Hywel Dda and as
locally as possible to the patient’s home. Service
reviews will take into account the need to ensure
safe, sustainable services and the need to
minimise patient travel.
Through the work of the Population Health
Programme Groups, an ‘improving service user
Assistant
Director of
Strategic
Partnerships
December
13
Clarity received from UHW
regarding patient categories
from HDUHB region. This
has ensured a consistent
approach to the safe
transport of these patients
from a variety of providers.
Health Board wide MDTs in
place.
Head of
Cancer
Services/Ass
ociate
Director of
Clinical
Services
Dec 2013
(except
haematolog
y)
Associate
Director of
Clinical
Services/
Population
Health Group
Leads
Patient
Experience
Ongoing
Work continues as part of the
Health Board’s service
strategy.
Population
Health
Work continues as part of the
Health Board’s service
•
TC1
TC1
Key:
Review, plan, reorganise
all services where
appropriate to deliver best
experience and outcome
in line with latest
evidence, standards and
guidance.
Review, plan, reorganise
all services where
Achieved/Will be Achieved
Work Commenced/Making Good Progress
15
Work Not Commenced/Still Significant Risk
Ref
TC1
TC1
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Manager
Groups to
appropriate to deliver best experience framework’ has been developed. This
strategy.
commence
experience and outcome
will guide involvement and ensure that planned
in line with latest
improvements consider the impact of experience
October/Nov
evidence, standards and
on care, treatment and outcomes of care.
ember 13
guidance.
Shadowing, observations and patient stories will be
built into our improvement work to ensure
improvements are grounded by real experience of
people.
Review, plan, reorganise
Further review and
Provision of information and advice to patients
Consultant
Completed
all services where
undergoing chemotherapy regarding neutropaenic Haematologis
refinement of neutropaenic
appropriate to deliver best sepsis.
t
Dec 2013
sepsis pathway commenced
experience and outcome
April 2014
to ensure that timeliness of
in line with latest
Audit of current neutropaenic sepsis policy
patient care is not
evidence, standards and
compliance
compromised by
unscheduled care pressures
guidance.
Exploring current attitude and behaviour through
the use of patient stories with a view to improving
Patient
in ED departments.
the awareness and information provided to put into Experience
place speedy response.
Manager
To act upon the outcome
Quick implementation of recommendations will
Clinical lead
Timescales Peer Reviews have been
of Peer Review visits to
ensure that the services provided by the Health
for
according to completed for Lung, Upper
improve service provision Board reflect latest best practice.
Cancer/Head action plans GI, Head and Neck,
and organisation.
of Cancer
Gynaecology, Urology and
Services
Colorectal. Action plans
have been developed and
are being monitored by
Cancer Services
Management Team.
Breast peer review is
scheduled for June 2015.
Key:
Achieved/Will be Achieved
Work Commenced/Making Good Progress
16
Work Not Commenced/Still Significant Risk
Ref
TC1
TC2
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Ensure agreed NICE
guidelines are embedded
within the MDT functions.
The Health Board
regularly achieves the 31
day target but is
consistently
underperforming against
the 62 day target.
Implementation of NICE Clinical Guidelines and
NICE Cancer Service Guidelines will help ensure
services are provided to acceptable standards.
Review of implementation status of guidance
should be undertaken; audit as required.
Capacity planning is underway to identify both
cancer and non-gaps. Review of whole cancer
diagnostics pathways will support the delivery of
care in target.
The key areas to improve
are Urology and Lung
Key:
Achieved/Will be Achieved
MDT Leads/
Clinical
Effectiveness
Co-ordinator
Within 4
months and
thereafter
annual
Limited progress to March
2015. Action to be reprioritised for 2015/16.
Head of
Cancer
Services
Regular
review
Performance is scrutinised
via Weekly Cancer
Watchtower meeting with
Service Delivery Managers
and via weekly PMO meeting
with General Managers.
Health Board has achieved
continuous performance
improvement vs 62 day target
in each of past 3 years but
target achievement continues
to be compromised by
treatment delays at tertiary
centres on reliance on
externally provided complex
diagnostic services (eg PET
scans)
Work Commenced/Making Good Progress
17
A Health Board review of the
Lung pathway has been
undertaken and further work
is currently underway in
respect of colorectal, Upper
Work Not Commenced/Still Significant Risk
Ref
TC2
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
GI and Urology pathways.
Hywel Dda Health Board
is committed to
sustainable achievement
of the target by ensuring
that any USC referral will
be treated within target
date.
Hywel Dda will work to
achieve the target
sustainability by aligning
its workforce, finances
and clinical capacity to this
priority area. We
recognise that there are
specific challenges for us
relating to diagnostics,
particularly radiology.
TC3
Key:
Refining systems and processes to monitor key
stages within the pathway. Meeting has been held
to start reviewing the diagnostic pathway.
Director of
Operations
Ongoing
Assistant
Director of
Clinical
Services
March 2015
As above.
Operational managers are authorised to work with
clinical teams to ‘step-up’ additional capacity when
necessary to ensure that the standard (urgent
suspected cancer referrals are booked within 10
days) is maintained.
We have developed an increased emphasis on
breach reporting and sign off clinically to assure
our Board that patient safety, quality and standards
of care are being appropriately managed. In
particular, engagement is taking place with
Clinicians regarding their cancer performance and
sharing of data.
This will also include
more frequent and
clinically led liaison with
counterparts in tertiary
providers (particularly
ABMULHB) and ensuring
these systems are robust,
sustainable and support
ongoing timely and high
quality cancer provision.
Work with tertiary
Patients have access to EBUS, IMRT, IGRT,
Clinical Lead Ongoing
Work continues as part of the
providers to ensure
CHART, and other new optimal treatments as
for
Health Board’s service
strategy. The Cancer
provision of advanced
required to ensure our patients receive the best
Cancer/Head
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
18
Ref
TC4
TC5
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
diagnostics and treatment care possible.
of Cancer
management team are
as locally as possible,
Services
meeting with ABMU March
along with rapid access to
2015 to review SLA, including
services where it cannot
Radiotherapy.
be provided locally.
Access to EBUS is now
provided within the Health
Board and is accessible for
patients throughout the
Health Board.
To establish a network
Progress made in line with
Hywel Dda have an IPFR panel every other week. Head of
Ongoing
Individual Patient Funding In emergency situations, emergency panels are
national strategy.
Cancer
Review
Request system to ensure convened via telephone/video conferencing.
Services
consistency and
transparency of decision
The IPFR Panel members have recently attended
making and to minimise
anAll Wales IPFR information day where a number
delays in the pathway for
of cases were discussed to ensure all Health
cancer patients
Boards in Wales were consistent in their decision
making.
Subsequently, to
determine Individual
Head of Cancer Services liaises with IPFR
Patient Funding Requests managers within Wales and has meetings to
promptly and equitably
discuss cases, concerns, etc.
across Wales using the All
Wales protocol,
exceptionality criteria and
training
Hywel Dda does not
Opportunities are presented by emerging
Head of
Ongoing
Oncology review underway
provide radiotherapy
technology (mobile units for the treatment of certain Cancer
Review
services but accesses
cancers) which will need to be explored in time.
Services
Health Board participates in
services provided by
Achieved
ABMU and Betsi
the South Wales
Cadwaladr Health Boards,
Chemotherapy Review
Velindre and Shrewsbury
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
19
Ref
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
& Telford NHS Trusts for
Presentation prepared for
patients being diagnosed
Oncology Review Project
with cancer by Hywel Dda
Board in March 2013 (att)
doctors.
Assistant
outlining current
Director of
arrangements and the
Strategic
potential to provide bespoke
Partnerships
transport from the Voluntary
Sector. Further discussions
Hywel Dda Health Board will work with the South
to take place at the next
Cancer Network to ensure the requirements of its
Board meeting in May 2013.
residents are provided for.
TC6
Embedding of ERAS
across all surgical
specialties
TC7
Compliance with National
Guidance (Wales) on
preventable deaths
TC8
Key:
Review of current transport arrangements for
HDHB patients to be undertaken for those
travelling to ABMU and Velindre. The trend for
those attending Singleton requiring Non
Emergency Patient Transport (NEPT) continues to
increase. Alternative transport provision, currently
provided by WAST to be considered as part of
NEPT Strategy 2013-16 and review of WAST.
Hywel Dda Health Board has a fully developed
ERAS programme in place in all three counties,
along with a General Surgery ERAS Board
however this is not yet embedded in all specialty
areas and to the same extent
Hywel Dda Health Board is reviewing all patient
deaths. The process will change shortly following
the publication of National Guidance (Wales) and
this may help to identify and eliminate preventable
deaths.
Clinical audits are currently undertaken by the
relevant surgeons for example colorectal, breast,
haematology, urology.
To establish a range of
Population Health Groups
which will integrate clinical
audit activity and quality
Achieved/Will be Achieved Work Commenced/Making Good Progress
20
Director of
Operations
July 2014
ERAS programme in place
for General Surgery &
Orthopaedics.
AMD
End of 2013 Mortality reviews to be
Information &
recommenced in
Research
Carmarthenshire during 2015
as part of work linked to
(Anaesthetics
Department)
RAMI monitoring.
Population
Ongoing
The Clinical Audit
Department has assigned a
Health
Review
Programme
Clinical Audit Facilitator to
each group and has asked
Group Chairs
Work Not Commenced/Still Significant Risk
Ref
TC9
TC9
TC9
MN1
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
improvement activities.
‘Cancer’ will be framed within each of the
for audit projects. Group
Population Health Programme Groups. Hywel
AMD
Chairs will be asked to
Dda’s Clinical Audit Department will support further Information &
provide projects for inclusion
development of audits.
Research
in the Clinical Audit
(Anaesthetics
Programme.
A work plan will be developed in partnership with
Department)
the Programme Groups.
Participate in the peer
Peer review completed for Lung and Upper GI,
Head of
Completed
Achieved.
review programme
Urology, Colorectal, Head & Neck and
Cancer
Gynaecology. Breast scheduled for June 2015.
Services
Monitor MDT compliance
against the National
Cancer Standards Data
set.
Develop integrated MDT
performance toolkit
including nationally
collected standard/audit
data and local
performance measures to
support MDT functioning.
Key Worker Plan
Cancer Standards data completed annually and
will be reported to MDTs
Head of
Cancer
Services
Annually
Statement included in Cancer
Annual Report
Pathway tool in development.
Head of
Cancer
Services
2014
Pathway tool being trialled in
Lung Cancer Pathway
Deputy Head
of Cancer,
Nursing and
Quality/
Assistant
Director of
Therapies
and Health
Science
Situation
under
ongoing
review.
Will be addressed as part of
Acute Services review.
Discussion has been had with Cancer National
Specialist Advisory Group (NSAG) Core Team
have been had regarding the development of the
National Cancer Standard Database to incorporate
all such information and to become a key source
for Peer Review and self assessment.
Around 80-90% of patients are provided with a key
worker at the point of their diagnosis. Coverage is
not, however, equitable across the Health Board or
for all types of cancer.
•
Key:
Achieved/Will be Achieved
Will be
reviewed in
light of
MacMillan
patient
Funding agreed by MacMillan
satisfaction
for Haematology and Urology
Work Not Commenced/Still Significant Risk
Head and Neck - 1 post in
Carmarthenshire for whole of Health
Board. Need to establish contact
arrangements for patients accessing
services from Bronglais and Withybush
Work Commenced/Making Good Progress
21
One of the CNS posts for
Dermatology has been
successfully appointed.
Further appointments subject
to re advert.
Ref
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
post, pending Health Board
findings
• Upper GI - Gap in Ceredigion, support
approval.
provided by generic oncology nurses in
Pembrokeshire
Urology CNS appointed at
• Haematology – Gap in Carmarthenshire
WGH (October 2015).
and Pembrokeshire
• Gynaecology – Gap in Carmarthenshire.
Support provided by “Women’s Cancer
Nurse” service in Ceredigion (combined
with Breast). Support provided by generic
oncology nurses in Pembrokeshire
It is considered that there is insufficient capacity in
the Urology, Colorectal and Dermatology Services
MN1
Key Worker Plan
A bid for 3 wte Macmillan Dermatology CNSs was
approved by Macmillan in September 2013.
To develop a key worker concept with a patient
and family centred care approach. To ensure key
workers work with the interests of patients in mind,
and tailor care to fit their needs.
Head of
Cancer
Services/Pati
ent
Experience
Manager
September
2015
The Cancer management
team are working in
collaboration with the Cancer
Network to unify the Key
worker concept across the
Health Board.
A ‘Cancer Key Worker
Group’ was established in
March 2015.
MN1
Ensure cancer patients
are supported as they
recover in the community
Key:
Achieved/Will be Achieved
The Health Board has participated in the Macmillan Head of
Practice Nurse Scheme to improve cancer
Cancer
awareness and service within primary care.
Services
Work Commenced/Making Good Progress
22
Ongoing
Practice nurse development
pilot project has been
successful and is being rolled
out and expanded. Hywel
Dda to promote participation
Work Not Commenced/Still Significant Risk
Ref
MN1
MN2
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
of practice nurses.
Development of a
The Health Board is establishing a neutropaenic
Assistant
Neutropaeni
chemotherapy advice line sepsis admission single contact number which will Director of
c admission Agreement reached to link to
ensure patients are supported through the
Clinical
via a single
ABMU 24/7 advice line.
admission process and the admitting teams are
Services
contact point Commitment of funding
aware of treatment requirements. Work around a
Dec 2013
support to ABMU confirmed –
more general advice line is being addresses
Chemothera implementation plan being
through the Oncology Services review
py advice
developed.
line 2014
Develop patient Focused
services
A Macmillan Patient Focused Care Project has
been funded to support the development of cancer
services. Recruitment to commence in Autumn
2013.
Head of
Cancer
Services
MN2
Establish Patient Focused
work stream
Work stream to be sub-group of Cancer
Programme Group.
Head of
Cancer
Services
MN2
Further development of
MDTs
The MDT must also identify the broader care
issues which need to be addressed in order to
maximise the potential for the patient to “return to
normal” post recovery.
Associate
Director of
Clinical
Services via
Oncology
Services
review
Key:
Achieved/Will be Achieved
Post not progressed to March
2015.
December
2015
January 16
May 2014
HB currently working with
Cancer network to progress
this post during 2015.
Cancer Programme Group
has been dissolved. This
work will be undertaken by
the ‘Key Worker Group’
established in March 2015.
MDT leads group has been
implemented in March 2015.
Macmillan funding has been
secured to recruit an Allied
Health Professional to
Potential role for CNS to be explored and
undertake a Health Board
collaboration with third sector organisations
needs assessment for cancer
rehabilitation. Further funding
has been secured to ensure
Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
23
Ref
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
the findings of the needs
assessment are
implemented.
(post advertised February
2015).
MN2
Review oncology services
to ensure they are
designed around meeting
patient needs
The Health Board is planning a review of Oncology
Services with a view to restructuring. Further
information is provided in the Detection Section.
MN3
Improve information and
support provided to
patients with cancer
including their families and
carers through
establishing a Macmillan
Cancer Information and
Support Project against
the Health Board
Site Macmillan Info-Pods
in Bronglais, Withybush
and either Glangwili or
Prince Philip hospitals.
Funding for three Macmillan Cancer Information
and Support Workers (one per county) approved
in 2013. Posts are currently being recruited to and
are planned to be in post early 2014.
Development of
psychological support
services for patients
MN3
MN3
Key:
Achieved/Will be Achieved
Assistant
Director of
Clinical
Services/
Health
Planning
Manager
Head of
Cancer
Services/Pati
ent
Experience
Manager
May 2015
Oncology service review
undertaking in collaboration
with ABMU, final report
pending May 2015.
Achieved
March 2015
Macmillan CISS coordinators in post for 3
counties.
Info-pods to be designed into the development of
the Chemotherapy Units at Bronglais. A pod and
an environment to be installed at the
Carmarthenshire hospitals. Additional information
environment will be installed at appropriate
community settings to support the service.
Modernisatio
n Manager/
Head of
Cancer
Services
May 2015
The Health Board is in liaison with MacMillan
Cancer Care and other agencies regarding the
development of psychological support services for
patients.
Head of
Cancer
Services
Ongoing
CISS open in Pembrokeshire
and locations identified in
other 2 counties. Clear focus
on community outreach
services being progressed
including primary care and
other community locations.
Macmillan project
progressing. However
service improvements not yet
fully realised.
Work Commenced/Making Good Progress
24
September
2015
Work Not Commenced/Still Significant Risk
Ref
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
MN34
Implement Macmillan
Holistic Care Plan for all
Cancer Patients
The Macmillan Holistic Assessment and Care Plan
toolkit is being used/piloted by Lung Nurses in
Ceredigion and Carmarthenshire, and Breast
Nurses in Pembrokeshire.
It is anticipated that it will be rolled out to all cancer
patients post review.
Deputy Head
of Cancer,
Nursing and
Quality
MN5
Embed patient experience
within Cancer Services
The experiences of patients, their families and
carers will underpin all of our work to review,
improve and deliver cancer services. We will adopt
appropriate methodologies to support this process
including surveys, focus groups, stories,
shadowing and observations of care.
Head of
Cancer
Services/Pati
ent
Experience
Manager
The Health Board has supported the Wales
National Cancer Patient Survey and will act upon
its results.
Local patient surveys and stories to be used to
inform MDT development and assessment of
performance.
MN6
Develop service to
manage patients with
metastatic cancer
EOL1
Deliver well co-ordinated
Key:
Achieved/Will be Achieved
Metastatic cancer is being considered by the
National Cancer Implementation Group.
Hywel Dda to work with ABMU to assess the
potential for a South West Service
Specialist palliative care is delivered across Hywel
Work Commenced/Making Good Progress
25
Patient
Experience
Manager/
Deputy Head
of Cancer,
Nursing and
Quality
Head of
Cancer
Services
Medical
September
2015
Holistic needs assessment
being undertaken by the
breast CNS team. This is to
be rolled out to all cancer site
groups following the ‘Key
Worker’ meeting in March
2015, which is supported by
the senior nurse from the
Cancer Network.
See Patient Focussed Care
Manager update under MN2.
Proposal developed for
improving patient and family
feedback at all stages of the
cancer patient experience, to
include systematic use of
experience surveys.
April 14
Patient stories have been
recorded, but not yet routinely
used by MDTs to improve
care. Surveys also
completed, but not across all
cancers.
April 2014
Under consideration via
Oncology Services Review
In place
Achieved
Work Not Commenced/Still Significant Risk
Ref
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
palliative and end of life
Dda Health Board by Specialist Palliative Clinical
Director
care on a 24/7 basis in
Nurse Specialist within 3 counties in each acute
line with published
and community hospitals and community settings
standards and guidance
(including care homes, each of which has a named
(Together for Health
CNS). There is one specialist in patient palliative
Delivering EOL Care,
care facility at Ty Bryngwyn and designated
Welsh Assembly 2013)
palliative beds in other community and acute
hospitals.
7/7 CNS support is in place in all settings. 24/7
Management In place
Achieved
Consultant rotas have a direct responsibility for the lead palliative
inpatient units and support elsewhere, including
care
when necessary direct assessment in any setting.
Palliative Care Consultants participate in the
Medical
Ongoing
Achieved
Regional On Call rota by phone.
Director
Non specialist providers are supported by Health
Medical
Ongoing
Achieved
Board Teams in following existing all Wales
Director
guidance on symptom control and other areas.
Continue to monitor and evaluate the service
Management Annual
Achieved
provided
lead palliative reviews
care
undertaken
Participate in Health Inspectorate Wales Peer
Management Ongoing
Achieved
Review Process for palliative and end of life care
lead palliative
and the development of action plan in line with key care
recommendations.
The Health Board has embraced the development Management Ongoing
Achieved
of Foundations for Change in the delivery of HDHB lead palliative
Health Care for the whole population. End of Life
care
care has been identified as a specific measurable
outcome.
Work with third sector (Marie Curie Nursing
Assistant
December
Current contractual
arrangements reviewed for
Service, British Red Cross, Paul Sartori, Shallom,
Director of
13
Skanda Vale) and health board teams to provide
Strategic
14/15 with responsibility
devolved to County Teams.
integrated approach to care.
Partnerships
Achieved/Will be Achieved
Work Commenced/Making Good Progress
26
Work Not Commenced/Still Significant Risk
Ref
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Devolve the following Service Level Agreements
Achieved
Assistant
December
with the third sector into each respective county
Director of
13
team to ensure they are integrated into mainstream Strategic
palliative care services:
Partnerships
Marie Curie/British Red
Cross Carmarthenshire and
• Marie Curie/British Red Cross –
Marie Curie Ceredigion
Carmarthenshire
Completed
• Marie Curie – Ceredigion
Paul Sartori due to complete
• Paul Sartori Foundation – Pembrokeshire
in April 2014
Support the following third sector organisations in
Continue to support day care
taking forward an agreed model of respite/end of
provision at Shalom.
life care.
Ongoing discussions with
Skanda Vale regarding their
plans to provide nursing
beds.
• Shalom House – Pembrokeshire
• Skanda Vale – Ceredigion
Key:
Achieved/Will be Achieved
Increasing use of CANISC to improve
communication across the pathway.
Medical
Director/Hea
d of Cancer
Services
Introduced with the Marie Curie Nursing Service a
service to improve access for patients with
dementia to specialist palliative care
Head of
Community
Nursing
Work Commenced/Making Good Progress
27
Ongoing constantly
developing
system
Funding for posts available
and achieved, although cover
for absence is challenging.
Clinicians are now entering
data directly and work needs
to be done to maximise the
benefit from the potential data
set.
Achieved.
Partial
implementati
on June
2013.
Further
appointment
to be made.
Work Not Commenced/Still Significant Risk
Ref
EOL2
EOL3
EOL4
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Pathways development of Advanced Care Plan
Medical
Ongoing
Achieved
documentation. Implementation on going.
Director
3 counties Palliative Care Implementation Group
Achieved
Management Meet
has been established in HDHB. This board
lead palliative quarterly
supports each county’s palliative care
care
implementation plan.
Online Support/Use of ICP Three County P.C.I.G. and work plan agreed.
Medical
Ongoing
Training programme
developed and available.
Launch of Advanced Care Plan Document and
Director
approach. The ICP is promoted within the Health
Roll out of programme
subject to on going
Board with designated staff undertaking the rolling
training programmes to all staff and partners in
programme of personal
care delivery.
development.
Clear Funding Streams
Allocation of funding is co-ordinated via the Hywel
Management In place
Achieved. Funding from
Dda Implementation Board. The funding is utilised lead palliative
2014/15 will be allocated
effectively and a number of key recommendations
care
through as part of the Health
have been implemented.
Board’s core funding.
Need for ongoing assessment of unmet needs with Medical
Ongoing
Will be set out in the
Palliative Care Services.
Director
Palliative Care
progress/annual report.
Ensure the experience of
I Want Great Care survey questionnaire
Clinical
Underway
Achieved
patients and their families commissioned by the All Wales Implementation
Nurse
and carers underpins
Board for Palliative Care. All patients and / or
Specialist
service improvement and families seen by the service with the exclusion of
(Macmillan)
delivery.
those whose condition made it inappropriate are
offered I Want Great Care questionnaire.
Audit of 3 years data completed and to be
Lead CNS
Underway
In Audit programme.
presented to teams. Develop further patient
Palliative
experience surveys across the Health Board with
Care
focus on end of life. In addition, Health Board
developing a “patient stories” approach to
capturing patient and carer experience to inform
service development.
Ongoing
Achieved/Will be Achieved
Work Commenced/Making Good Progress
28
Work Not Commenced/Still Significant Risk
Ref
EOL5
EOL6
EOL7
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Information and awareness of patient stories
Patient
should be used to inform service improvement and Experience
delivery.
Manager
End of life will cut across all Population Health
Medical
November
Need to improve further
Achieved
Groups - currently being established
Director
13
assessment and
understanding of
Roll out of the implementation of the Advanced
Medical
This has
Achieved
performance against
Care Plan Documentation and Education.
Director
commenced
preferred place of dying
(Sept 13) within acute setting. This
ongoing
will be guided by work
Continued use and audit of Integrated Care
Medical
This has
Achieved
being undertaken by end
Priorities (ICP).
Director
commenced
of life care group and
(Sept 13) national work on
ongoing
developing outcome
GP palliative care registers established.
Medical
This has
Achieved
Director
commenced
(Sept 13) –
ongoing
Support people who die in Care Home Support Team (CHST) established.
Management In place.
Achieved
usual place of care
Evaluation supporting improved care and
lead palliative
increased support of care home staff. Training and care
Annual
education lead by Specialist Palliative CNS to
evaluation
improve patient and family involvement in
advanced care planning and identifications of
preferences.[ DOC: EOL care in HDHB Care
Homes. HDHB Advanced Care documentation]
Just in case boxes rolled out within the Health
Palliative
Annual
Achieved
Board
Care
evaluation of
Medicines
service
management
Advisory
Support people with
HDHB doc Foundations for Change Outcome
Management Ongoing
palliative care needs on a measures. Development Of Integrated Services
lead palliative
SLA with Cruse now
Primary Care Practice,
with Primary Care and Social Care. Development
care
extended to March 2015
Achieved/Will be Achieved
Work Commenced/Making Good Progress
29
Work Not Commenced/Still Significant Risk
Ref
II1
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Palliative Care and
Of Integrated Services with Primary Care. Doc
based on successful regional
Respite.
“End of Life Care in HDHB 2013” partners, Local
)
approach.
Authority and voluntary agencies.
Regional workshop held with
Currently the Health Board are working specifically Assistant
January 14
MCNS in December 2012,
with the following third party organisations to
Director of
agreement reached to
enhance current services for family carers:
Strategic
commission new service in
Work with third sector
Partnerships
Ceredigion from April 2014
organisations to support
with plans to roll out across
• Cruse Cymru to develop a regional
carers of those with
HDUHB by October 2014.
bereavement service
Palliative Care needs.
• Marie Curie to pilot their new carers
Agreement now reached to
service for end of life patients across the
jointly promote this service in
three counties
the form of literature and
• Further development of the Cancer
circulation of details across
Information Service across
Primary & Secondary Care.
Carmarthenshire
• Development of specific respite services
Due to the withdrawal of beds
with Shalom House in partnership with
at Shalom the emphasis has
Crossroads.
now changed to promoting
Day Care and the links to
carer support.
All Psychological Support
provided through the
Voluntary sector has been
shared with the Oncology
Project Review Board.
Discussions to be held on The Health Board continues to use CaNISC for the NWIS
Action is subject to national
an all-Wales basis to
management of cancer patients from first
review as part of plan for
introduction of a ‘Single
resolve the integration
outpatient appointment to the commencement of
issues between CaNISC
their treatment.
Patient Pathway’, and
proposed implementation of a
and Myrddin to ensure
new unified tracking system
efficient use of both
The Health Board’s primary patient administration
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
30
Ref
II1
II1
II2
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
systems and assure data
system is Myrddin upon which all activity is
throughout Wales.
December
quality between the two.
recorded. This does not readily translate into
2015
The Welsh Clinical Portal
CaNISC so that CaNISC can be used to map the
is targeted to achieve this whole patient pathway. In addition, because
integration; timescales
CaNISC is only used to the point that a patient
awaited.
receives their first definitive treatment it is not
currently possible to automatically provide
information on the whole care pathway for
individual or groups of patients. The use of two
systems also results in an administration burden
which could be eradicated if there was either a
single system or the systems were integrated
properly.
Improve compliance with
The Health Board will use audit results to monitor
Head of
Annual
Improvements achieved. In
data collection
improvements in compliance with data
Cancer
basis
several MDT pathways.
Progress to be assessed via
requirements for key
completeness and take action to improve these as Services/Assi
indicators, e.g. stage of
required.
stant Director
Peer Reviews.
cancer at diagnosis.
of Clinical
Colorectal, lung, upper GI,lower gastro, breast
Services/
undertaken on an annual basis.
Deputy Head
of Cancer,
Nursing and
Quality
Develop MDT specific
Development of a specific tool utilising the pathway Head of
2014
Pathway tool being trialled in
reports and information
data from CaNISC has been commenced with the
Cancer
Ling Cancer Pathway.
DSU. This will allow performance data to be
Services/DS
strategies to ensure
presented to MDTs. The inclusion of other data,
U
clinicians own the
information and are in a
such as cancer staging, will require interrogation of
position to act upon
the CaNISC database and will be developed as a
findings derived
second phase.
therefrom.
Annual reporting of
Compliance is reported annual to the Health Board Head of
Annually
Via annual reports.
performance
and from 2013 this will form part of the Cancer
Cancer
Annual Report.
Services
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
31
Ref
II3
II3
TR1
TR1
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Publish Annual Report
Welsh Government provides Local Health Boards
Head of
Annually
Achieved.
with trend analysis of cancer incidence, mortality
Cancer
and survival to inform local service planning which Services
is included in the Cancer Annual Report.
Participation in Audit and
Analyse and benchmark information to facilitate
Head of
Ongoing
Participation in Peer Review
Peer Review.
and inform Local Health Board’s participation in
Cancer
and national audit achieved.
national clinical audit and peer review.
Services
/Cancer
Network
Explore options and make Oncology and Palliative Care clinicians and other
Clinical Lead 2015/16
Oncology services review
currently in progress.
necessary changes to
oncology nursing and research staff need to be
for Cancer
enable HDHB to consider available and appropriate research infrastructure in
collaborating with other
place to enable such trials to be opened to patients
Health Boards on
at HDHB.
oncology and palliative
Achieved.
care studies.
Trials are open in every hospital (4 sites).
Information is provided as
part of the trial process.
Ensure that patients who are involved in clinical
Patient
research are provided with appropriate information Experience
and adequate support to participate safely
Manager
Work with Abertawe Bro
Integration achieved and
Liaison between HDHB and ABMU oncology
Clinical Lead 2014/15
Morgannwg University
teams facilitated by WCRN and NISCHR CRC
for Cancer
oncologists in ABMU offer
Health Board (ABMU), the should increase participation in clinical trials
access to trials as
appropriate to the patient’s
Wales Cancer Research
involving less common cancers depending on the
Supported by
Network (WCRN) and the local research strengths and interests, and
particular circumstances.
R&D Office
National Institute for
available resources.
and
Social Care and Health
Individual
Research Clinical
Disease
Research Centre
Specific
(NISCHR CRC) to
Consultant
increase the number of
Leads
trials on the research
portfolio for less common
Achieved/Will be Achieved
Work Commenced/Making Good Progress
32
Work Not Commenced/Still Significant Risk
Ref
TR1
TR1
TR1
TR2
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
cancers.
Build on existing
Collaboration with ABMU will ensure that cancer
Led by
2015/16
Collaboration with ABMU is in
relationships with the
patients are given the opportunity to participate in
place, but more work needs
individual
ABMU Cancer Centre to
radiotherapy trials, provided they are able to travel Health Board
to be done to ensure access
increase opportunities for to ABMU to do so.
oncology
to trials is maximised across
HDHB patients to become
teams
all cancer types.
involved in radiotherapy
trials.
Interface meetings with
ABMU Cancer Management
Team commenced March
2015.
All cancer multidisciplinary Cancer MDTs receive a copy of the current South
Led by
2013/14
Achieved
teams (MDTs) to continue West Wales Research Portfolio, which includes
Cancer
to be made aware of
oncology trials, from NISCHR CRC. Where HDHB MDTs lead
current open cancer trials R&D Department receives information about active
and to actively participate and forthcoming cancer trials in the area from the
Supported by
in the planning of future
WCRN, the R&D office will ensure that these data
R&D Office
trials.
are shared with cancer MDTs.
Where research studies
Review and development of HDHB’s patient
Led by
Patients have access to trials
2014/15
are not available locally,
referral pathways may enable cancer patients to be appropriate
open in ABMU, but may be
facilitate HDHB patient
offered the opportunity to participate in research
teams
unable to participate because
referrals to other Health
which is undertaken at neighbouring HBs and NHS responsible
of personal circumstances
Boards and NHS Trusts.
Trusts. The forthcoming Focus4 trial (colorectal
for patient
(e.g. living a distance away
Liaison with local NISCHR cancer) will demonstrate how this is working in
referral
from the Cancer Centre.
CRC Network Manager to practice.
pathways
Progress subject to ongoing
facilitate this.
within HDHB
review.
The R&D Department to
Achieved/Will be Achieved
R&D Office,
and
Individual
Disease
Specific
Consultant
The R&D office has representation on the HDHB
R&D Office
2015/16
Included in R&D Work Plan
Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
33
Ref
TR2
TR2
TR3
TR3
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
maintain close contact
Research Nurse Group and will explore
and progress monitored at
with cancer research staff opportunities to liaise further with cancer
monthly R&D Team
to discuss potential
physicians in order to discuss and promote their
meetings.
funding opportunities for
research interests and priorities.
research.
Ensure that all new
Improve current systems and processes to
R&D Office
2015/16
New NISCHR ETC process
research projects are
highlight any ETCs or service support costs, and
implemented April 2014.
reviewed to highlight any
adapt these systems, including communication
excess treatment costs
channels, to allow for forthcoming changes
(ETCs) or service support imposed by NISCHR whereby ETCs will be
costs that may need to be submitted via the R&D Department.
applied under the
NISCHR Attributing Costs
of R&D (AcoRD)
guidance.
Exploring issues of the
Discussions between the R&D and Finance
R&D Office,
2015/16
Business Case under
cost saving effect of taking Departments to explore the potential for recovering Finance
development.
part in clinical trials, such
cost benefits should enhance the infrastructure for
as study drugs being
conducting clinical trials at HDHB.
made available free of
charge, resulting in a
negative cost to the
Health Board which could
be recouped and
reinvested in the HB’s
research infrastructure.
2013/14
The cancer research
Existing relationships with the HDHB research
Cancer
Achieved. Documents are
teams will continue to
community will be built upon to continuously
research
now submitted to NISCHR
PCU following a quality check
work within the current
improve the standard of Site Specific Information
teams within
research governance
forms submitted to the NISCHR Permissions
Hywel Dda
by the R&D Office.
processes, working
Coordinating Unit (PCU).
Health Board.
closely with the R&D
R&D Office,
Department.
Ensure all processes
All staff involved in recruiting patients into cancer
R&D Office
2015/16
Progress to be monitored via
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
34
Ref
TR3
TR4
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
involved with conducting
research studies will work to appropriate HDHB,
random research governance
clinical trials are carried
West Wales Organisation for Rigorous Trials in
audits
out according to Standard Health (WWORTH), NISCHR CRC or trial specific
Operating Procedures
SOPs as required, and compliance with this will be
(SOPs) which are
checked via random research governance audits.
compliant with Good
Clinical Practice (GCP).
Ensure that all research
Achieved. All UHB staff
All staff working on cancer studies which are
Deputy Head 2013/14
staff involved in Clinical
involved in CTIMPs must
CTIMPs will attend GCP training as required by the of Cancer,
Trials of Investigational
provide evidence of up-toHealth Board, and the R&D Department will
Nursing and
Medicinal Products
date GCP training in order to
continue to maintain a training record of staff
Quality (for
(CTIMPs) are GCP
obtain R&D approval.
trained via in-house or external courses (NISCHR
nursing side)
trained, and liaise with
CRC, online training, etc).
– Clinical
NISCHR CRC to ensure
Lead for
that HDHB in-house GCP
Cancer
training provision is
synchronised with the
R&D Office
NISCHR CRC Training
Programme to maximise
opportunities for staff to
attend appropriate training
as locally as possible.
Encourage clinicians and
NISCHR AHSC funding calls and any other
R&D Office
2013/14
Achieved. Details of funding
calls are disseminated and
Allied Health
external research funding opportunities are
help is provided for grant
Professionals (AHPs) to
circulated to all HDHB and academic partner
applications.
apply for NISCHR AHSC
research staff. Support is provided by the R&D
research funding (e.g.
Department to help HDHB staff to produce and
Clinical Research
submit their funding applications.
Fellowships, Research for
Patient and Public Benefit
award scheme) and other
research grant awards
(e.g. Cancer Research UK
Research Bursaries and
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
35
Ref
TR4
TR4
TR5
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Clinical Scientist
Fellowships).
Ensure that NHS
To be included in current revision of job planning
Director of
November
Achieved via job planning.
consultants, where
process across Hywel Dda.
Clinical
2014
appropriate, have
Services
adequate time allocated in
their job plans to enable
them to formulate
research proposals,
discuss clinical trials with
their colleagues and
patients, and recruit
subjects into cancer
clinical trials.
Explore options to provide Discussions were held in February 2013 with the
Therapies &
2015/16
Health Board Research
and support protected
Assistant Director of Therapies & Health Science,
Health
Strategy for Nurses & AHPs
Science,
research time for clinically- the Assistant Director of Nursing (Workforce), the
approved in 2014. Although
active staff including
Head of Learning & Development and the R&D
Nursing
no nursing / AHP staff are
nurses and AHPs.
Managers to explore the concept of introducing
Workforce,
undertaking cancer specific
‘research leave ’ as an alternative to ‘study leave’,
Learning &
research projects at present,
Development
where staff could be released for an agreed
the Strategic Education &
number of hours/days over a set period to work on and R&D
Leadership Group (suba named research project.
Departments
committee of Workforce &
OD Committee) will lead
implementation of the
strategy.
Collaborate with NISCHR Following the WCB’s withdrawal of HDHB’s license R&D
2014/15
R&D dept liaising with
CRC to promote and
at Withybush General Hospital (WGH) in early
Office/Pathol
Pathology Service to explore
the options to enable the
enable the use of key
2013 as a result of Pathology services being
ogy
research facilities such as consolidated to Glangwili General Hospital (GGH), Department
UHB to meet the
the Wales Cancer Bank
HDHB now has to pay ABMU to process, store and
requirements of the Human
Tissue Act for research
(WCB), Wales Cancer
transfer its patients’ tissue samples to WCB. The
Trials Unit (WCTU), Wales R&D Department will continue to explore the
activities at the UHB.
Cancer Research Network options to enable the reinstatement of HDHB’s
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
36
Ref
TR5
TR5
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
(WCRN) and the Marie
WCB license in the future, in order for the HB to
Curie Research Centre
meet the WCB’s targets (20% of people diagnosed
(MCRC).
with cancer agreeing to donate samples to WCB
by 2016).
Where possible, engage
with research partners to
maximise HDHB’s
collaborative opportunities
for cancer research.
Liaison with NISCHR
CRC and WCRN to
facilitate this.
Liaise with partner
organisations to report on
the Performance
Measures relating to
research, as outlined in
the ‘Together For Health –
Cancer Delivery Plan’
(Welsh Government,
2012): Percentage of
patients recruited into high
quality clinical research
(Target: Double
recruitment to rarer cancer
trials by 2016);
Percentage and number
of people diagnosed with
cancer who consent to
donate samples to the
Achieved/Will be Achieved
All potentially eligible patients for open trials in the
Health Board are being identified through MDT and
screening for clinics.
Maximise opportunities for HDHB staff to
collaborate with research partners by raising
awareness of ongoing or forthcoming cancer trials
and by facilitating attendance at cancer-related
conferences, meetings and events which could
increase research activities via networking.
Head of R&D
Ongoing through networking
and via regular meetings
between R&D and NISCHR
CRC and WCRN (every 2
months, since September
2013).
2014/15
The Health Board employs
research nurses on each
hospital site.
R&D Office
Involvement
of
NISCHR
CRC
Associate
Director
Clinical
Services
Existing collaborations between HDHB R&D
Department, other Health Boards and NHS Trusts
and the local Cancer Research Networks will be
expanded to include plans to achieve targets
relating to research outlined in ‘Together For
Health – Cancer Delivery Plan’. Specifically, how to R&D Office
implement the strategies relating to Clinical Trials
and Research, as suggested by the Cancer
National Specialist Advisory Group in June 2012, in
order to improve outcomes and patient experience.
Work Commenced/Making Good Progress
37
2014/15
The 2014/15 Annual Report
for recruitment to clinical trials
in South West Wales is due
to be published by ABM UHB
at the end of May 2015 (this
will include the 2014/15 data
for HDd UHB).
During 2014/15, 101 newly
diagnosed HDd UHB patients
were consented by the Wales
Cancer Bank. This
represents 4% of newly
diagnosed cancers during the
Work Not Commenced/Still Significant Risk
Ref
TR6
TR6
TR6
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
Wales Cancer Bank
period.
(Target: 20% of people
diagnosed with cancer
The Wales Cancer Bank
agreeing to donate
advised the Health Board in
samples to Wales Cancer
January 2015 that due to a
Bank by 2016).
restructuring of NISCHR
funding, the WCB had
Liaison with various
insufficient funding to support
partners to facilitate this
the continuation of WCB
i.e. Velindre NHS Trust,
activity in HDd UHB wef 1
WCB, WCRN, WCISU,
April 2015. This programme
Cancer NSAG sub
has therefore ceased.
groups, Cancer
Implementation Group.
Build upon the networking Increase the number of collaborative research
R&D
2014/15
SWW Hub Coordinator
(appointed in January 2014)
and collaborative
projects with academic and industry partners, and
office/NISCH
will lead on this.
opportunities being
explore resulting opportunities to protect and
R AHSC Hub
established via HDHB’s
commercialise any potential intellectual property
partners
involvement in the South
rights.
West Wales NISCHR
AHSC Regional Hub.
Collaborate with Health
Assess the HB’s potential involvement in cancer
Oncology
2014/15
Ongoing - Research Nurse
teams/To be
Research Wales and the
commercial studies in the future, including the
(Commercial and Internal)
confirmed
has met and continues to
AHSC Industry Managers need to ensure sufficient oncology clinicians and
and Industry Lead to
nurses are in post, and other appropriate resources
meet with potential
develop the industry
such as clinical space and equipment are available R&D Office
researchers.
research portfolio within
to meet the requirements of a given research
HDHB.
protocol. Raise awareness among the HDHB
research community of opportunities to participate
in commercial research studies, including those
undertaken in partnership with Small and Medium
Enterprises (SMEs).
Through the Health
Raise awareness of Commercial Research
R&D Office
2013/14
Achieved.
Research Wales Industry opportunities by liaising with cancer research
Achieved/Will be Achieved Work Commenced/Making Good Progress Work Not Commenced/Still Significant Risk
38
Ref
TR6
Key:
Bwrdd Iechyd Prifysgol Hywel Dda University Health Board
Progress Against the Actions Set Out in the Cancer Delivery Plan 2013 – 2016 (update as at March 2015)
Planned Actions 2012Current Status/Expected Outcomes
Responsible Completion Progress
2016
Lead
date
teams to undertake feasibility assessments of new
Manager’s liaison with
cancer trial proposals submitted to HDHB via
HDHB’s Research Nurse
for Commercial studies,
Health Research Wales.
prioritise nationally
approved UK Clinical
Research Network
(UKCRN) portfolio studies
and those on the NISCHR
Commercial Research
Register.
Promote opportunities HB- Generate promotional material to publicise the
R&D Office
2013/14
wide between cancer
facilities and resources which are available to
Opportunities for BGH trials
research teams and the
HDHB researchers undertaking cancer trials at all
to be hosted at Aberystwyth
Clinical Research Centre
HB sites to encourage an increased level of cancer
University are explored for
at Prince Philip Hospital
research activities across HDHB.
each trial on an ad hoc basis.
(PPH), and explore
opportunities for research
staff at Bronglais General
Hospital (BGH) to use
dedicated research space
in partner organisations’
neighbouring premises i.e.
Aberystwyth University.
Achieved/Will be Achieved
Work Commenced/Making Good Progress
39
Work Not Commenced/Still Significant Risk