Social Inclusion /Theory of Mind: More than words and sounds? Anne FULCHER, Aleisha DAVIS, Katie NEAL, Tracy HOPKINS, Alyshia HANSEN, Janna WELLER AGBell LSLS Symposium 10th July , 2015 Baltimore, Maryland • 45 years of service to >2000 children • Focus on Listening and Spoken Language • Family-centred Transdisciplinary • Integrated Implant and Early Intervention Program • Families from diverse cultural and linguistic background • Individual, Group and Teleintervention Programs • 5 Centres with services across ACT NSW Tasmania • Children with all range of needs, all levels and types of hearing, all devices options • Currently 250 children 0-6yrs, 135 children 7yrs plus • 45 years of service to >2000 children • Focus on Listening and Spoken Language • Family-centred Transdisciplinary • Integrated Implant and Early Intervention Program • Families from diverse cultural and linguistic background • Individual, Group and Teleintervention Programs • 5 Centres with services across ACT NSW Tasmania • Children with all range of needs, all levels and types of hearing, all devices options • Currently 250 children 0-6yrs, 135 children 7yrs plus Transdisciplinary approach to service • Involves a team of professionals who – work collaboratively, – share the responsibilities of • Evaluating, Planning, & Implementing services – Families are valued members of the team, involved in all aspects. – One professional is chosen as the primary service provider, and acts as the conduit for the expertise of the team. – The full team remains involved, and the primary provider reports back to the team constantly. What does this provide in context of hearing loss ? Pediatric Audiologists ENT/ Medical Specialists Therapists/ Educators Child and Family Counsellors Family Guidance in 2015? Since 2010… • • • • Age appropriate language AND speech Possible by 3 years of age Improvements by 4 and 5 years If: – UNHS – 1-3-6 treatment – CI <18m – No other diagnosed additional needs Fulcher, Purcell, Baker & Munro, 2012; May-Mederake, 2012; Sharma, 2009; Wie, 2010; Keeping up with typical hearing peers • Possible at all ages of Early Intervention, • From birth if screening, diagnosis, intervention happens appropriately and no other impacting factors • Not ‘dipping out’ of the average range = no ‘catching up’ to do NOT YET! Are standardized scores enough? • What are ‘outcomes’? • What are our ultimate goals? • What are the families’ ultimate goals? What is the purpose of language? • Definition of “successful communication”? • IDEAs? Well Spoken “Language” But “COMMUNICATION”= how it is used Social Success & Inclusion Social Skills What do we mean? Social skills: ways of dealing with others to create positive interactions; the route to creating and developing relationships children learn social skills through experience with peers/parents; FEATURES: • clear communication • consideration of feelings of others • responsibility for actions • able to control themselves • able to assert themselves (Mazarin, 2015) “Pragmatics” “Pragmatics” An individual may say words clearly and use long, complex sentences with correct grammar, but still have a communication problem - if he or she has not mastered the rules for social language FEATURES: • saying inappropriate or unrelated things during conversations • telling stories in a disorganized way • having little variety in language used “Pragmatics” [HANDOUT] 3 Major Communication Skills • Using language for different purposes – – – – – • greeting (e.g., hello, goodbye) informing (e.g., I'm going to get a cookie) demanding (e.g., Give me a cookie) promising (e.g., I'm going to get you a cookie) requesting (e.g., I would like a cookie, please) Changing language according to the needs of a listener or situation, such as – talking differently to a baby than to an adult – giving background information to an unfamiliar listener – speaking differently in a classroom than on a playground • Following rules for conversations and storytelling – – – – – – – taking turns in conversation introducing topics of conversation staying on topic rephrasing when misunderstood how to use verbal and nonverbal signals how close to stand to someone when speaking how to use facial expressions and eye contact Theory of Mind What is Theory of Mind? • The ability to make inferences about the beliefs and desires of other people • Mentally put ourselves in another’s shoes and have a sense of what they are thinking/feeling Rachel knew her mother would be proud of her The audiologist wondered what her colleagues would think of her new haircolour?? How do they feel? hmm Iconic “False Belief” Task VIDEO: Typical hearing child failing False Belief VIDEO: Typical hearing child passing False Belief task Social Skills, Inclusion & Outcomes Research social outcomes What can happen if our social skills; pragmatics and ToM are compromised? What we know… HEARING LOSS AND MENTAL HEALTH • poorer social relations • varying degrees of psychological distress • stress, anxiety, loss of security, depression, loneliness, low self-confidence, shame, and anger were commonly associated with living with hearing loss (Hogan et al.,2001). More recently... HEARING LOSS AND HRQoL Over the past 10 years two population studies have reported an association between hearingrelated social participation difficulties and reduced HRQoL…and mental health. Cummins’ (2010); Hogan et al. (2012) Some encouraging news? First Voice Social Inclusion Study Benchmarking the social inclusion (SI) of children with hearing loss educated using a listening and spoken language approach Dr Gabriella Constantinescu, A/Prof Dimity Dornan, Dr Rebecca Phillips and Aleisha Davis First Voice: Who are we? Established in 2010 as the National Voice for member centres whose primary focus is the provision of listening and spoken language to children with hearing loss (HL) Have the largest cohort of children with HL in the world, supporting more than 1,000 children with HL About 720 children in early intervention About 40% of children have a cochlear implant Aims Aim 1: To review the literature and develop a model for defining and evaluating SI Aim 2: To develop a purpose-designed parent-report survey to measure SI Aim 3: To compare the SI of young children with HL educated using a listening and spoken language approach with the SI of their hearing peers Model of SI Overarching definition: SI refers to the connectedness of the individual with their social setting rather than purely their ‘presence’ The 5 Faces of SI: Personal independence and selfdetermination Health and access to services Education Interacting with society and fulfilling social roles Economic participation of the parent Education participation Education and skills Model of SI Overarching definition: SI refers to the connectedness of the individual with their social setting rather than purely their ‘presence’ The 5 Faces of SI: Personal independence and selfdetermination Health and access to services Education Interacting with society and fulfilling social roles Economic participation of the parent Social networks Social participation Acceptance Role functioning Behaviour Social resources Online Survey The 5 Faces can guide the selection and development of surveys to address the breadth of SI Developed an online parent-report survey about their child’s SI related to the 2 faces of ‘Education’ and ‘Interacting with society and fulfilling social roles’ Questions addressing the 2 Faces were selected from a national survey – the Longitudinal Study of Australian Children (LSAC) This allowed benchmarking of the findings against this national dataset Comparing the SI Inclusion criteria for children with HL: Aged 4-5 years Permanent bilateral HL Optimally aided (hearing aids and/or cochlear implants) Enrolled in a listening and spoken language early intervention for a minimum of 6 months No physical or cognitive difficulties impacting on learning. Inclusion criteria for typical hearing children: Aged 4-5 years No health conditions. Demographics Characteristics Children with HL (n = 78) Typical hearing children (n = 3,265) Age M = 4.93 years (SD = 0.54) M = 4.74 years (SD = 0.22) Gender 43 Males; 35 Females 1613 Males; 1652 Females Amplification type • 38 HA2 -Age at HA fitting M=1.04 years (SD=1.18) • 14 HACI -Age at HA fitting M=1.32 years (SD=1.19) -Age at implant M=2.50 years (SD=1.17) • 26 CI2 -Age at 1st implant M=1.33 years (SD=1.02) Age HL identified M = 0.90 years (SD = 1.19) Age enrolled in First Voice M = 1.32 years (SD = 1.28) Vocabulary M = SS 95.24 (SD = 19.81) Language M = SS 93.07 (SD = 19.82) Speech M = SS 93.26 (SD = 16.42) Assessed using the PPVT-4 Assessed using the PLS-4/ CELF-P/ CELF-4 Assessed using GFTA-2 Study Findings Overall Finding: children with HL usually demonstrated comparable SI outcomes to typical hearing children. Education face of SI Parents of children with HL were usually more likely than those of typical hearing children to be ‘satisfied’ rather than ‘very satisfied’ with the education program (p=0.05) This may be due to the relationship and communication between the parents and the teacher/school. Implication for practice: To enhance satisfaction, clinicians may need to guide parents in advocating for their child’s individual needs and level of communication needed Study Findings Interacting with society & fulfilling social roles face of SI Children with HL usually had a similar level of participation in activities as their typical hearing peers, if not better e.g. social activities such as sports or community events, reading a book (p=0.004), or playing with toys or games (p=0.02). This may be due to parents being empowered to readily involve their child in social activities. Children with HL usually had comparable behaviours, emotions and relationships to children with typical hearing, and were usually more likely to have appropriate conduct skills. This may be due to parents facilitating socially appropriate behaviours through modelling the use of appropriate language in context. Implication for practice: Clinicians may need to continue to empower parents and support them in facilitating behaviours Take home messages Need to consider how connected a child is with their social setting rather than their presence The 5 Faces model can be used to guide the development of surveys to benchmark SI Children with HL educated using a listening and spoken language approach usually demonstrate comparable SI outcome to typical hearing children Findings from the First Voice Sound Connections study are currently under peerreview and implications for practice are being shared with member centres Theory of Mind Summary of general research in Theory of Mind ToM skills: • predict several key childhood competences: e.g., social interactional skills, and consequently interactions and peer popularity (Wellman & Liu, 2004) • positively correlates with teacher ratings of social competence (Liddle & Nettle,2006) Theory of Mind Framework Neuro Linguistic ToM Linguistic/ Cognitive Pragmatic Theory of Mind Research: 1. Neuroscience: Rebecca Saxe: How we read each other's minds | TED Talk ... • group of brain regions in human cortex that selectively and specifically underlie ToM skills • more diffuse areas in children • brain regions for Theory of Mind: how does the brain – an electrical and biological machine – construct abstract thoughts? • adult moral judgements can be altered using magnetic pulses • little advice re optimizing these areas to date RTPJ brain area for ToM SAXE VIDEO snapshot Aged 5-12 years RTPJ brain area for ToM “Diverse Beliefs” In ToM Development 2. Linguistic/Cognitive View of ToM Development • Propose interface between language/cognition development and ToM • From 2-4y, no research to support influence between language/cognition and ToM • After 4y, at false belief attainment stage, the role of the mastery of syntactic structures indicates language development assists ToM reasoning. • For each ToM development, parallel language/cognition developments can be described Lingua. 2007 Nov; 117(11): 1858–1878. Jill de Villiers The Interface of Language and Theory of Mind Pragmatic Approach to ToM 3. Pragmatic Approach to Development of ToM • propose children develop ToM through interpersonal processes • postulate the emergence and development of ToM system driven by children's interactive experiences • examine communication between e.g., the role/format of mother/father–child communications Jihyun Sung, Hui-Chin Hsub, 2014; Liszkowski (2013) Where does it start? VIDEO: Mother and Baby talking Baron_Cohen,1995 Application of Theory of Mind to Other Fields Are humans the only ones with Theory of Mind? Tomasello et al., 2003 M. Tomasello, J. Call, B. Hare Chimpanzees understand psychological states - the question is which ones and to what extent Trends Cogn. Sci., 7 (2003), pp. 153–156 Application of Theory of Mind to Other Fields In related fields: • Autism: Simon Baron-Cohen • Down’s Syndrome • Vision • Mental Health: Schizophrenia/ Dementia What happens if we don’t develop ToM skills? Video: Is it ok to lie? When? “Imagination is more important than knowledge” Albert Einstein Seigal & Peterson,2003; Wellspring, 2010; Chandler, Fritz & Hala, 1989)Smallscale deceit: Deception as a marker of two- three- and four-year-olds’ early theories of mind. Child Development. TOM outcomes HL research Staged Acquisition of ToM (Wellman & Peterson, 2009) • consistent five-step ToM stages confirmed in deaf children • deaf children substantially delayed behind hearing children – understanding pretending – false belief – other ToM concepts • corresponded to delayed uptake of social pretend play in the deaf children TOM outcomes HL research Staged Acquisition of ToM (Wellman & Peterson, 2009) • if social pretence understanding is included, both deaf and hearing children’s ToM sequences shown to extend to six sequential developmental steps. • deaf children understood social pretending at an earlier step in the ToM sequence than hearing children, but at later chronological ages. • placement of pretence relative to other ToM milestones varied with hearing status. TOM outcomes HL research Systemic Acquisition of ToM Skills • Prerequisite for passing false belief tasks is the understanding the difference between what is said or thought may not be the truth • Belief that language is modular and doesn’t overlap with other cognitive processes • Acquisition of syntactical structures impacting on way false belief tasks are structured and results levels of syntax intimately related to ToM development Crain & Thornton (1998) TOM outcomes HL research De Rosnay Combines 4 lines of research: Language and conversation play a role in individual development: 1. children with advanced language skills are better at mental-state 2. 3. 4. understanding than those without advanced language skills deaf children born into non-signing families lag in mental-state understanding exposure to maternal conversation rich in references to mental states promotes mental-state understanding experimental language-based interventions need exploring Harris, de Rosnay, Pons, 2005; De Rosnay & Fink, 2013; TOM outcomes HL research ?? the mechanism by which language and conversation help children's understanding of mental states. 3 competing interpretations: 1. lexical enrichment (the child gains from acquiring a rich mental-state vocabulary), 2. syntactic enrichment (the child gains from acquiring syntactic tools for embedding one thought in another), and 3. pragmatic enrichment (the child gains from conversations in which varying perspectives on a given topic are articulated). Pragmatic enrichment emerges as the most promising candidate. Harris, de Rosnay, Pons, 2005; De Rosnay & Fink, 2013; TOM outcomes HL research • sequential progress up scale consistent across 3 disparate/contrasting cultural groups _ (e.g., United States vs. China vs. ‘deaf’) • extensive delay: deaf children vs. U.S. and Chinese preschoolers • deaf children of DEAF parents do better?? Why? • deaf children can continue to acquire ToM skills up to 10 - 16 years (Wellman, Fang and Peterson, 2011) Nicastri et al., 2014 • Unilateral CI’s vs typical hearing • Matched for CA and language level (WNL) • No sig. difference in ability to comprehend inferences • Sig. difference in ability to comprehend figurative language/metaphors (“a stench of failure”…) Translational research: what were we seeing in clinical practice? • How do we really monitor and teach social skills and development as part of a Listening and Spoken Language program? • Past parents and students qualitative experiences and feedback and focus in area Need for evidence What did we do next? ACTION!!! Outcomes collection: Methodology • Devised 6 step assessments • What did it look like? _[See Ax Handout] • Based on collaboration with Peterson/Crain Method • Assessment in two month window • Graduates December 2012 (5/6yrs of age) • 6 step Theory of Mind scale of tasks (Wellman et al., 2011) – Each step taps into a different aspect of hierarchical development – No rigorous norms have been published – Minor changes to match local experience e.g. Cheerios→ Weetbix ToM Assessment Overview • Description of stages – What does each ToM stage mean? – Can we link these ToM stages to language skills – Video Ax examples (3) Outcomes collection: Results • Graduating outcomes 2012 – 2014 • Demographics RESEARCH QUESTIONS: • Typical vs atypical acquisition? • Delayed vs non-delayed acquisition? • Relationship to language skill? • Contribution from other factors? – SEIFA, siblings, engagement, device, language exposure, level of hearing loss, service level, preschool/child care attendance, age of fitting, age of entry to EI, age of diagnosis, level of listening, Outcomes: Theory of Mind acquisition • Initial results consistent with literature indicating higher percentage of children with atypical acquisition. • Significant difference for children with bilateral hearing loss (p=<0.05). Study demographics n=133 Number of Children Grouping Symmetry Unilateral HL n=20 15% Age of Children in years at assessment Typical Hearing n=20 15% Bilateral HL n=93 70% Identification, Amplification, Intervention UHNS referred Bilateral (median) Unilateral (median) Bilateral (range) Unilateral (range) Identification 1mth 1mth 0-13mths 0-4mths Amplification 4mths 31mths 0-61mths 3-74mths Intervention 5mths 18mths 0-55mths 3-46mths Typical or Atypical Acquisition % Atypical acquisition % Typical acquisition % Typical/delayed acquisition % Maintain typical acquisition Atypical & Delayed Atypical/delayed acquisition Typical acquisition Does socio-economic status matter? A changing landscape in service delivery? What did we do about it? • Trial program – “Thinkables” – GOAL: Full roll out for TSC by 2015 – Normative data collection TOM outcomes HL research Research-Based Principles of Thinkables Program: 1. lexical enrichment (the child gains from acquiring a rich 2. 3. mental-state vocabulary), syntactic enrichment (the child gains from acquiring syntactic tools for embedding one thought in another), and pragmatic enrichment (the child gains from conversations in which varying perspectives on a given topic are articulated). Pragmatic enrichment emerges as the most promising candidate. Harris, de Rosnay, Pons, 2005; De Rosnay & Fink, 2013; PILOT: “Thinkables” Strategies Make Predictions Enriched conversations Pretend Play Make Inferences Sabotage to stimulate problem solving Guessing Narratives Explanations Descriptions Persuasion Developing Theory of Mind Role-playing Humour & Sarcasm Give Hints Jokes & Riddles Berndsen (2005). Theory of mind: implications for intervention. Retrieved 8/03/06, from www.speechpathology.com Discuss emotions & opinions 2 Pilot Studies: “Thinkables/Listening to Learn” PARTICIPANTS: 2 groups of 4 children aged 4 years • 1 term/12 sessions 1/week during term • 1 week/4 sessions in school holidays QUANTITATIVE RESULTS: At age 4 years: Pre – post ToM Ax indicated all children achieved 100% in ToM tasks QUALITATIVE RESULTS: • POST 1 term/12 sessions: “Huge difference in the areas of pragmatics; perspective taking, tracking conversation ...” ; “Changes have been evident and significant”. • POST 1 week/4 sessions: school holidays; my child was “over the moon to be here”. Parents and kids all participated in activities. “It was pretty amazing to observe changed behaviour at school” Trial program s • Commitment to attend all sessions • Should we commence at younger ages? • Need for skilled LSLS practitioners confident in ToM strategies • Punctuality • Ideal group numbers • Capacity of TSC staff numbers s Roll out across 5 Centres • Model of service delivery changed • Processes to manage: – Skilled staff – Families expectations – Preschool attendance conflicts – Other professionals – Teleintervention Model of Service Delivery: CONFIDENT KIDS INTERVENTION PROGRAM • Available at 5 centres + teleintervention families • 8 ToM modules – Choice of 2 terms/different days – 1-1 therapy not provided while attending CK sessions • Staffing: – CK Manager – 2 LSLSs at each Centre – Child and Family Counsellor at each centre • all clinical staff received minimum monthly ongoing training • Information Shout Outs to families (see Handout) Model of Service Delivery: CONFIDENT KIDS INTERVENTION PROGRAM • Family Handouts weekly; input from: 1. LSLSs 2. CFC 3. Audiologist • Parents participate at the beginning and end of each session • 2 Guided observations via videolink for parents to view entire session CK Module Content 1. Key concepts addressing theory of mind being explored in the Confident Kids program 2. Perspective Taking: We all have different likes and dislike 3. Role Play: Pretending to be something else /Guided Observation for families 4. Prediction and Inferring 5. Overhearing 6. Tracking Conversation 7. False Belief 8. Wrap Up Session! Confident Kids Module 1 Videos HANDOUT: Module 1 “A TASTE” • • • • Greeting Song What Could it Be _exploration+ imagination? Story: “Not Box” Activity: Make “Not a Box” How can we do this in every day life? CHIEF FOCUS of CK • Everyday environment carryover • ENRICHED Book reading • Weekly Handouts_Parent Tips [Sample of parent handout] Confident Kids measurements Pre and Post measures: • ToM 6 stages of development • Parent Questionnaires (see Handout) (Wellman & Liu, 2009) Confident Kids Outcomes ALD/FM use? Distance listening Lack of overhearing Therapy in noise? Tonal Detection Tone of Voice Intonational cues? Use of mental State Language Theory of Mind Parental Input 1child/2 adults Intervention Concrete vs Abstract Opportunities to ‘fail’ More CK • • • • • • • s Families feeling they are missing out Not as important as 1-1 Learning new skills for therapists and kids Group management skills of therapists Move away from traditional ‘therapy’ Effectively measuring outcomes Do Ax measure what we are targeting? What factors might impact ToM Development? INFLUENCING FACTORS - additional needs - late diagnosis - device use - family engagement - presence chronic ME - languages other than English Next studies? Impact of: • Therapists trained not only in use of mental state language/mechanisms actively target ToM early but in GROUP management strategies • UNHS: 1-3-6 babies? Delayed acquisition skills may not hamper ToM progress? • Simultaneous bilateral CI under 12m? • Families enabled to use ToM strategies in everyday routines from early ages Future Research • • • • • • • • • • • 1 week intensive versus 1 term /1 per week? ToM Strategies commenced at toddler times Intervention study: ToM versus no treatment Continue to look beyond traditional outcome measures – social inclusion Optimise access to sound – MAPping, FM use, CI with more residual hearing/unilateral HL.. outside traditional candidacy Change order of questions in Ax Importance of Auditory Memory development Facilitating parent skills/mind set What are the pre-requisite skills in babies? Toddlers? Parents? Other approaches to ToM development? More linguistically based? Do children with HL focus on what they hear last for longer periods than typically hearing peers? Who are we here for? Changes in intervention • Review of services provided indicated: – Less 1-1 intervention for older children • Frequency reducing towards school age as skills developing typically – Increased focus on groups (peer and social education) – Increased service through teleintervention – Increased focus on ‘real life listening’ and intervention in realistic environments (not only quiet therapy rooms) Conclusions/Future Directions? Keep track of our “CARBs” • Challenge - innovations, new research and alternate ways of delivering services, challenging their knowledge and current clinical practice • A-V – strictly speaking NO, but ethically correct response to wider, whole person capabilities and parent feedback • Revolutionise – integrate learning into clinical practice, revolutionising how services are delivered and revolutionising the profession as a whole. • Broaden – ‘think outside’ the box. New evidence and innovative and efficient ways of delivering services in many contexts, aiming to ‘broaden’ knowledge and optimize outcomes in broader areas The Shepherd Centre team Thank you to the children and families that share their journey with us. We’d also like to acknowledge past TSC staff members who have contributed to the design and implementation of our Theory of Mind research [email protected] References Astington JW, Jenkins JM. Theory of mind development and social understanding. Cognition and Emotion. 1995; 9:151-165. Hughes C, Jaffe SR, Happe F, Taylor A, Caspi A, Moffitt TE. Origins of individual differences in Theory of Mind: From nature to nurture? Child Development. 2005; 76:356-370. Ching, T. Y. C., Crowe, K., Martin, V., Day, J., Mahler, N., Youn, S., . . . . Orsini, J. (2010). Language development and everyday functioning of children with hearing loss assessed at 3 years of age. International Journal of Speech-Language Pathology, 12(2), 124-131. Fitzpatrick, E. M., Crawford, L., Ni, A., & Durieux-Smith, A. (2011). A Descriptive Analysis of Language and Speech Skills in 4-to 5-YrOld Children With Hearing Loss. Ear and Hearing, 32(5), 605-616. Fulcher, A., Purcell, A. A., Baker, E., & Munro, N. (2012). Listen up: Children with early identified hearing loss achieve ageappropriate speech/language outcomes by 3 years-of-age. International Journal of Pediatric Otorhinolaryngology, 76(12), 1785-1794 Geers, A. E., & Sedey, A. L. (2011). Language and Verbal Reasoning Skills in Adolescents With 10 or More Years of Cochlear Implant Experience. Ear & Hearing, 32(1) Supplement, Long-Term Outcomes of Cochlear Implantation in Early(Childhood), 39S-48S. Olson S, Lopez-Duran N, Lunkenheimer E, Chang H, Sameroff A. Individual differences in the development of early peer aggression: Integrating contributions of self-regulation, theory of mind, and parenting. Development and Psychopathology. 2011; 23:253-266. Ruffman T, Slade L, Crowe E. The relation between children’s and mother’s mental state language and theory-of-mind understanding. Child Development. 2002; 73:734-751. Santiesteban I, Sarah White S, Cook, Gilbert S, Heyes C, Bird G. Training social cognition: From imitation to Theory of Mind. Cognition. 2012; 122:228-235. Schick B, de Villiers P, de Villiers J, Hoffmeister R. Language and theory of mind: A study of deaf children. Child Development. 2007; 78: 376-396. Wellman H, Fuxi F, Peterson C. Sequential progressions in a theory of mind scale: Longitudinal perspectives. Child Development. 2011; 82(3):780-792. Wellman H, Liu D. Scaling of theory of mind tasks. Child Development. 2004; 75:523-541. Rebecca Saxe: How we read each other's minds | TED Talk ... HANDOUTS • Key references • developmental timelines Tom acq • developmental pragmatic scale – Yoshinago + tsc adapted version • module outline • CK program questionnaire • adapted ToM strategies • CK parent handouts
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