Opening Minds through Art (OMA) Opening Minds through Art (OMA): Scripps intergenerational art program for people with dementia (Part 1) Elizabeth “Like” Lokon, PhD ([email protected]) Tel. 513-529-2648 - Office: Upham 206A CONTENTS: 1. How does Alzheimer’s disease affect the brain? 2. What is Opening Minds through Art (OMA)? CAUSES OF DEMENTIA: Source: Alzheimer’s Research UK © E. Lokon Opening Minds through Art (OMA) 1. How does Alzheimer’s disease affect the brain? BRAIN AFFECTED BY ALZHEIMER’S: Left: from the University of Alabama at Birmingham Department of Pathology. Right: Retrieved from http://www.alz-nic.org/cross_sectioncompareBorder.jpg Note gaps in various areas of the brain. The cortex is notably affected. Prefrontal cortex is working memory – communicates with long-term memory which is in the Hippocampus (which cannot be seen as it sits in the middle of the brain). Cerebellum controls skill memory – skill memory is stored separately – this is why you will see people carry out actions even if they cannot remember what they are actually trying to do. (It is like the old adage that once you learn to ride a bike you never forget). Broca’s Area is the language center of the brain. (Source: Alzheimer’s Association.) 2 © E. Lokon Opening Minds through Art (OMA) Source: Alzheimer’s Association AMYLOID PLAQUES AND NEUROFIBRILLARY TANGLES Retrieved on 11/04/08 from http://www.healthinformer.net/wp-content/uploads/2008/07/cells.jpg 3 © E. Lokon Opening Minds through Art (OMA) Retrieved 11/04/08 from http://www.ghi.com/WebMD/topics/alzheimernerve.jpg PROGRESSION OF ALZHEIMER’S DISEASE VIDEO (3 min.) (Video by David Shenk (Retrieved from: http://www.youtube.com/watch?v=9Wv9jrk-gXc) 4 © E. Lokon Opening Minds through Art (OMA) CORTICAL LOBES Source: http://www.wpclipart.com/medical/anatomy/brain/lobes_of_cerebral_cortex_and_functions.png.ht ml SUPPORTING THE CORTICAL LOBES: Frontal lobe – Decision making, problem solving, planning: Talk about what needs to be done (planning). Give clear verbal and nonverbal signals. Slow down when assisting. Parietal lobe – Reception and processing of sensory information from the body: Touch and name body parts when assisting. Help to redirect gaze in the right direction. Temporal lobe – Memory, emotion, hearing, language Repeat information in a positive and relaxed way. Use simple and concrete language, but NOT “Elder Speak” Occipital lobe – Visual processing Approach from the front, make eye contact Present objects at eye level, within 6-8 in. Remove objects not needed. Source: May, H., Edwards, P., Brooker, D. (2009). Enriched care planning for people with dementia: A good practice guide for delivering person-centered dementia care. London: Jessica Kingsley Publishers, p. 127. 5 © E. Lokon Opening Minds through Art (OMA) Emotional Contagion = Emotional Mirroring (Strum, V. E. et al, 2013) Affect sharing that is at the core of empathy. Mechanism used to synchronize physiological and behavioral states with another person to promote social and helping behaviors. Can spread rapidly across individuals. Does not depend on higher order cognitive processing. It is an unconscious processing. Present in infants, birds, rodents, primates etc. Associated with smaller R-hemisphere temporal lobe, smaller hippocampal volume. Emotional Contagion Comparison: Higher order cognitive function inhibits instinctual responses. As higher-order functions fail, there is less dampening effect and automatic/unconscious responses rise to the surface. So, as the disease progresses, destroying more brain cells and cognitive skills, this emotional empathy gets stronger, allowing patients to become more sensitive — and more vulnerable — to the feelings, words, and behaviors of other people. Amnesia Study (Feinstein, J. S. et al, 2010). – Replicated with people with dementia Timeline of the experiment. Feinstein J S et al. PNAS 2010;107:7674-7679 ©2010 by National Academy of Sciences 6 © E. Lokon Opening Minds through Art (OMA) Recollection of film clips and postfilm emotion ratings following the happiness induction. Feinstein J S et al. PNAS 2010;107:7674-7679 ©2010 by National Academy of Sciences Recollection of film clips and postfilm emotion ratings following the sadness induction. Feinstein J S et al. PNAS 2010;107:7674-7679 ©2010 by National Academy of Sciences Sustained emotion and memory loss: Both positive and negative emotional experiences can persist independent of explicit memory for the inducing event. Negative emotions dissipate at a slower rate among people with memory impairment when compared with people who have no memory issues. 7 © E. Lokon Opening Minds through Art (OMA) 2. What is Opening Minds through Art (OMA)? Opening Minds through Art (OMA) is a Scripps intergenerational art-making program for people with dementia (PWD). Utilizing structured art-making processes, OMA allows PWD to access their creativity. In OMA, PWD are paired on a weekly basis with volunteers who are trained to support the elders’ creative expression. The pairs meet in a small group setting to create art. This partnership enables caregivers, families and volunteers to expand their appreciation of the remaining capabilities of PWD thereby fulfilling OMA’s mission of “using art to bridge age and cognitive barriers.” Since its founding in 2007, OMA has served over a thousand pairs of PWD and volunteers. OMA received a Best Practice Award from LeadingAge Ohio (2011); is featured as a model program by the National Center for Creative Aging (2013); was recognized as Program of Distinction by Generations United (2015); and is listed as a Quality Improvement Project by Ohio Department of Aging (2015). MISSION: “Building bridges across age and cognitive barriers through art.” GOALS of OMA 1. To promote the social engagement, autonomy, and dignity of people with dementia by providing creative self-expression opportunities; 2. To provide staff and volunteers with opportunities to build intimate relationships with people with dementia; 3. To show the public the creative self-expression capacities of people with dementia through exhibitions of their artwork; 4. To contribute to the scholarly literature on dementia care and the arts. VOLUNTEER/STAFF TRAINING All assisting volunteers are trained in: 1. The basics of dementia 2. The foundation of OMA philosophy and methodology 3. Skills for effective communication and facilitation of the creative process for people with dementia. CONTACT Elizabeth “Like” Lokon: [email protected] Tel. (513) 529-2648. Cell: (513) 330-2982 Office: 369B Upham Hall. Mailbox: Upham 396 (Scripps Gerontology Office) Website: www.ScrippsOMA.org Facebook: www.facbook.com/openingmindsthroughart 8 © E. Lokon Opening Minds through Art (OMA) OMA Philosophy OMA is founded on strengths-based psychology: Capitalizing on what people with dementia still CAN do. It is designed so that people with dementia can: a. More freely express themselves and assert their individuality b. Succeed on their own with minimal assistance only when necessary c. Feel a sense of personal accomplishment Person-Centered Philosophy (Kitwood, 1997) Illness-centered perspective: Person with DEMENTIA Person-centered perspective: PERSON with dementia What is “personhood”? Kitwood (1997) defines personhood as “A standing or status that is bestowed upon one human being, by others, in the context of relationship and social being. It implies recognition, respect, and trust” (p. 8). “A person is a person because of people” -Zulu proverb And that “the primary task of dementia care … is to maintain personhood in the face of failing of mental powers” (p. 84). “Personhood, … , should be linked far more strongly to feeling, emotion, and the ability to live in relationships, (not on memory, consciousness of self, rationality, agency, social status, accomplishments) and here people with dementia are often highly competent – sometimes more so than their carers” (Kitwood, 1997, p. 10). THE SHIFT THAT HUMANIZES THE PERSON WITH DEMENTIA (Ronch, 2003) Illness-centered Perspective Focusing on losses/disabilities A patient that needs to be entertained Preschool reference Person-centered Perspective Capitalizing on strengths/abilities A person that can grow and learn Modern art reference 9 © E. Lokon Opening Minds through Art (OMA) WELL-BEING THEORY (Seligman, 2011) Well-being is promoted if the activity has the following components: Positive emotion Engagement Relationship Meaningfulness Accomplishment 10 © E. Lokon Opening Minds through Art (OMA) The OMA PROCESS 1. The Huddle: Artist facilitators coach staff and volunteers about the day’s project; staff members inform artist facilitators and volunteers about the residents’ conditions/moods/concerns on that day. 2. Picking-up partners: Find the artist that you will be working with and take him/her to the same seating every week. Be sure to introduce yourself and shake hands every time. 3. Social time: Start with the MOOD BEFORE question. Then make nametags for artists and for self, small talk, putting aprons on artist and on self. (Apron is a symbol of productivity and creativity.) 4. Opening song, clap, and opening remarks: To build a sense of community and focus everyone’s attention, we begin with singing together an old song “You are my sunshine.” We use the same song every week to create a sense of routine, i.e. predictable structure. Clap at the end of the song and then follow that with the opening remarks: Artist facilitator briefly welcomes everyone and introduces the project for the day. 5. Inspiration: Experiencing authentic art (asking opinions/aesthetic preferences). 6. Distribution of supplies: Attractive “gifts,” offering manageable choices. 7. The creative process: Making something new of value. a. Getting started (Need more assistance) b. Getting into the “flow” (Need less assistance) 8. Signing work and giving title: Ask questions like, “What would you call this piece?” or “What does this remind you of?” or “What do you think/feel when you see this?” (Have them sign the work if possible.) Use sticky notes to write: Artist’s name, title (if any), date, and facility’s name. 9. Sharing work with others: Take several finished pieces and show to others in the group. Be generous with compliments. 10. Artist feedback and session evaluation: Use the form to interview your partner about the session. Ask the MOOD AFTER question. Then complete your own assessment of the activity. 11. Closing song, clap, and closing remarks: Artist facilitator leads the closing song, “This Little Light of Mine.” Clap with everyone at the end of the song. Volunteers say good-bye to their individual partners; and remember to shake hands. 12. Taking partners back: Volunteers take their partners to their next locations and use this time to do some more social time. 11 © E. Lokon Opening Minds through Art (OMA) OMA Artist Feedback (www.ScrippsOMA.org/survey) Artist’s Name: _____________________ Date: __________ Your Name: _______________________ Site: ___________ OMA Project Name: __________________________________ 1.Which face shows how you feel right now? BEFORE 1 2 2. How much did you enjoy today’s art project? Very much Somewhat 3 4 5 Not at all 3. How much did you enjoy talking to other people during art class? Very much Somewhat Not at all 4. How often were you able to do whatever you wanted during art class? All the time Sometime Never 5. How much do you like your finished artwork? Very much Somewhat Not at all 12 © E. Lokon Opening Minds through Art (OMA) 6. Do you think that your time was well spent? Yes Somewhat No 7. Which face shows how you feel right now? AFTER 1 2 3 4 5 TO BE COMPLETED BY VOLUNTEERS: 8. How appropriate was today’s activity for your partner? Very appropriate 5 4 3 2 Not at all 1 2 Poor 1 9. Overall, how would you rate this activity? Excellent 5 4 3 10. Quotable quotes from your partner today and/or comments: 13 © E. Lokon
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