Supporting Children with Special Educational Needs through an Outcome-Focused, Family-Centred and Multi-Tiered Model of Integrated Service Delivery Dr Sidney Chu FRCOT, PhD, MSc(Health Psychology), BDADip(Dyslexia) Post.Dip(Biomechanics), Prof.Dip.Occupational Therapy, OTR Fellow, Royal College of Occupational Therapists (UK) Honorary Fellow, Brunel University London Honorary Member, Sensory Integration Network – UK & Ireland OMEP Lecture 19.05.2017 HK Outline of the Lecture A. Brief review on model of service delivery B. Key components of a successful integrated service C. Key concepts of family-centred care practice in service delivery D. Models of team approaches E. Collaborative goal setting process and outcome measures F. A 3-tiered model of integrated service delivery A. Brief Review on Model of Service Delivery 1. Traditionally, therapists provided direct hand-on treatment - in an artificial treatment environment - therapy strategies may / may not be integrated into the child’s real life environment. 2. This traditional model did not deliver the best outcome for children. A. Brief Review on Model of Service Delivery 3. Practice- and research-based evidence in the model of integrated service delivery demonstrates that - positive student performance gains have been obtained - parents and school staff are empowered to support children within home and school environment. B. Key Components of an Integrated Service 1. Family-centred care practice 2. Interagency collaboration 3. Developing service with defined outcomes 4. Team Approaches 5. Collaborative goal setting process with the use of outcome measure 6. Service delivery through a 3-tiered model + the use of clinical pathways and packages of care Components to be Covered in this Talk 1. Family-centred care practice 2. Team Approaches 3. Collaborative goal setting process and outcome measure 4. Service delivery through a 3-tiered model C. Family-Centred Care Practice 1. The focus of intervention is guided by the needs of the entire family. 2. Family members are valued and considered to be equal. 3. It builds on partnerships between parents and professionals. Goals are family-centred. CanChild’s Definition of Family-Centred Service Family-centred service is made up of a set of values, attitudes and approaches to services for children with special needs and their families Family-centred service recognizes that each family is unique; that the family is the constant in the child’s life; and that they are the experts on the child’s abilities and needs. The family works with service providers to make informed decisions about the services and supports the child and family receive. In family-centred service, the strengths and needs of all family members are considered. Law et al (2003) McMaster University Conceptual Framework for Family-Centred Service (Rosenbaum et al, 1998, for revised version see Law et al, 2003) Premises (basic assumptions) Parents know their children best and want the best for their children. Families are different and unique Optimal child functioning occurs within a supportive family and community context: the child is affected by the stress and coping of other family members. Guiding Principles (“should” statements) Each family should have the opportunity to decide the level of involvement they wish in decision-making for their child. Parents should have ultimate responsibility for the care of their children. Each family and family member should be treated with respect (as individuals). The needs of all family members should be considered. The involvement of all family members should be supported and encouraged. Elements (key service provider behaviours) To encourage parent decisionmaking To assist in identifying strengths To provide information To assist in identifying needs To collaborate with parents To provide accessible services To share information about the child To respect families To support families To listen To provide individualised service To accept diversity To believe and trust parents To communicate clearly To consider psychosocial needs of members To encourage participation of all members To respect coping styles To encourage use of community supports To build on strengths. Standardised Tools for Measuring Outcomes of Family-Centred Care Practice 1. The Measure of Processes of Care – 56 (MPOC-56) (King, Rosenbaum and King, 1995). 2. The Measure of Processes of Care – 20 (MPOC-20) (King, King and Rosenbaum, 2004). 3. The Measure of Processes of Care for Service Providers (MPOC-SP) (Woodside, Rosenbaum, King & King, 2001). Available from the website of the CanChild Centre for Childhood Disability Research. http://www.canchild.ca/en/ D. Models of Team Approaches 1. Teamwork is critical for effective service delivery. 2. The emphasis is on collaborative working between different team members in order to support the child within the family unit. The Three Models of Team Approaches 1. Multi-Disciplinary Team Model 2. Inter-Disciplinary Team Model 3. Trans-Disciplinary Team Model 1. Multi-Disciplinary Team Model Assessment OT SLT T PT SW Treatment Planning SLT PSY OT T PT PSY SW Service Delivery PSY SLT PARENTS PT OT SW CHILD T Multi-Disciplinary Team Model 1. Each team member functions almost independently, both in terms of interactions with the child, parents and other members of the team. 2. Team members are responsible for implementing their section of the plan. 3. The lines of communication between team members are very informal. 2. Inter-Disciplinary Team Model Coordinated Assessment SLT PT OT SW PSY T PSY T PSY T PARENTS Integrated Treatment Planning SLT PT OT SW PARENTS Coordinated Service Delivery SLT PT OT SW PARENTS + CHILD Inter-Disciplinary Team Model 1. Team members share their findings, opinions, and treatment plans with one another in an organised way. 2. The child & parents can receive coordinated services and are able to benefit from the expertise of professionals from several disciplines. 3. To ensure the success of this approach, the team members must respect one another’s roles, develop effective formal and informal communication patterns. 3. Trans-Disciplinary Team Model Coordinated Assessment SLT PT OT SW PSY T PSY T PARENTS Integrated Treatment Planning Integrated Service Delivery SLT PT OT SW PARENTS One of the team members appointed as the PRIMARY PROVIDER PARENTS + CHILD Trans-Disciplinary Team Model 1. All team members participate together in assessment and intervention planning. 2. A designated team member (primary provider) carries out the actual intervention activities, with support provided by other team members. 3. Implementation of this model requires role release, or the relinquishing of some or all of one professional’s functions to another professional. The Application of Team Models in Service Delivery 1. All three team models have pros and cons. 2. Need to consider the needs of children and also resources available. 3. Parents prefer the model of interdisciplinary team as - there are coordination of goal setting and integration of treatment plan, and - their children are still being seen by the actual “expert”. E. Collaborative Goal Setting Processes and Outcome Measures 1. Goals should be established in conjunction with the parents and professionals, and possibly the child. collaborative goal setting process E. Collaborative Goal Setting Processes and Outcome Measures 2. Setting specific goals of treatment is the cornerstone in an effective process of service delivery. 3. It is important to identify a mechanism to measure the achievement of the treatment goals i.e. use of outcome measures. Hierarchy of Outcome Measures / Methods 1. There is a wide range of outcome measures used by different disciplines:- ‘Hard’ outcome measures are mostly quantitative, standardised child-centred or family-centred tools. - ‘Soft’ outcome measures are mostly qualitative, nonstandardised and home-made outcome measures. Hierarchy of Outcome Measures / Methods HARD Measures / Methods QUANTITATIVE Child-Centred Outcome Measures Family-Centred Care Outcome Measures Functional / Developmental Skills Outcome Measures Structured Outcome Measures / Methods e.g. Goal Attainment Scaling (GAS) Self-Rating Analogue Scale SOFT Outcome Survey of Children, Parents and Other Stakeholders QUALITATIVE Chu (2017) Hierarchy of Outcome Measures / Methods 2. It is common to use a combination of hard and soft outcome measures. 3. It is important to set SMART Goals for functional outcomes. What is SMART Goal? SMART stands for Specific Measurable Attainable Relevant Time-bound F. 3-Tiered Model of Integrated Service Delivery 1. Based on the Public Health Model in the UK and the Response to Intervention (RtI) Model in the USA. 2. It has been adapted for delivering therapy services. Chu (2014b) Structure of the 3-Tiered Model 1. Tier 1: Universal Interventions (Whole School) e.g. - training for whole school / nursery staff and parents - information and resources - universal screening - curriculum development, etc. Structure of the 3-Tiered Model 2. Tier 2: Targeted Interventions (Classroom-based) e.g. - classroom-based assessment and treatment - targeted training for classroom staff and parents - modification of the physical and sensory components of the classroom environment - group programme, etc. + Tier 1 interventions Structure of the 3-Tiered Model 3. Tier 3: Intensive Interventions (Individual) e.g. - specialist individual assessment SMART goals - integrate treatment activities into home and classroom environments - individual hand-on interventions - adaptation of the curriculum, etc. + Tiers 1 & 2 interventions The Application of the 3-Tiered Model In Practice 1. Therapists work as a collaborative member of the team. 2. Change from the traditional, individually focused deficitdriven model of intervention to a whole-school / nursery strength-based approach. (Ivey et al, 2012) Summary Key Components of a Successful Integrated Service 1. Family-centred care practice 2. Interagency collaboration 3. Developing service with defined outcomes 4. Interdisciplinary Team Approach 5. Collaborative goal setting process with the use of outcome measure 6. Service delivery through a 3-tiered model + the use of clinical pathways and packages of care References and Further Readings Allard, A., Fellowes, A., Shilling, V., Janssens, A., Beresford, B. and Morris, C. (2014). Key health outcomes for children and young people with neurodisability: qualitative research with young people and parents. BMJ Open 2014;e004611. Bonnard, M. and Anaby, D. (2016). Enabling participation of students through schoolbased occupational therapy services: towards a broader scope of practice. British Journal of Occupational Therapy, 79(3), 188-192. Cahill, S. M., Egan, B. E., Wallingford, M., Huber-lee, C., & Dess-Mcguire, M. (2015). Results of a school-based evidence-based practice initiative. American Journal of Occupational Therapy, 69, 6902220010. Http://dx.Doi.Org/10.5014/ ajot.2015.014597 Chu, S. (2009). The contributions of paediatric occupational therapists to the education of children with SEN. Education Public Law and the Individual, volume 13, issue 2, pp 4 – 10. Chu, S. (2013). A model for commissioning school-based occupational therapy. Occupational Therapy News (monthly publication of the British Association of Occupational Therapy), 21(2): 38-39. Chu, S. (2014a). Reform of the Special Education Needs System. Occupational Therapy News (monthly publication of the British Association of Occupational Therapy), 22(6): 26-27. References and Further Readings Chu, S. (2014b). Best practice in delivering school-based occupational therapy service to children with special educational needs and disability. Education Public Law and the Individual, volume 17, issue 1, pp 34 – 49. Chu, S. (2015). Developing, Costing and Marketing School-based Occupational Therapy Service to Health and Education Commissioners – Course Manual (2nd Edition). Derby, England: Kid Power Therapy and Training Co. Ltd. Chu, S. (2017). Outcome Framework and Goal Attainment Scaling (GAS) – Course Manual (8th Edition). Kildare, Ireland: Kid Power Therapy and Training Co. Ltd. Chu, S. and Reynolds, F. (2007) Occupational therapy for children with attention deficit hyperactivity disorder (ADHD), part 2: a multicentre evaluation of an assessment and treatment package. British Journal of Occupational Therapy, 70(10), 439-448. Clark, G.F. & Polichino, J. (2013). Chapter 17: Best Practices In Early Intervening Services and Response to Intervention. In: Clark, G.F. and Chandler, B.E. (Eds). Best Practice for Occupational Therapy in Schools. American Occupational Therapy Association: Bethesda, MD. Department of Health (2000). Framework for the Assessment of Children in Need and Their Families. London: The Stationary Office. References and Further Readings Dupaul, G.J., Power, T.J., Anastopoulos, A.D. and Reid, R. (2016). ADHD Rating Scale – 5 for Children and Adolescent. New York: Guilford Press. Fingerhut, P. E., Piro, J., Sutton, A., Campbell, R., Lewis, C., Lawji, D., & Martinez, N. (2013). Family-centered principles implemented in home-based, clinic-based, and school-based pediatric settings. American Journal of Occupational Therapy, 67, 228– 235. HTTP://DX.DOI.ORG/10.5014/AJOT.2013.006957 Graham, F., Rodger, S. & Ziviani, J. (2009). Coaching parents to enable children’s participation: an approach to working with parents and their children. Australian Occupational Therapy Journal, 56(1), 16-23. Graham, F. and Rodger, S. (2010). Chapter 10: Occupational Performance Coaching: Enabling Parents’ and Children’s Occupational Performance. In: Rodger, S. (Eds). Occupation-Centred Practice with Children – A Practical Guide for Occupational Therapists. Chichester, West Sussex: Wiley-Blackwell. Graham, F., Rodger, S. & Ziviani, J. (2010). Enabling occupational performance of children through coaching parents: three case reports. Physical and Occupational Therapy in Pediatrics, 30(1), 4-15. References and Further Readings Graham, F., Rodger, S., & Ziviani, J. (2013). Effectiveness of occupational performance coaching in improving children’s and mothers’ performance and mothers’ selfcompetence. American Journal of Occupational Therapy, 67, 10–18. http://dx.doi.org/10.5014/ajot.2013.004648 Hoggarth, L. and Comfort, H. (2010). A Practical Guide to Outcome Evaluation. London: Jessica Kingsley Publishers. Holloway, E. and Chandler, B.E. (2010). Chapter 3 - Family-centered practice: it’s all about relationships. In: B.E., Chandler (eds.). Early childhood occupational therapy services for children birth to five. Bethesda, MD: the American Occupational Therapy Association, Inc. Ivey, C., Clark, G.F., Cahill, S., Mcguire, B., Mcclosky, S., Jackson, L. and Polichino, J. (2012). Response to intervention in the classroom – your questions answered. OT Practice, February 20, 2012, pages 18 – 20. King, S., King, G., and Rosenbaum, P. (2004). Evaluating health service delivery to chiildren with chronic conditions and their families: development of a refined Measure of Processes of Care (MPOC-20). Children’s Health Care, 33(1), 35-57. King, S., Rosenbaum, P. and King, G. (1995). The Measure of Processes of Care (MPOC) – A means to assess family-centred behaviours of health care providers. Hamilton, Ontario: McMaster University. References and Further Readings Kiresuk, T.J., Smith, A. & Cardillo, J.E. (1994). Goal Attainment Scaling: Application, Theory and Measurement. Hillsdale, NJ: Erlbaum. Law, M., Rosenbaum, P., King, G., King, S., Burke-Gaffney, J., Moning-Szkut, T., Kertoy, M., Pollock, N., Viscardis, L., & Teplicky, R. (2003) What is Family-Centred Service? CanChild Centre for Childhood Disability Research, McMaster University. McDougall, J. and King, G. (2007). Goal attainment scaling: description, utility and applications in pediatric therapy services (2nd Edition). Thames Valley Children’s Centre, London, Ontario. National Association of State Directors of Special Education, Inc. (2005). Response to Intervention: Policy Considerations and Implementation. Alexandria, VA: Author. National Association of State Directors of Special Education, Inc. (2006). Partnerships Project. Alexandria, VA: Author. Popp, T.K. and You, H-K. (2016). Family involvement in early intervention service planning: links to parental satisfaction and self-efficacy. Journal of Early Childhood Research, vol.14, no.3, 333-346. IDEA References and Further Readings Rosenbaum, P., King, S., Law, M., King, G., & Evans, J. (1998). Family-centered service: a conceptual framework and research review. Physical and Occupational Therapy in Pediatrics, 18(1), 1-20. Simeonsson, R.J. and Bailey, D.B. (1990). Family dimensions in early intervention. In: S.J. Meisels & J.P. Shonkoff (Eds.). Handbook of early childhood intervention. Cambridge University Press. Steenbeek, D. (2010). Goal Attainment Scaling in Paediatric Rehabilitation Practice – a useful outcome measure. The Rehabilitation Centre Breda, the Netherlands. Taylor, P., Peckham, S. and Turton, P. (1998). A public health model of primary care – from concept to reality. Public Health Alliance. ISBN 188-331419-0 Turner-Stokes, L. (2009). Goal Attainment Scaling (GAS) In Rehabilitation – A Practical Guide. The North West London Hospitals NHS Trust. Woodside, J.M., Rosenbaum, P.L., King, S., & King, G. (2001). Family-centred service: developing and validating a self-assessment tool for paediatric service providers. Children’s Health Care, 30, 237-252.
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