Positive
Choices
STOMP
IT OUT!
University of Hull
7th April 2017
www.england.nhs.uk/learningdisabilities
Thank you for inviting us
• Hazel Griffiths, Expert by Experience
• Carl Shaw, Learning Disability Adviser
• Anne Webster, Clinical Lead
• Gavin Harding MBE, Learning Disability Adviser
NHS England Learning Disability Programme
www.england.nhs.uk/learningdisabilities
What we’re going to talk about
• STOMP and people with learning
disabilities, autism or both
• STOMP and Nursing
• Care and Treatment Reviews
• Welcome MiXit to the stage!
www.england.nhs.uk/learningdisabilities
First, let’s talk Makaton!
We want to talk to
you about
medication
www.makaton.org
#GetTheNationSigning
www.england.nhs.uk/learningdisabilities
Stop Over Medicating People
with a learning disability, autism, or both
Public Health England (2015) estimates
that every day 30,000 to 35,000 adults
with a learning disability are prescribed an
antipsychotic, antidepressant or both,
when they don't have a mental health
condition.
Unnecessary use of these drugs, puts
people at risk of significant weight gain,
organ failure and even premature death.
www.england.nhs.uk/learningdisabilities
Problems of over medication with
psychotropic drugs
• Managing people’s behaviour rather than
treating a mental health condition
• Too much
• Too many
• Too long
• Health risks
• Giving prescriptions without finding out
what is wrong
• Relying on drugs at the expense of
non-drug treatments and support
www.england.nhs.uk/learningdisabilities
It’s a human rights issue
Human rights resources
at BIHR
www.bihr.org.uk/health
www.england.nhs.uk/learningdisabilities
STOMP is about more than….
• Better record keeping
• Better transfer of information about
medicines between GPs and specialists
(and everyone else involved)
• Ensuring people get a diagnosis
• Stopping prescription errors
Although these are all important too
www.england.nhs.uk/learningdisabilities
It is about
• Alternatives to medication
• A fundamental rethink of the role of
psychotropic drugs for the
management of behaviour which is
seen as challenging
• A better quality of life
Hazel’s story
• How my son ended up on
antidepressants, benzodiazepines
and antipsychotic drugs
• How it felt to me as a nurse and mum
• What we did about it
• How my son is now
• What did we learn?
• What am I doing about it now?
www.england.nhs.uk/learningdisabilities
www.england.nhs.uk/learningdisabilities
The nurses role in STOMP
www.england.nhs.uk/learningdisabilities
The nurses role in STOMP
• Empowering and involving the
person and their family
• Comprehensive assessment
• Multi-disciplinary team working
• Regular reviews, drug reduction
plans and monitoring
• Promoting alternatives to medication
• NICE Guidance & best practice
www.england.nhs.uk/learningdisabilities
Support the STOMP Pledge by:
•
•
•
•
Finding out more about STOMP
Raising awareness of others
Becoming a STOMP champion
Writing articles or features in your
university journal/magazine about STOMP
• Focussing on STOMP as a project about
use of psychotropic medication and
alternatives
• Asking questions on placement about what
people know about STOMP
• Checking on placement if a pharmacist
provides support about medication
• www.england.nhs.uk/stomp
www.england.nhs.uk/learningdisabilities
… stop press… stop press…
Before we give a big welcome to
MiXit
and their new STOMP play
A quick update on CTRs!
www.england.nhs.uk/learningdisabilities
Care and Treatment Review Policy
• The CTR Policy came out in 2015
• Over 500 community CTRs carried out – in 3
out of 4 cases the outcome was the person was
not admitted to hospital
• CTRs bring people together with the person and
family to work together
• CTRS bring in independent experts to review care
and treatment
• CTRs help to raise standards of hospital care for
each person
• And help make sure people aren’t in hospital any
longer than necessary
• New policy and materials out this week!
Strengthening the quality & follow up
• Visit www.england.nhs.uk/ctr
www.england.nhs.uk/learningdisabilities
Advice from an ex-uni tutor
You need to understand what a powerful tool a CTR is.
It will help you plan care with people and not for people.
Explore the success of CTRs and listen to people's stories of
how their lives have moved on and discharge has occurred as
a result. It will change your hearts and minds.
CTRs will help you put into practice the things you learn, like:
empowering people, ensuring equality, managing change,
tackling barriers, engaging families, the importance of good
clinical pathways and effective discharge planning.
www.england.nhs.uk/learningdisabilities
And now, with no more ado…
Put your hands together for
www.england.nhs.uk/learningdisabilities