Working draft An Orientation to Complexity Assessment And draft of the “Minnesota Complexity Assessment Method” For instructional and further development use CJ Peek PhD, Macaran Baird MD, MS, and Eli Coleman PhD with faculty of the University of Minnesota Department of Family Medicine and Community Health Draft, 6/25/09 This orientation and resulting draft of the “Minnesota Complexity Assessment Method” is adapted from materials and tools presented in Minneapolis in October 2005 by the authors cited below. Huyse, FJ & Stiefel, F (Eds.) (2006). Integrated care for the complex medically ill. The Medical Clinics of North America. Elsevier, July 2006. Lyons, J. (2006). Communimetrics: A Measurement Theory for Service Delivery Applications. In Huyse & Stiefel (2006). Frits Huyse, C-L psychiatrist; Consultant, Integrated Care; Dept of John Lyons, Mental Health Services and Policy General Internal Medicine, University Medical Centre Groningen, Program, Northwestern University, Chicago The Netherlands. For more information on this foundational work: www.INTERMEDfoundation.org With permission and encouragement from Frits Huyse, an outpatient Minnesota Complexity Assessment Method based on this work was created and modified through subsequent tests with University of Minnesota Family Medicine faculty beginning in March 2006. Contact: Macaran Baird, MD, MS; [email protected] or CJ Peek, PhD; [email protected] • • • • • • • • • • Contents of this orientation booklet: Complexity and its signs Complexity: What matters to whom Assessing complexity complements assessing for diagnosis Complexity measurement becomes communication about action, not just description Dimensions for complexity assessment Minnesota Complexity Assessment Record (4/23/09 draft) Levels of application for complexity assessment Making the observations—the complexity assessment interview; its place in medical education Principles for selecting items for a complexity assessment tool; success factors for use Complexity assessment Pocket Card (for “shorthand” complexity assessment) 1 2 3 3 4 5 7 8 9 10 Complexity and its signs. Every clinician has encountered “complex” patients and has reacted with “Oh my gosh”—but not necessarily with a patterned vocabulary for exactly how the patient is complex and what to do about it. Patient “complexity” is thought of as interference with standard care caused by severity or diagnostic uncertainty, behavioral unreadiness, lack of social safety or participation, and disorganization of care or difficult care system relationships. This requires a combination of usual care for a condition and proactively designed, individualized care that addresses patient-specific sources of complexity—across whatever diseases and conditions the patient may have. Complexity affects clinical presentations, the choice and organization of care, and the clinical results across diseases and conditions—interacting with disease-specific protocols for the care of individuals. The purpose of complexity assessment is to name, understand, and act on these complicating factors in the care of individuals and families. The purpose of a complexity assessment tool is to provide a practical but systematic vocabulary and action-based evaluation system that clinicians can use routinely use to improve the care of their patients (and the lives of clinicians). 1 Orientation to Complexity Assessment, 6/25/09 © 2009 University of Minnesota A few signs of complexity: • Number of doctors • Number of medications • Number of visits • Number of services • Number of failed services • Number of diagnostic tests • Number and length of admissions • • • • • • Number of diagnoses & specialists Number of unplanned clinic & ER/UC visits Involvement in multiple helping systems Difficult patient / clinician relationships Lack of information on any of the above Large gap between patient and clinician view on how severe the symptoms are—or are expected to be From “Crossing the Quality Chasm”, Institute of Medicine (2001): “In increasingly complex patient populations with multiple health risks and needs requiring integrated care, our historic fragmented health service delivery . . . leads to miscommunication, redundant, low quality, and dangerous care.” Complexity: What matters to whom Why complexity matters to clinicians • Standard care may not work so well—“he’s back!” • Strains your ability to do it all yourself • Brings out commonplace limitations on teamwork • Brings out “mind-body” splits in healthcare services • Tempts you to label (or discount) the patient as “difficult” “Most difficult patients started out merely as complex” • Tempts you to engage in “wishful thinking”—another test, scan, specialist, prescription, etc. “When the situation calls for you to do something you can’t do, you do something you can do—if you do anything at all” Maxim from Ossorio (2006) • Wastes your time and emotional energy when not dealt with up front “The right kind of time at the beginning of a case saves time over the life of the case” Clinical mottos from Peek & Heinrich (1995) Why complexity matters to payers and care systems • A few % of the patients use a big % of the resources. Complex patients may be less than 10% of a population, but may use a third or more of the resources (Kathol). • Complex patients may complain and “doctor-shop” when the system is unable to meet them at their true level of complexity • Disease management (disease-specific protocols) go only so far with this population who may have multiple interacting diseases and conditions • Care management activities (and reimbursements) aimed at complexity (not just diseases) may be a way to improve care and satisfaction—and control costs. “Preventing the common and predictable case fractures and misunderstandings may be the most important part of your job” Why complexity matters to preceptors • Residents and students are often confused or discouraged in the face of complex patients. • They may view sources of complexity as outside their legitimate purview • Preceptors and residents need more than “Oh my gosh!” when they see a complex patient • They need a vocabulary for just how the patient is complex—and what to do about it—as a normal part of their work 2 Orientation to Complexity Assessment, 6/25/09 © 2009 University of Minnesota Why complexity matters to patients themselves • Patients are often confused by their own illnesses and life factors—have a hard time explaining their own situation to family, friends, or even themselves • Often confused by multiple stories from their own doctors • May feel unwanted or like a failure that no one wants to see: “I’m difficult” • May feel that no one is capable of doing justice to their situation • Often wonder “why doesn’t the left hand know what the right hand is doing” in the care system • May run up large out-of-pocket expenses for copays, medications, etc • May get in trouble with employers for missing time for multiple doctor appointments Assessing for complexity complements assessing for diagnosis. • Patients with almost any diagnosis can become complex. • Level of complexity is often even more relevant than diagnosis to the kind and level of team structure, care management function, and behavioral medicine or social service involvement. • That is, many management challenges for complex patients are very similar across diseases, knowing that condition-specific protocols and “medical details” vary disease by disease. • Assessing for diagnosis and severity is essential, but effective action also requires assessing the complexity of the patient or case—and acting on that total situation, not only diagnosis and severity. Measurement of complexity becomes communication about action, not just description. (Lyons, 2006) Assessing for complexity (as well as diagnosis) points to the level and kind of action that needs to be taken today. This means going beyond providing an accurate description of the patient, diagnosis, or other state of affairs. Assessment must lead directly to decision-making—especially what to do today, what to start in motion for follow-up and what doesn’t need to be done at all. Contrast: Measurement for precise description vs. Measurement for action-based communication: Measurement as mere description Measurement as action-based communication To place individual on a trait or diagnostic continuum To describe an individual for action or service planning Focus on precision of observations Focus on caregiver consensus on observations and action Emphasize scale internal structure and consistency Emphasize scale clarity, brevity and usability To be a single definitive source of measurement To integrate different information across observers That is, complexity assessment organizes observations into what you are going to do about it. 3 Orientation to Complexity Assessment, 6/25/09 © 2009 University of Minnesota Complexity ratings are linked directly to levels of action. Each item stands on its own—is clinically meaningful and translates into action steps. Rather than depending entirely on “total scores”, each variable uses the same rating system to decide on level of action needed: Assessment of level of action needed Rating State of affairs Level of action needed 0 No complexity—with only routine care needed No evidence of need to act (beyond routine care) 1 Mildly complex—basic care planning needed Watch / prevent—explore interacting issues 2 Moderately complex—multifaceted plan needed Form a well-integrated plan—and set in motion 3 Very complex—intensive care and planning needed Immediate, intensive, and integrated action may be needed In this approach, the level of action needed results from a combination of both complexity and severity. This differs from traditional approaches which typically orient only to severity (of symptoms, risk to life, or functional impairment) but not to complexity. Note that assessment of complexity takes place regardless of disease and complements assessment for diagnosis. Dimensions of complexity assessment: (A full complexity assessment record appears on page 5) Current state of affairs (one question for each point) • Symptom severity / impairment • Diagnostic challenge / uncertainty Action areas (for complexity-linked care plans) Responding to symptoms, impairments, diagnostic uncertainty, threat to life 2. Readiness to engage • Distress, distraction, preoccupation • Readiness for treatment & change Responding to individual or family distraction or disturbance 3. Social • Home / residential safety, stability • Participation in social network Responding to social vulnerability, isolation, safety 4. Health system • Organization of care • Clinician / patient relationships Coordinating care, improving relationships, negotiating for adherence* 5. Resources for care • Shared language with providers • Adequacy of insurance for care Consistency and quality of interpreters and financial consultation / assistance Five domains of complexity 1. Illness (Biomedical, mental health, substance abuse) *The degree to which the patient and team have agreed to—and are carrying out—a plan If assessment of the current state of affairs does not lead to enough confidence for action, past history (last 5 years) can be gathered using the very same domains, i.e., history of: • Chronicity or diagnostic dilemmas • Social dysfunction or vulnerability • Distress and preoccupation with symptoms • Care system intensity / impaired relationships A “past history” rating form appears on the “back” of the assessment record (page 6). 4 Orientation to Complexity Assessment, 6/25/09 © 2009 University of Minnesota Working draft Patient: Domain Illness (Biomedical, mental health and substance abuse sx & dx) Readiness to engage Social Health system Resources for care Minnesota Complexity Assessment Method University of Minnesota Dept of Family Medicine & Community Health, 4/23/09 Age / gender: Current state of affairs Problem: Complexity level 1. Symptom severity / functional impairment 0=No symptoms—or reversible w/out intense efforts 1=Mild noticeable sx—don’t interfere w function 2=Mod to severe symptoms that interfere w function 3=Severe symptoms impairing all daily functions 2. Diagnostic challenge 0=Diagnosis(s) clear 1=Narrow range of alternative diagnoses 2=Multiple possibilities—clear dx expected later 3=Multiple possibilities—no clear dx expected 3. Distress, distraction, preoccupation 0=None 1=Mild, e.g. tense, distractible, preoccupied 2=Moderate, e.g. anxiety, mood, confusion 3=Severe w behavioral disturbances, e.g., harm 4. Readiness for treatment and change 0=Ready & interested in tx; active cooperation 1=Unsure/ambivalent but willing to cooperate 2=Major disconnect with proposed tx; passivity 3=Major disconnect; defiant/won’t negotiate 5. Home/residential safety, stability 0=Safe, supportive, stable 1=Safe, stable, but with dysfunction 2=Safety/stability questionable—evaluate/assist 3=Unsafe/unstable—immediate change required 6. Participation in social network 0=Good participation with family, work, friends 1=Restricted participation in 1 of those domains 2=Restricted participation in 2 of those domains 3=Restricted participation in 3 of those domains 7. Organization of care 0=One active main provider (medical or MH) 1=More than or less than 1 active provider(s) 2=Multiple medical / MH providers or services 3=Plus major involv. with other service systems 8. Patient-clinician (or team) relationships 0=All appear intact and cooperative 1=Most intact; at least 1 distrustful or remote 2=Several distrustful or remote; at least 1 intact 3=Distrust evident in all pt / clinician relationships 9. Shared language with providers 0=Shared fluency in language with provider 1=Some shared language / culture with provider 2=No shared language; professional transl. available 3=No shared language; family or no translator 10. Adequacy / consistency of insurance for care 0=Adequately insured, can pay for meds, copays 1=Under-insured* with modest other resources 2=Under-or intermittently-insured 3=Uninsured, no other financ. resources for care No complexity—only routine care needed No evidence of need to act (beyond routine care) Mildly complex—basic care planning needed Watch / prevent—explore interacting issues Moderately complex—multifaceted plan needed Form a well-integrated plan—set in motion Very complex—intensive care & planning needed Immediate, intensive and integrated action 0 1 2 3 0 1 2 3 Instructions: As you gather information and listen to the patient, • Scan for sources of complexity (interference with usual care) on the left. • Ask questions that help you understand what you don’t know. • Circle a level that reflects your understanding of complexity in each area. • Outline a plan of action that takes into account the observed pattern of complexity 0 1 2 3 0 Plan of action: General goals: (for both complexity and diagnosis) 1 2 3 0 1 2 3 Self-check: Do I need someone in this case with me—and who? 0 1 Team / roles required: 2 3 (who does what—how it adds up) 0 1 Patient / family role: 2 3 (as part of the team) 0 1 What clinician / team will do today: 2 3 (To act on both complexity & diagnosis) 0 1 2 3 0 1 2 3 *Underinsured: Lack of coverage for hospital, medications, mental health; presence of high deductibles /copays With all your ratings in view, decide what level and kind of action is needed in what areas—and incorporate that into your action plan. 5 Adapted by Peek, Baird, Coleman, & DFMCH faculty with permission Orientation Complexity 6/25/09 from,Frits Huyse, to C-L psychiatrist;Assessment, Dept of General Internal Medicine; © 2009 University Minnesota Integrated Care, University Medical Centre of Groningen, The Netherlands. (Huyse & Stiefel, 2006) Contact: Macaran Baird ([email protected]) © 2009, University of Minnesota Historical facts and patterns where needed to inform today’s action plan Draft 4/23/09 Five-year history of risks associated with complexity History of chronicity and functional impairment (for significant chronic conditions) Illness-chronicity rating 0= Less than 3 month dysfunction / impairments 1= More than 3 month or shorter episodes 2=One chronic disease of significance 3=Several chronic diseases of significance History of diagnostic dilemmas 0=No periods of uncertain diagnosis 1=Diagnosis and etiology quickly clarified 2=Diagnostic dilemma solved with much effort 3=Diagnostic dilemma unsolved despite big effort History of restrictions in coping or history of distress and preoccupation Readiness-coping and distraction 0=No restrictions—manages stress & medical treatment adequately 1=Mild—distress for patient, family, providers 2=Moderate—great distress for all above 3=Severe—serious restriction in ability focus on care or self-care History of difficulty maintaining interest or readiness for care and treatment 0=None 1=Ambivalence; intermittent readiness for proposed treatment plans 2=Major disconnects or passivity regarding proposed treatment plans 3=Major disconnects, with defiance or seeming unwillingness to negotiate History of unsafe or stable home / residence Social integration 0=None 1=Safe, stable, but with dysfunction, tension 2=Questionable safety or stability 3=Unsafe / unstable History of social impairment, isolation, or lack of participation 0=None 1=Mild—restrictions in participation; interpersonal problems 2=Moderate—can’t initiate or maintain social relations 3=Severe—disruptive social relations or isolation. History of intense levels or amounts of treatment or services Health system intensity and experiences 0=Less than 4 contacts with physicians per year 1=Four or more contacts per year or 1 specialist 2=Multiple specialists or a hospital admission or involvement with social service systems 3=Several hospitalizations, rehab unit, and social service systems History of distrustful or distant patient-clinician relationships 0=Full trust and good relationships with providers 1=Some distrust or distance with providers 2=Patterns of distrust and of requests for 2nd opinions or for new doctors 3=Repeated conflicts with doctors or involuntary hospital / rehab admissions Adapted by Peek, Baird, Coleman, & DFMCH faculty with permission from,Frits Huyse, C-L psychiatrist; Dept of General Internal Medicine; Integrated Care, University Medical Centre Groningen, The Netherlands. (Huyse & Stiefel, 2006) Contact: Macaran Baird ([email protected]) © 2009, University of Minnesota 6 Orientation to Complexity Assessment, 6/25/09 © 2009 University of Minnesota Levels of Application for Complexity Assessment “Oh my—this will take far too much time!” The complexity assessment tool outlined on previous pages may elicit that reaction among clinicians and preceptors—until all three levels of application are seen as available options: Full assessment, shorthand application, and constant mindset. 1. A mental model to always have in mind. Complexity as a factor in care and medical education— regardless of diagnosis—is a lens to help clinicians and educators more quickly discern patterns in the exam or precepting room—and hence more quickly formulate actions. A vocabulary and receptivity for emerging complexity is helpful to have on board all the time—even though most simple-appearing patient problems are just that—simple. Clinical demand: All cases—whether simple or complex Complexity assessment: From constant mindset to shorthand to full application Most Some A few A complexity “lens” or mindset to always have in mind Shorthand complexity assessment in daily practice Team meetings and case conferences with full complexity assessment 2. Shorthand application in daily practice. Most primary care cases are simple. However, some of these patients turn out not so simple, particularly when psychosocial stresses or chronic conditions are involved. As it dawns on clinicians that the case may not be as simple as it initially appeared, a shorthand application of complexity assessment (or screening) can help quickly focus on what makes the situation complex and where to investigate further. For example, imagine how a quick glance at the “pocket card” below could focus the interview questions. Pocket card: What makes today’s situation start to feel complex—and what do I do about it? Five domains of complexity 1. Illness and disease (Biomedical, mental health, S.A.) 2. Readiness 3. Social 4. Health system 5. Resources for care Current state of affairs • Symptom severity / impairment • Diagnostic challenge / uncertainty • Distress, distraction with symptoms • Readiness for treatment & change • Home/residential safety, stability • Participation in social network Action areas Responding to symptoms, impairments, diagnostic uncertainty, threat to life Responding to individual or family distraction or disturbance Responding to social vulnerability, isolation, safety • Organization of care, # of providers • Clinician / patient relationships • Shared language with providers • Insurance resources available for care Coordinating care, improving relationships, negotiating for adherence* Consistency and quality of interpreters and financial consultation / assistance *The degree to which the patient and team have agreed to—and are carrying out—a plan 3. Full assessment-- for known complex patients and team meetings. The full assessment is designed also for preparation and use in team meetings, care conferences, or “collaborative assessment and planning” visits (Danner) where already-known, tough, time-consuming, difficult, taxing, risky, puzzling, “overserviced and underserved” or “stuck” cases are taken up. Such patients are already known to be complex, but the tool helps the team say more than that. “Yes we know the situation is complex—but how?” The full assessment is a way to structure what could otherwise be a much more diffuse discussion of complicating factors and what to do about them. Much time is already being spent on these cases, and if anything, the tool can save some of it. 7 Orientation to Complexity Assessment, 6/25/09 © 2009 University of Minnesota Making the observations—the complexity assessment interview Different observers from different vantage points may gather different observations to be factored into a complexity assessment. One way is to actually interview a patient with complexity assessment in mind—and this doesn’t have to be done by a physician*. Here are some sample messages or questions for such an interview: • I am __________and would like to better to understand who you are, what you need today and what we can do to help make your treatment go as well as possible. [Establishing the purpose of the interchange] • Can you tell me how you feel about your problem and other concerns you may have about taking care of it? [Aimed at discovering the patient’s agenda today] • This is what the doctor told me about your illness. Is that correct? Are there other things I should know about? Do you feel you understand your medical condition well enough? Do you feel your doctor understands your situation well enough? Do have any more questions for me? [Aimed at how the patient understands their condition and doctor understands their situation] • Who are your other doctors or helpers taking care of you? How do you feel about them and how have things been going with them? [Aimed at discovering health care system risks for complexity] • Who do you have at home or family who can help or support you through health problems? • Now I would like to know something about how you live, your work and social relations and anything else that affects your condition or situation with it. [Aimed at discovering social risks] • Now that I know more about your medical and social circumstances, I would like to know how you like to handle things. Can you tell me how you handle medical problems? How do you handle pressures, stress, or feeling overwhelmed by life crises or problems when they occur? How do you handle emotions you find distressing? Is there something going on right now that you are not sure how you want to handle? Are you someone who finds it easy or hard to follow recommendations of doctors? [All these aimed at discovering distress, distraction, and risks to engaging in their own healthcare] • This is helpful information—useful to us as your healthcare providers. How useful was this to you? And is there anything else? Anything you think we missed that might be important to your treatment or how you or your family might handle what is recommended? *In the Netherlands this interview is often done by a nurse or social work member of the care team. The team calls it “The InterMed interview”, after the name of the complexity assessment tool (Huyse) that they use and that is adapted here. Assessment of complexity also has an important place in medical education. Assessment of complexity and level of action to take today is part of patient care, and arguably equally critical for medical education, especially precepting. The point of education is to develop competencies—ability to act in the right way at the right times—and be able to say why. Students and residents need a patterned response when encountering complex patients that goes beyond “Oh my—sure is complex”. An approach to assessment that includes complexity (as well as diagnosis) is critical for medical education and to modernizing the care system. Residents and students can learn to gather the information they need in caring for complex cases and setting up teams when needed—using interviewing methods like the one shown above. Preceptors can ask the kinds of questions of residents and students that prompt the thinking and interviewing “moves” for assessing complexity and selecting actions that respond to complexity as well as diagnosis. 8 Orientation to Complexity Assessment, 6/25/09 © 2009 University of Minnesota Principles for selecting items for a complexity assessment tool; Context for use of such a tool in a health system Principles for choosing good items for a complexity assessment tool: (“Clinimetrics”; Lyons) • Use clear consensus-based language (people can largely agree on what they are looking at) • Items measure what they appear to measure (face validity) • Ratings have immediate meaning (affects what is the case and what you need to do about it) • Minimal redundancy in the items (better to have redundant collection than redundant items) • Inter-rater reliability is at the item level (since each item means something) • Subjective states are not measured because sources of observations are severely limited To this, add principles for involving users in their own item selection (“Communimetrics”; Lyons) • Involve clinical / organizational partners in selection of items • Make tools that are malleable to organizational processes • Include only items that might impact treatment planning: “just enough information” philosophy • Make the measure easy for clinicians to use • Make levels of item scoring correspond directly to levels of action Success factors in incorporating complexity assessment in real care systems • Uniformity of information (include data collection as part of EMR / IT support of clinical process) • Structured communication (include proactive “rounds” focusing on clinical mgmt) • Multidisciplinary (include adjusting team composition to pt needs and venue for care) • Care chains (include coordination of care, development of care plans) Larger context in which complexity assessment is situated: • Active case finding of complex patients (that clinics may or may not already be working with) • Total Clinical Outcome Management* Structure: Multidisciplinary—across care venues Process: Coordination of diagnosis and communication Outcomes: Diagnosis-specific, quality of life and costs • Stepped care (Kroenke): Overlapping and integrated steps-From Patient self-management to Primary care provider to Care manager (for primary care provider) to Collaborative care (more than one provider with or without care manager) to Referral to specialist *The concept of Total Clinical Outcomes Management (In context of Child Adolescent Needs & Strengths tool-CANS; Lyons) • • • • Total means embedded in all activities with patient/family as full partners Clinical means focus is on patient and family health, well-being, function Outcomes means measures are relevant to decisions about actual or proposed impact of interventions Management means that this information is used in all aspects of managing the system—all aspects of care planning, program design, clinical supervision, and system operations. 9 Orientation to Complexity Assessment, 6/25/09 © 2009 University of Minnesota Complexity Assessment Pocket Card (for “shorthand” complexity assessment) This pocket card is a convenient reminder of 1) The dimensions of complexity and corresponding action areas, and-2) The need to judge level of complexity and corresponding action that may be needed. The pocket card is used to help shape interviewing in situations when the full-blown complexity assessment is not being done. This can be especially useful with students and residents as a convenient way to keep the mindset and basic dimensions of complexity assessment in mind. Results here may guide action planning or signal that you should do the full-blown complexity assessment (like “screening” that precedes “assessment”). Each panel below is one side of the pocket card (To be cut, folded, and the panels taped to form a two-sided card) Minnesota Complexity Assessment Method Current state of affairs Domains • Symptom severity /impairment Illness (biomedical & MH) • Diagnostic challenge Draft 4/09, Univ of MN Action areas Responding to sx, impairments; dx uncertainty; threat to life Readiness • Distress, distraction with sx • Readiness for tx & change Responding to indiv or family distraction/ disturbance Social • Residential safety, stability • Participation in social network Responding to social vulnerability, isolation, safety Health system • Organization of care; # of prov. • Clinician / patient relationships Coordinating care, improving relationships, adherence* Resources for care • Shared language with providers • Insurance resources for care Consistency of professional interpreters; financial consultation / assistance *The degree to which the patient and team have agreed to—and are carrying out—a plan Minnesota Complexity Assessment Method Level of complexity-linked action needed State of affairs 0 Level of action needed No complexity—only routine care needed No evidence of need to act 1 Mildly complex--basic care planning needed Watch / prevent— explore interacting issues 2 Moderately complex—multifaceted plan needed Form a well-integrated plan— set in motion 3 Very complex—intensive care & planning needed Immediate, intensive, integrated action needed (beyond routine care) Looking at complexity across the dimensions on the other side of the card, decide what level of action is needed in what areas (using the guide above) and incorporate into your action plan © 2009 University of Minnesota Dept of Family Medicine & Community Health 10 Orientation to Complexity Assessment, 6/25/09 © 2009 University of Minnesota
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