August 21,
Dear Carla,
Ghostly Gala 2
to Vanish FSH
Muscular Dystrophy
October 30, 2016
The World-Famous
Cicada Club
617 South Olive St.
Los Angeles, CA 90014
Honorary Chairs
Max Adler
Wendy Liebman
Co-Chairs
Patricia Doktor
Alison Korman
Committee
Mimi Garcia
David Garden
Laurie Heyman
June Kinoshita
Chareen Kossoff
Selina Lai
Ellen Rennell
Rachael Yura
FSH Society
CEO & Research Programs
Daniel Paul Perez
[email protected]
Executive Director
June Kinoshita
[email protected]
450 Bedford Street
Lexington, MA 02420 USA
(781) 301-6060
(781) 862-1116 fax
[email protected]
www.fshsociety.org
I write to invite you to join me on the Host Committee for Los Angeles' second
annual "Ghostly Gala to Vanish FSHD" which will be held on October 30,
2016 at the world-famous Cicada Club and will feature a fabulous “Bach to
Bowie” costume ball celebrating music through the ages.
Last year's inaugural Gala was a resounding success - over 200 people attended a
sumptuous dinner dance and proudly raised over $100,000 in a single glorious
evening! We hope to top that this year, and to ultimately establish the "Ghostly
Gala" as the premiere annual, go-to Halloween charity event in Los Angeles.
The Gala Committee is already working diligently to raise funds for the FSH
Society, the world’s leading nonprofit organization dedicated to finding treatments
and a cure for facioscapulohumeral muscular dystrophy (FSHD). FSHD
robs sufferers of the muscles they need to pursue their livelihoods, smile, blink, or
even hug their children. It is a genetic disorder, and affected parents have a 50
percent chance of passing the mutation to each of their children. Right now, there
is no treatment or cure.
The FSH Society is worthy of our enthusiastic support. Almost no other
organization directs such a large percentage--87%--of every dollar it raises directly
to programs serving FSHD patients and research. For this outstanding
performance, it has been awarded Charity Navigator's Four-Star award for the
eighth consecutive year, ranking it among the top 2 percent of U.S. charities for
exceptional fiscal performance and transparency.
Our Board and Gala Committee are all directly affected by FSHD, either because
they have the condition, or a loved one is afflicted. Your support will have a great
impact on them, as well as the nearly one million people who live with FSHD.
Please consider hosting a table at this year’s gala (or share hosting duties with a
friend) and introduce your friends and associates to a superlative evening of fun in
support of a great cause. Please respond by September 7, 2016 to help us stay
on schedule to produce our sponsor letter and invitation.
Thank you for your generous consideration to support a cause that is so near and
dear to my heart. I so look forward to hearing from you!
Sincerely,
June
June Kinoshita, Executive Director, FSH Society
2016 Ghostly Gala 2 Host Committee