1/21/2015 The 3 A’s: Assessment, Accommodations, and Adaptations Meher Banajee, Ph. D., CCC-SLP Associate Professor LSU Health Sciences Center Overview • • • • Introductions and overview Definitions Preparation for assessment Adaptations and accommodation procedures and demonstrations • Practical applications • Conclusions Assessment • Two parts –Initial assessment to determine AAC Systems –On-going assessment to determine efficacy of intervention Assessment • Definition – It is any activity, either formal (through the use of norm-referenced standardized criteria) or informal (through the use of developmental profiles or checklists) that is designed to elicit accurate and reliable samples of the student’s behavior upon which inferences relative to particular skill status may be made. Preparation for assessment • Gather information from a variety of sources • Determine current communication techniques • Determine factors that might interfere with the assessment process – Seating and positioning status – Sensory issues • Provide necessary accommodations and adaptations 1 1/21/2015 Best practices in assessment • Best practices in assessment 1. Multi-source 2. Multi-discipline 3. Multi-method 4. Multi-cultural 5. Multi-domain 6. Multi-context 7. Multi-occasion Preparation for assessment • Variety of sources are used to gather information – Parental data • Parental reports are usually accurate • Use interview methods • Listen to information provided by parents • LATI • Case history children (Goossens’, Crain & Elder, 1990) • Case history adult (Goossens’, Crain & Elder,1990) – Medical records report • Become familiar with range of medical concerns • Lens through which behaviors can be interpreted Current communication techniques SETT Framework by Joy Zabala • The Student • The Environment • The Tasks • The Tools Preparation for assessment – Other intervention reports • Reports of other team members – Test results • A system that uses a variety of means to assemble and analyze the samples of behavior • A means of structuring observations and reporting results • Significant limitations in all available tests • Assessor should be an effective elicitor, observer and interpreter of samples of behavior Current communication techniques 2 1/21/2015 Preparation for assessment • Every move counts (Jane Korsten, http://www.everymovecounts.net/) – Sensory-based communication program. – Based on the idea that everyone communicates – Developed for individuals perceived as unable to communicate due to severe multiple disabilities – Functioning below the 18-month level in the area of communication – The assessment targets six sensory areas: visual, auditory, gustatory, olfactory, vestibular and tactile. Positioning • Motor development – Proximal – Distal – Cephalo Current communication needs – – – – – – During a 10- to 12-minute session Gain information on how each individual communicates Motivating activities Abilities versus disabilities, no right/wrong answers. The transdisciplinary team determines response mode Responses range from a slight body movement (eye gaze, affect or body position) – Assessment materials are common items (easy and economical to assemble) Positioning • Movement – Mobility – Stability – Gross motor (e.g. walking) stability superimposed on mobility – Fine motor (e.g., writing) mobility superimposed on stability) – Caudal Positioning • Tone – Hypertonic – Hypotonic – Fluctuating tone (Athetoid) Positioning – Abnormal reflexes • Asymmetrical tonic neck reflex (ATNR) – Extensor tone on the face side – Flexor tone on the skull side • Symmetrical tonic neck reflex (STNR) – Extensor – Flexor • Positive supportive reaction • Tonic Labyrinthine reflex – Prone – Supine 3 1/21/2015 Positioning • General principles of seating – Pelvic stability – Lower extremity support – Trunk stability – Head support Positioning • Pelvic stability – Sling back or sling seat – Buttocks positioned back and secured in seat – Extensor thrust – rigid pelvic restraints – Proximal pelvic positioners (e.g., roll, sacral pad or bi-angular back) – Upper extremity support – Manipulation of orientation in space Positioning Positioning Positioning Positioning • Lower extremity support – Distal pelvic positioners (e.g., roll or wedge in front of the seat). – Abductor pommel – Widened abductor pommel – Adductor pads • Lower extremity – Feet should be supported with a foot plate – Angle of the foot plate should be adjusted to prevent extension – Shortened foot plates – Straps on the feet – Customized seating 4 1/21/2015 Positioning Positioning Positioning Positioning • Trunk support – Thoracic pads (removable or swung away) – Lateral pads built into the seat – Harness (v-harness v/s a butterfly harness) – Shoulder straps (do not come from the top but from shoulder height) Positioning Positioning • Head support – Access a switch and to visually monitor a target – Extended back and side pads not appropriate – Curved headrest, neck ring or an Otto Bock headrest – Not too far back or too far in front 5 1/21/2015 Positioning Positioning • Upper extremity support – Lap tray • Too high (bunching of shoulders) • Too low (cannot weight bear) • Angled or easel tray – Bumpers • Behind elbow and along forearm • Inhibit extension of arms to the side and shoulder retraction • Forward arm position Sensory issues • Sensory integration – Organizing information received through the senses – The developing child attaches meaning to sensations, shifts attention, organizes play behavior, builds skills, gains control and regulation of emotions – Occurs in sub-cortical levels of the brain – Involves complex interactions with parts of brain responsible for attention/arousal, emotions, memory, autonomic functioning and coordination Sensory issues • Tactile sensation – Primary source of comfort and security – Learning to tolerate early touch is one aspect of early self-regulation – Touch sensations help an infant to suck, chew and swallow – Tactile discrimination and perception play critical roles developing hand skills Sensory issues • Sensory integration – Vestibular: Gravity and Movement – Proprioceptive: Body Position and Movement through Space – Tactile: Touch throughout the Body Sensory issues • Postural control and balance reactions – Gravitational Security – Assists in orienting oneself in space and in initiating exploratory and adaptive movements – A well-regulated vestibular system helps to integrate both sides of our bodies – Regulating: Arousal and Alertness 6 1/21/2015 Sensory issues • Proprioceptive system – Develops through weight bearing and movement against gravity – Enables a child to know where he is in space and how he is moving – Contributes to development of body awareness and body scheme – Calming and organizing input: normalize arousal levels / aids in self regulation Sensory issues • Sensory modulation – Registration of sensory input: orient/alert to novel events – Response to sensory input: direct proportion – Well-modulated system results in appropriate: • • • • • Arousal Self-regulation Attention Focus Behavioral and emotional responses Sensory issues • Sensory processing • Sensory modulation • Sensory discrimination • Motor planning Sensory issues • Sensory integration – Sensory Modulation / Self-Regulation – Sensory Discrimination – Praxis / Skill Output Sensory issues • Sensory discrimination – A well-developed discriminatory system allows for: • Skilled hand use • Oral motor control • Coordinated body movements • Complex actions Sensory issues • Problems with Intake/Registration: Over-orient/ habituate • Abnormal Responses to Sensory Input – Over-responsive: Sensory Avoidant/Sensory Defensive – Under-responsive: Sensory Seeking/Passive • Influences Self Regulation/Arousal /Attention 7 1/21/2015 Sensory issues Sensory issues • Sensory discrimination problems • Sensory diet – Well-balanced variety of sensation that match a child’s individual needs – Combinations of input for regulating state and enhancing skill – Sensory input is embedded in the child’s daily routines or in meaningful activity – Active engagement of the child, not “sensory stimulation” – Monitor response to input through the child’s behavior, interaction and play – Fine motor problems – Breaks toys / difficulty judging force – Difficulty judging source of sounds, localization of sounds – Difficulty judging depth, distance, and space between self and objects – Clumsy Sensory issues • Sensory input – Calming and Organizing – Body-based sensory input most regulating: • Rhythmical and slow swinging, • Bouncing • Firm hug / deep touch pressure • Resistive activities / heavy work – Soft or muted colors – White noise or music with rhythmic and slower tempos – Sucking or blowing / chewy snacks Sensory issues • Accommodations during testing – Over responsive child • Weighted blanket, weighted vest • Chewy snacks • Slow rhythmic music • Bottoms up cushion • Fidget toy • Schedule testing after a strenuous activity • Picture schedule for testing • Give breaks • Alternate hard and easy tasks Sensory issues • Sensory input • Arousing and Organizing • Repetitive and fast movements • Light touch • Bright lights and colors • Vary frequency, intensity or beat of sound • Vary temperature and texture of food: crunchy snacks /sour tastes / cold Sensory Integrative Dysfunction Dysfunction of Sensory Integration (DSI) – Under responsive child • Teeter-totter stool • Crunchy or sour snacks • Cold drinks • Fidget toy • Stimulating music • Alternate hard and easy tasks • Give breaks • Picture schedule for testing 8 1/21/2015 Adaptations • Adaptations are: – Changes that make learning- or work-more manageable for someone, regardless of diagnosis Accommodations • Accommodations are: – Legally required adaptations that ensure persons with disabilities have an equal chance for success Accommodations • Accommodations are – Chosen for the individual person’s need – Are needed when you do similar tasks in other places Examples of adaptations • • • • Changes in the pace of learning Changes in how material is presented Environmental changes Changes in the amount of material presented at one time Accommodations • Accommodations are – Required by law – Help individuals with disabilities have a fair chance for success – Give an equal chance to work in, learn in, and/or enter a building Accommodations • Examples include – Using special equipment – Performing work in a different way – Performing work in a different place – Changing how others think about disabilities 9 1/21/2015 Accommodations • Examples cont’d. – Note takers – Additional time to complete tasks – Repeated instructions or directions – Large print text or Braille text readers – Environments free from interruptions and distractions for learning and completing tests – Sign language interpreters Adaptations vs. Accommodations • Accommodations alter the manner of administration of the assessment – No special approval needed – Use of large print – Use of a paper or non‐paper guide (non‐ruled) to facilitate reading – Use of different color overlays to facilitate reading – Use of large diameter pen Adaptations vs. Accommodations • No special approval needed – Use of ear plugs – Use of a seat cushion Accommodations • Assistive Technologies – Work processor – Word prediction – Speech recognition software – Screen magnification – Text to speech Adaptations vs. Accommodations • No special approval needed – Seating near natural light – Completing individual test sections on different days – Use of graph paper for math Adaptations vs. Accommodations • Adaptations that alter the construct of the assessment – Prior approval required – Audiocassette – Private room – Braille – Extended time 10 1/21/2015 Adaptations vs. Accommodations • Prior approval required – Off-site testing – Supervised frequent breaks – Scribe – Use of special equipment Adaptations vs. Accommodations • Typical language assessment consists of – Formal language assessment • Criterion referenced tests • Norm referenced tests – Informal language assessment • Language sample • Discourse analysis Formal tests of communication – AAC Profile identifies • areas of strength and those that need intervention and instruction • determines functional, long-range outcomes and the steps toward achieving them • compares individual performance over time • ways that AAC support team members can define and coordinate their roles for intervention and instruction programs • identifies and provides optimal learning environments Adaptations vs. Accommodations • Instructions should be adapted for students as needed • Professionals should help students become familiar with available accommodations Formal tests of communication – Test of Early Communication and Emerging Language (TECEL) • Ages: 2 weeks to 24 months (standard scores, percentiles, and age equivalents) • Older children, adolescents and adults who have language delays (age equivalents only) • Testing Time: 15 to 45 minutes • Administration: Individual observation and/or parent/caregiver interview • Can be administered to verbal and nonverbal respondents and is suitable for assessing individuals who communicate by means other than speech Formal tests of communication – AAC Profile has the following subtests: • Operational Area of Learning – Turning on and off device • Linguistic Area of Learning – Demonstrate receptive and expressive language skills • Social Area of Learning – Pragmatics of language • Strategic Area of Learning – What can be communicated – Repair, etc. 11 1/21/2015 Formal tests of communication • Norm referenced tests look at the individual’s performance and compare it to that of a group • View an individual’s performance with reference to group performance on similar levels • Direct elicitation of desired behavior • Developmental ages, quotients, age level scores, mental age or IQ scores Formal tests of communication Formal tests of communication • Limitations include administration of the test in a limited narrowly defined fashion • Child’s response must fit into this narrow fashion • Violation of either of these principles places the normalization and standardization in jeopardy (e.g., tracking of object vs. tracking a person across the room) Formal tests of communication • Lack of predictive ability until 3 years of age • Therefore the predictability of norm-referenced tests is questionable at the best • Scoring difficulties related to item validity or do the scores actually measure what they actually are suppose to measure • In determining an overall score, the items are not weighted and therefore unable to determine an accurate overall score • Norm-referenced tests are of little value in determining the intervention strategies • Criterion referenced tests – Look at mastery of a particular item in a domain – Clinician can elicit desired behaviors in a manner best fits a child (spontaneous naming of an object vs. naming of an object on demand) – Determine strengths and weaknesses – Seamless transition between test results to intervention – More sensitive to change – Not a diagnostician but an inference maker – Can be adapted for use with physically challenged children Test adaptations Test adaptations • Research – Bristow and Fristoe (1987) • Compared scores using the standard protocol and 6 alternative response modes • Peabody Picture Vocabulary Test • Preschool Language Test • Eye gaze, scanning, headlight pointing, pointing, head pointing • Scores correlated highly • General guidelines – Use criterion referenced rather than norm based standardized measures – Standardization violated – Document the adaptations you have used in a narrative and descriptive manner – Attempt to get to the skill the test item represents (e.g., “uses a stick to attain an out of reach object”. Underlying skill being measured is tool use.) 12 1/21/2015 Test adaptations • Examples of modifications – Providing choices of answers • Test item – “assemble 3-piece body puzzle correctly” – Provide 1 correct puzzle and 1 incorrect – One correct answer and 2 foils – Asking “yes/no” questions • Test item – “match colored cubes (field of 5)” – Provide 5 colored containers and colored cubes – Hold each cube over each container, asking the child if the cube belongs in that container Test adaptations – Test items or other picture based items – Cut apart pictures and place on • Choice board • Communication vest • Eye-gaze frame Phonological Awareness Test • 7 subtests – Rhyme • Identification • Response – Letters to sounds – Sounds to letters – Isolation • Initial • Medial • Final – Segmentation – Substitution Test adaptations – Eye gaze • Test item – “identifies three objects by their use” – Place 3 objects in front of the child and score based on which item they look at in response to each question • Test item match sound to letter – Place correct letter with 2 foils on a choice board – Eye gaze or point with finger • Test item- identify initial, medial and final position of sound in a word – Use train with engine, carriage and caboose – Use eye gaze or pointing Test adaptations • Use a low technology communication device such as a rotary scanner • Use numbers or letters as choices on a high technology communication device such as a Springboard, etc. Boston Diagnostic Aphasia Examination • Subdivided into five functional sections. • Conversational and Expository Speech • Auditory Comprehension • Oral expression (including the Boston Naming Test) • Reading • Writing 13 1/21/2015 Informal tests • T-10 – Language activities • Color recognition • Letter recognition • Number recognition • Same and different • Association • Categorization • Object identification • Reading comprehension • Word recognition • Sentence construction Language sample • Elicitation methods & tasks – Naturally occurring interaction/conversation – Play-based samples – Narrative samples • “Recording” methods – Video – Audio • Size of sample – Communication Sample: usually timed (6 to 20 min.) – Spoken Language Sample: 100 permissible utterances recommended (minimum of 50) Managing language samples • Including/Excluding Utterances in a Language Sample – All productions transcribed in Standard English orthography – Exclusions: Imitations Unintelligible utterances Identical utterances Answers to elliptical questions Rote passages Noises that are not meaningful • Defining Utterances – An utterance may be a sentence OR a shorter unit of language (even a word) separated from other utterances by a drop in voice, a pause, and/or a breath that signals a new thought – Retherford, K.S. (2007). Guide to analysis of language transcripts (3rd ed.). Austin, TX: Pro‐Ed. • Informal tests • Prentke Romich - Unity –Catch the rabbit –Picture identification –Categorization • Tobii/ATI –Catch the rabbit –Games for calibration Collecting Samples with People Who Use AAC • Elicitation methods and tasks – Tasks with available & known vocabulary • “Recording” Methods – Use of automatically collected data – Use of data collected in F2F interaction • Size of sample – Rate/volume of communication • Issues in Language Sample Collection and Analysis With Children Using AAC by Gail Van Tatenhove, SIG 12 Perspectives on Augmentative and Alternative Communication, April 2014, Vol. 23, 65‐74. Managing language samples • Including/Excluding Utterances – Exclude: • Prestored sentences and long phrases • Stored songs, riddles, noises, etc. – Include: • Prestored words and short phrases (2 – 3 words) • Spelled words • Defining Utterances – terminal punctuation, time span custom to user • Issues in Language Sample Collection and Analysis With Children Using AAC Gail Van Tatenhove, SIG 12 Perspectives on Augmentative and Alternative Communication, April 2014, Vol. 23, 65‐74. 14 1/21/2015 Analyzing language samples • Number of different words • Type‐token ratio (TTR) • Semantic relationships • Comprehension • Narrative development Use • Gestures • Phonetic inventory • Percent intelligibility • Mean length of utterance (MLU) • Brown’s Stages • Sentence types • Narrative development Content Form Analyzing Language Samples (microstructure) • Joint attention • Extralinguistics • Pragmatic functions • Topic Maintenance • Turn‐taking: Discourse ratio • Narrative development (macrostructure) • Communication repairs (microstructure) Tools for analyzing language samples • Pragmatics • Vocabulary • Syntax – Brown’s Stages of Linguistic Development • Morphology – MLU‐W and MLU‐M • Conversation & Discourse • Issues in Language Sample Collection and Analysis With Children Using AAC Gail Van Tatenhove, SIG 12 Perspectives on Augmentative and Alternative Communication, April 2014, Vol. 23, 65‐74. Tools for analyzing language samples • Traditional LSA Tools Systematic Analysis of Language Transcripts (SALT) • http://www.saltsoftware.com/ Language Environment Analysis (LENA) • http://www.lenafoundation.org/ Computerized Language Analysis (CLAN) • http://childes.psy.cmu.edu/ Computerized Profiling • http://www.computerizedprofiling.org/ – transcribe the language into the software vs. automatically collected data – not designed to analyze AAC issues (rate, representational method, device operation, etc.) • AAC‐Specific LSA Tools – Performance Report Tool (AAC Institute) – Realize Language (Prentke Romich Company) IGDIs for Infants and Toddlers • http://www.igdi.ku.edu/ Tools for analyzing language samples • Universal Language Monitor (ULAM) – AAC institute • Performance report tool (PeRT) – Generates a Performance Report with 6 appendices – Self-Study course available at the AAC Institute website http://www.aacinstitute.org/Resources/Products andServices/PeRT/030820_co_i_exam.html Tools for analyzing language samples • Collect and download data files from (LAM) • Segment utterances and mark words • PeRT will analyze on 7 Utterance-based Measures – Total utterances, complete utterances, method of generating utterances, MLU-W, MLU-M, communication rate, peak communication rate – 10 Word-based Measures – total number of words, different root words, core vocabulary, representational method, rate by representational method, selection rate, rate index, errors per selected words, errors per spelled/predicted words, deletions errors 15 1/21/2015 Tools for analyzing language samples Tools for analyzing language samples • Realize Language™: An AAC‐Specific Tool for Language Sample Analysis • Available from Prentke Romich Company • www.prentrom.com • $85.00 Yearly Subscription • PC and Mac Compatible Tools for analyzing language samples • Rate – Time marker for the word entry – Time for each keystroke to retrieve the word entry • Accuracy & Automaticity (fluency) – To retrieve icon for concept – To retrieve icon for part‐of‐speech • Language Representational Method Tools for analyzing language samples Top Ten Similarity to Frequency of Use Lists A-Z List Share with parents to show growth in vocabulary Frequency of Use list Teach spelled words that are pre-stored in device Add frequently spelled words to custom vocabulary Review unknown spelled words for literacy development or exploration of words in device Parts-of-Speech Graph & Break-down of Word Groups Focus intervention in areas where you see deficits Example: Increase question asking using /wh/ words Example: Expand use of verbs (CCSS goal = use of synonyms in Language Arts) Manage Vocabulary Goals Create, upload, and track vocabulary targeted for intervention Tools for analyzing language samples Words Used Create a Word Cloud Graph of Top Ten Words Used A-Z List of all words used Frequency of Use Word Analysis Parts of Speech Graph Breakdown of Word Groups Vocabulary Goals Clinical application • David • 6 years 1 month • Loves trains and animals • Diagnosis of autism spectrum disorder • Limited use of gestures such as pointing and grabbing another person’s hand • Some use of manual signs such as “more” “all done” • Inconsistent use of vocalizations • Occasional echolalia • Few word approximations and verbalizations, but mostly unintelligible speech 16 1/21/2015 Clinical application • Assessment, Evaluation & Programming System for Infants and Children (AEPS), Second Edition • Age Range: Birth to 6 years • Type: Criterion referenced • Scored using observation, direct elicitation of behavior and/or caregiver, teacher, or related service provider report • Purpose: to identify appropriate targets, formulate developmentally appropriate goals, conduct before and after evaluations to ensure interventions are working, and families involved in the whole process • Domains: Fine Motor, Gross Motor, Cognitive, Adaptive, Social-communication, and Social Clinical application Clinical application AEPS Social- Communication: • Social-Communicative Interactions • Make commands to and requests of others i.e., independently signed ‘more’ and ‘open.’ • Production of Words, Phrases, and Sentences • Uses adjectives i.e., use communication book with pictures to demonstrate the concept of using adjectives independently to request color and size of cars. Clinical application Clinical application Intervention plan • Goals and objectives • Increase expressive language skills to an age appropriate level • Increase interaction with others • Initiation • Turn taking • Commenting • Describe objects, events, or people • Two- three symbol combinations • One- two word combinations/increase mean length of utterance 17 1/21/2015 Clinical application Clinical application • Analysis of language samples: – Describe current expressive language abilities – Use real-life communication tasks – Identify areas of strength and need – Supplement or can be used as an important alternative to standardized tests • Benefits extend beyond diagnosis – Useful for writing intervention goals – Developing intervention activities – Tracking a client’s response to intervention Clinical application Clinical application • Provides a wide range of information on a child’s language abilities – Semantics – Syntax – Morphology – Ability to organize information for different communication purposes • Reduces time and effort • Makes language sample analysis a more realistic option! • Provides a wide range of information on a child’s language abilities – Semantics – Syntax – Morphology – Ability to organize information for different communication purposes • Reduces time and effort • Makes language sample analysis a more realistic option! Summary • Missing piece of the puzzle • Formal language assessment • Adapt test procedures for AAC use • Develop goals and objectives based on formal and informal language procedures • Monitor goals and objectives using both subjective and objective procedures (e.g., SALT, PeRT, Realize) 18 1/21/2015 Apps for learning, play and communication: Good, Bad and Ugly Overview • • • • • • • • • • Meher Banajee Associate professor LSU Health Sciences Center Introduction Universal design for Learning Apps for AAC Apps for Speech Language Pathology Apps for Social story Apps for Behavior management Apps for Literacy Apps for Math Miscellaneous Resources for Apps 2 Introduction Introduction • What is an idevice? – Mobile tablet device with a touch screen – Hybrid between an smart phone and a full laptop computer – Used to browse the internet, use apps, e-book reader, listen to music, watch movies, play, games, etc. – Only as powerful as the APPS! • Why is it an effective tool? – Mobile revolution (tech-savvy kids) • Manipulate and interact with devices easily • Very little instruction • Keeps them engaged – Key tool in intervention • Multifunctional • Engaging • Quick access • Inexpensive • Readily available 3 4 Introduction Introduction • Challenges – Informed (ever growing selection of apps) – Creative (apps not specifically for speech language pathology) – Customize (NO SINGLE TOOL FITS THE NEED OF ALL) 5 • Wi-Fi – Settings determine when and how iDevice joins a Wi-Fi network. • Brightness – Screen brightness affects battery life – Dim the screen to extend battery life – Use Auto-Brightness to conserve battery life 6 1 1/21/2015 Introduction Introduction • General – Settings that affect more than one application • Mail – Use Mail settings to customize your email account for iDevice • About – Gives information about iDevice. • Sounds – Settings to play sounds for an appointment – Lock or unlock iDevice • Wallpaper – Set the wallpaper with one of the preloaded images or one of your own • Location Services – Allow apps to gather and use data based on your location – To conserve battery life, turn location services off – Type on the keyboard 7 8 Introduction Introduction • Bluetooth – Connect wirelessly to a wireless or Bluetooth device – When Bluetooth is on, icon in the status bar at the top of the screen – To conserve battery life, turn Bluetooth off • Spotlight Search – Specify the content areas to search on using Spotlight – Touch next to an item, and drag it up or down to rearrange the search order. 9 Introduction • Auto-Lock – Locking turns off the display & save your battery – Prevent unintended operation of iDevice – Guided access –locks user into an app • Passcode Lock – A passcode can be set to lock the iDevice. • Restrictions – Set restrictions for what can be accessed on the iDevice • Side Switch – Lock Rotation/Mute – The Side Switch locks screen orientation – Silences notifications and sound effects. 10 Customizing • Date and Time – Time shown in the status bar at the top of the screen, world clocks, and calendar • Keyboard – Auto-capitalization – Enable caps lock – “.” shortcut – International keyboards • Reset – Preferences and settings are reset – Data and media are not deleted. 11 • Rearrange icons – Touch and hold any Home screen icon until all the icons begin to wiggle. – Arrange the icons by dragging them. – Press the Home button to save your arrangement. • Enlarging the Screen – Zoom in and out by pinch your fingers together or apart – For photos and web pages, double-tap to zoom in & doubletap again to zoom out. – For maps, double-tap to zoom in and tap once with two fingers to zoom out. • Editing text – Touch and hold to see a magnified view, then drag to position the insertion point 12 2 1/21/2015 Customizing Customizing • Screen Captures – Press & hold both the “home button” & the “sleep/wake” button simultaneously, for about 1/2 a second & release. – Screen will flash white & you will hear a “camera snapshot” sound – The screen capture will appear in “Photo” application, under “Camera Roll.” 13 Universal design for Learning • Web Site Icons – Press the + button to open new tab – Use book icon to • Add Bookmark, Add to Home Screen, and Mail Link to this Page – Select the 2nd button to remember exact position on the page & automatically generate a thumbnail icon • Web Extensions – When typing a web address in Safari, the keyboard features a .com button – By holding the .com button down, it will change to .net, .edu, and .org buttons 14 – Slide to the desired extension, and release Visual impairment • Universal access features • Voice Over – Visual impairment – Deaf or hard of hearing – Physical disability – Learning disability – A gesture‐based screen reader – Allows the user to touch the screen to hear a description of the item under their finger • Zoom – Allows the user to magnify screen of any application 15 Visual impairment 16 Hearing impairment • Contrasting screen • Closed captioning – White on Black – Lets the user change the display to white on black – Can be used in any app – Home, Unlock, and Spotlight screens, – With Zoom and VoiceOver – Display subtitles and closed captioning when playing movies and during podcasts • Mono audio – Allows you to channel all audio into the left or right ear or both ears 17 18 3 1/21/2015 And … there is an app for that!!! Learning disability • Word prediction or Speak Auto text • What is an app? – Suggested words are displayed before the user finishes typing them – Suggested words can be also be spoken with speak auto text • Triple click Home – Set the triple‐click Home button to toggle Voiceover, Zoom, or White on Black on or off instantly – A compact software application – iDevice has two types of apps – Native • Preinstalled • Downloaded (free or purchased) • Notepad, Calculator, Settings, Video, Pictures, iPod/Music, Internet Browser (Safari), Email – Web-based 19 AAC apps • Require the internet 20 AAC apps • Tap to talk • Proloquo2go ($299.99) – Free but $99.00 a year for full features – Mix of clip art and photos – Recorded, male voice 21 AAC apps – Vocabulary arranged in categories – Website provides user support (tutorials, videos) – Acapela Voices, downloadable multiple choices and accents – Customizable – Uses SymbolStix symbols – Word Prediction 22 AAC apps • Proloquo4Text – Text based app – Designed for literate users – A literate user is defined as reading and writing with at least a third grade level. 1/21/2015 free template from www.brainybetty.com 23 24 4 1/21/2015 AAC apps AAC apps • Sonoflex ($99.00) – Tobii /ATI – Flexible category keys – Core and fringe vocabulary – Over 50 pre-made context vocabularies; – 11,000 SymbolStix® symbols – Uses the camera and photo to create your own symbols – 5 high quality Acapela voices; one boy, one girl, two women and one male voice – Available for iPhone, iPod, iPad, Android devices and PCs and Tobii Communicator • Touchchat ($149.99) – Core and fringe vocabulary – Customizable – 5 voices – Vocab PC, Multi chat, spelling, primary and Word Power – Ishare – Windows editor 25 AAC apps • Go talk app – 1-25 locations per page – Images from your iPad camera, photo library, built-in internet search – Crop, scale & rotate using fingers – Custom backgrounds, borders & text – Record own speech or text to speech ($.99 each in over 20 languages) – Auditory cues – Customizable navigation tools – Four important messages into the core vocabulary – Unlimited menu and communication pages – Integrated scanning - either using another iPad or iPod touch as an accessibility switch or your own physical switch with the RJ Cooper Switch Interface – Videos for help with programming 26 AAC apps • Go talk now (free) – 1 book with 3 pages • Go Talk now ($80.00) full version • Go Talk start ($19.99) • Go talk now plus ($150.00) -unlimited books and pages, voices, templates, backup and restore, sharing via WIFI 27 AAC apps • LAMP – words for life ($299.99) – LAMP Words For Life™ – Combines PRC Unity® and Language Acquisition through Motor Planning (LAMP™) principles and strategies – Provides a consistent motor pattern for words – Appropriate for beginning to skilled communicators – Three developmentally progressive vocabulary – Pre-stored core and fringe words 29 – Vocabulary Builder 28 AAC app 30 5 1/21/2015 AAC apps AAC apps • Compass app – Available for iPad or Windows tablet – Adult looking icons – Can be used with younger users – Multiple access – direct selection, scanning, auditory cues – Core and fringe vocabulary, quick fires, visual scenes, fully customizable • Compass app (179.99) • Compass app with Gateway (299.99) • Compass app with PODD set ($299.99) • Compass app subscription ($99.99) 31 32 AAC app AAC apps • Avaz app ($149.99) – Built in vocabulary has 5000+ words – Easy to personalize with new words – Core and peripheral words – Color coded – Progress tracking – Picture and word prediction 33 AAC apps 1/21/2015 free template from www.brainybetty.com 34 AAC app • Predictable ($159.99) 35 – ModelTalker use your own synthesised voice to communicate – Nuanace Voices (14 voices) – Skype – Bluetooth Switch Box and up to 2 switches – Word prediction engine that learns your vocabulary to influence the prediction 36 options 6 1/21/2015 AAC app • Verbally (free), Verbally (premium$99.99) – Core Words Grid (50 essential words) – Core Phrases Grid (12 phrases) – Text Prediction that learns the words & names – Three Keyboard Layouts – Choice of Male or Female Voices 37 – AAC techconnect – free resources • Jane Farrell consulting – Symbols – Text and symbols – Text 39 Speech language pathology apps • Miscellaneous apps – Feeding apps • Allergy guard – food allergies and intolerances – dislikes of common foods – what's in specific ingredients • Gluten free – Search, rate or add foods by Category, Brand or Product Name – Ability to RATE & add NOTES to products • Kids food adventure – Try new foods – Rate the foods – Collect stickers for foods tried 38 • Language apps – Ipractice verbs – Understanding prepositions – Wh-questions – Sequencing – Prepositions – What would you do ….. At home and at school – How would you feel if – Flash cards in apps to promote language skills • AAC Devices and Apps free template from www.brainybetty.com free template from www.brainybetty.com Speech language pathology apps AAC apps 1/21/2015 1/21/2015 40 Social stories apps • Social skills • Stories2learn – Comes preloaded with 12 social narratives – Areas of reciprocal play, non-verbal communication, playground and school rules, turn taking, etc. – Add your own stories 41 42 7 1/21/2015 Behavior management apps Behavior management apps • • • • • • • iPrompts ($49.99) Prompting and cueing Visual schedules Multisensory timers Tracking Reward charts Data collection – Visual schedules, timer and choice making – No speech output – Image and photos 43 Behavior management apps • Pocket picture planner • Functional skills system 44 Behavior management apps • Timers – Time Timer ($4.99) • Visual supports for count down – Shopping list – Everyday Social skills – Functional planning skills – Money equivalency – Coins and dollars timer or a clock • Tone or clapping when time expires – KidKlock, iHour Glass (free), – Traffic Light $.99 – Child timer 45 46 Behavior management apps Behavior management apps • Behavior Tracker Pro ($29.99) • Reinforcement apps – Tracks frequency and duration of responses – ABC and/or high frequency data – Track multiple students and behaviors – Built in data analysis – Sync with Behavior Tracker software or use alone 47 – Designed to track rewards for one or multiple behaviors in one or more children • Star Rewards for $.99 • I Earned That for $1.99, • iReward for $.99 48 8 1/21/2015 Behavior management apps • Data tracker Literacy apps • Writing stories – Create multiple goals for each student – Various response types — Tally, Correct/Incorrect, Approximated, & Cued – Store data for sessions. – Add students to multiple groups. – Write notes for each student – Email results – Graph results 49 – Pictello, $14.99 • Create and edit stories using photos, audio, text to speech – Stories2Learn, $13.99 • Create and edit stories with audio and photos – Story Kit, free • Combine your photos and recorded audio to create and edit your own books 50 Literacy apps Literacy • Reading • Comprehension – ABC Pocket Phonics ($.99) – Word Cub $1.99 – First Letters and Phonics $2.99 – Sight Words – Vocab Photo $.99 – Sight Words by Photo Touch, free – Mini Mod Reading $2.99 • Vocabulary – GCF Vocabulary Videos Free • Fluency – K-12 Timed Reading Practice $1.99 51 eBooks • iBooks through Apple, Google can be read using voiceover • Kindle and Nook Books available on all iDevices (free to $49.99) • Bookshare books can be converted to ePub • Daisy formatted books can be read with the Daisy Worm app (Read2go) • Bookstream (Don Johnston, Inc.) iBook management system 53 • Firefly (Kurzweil, Inc.) 52 Audio books • The Overdrive App checked out books digitally from your local library • Audible.com offer audiobook apps • Audiobooks can be played through iTunes • Stanza – A digital text eReader with links to sites of both free and purchase • Books – Touch and hold a word to enlarge it, get the definition, or leave annotations. – Increase font size, and change text/background color. 54 – No text--‐to speech 9 1/21/2015 Interactive books • • • • • • • Tumblebooks to Go StoryBoy VivaBooks Random Books Touchoo Speech with Milo Read aloud, pages turned using a flick, automatically, tapping the screen, or touching an arrow Spelling apps • • • • • My Spelling test SpellDown spelling bee iSpell 123 Word fall Build-a-word 55 56 Math apps • Counting – Arithmaroo $1.99 – Intro to Math by Montessorium $4.99 – Math Girl Number Garden $1.99 – Number Sense $1.99 • Basic Math Facts – Cute Math $1.99 – Math Magic $1.99 – Math Drills $1.99 – Math Bingo $.99 – Math Girl Addition House $1.99 Math apps • Measurement – Measurement $.99 • Time – Telling Time $1.99 – Learning to Tell Time is Fun $1.99 • Money – Coin Math $1.99 – A Money Tree $.99 57 58 Calculators Art apps • Talkulator (free) • Glow Draw apps a – Large buttons, – Multiple languages – Great for low vision • Meritum and Pollock • Talking Calculator ($.99) – Fun cause and effect activities – Scientific calculator • Doodle Pad • Hal the Talking Calculator (free) – Good for fine motor skills – Customize background • Colorforms apps • Graphing Calculator ($1.99) – Full features – Great for choice making activities 59 60 10 1/21/2015 Speech-to-text apps Miscellaneous • Dragon Dictate (free) – dictation is converted into text – can be sent as an e-mail, text message or to clipboard • Shout OUT (free - $1.99 for 50 text credits) – Allows dictating text messages • Carrying cases – AMDi iAdapter ($198.99) • • • • • Rugged, rubberized Rechargeable speaker case built in handle home key lock optional mounting plate for Deassy mount – iMain Go ($69.90) 61 • Rechargeable speaker case • Allows full access to touch screen $69.99 Miscellaneous 62 Miscellaneous • Carrying cases – Gonow sleek and Gonow Rugged iPad cases (Attainment, Inc. -$49.99) • Easily mountable • Access to all iPad buttons and ports while in case • Compatible with iPad Air, iPad 4th Generation, iPad 3rd Generation, and iPad 2 63 64 Miscellaneous • Connect for speech (Ablenet, Inc. $349) – HiFi stereo amplified speech sound output – Built-in, wired, or wireless switch access capabilities – Mount with AbleNet mounting solutions – Outer casing protects against impact – Utilizes Apple’s powerful iPad Air and 65 your choice of AAC app Miscellaneous • Mounts – Daessy • Wheelchair and Desk Mounts ($900) – Magic arm (R. J. Cooper) – Ablenet • Universal mounting system • Latitude mounting system 66 11 1/21/2015 Miscellaneous Resources for apps • GeekSLP (http://www.geekslp.com) • Therapy App 411 (http://www.therapyapp411.com) • Spectronics (http://www.spectronicsinoz.com/article/iphoneip ad-Apps-for-aac) • Pocket SLP (http://pocketslp.com) • AAC-RERC (http://aac-rerc.psu.edu/) • AAC Techconnect (http://www.aactechconnect.com) • I Education Apps Review (http://www.iear.org) • Access – Switch interface (R. J. Cooper) – Blue tooth switches – Blue tooth switches (Ablenet Inc.) – Attainment switch • Turns iOS devices into a wireless accessibility switch 67 68 Resources for apps • Scribd apps for Special Needs (http://www.scribd.com/doc/24470331/iPhone-iPad-andiPod-touch-Apps-for-Special-Education) • SLP sharing App Resources (http://slpsharing.com/appresources) • Connsense Bulletin Apps for Education update • Fun educational apps (http://www.funeducationalapps.com) • ISTE IPad Apps for education (http://www.iste.org/welcome.aspx) • Apps for children with special needs (http://a4cwsn.com) 69 12 1/21/2015 Outline Communication vulnerability Meher Banajee, Ph.D., CCC-SLP Associate Professor Communication Disorders Department LSU Health Sciences Center • Background information – What is communication vulnerability? – What are the causes for communication vulnerability? – Laws and regulations – What is effective communication? • Providing communication access – Tools for effective communication – Training for effective communication • Case studies • Resources • References Acknowledgements • Harvey Pressman and Sarah Blackstone (AAC Resource Restoration in the Gulf, Health Care) • Patient Provider Communication Participants • Tulane Medical Center • Speech-Language Pathology Dept. of Tulane Medical Center • LSUHSC – Communication Disorders Dept. Background information Background Information • In health care settings, communication breakdowns between patient & caregiver can have dire consequences: – – – – – Increased patient pain, Misdiagnoses, Drug treatment errors, Extensions in hospital stay, Death • In a six-year (1997-2002) study, The Joint Commission (TJC) placed “communication” at the very top of the list of root causes for sentinel events (Joint Commission, 2007) Communication vulnerability (Patak et al., 2009) • Can result from lack of access to direct communication • Communication can be inhibited due to: – Hearing impairment – Visual impairment – Speech impairment – Cognitive limitation – Intubation – Disease (ALS, stroke) – Language – Culture – Health literacy 1 1/21/2015 Variables contributing to communication vulnerability • • • • • • • • • Patient trauma or significant decline in functioning Unfamiliar environment Rapid communication, not always in their primary language Critical decision making Pain or discomfort Hearing aides, dentures & glasses are often at home Medications and/or trauma may alter mental status Temporary mechanical ventilation Suboptimal positioning and communication environment Low Literacy Rates By Parish % Adults with Level 1 Literacy Skills Variables contributing to communication vulnerability • • • • • Pre-existing hearing, speech, cognitive disabilities who may (may not) have access to communication tools/supports Language differences Limited health literacy Limited ability to read/write Cultural differences People with communication vulnerabilities • More Likely to – Be hospitalized – Experience medical/physical harm, e.g., drug complications – Leave hospital against medical advice – Be intubated if asthmatic – Have increase costs – Delay care – Receive a diagnosis of psychopathology – Joint commission, 2007 28% Louisiana Adults are Level 1 National Institute for Literacy 1998 People with communication vulnerabilities • Less Likely to – Adhere to recommended medication regimen (Andrulis, et. al, 2002; Flores et al., 2003) – Report abuse – Access or use medical care – Return for follow-up appointments after Emergency Room visits – Be satisfied with care – Joint commission, 2007 “Public health emphasis is on getting information ‘out’ to people not if it has been understood & used.” Dr. Richard Carmona, Former U.S. Surgeon General 2 1/21/2015 Research Data • Happ (2004) and Patak et al. (2006) • Patients with access to communication: – – – – • Receive less sedation Are transitioned quicker Have increased satisfaction with health care Feel more in control…and generally do better… Available simple tools and strategies to improve communication usually go unused and ignored. Laws, standards & regulations Federal Efforts – Title VI of the Civil Rights Act of 1964. People cannot be discriminated against as a result of their “national origin,” including their primary language. (The National Standards for Culturally and Linguistically Appropriate Services in Health Care (CLAS) standards. – Guidance for healthcare organizations on compliance with Title VI (United States Department of Health and Human Services, 2001) Laws, standards & regulations Federal Efforts Laws, standards & regulations Federal Efforts • Department of Health and Human Services. National Action Plan to Improve Health Literacy http://www.health.gov/ communication/HLActionPlan/ • Agency for Healthcare Research and Quality (AHRQ,2010). Established health literacy as a universal precaution, similar to hand washing as a way to minimize risks to patients • New health care reform law • Requires use of plain language and culturally appropriate language in health related information about insurance and other health issues. – Centers for Medicare and Medicaid Services Revised Minimum Data Set (MDS) 3.0. Used in skilled nursing facilities to assess residents (2010). http://www.asha.org/Publications/leader/2010/100518/Skill ed-Nursing-Facility-Assessment.htm Laws, standards & regulations Federal Efforts • The Joint Commission communication Standard Effective January 2011 • Will be included in the accreditation decision no earlier than January 2012 – Advancing effective communication, cultural competence & patientcentered care – A Roadmap for Hospitals www.jointcommission.org Laws, standards & regulations Federal Efforts • The medical record contains information that reflects the patient's care, treatment, and services (Standard RC.02.01.01) • The hospital respects, protects, and promotes patient rights (Standard RI.01.01.01) • The hospital communicates effectively with patients when providing care, treatment, and services (Standard PC.02.01.21) 3 1/21/2015 What is “Effective Communication”? • “the successful joint establishment of meaning wherein patients and healthcare providers exchange information, enabling patients to participate actively in their care from admission through discharge, and ensuring that the responsibilities of both patients and providers are understood” • (The Joint Commission, 2010b, p. 91 ). Healthcare settings and environments – – – – – Dr's Office/Clinic First Responders Emergency rooms ICUs Acute Care Hospitals Rehab Hospital Nursing Home Home Health Hospice Disaster/emergency locations (triage area, police car, ambulance, shelters) On The Spot Communication Toolkit for the Medical Setting What does Patient Provider Communication (PPC) mean? • Providing equal access to – health information, – diagnosis, – treatment and – follow up care – across the full spectrum of healthcare environments and activities Healthcare settings and environments • Specialized nursing units at Tulane Medical Center – Emergency Department – Medical ICU – Critical care unit – Bone marrow Transplant Unit – Medical surgical unit – Surgical ICU – Pediatric ICU – Neuro/Stroke ICU – Abdominal transplant unit On the Spot Communication Toolkit On the Spot Communication Resource Book • Distributed by AAC TechConnect, Inc. – Pocket Talker – Communication Boards (Costello, 2000) • Vidatak EZ Communication boards (Patak, et al., 2006) • Critical Communicator • Health Care Communication Board – Magnification Glass – Clipboard & Dry Erase Board with “Writing Strategies” – English to Spanish Staff Cards – Includes: reorder system $699.00 and $99.00 respectively 4 1/21/2015 Vidatak EZ communication board Barriers with Implementation • AAC TechConnect Inc. not an established vendor for HCA • Adapted call light within the toolkit was not compatible with Tulane Medical Center patient call system • High expense associated with purchase of toolkit • Minimum initial “Buy-in” by nursing staff for implementation of toolkits Solutions Implemented • Customized assembly of the toolkits – Low-tech devices • Dry-erase boards with writing strategies and dry-erase markers • Magnifying glasses • Writing tablets and pens • Manual communication boards: – Vidatak EZ Communication Boards (Spanish and English) – Critical Communicator – HealthCare Communication Boards Solutions Implemented • Persistence in identifying nursing manager(s) – Interested in implementing tools on the units – To attend a meeting for orientation of toolkit contents and process for replenishing contents. – To establish a secure location on the units for storing the toolkits Solutions Implemented – Mid-tech devices • Pocket talker • Modified call bell • Removed from toolkits until further training • Assigned to patients on as needed basis Case presentations HX: JT, a 20 year old man residing in a nursing home for ~1 month due to recent spinal cord injury due to MVC with residual tetraplegia, tracheostomy and ventilator dependent, dependent on alternative modality of nutrition (PEG). JT was transferred from a nursing home and admitted to the CCU with dx of acute respiratory distress. • What would you do? 5 1/21/2015 Case Presentation • Turn away and decline the order because the patient is medically fragile. • Send the patient to RIC. • Start the swallowing evaluation. • Evaluate his communication vulnerabilities and strengths. Case Presentation • Plan of Care in the ICU and Med Surgical unit – Passy-Muir in-line with the vent (PMSV) with SLP, RT, and trained nursing staff. – Established alternative communication modalities when pt was aphonic: • Adaptive call light with head control switch • Low tech communication board • Mouthing words with slow rate • Staff training on ways to facilitate repair of episodes of communication breakdown. Case Presentation • Outcomes upon hospital discharge – Patient required max assistance with feeding due to tetraplegia, consuming a Regular diet consistency – Patient initiated an active role in his care by speaking to physicians, family, nursing, and therapists during his stay Case Presentation • Dynamic assessment: – Modalities pt capable of accessing for communication (mouthing words and facial expressions, head nods) – Is the patient a candidate for a Passy-Muir Speaking Valve in-line with the ventilator? – Collaborated with the pulmonary physicians and respiratory therapy to determine ventilator weaning protocol for the patient. – Patient and family goals. Case Presentation • Outcomes upon hospital discharge: – Inpatient rehabilitation candidate because he was weaned from the ventilator and participating in multi-discipline treatment – Primary modality of communication was natural speech with the PMSV – Family trained on donning/doffing, care, and contraindications of PMSV – Patient participated in conversations with his children for the first time in over 4 months (since the MVC) Case Presentations Hx: AT was a 22yrs woman with cerebral palsy and multiple neurological impairments including profound receptive and expressive communication impairments, severe oropharyngeal dysphagia (PEG tube) who resided at home with 24 hour assistance for all ADLs admitted to the hospital for pneumonia 6 1/21/2015 Case Presentations Case Presentations • Nursing reported to SLP in the ICU hall that her pt was with obvious discomfort evidenced by protracted periods of vocalic phonation, grimace, and awkward body posture. Protracted periods of phonation were intense at times interfering with the care of other ICU patients. • What would you do? Case Presentations Dynamic assessment: • Family/caregiver interview to identify the patient’s “stressors” and “motivators.” • Communicative intent of non-verbal communication per family/caregiver interview. • Ongoing evaluation of the frequency of the patient’s signs of discomfort with direct observation, staff and family interview Case Presentations • Outcomes on the ICU: – Existing patients on the ICU were provided with a quiet healing environment. – Nursing reported overall sense of decreased stress with the patient resting without overt signs of distress. – Communication about the patient’s preferences and communication modality was transmitted to nurses on all shifts, respiratory therapy, lab, and her physicians • Patient’s discharge disposition: – Returned home with her caregivers within 24 hours of the speech-language pathology consult • • • • Tell the team to sedate the patient to prevent harm to herself and to minimize the interference with other patient care “There is nothing that can be done.” Determine the patient’s prior level of function was “non-verbal” therefore, ST services are not warranted and then discharge the patient Ignore the order because the patient will be discharged from the hospital in 24 hours Evaluate and identify stimuli that calmed the patient when she was in her natural environment Case Presentations • Patient Outcomes on the ICU: – CD player with patient’s favorite music was placed at her bedside (e.g., Patsy Cline). – Overt signs of discomfort were eliminated. Patient rested comfortably in her bed with NO SEDATION – Vocalic phonation during music often suggested that pt did not like the song. Nursing and other staff members changed the song to improve her comfort. Resources • Support communication and health literacy – Typical Patient Provider Interview • Between general practitioner and person without a disability • 20 minutes in length (Mann et al., 2001) • Verbal and non-verbal communication positively associated with health outcomes (Beck et al., 2002) 7 1/21/2015 Resources • Verbal behaviors positively associated with health outcomes included (Beck et al., 2002) – Empathy, reassurance and support – Various patient-centered questioning techniques – Explanations – Both dominant and passive physician and therapist styles, – Positive reinforcement, humor, – Psychosocial talk, – Time in health education and information sharing, – Friendliness, courtesy, – Orienting the patient during examination – Summarization and clarification Resources • Nonverbal behaviors positively associated with outcomes included (Beck et al., 2002) – head nodding, – forward lean – direct body orientation – uncrossed legs and arms – arm symmetry – less mutual gaze. • Resources • Support communication and health literacy – Preparing our clients • Introduce oneself and one’s communication system; • Make use of appropriate vocabulary and language to communicate concerns and needs; • Make use of appropriate communication strategies to ensure that previous health care and current health concerns are understood by the health professional. • Preparing communication assistance Resources Resources • Communication matters – http://www.patientprovidercommunication.org/i ndex.cfm/article_2.htm – www.communicationmatters.org.uk/page/focus -on-leaflets • Health passports – www.healthpassport.co.uk (Talkback-UK Ltd) • Communication passports – http://www.accpc.ca/pdfs/passport.pdf – http://www.patientprovidercommunication.org/i ndex.cfm/article_6.htm Resources 8 1/21/2015 Resources Resources • Tool kits – http://www.aactechconnect.com/ – http://rnt.over-blog.com/article-kit-decommunication-44780636.html • You tube videos – Search for: • Augmentative communication • Patient-provider communication • Health literacy • Cultural competence health care • Medical interpreters Resources Resources • Patient provider website – – – – – – – – Patient Provider Communication Website AAC TechConnect Articles Presentations Bibliography Examples of Materials Case Examples Newsletters International Newsletter Resources • Other resources • Books – Augmentative Communication Strategies for Adults with Acute or Chronic Medical Conditions Book with CD Rom. Beukelman, Garrett & Yorkston – University of Nebraska website -http://aac.unl.edu • Books, aphasia resources, visual scene display resources, demographics, Speech Intelligibility test – AAC-RERC website and upcoming webcast – www.aac-rerc 9 1/21/2015 Resources Resources • Newsletter – Augmentative Communication News – http://www.augcominc.com/ – Free Download (Vol 21, #2) • Information about Promising practices • The Joint Commission Standard and Implementation Manual • Tools of the trade References • AAC TechConnect (2008). Augmentative communication tools for the medical setting [Brochure]. Boulder, CO: McBride, D & Trautman-Pearson, J. Retrieved July 14, 2009, from http://aactechconnect.com/events/materials.cfm . • Andrulis, D. , Goodman, N., & Pryor, C. (2002). What a difference an interpreter can make: Health care experiences of uninsured with limited English proficiency. Boston, MA: The Access Project. • Beck, R., Daughtridge, R., & Sloane, P. (2002). Physician-patient communication in the primary care office: A systematic review. Journal of the American Board of Family Medicine, 15(1), 25-38. • Blackstone, S., (August 2009). Communication access across the healthcare continuum. Augmentative Communication News, 21(2), 1-16. • Balandin, S., Hemsley, B., Sigafoos, J., Wallace, C., Forbes, R. & Parmenter, T. (2001). Communicating with nurses: The experiences of 10 individuals with an acquired, severe communication impairment. Brain Impairment, 2(2), 109-118. References • Beukelman, D., Garrett, K. & Yorkston, K. (Eds.) (2007). Augmentative Communication Strategies for Adults with Acute or Chronic Medical Conditions. Baltimore, MD: Paul H. Brookes Publishing Company. • Costello, J. (2000). AAC intervention in the intensive care unit: The Children’s Hospital Boston model. Augmentative and Alternative Communication, 16, 137-153. • Flores, G., Laws, M., Mayo, S., Zuckerman, B., Abreu, M., Medina, L., et al. (2003). Errors in medical interpretation and their potential clinical consequences in pediatric encounters. Pediatrics, 111(1), 6-14. • Happ, M. B. (2004). Communicating with mechanically ventilated patients: state of the science. Western Journal of Nursing Research, 26(1), 85-103. References • • • • • Hurtig, R. & Downey, D. (2008). Augmentative and Alternative Communication in Acute and Critical Care Settings. San Diego, CA: Plural Publishing, Inc. Mann, S., Sripathy, K., Siegler, E., Davidow , A., Lipkin, M., & Roter, D. (2001). The medical interview: Differences between adult and geriatric outpatients. Journal of the American Geriatric Society, 49(1), 65-71. Patak, L., Wilson-Stronks, A., Costello, J., Kleinpell, R., Henneman, E., Person, C. & Happ, M.B. (2009). Improving patient provider communication: A call to action. The Journal of Nursing Administration, 39(9), 372-376. Patak, L., Gawlinski, A., Fung, N., Doering, L., Berg, J., & Henneman, E. (2006). Communication boards in critical care: patients’ views. Applied Nursing Research, 19(4), 182-190. The Joint Commission. (November 2007) Improving America’s hospitals. The Joint Commission’s Annual report on Quality and Safety, 2007. www.jointcommissionreort.org/assets/1/6/2007_Annual_Report.pdf 10 1/21/2015 Agenda Issues and funding strategies for AAC • • • • • Introduction Different sources for funding Eligibility for different sources of funding Strategies for obtaining funding Funding resources Meher Banajee, Ph.D., CCC-SLP Introduction Who needs to know about funding? • Who needs to know about funding? • Why is funding important? • How do funding programs decide what they will pay for? • What is my role in the funding process? • Where do I go for help? • Speech language pathologists • Students of speech language pathology • Teachers and school administrators or any one who works in public schools • Family members • Advocates Why is funding important? Why is funding important? • Families can’t buy speech generating devices on their own • Knowledge about funding helps with proper assessment and treatment • Knowledge about funding creates expectations about the outcomes clients can achieve through SLP intervention – If you do not know with confidence that a device or a treatment will be funded then you would not be able to recommend it with confidence in your assessment – Tailor your assessment for the kind of funding • Knowledge about funding is the antidote for “learned helplessness” • Knowledge about funding informs SLPs about requirements for assessment and reporting • ASHA Code of Ethics – Individuals shall honor their responsibility to hold paramount the welfare of persons they serve professionally . . . – Individuals shall use every resource, including referral when appropriate, to ensure that high quality service is provided. – Only the SLP will be able to help clients there may be no other source for referral 1 1/21/2015 Different sources of funding • 9 different sources for funding for SGDs • Each program targets a different population – Under 21 years of age – Over 21 years of age – Particular disorders • Each program targets a specific need or purpose – Health care – Education – Vocational rehabilitation – Some covered by more than one program • Each program has its own financing scheme – Full payment – 80% funding – Warranty Different sources of funding • Each program has its own administration – – – – Federal State Local Private • They don’t agree on what to call AAC devices – Powered communication systems – Speech generating devices – Augmentative communication devices • Pay for them under different funding categories – – – – Durable medical equipment Prosthetic devices Assistive technology devices Specialized telephone equipment Different sources of funding • Health benefits programs – – – – – – Medicare Medicaid Insurance companies and health benefit plans Federal employees health benefit plans Department of veterans affairs Tricare • Special education • Early intervention • Vocational rehabilitation Health benefits programs Health benefit programs • Four question test • • • • • • – 1 Is the person “eligible?” – 2 Is the item or service “covered?” – 3 Is the item or service “medically necessary? – 4 Does the request meet any special eligibility or coverage rules that may apply? – Must show that 1-4 are “yes.” Medicare Medicaid Insurance companies Federal employee health benefits plan Department of Veterans affairs Tricare 2 1/21/2015 Medicare • Created in 1965 • Provide financial assistance so that older Americans (over 65 years) can obtain health care • Expanded to include two other groups – Younger than 65 who paid Medicare taxes and are disabled • Qualify for SSDI (social security disabled insurance) benefits after 24 month wait period • Immediate eligibility for people with muscular dystrophy – Children with disabilities who have a medicare-eligible parent (either by disability or age) or whose parent has died • Administered directly by the federal government • Contracts with various insurance companies to make dayto-day administrative decisions on funding requests Medicare Medicare • Wide variety of benefits under different categories – Part A • Access to hospital care and short-term rehabilitation care in a nursing home facility – Part B • Supplemental insurance • Payments for physician services, outpatient therapies (including speech language pathology, OT, PT), durable medical equipment (DME) and prosthetic devices • SGDs covered under DME – Part C • Managed care options – Part D • Prescription drugs Table II • Historical background – In 1980s AAC devices were called convenience items rather than DME and hence declared not covered – Re-examined in the late 1990s and after an 18month inquiry agreed to rewrite policy for coverage of AAC devices – January 2001 Medicare put into effect 2 new guidelines for coverage of SGDs – Medicare clearly defines SGDs based on key device features Medicare • Durable medical equipment • Medical necessity Medicare • Durable medical equipment – Able to withstand repeated use • Key statements in reporting: – Device is expected to be used daily for a period of years; – Device is designed to withstand years of daily use; – Device has a rechargeable battery to permit ongoing daily use – Is primarily and customarily used to serve a medical purpose • Treatment for a condition or disability • This is the most common excuse to deny SGDs • SGDs “treat” severe communication impairments: – Dysarthria – Aphasia – Apraxia – Aphonia – Developmental Expressive Communication Impairment 3 1/21/2015 Medicare • Prove this using –Receptive – expressive gap –Behavior challenges • Use words such as –Solely because of –“use” does not indicate “need” –Similar to use of a wheelchair Medicare • Durable medical equipment – Not useful in the absence of illness or injury • Dedicated communication devices • Not useful for anything else • Speech is faster and more flexible than any other form of communication – Is suitable for use in the home • The beneficiary's home • A custodial care facility • An intermediate care facility for the mentally retarded • An institution with a medical component (e.g., skilled nursing facility and hospice) not considered to be home Medicare Medicare • Demonstration that the patient possesses a treatment plan that includes a training schedule for the selected device • New regulations • The cognitive and physical abilities to effectively use the selected device and any accessories to communicate • For a subsequent upgrade to a previously issued SGD, information regarding the functional benefit to the patient of the upgrade compared to the initially provided SGD Medicare • Medical necessity – Doctor’s prescription – Impairment to functional daily activities – Prior to the delivery of the SGD, the patient has had a formal evaluation of their cognitive and communication abilities by a speechlanguage pathologist (SLP) – The formal, written evaluation must include, at a minimum, the following 7 elements – Capped rental for 13 months – Device belongs to client after 13 months – If client goes to hospice or to a skilled nursing facility – device is returned – Unless hospice or SNIF pays for rental of device Medicare –Current communication impairment, including the type, severity, language skills, cognitive ability, and anticipated course of the impairment; –An assessment of whether the individual's daily communication needs could be met using other natural modes of communication; –A description of the functional communication goals expected to be achieved and treatment options; –Rationale for selection of a specific device and any accessories 4 1/21/2015 Medicare – Demonstration that the patient possesses a treatment plan that includes a training schedule for the selected device; – The cognitive and physical abilities to effectively use the selected device and any accessories to communicate; – For a subsequent upgrade to a previously issued SGD, information regarding the functional benefit to the patient of the upgrade compared to the initially provided SGD Medicare • The patient's speech impairment will benefit from the device ordered; and, – A copy of the SLP's written evaluation and recommendation have been forwarded to the patient's treating physician prior to ordering the device – The SLP performing the patient evaluation may not be an employee of or have a financial relationship with the supplier of the SGD. • If one or more of the SGD coverage criteria 1-7 is not met, the SGD will be denied as not medically necessary. Medicare • Codes – Main device • Codes E2500, E2508 - E2511, and E2502 E2506 perform the same essential function speech generation • Therefore, claims for more than one SGD will be denied as not medically necessary. • Laptop computers, desktop computers, PDAs or other devices that are not dedicated SGDs are noncovered because they do not meet the definition of durable medical equipment (DME). • Software (E2511) that enables a laptop computer, desktop computer or PDA to function as an SGD is covered as an SGD; however, installation of the program or technical support are not separately reimbursable. Medicare • Regional Medical Review requirements – A speech generating device (E2500, E2508 - E2511, E2502 - E2506) is covered when all of the following criteria (1-7) are met: • The patient's medical condition is one resulting in a severe expressive speech impairment; and, • The patient's speaking needs cannot be met using natural communication methods; and, • Other forms of treatment have been considered and ruled out; Medicare • Prosthetic device – No universal definition – Medicaid: means replacement, corrective or supportive devices … to: • Artificially replace a missing portion of the body • Prevent or correct physical deformity or malfunction • Support a weak or deformed portion of the body – Medicare: • Devices that replace all or part of an internal body organ • Devices that replace all or part of the function permanently inoperative of a or malfunctioning internal body organ Medicare – Accessories • Accessories (E2599) for E2500, E2508, E2510, and E2502 - E2506 are covered if the basic coverage criteria (1-7) for the base device are met and the medical necessity for each accessory is clearly documented in the formal evaluation by the SLP • Medicare pays according to a fee payment schedule with co-payment or the manufacturer has to accept assignment 5 1/21/2015 Medicare Medicare • Fee schedule • Accepting assignment is a 3 way agreement between Medicare recipient, the supplier, and Medicare itself. Its elements include the following: – Medicare recipients assign (transfer) their right to Medicare reimbursement to the supplier – In exchange, the supplier agrees to supply the item or provide the service upon payment of a sum equal to 20 percent of the cost of the item or service – The Current Medicare Fee Schedule for SGDs is stated in the following Table: HCPCS Code Fee schedule amt E - 2500 $391.06 E – 2502 $1,195.80 E – 2504 E – 2506 $ 1,577.42 $ 2,312.96 E – 2508 $ 3,576.61 E – 2510 $ 6,768.25 Medicare – The supplier also agrees that if the Medicare payment is less than the full cost of the item, the supplier will accept the Medicare payment as payment in full, and will not seek payment of the difference (balance) from the recipient; – Finally, even though the recipient has paid only 20 percent of the cost of the item, Medicare agrees that it will pay its reimbursement based on the full “reasonable charge” of the device and that it will pay its reimbursement directly to the supplier, rather than to the recipient Medicare • Typically, Medicare paperwork is retained by the manufacturer/supplier • Only a cover sheet, known as a HCFA 1500 form is transmitted to the DMERCs (Durable Medical Equipment Regional Centers) electronically • By sending this the manufacturers/suppliers are asserting to Medicare that they have reviewed the paperwork and that the paperwork is in compliance with Medicare's coverage guidelines • Medicare does not conduct “prior authorization,” of SGD claims Medicare Medicaid • It reviews claim documentation, through periodic post-payment audits • Manufacturers/suppliers are required to maintain the Medicare claims paperwork and to present them for review upon a Medicare auditor's request • If the audit reveals flaws in the documentation, Medicare may ask the manufacturer/supplier to re-pay Medicare for the improper payments • For this reason, manufacturers/suppliers have a strong incentive to insist that documentation in support of Medicare claims is complete • Created together in 1965 each targeting a distinct population • Medicaid provides financial assistance to: – Enable individuals with limited incomes and resources – Families with dependent children – People who receive or are eligible for Supplemental Security Income (SSI) – Pregnant women who meet income requirements – Those who receive adoption or foster care assistance – To obtain necessary health care 6 1/21/2015 Medicaid Medicaid • It is voluntary program and not a federal mandate • States must choose to participate (all do) • States must agree to follow the requirements of the federal regulations and guidelines in exchange for promise to pay between 50 and 80% of the states’ Medicaid program costs • Federal Medicaid requires coverage of specific groups of individuals and specific services • States have option to extend coverage to other groups and offer as many as three dozen other services • Federal payment however, remains the same • History – Coverage of SGDs back to late 1970s – Coverage has gradually widened state – by – state – Sometimes law suits are required to remove coverage barriers – By 2000, all Medicaid programs covered and provided SGDs to both children and adults – Exclusively done within DME benefit category or as medically necessary equipment Medicaid Medicaid – Cover a full range of SGDs including those that are computer- or PDA-based – Under EPSDT all states are required to cover SGDs for children under 21 years of age – Coverage for adults included after 1996 in Louisiana – Initially only one device purchased during the life span – In 1996 approval for replacement of device every 5 years Medicaid • Medicaid is designed to serve individuals with limited incomes, suppliers must accept Medicaid payment as payment in full • Must establish medical necessity • Devices covered under durable medical equipment or as prosthesis • Payer of last resort – Apply first to other insurance company (including Medicare) and if denied apply to Medicaid or Medicare • Almost every Medicaid program has written specific, clinical criteria that outline the SLP assessment and report that must accompany the funding request • Require prior authorization – completed funding request (SLP request and physician prescription) is submitted by the device manufacturer and reviewed by Medicaid staff Insurance companies and health benefit plans • Fringe benefit to employment • It is delivered in two distinct ways – The employer purchases an insurance policy for the benefit of its employees (or an individual purchases an insurance policy directly) – The employer creates a “health benefits plan” which it funds directly from company assests • Potential for variation is unlimited • Most plans cover DME and accept Medicare’s definition of DME 7 1/21/2015 Insurance companies and health benefit plans • History – After SGD coverage by Medicare in 2001, the number of insurers that cover SGDs increased significantly – 1100 insurers and health plans that have approved SGDs listed in a Insurers Approval data base – Created by input from manufacturers – PRC and ATI continue to update the list – List contains names of insurers and the number of devices funded by the insurers Insurance companies and health benefit plans – Great advocacy tool • SGD coverage by insurers and health plans is extensive • SGD funding by insurers and plans is appropriately viewed as “the rule” • Non-coverage is “the exception” and is not justified • Important for first time insurers and health plans (Mississippi Medicaid) • Important for individual funding and appeals Insurance Companies and Health Benefit Plans • Examples of denial reasons: – SGDs do not fit within our scope of policy or plan • SGDs are not DME • SGDs are not medical in nature/medically necessary/no medical purpose • SGDs are not covered • SGDs are useful to people without severe communication impairments • SGDs are not treatment/treatment for an underlying condition • SGDs are a convenience item • SGD are prescribed solely for educational or vocational purposes Insurance companies and health benefit plans – Great advocacy tool • SGD coverage by insurers and health plans is extensive • SGD funding by insurers and plans is appropriately viewed as “the rule” • Non-coverage is “the exception” and is not justified • Important for first time insurers and health plans (Mississippi Medicaid) • Important for individual funding and appeals Insurance companies and health benefit plans • SGDs classified as DME or prosthetic devices • SLP assessment and a doctor’s prescription • Some insurers and plans follow Medicaid’s prior approval plan other follow Medicare’s plan that the device must be first bought and then claims submitted • Dealing with denials – Check with Insurer Approvals Database – If the company is listed then ask in writing: • What the differences are between the prior policy or plan and the current one • Significance of those differences Insurance Companies and Health Benefit Plans – SGDs are excluded in our policy/plan • Can be challenged if they cover wheelchairs • Disability based discrimination not permitted • No basis for cost justification (cost is trivial) – Compare reasons given with previous approvals and ask for justification – Also ask for specific exclusions (just because DME is not listed does not mean that it is not covered) 8 1/21/2015 Federal Employee Health Benefits Plan Department of Veterans Affairs/Tricare • United States the largest employer • To recruit and retain workers the government offers workers health insurance benefits (Federal Employee Health Benefits Plan, FEP) • Work with private health insurance companies to provide health benefits to 8 million employees, retirees and their dependents • Each year a federal employee can select from a number of private insurance plans which vary with regard to the design of benefit packages and cost of premiums • A request to void the exclusion of SGDs by primary FEP plans offered by Blue Cross Blue Shield associations is pending • Check for update on AACFundingHelp • Department of Veterans Affairs – Provides healthcare benefits to US veterans through nationwide network of VA hospitals – Each has a prosthetic service – source of SGD coverage Department of Veterans Affairs/Tricare • Tricare (formerly known as CHAMPUS or Civilian Health and Medical Program of the United States) – Worldwide healthcare benefits program for active duty members of the armed forces & dependents and to military retirees & their dependents – Administered through private contractors – Has covered SGDs as prosthetic devices to only active duty members and their dependents – Extended to all participants in 2001 – New SGD coverage criteria modeled on Medicare’s criteria were authorized for all Tricare beneficiaries in 2005 Special education – A student’s need for AT must be considered during the IEP development and review process – It is the school’s responsibility to ensure that the student receives the device and related AT services (training for the student, parent and staff) – On a case-by-case basis the use of school purchased AT devices in a student’s home and other settings is required if the student’s IEP team determines the student needs access in order to receive FAPE Special Education • IDEA ensures – Free and Appropriate Education (FAPE) – In a least restrictive environment (LRE) • IEP – Outlines the student’s educational plan – Identifies the type and intensity of special education and related services that will be provided – Assistive technology devices and services - an in integral part of the IEP process Special Education • Three types of issues – Staffing: who will identify the student’s needs, recommend devices and develop and implement treatment plan • IEP team • LATI • Framework for conducting assistive technology considerations, screening and assessment • Report format • Louisiana Statewide Assessments, Accommodations and Assistive Technology – Clarify the purpose of the SGD: (IEP team) – Funding: who pays for an SGD, accessories and related services • LDOE cannot dictate what funds to use for purchase of device – Can use their own funds or child’s Medicaid or private insurance monies • Reimbursement program 9 1/21/2015 Early intervention • Part C of IDEA – Federal grant program for providing services for infants and toddlers (birth to 3 years) and their families – Early Steps – Lead agency to receive the grant and administer the program - Office for Citizens with Developmental Disabilities (OCDD) – Interagency Coordinating Council (ICC) to advise and assist the lead agency – IFSP centerpiece or planning document • Identifies functional areas in which the child is not performing at age level and designs services • Assistive technology can be provided by SLPs, OTs, PTs Early Steps • Early Steps will pay for an Augmentative Communication Device (ACD) – When the ACD is necessary for the child to benefit from early intervention services – Is appropriate for the child’s developmental age and needs – Is listed on the IFSP and related to an IFSP outcome. • If the child is enrolled in Medicaid – Then the provider must bill Medicaid for the device using their Medicaid provider number – This is the only circumstance where the provider does not bill the Central Finance Office (CFO). Early Steps Early steps • When the ACD is not covered through the Medicaid DME program and/or the child is not Medicaid eligible – The ACD is billed through the CFO – Providers of ACDs must enroll with the CFO as an Assistive Technology Provider – Medicaid covered ACDs are reimbursed according to current Medicaid approved rates. The Early Steps Central Office must pre-approve all ACDs or other assistive technology devices costing more than $500 – The equipment or devices are considered to be state property – Parents should be informed of this requirement. • ATD services are billed by the provider and reimbursed according to the maximum rate that DHH has established for the provider specialty (SLP) rendering the service. • Vocational Rehabilitation Services Vocational Rehabilitation Services • Vocational rehabilitation – federal program since early 20th century • Enable a person with a disability to acquire or retain employment • Increases ability of a person with a disability to earn income and pay taxes • Removing potential dependency on public benefits • Receive services outlined on their Individual Plan for Employment (IPE) • Recognize the need for AT • They also coordinate transition services for teenagers with disabilities with the public schools • Provide equipment needed to meet postschool goals 10 1/21/2015 Vocational Rehabilitation Services Summary • To be eligible for vocational rehabilitation services, the individual must – Have a physical or mental disability which for the individual constitutes or results in a substantial impediment to employment – Be able to benefit from vocational rehabilitation services in terms of employment – Require vocational rehabilitation services to prepare for, enter, engage in, or retain gainful employment. • Third party funding programs are responsible for almost all purchases of SGDs in the United States • However, this does not ensure that every American who needs a SGD will have a source of financial assistance • Some will fall through the safety net and will not be able to access third party funding Funding needs constant monitoring Funding evolves • Lewis Golinker (2006) • AAC community opens up funding streams – SGD funding issues in the U.S. can be compared to a high cholesterol count – Both require constant attention – But there are things you can do to keep them under control – Despite these issues you can lead a normal, active life Funding resources • www.aacfundinghelp.com – Joint effort of Assistive Technology Law Center (Lew Golinker) – Duke University – AAC-RERC – 4 sections – First identifying why government and private funding sources should cover SGD – Advocating for coverage while monitor each source – Systematically and rigorously collect facts and arguments that define the benefits of SGDs for people with complex communication needs Funding Resources • http://www.aac-rerc.com – Medicare guidelines • Augmentative Communication News (December 2006). 18, (4). • Funding fast facts • Funding programs • AAC report coach • General funding resources 11
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