The Cost of Transgender Health Benefits The Prevalence of SRS Among US Residents Mary Ann Horton, Ph.D. Transgender at Work DRAFT of March 30, 2006 ABSTRACT This paper measures the prevalence of Sex Reassignment Surgery (SRS) for US residents. It reports the number of US residents undergoing SRS in the year 2001 using a survey of surgeons who offer SRS procedures. This count is compared to the number of eligible US residents in the 2000 US Census to estimate prevalence. The number of US residents undergoing primary SRS in the year 2001 is about 1170 (740 Male to Female or MTF and 430 Female to Male or FTM,) with the confidence range setting lower and upper bounds of about 660 to 1420 MTF, and 290 to 1200 FTM. The prevalence of SRS per year among US residents is about 1: 240,000(about 1:190,000 MTF and 330,000 FTM.) It follows that the overall prevalence of those who will have or have had SRS in their lifetime is about 1:3,100 (1:2500 MTF and 1:4,200 FTM.) Since not all those transsexuals diagnosed with Gender Identity Disorder (GID) have SRS, the prevalence of GID can be estimated as 1:850 (1:500 MTF and 1:3350 FTM.) Keywords Transgender Prevalence. Sex Reassignment Surgery Prevalence Submitted for publication to the International Journal of Transgenderism, http://www.symposion.com/ijt Copyright © 2006 by Mary Ann Horton. All rights reserved. Redistribution by permission only. Mary Ann Horton Page 1 7/31/2017 The Cost of Transgender Health Benefits 1. Introduction Many Health Care benefits policies contain an exclusion stating that any benefits related to sex reassignment surgeryi are excluded from the coverage. Those opposing coverage cite high costs , which are based on conservative prevalence estimates. Transgender activists counter that so few people go through the process that the average cost per insured is very low. How many people do go through this process each year? This study measures the annual number of surgeries (run rate) on US residents, and calculates prevalence based on the US Census. 2. Previous Work “The question is often asked: how many transsexuals are there?” This is not an easy question to answer, because sex reassignment is usually quietly handled. 3.1 Prevalence of SRS Prevalence is defined as “the number of people in a given population affected with a particular disease or condition at a given time”. The prevalence of SRS is not well known. Many estimates have been made, few based on experimental data. Estimates often focus on the prevalence of GID: “What fraction of the population is transsexual?” or of SRS: “What fraction of the population has SRS at some point in their lifetime?” The DSM-IV (DSM, 1994) states, "Data from smaller countries in Europe with access to total population statistics and referral suggest that roughly 1:30,000 adult males and 1:100,000 adult females seek sexreassignment surgery." Conway (Conway, 2002) stated that these figures were based on (Walinder, 1967) in Sweden. The Janus Study (Janus, 1993) found that 6% of males and 3% of females have personally cross-dressed. The Janus question is asked in the context of variant sexual practices, and would appear to include the entire scale of transgendered people, from post-operative transsexuals to those who have only dressed as the opposite sex for Halloween. Another study (van Kesteren, 1996) found the prevalence of transsexualism (GID) in the Netherlands to be 1:11,900 (MTF) and 1:30,400 (FTM.) This is based on the number of patients receiving treatment in the country. Richard Green (Green, 1999) gave the incidence of transsexualism at 1:30,000 FTM and 1:10,000 MTF. Conway (Conway, 2001) estimated prevalence of MTF SRS in the US, by estimating the number of surgeries each year and summing over the past several decades. She estimated that 1:2500 Americans born male is currently a post-operative transsexual, and that at least 1 in 500 Americans born male has GID. She estimates the incidence of transsexualism (the number of people to transition from male to female each year) at 1:10,000 to 1:20,000, based on a 20 to 40 year career. Conway does "sanity checks" with other methods of calculation. Based on an estimated annual surgical count of 1500 to 2000 and an annual male birth rate of 2,000,000, she estimates lifetime prevalence of SRS at 1:1333 to 1:1000, that is, as many as 1:1000 people will have SRS sometime during their lives. Others have made estimates of transsexual or transgender people in other cultures, based upon personal experience. Conway (Conway, 2001) summarizes many of these estimates. These include: Number of Hijra in India: estimated at 1:375. Number of transsexuals "living as women" (without surgery) in Malaysia, estimated at 1:820. SRS in the U.K., estimated at 1:3750, and of transsexualism, 1:750. Katheoys in Thailand, estimated at 1:167. Mary Ann Horton Page 2 7/31/2017 The Cost of Transgender Health Benefits 3. Methodology The goal of this study was to create a credible estimate of the prevalence of SRS. The surgical run rate was measured by counting the total number of surgeries in one year and calculating the average cost per surgery. Prevalence was calculated by comparing run rates with the US Census population of US residents. Persons desiring irreversible surgical procedures who value the quality of the result will usually go to a surgeon who has performed the procedure many times previously. It is known within the transgender community that the vast majority of transsexuals seeking surgery go to one of a relatively short list of surgeons for their final surgery. Most surgeons who routinely practice this type of surgery belong to Harry Benjamin International Gender Dysphoria Association (HBIGDA.) In the fall of 2001, there were 43 individual surgeons and 12 clinics on the HBIGDA membership list. Of these, by reputation, the vast majority of US transsexuals went to one of 15 surgeons. (Eight of these surgeons are in the US, and seven of them are not.) This study refers to these 15 surgeons as major surgeons.ii 4.1 Survey The author sent a survey in 2002 to all surgeons and clinics who were listed as members in HBIGDA. This survey inquired about all surgeries performed by the specific surgeon in the calendar year 2001. Respondents were assured that their individual answers would be kept confidential, and only aggregate data would be released. Questions were designed to support calculation of the run rate (total number of procedures performed annually), and the average cost per patient. The percentage of patients who are US residents was requested. The data was adjusted to apply only to US residents, and compared to available US census data. The percentage of the US population who undergo SRS each year (prevalence of SRS) was then calculated. SRS is a once-in-a-lifetime event for any given transsexual patient. Some patients, however, may undergo multiple surgical procedures. It is important to count each patient exactly once, in order to accurately estimate the run rate. To this end, the concept of a primary surgery is defined. This is a surgery that can occur only once in any given patient, no matter how many follow-ups, corrections, reversals, or cosmetic surgeries are done. In addition, the primary surgery must be a procedure that is required, that must be performed for SRS to be considered complete. For MTF patients, the primary surgery is defined to be the penectomy (removal of the penis.) This procedure is generally accompanied by a vaginaplasty, but in case of complications, a second vaginaplasty may be indicated. Only one penectomy is possible for any one patient For FTM patients, the primary surgery is defined to be the bilateral mastectomy (top surgery.) The various bottom surgeries (hysterectomy, metoidioplasty, phalloplasty) are not always indicated, but almost every FTM patient will undergo a single top surgery. Patient counting was based only on primary surgeries. Patient cost, however, was based on total cost of all surgeries, including follow-ups to treat complications. Questions 2 and 5, below, requested total cost of all surgeries. The specific questions are shown in Appendix A. They may be summarized as follows: 1. How many MTF primary surgeries did you do in 2001? 2. What was the total cost of all the MTF surgeries? 3. What fraction of the MTF surgeries was done on US residents? 4. How many FTM primary surgeries did you do in 2001? 5. What was the total cost of all the FTM surgeries? 6. What fraction of the FTM surgeries was done on US residents? Mary Ann Horton Page 3 7/31/2017 The Cost of Transgender Health Benefits Respondents were assured that their individual survey responses would be kept confidential. For this reason, only summarized data is presented here. After a two-month interval, follow-up letters were sent to the major surgeons who had not yet responded. All major surgeons who had not responded were again contacted, until it was clear there would be no further responses. After tabulating the data, estimates for the major surgeons who did not respond were made, based on other available information. For example, many surgeons' prices are well known or on their web sites. A former patient who interacted with the staff for the 1-2 week period during their surgery estimated run rates. In one case, missing data was discovered in a published book. Data was extrapolated to include other surgeons. Combining the surgical data with US Census data (Census, 2000,) it is possible to estimate the fraction of the US population who had SRS in the year 2001. 4. Surgical Data The data received from the surveys are summarized in this section. First, the raw data as received is summarized. This raw data contained a few errors and omissions that were correctable. The second section describes the reconstruction process and the data after reconstruction. 4.1 Raw Surgical Data For reasons of confidentiality, specific surgeons are not listed in this paper. Rather, the aggregate totals only are given here. 55 Surveys were sent out in 2002 to all surgeons and clinics listed in the HBIGDA membership directory. Fifteen responses were received, 13 from major surgeons and 2 from others. Of the 13 responses received from the 15 major surgeons, one survey was unusable, and 3 had correctable errors. For surveys that were not directly usable, correspondence with the surgeons (or their office staff) permitted the correction of some surveys. As a result, 12 of 15 major surgeons, or 80%, provided usable data for this project. Two surveys were returned by surgeons who were not on the list of major surgeons. One of these provided MTF data for the study; one provided both MTF and FTM data. The 14 valid surveys (a 25% usable response rate) represented 866 MTF primary surgeries performed by 10 surgeons, and 336 primary FTM surgeries (top surgery) performed by 10 surgeons. 7 of the 14 surgeons performed both MTF and FTM surgeries, 3 MTF only, and 4 FTM only. (Of the 12 major surgeons with usable surveys, 3 do MTF, 3 do FTM, and 6 do both.) Specialties of Surgeons Number of Surveys MTF FTM Both Total Response Rate Returned by Major Surgeons 3 3 Sent to Major Surgeons 4 5 Returned by Other Surgeons 0 1 Sent to Other Surgeons Returned (Total) 3 4 Sent (Total) Table 1: Number of Surveys Sent and Returned 6 6 1 7 12 15 2 40 14 55 80% 25% Partial data was also provided for FTM "bottom surgeries." One Ob/Gyn reported performing 3 hysterectomies and no mastectomies. (Most FTM transsexuals go to a regular Ob/Gyn for a hysterectomy, not to a transgender specialist.) 6 surgeons are known to perform metoidioplasties, 3 providing data Mary Ann Horton Page 4 7/31/2017 The Cost of Transgender Health Benefits totaling 21 surgeries, of which 20 were on US residents. 4 surgeons provided data about phalloplasties, and 5 others are believed to perform them. 49 phalloplasties were reported, of which 21 were on US residents. For purposes of this study, only those who perform significant numbers of primary surgeries were counted as major surgeons. The surgeons estimated the percentage of their clients who were US residents. 624 of 866 MTF patients, or 72%, were US residents. 294 of 336 FTM patients, or 87%, were US residents. 4.2 Reconstructed Surgical Data In informal discussions with transgendered US residents considering surgery, and of subject matter experts, the same surgeons names come up repeatedly. It is therefore believed that the major surgeons account for nearly all the surgeries performed on US residents. It is estimated that 95% of MTF patients who have SRS go to a major MTF surgeon, and 75% of FTM patients who have top surgery go to a major FTM surgeon. This difference is based on belief that it is more likely that an MTF will go to a major surgeon, because the MTF procedure is highly specialized. While a specialized chest surgery is seen by many as important, it is also more realistic for an FTM transsexual to get an ordinary mastectomy. In some cases, surveys were returned but incorrect or incomplete. For major surgeons, the blanks were filled in with estimates believed to be accurate. Methods used to correct or complete surveys include: 1. The surgeon or their office staff was asked to clarify the data. 2. A total cost was calculated by multiplying the cost of the procedure and the number of patients. 3. Published costs from the surgeon's web page were used. 4. Missing percentages of US Residents were filled in based on average percentage of other surgeons. 5. Major surgeons who did not provide data were estimated based on their published price and the estimates of volume by former patients. 6. Other surgeons who did not respond were considered part of the extrapolated percentage that are not included in the measured data. These methods made it possible to arrive at a total counted number of primary surgeries in 2001, and a good estimate of the total costs for the primary surgery. Dividing by the extrapolation percentages (95% and 75%) gives an estimate of the total volume and cost of primary surgeries. Multiplying by the percentage of US residents gives a good estimate of the total number and costs of primary surgeries for US residents. (See table 2.) Cost data and analysis is presented in (Horton, 2006.) Table 2 summarizes the totals based on the survey and the reconstruction techniques above. Totals are separated into Male-to-Female and Female-to-Male categories. Surgical Data MTF Raw Number of Primary Surgeries counted Estimated Additional Surgeries (reconstructed) Reconstructed Number Primary Surgeries by major surgeons Estimated Primary Surgeries by other surgeons Extrapolated Total Primary Surgeries Percent of counted surgeries on US residents Primary Surgeries on US residents FTM Total 866 336 1202 79 39 118 945 375 1320 50 125 175 995 500 1495 74% 86% 77% 736 430 1166 Table 2: 2001 Surgical Frequencies Mary Ann Horton Page 5 7/31/2017 The Cost of Transgender Health Benefits 5. Prevalence Analysis There has been much speculation about the prevalence of transsexualism. With the knowledge of the annual run rate, and the assumption that the run rate is flat, the prevalence of primary surgery (SRS) can be estimated. 5.1 Prevalence of Primary Surgery If the US run rate is 1166 surgeries/year (MTF+FTM) and the population of adult US residents was 281 million in 2000, the frequency of SRS per year among adult US residents is about 1:241,000 (about 1:187,000 MTF and 1:333,000 FTM.) That is, about .0004% of the population has SRS each year. A key question to ask is: “Of all the US residents currently alive, how many either have already had SRS, or will have it during their lifetime?” The age distribution of those having SRS does not matter, as the result will be the same for any distribution. Because we are asking about the fraction of those currently alive, the key factor is life expectancy. First, it is assumed the run rate will continue at the 2001 rate iii, and observe that a transsexual can have a primary SRS surgery only once in a lifetime, at any adult age. It is also assumed that life expectancies, as reported in the census based on sex, are accurate based on birth sex, and are not changed significantly by SRS. Using the previous result that 1 in 187,000 people born male have SRS each year, this number can be multiplied by the male life expectancy (74.3 years.) This gives about 1 in 2500 as the number of birth males alive today who have had or will have SRS during some year in their lifetime. Finally, using the estimate that 1 in 5 males with GID go on to have SRS, it follows that about 1 in 500 birth males alive today have transitioned or will transition. Using the estimate that 80% of FTM transsexuals have primary surgery, the FTM and combined ratios can be calculated the same way, as shown in Table 3. The prevalence of SRS, for both genders combined, can be calculated as 1:3134; that is, about 1 in 3,100 US residents alive today have had or will have SRS at some time during their adult lifetime. US residential numbers are based on the 2000 US Census, eligibility is based on birth sex (e.g. those born male are the population eligible for MTF surgery.) Numbers should only be considered significant to 2 digits. MTF FTM Primary Surgeries on US residents Number of US Residents Total 736 430 1166 138,053,563 143,368,343 281,421,906 187,496 333,415 241,295 Ratio of US Residents having Surgery in 2001: 1 in … Years of Eligibility Prevalence: Ratio having SRS in lifetime: 1 in … 74 80 77 2,524 4,183 3,134 505 3,347 866 Prevalence: Ratio with GID in lifetime: 1 in … Table 3: Prevalence of SRS among US residents. In other words, in a company with 100,000 employees, 50,000 males and 50,000 females, about one employee will have MTF surgery every 187,000/50,000 or 3 ¾ years, and one employee will have FTM surgery every 333,000 / 50,000 or 6 2/3 years. The total work force in the company includes about 115 (100,000 / 866) people who have transitioned or who will transition. Of these, 32 (100,000 / 3134) people have had or will have SRS during their adult lifetime. This leaves about 83 (115 – 32) who may be transsexual but will not have SRS. 5.2 Frequency of FTM Bottom Surgery Estimating the frequency of FTM bottom surgeries (hysterectomy, metoidioplasty, phalloplasty) is more difficult. The primary surgery concept does not apply to bottom surgeries. The estimates made here are based on interviews with a subject matter expert in the FTM community, and should be considered less Mary Ann Horton Page 6 7/31/2017 The Cost of Transgender Health Benefits precise than measured data. Any qualified surgeon may do hysterectomies, so they are impractical to count directly. The subject matter expert estimated that 50% have a hysterectomy, 5% have a Metoidioplasty, and 6% have a Phalloplasty. This results in an estimate of 250 hysterectomies, 25 metoidioplasties, and 30 phalloplasties during the calendar year 2001. Based on an 80 year life expectancy of birth females, it follows that 1 in 6,660,000 birth females had a Metoidioplasty in 2001, and 1 in 83,000 birth females have had or will have the procedure during their lifetime. Similar results can be calculated for Hysterectomy-Oophorectomy and Phalloplasty, as shown in Table 4 below. Procedure Frequency HysterectomyOophorectomy Metoidioplasty Phalloplasty Patients 50% 2001 Lifetime Prevalence Prevalence 250 1:666,000 1:8,300 5% 25 1:6,660,000 1:83,000 6% 30 1:5,550,000 1:69,000 Table 4: FTM Bottom Surgery Prevalence Estimates 5.3 Frequency of Nonsurgical Treatment Estimates of costs of the nonsurgical treatments can be made based on well known costs of typical treatments. Since not all transsexuals need every treatment, total volume can be estimated, based on assumptions about treatment rates. If the fraction of transsexuals (those diagnosed with GID) who have SRS is estimated, and the SRS run rate is known, the prevalence of GID can be calculated. The assumption is made that not every transsexual has surgery. Rather some who have Gender Identity Disorder will transition (living full time in the new gender role,) may or may not have therapy, may or may not have Hormone Replacement Therapy (HRT,) and may or may not have surgery. Since those who do not have GID should not have HRT or surgery, only the Transgender Health Benefit (THB) needs of the population who have GID are considered. The fraction of those with GID is estimated that have therapy, that have HRT, and that have surgery. With the numbers who have surgery and the fractions of those with GID who have surgery, the number with GID can be calculated, and from that number the number who have therapy and who have HRT can be calculated. The fraction of transsexuals with GID that do have the surgery is estimated at 20% MTF and 80% FTM iv. Then the number of transsexuals is extrapolated from the number of surgeries. For example, with 736 MTF surgeries each year, and if 20% of those with GID have surgery, there are 736 / 20%, or 3682, MTFs diagnosed with GID each year. The next step is to estimate the rates of therapy and hormone usage among those with GID. For example, it is assumed that 90% of MTFs with GID have therapy, it follows that 90% of 3682, or 3313, MTFs have therapy. These percentage estimates are based on empirical observations by subject matter experts, but not on scientifically collected data. These calculations are summarized in Table 5. If the percentage estimates are accurate, there are about 4,219 people diagnosed with GID each year, and about 85% of them, or 3,582, will begin mental health therapy each year. Similarly, 89%, or 3,743, will begin HRT each year, requiring both hormones and doctor’s office visits to monitor their usage. Nonsurgical Prevalence Estimates MTF FTM Primary Surgeries on US residents Total 736 430 1,166 Est. % with GID having Primary Surgery 20% 80% 28% New GID diagnoses each year 3,682 538 4,219 Est. % with GID having Therapy 90% 50% 85% Mary Ann Horton Page 7 7/31/2017 The Cost of Transgender Health Benefits Patients in year 1 of therapy 3,313 269 3,582 Est. % with GID having HRT 90% 80% 89% Patients in year 1 of HRT 3,313 430 3,743 Est. % with GID having HRT 90% 80% 89% Table 5: Nonsurgical Frequency Estimates 6. Limit Analysis In arriving at the above best estimates, it was necessary to estimate values that were not directly measured. To better understand the margin for error, each of these estimates was examined, to assess the practical range of values. Boundaries were set for each estimate, beyond which the estimated value could not reasonably reach. For example, major surgeons who did not respond to the survey could not have performed fewer than zero primary surgeries, and could not reasonably have performed more such surgeries than the busiest surgeons in their field. Lower and upper bounds were set, referred to here as minimum cost and maximum cost. This permits lower and upper bounds to be calculated for the resulting frequencies. All numbers should only be considered significant only to 2 digits. 9.1 Limit Analysis of Surgical Prevalence The relevant uncertainties about transgender prevalence rates are as follows: 1. No data is available for two major surgeons. Their run rates could have ranged from zero to a number equal to the busiest surgeons in their specialty. 2. A good estimate of the count of primary surgeries performed by the 15 major surgeons has been presented, but the amount of work done by other surgeons is unknown. This is dealt with by estimating the percent of all primary surgeries performed by the major surgeons. The minimum cost case is that all surgeries were performed by responding surgeons (e.g. 100%) A very conservative upper bound can be established by supposing that as many MTF patients go to other surgeons as major surgeons (e.g. 50%) and, similarly, that there are as many FTM patients having mastectomies by other surgeons as by major surgeons (e.g. 50%.) These numbers are absurdly high, but serve to set an upper limit for the worst case costs. 3. The percentages of extrapolated patients who are US residents could have ranged from 0% to 100% of all uncounted patients. 4. The fraction of transitioned transsexuals who eventually have primary surgery has been estimated from 1 in 5 (20%) to 1 in 10 (10%.) A best estimate value of 20% with a range from 10% to 40% has been chosen here. 5. The fraction of transitioned transsexuals who receive mental health therapy could have reasonably ranged from 50% to 90%. 6. Since those with GID almost always seek hormones, in some dosage, the fraction of transitioned transsexuals who receive hormones could have reasonably ranged from 80% to 90%. Using the above lower/upper bound reasoning, primary surgery rates on US residents can be limited from 662 to 1418 MTF surgeries, and from 293 to 1199 FTM surgeries. This is illustrated in Table 6. US Residents (millions) Primary Surgeries on US residents Mary Ann Horton Best Estimate MTF FTM 138 143 736 430 Total 281 Minimum Cost MTF FTM 138 143 1,166 Page 8 662 293 Total 281 959 Maximum Cost MTF FTM 138 143 1,418 1,199 Total 281 2,617 7/31/2017 The Cost of Transgender Health Benefits Ratio of US Residents having Surgery in 2001: 1 in … Years of Eligibility Prevalence: Ratio having SRS in lifetime: 1 in … Prevalence: Ratio with GID in lifetime: 1 in … 187,496 333,415 241,295 208,698 489,245 293,607 97,392 119,529 107,539 74 2,524 80 4,183 77 3,134 74 2,809 80 6,139 77 3,813 47 2,072 47 2,543 47 2,288 505 3,347 866 1,124 2,455 1,525 207 509 297 Table 6: Limit Analysis of Surgical Counts 9.2 Limit Analysis of Nonsurgical Treatment Prevalence Table 7 below uses the process of establishing boundaries around nonsurgical prevalence: therapy, hormones, and doctor’s office visits in support of hormones. It is assumed that not every transsexual has surgery, but rather some who are diagnosed with Gender Identity Disorder will transition to living full time in the new gender role, may or may not have therapy, may or may not have HRT, and may or may not have surgery. Estimates are then made of those with GID that have therapy, that have HRT, and that have surgery. By knowing the numbers who have surgery and the estimated fractions of those with GID who have therapy, HRT, and surgery, the number with GID can be calculated, and from that number the numbers who have therapy, and who have HRT can be calculated. Since all of these values are not known quantities, but rather ranges, the range values can then be calculated. This is shown in Table 7. If the number of MTF surgeries in a year is 736 (range 662 to 1418) and 20% of those with GID have SRS (range 10% to 40%) the number with MTF GID can be calculated to be about 3682 (range 1654 to 14,175.) If 90% of those with MTF GID have therapy (range 50% to 90%,) there are 3,313 (range 827 to 12,758) MTF transsexuals entering therapy each year. Similar reasoning applies to HRT and to FTM and all transsexuals. Doctor’s office visits are required for HRT so the HRT MD numbers will match HRT Rx. Combined totals of MTF and FTM can be calculated by adding the two populations. Best Estimate Minimum Cost Maximum Cost MTF 736 FTM 430 Total 1,166 MTF 662 FTM 293 Total 959 MTF 1,418 FTM 1,199 Total 2,617 Est. % with GID having Primary Surgery 20% 80% 28% 40% 40% 40% 10% 20% 13% New GID diagnoses each year 3682 538 4219 1654 733 2386 14175 5997 20172 Est. % with GID having Therapy 90% 50% 85% 50% 50% 50% 90% 90% 90% 3,313 269 3,582 827 366 1,193 12,758 5,397 18,155 90% 80% 89% 90% 80% 87% 90% 90% 90% 3,313 430 3,743 1,488 586 2,074 12,758 5,397 18,155 Primary Surgeries on US residents Patients in year 1 of therapy Est. % with GID having HRT Patients in year 1 of HRT Table 7: Fractions of Transsexuals who have SRS, Therapy, and HRT 11. Conclusion Mary Ann Horton Page 9 7/31/2017 The Cost of Transgender Health Benefits This paper measures the frequency of SRS for US residents. It reports a survey of surgeons who do SRS procedures, and estimates the number of US residents undergoing primary SRS in the year 2001 to be about 1170 (740 MTF and 430 FTM,) with the confidence range setting lower and upper bounds of about 660 to 1420 MTF, and 290 to 1200 FTM. The prevalence of SRS per year among US residents is about 1: 240,000(about 1:190,000 MTF and 330,000 FTM.) It follows that the overall prevalence of those who will have or have had SRS in their lifetime is about 1:3,100 (1:2500 MTF and 1:4,200 FTM.) Since not all those transsexuals diagnosed with GID have SRS, the prevalence of GID can be estimated as 1:850 (1:500 MTF and 1:3350 FTM.) Appendix A: (Questions sent to surgeons.) Acknowledgements (to be written.) References Census, (2000) US Census, US Residents by age, Number of Insured by age http://www.censusscope.org/us/chart_age.html http://www.census.gov/hhes/hlthins/hlthin00/hi00ta.html. www.census.gov. Conway (2002) How Frequently Does Transsexualism Occur? http://ai.eecs.umich.edu/people/conway/TS/TSprevalence.html DSM (1994) Gender Identity Disorder, Pg 535, Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV.) American Psychiatric Association. Green, Jamison (2004) personal correspondence. Green, Richard (1999) Reflections on "Transsexualism and Sex Reassignment" 1969-1999: Presidential Address, August 1999, Harry Benjamin International Gender Dysphoria Association. Harry Benjamin International Gender Dysphoria Association (2001) Standards of Care, Version Six. Horton, Mary Ann (2006) The Cost of Transgender Health Benefits, April 2006, Draft submitted for publication to International Journal of Transgenderism. Janus, Samuel S and Synthia L, (1993) The Janus Report on Sexual Behavior, (Reports that 6% of males an 3% of females have engaged in cross-dressing (e.g. 1 or more on Benjamin scale.) van Kesteren, PJ, Gooren, LJ, Megans, JA (1996) An epidemiological and demographic study of transsexuals in the Netherlands, 25(6) Archives of Sexual behavior 589. Wålinder. Jan (1967) Transsexualism: A study of forty-three cases. Originally published by Akademiförlaget-Gumperts, Göteborg A typical policy reads “Transsexual Surgery. Expenses related or leading to surgery to change an individual’s gender are not covered.” i Mary Ann Horton Page 10 7/31/2017 The Cost of Transgender Health Benefits ii Of the eight surgeons located in the US, 1 does only MTF surgery, 4 do only FTM, and 3 do both. Because the author's contacts and concept of "reputation" of a surgeon is US-centric, the results presented here will not necessarily apply to other countries or cultures. iii This is based on an assumption that the primary barriers to SRS today are social, family, and medical. It is also possible the rate will continue to rise, although this will require more surgeons to enter the field. iv Chest surgery is seen as more essential and more attainable by the FTM population, whereas MTF transsexuals often cannot afford it, and live without the surgery. Mary Ann Horton Page 11 7/31/2017
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