Announcement Schizophrenia Awareness Association (SAA) is happy to announce the forthcoming publication of “Mental Illness and Caregiving: Challenges, Concerns and Complications”. SAA’s president Amrit Bakhshy has been diligently working on the book for more than a year. The book is based on his experience as a caregiver for more than twenty five years and as a mental health activist for nine years. This comprehensive book, first of its kind in India, is written mainly for Indian family caregivers of persons with mental illness and provides the necessary information that will be useful to them. The book will also be of interest to others including stakeholders, students and anyone who is interested in mental health. Around 200 page book is priced at Rs.200 (Rupees Two Hundred) only. However, the institutions and organisations placing pre-publication orders for 5 copies or more will receive the book at a special price of Rs.100 (Rupees One Hundred) only. The postage and handling charges will be waived for such orders. Individuals may place orders for one or more copies at Rs.100 each but will have to pay for postage and handling Rs.80 for delivery in Maharashtra and Rs.120 for delivery outside Maharashtra. The discounted price will be available for orders with full payment received on or before 10th October 2016. The order form is attached with this mail. 1. Extract from Introduction In 2014, Amrit was appointed by the Govt. of India on the Institutional Body of NIMHANS, an Institute of National Importance created by an act of the Parliament in 2012. In 2015, the Government appointed him as the Chairperson of the Hospital Management Committee of NIMHANS. As SAA President Amrit was actively involved in consultations in drafting of the Mental Health Care Bill 2013 and was invited for national consultations and for a presentation before the Parliamentary Committee. He serves on committees of many national bodies dealing with mental health. At the international level, in March 2015, Amrit was invited by WHO’s Department of Mental Health and Substance Abuse, for expert advice to review the draft material WHO had prepared on mental health issues. Amrit is a collaborator for a 3 year Quality Rights Project in Gujarat which is supported by Grand Challenges Canada. I am happy to see that Amrit has come forward to share his knowledge and experience with other caregivers of mentally ill through his book, Mental Illness and Caregiving – Challenges, Concerns and Complications. The book is the outcome of his keen desire to help the caregivers find solutions to their problems in the process of caregiving. It is based on his experience as a caregiver of his daughter. Amrit has collected useful information from various sources and put it in a book form for guiding the caregivers. It unfolds with his journey on the path of caregiving to Richa. The first part, titled “Orientation”, covers basic information to help the caregiver understand the basic facts involving the care of a family member affected with schizophrenia or other mental illnesses. The tips on “Dos and Don’ts” come in handy during the day to day caring. The second part, “Concerns, Doubts and Queries”, in question-answer form, provides guidance on various issues that arise in the process of caregiving. The caregiver often gets confused with unpredictable situations that arise due to odd behaviour of the affected family member. This section will come in handy to deal with such circumstances. The third part, “Empowerment” is a compendium of important legal issues involving rights of the patients, mental health acts, nominating representatives, and so on. These are summarized in this part of the book. The fourth part “Annexures” is not essential for direct guidance, but it provides important references for caregivers who want to know more. For example, it contains lists of facilities beneficial to caregivers, such as hospitals, institutions, rehabilitation centres, websites, acronyms, all related to mental health. Mental illness has many variations; each case is different. What suits one caregiver may not apply to another. Taken this into account, Amrit has covered many different scenarios involving affected family members, composition of their families, and available community services. I congratulate Amrit for writing this useful guide for Indian caregivers. Jagannath Wani 4 Strathbury Circle SW Calgary, T3H 1P7, Canada Email: [email protected] 2. Extract from Foreword Care-givers form a substantial number of family members who need support. This support includes providing adequate information about the illness such as schizophrenia, tips to manage the person with such illness, benefits and consequences of available treatments, other alternative or complementary interventions that can offer benefit are some examples. In addition, care-givers have to recognize the stress in themselves that can emerge out of the process of caring the affected. Care-giver-stress can be a potential risk and the society should help them to overcome this stress. Research has looked into developing several techniques including yoga to alleviate this stress. This book by Shri. Amrit Bakhshy is a unique contribution. Written by a care-giver himself, the compiled material is most appropriate and comprehensive. The style of writing is simple and clear to help an average caregiver to follow. The author deserves congratulations for this effort. A reader will understand how one could win over this challenge and even convert it into an exercise for the benefit of fellow care-givers. I wish all the readers a fruitful journey through the book. Dr. B.N. Gangadhar, Director NIMHANS, Bangalore Date : 01-09-2016 3. Extract from Author’s “My Journey as a Caregiver” Looking back, I see my becoming a proud father of Richa in 1972. Eighteen years later, in 1991, the destiny made me her caregiver. In 2007 I became a volunteer for helping those with mental illness and their families and in 2010 I joined the mental health movement as a full time activist. The journey will continue. I have made arrangements for Richa after my wife and I are no more. I get great satisfaction to be “agony uncle” of the community of caregivers 24/7. I feel the unending responsibility towards my daughter and the mental health community. So this journey will continue till I remain functional. I wish I had become a mental health activist much earlier. I learnt caregiving system the hard way over a quarter of a century. In the last six years, I have tried to share my experiences and knowledge gained over years, with all the family caregivers, whom I could reach. This book is an attempt to reach and help those family caregivers, whom I am unable to reach in person. Hope this would avoid their groping in the dark and make the same mistakes I made due to lack of awareness about schizophrenia. Amrit Bakhshy, 501 Nyati Abode, NDA Pashan Road, Bavdhan, Pune 411 021 Mobile- 9881190000, E-mail <[email protected]> 4. Order Form Mental Illness and Caregiving: Challenges, Concerns and Complications By Amrit Bakhshy Purchase Order 1. Name of the Organisation/Institution/individual :……………………………………………………………………………… 2. Full address for delivery :…………………………………………………………………………………………………………………… …………………………………………………………………………………………………………………………………………………… ……………. 3. Phone number and Email address: ………………………………………………………………………………………………………… 4. Number of copies required: ........................................................................................................................ 5. Discounted Price for each copy: Rs. 100/6. Total Price for the number of copies required :………………………………………………………………………… 7. Delivery charges: NIL / Rs. 80/- / Rs. 100/- * 8. Total amount payable: Rs. ……………………………………………………………………………………………………………………… Payment Details Crossed Draft/Cheque number…………………., date……………………………. in favour of Schizophrenia Awareness Association, drawn on …………………………………………………………………………………………... for Rs. ………………….. (Rupees……………………………………………………………………………………….). An amount of Rs. ………………….. (Rupees…………………………………………………………………) has been transferred on ……………………………….. (date) to the account of Schizophrenia Awareness Association as per the following details: Schizophrenia Awareness Association Bank Name: AXIS Bank Branch: Sinhagad Road Bank Address: Senate, S No. 118 A, Jaidev Nagar, Sinhagad Road, Pune Account No.: 910010035538609 IFS Code: UTIB0000828 MICR Code: 411211014 Please tick the appropriate box √ * Delivery charges for 5 copies or more – NIL, Less than 5 copies in Maharashtra Rs.80/-, Outside Maharashtra Rs. 120/- Signature Date Encl.
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