STROKE REGISTRY DEFINITION SURVEY
1. Does your institution have a stroke registry?
Yes
No
Stroke Registry
If the answer is no, there is no need to complete questions 2-13.
2. Who abstracts data at your site? Check all that apply.
Yes
No
Trained abstractor
Medical Assistant
Nurse
Medical Student
Please indicate year (i.e., 1,2,3,4)
Physician’s Assistant
Nurse Practioner
Attending Physician
Fellow
Resident
Intern
Medical School graduate with no formal residency training
3. Do you utilize a registry codebook or data dictionary (a guide that provides formal definitions)?
Yes
No
Codebook/Data Dictionary
Indicate the definition(s) that you currently use and/or find acceptable to
determine each variable for your registry. Check all that apply.
4. Hypertension (HTN)
Currently
use
Find
Acceptable
Patient/family states that s/he has history of diagnosed HTN
prior documentation of HTN
admission EKG reads LVH (left ventricular hypertrophy)
prior echo shows concentric LVH
patient is currently on any antihypertensive medication (e.g., ACE inhibitors, angiotensin
receptor blockers, beta blockers, thiazide diuretics, calcium channel blockers) for no other
known reason (e.g., systolic heart failure, rate control of atrial fibrillation, migraine
prevention)
other- please specify: ________________________________
__________________________________________________
We don’t have a formal definition
5. Diabetes Mellitus (DM)
Currently
use
Find
Acceptable
patient or family states that s/he has history of diagnosed diabetes
prior admission notes, discharge summaries or clinic notes list DM
existing medical records show a random plasma glucose concentration of
200 mg/dL or greater in association with polyuria, polydipsia, or unexplained
weight loss
existing medical records show a fasting (i.e., no caloric intake for at least 8
h) plasma glucose value of 126 mg/dL or greater (in an asymptomatic
patient)
existing medical records show a 2-hour plasma glucose value of 200 mg/dL
or greater during an oral glucose tolerance test (in an asymptomatic patient)
admission or previous HbA1c ≥ 7.0
patient is currently on any of the following medications: metformin,
glyburide, pioglitazone, rosiglitazone, glipizide/Glucotrol, any form of insulin
(e.g., Humalog, Humulin, Lantus, Novolin, NovoLog, 70/30)
other- please specify: ________________________________
__________________________________________________
We don’t have a formal definition
6. Hyperlipidemia (HLP) or Dyslipidemia
Currently
use
Find
Acceptable
patient or family states that s/he has history of diagnosed HLP
patient or family states that s/he has history of diagnosed dyslipidemia (i.e.,
elevated triglycerides, low HDL)
prior documentation of HLP
prior documentation of dyslipidemia
admission or previous total cholesterol greater than 200 mg/dl (5.18 mmol/l)
admission or previous low-density lipoprotein (LDL) greater than or equal to
130 mg/dl (3.37 mmol/l)
admission or previous LDL is greater than 100 mg/dl (2.59 mmol/l) in
patients with known coronary artery disease or stroke
admission or previous high-density lipoprotein (HDL) less than 40 mg/dl
(1.04 mmol/l)
patient is currently on any of the following medications: statin/HMG Co-A
reductase inhibitors, fibrates, nicotinic acid, resin drugs (e.g., atorvastatin,
simvastatin, pravastatin, fluvastatin, lovastatin, cholestyramine, colestipol,
probucol, gemfibrozil, Niaspan)
other- please specify: ________________________________
__________________________________________________
We don’t have a formal definition
7. Atrial Fibrillation (AFib)
Currently
use
Find
Acceptable
patient or family states that s/he has history of Afib
prior documentation of Afib
admission EKG shows AFib
admission EKG shows atrial flutter (Aflutter)
prior echo shows Afib/Aflutter
prior Holter monitoring or event recording revealed Afib
prior Holter monitoring or event recording revealed Aflutter
patient reports a history of “irregular heartbeats” without knowledge of term
Afib
other- please specify: ________________________________
__________________________________________________
We don’t have a formal definiton
8. Tobacco Use (Tob)
Currently
use
Find
Acceptable
patient or family states that s/he currently uses tobacco
__cigars
__cigarettes
__smokeless tobacco
patient or family states that s/he has used tobacco in the last year
__cigars
__cigarettes
__smokeless tobacco
prior documentation of tobacco use in the last year
other- please specify: ________________________________
__________________________________________________
We don’t have a formal definiton
9. Myocardial Infarction (MI)
Currently
use
Find
Acceptable
patient or family states that s/he has history of MI
prior documentation of MI
admission ECG shows ST-segment elevation in a lead group
admission ECG shows either ST-segment depression or T-wave
abnormalities—in the absence of ST elevation in a lead group
Q waves present on admission ECG in a lead group
history of myocardial ischemic symptoms in the presence or absence of
chest discomfort; ischemic symptoms may include:
(1) unexplained nausea and vomiting or diaphoresis
(2) persistent shortness of breath secondary to left ventricular failure
(3) unexplained weakness, dizziness, lightheadedness, or syncope
prior echo shows evidence of regional wall motion abnormalities consistent
with prior MI
prior nuclear imaging studies, exercise radionuclide ventriculography or
pharmacologic stress
echocardiography consistent with prior MI
other- please specify: ________________________________
__________________________________________________
We don’t have a formal definition
10. Coronary Artery Disease (CAD)
Currently
use
Find
Acceptable
patient or family states that s/he has history of prior Coronary Artery Bypass
Graft (CABG) or Percutaneous Transluminal Coronary Angioplasty
(PTCA)/Percutaneous Coronary Intervention (PCI)
prior documentation of CABG or PTCA/PCI including balloon angioplasty,
atherectomy, stent, or other
wires seen on CXR without alternate explanation
scar on chest or scar on leg from vein harvest
has current prescription for long-acting nitrates (isosorbide mononitrate or
dinitrate)
has current prescription for sublingual nitroglycerin
other- please specify: ________________________________
__________________________________________________
We don’t have a formal definition
11. Congestive Heart Failure (CHF)
Currently
use
Find
Acceptable
patient or family states that s/he has history of CHF
prior documentation of CHF
prior echocardiogram demonstrated reduced left ventricular ejection fraction
(<50%)
history or current symptoms of dyspnea, orthopnea, and fluid retention
exam demonstrates crackles, rales, or jugular venous distension
admission chest x-ray (CXR) demonstrates pulmonary edema with
pulmonary venous congestion and cephalization of vasculature
markedly elevated brain natriuretic peptide (BNP) on current admission or
any prior assessment
on combination regimen(s) suggestive of heart failure (e.g., ACE-I + loop
diuretic, hydralazine + nitrate)
patients instructed to weigh themselves daily
other- please specify: ________________________________
__________________________________________________
We don’t have a formal definition
12. Carotid Disease
Currently
use
Find
Acceptable
patient or family states that s/he has history of carotid disease
patient or family states that s/he has history of carotid stenting
patient or family states that s/he has history of carotid endarterectomy
(CEA)
prior documentation of carotid disease
prior documentation of carotid stenting
prior documentation of carotid endarterectomy (CEA)
evidence of >50% stenosis of an extracranial carotid artery on imaging (e.g.,
ultrasound, MRA, CTA, angiogram)
CEA scar
evidence of carotid stent or CEA on imaging
other- please specify: ________________________________
__________________________________________________
We don’t have a formal definition
13. Peripheral Vascular Disease (PVD)
Currently
use
Find
Acceptable
patient or family states that s/he has history of PVD
prior documentation of PVD
history of claudication, either with exertion or at rest
history of amputation for arterial vascular insufficiency
history of vascular reconstruction, bypass surgery, or percutaneous
intervention to the extremities
documented aortic aneurysm
positive noninvasive test (e.g., ankle brachial index less than 0.8) or lower
extremity ultrasound with arterial Doppler
absence of peripheral pulses on examination
on meds like Pletal/cilostazol
PVD demonstrated on imaging (e.g., angiography)
other- please specify: ________________________________
__________________________________________________
We don’t have a formal definition