Maltreated Infants: Identifying Factors Associated with Poorer Outcomes Anita Scarborough, Ph.D. Frank Porter Graham Child Development Institute University of North Carolina Julie McCrae, MSW, Ph.D. University of Pittsburgh, School of Social Work Child Welfare Education and Research Programs The research for this presentation was funded by the Administration on Children, Youth, and Families of the U.S. Department of Health and Human Services, Award 90PH0014. 2007 OSEP National Early Childhood Conference Marriott Crystal Gateway Hotel Organization of Presentation 1. 2. 3. 4. Data Source Research Questions Findings Discussion Implications for Service Provision 2 Source of Information • The Administration for Children and Families (ACF), funded the National Survey of Child and Adolescent Well-Being, the first national probability study of children and adolescents investigated by Child Welfare Services. • Baseline data was collected in 1999 and 2000. • This session will present the developmental characteristics of a nationally representative sub-sample of 1,196 infants, representing 149,398 maltreated infants shortly after investigation and again, 3 and 4½ years later. 3 Long-term Outcomes of Abused and Neglected Children • More likely to be arrested as juveniles, to become pregnant during adolescence, use drugs, have lower grade point averages, and experience mental health problems. • 16% of males and 57% of females in State prisons experienced childhood physical or sexual abuse. • Research has become quite conclusive regarding the negative impact of the experience of child maltreatment on adult outcomes in cognitive, economic and mental health domains. 4 Growing Public Awareness and Policy Change • Amendment of the Child Abuse and Prevention Treatment Act (CAPTA, 2003) “requires referral of a child under the age of 3 who is involved in a substantiated case of child abuse or neglect to early intervention services funded under Part C” (section 106(b)(2)(A)(xxi)). • The Individuals with Disability Education Act (IDEA, 2004), requires state Part C programs to have a description of their policy and procedures that require the referral for early intervention services for children under the age of 3 who are involved in a substantiated case of child abuse or neglect. Eligibility requirements for Part C are determined by individual states. 5 Definition of Substantiation • Where the allegation of maltreatment was supported or founded by state law or state policy (US Department of Health and Human Services, 2006). • Each state requires a specific standard of proof to substantiate maltreatment. 6 Part C Services • The goal of Part C is to provide services to children from birth through two years of age with disabilities. • Children in this age range experiencing developmental delays, as defined by the individual states, are entitled to services. • States vary according to the agency serving as the lead agency, the eligibility definition for delay, if services are provided to children “at risk” for developmental delays (currently 5 states), and in the percentage of children served. • Part C services are provided to 2.4% of children between birth and 2 years of age nationally. The percentage of children and families served among the individual states varies, ranging from 1.34 to 6.71% (U.S. Department of Education, 2006). 7 Basis for the Research • An under utilization of Part C services among maltreated infants and toddlers, based on scores on developmental measure shortly after investigation by child welfare, has been reported (Rosenberg et al., 2004; Stahmer et al., 2005; Zimmer & Panko, 2006), • Clearly it difficult to determine developmental delay as an eligibility criteria among infants who do not have established risk conditions. • This study is looking at the developmental characteristics of maltreated infants over time to stress the need for intervention services, and to determine factors present in infancy associated with poorer developmental outcomes. 8 Research Questions • What are the characteristics of infants, their caregivers and type of maltreatment shortly after the time of investigation by Child Welfare Services? • Are there discernible developmental profiles for maltreated infants, 3 and 4½ years after investigation? • What proportion of maltreated infants were reported to have an IFSP 12 months after investigation and what proportion had an IEP 4½ years later? • Are characteristics of maltreated infants, their caregivers, or maltreatment type related to developmental outcomes 4½ years later? • What do those findings suggest about the need for Part C early intervention services? 9 Characteristics of Maltreated Infants • • • • • • Age Gender Race Health Status Neurodevelopmental risk status as assessed by the Bayley Neurodevelopmental Screener Cognitive development as indicated by scores in the cognitive domain of the Battelle Developmental Inventory 10 Caregiver Characteristics • • • • • • • • Age Education Cognitive impairment Mental illness/depression Substance abuse Domestic violence Poverty Poor quality home environment as measured by the HOME 11 Maltreatment Characteristics • Prior reports of maltreatment • Maltreatment type – Physical abuse – Sexual abuse – Physical neglect – Supervisory neglect – Other • Maltreatment case substantiated • Reported level of harm to the child • Child placed out of home 12 Developmental Characteristics Examined 3 and 4 ½ Years after Investigation • • • • • Cognitive development Language skill Adaptive behavior Behavioral concerns Loneliness & social dissatisfaction 13 NSCAW Sample 6,231 children, birth to 14 years of age, who had contact with the Child Welfare System Over Sampled on the basis of: • Children/Families Receiving Child Welfare Services • Infants • Sexually Abused Children Baseline collection from Nov. 1999 to Apr. 2001 • Follow-Ups at 12, 18, 36, and 54 months after baseline • 12 month follow-up included only limited data collection • 54 months follow-up currently available only on infants at baseline Measures Neurodevelopment Bayley Infant Neurodevelopmental Screener (BINS; 0-2 years) Cognitive Domain Battelle Developmental Inventory – Cognitive Domain (BDI; 0 – 3 years) Kaufman Brief Intelligence Test (K-BIT; 4+ years) Adaptive Behavior Domain Vineland Adaptive Behavior Scale Screener, Daily Living Skills sub-domain (VABS) Communication Domain Preschool Language Scale-3 (PLS-3) 15 Measures Behavior Domain Child Behavior Checklist (CBCL; 2+ years for parent; 5+ years for teacher) Socialization Loneliness and Social Dissatisfaction Questionnaire for Young Children (self report 5+ years) Home environment The Home Observation for Measurement of the Environment (HOME) 16 Definition of Delay • Children scoring 1.5 standard deviations or more below the mean on a developmental measure were considered to have a delay. • High Risk for subsequent developmental difficulties based on the BINS. Described 3 and 4 ½ years later using: • PLS – 3 • VABS • CBCL- parent and teacher • KBIT • Loneliness & Social Dissatisfaction 17 Characteristics of Infants Investigated by Child Welfare Age in months at baseline % 0-6 45 7-12 55 Male 49 Race/ethnicity White 44 African-American 30 Hispanic 21 Other 5 Fair/poor health 8 High risk on the BINS 53 18 Caregiver Characteristics At baseline % Less than high school education 37 Cognitive impairment 13 Mental illness/depression 34 Active or history of domestic violence 56 Poverty 45 Low score on HOME 12 High number of risk factors 34 19 Caregiver Characteristics Female Caregiver age Education-level 8 32 37 19 to 34 35 and older 68 <HS HS or GED College 55 20 Household Characteristics 60 48 Proportion 50 45 40 30 23 20 11 10 0 TANF recipient At or below poverty line Single parent 4 or more children 21 Family Risks 34 Substance abuse 41 Prior reports 61 High stress 31 Low social support Trouble paying basic necessities 35 0 10 20 30 40 50 60 70 Proportion with risk present 22 Characteristics of Maltreatment At baseline % Prior report of maltreatment 41 Maltreatment type Physical abuse 20 Sexual abuse 2 Physical neglect 40 Supervisory neglect 33 Other 5 Severe level of harm 16 Clear evidence of maltreatment 41 Worker reports the child has special needs 14 Maltreatment substantiated 38 Out of home placement 22 23 Low Scores at Baseline by Age in Months 25 0-6 mos. 7-12 mos. 21 20 16 14 15 10 10 5 3 1 0 Cognitive Language Adaptive Behavior 24 High Risk on BINS by Age at Baseline 80 70 69 Proportion 60 50 39 40 30 20 10 0 0-6 mos 7-12 mos 25 Low Scores 3 Years Later, by Age at Baseline Domain 0-6 mos. 7-12 mos. % % Total % Cognitive 37 32 34 Language 35 38 37 Adaptive Behavior 25 10 17 At least 1 Problem score 59 57 57 26 Combinations of Low Score Areas 3 Years After Baseline Developmental areas % No problem scores 42 Cognitive 12 Language 14 Adaptive behavior 6 Cognitive & Language 15 Adaptive + Cognitive or Language 5 All problems 6 Total 100 27 Low Scores 3 Years after Baseline by Race/ethnicity 50 45 40 35 47 46 Black White Hispanic or other 32 30 25 20 19 17 19 14 12 15 10 9 14 8 12 8 7 4 3 5 0 No problems p<.10 Cog only Lang only Adaptive Behav only Cog + Lang 7 5 Adaptive Behav + Cog or Lang 6 4 7 All 28 Low Scores 3 Years After Baseline by Gender 60 48 50 40 Boys Girls 36 30 20 19 20 14 10 10 9 10 8 4 8 3 6 6 0 No Cog only Lang only Adaptive problems Behav only Cog + Lang Adaptive Behav + Cog or Lang All p<.05 29 Infants with an IFSP, or 4 ½ Years Later an IEP IFSP in the12 months after baseline 32% IEP 54 months after baseline 20% IFSP 12 months, or IEP 54 months after baseline 37% Those with an IEP who also had an IFSP 54% 30 Teacher Report of Areas of Concern for Those with an IEP Category % Category % Learning disability 24 Speech language delay 66 Autism 18 Traumatic brain injury 5 Emotional disturbance 22 ADHD 25 Mental retardation 15 Developmental disability 26 Multiple disabilities 11 Visual impairment 2 Orthopedic 6 Deafness or hearing impaired 2 Other/unknown 13 31 Low Score Areas 4 ½ Years Later, by Age at Baseline Domain Cognitive 0-6 mos. 7-12 mos. % % 16 11 Total % 13 Language 27 21 25 Adaptive Behavior 42 28 34 At least 1 Problem score 45 44 55 32 Focus on Low Language Scores 4 ½ Years after Baseline (PLS-3) • Low language scores associated with: – Severe level of harm reported at baseline (p<.05) – High risk rating on the Bayley scales of infant neurodevelopment at baseline (p<.001) • No association with: – – – – – Child demographic characteristics Maltreatment characteristics, including substantiation Caregiver risks, age, education-level, poverty status Poor quality home environment Baseline cognitive delay 33 Low Language Scores 4 ½ Years after Baseline Regression using child characteristics, R-square: .03 Baseline characteristic Odds of age 5 language delay p-value Age: 0-6 months 1.36 .47 Male 1.41 .24 Black .67 .42 Hispanic or other .88 .71 Poor physical health 1.08 .80 High risk BINS 1.46 .28 Cognitive delay 1.52 .19 34 Low Language Scores 4 ½ Years after Baseline Regression using child & caregiver characteristics, R-square: .17 Baseline characteristic Odds of age 5 language delay p-value Age: 0-6 months 1.12 .80 Male 1.87 .15 Black .41 .16 Hispanic or other 1.64 .36 High risk BINS 2.34 .11 Poor health 3.00 .03 Cognitive delay .69 .53 Caregiver age: <35 years 1.20 .80 <HS education .57 .29 10.59 .01 Mental illness .22 .05 Substance abuse 1.65 .43 Domestic violence 2.46 .14 Below poverty line .86 .80 Poor quality home environment 1.08 .87 Caregiver cognitive impairment 35 Low Language Scores 4 ½ Years After Baseline Regression with child, caregiver & maltreatment characteristics, R-square: .27 Baseline characteristics related to low language scores Odds of age 5 language delay p-value 16.12 .02 Caregiver mental illness .20 .03 Prior reports .27 .05 Severe level of harm 7.77 .02 Caregiver cognitive impairment Statistical trends (p<.10): High risk BINS, domestic violence, “Other” as the primary type of maltreatment 36 Predictors of IEP 4 ½ After Baseline Regression with child, caregiver & maltreatment characteristics, R-square: .26 Baseline characteristics related to Special Education 4 ½ years later Odds of having an IEP p-value Male 5.00 .01 Child cognitive problem .21 .02 13.21 .002 .30 .03 Caregiver cognitive impairment Caregiver mental illness Statistical trends (p<.10): Age 0-6 months at baseline, Hispanic, low level of child harm 37 Emotional-behavioral Problems Reported 4 ½ Years Later % with clinical-level score Teacher report Parent report Problem type Total problems Internalizing Externalizing 9 9 13 21 7 20 38 Self-report of Loneliness and Social Dissatisfaction 4 ½ Years Later Age at baseline 0 – 6 months 7 – 12 months Total % 1 SD or greater above the mean 16% 11% 13% 39 Summary • More than half of maltreated infants are at high risk for poor developmental outcomes, based on the presence of multiple risk factors such as high family stress (61%), single parent (48%), and domestic violence (56%), coupled with a low score on a measure of cognition, language or neurodevelopmental risk status (BINS). • 32% of maltreated infants were reported to have an IFSP in the period of time 12 months after baseline. • Three years after baseline more than half are reported to have a delay in at least one of the domains measured, with cognitive (12%) and language delays (14%) being the most common. • Three years after baseline 74% of boys were reported to have a low score in at least one domain. 40 Summary • Using language as a global marker of development revealed infant & caregiver characteristics associated with low scores 4 ½ years later: – Poor infant health – Caregivers with a cognitive impairment – Caregiver mental illness was associated with reduced likelihood of language delay • Likely due to the self-report, laptop computer method used to have caregivers describe their mental health/depression • Adding maltreatment characteristics, infant health was no longer predictive, but reported severity of harm was. • Prior report of maltreatment was negatively related to language delay. 41 Summary continued • When infants were 5 years of age, 1/5 of them were reported to have an IEP, but only about half of those children were reported to have had an IFSP. • Factors associated with having an IEP 4 ½ years later: – Male infants – Caregiver cognitive impairment – Infant cognitive problem (-) – Caregiver mental illness (-) 42 Summary continued • Maltreated infants at five years of age: – – – – – 25% low score on a language measure 20% IEP 13-20% reported to have clinical level externalizing problems 7-9% reported to have clinical level internalizing problems 13% of the children report loneliness or social dissatisfaction • Factors in infancy found to be associated: – Infant poor health – Caregiver cognitive impairment – Severe level of harm • Maltreatment characteristics not found to be associated: – Substantiation – Poverty - though these children are disproportionately poor – Out of home placement 43 Discussion Points • Have Part C services been adapted to meet the needs of these children and families? • Many maltreated infants have multiple risk factors, recognized as a Part C eligibility in only a few states, yet these findings support the increased likelihood of poor outcomes for these children. – What can be done to help meet the needs of these children and families and to help children get services earlier? • Has the CAPTA requirement to refer substantiated infants and toddlers resulted in more children being served? • Substantiation is the criteria for referral, yet these findings show that this is not significantly related to outcomes. 44 [email protected] Visit Project Website for updates: http://www.fpg.unc.edu/~promise/ 45
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