Daniel S. Gardner, PhD, LCSW New York University Alleviating suffering and enhancing quality of life Monitoring and managing chronic physical and mental health conditions, and geriatric syndromes Enhancing functional abilities and reducing frailty (e.g., falls prevention) Supporting continued autonomy and control Multiple losses and transitions Awareness of passage of time and time left Facing death and dying ◦ Elders think and talk more about death ◦ Less likely to verbalize fear of dying ◦ Pain and physical discomfort, loss of control, existential concerns (e.g., the afterlife) Search for meaning (i.e., spirituality, transcendence, and “legitimatization of biography”) Interpersonal transitions ◦ Socio-emotional selectivity (Carstensen, ) ◦ Dependence on family and friends ◦ Widowhood Social construction of aging ◦ Culture values individualism and autonomy, agency and productivity, youth and beauty ◦ Aging and illness equated with physical “decline”, dependence, loss of personhood and control ◦ Profound negative impact on elder’s social value and self-worth A major public health issue ◦ Can decrease quality of life and increase decline ◦ Associated with physical, psychological, social and functional impairment ◦ Increases healthcare utilizations and costs Nearly 5 million (15%)* of the 34 million Americans over 65 suffer from recurring depressive episodes Significantly higher among chronically and progressively ill and frail elders (10-43%) Depression is not a normal response to aging Biomedical risk factors: ◦ Chronic physical illness and pain ◦ Neurological or cognitive deficits ◦ Poor nutrition Psychological and social risk factors: ◦ Multiple losses (e.g. loss of loved ones, loss of social roles, and autonomy) ◦ Adverse life events (e.g. bereavement, retirement, serious or life-threatening illness) ◦ Social isolation and lack of social support ◦ History of depression or substance abuse ◦ Lack of socioeconomic resources and poverty, societal oppression and discrimination Goal: Early identification and prevention through intervention Often most catastrophic and stressful event in life Loss of shared past and future, companionship; social role and connection to social network, sexual partner, economic security (i.e. for women), and social status Short-term impact on physical & mental health: ◦ Health status and perceived health decrease ◦ Mortality and suicide rates increase ◦ Higher rates of anxiety, depression, disorientation, memory problems, substance abuse Development of new roles and identities Variations due to gender, race/ethnicity, quality of relationship, social supports, & economic resources Increasing burden of care on families Aging caregivers, competing demands Negative impact on caregiver’s physical and emotional well-being Family decision making: ◦ Advanced care planning ◦ Treatment decisions ◦ Long Term Care and care transitions Family conflict, congruence and substituted judgment Changing context of end of life ◦ ◦ ◦ ◦ Death as the province of old age Medicalization of illness and dying Biomedical/technological advances Ambiguity in the dying process Health care system barriers ◦ Fragmentation and lack of coordination, shift to home-based care, rising financial burdens ◦ Shortage of geriatric and palliative care specialists and skilled providers ◦ Ageist attitudes and beliefs ◦ Valuing curative over palliative care Importance of skilled geriatric assessment and familiarity with geriatric interventions Interdisciplinary care across continuum of care Care coordination across settings and transitions Use of evidence-based practices and narrative methods to aid in search for meaning Increased training and education of next generation of healthcare professionals in geriatric and palliative care Integrate palliative care in all geriatric care policies and guidelines Increase Medicare and Medicaid financing of community home-based services, mental health care, hospice and palliative care svces Develop and pilot demonstration projects that integrate palliative care with healthcare of older adults; Fund existing models (e.g., PACE) that have been shown to be successful Fund provider support around advance care planning Identify gaps in research on needs of older adults and their families at end of life Increase research into patient unmet needs and preferences, aging family caregivers, impact of present policies and programs Develop and test evidence-based interventions for elders and family caregivers around family communication and decision making, advance care planning, and coping with depression, dementia, and other disorders
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