Lived experience of women with Ischemic Heart Disease (IHD) Funding Agency : ICSSR, extramural Research Principal Investigator Co- Investigators Prof.Praveena K.R PhD Scholar Yenepoya University Dr.Asha P Shetty, Dean, Yenepoya Nursing College Dr. M.N Krishnan, Consultant Cardiologist, Malabar Medical College, Calicut Introduction Ischemic heart disease (IHD) is one of the leading causes of death and disability among young and older women, respectively 1, 2 IHD includes of Myocardial Infraction (MI, Heart attack) and Angina pectoris Introduction contd.. IHD is caused by inadequate blood supply to the muscles of the heart 3 The purpose of this study is to understand what sense or meaning people make of their experience of IHD treated in an acute healthcare facility Introduction contd.. It is not surprising to know people lack awareness of the consequence of this dreadful disease even after primary exposure of a cardiac event. This insight call for new, expanded, and fresh ways to deliver information and provide resources to support post-heart attack patients while they are in an acute healthcare facility. Aim This study aimed to describe lived experience of women with IHD to provide a suitable guide for nursing practice. Objectives Critically evaluate the literature to identify the experiences of Women with IHD during hospitalization Explore the lived experience of women post heart attack Compare the perceptions of women from different ethnic background Examine the views of nurses to build a better psychological picture of the additional difficulties that women face post heart attack Novelty Importance of the Proposed Project Qualitative studies help to obtain in depth knowledge and understanding about a Phenomena in areas where little fact is known It is a qualitative Phenomenological Study What is Phenomenology? Phenomenology is an attempt to answer this (seemingly) basic question: How can we have knowledge of the world, as it really is? Phenomenology The “lived” experience The Form and its Phenomenon Reality versus our experience of reality. Phenomenologists…. REJECT scientific realism (objects exist independently of our knowledge of their existence) DISAGREE that the empirical sciences are better methods to describe the features of the world DESCRIBE the ordinary, conscious experience of things OPPOSE the acceptance of unobservable things REJECT naturalism and positivism. Phenomenologists…. BELIEVE objects in the natural world, cultural world, and abstract objects (like consciousness) can be made evident and thus known RECOGNIZE the role of description prior to explanation by means of causes, purposes, or ground STUDY the “life-world” (the taken-for-granted pattern of everyday living Strengths of phenomenology Efficient and Economical (only in terms of data generation or maybe not at all. . .) Direct Interaction with Participants Allows the researcher to ask for clarification and to ask immediate follow-up/probing questions Allows the researcher to observe nonverbal responses which can be supportive or contradictory to the verbal responses Data is in the participants’ own words Relevance of the study Patients with IHD are generally admitted to critical care unit (CCU). Their health care mostly focuses on physiotherapy, pharmacology, and their biological response. Little attention is thus paid to psychological support of patients 4 Heart attack and acute Angina Pectoris remarkably affect quality of life of patients and their families and depict a major crisis in their life 5. Relevance of the study contd.. Knowing that the function of heart, as the core of life, being disturbed is probably the most threatening experience for people with heart attack It is evident that patients have a vague perspective of their life after having heart attack 6 The care given to women with IHD needs to be based on deeper description of their experiences Relevance of the study contd.. Women’s experience of IHD during hospitalization is an important field of study in nursing 7 Nurses are the main part of healthcare system who spend more time with patients affected with IHD and So have a unique opportunity to help them to overcome their problems Relevance of the study contd.. Nurses and other health care providers want to perceive the experiences of their patients, enter their world, and realize the social processes that clarify disease and health events 8. Therefore, it is necessary to focus to experiences of patients in order to propose effective solutions. Rosenstock’s Health Belief Model Methodology Qualitative descriptive phenomenological study Purposive sampling will be adopted for the patients who had experienced IHD and were willing to participate in the study In a qualitative study, sampling continues until data saturation occurs Methodology contd.. Deep and semi-structured interviews will be used to collect data During meeting with the participants, the nature, objectives, and method of the study and their role will be explained Informed consent from participants for recording the interview will be obtained Methodology contd.. The interviews will be transcribed word by word and then check with the recorded information again. Rigor of the study is recommended by Polit and Beck in four aspects of credibility, dependability, confirmability and transferability. Methodology contd.. Credibility of the study will be ensured by long and deep engagement of the researchers in data collection and analysis using parallel analyses of several interviews by other researchers and comparing their results with those of the researchers, and also by returning the results to the participants for revision. Methodology contd.. Dependability and confirmability can be checked by an audit trial Two of the tapes along with the tapescripts may be given to a qualitative study expert who did not take part in the study for analysis Transferability will be maintained by diversifying participants and describing the findings and all procedures in detail. Methodology contd.. Colaizzi’s phenomenological method will be used to analyze data. The tapescripts will be studied and revised meticulously and statements related to the phenomena will be extracted in order to understand the feelings of participants. Then, codes will be organized in categories which are confirmed by participants. Methodology contd.. In the next stage, the results will be integrated using a complete description of the studied phenomenon and revised to have clear concepts. The final results will be returned to the participants to be validated. A summary of Colaizzi's strategy for Phenomenological data analysis COST ESTIMATION Position No of Persons Emoluments Duratio n Amount Required Deputy Director 2 16,000/month 2 years 768000/= Research Associate 1 13,000/month 2 years 3,12,000/= Research Investigator 1 10,500/month 2 years 2,52,000/= Computer Operator 1 Lump sum 2 years 1,20,000/= COST ESTIMATION contd.. S No Others Amount 1. Travel 20,000/= 2. Data Processing 10,000/= 3 Stationary & Printing 10,000/= 4 Books, Journals etc 10,000/= 5 Contingency Expenses including Postage 5,000/= 6 Miscellaneous (Computer, internet etc) 5,000/= Total 50,000/= Grand Total Rs 15,02,000/= Time Schedule of Activities S No 1 2 3 Task 4 5 6 7 Data Collection Data Analysis Results 8 Review of Literature Preparation of Tool Validity and reliability of tool Discussion, summary and conclusion Thesis writing and Submission I II year year III IV year year Requirements Ethical Clearance Certificate Validation of tool Equipments needed : Nil Consumables: Papers, Stationeries, Recording device References Ahmadi F, Ghofranipour F, Abedi HA, Arefi SH, Faghihzadeh S. The Design of Continous Care Model for the Control of Artery Disease. Pathobiology 2002; 4(2): 97-104. Jackson D, Daly J, Davidson P, Elliott D, Cameron-Traub E, Wade V, et al. Women recovering from first time myocardial infraction (MI):a feminist qualitative study.J AdvNurs2000; 32(6): 1403-11. 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Heart Disease and Stroke Statistics-2015 Update: Chapter 4. Circulation January 2015; (e5). http://circ.ahajournals.org. Gupta R, Joshi P, Mohan V. Epidemiology and Causation of coronary heart disease and stroke in India. Heart 2008; (94): 16-26. Census of India 2001. Population Projection for India and States 2001-2026. Report of the Technical Group on Population Projections Constituted by the National Commission on Population. Office of Registrar General and census Commissioner, India 2006.
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