Barriers to Implementation of Effective Strategies for Scaling-Up Mental Health Care: Examples from Brazil, Chile, Jordan and Sri Lanka Benedetto Saraceno Gulbenkian Professor of Global Health University of Lisbon Director WHO Collaborating Centre University of Geneva B.Saraceno, 2014 SUMMARY 1. Different types of gaps in mental health care: insufficiency, inequity, inefficiency. 2. The Optimal Mix of Services is prevented by 5 Barriers: • Mental health resources centralized in and near big cities and in large institutions. • Difficulties in integrating mental health care in primary health care services. • Lack of investment in secondary care. • Political will (& thus funding) for mental health is low. • Mental health leadership lacks public health skills and often serves narrow interests. 3. One conclusion and two critical questions B.Saraceno, 2014 Different Types of Gaps PREVENTION ACCESS QUALITY B.Saraceno, 2014 The Key Issue: The Resources Gap 1. Resources to treat and prevent mental disorders remain insufficient. 1. Resources for mental health are inequitably distributed. 1. Resources for mental health are inefficiently utilized. B.Saraceno, 2014 INSUFFICIENCY: Mental Health Budget and Total Health Budget (WHO, 2004) B.Saraceno, 2014 INSUFFICIENCY: Burden/Budget Gap: Too Large ! 15% 13% 10% Budget Burden 5% 3% 0% B.Saraceno, 2014 INEQUITY: Number of Psychiatrists Per 200,000 Population (WHO, 2001) B.Saraceno, 2014 INEFFICIENCY: Where are the Beds? (WHO 2011) Residential Facilities 16% General Hospitals 21% Mental Hospitals 62% B.Saraceno, 2014 Service Organization: Optimal Mix of Services (adapted from WHO) HIGH LOW Mental Hospitals & Specialist Services FREQUENCY Community Mental Health Services OF NEED COSTS Psychiatric Services in General Hospitals INFORMAL COMMUNITY CARE Mental Health Services through PHC SELF CARE QUANTITY OF SERVICES NEEDED LOW HIGH B.Saraceno, 2014 MIX OF SERVICES IN JORDAN Dawani 2010 Low High Mental Hospitals & specialist services Community mental health services COSTS Informal community care OF NEED FREQUENCY Mental Health through PHC Self Care High Low B.Saraceno, 2014 The Resources Gap Results in the Treatment Gap • Serious cases receiving no treatment during the last 12 months. – Developing countries: 76.3 to 85.4 % – Developed countries: 35.5 to 50.3 % WHO World Mental Health Consortium JAMA, June 2nd 2004 B.Saraceno, 2014 The Treatment Gap (WHO, 2004) B.Saraceno, 2014 The Resources are Far from the Needs Far = insufficient and/or wrongly allocated • People need more services (more absolute coverage). • With more rational allocation of resources (reversing the pyramid). • With more focus (less avoidable treatments). • People need services close to home: Primary Care and Secondary Care represent (should represent) the main components of an effective Mental Health System. B.Saraceno, 2014 Location of Care is not Matching with Needs: Six Common Mistakes • Too many psychiatric hospitals. • Too many beds in existing psychiatric hospitals. • Not enough alternative solutions for long term users. • Not enough beds in General Hospitals. • Not enough Community Mental Health. • Not enough mental health literacy in PHC. B.Saraceno, 2014 LANCET SERIES: Global Mental Health Benedetto Saraceno, Mark van Ommeren, Rajaie Batniji, Alex Cohen, Oye Gureje, John Mahoney, Devi Sridhar, Chris Underhill. Barriers to improvement of mental health services in low-income and middle-income countries. Lancet 2007 Sep 29; 370(9593):1164-74. B.Saraceno, 2014 Barrier 1: Mental Health Resources Centralized in and near Big Cities and in Large Institutions • Need for extra funding to shift to community-based services. • Resistance by mental health professionals and workers, whose interests are served by large hospitals. B.Saraceno, 2014 INEFFICIENCY: Psychiatric Beds in each WHO Region and the World (WHO, 2005) B.Saraceno, 2014 Total Mental Health Beds in Europe Per 100,000 Population B.Saraceno, 2014 The Brazil Case 1990 • The Sistema Unico de Saude (SUS) is created. • 1st National Mental Health Conference. • The “reform” movement starts. 2001 • The Federal Law is approved with budget. • 2nd National Mental Health Conference (30,000 participants). • Changing size and profile of psychiatric hospitals. • Bed reduction starts in parallel to establishment of CAPS (Community Mental Health Centers). • “da volta para casa” programme (a programme promoting deinstitutionalization and offering residential alternatives). B.Saraceno, 2014 Mental Health Services Coverage: FOUR SCENARIOS VERY LOW MIX ONLY HOSPITAL B.Saraceno, 2014 GOOD Beds Reduction (Delgado 2013) Ano Leitos 2001 52.962 60.000 2002 51.393 52.962 51.393 48.303 2004 40.000 45.814 Número de leitos 2003 2005 2006 2007 42.076 30.000 39.567 Número de leitos 50.000 60,000 48.303 52,962 45.814 50,000 51,393 42.076 48,303 39.567 37.988 36.797 45,814 40,000 42,076 39,567 37,988 34.601 32.735 36,797 34,601 30,000 32,735 20.000 37.988 20,000 2008 36.797 10.000 2009 34.601 2010 0 32.735 2001 2011 32.284 10,000 2002 0 2003 2001 2004 2002 2005 2003 2004 Anos 2006 2005 2007 2006 2008 2007 2008 20092009 2010 2010 Anos B.Saraceno, 2014 Hospital Size Reduction (Delgado 2013) Série Histórica - % de Leitos psiquiátricos por porte hospitalar Historical series - % of psychiatric beds according to hospital size 50 40 % do total de leitos existentes % do total de leitos existentes 60 60 30 Até 160 leitos Até 160 leitos De 161 a 240 leitos De 241a 400 leitos De 161 240 leitos leitos Acima de a400 50 40 20 30 De 241a 400 leitos 20 10 10 Acima de 400 leitos 0 0 2002 2003 2004 2005 2006 2002 2003 2004 2005 2006 2007 2007 2008 2008 2009 2009 2010 2010 Anos Anos B.Saraceno, 2014 Barrier 2: Difficulties in Integrating Mental Health Care in Primary Health System • Primary care workers already overburdened. • Lack of supervision and specialist support after training. • Lack of continuous supply of psychotropics in primary care in many low income countries. B.Saraceno, 2014 Brazil Primary Care: Family Health Teams 1998-2009 1998 2009 B.Saraceno, 2014 The Sri Lanka Case (WHO, 2013) The Ministry of Health and the Sri Lanka College of Psychiatrists initiated a one-year diploma course in psychiatry. – Participants received specialized training in psychiatry, including theory and field placement under the supervision of a consultant psychiatrist. – Nearly 60 diploma holders are now working in the country, and all 25 districts in the Country have at least one doctor with the diploma in psychiatry. They are based mainly in secondary-level hospitals, and conduct hospital as well as outreach clinics in the district. B.Saraceno, 2014 The Sri Lanka Case Apart from psychiatry diploma graduates, 131 Medical Officers of Mental Health and 34 Medical Officers of Psychiatry are now serving in different parts of the country. – They receive 3-months of mental health training. – Their duty list is similar to that of psychiatry diploma holders. – They work under the supervision of district Psychiatrists. – They de facto fulfil the role of leading the mental health response. B.Saraceno, 2014 The Sri Lanka Case • Community support officers – Community volunteers paid to provide social support and first psychological aid (trained after Tsunami 2005) • These officers have referred more than half of all inpatients and this proportion rose to 75% in areas without psychiatric services (H. Minas, unpublished) B.Saraceno, 2014 The Chile Case • By 2004, Chile’s public mental health network included an impressive array of services including: – – – – – – – 472 primary care centers with mental health professionals 38 community mental health centers 58 outpatient clinics 40 day hospitals 18 psychiatric units in general hospitals 25 day centers in the community 96 group homes for severely mentally ill • Innovative large-scale initiatives such as the national program on depression have led to substantial progress in the identification and treatment at PHC level of people with common mental disorders who would otherwise not seek care. B.Saraceno, 2014 The Jordan Case (WHO, 2013) Mental Health program 2008 – 2010 • Supported by the World Health Organization, Jordan Office, in partnership with the Ministry of Health and the Jordanian Nursing Council. • Draft of First National Policy and Action Plan developed by the established National Steering Committee for Mental Health. • 3 community mental health services and an acute inpatient model unit established at the Ministry of Health facilities. • Service and human resource development focuses on mental health training and supervision of a relevant number of general practitioners, paediatricians and nurses in primary health care B.Saraceno, 2014 Jordan: Mental Health Workers Outside Psychiatric Hospitals Before and Since 2008 (WHO,2013) 180 Secondary care workers 225 PHC workers 130 Service users and families B.Saraceno, 2014 Barrier 3: Lack of Investment in Secondary Care, the Missing Number •3 •? •1 B.Saraceno, 2014 Mental Disorders often Determine Long Term Disabilities Mental disabilities are long term conditions and, therefore, require: community long-term care, provided by primary- and secondary-levels teams together. B.Saraceno, 2014 Long Term Care = 5 C’s • Comprehensiveness broad spectrum of offers (psychiatric care, family support, housing, employment, inclusion strategies) • Community Long Term Care long term-----forever • Continuity of care one service • Collegiality multiprofessional team+users&families • Capacity new skills are needed B.Saraceno, 2014 Brazil: Strong Investment in Community Mental Health Centers • The Psychosocial Community Centers (CAPS) provide day hospital care, which is considered intensive care. They were developed for treating severe mental disorders and are classified according to three degrees: complexity, population covered, and funds allocated. • In June 2006, there were 848 CAPS registered in Brazil: 673 for adults, 109 for problems related to alcohol and drug use, 66 of which are for children and adolescents only. • Brazil has today 1,513 CAPS, but distribution is still uneven. In the state of Amazon, for example, with 3 million residents, there are only four centers. • Across the country there are 564 therapeutic homes, sheltering 3,062 residents. B.Saraceno, 2014 Brazil: CAPS Community mental health services network has increased (Delgado,2013) 1800 1620 1600 1467 1326 1400 1155 1200 1010 CAPS 1000 738 800 605 600 424 400 200 500 295 148 179 208 1998 1999 2000 0 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 Anos B.Saraceno, 2014 Brazil: Visual representation of the massive increase of community centers (Delgado 2013) 2002 2010 B.Saraceno, 2014 Barrier 4: Political Will (& thus Funding) for Mental Health is Low Reasons: • Inconsistent and unclear advocacy by Mental Health advocates (for example: do members of the Global Movement share the same values and vision???) • People with disorders not organized in a powerful lobby in many countries (and often funded by Big Pharma!!!) • Incorrect belief that care is cost-ineffective (but we still use too often only output rather than outcome indicators and this decreases our credibility vis-à-vis politicians and funders!!!!) B.Saraceno, 2014 Brazil: Reverting Expenditure • The outlay on mental health rose 51.3% in the period 2001-2009. • The breakdown of the expenditures revealed a significant increase in the extra-hospital value (404.2%) and a decrease in the hospital one (-39.5%). • The per capita expenditures had a lower, but still significant, growth (36.2%). • The historical series of the disaggregated per capita expenditures showed that in 2006, for the first time, the extra-hospital expenditure was higher than the hospital one. The extra-hospital per capita value increased by 354.0%; the per capita hospital value decreased by 45.5%. B.Saraceno, 2014 Hospital vs. Community: Reverting Expenditure (Delgado 2013) red = % of costs devoted to community care blue: % of costs devoted to hospital care 80 % do Total de Gastos do Programa 75,24 70 66,71 60 63,35 61,83 50 52,77 47,23 40 67,71 55,92 44,08 38,17 30 65,54 36,65 33,29 34,46 24,76 32,29 20 10 0 2002 2003 2004 2005 2006 2007 2008 2009 Anos B.Saraceno, 2014 Mental Health Reform in Chile • Between 1999 and 2006, the fraction of the health budget allocated to mental health increased almost 2-fold, from 1.2% to 2.1%. • In the same period, the percentage of the mental health budget allocated to psychiatric hospitals decreased from 57% to 33%. B.Saraceno, 2014 Barrier 5: Mental Health Leadership Lacks Public Health Skills & Serve Narrow Interests • Those who rise to leadership positions often only trained in clinical management. • Public health training does not include mental health. • Conservative views prevail in professional organizations. • Pharma industry still too influential. B.Saraceno, 2014 Six Critical Areas in Service Planning • Complying with the UN Convention on the Rights of Persons with Disability (CRPD). • Decreasing the role of psychiatric hospitals. • Increasing the role of general hospitals. • Increasing Community Mental Health care provision. • Developing effective long term care and rehabilitation strategies. • Increasing support to Primary Health Care. B.Saraceno, 2014 One Conclusion & Two Key Questions CONCLUSION: • Good policy and good plans do not warrant good services. • Service organization should be the priority. QUESTION 1: What do we really want to scale – up? • Just treatment packages or Comprehensive Services reform +treatment packages? QUESTION 2: What are we actually able to scale-up? • Rational use of psychotropic drugs or Comprehensive Mental Health Interventions? B.Saraceno, 2014 References Dawani H. , Mental Health System in Jordan, 2010 (unpublished lecture in Boston) Delgado PG., Mental Health Reform in Brazil: changing hospital centred paradigm to ensure access to, in Souqonline, November 2013 at: http://www.souqonline.it/home2_2_eng.asp?idpadre=955&idtesto=949#.UoyRqSe3eKQ Saraceno B, van Ommeren M, Batniji R , Cohen A , Gureje O , Mahoney J, Sridhar D, Underhill C . Barriers to improvement of mental health services in low-income and middle-income countries. Lancet 2007 Sep 29; 370(9593):1164-74. World Health Organization, The World Health Report 2001 - Mental health: new understanding, new hope, WHO, Geneva 2001. World Health Organization, Investing in Mental Health, WHO, Geneva 2004. WHO World Mental Health Survey Consortium, «Prevalence, severity, and unmet need for treatment of mental disorders in the World Health Organization World Mental Health Surveys», in JAMA, 2004, 291, pp.2581-2590. World Health Organization, Mental Health Atlas 2005, WHO, Geneva 2005 World Health Organization, Mental Health Atlas 2011, WHO, Geneva 2011 World Health Organization, Building back better: sustainable mental health care after emergencies, WHO, Geneva 2013 B.Saraceno, 2014
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