A £1.75m investment to help you develop Shared Lives healthcare
In Shared Lives, an adult (and sometimes a 16/17 year old) who needs support and/or
accommodation moves in with or regularly visits an approved Shared Lives carer, after they have
been matched for compatibility. Together, they share family and community life. Half of the 13,000
people using Shared Lives are living with their Shared Lives carer as part of a supportive
household; half visit their chosen Shared Lives carer regularly for day support or overnight breaks.
Shared Lives is used by people with learning disabilities, people with mental health problems, older
people, care leavers, young disabled adults, parents with learning disabilities and their children,
people who misuse substances and offenders. It is being developed as a home from hospital
service, an acute mental health service and a form of short breaks for family carers.
There are over 9,000 Shared Lives carers. They have all been through a rigorous approval process
lasting up to six months, with one of England’s 120+ local Shared Lives schemes, each regulated
by CQC, which consistently rates Shared Lives as the highest performing form of regulated care in
inspections. Matching is at the heart of Shared Lives: schemes introduce Shared Lives carers to
local people needing support and they get to know each other at their own pace, before both make
a decision to share home and family life long-term.
Shared Lives costs less than other forms of care: on average £26,000 a year less for people with
learning disabilities and £8,000 less for people with mental health problems. Whilst Shared Lives
carers are trained and paid, they and their families provide much for which they expect no
payment, resulting in exceptional value. As Shared Lives carers are self-employed and utilise their
own homes and spare rooms, the cost base is very low.
Shared Lives has grown by 27% in two years, but it is still barely used as a health care
intervention. Our recent Health Report, with a foreword by Simon Stevens, outlines the remarkable
ways in which Shared Lives can benefit people’s health:
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People with learning disabilities moving out of medical institutions into ordinary family
homes, with great support and a growing network of friends.
People recovering from strokes and other health crises receiving step down care in a
Shared Lives household.
Live-in mental health support including acute support as an alternative to hospital-based
treatment.
Dementia support including day support and short breaks for family carers.
Some NHS commissioners and providers are already investing in Shared Lives, but NHS England
have now invested £1.75m in start-up and development funding and expert support, which will
enable 6 - 10 areas to develop new NHS services on a match-funded basis. Two regions where
there is most interest in the model will receive extra support as ‘accelerator regions’.
Our work
Shared Lives Plus is the UK network for Shared Lives and Homeshare. We invite CCGs and NHS
Trusts to express an interest in receiving match-funding and expert support to develop new Shared
Lives healthcare services, either in the form of a brand new Shared Lives scheme, or in
partnership with your existing local scheme (find your local scheme: www.SharedLivesPlus.org.uk).
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To apply, please answer the brief questions on the next page and send your expression of interest
to [email protected]. Please use that address for any questions or call 0151 227 3499.
The deadline for your expression of interest is Monday June 13th 2016 at 5pm (Please note this is
an extension from the original deadline of Tuesday 31st May 2016 at 5pm due to demand from
applicants).
Expression of interest to receive funding and support
Eligibility to apply:
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The applicant (or lead partner) must be a CCG or NHS Trust and signed by the CEO.
The EOI must be to develop a CQC-regulated Shared Lives service: either a new scheme,
or the expansion of an existing scheme with a specific healthcare / NHS focus.
You must commit to match funding the new development over at least three years. We
expect some match funding in Year 1, significant match funding in Year 2 and majority or
total funding in Year 3, by which time the scheme should be generating savings which
significantly outweigh its costs.
We will support the costs of 1, 2 or 3 Shared Lives coordinators per area. Each Shared
Lives coordinator can support around 25 live-in Shared Lives arrangements, or more short
breaks arrangements. Most schemes provide a mixture of live-in support, short breaks and
day support, in order to increase flexibility and aid the matching process. No Shared Lives
carer may support more than 3 people in their house at any one time.
You must be committed to using our outcome measuring tool, sharing learning and to
joining Shared Lives Plus where applicable and participating in membership (which starts at
£150 p.a. for the smallest schemes).
We encourage:
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Participation and sign up by your local Health and Wellbeing Board.
Contact to have been made with any existing local Shared Lives scheme to explore the
possibility of partnership, although we will accept EOIs based on brand new schemes.
Information you must include in your EOI:
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Names of all partner bodies and named leads (incl. job titles) within each organisation.
The number of people you intend to support; your target groups; the nature of support you
wish to provide and its purpose and intended outcomes.
A brief timeline with key milestones and an outline budget, including your match funding.
Any learning or evaluation you intend to resource (there will be a national evaluation)
Social finance investment:
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There may be opportunities to explore social investment and a payment for outcomes
model as part of this programme. If this is something you may be interested in, please
state this clearly in your EOI.
In the event of the funding being oversubscribed, we will prioritise applicants on these criteria:
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Registered charity: 1095562. Registered company: 4511426
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Demonstrable understanding of the values, processes and cost base of the model. Please
refer to our guides, CQC’s Additional Notes and the budget outline below.
Senior leadership commitment for at least three years and ideally longer.
Significant match funding commitment for at least three years.
Plans to develop and embed the model if it proves successful: no one-off pilots please.
The ambition and the realism of your outlined plans, including how they will complement
and add value to the existing healthcare system and any existing Shared Lives provision.
Innovation, including using Shared Lives for healthcare purposes which are not currently
widespread. Please refer to the State of Shared Lives in England and our Health Report.
The number of interested organisations in a defined region: we aim to identify two
accelerator regions where there is significant healthcare activity, and we will base a post in
each of those regions.
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Our support offer to local CCGs and NHS Trusts
The successful applicants from the EOI stage will be asked to complete a full project plan and to
meet with Shared Lives Plus and NHSE in order to determine the funded schemes and the
partnership and support arrangements we will put in place.
The level of funding and support will be locally determined, so we are not specifying maximum
budgets and precise support arrangements at this time. However, as a guide, the support options
for successful applicants will include:
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Tapered match funding over 2 -3 years (see eligibility criteria above), according to need
and ambition.
Support will be delivered by the Shared Lives Plus and Community Catalysts teams which include:
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Experts in setting up new Shared Lives schemes
Team members with a focus on quality, safety and CQC requirements
Team members who specialise in supporting Shared Lives carers one to one and in groups
Team members who support schemes to reach new groups or to use Shared Lives for new
purposes eg mental health support, dementia care, short breaks, young disabled people in
transition, intermediate and home from hospital care, transforming care for people with
learning disabilities
Experts by experience who currently use Shared Lives for learning disability and other
kinds of support
Shared Lives carers who have been trained as peer reviewers
The support commitment will be tailored to your needs, but can cover:
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Support with business planning, setting / developing up the regulated model
Advice and support to recruit Shared Lives carers
Adapting the Shared Lives model to specific groups / purposes
Integrating Shared Lives into care pathway(s)
Setting up outcome measuring, data capture and evaluation
Reviewing progress and adapting the model
Peer-led co-production involving people who use Shared Lives, families and Shared Lives
carers
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Indicative budget
This is an indicative budget for setting up a brand new 3 scheme worker scheme, which at full
capacity (reached around month 30) will support 75 people at any one time (25 people per scheme
worker for 1 or 2 worker services). We will negotiate an appropriate level of expert support with you
and the costs of that support will form an element of match funding, mainly or wholly provided by
NHSE. A detailed budget breakdown is not a compulsory part of the EOI, but we expect to see
realistic budget headings which reflect the established costing model for a high quality scheme.
The budget below may not include every cost eg it excludes CQC registration charges.
The budget below does not include the costs of payments to Shared Lives carers for support,
which can range from around £150 – 450 per week, per person supported, depending on the
person’s level of need. Usually these are met from social care budgets, but for this project it is
likely that payments would come from CHC budgets for long term care, tariffs for care which
replaced hospital or step-down care provision or other NHS budgets. For short term patients, not
eligible for Housing Benefit and disability benefits (which would usually be drawn upon for
accommodation and bills payments to the Shared Lives carer), commissioners will need to cost in
additional payments to the Shared Lives carer. Nevertheless the overall cost is likely to be
significantly cheaper than a hospital bed.
Indicative budget for modelling purposes only
Shared Lives carer recruitment targets per scheme
Staffing (inc on costs)
Shared Lives scheme manager
Shared Lives workers
Travel
Training
Office running costs
Rental, rates, utilities
Insurance
Phones
Stationery, printing,
IT and web site support
Software licences
Shared Lives carer costs
Recruitment
DBS checks
Full membership for scheme & all Shared Lives carers
Shared Lives carer support group meetings
Set up costs
Recruitment
Equipment (IT, desks)
Stationery (business cards etc
Total
© Shared Lives Plus Ltd 2016. www.SharedLivesPlus.org.uk
2016-17
2017-18
2018-19
30
60
75
£38,400
£62,400
£4,000
£500
£39,168
£63,648
£4,080
£510
£39,951
£64,921
£4,162
£520
£12,000
£1,000
£750
£300
£1,800
£900
£12,240
£1,020
£765
£306
£1,836
£918
£12,485
£1,040
£780
£312
£1,873
£936
£6,000
£1,950
£2,970
£600
£4,000
£1,950
£5,940
£600
£4,000
£975
£7,425
£600
£4,000
£4,500
£500
£142,570
£136,981
£139,981
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Shared Lives and Homeshare case studies
Lisa
In May 2011, Lisa Bacon, 21, found out she was pregnant. She was afraid that she might lose her
home and that her baby would be taken away from her. Lisa – who has a mild learning disability
and hearing loss – knew that only a tiny proportion of people like her ever become parents and if
they do, there is a 50-50 chance that the child will be removed, shortly after the birth.
Lisa was taken away from her own family when she was 11 and put in foster care. At 21, she was
living alone but couldn't cook, use a washing machine or manage money. Lisa moved into Dawn's
modest home on a housing estate in Redruth, Cornwall. From the beginning, Dawn was by her
side, just as she would have been had Lisa been her daughter. Lisa doesn't think of Dawn as a
mother, though: "She's more like a big sister." Thanks to that support, Lisa is now living in her own
two-bedroom flat and caring for her six-month-old baby, Tia, who chortles contentedly on the
blanket spread at her mother's feet.
Full story: The Guardian http://bit.ly/1tR46Nl
Paul
Paul, 50, has recently moved in with approved
Shared Lives carer, Sheila and her family in
Birmingham. Sheila helped Paul to get a bus pass,
to learn to use public transport and to cross roads
safely, so that he can walk by himself in his
community for the first time in his life. He bought
his first ever bike and enjoys long bike rides with
Sheila and her husband. Paul has discovered
painting and his framed pictures can be found in
Sheila and her family’s homes. Sheila uses her
connections to help Paul become a visible and
popular member of their community. He knows
local shopkeepers, library staff and even busdrivers by name. Sheila encourages everyone to
‘look out for Paul’. Paul doesn't have a lot of speech, but when asked if he understands what
'independent' means, he smiles and says 'walk'. From the Care and Support White Paper 2012.
Barbara
Barbara is in her 40s. She has lived in different settings with varying support and had intermittent
periods as an inpatient as mainstream services struggled to support her in the community over
many years. For the past two years she lived with her elderly mother who is now in a care home.
Barbara has a diagnosis of schizophrenia. She suffers from extreme anxiety and cannot manage to
stay on her own overnight. Barbara moved into a long term Shared Lives arrangement three
months ago. She has started participating in community groups, travelling on her own by bus to the
town centre. She is hearing voices less and Barbara’s social worker states that she has never seen
her so relaxed and happy. She has been away for a weekend with her Shared Lives carers and is
planning a short holiday: this will be the first holiday she has ever had.
Khalid
“‘Khalid’ is a younger man who has had his third stroke, and was unable to return to live in his own
flat on his own. The social worker was keen that he didn’t have to enter a nursing home at a young
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age. We were able to match him with a Shared Lives family originally from the same city in
Pakistan as his own family. This has been really helpful for his family, as this has been a difficult
situation for them to come to terms with. Being able to talk to the Shared Lives carers in their own
language, and feel that they are offering support so similar to that he would get if his family were
able to support him, is invaluable. Also it has meant that he is able to maintain his previous social
circle, with his friends visiting. He is keen to return home and live on his own again, and we are
working towards this as a long-term goal.” Newham Shared Lives scheme.
Hilda
“The first time that I met Hilda she was a bit shy, but as she has grown to know me more she isn’t
as shy. My mum takes Hilda out on a Saturday for 4 hours, we have taken her to Mexborough,
Rotherham, Meadowhall, as well as going out for lunch, helping her
with her shopping and getting her hair cut. Last year we went to
Cleethorpes for the day and we took Hilda with us, it was a really
good day out and she really enjoyed it. Every time Hilda comes to
our house she always makes me smile and laugh.
My friends have become a big part of Shared Lives because
whenever they come to my house in a morning to meet me for
school and someone’s been stopping the previous night, they
always say to them “hello” and “how are you?” One person who
Sam especially likes is Cendal. When Sam comes to stop at our
house he always asks “Is Cendal coming” or “don’t tell Cendal” if
his has been up to any of his tricks like turning the television over
with the remote control!- Sam is a bit of a prankster !!”
Niamh, aged 12, daughter of Shared Lives carers.
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