Ryan White Funding Annual Needs Assessment Gina Turley September 2, 2010 Annual Needs Assessment Participant Demographics August 2010 Annual Needs Assessment 17 individuals participated in 4 focus groups held in the following locations: The Homeplace Channels of Love Ministries Chattanooga CARES Southeast Tennessee Development District *A 5th group was scheduled at The Caring Place, Cleveland, TN, but no one attended. Annual Needs Assessment Focus Groups Gender 8 9 9 Female 8 Male Annual Needs Assessment Focus Groups Age Range of Participants 7 6 5 4 3 2 1 0 7 3 13-20 21-30 31-40 41-50 over 50 7 Annual Needs Assessment Focus Groups Race 1 4 4 Caucasian 13 African American 1 Native American 13 *No one reported their ethnicity as Hispanic. Annual Needs Assessment Focus Groups Housing 100% of respondents rent or own their housing. Annual Needs Assessment Zip Codes Represented: • 30736 • 37379 • 37402 • 37404 • 37405 • 37406 • 37408 Annual Needs Assessment Focus Groups Sexual Orientation 2 2 12 Straight 1 2 Gay/Lesbian 12 2 Bisexual 1 no data Annual Needs Assessment All respondents indicated English was their preferred language. Annual Needs Assessment Focus Groups Employment Status 1 2 6 Unemployed 6 7 Disabled 1 Volunteer 7 2 Full Time Annual Needs Assessment Focus Groups Education 8th Grade or Less Some High School 1 3 6 High School Degree or GED 7 Some College Annual Needs Assessment Focus Groups Insurance Coverage 5 5 2 6 5 Medicaid 6 Medicare 2 Private 5 None Annual Needs Assessment Focus Groups Years With Knowledge of HIV/AIDS 10 10 8 6 3 4 4 2 0 0 <1 1 to 4 5 to 9 10 + Annual Needs Assessment Focus Groups # of Health Care Visits 5 5 5 Focus Groups Current Health Status 8 4 8 3 2 2 2 2 7 6 5 1 4 0 3 0 1 2 to 5 to 9 + 4 8 *One participant stopped answering questions. Respondent size dropped from 17 to 16. 3 3 2 2 1 0 Very Good Good Fair Poor Annual Needs Assessment Focus Groups Taking Combo Antiretroviral Drugs No, 3 Yes, 13 Annual Needs Assessment • • • • • • • How Medication Costs are Covered 1 Private Insurance 7 Medicaid 3 Medicare 7 AIDS Drug Assistance Program 3 Ryan White 4 Self Pay 1 Safety Net Annual Needs Assessment Focus Groups Last CD4 Test 1 over 6 months 5 3-6 months 10 within 3 months 0 5 10 Focus Groups Last CD4 Count 1 Unknown 6 Over 500 8 200 to 500 1 Less Than 200 0 2 4 6 8 Annual Needs Assessment Focus Group Last Viral Load Test 1 5 Within 3 3 to 6 More then 6 Focus Group Viral Load Tested? 1 Yes No 15 10 Annual Needs Assessment Focus Group Utilize Ryan White Funds Unsure 2 No, 3 Yes, 11 Yes No Unsure Annual Needs Assessment • • • • 10 participants reported they have children. 4 participants reported no children. 2 left the section blank. The children’s ages ranged from: 10 to 36. • One respondent stated her adult child was HIV+. • None of the participants were currently pregnant. • Two people noted they took antiviral drugs during their pregnancies. None of their children were positive. Annual Needs Assessment Participant Responses During Focus Group Sessions August 2010 Annual Needs Assessment Services, Barriers, and Recommendations Annual Needs Assessment Case Management Education for case managers for when someone would become eligible to file for Social Security Disability . Annual Needs Assessment Transportation • Evening transportation needed to take advantage of events, classes and support groups. • Transportation to the Health Department and the Ryan White program needed. Annual Needs Assessment Dental Care • Mixed reports regarding dental care. • Transportation was an issue for several respondents • Several respondents reported an extremely long wait to receive care while others were extremely satisfied and reported a short wait. Annual Needs Assessment Food and Nutrition • Food stamps allocations do not take into consideration special and more expensive needs of consumers. • Access to fresh and high quality food. Annual Needs Assessment Food and Nutrition • Specialized classes about nutrition. • Individual meal plans to meet special nutritional needs. • Individualized family meal plans to meet everyone’s special needs. Annual Needs Assessment Healthcare Financial assistance for non-AIDS related medications. Annual Needs Assessment Outreach • Mentorship programs for those newly diagnosed. • Prevention and education targeted to younger groups 18-20. Annual Needs Assessment Outreach • Large media outlet could provide prevention campaign and focused on virtual social networks such as PS3 and X-Boxes. Annual Needs Assessment Consumer Comments Regarding Outreach • “Enough with the papers, needs attention grabbing.” • “(Youth) Seems to know it’s bad to participate in unsafe behaviors but still not protecting themselves.” • “We are falling apart (i.e. as a support group for each other).” Annual Needs Assessment Medications • Prescriptions limits set at five, should be increased for those who have multiple disorders or diseases. • Assistance for large Medicare co-pays and deductibles. • Education of drug stores on how to process co-pays. Annual Needs Assessment Medications • Financial assistance with vitamins. • Delivery to the home. • Up to date information on new medications. Annual Needs Assessment Physical Health Access to physical activities to help with weight, maintain muscle mass and stress relief. Annual Needs Assessment Continuity of Care • Better coordination between infectious disease doctor and primary care doctor. • Incentives to keep staff at agencies and reduce turn over. Annual Needs Assessment Continuity of Care • Newly diagnosed do not know how to access services. • Decreases in funding— worried about agencies cutting services. Annual Needs Assessment Holistic Services • Arts and crafts to express self. • A place to relax. Annual Needs Assessment Other Services • Access to legal aid. • Better access to mental health services. Annual Needs Assessment Consumer Comments Annual Needs Assessment • “Blessed.” • “Would be dead right now if not for Ryan White Program.” • “…(caseworker) always calls me right back.” • “…(Doctor) was in the hospital all the time checking on me when I was sick.” Annual Needs Assessment • “Christian beliefs at Channel of Love— Meds heal your body, they heal the spirit.” • “Catholic Charities doing pretty good.” • “Chattanooga Cares is really fast.” • “Very satisfied with services.” Annual Needs Assessment “We need to be proactive in our own lives and our own health. You have to do it for yourself.” Annual Needs Assessment Any questions or comments? Thank you for your time!
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