Ryan White Funding - Ryan White Program

Ryan White Funding
Annual Needs Assessment
Gina Turley
September 2, 2010
Annual Needs Assessment
Participant Demographics
August 2010
Annual Needs Assessment
17 individuals participated in 4 focus
groups held in the following locations:
The Homeplace
Channels of Love Ministries
Chattanooga CARES
Southeast Tennessee Development
District
*A 5th group was scheduled at The Caring Place, Cleveland,
TN, but no one attended.
Annual Needs Assessment
Focus Groups
Gender
8
9
9 Female
8 Male
Annual Needs Assessment
Focus Groups
Age Range of Participants
7
6
5
4
3
2
1
0
7
3
13-20 21-30 31-40 41-50 over
50
7
Annual Needs Assessment
Focus Groups
Race
1
4
4 Caucasian
13 African
American
1 Native
American
13
*No one reported their ethnicity as Hispanic.
Annual Needs Assessment
Focus Groups
Housing
100% of respondents
rent or own their
housing.
Annual Needs Assessment
Zip Codes Represented:
• 30736
• 37379
• 37402
• 37404
• 37405
• 37406
• 37408
Annual Needs Assessment
Focus Groups
Sexual Orientation
2
2
12 Straight
1
2 Gay/Lesbian
12
2 Bisexual
1 no data
Annual Needs Assessment
All respondents indicated
English was their preferred
language.
Annual Needs Assessment
Focus Groups
Employment Status
1
2
6 Unemployed
6
7 Disabled
1 Volunteer
7
2 Full Time
Annual Needs Assessment
Focus Groups
Education
8th Grade or
Less
Some High
School
1
3
6
High School
Degree or GED
7
Some College
Annual Needs Assessment
Focus Groups
Insurance Coverage
5
5
2
6
5 Medicaid
6 Medicare
2 Private
5 None
Annual Needs Assessment
Focus Groups
Years With Knowledge of HIV/AIDS
10
10
8
6
3
4
4
2
0
0
<1
1 to 4 5 to 9
10 +
Annual Needs Assessment
Focus Groups
# of Health Care Visits
5
5
5
Focus Groups
Current Health Status
8
4
8
3
2
2
2
2
7
6
5
1
4
0
3
0
1
2 to 5 to 9 +
4
8
*One participant stopped answering
questions. Respondent size dropped
from 17 to 16.
3
3
2
2
1
0
Very Good
Good
Fair
Poor
Annual Needs Assessment
Focus Groups
Taking Combo Antiretroviral
Drugs
No, 3
Yes, 13
Annual Needs Assessment
•
•
•
•
•
•
•
How Medication Costs are Covered
1 Private Insurance
7 Medicaid
3 Medicare
7 AIDS Drug Assistance Program
3 Ryan White
4 Self Pay
1 Safety Net
Annual Needs Assessment
Focus Groups Last CD4 Test
1
over 6 months
5
3-6 months
10
within 3 months
0
5
10
Focus Groups
Last CD4 Count
1
Unknown
6
Over 500
8
200 to 500
1
Less Than 200
0
2
4
6
8
Annual Needs Assessment
Focus Group
Last Viral Load Test
1
5
Within 3
3 to 6
More then 6
Focus Group
Viral Load Tested?
1
Yes
No
15
10
Annual Needs Assessment
Focus Group
Utilize Ryan White Funds
Unsure
2
No, 3
Yes, 11
Yes
No
Unsure
Annual Needs Assessment
•
•
•
•
10 participants reported they have children.
4 participants reported no children.
2 left the section blank.
The children’s ages ranged from:
10 to 36.
• One respondent stated her adult child
was HIV+.
• None of the participants were
currently pregnant.
• Two people noted they took antiviral
drugs during their pregnancies. None of their
children were positive.
Annual Needs Assessment
Participant Responses
During Focus Group Sessions
August 2010
Annual Needs Assessment
Services,
Barriers, and
Recommendations
Annual Needs Assessment
Case Management
Education for case managers for
when someone would become
eligible to file for Social Security
Disability .
Annual Needs Assessment
Transportation
• Evening transportation needed to take
advantage of events, classes and
support groups.
• Transportation to the Health
Department and the Ryan White
program needed.
Annual Needs Assessment
Dental Care
• Mixed reports regarding dental care.
• Transportation was an issue for several
respondents
• Several respondents reported an
extremely long wait to receive care
while others were extremely satisfied
and reported a short wait.
Annual Needs Assessment
Food and Nutrition
• Food stamps allocations do not take
into consideration special and more
expensive needs of consumers.
• Access to fresh and high quality food.
Annual Needs Assessment
Food and Nutrition
• Specialized classes about nutrition.
• Individual meal plans to meet special
nutritional needs.
• Individualized family
meal plans to
meet everyone’s
special needs.
Annual Needs Assessment
Healthcare
Financial assistance for
non-AIDS related medications.
Annual Needs Assessment
Outreach
• Mentorship programs for those newly
diagnosed.
• Prevention and education
targeted to younger
groups 18-20.
Annual Needs Assessment
Outreach
• Large media outlet could provide
prevention campaign and focused on
virtual social networks
such as PS3 and
X-Boxes.
Annual Needs Assessment
Consumer Comments Regarding
Outreach
• “Enough with the papers, needs
attention grabbing.”
• “(Youth) Seems to know it’s bad to
participate in unsafe behaviors but still
not protecting themselves.”
• “We are falling apart (i.e. as a support
group for each other).”
Annual Needs Assessment
Medications
• Prescriptions limits set at five, should
be increased for those who have
multiple disorders or diseases.
• Assistance for large Medicare co-pays
and deductibles.
• Education of drug stores on how to
process co-pays.
Annual Needs Assessment
Medications
• Financial assistance with vitamins.
• Delivery to the home.
• Up to date information on new
medications.
Annual Needs Assessment
Physical Health
Access to physical
activities to help with
weight, maintain
muscle mass and
stress relief.
Annual Needs Assessment
Continuity of Care
• Better coordination between infectious
disease doctor and primary care
doctor.
• Incentives to keep
staff at agencies
and reduce turn over.
Annual Needs Assessment
Continuity of Care
• Newly diagnosed do not
know how to access
services.
• Decreases in funding—
worried about agencies
cutting services.
Annual Needs Assessment
Holistic Services
• Arts and crafts to express self.
• A place to relax.
Annual Needs Assessment
Other Services
• Access to legal aid.
• Better access to
mental health
services.
Annual Needs Assessment
Consumer Comments
Annual Needs Assessment
• “Blessed.”
• “Would be dead right now if not for Ryan
White Program.”
• “…(caseworker) always calls me right
back.”
• “…(Doctor) was in the hospital all the time
checking on me when I was sick.”
Annual Needs Assessment
• “Christian beliefs at Channel of Love—
Meds heal your body, they heal the spirit.”
• “Catholic Charities doing pretty good.”
• “Chattanooga Cares is really fast.”
• “Very satisfied with services.”
Annual Needs Assessment
“We need to be proactive in
our own lives and our own
health. You have to do it for
yourself.”
Annual Needs Assessment
Any questions
or
comments?
Thank you
for your time!