9/10/2015 Beth Reigart, MPH, OTR/L Clinical Performance Specialist RehabCare. Identify four standardized cognitive assessments to stage dementia Identify the stages of dementia Understand function based performance within the dementia disease process Understand the use of validation and space retrieval strategies for ADL re-training Develop an activity program for early, middle and late stage dementia patients. Utilize Tai Chi as a fall prevention strategy with dementia residents 1 9/10/2015 Cognition is one of the most important performance component areas greatly impacting one’s ability to function. By determining the cognitive level of your patient, you can increase function and safety and decrease behavior issues by compensating for the deficits and capitalizing on remaining abilities. Our role as a consultant is key … clinical interventions, caregiver education and environmental modification. Fiscal intermediaries (FIs) “may not install edits that result in the automatic denial of services based solely on a diagnosis of dementia. 2 9/10/2015 Standardized cognitive performance testing 96125 Standardized cognitive performance testing per hour of a qualified health care professional’s time, both face to face time administering tests to the patient and time interpreting these test results and preparing the report. Standardized musculoskeletal assessment 97750 ◦ Berg ◦ Tinetti ◦ Timed Get up and Go 3 9/10/2015 Cognition describes the acquisition, storage, transformation, and use of knowledge. Cognition might include a wide range of mental processes including: ◦ Attention ◦ Perception ◦ Memory ◦ Imagery ◦ Problem-solving, Reasoning & Decision-making Claudia Allen ◦ Allen Cognitive Level (ACL) used to assess cognition, disability and suggests a treatment approach. The assigned level indicated the cognitive function the patient has the potential to perform ◦ Allen Diagnostic Model (ADM) use of standardized craft activities to evaluate and treat patients with cognitive disabilities. ◦ Both are copyrighted and require the purchase of the training materials and supplies. 4 9/10/2015 Global Deterioration Scale (GDS) ◦ Developed to identify and rate the stages of primary degenerative dementia and age associated memory impairment. ◦ Copyrighted and free to use St Louis University Mental Status Exam (SLUMS) ◦ Screening tool to identify mild cognitive impairments in the elderly ◦ Copyrighted and free to use 5 9/10/2015 Montreal Cognitive Assessment (MoCA) ◦ Rapid screening instrument for mild cognitive assessment. Assesses attention, concentration, executive function, memory, language, visual perception, conceptual thinking, calculations and orientation. ◦ Copyrighted but no fee to use Determines the current state of dementia Provides guidance to the potential abilities Provides information regarding limitation Used to guide treatment Helpful to determine the optimal living enviroment Can be replicated to document progression of the disease 6 9/10/2015 American Alzheimer’s Association Global Deterioration Scale Claudia Allen Levels Clinical Dementia Rating Scale Stage 1: No Cognitive DeclineI n this stage the person functions normally, has no memory loss, and is mentally healthy. People with NO dementia would be considered to be in Stage 1.No Dementia Stage 2: Very Mild Cognitive Decline This stage is used to describe normal forgetfulness associated with aging; for example, forgetfulness of names and where familiar objects were left. Symptoms are not evident to loved ones or the physician.No Dementia Stage 3: Mild Cognitive Decline This stage includes increased forgetfulness, slight difficulty concentrating, decreased work performance. People may get lost more often or have difficulty finding the right words. At this stage, a person's loved ones will begin to notice a cognitive decline. Average duration: 7 years before onset of dementia Early Stage Stage 4: Moderate Cognitive Decline This stage includes difficulty concentrating, decreased memory of recent events, and difficulties managing finances or traveling alone to new locations. People have trouble completing complex tasks efficiently or accurately and may be in denial about their symptoms. They may also start withdrawing from family or friends, because socialization becomes difficult. At this stage a physician can detect clear cognitive problems during a patient interview and exam. Average duration: 2 years Middle Stage Stage 5: Moderately Severe Cognitive Decline People in this stage have major memory deficiencies and need some assistance to complete their daily activities (dressing, bathing, preparing meals). Memory loss is more prominent and may include major relevant aspects of current lives; for example, people may not remember their address or phone number and may not know the time or day or where they are. Average duration: 1.5 years Stage 6: Severe Cognitive Decline (Middle Dementia) People in Stage 6 require extensive assistance to carry out daily activities. They start to forget names of close family members and have little memory of recent events. Many people can remember only some details of earlier life. They also have difficulty counting down from 10 and finishing tasks. Incontinence (loss of bladder or bowel control) is a problem in this stage. Ability to speak declines. Personality changes, such as delusions (believing something to be true that is not), compulsions (repeating a simple behavior, such as cleaning), or anxiety and agitation may occur. Average duration: 2.5 years Late Stage Stage 7: Very Severe Cognitive Decline (Late Dementia) People in this stage have essentially no ability to speak or communicate. They require assistance with most activities (e.g., using the toilet, eating). They often lose psychomotor skills, for example, the ability to walk. Average duration: 2.5 years 7 9/10/2015 CDR-0 -- No dementia CDR-0.5 -- Mild Memory problems are slight but consistent; some difficulties with time and problem solving; daily life slightly impaired CDR-1 Mild Memory loss moderate, especially for recent events, and interferes with daily activities. Moderate difficulty with solving problems; cannot function independently at community affairs; difficulty with daily activities and hobbies, especially complex ones. CDR-2 -- Moderate More profound memory loss, only retaining highly learned material; disoriented with respect to time and place; lacking good judgment and difficulty handling problems; little or no independent function at home; can only do simple chores and has few interests. CDR-3 -- Severe Severe memory loss; not oriented with respect to time or place; no judgment or problem solving abilities; cannot participate in community affairs outside the home; requires help with all tasks of daily living and requires help with most personal care. Often incontinent. close Sample Assessment Tool Mild Loss Early Stage Moderate Loss Middle Stage Severe Loss Severe Stage 1 to 3 4 to 5 6 7 MMSE 25 to 30 15 to 24 5 to 15 < 10 Allen’s Cognitive Levels 5.0 to 6.0 4.0 to 4.8 3.0 to 3.8 0.2 to 2.8 7 6-7 3-5 1-2 Global Deterioration Scale FIM 8 9/10/2015 Moves beyond palliative approaches Defines current cognitive ability Guides the use of adaptations to optimize interaction with others and the environment Focus is on maintaining highest functional level of person and quality of life Relies on Successful Interdisciplinary Team ◦ Developed with significant rehabilitation input Functionally Independent Mild Cognitive Losses Moderate Cognitive Losses ◦ Early stages of dementia ◦ Precautionary measures to insure safety ◦ Middle stages of dementia ◦ Requires assistance Significant safety risk Benefits from task segmentation and increased visual contract Severe Cognitive Losses ◦ Severe/Advanced stages of dementia ◦ Low frustration tolerance Responds to calming techniques Sensory modulation 9 9/10/2015 ADL Retraining Therapeutic activities 97530 Self-care/home management training 97535 Community/work reintegration training 97537 Functional Mobility Neuromuscular reeducation 97112 Therapeutic activities 97530 What about Cognitive Re-Training 97532? Mild Cognitive Imp Mild Dementia Moderate Dementia Severe Dementia Disease progression has begun to impair memory and ability to perform complex tasks that require new information and skills. Cognitive impairments start to affect activity performance Mild verbal disturbances may be noted. May withdraw from normal routine. Neuropsychological testing indicates abnormalities but does not meet criteria for diagnosis of dementia. Duration may be up to 7 years. Cognitive function declines to the point where activities of daily living become impaired. Short-term memory loss more pronounced Long-term memory intact but with some loss Loss of judgment and problemsolving abilities Loss of concrete thinking Disorientation to time and place; still knows self and family Some word loss; talks around idea but can make self understood Can find own room but gets lost easily Remembers past life Some appreciation of lost skills Becomes angered when confronted with losses. Currently 65-95% of diagnoses occur here. Symptoms include: No short-term memory Almost no long-term declarative memory Difficulty understanding others and making self understood. Sometimes can be understood when making simple requests. Unaware of surroundings, time, season and year. Cannot find own room Urine incontinence may start initially in later part of this stage Sleep-cycle stages Personality and emotional changes; easily agitated/anxious or evidence of sadness Repetitive questions and behaviors Delusions or hallucinations Combative behavior if rushed or threatened No initiation of any activity w/o prompts Sexual behaviors may emerge Abilities for speech, walking, smiling and eating are lost. Specific characteristics include: Extremely limited verbalizations; sounds similar to grunting, moaning or words are nonsensical. No awareness of person, place or time Incontinent of urine and feces No awareness of purpose of objects Total dependence on others for care Loss of motor skills, trunk control Combative if frightened. Overstimulated Swallowing problems, which often necessitate texture alteration to puree and thickened liquids Weight loss in last stage of illness; not able to consume enough intake to sustain self May suffer from recurring pneumonia due to aspiration of food/liquid Sleeps more 10 9/10/2015 Functions Deficits Residual Abilities Orientation Disoriented for time; confused Oriented to place and person Memory Rapid forgetting of recent events; misplaces objects; gets lost easily. Excellent recognition memory; average span; can reminisce; preserved procedural/habit memory Attention Distractible; difficulty concentrating Associating Difficulty with complex associative reasoning. Follows 3-step commands Sequencing Trouble ordering components of complex activities and events. Can order components of similar familiar activities. Cognitive-Linguistic Diminished reading comprehension; spelling errors in writing, mild word recall problems; vocabulary shrinking; difficulty composing letters; forgets what he/she wants to say; reduced output. Grammar and syntax intact; can express needs; can answer choice yes/no questions; conversant; generates examples; describes objects, feelings; comprehends language; copies Perception Mild perceptual deficits; diminished sense of smell. Generally good for ADLs ADLs Difficulty with finances, housekeeping, shopping, travel, keeping track of medications, some difficulty with telephone Can bathe, feed and dress self; continent Reasoning Difficulty with complex reasoning, implied information Able to solve routine problems Simple associative reasoning of part to whole, function to object, color with objects, items in a class Functions Deficits Residual Abilities Orientation Disoriented for time and place Oriented to spouse; knows name and spouse’s name Memory Rapid forgetting; decreased knowledge of current events Good recognition memory; can reminisce with assistance; preserved procedural/habit memory Attention Highly distractible; drifts from topic and activity Can specify examples; can repeat Associating Unable to carry out complex associative reasoning Retains simple associations; can do simple categorization. Sequencing Difficulty sequencing even familiar activities Can do simple sequencing with assistance. Cognitive-Linguistic Poor comprehension of written information; word recall problems; dwindling verbal output; difficulty generating a series of meaningful ideas; poor written skills; tangential; misses the point. Grammar and syntax intact; reads at word level; expresses needs with assistance; follows 2stage commands; can copy. Usually understands gestures Perception Moderate visual perceptual deficits. Diminished sense of smell Usually sufficient for ADLs ADLs Unable to handle finances, housekeeping, shopping, transportation, medications and laundry; difficulty dressing; dangerous driving. Can bathe with assistance; generally continent; feeds self. Reasoning Problem-solving skills significantly diminished. Can solve simple problems with cueing. 11 9/10/2015 Functions Deficits Residual Abilities Orientation Disoriented for time, place, environment, and sometimes body parts. May know own name; usually responds to greeting. Memory Devastated episodic memory; degraded knowledge of concepts; agnosia (can’t label what he/she sees). Some preserved recognition memory; often preserved procedural/habit memory. Attention Very limited, highly distractible; diminished sensitivity to context; unable to track multi-party conversation Will attend to pleasant stimuli for variable periods of time. Associating Confusion about common associations; object with function, category membership; attributes of objects Often can match like objects; retains knowledge of simple associations Sequencing Difficulty sequencing even familiar activities May carry out some highly routine procedures without assistance/ Cognitive-Linguistic Utterances often nonsensical; unable to write meaningfully; greatly diminished vocabulary; concrete; diminished output; poor reading comprehension Form of language generally intact; limited ability to express needs. May answer yes/no questions; often can read at a word level. May retain some social aspects of communication. Perception Poor sense of smell. Moderate visual perceptual deficits Responds to stimuli if within visual field ADLs Cannot perform instrumental ADLs; incontinent of bladder, later bowel; unable to bathe and dress self. Often can transfer; sometimes feeds self. Reasoning Unable to solve most simple problems Little, if any, reasoning capabilities. Determine range of function ◦ Initial assessment of cognitive and physical function ◦ Identify intact residual abilities ◦ Reassess cognitive and physical function periodically and with condition changes Obtain information of prior routines, habits, occupation and interests and hobbies Identify basic skills & strategies to increase functional abilities Design the skilled intervention program 12 9/10/2015 Basic Facilitation Strategies ◦ ◦ ◦ ◦ ◦ ◦ Caregiver Presentation/Approaches Simplification of Procedure/Task Routine & Consistency Type & Frequency of Cues Mirroring Hand over Hand Assist Environmental Considerations Interactional Strategies Presentation/Approaches ◦ Be in visual proximity to the patient ◦ Approach slightly from side, not from behind ◦ Ensure that patient is aware of caregiver before proceeding ◦ Eye level ◦ Use of calm approach ◦ Identify skill to the patient before each caregiving session ◦ Give one-step directions ◦ Provide verbal prompts and delay by 5 seconds physical assistance after a verbal prompt 13 9/10/2015 Simplification ◦ Task segmentation and sequencing ◦ Communication Keep topics concrete Eliminate pronouns Use simple, close ended questions ◦ Choice – Forced choice between 2-3 items Routine & Consistent ◦ Integrate person’s prior routines into daily schedule ◦ Provide consistent, daily schedule Cues ◦ Written (often intact for single words through end stage) ◦ Pictures (camouflaged exits) ◦ Other visual displays ◦ Non-verbal ◦ Olfactory (popcorn to stimulate hunger) ◦ Auditory (rooster to walk-up; traffic noise) ◦ Tactile (important in severe stage) Mirroring Hand over Hand Assistance 14 9/10/2015 Use black and white line drawings of the object or representative symbols to facilitate comprehension. Examples: Outline of toilet for bathroom Use written single words to identify room, object, other Be selective in use of colors. ◦ Peach, pink, beige, ivory, light blue, green, and lavender are relaxing colors. ◦ White, yellow, orange and red are livelier, more stimulating colors. ◦ Alternating black and white color segments can appear as holes that need to be avoided. Mirrors can be confusing due to the perceptual discrimination deficits in the later stages of the disease. 15 9/10/2015 16 9/10/2015 17 9/10/2015 18 9/10/2015 Lighting ◦ Daily exposure to bright light ◦ Stimulates secretion of hormone melatonin, which is 10x in the body at night than in the day. Seating ◦ Importance of good seating for individuals who sit for extended periods of time, have poor circulation, or limited mobility in/out of chairs. Social Environment ◦ Move away from central services to decentralized services in cluster areas. Sensory Considerations: Color; Acoustics; Aromas ◦ Red stimulates brain 19 9/10/2015 “Bring out a Positive Emotion” ◦ The amygdala in the brain retains the person’s ability to sense emotion and mood; one of the major treatment goals is to maintain positive emotion. 3 “Rs” ◦ Reassure ◦ Redirect ◦ Re-approach (Rescuer technique) Validation Therapy Use of Procedural Memory ◦ Includes Reminiscence approaches Use of Prior Interests and Hobbies MANAGEMENT STRATEGIES FOR INDIVIDUAL WITH DEMENTIA Strategy Presentation/ Approach Simplify Explanation Maintain Calm Manner Eye Level Slightly to side Insure person knows you are there before doing anything else Allow adequate response time Break tasks, communication and choices into simpler steps, but do try to offer simple and safe choices Cues Prompts that are given by the caregiver, or are present in the environment ( example: Holding up a fork to cue time to eat; Can also be in form of pictures, sounds, aromas, touch) Mirroring Caregiver demonstrates the task (example: Caregiver goes through the motion of combing own hair ) Hand Over Hand Assist Caregiver places own hand gently over hand of resident to guide the resident Early Stage Dementia May need to be as close as 24 inches before person is aware of caregiver Middle Stage Dementia May need to be as close as 14 inches before person is aware of caregiver Late Stage Dementia May need to be as close as 8 inches before person is aware of caregiver Tasks: Can perform 6 to 8 steps of familiar task Tasks: Can perform 2 to 4 steps of familiar tasks: Communication: Able to understand and speak routine language; Some word finding difficulties; Choices: Allow person to make choices May need simple cues to start and complete a task Communication: Break directions into simple steps; may have difficulty with the written word Choices: Simplify to 2 safe choices May need simple cues to start and complete a task Tasks: May be able to perform 1 or 2 steps of familiar task Communication: Speaks 1 to 2 words; May be able to give yes or no responses to questions Choices: Provide one item at a time Mirroring may be helpful for tasks that are new Mirroring to start and finish tasks Mirroring to start and finish tasks May be needed occasionally Helpful to start and possibly complete a task. Example , persons in advanced stage dementia may be able to still feed themselves if provided Hand over Hand Assist Routines should include frequent rest periods Sensory cues may be helpful (music, aromas) *Provide a daily routine that has enough Routines help maintain Routines help maintain activity and structure, but is not under or over independence independence stimulating Following prior routines reduces Following prior routines reduces *Consistent staff working with same residents anxiety and enhances positive anxiety and enhances positive whenever possible emotions emotions *Learn about and follow resident’s prior routines whenever possible KEY: Reduce demands on episodic and working memory; increase reliance on procedural memory; use validation techniques; focus on prior interests & hobbies to promote success and personal comfort. Routine & Consistency 20 9/10/2015 ADLS BY STAGE OF DEMENTIA Stage GDS Score MMSE Attention Span Mild Dementia 4 to 5 (4.6 – 5.5) 15 to 24 About 15 minutes Ambulation; Mobility; Transfers May be able to learn to use assistive device if given simple, repetitive instructions; May get lost in unfamiliar places; Place cues in environments May enjoy gliders/rockers Bathing General tips for approach; simplify; routine. May need set-up for bathing but will be able to complete the tasks with cues (modified independence) Maintain dignity (Consider personal routines) Grooming and General tips for approach; simplify; routine. May need set-up for grooming but will be Dressing (Consider personal routines) able to complete the tasks with cues (modified independence) Toileting General tips for approach; simplify; routine. Provide cues/reminders to use toilett Can complete familiar task independently with cues Follow general tips for cuing. Involve in meal planning and simple preparation (Consider personal routines) Eating (Consider personal preferences) Moderate Dementia Severe Dementia 5 to 6 (5.6 to 6.7) 5 to 15 About 2-3 minutes 6 to 7 (6.8 to 7.0) < 10 Fleeting; a few seconds Benefits from increased “figure-ground” contrast to see important features in the environment; Provide safe & interesting wandering paths May fall over items in walking path Benefits from using gliders/walkers General tips for approach; simplify; routine Will need set-up; allow additional time to perform simple steps at independent level if possible. Warm room; reduce noise and echoes; home-like décor May benefit from music, relaxing aromas May need to be covered If anxious, wash hair at separate time Start with washing feet, then legs, etc. General tips for approach; simplify; routine. Allow safe choices of clothing & make-up Will need set-up Use cueing and mirroring to start and start finish tasks Some may pace Create a safe and interesting walking path Many are non-ambulatory Provide safe and comfortable positioning May be able to help with transfers if given cues or mirroring General tips for approach; simplify; routine Allow additional time to perform simple steps at independent level if possible Warm room; reduce noise and echoes; homelike décor May benefit from music, relaxing aromas May need to be covered If anxious, wash hair at separate time Start with washing feet, then legs, etc. May need something to “hold” General tips for approach; simplify; routine. Use mirroring and hand-over-hand assist to start and finish tasks Provide a choice between two items of clothing when possible Easily frustrated unless task is very simple May require complete assist General tips for approach; simplify; routine. Easily startled Easily frustrated unless task is very simple May require complete assist Follow general tips Mirroring and hand-over-hand assist. Contract between plate/food/table Simplify to one item at a time Frequent nourishment and liquids Provide finger foods General tips for approach; simplify; routine. Be sensitive to privacy needs Cues to start and finish tasks Allow to perform simplified steps Follow general tips Cueing; mirroring to start & finish Contrast between plate/food/table Simplify choices; reduce and fork May need finger foods Out-of-season clothes should be stored out of sight so they do not pose a selection problem. If difficulty selecting the appropriate clothes is demonstrated, the caregiver can lay the clothes out on the bed and eliminate this difficulty. It is important to establish a routine consistent with that individual’s procedure in the past. ◦ Example: If the person always showered and dressed before breakfast, the same routine should be implemented. In addition, the same order of putting on the clothes should be trained as individuals with Alzheimer’s disease benefit from repeat practice in lieu of variable practice. 21 9/10/2015 Incontinence in Alzheimer’s disease is mostly due to one or more of the following factors: ◦ Inability to locate the bathroom ◦ Recall of the intent (to go to the bathroom) after finding it ◦ Inattention to body signals regarding a full bladder or “impending” bowel movement ◦ Reduced concerns about socially appropriate behaviors with frequent episodes of voiding or defecating outside An effective intervention strategy is prompted voiding with a defined, predictable routine that is usually conducted every 2 hours. Use the same step-by-step approach every time Avoid questions, instead provide simple, concise directions Simulate home ADL routine as much as possible Gather all necessary items in advance to avoid having to leave the individual later Always inform individual what is going to occur in short, softly spoken phrases Always draw curtains or close door Model aspects of the task Monitor water and room temperatures Give complete baths only when necessary Separate out aspects of the task Respect reasons for resistance 22 9/10/2015 Color code tape (path) to the individual’s room; color code closet Put picture of toilet on bathroom door Routinely have designated staff to help the individual search for room Allow him/her time to locate his/her room Have his/her room with personal pictures/names Move his/her clothes to eye level shelves Re-organize his/her most used items to lower shelf Intervention to unlock the communication barrier to help to elicit desired outcomes. The therapist how to tap into a resident’s thought processes to achieve a desired response. Using these techniques enables the resident to be actively involved in their exercise programs, improve their gait pattern, and participate in purposeful ADLs. 23 9/10/2015 Use of standardized assessment to stage the disease Use of activity checklists, social history and patient interests, values and beliefs Individualize care plans Emphasis on consistency with strong caregiver and family training. Work Routines Values Beliefs Indoor Leisure Outdoor Leisure PTSD 24 9/10/2015 Purpose of the Program: To provide functional oriented activities which promote the cognitive and physicals skills to promote their optimal quality of life. The program is based on coding activities based on the functional performance components. Benefits of the Program: Create balance in the variety of activities provided by the facility Increase understanding of the importance of activities with all residents Encourage teamwork Provide additional method to maintain gains achieved in therapy by complementing the restorative program Promote creativity and imagination of residents, families and staff The Rainbow Coding System: Purple: activities which promote their cognitive skills Green: activities which allow use of their eyes and hands Yellow: activities which promote balance, strength and coordination Orange: activities which promote their sensory awareness Successful Program Development: Use of small group of residents Identified color codes for current activities Identify method to assess patient’s activity needs Identify ways to identify resident’s appropriate color Development of a committee with representatives from all disciplines Remember that this is a journey … not a destination Sunday Monday Tuesday Wednesday Thursday Friday Saturday 10am Family Wellness Walk 9am Balance Class 9am Flexibility Class 9am Balance Class 9am Flexibility Class 9am Balance Class 10am Family Wellness Walk 1:00 Sing Along 10am Aromatherapy 10am Cooking 10am Hand Massages 10am Cooking 10am Aromatherapy 1:00pm Current Events 1pm Family Wii‐habilitation 2pm Chair Aerobics 2pm Strengthening Class 1pm Wii‐habilitation 2pm Chair Aerobics 2pm Strengthening Class 4pm Family Wii‐habilitation 4pm Meditation 3pm Choir Practice 3pm Yoga 4pm Meditation 4pm Poker Balance Flexibility Endurance Strength Mental Coordination Sensory 25 9/10/2015 • • Identify sensory activities which may be used to decrease or prevent distress. Allows opportunity to have readily available resources for self monitoring behavior Activity tool box for male patients; nuts and bolts, sandpaper and block of wood, face mask, lock and key, flashlight, small wrench, tape, keys on ring, remote control, fishing supplies (without hooks) Activity box for female patients: Playing cards, makeup, compact mirror, crafts, brush, toothbrush, soft sensory items for fine motor manipulation, art supplies, homemaking supplies (such as, wisk, spatula, measuring spoons and cups, cookie cutters, wooden spoons, etc) Activity apron that have different clothing closures on them, such as zippers, buttons, ties, etc. Consider different textured fabric (i.e. velvet, feathers, fun fur, felt, brick-brack, fringe, lace, Velcro) Books on tape Sound machine Stuffed animals for patients to keep Garden gloves Playing cards PVC piping for men to assemble to screw on and off (could use regular pipes, but too heavy) Peg board Sensory supplies (the rubber balls with rubber spikes on them, stress balls, yarns balls, soft cotton balls, aromatherapy scented items, blanket, brush, lotion) Certain arts and crafts that can be done with some supervision, such as paints, beading on string (large wooden ones), collages, painting plastic stain glass forms, etc Knitting or crochet materials for the ladies who used to knit or crochet (large crochet needles recommended) Theraputty, animal squeezers, stress balls Puzzles large type, Large print books or magazines Sunglasses, Mirror, Electronic hand games Neck pillow, Coloring books and crayons Blocks, balls 26 9/10/2015 Tai Chi for Balance Link: http://www.instituteforrehabilitativeqigon gandtaichi.org/tai-chi-for-balance-andfalls-prevention/ Password: 97HTWOL6 Dynamic Warm Up Link: http://www.ascentwellness.com/IA5928/ Password: 5937KW 27 Saint Louis University Mental Status (SLUMS) Examination Name Is patient alert? Age Level of education 1 1. What day of the week is it? 1 2. What is the year? 1 3. What state are we in? 4. Please remember these five objects. I will ask you what they are later. Apple Pen Tie House Car 1 2 5. You have $100 and you go to the store and buy a dozen apples for $3 and a tricycle for $20. How much did you spend? How much do you have left? 0 6. Please name as many animals as you can in one minute. 0-5 animals 1 5-10 animals 2 10-15 animals 5 7. What were the 5 objects I asked you to remember? 1 point for each one correct. 0 8. I am going to give you a series of numbers and I would like you to give them to me backwards. For example, if I say 42, you would say 24. 87 1 649 1 8537 3 15+ animals 9. This is a clock face. Please put in the hour markers and the time at ten minutes to eleven o’clock. 2 Hour markers okay 2 Time correct 1 10. Please place an X in the triangle. 1 Which of the above figures is largest? 11. I am going to tell you a story. Please listen carefully because afterwards, I’m going to ask you some questions about it. Jill was a very successful stockbroker. She made a lot of money on the stock market. She then met Jack, a devastatingly handsome man. She married him and had three children. They lived in Chicago. She then stopped work and stayed at home to bring up her children. When they were teenagers, she went back to work. She and Jack lived happily ever after. 2 2 What was the female’s name? When did she go back to work? 1 2 What work did she do? 2 What state did she live in? Scoring High School Education 27-30 ○ ○ ○ ○ ○ 20-27 ○ ○ ○ ○ ○ 1-19 ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ Reference: [email protected] Normal MCI Dementia Less than High School Education 20-30 ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ 14-19 ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ 1-14 ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ Aging Successfully, Vol. XII, No. 1 1 Step-by-Step Design for Resident Individualized Plan of Care The following two page tool is meant to assist in documenting resident behaviors in order to appropriately stage him/her using the Global Deterioration Scale to determine appropriate interventions. Instructions: 1. On page, check each clinical and behavioral characteristic present/observed. 2. Following each characteristic is a number in parentheses. Add the number of responses, which are followed by the #4 and record in the appropriate box. Repeat this process for the #5, #6 and #7. 3. Total the number of responses (number of characteristics checked) and record. 4. Multiply the number of four by four and record. 5. Multiply the number of five responses by five and record. 6. Multiply the number of six responses by six and record. 7. Multiply the number of seven responses by seven and record. 8. Add the totals of the #4s, #5s, #6s and #7s and record. 9. To obtain the estimated GDS stage, divide the total score (sum of #4s, #5s, #6s and #7s) by the total number of responses and record. 10. Page two is a quick reference guide of cognitive residual abilities for each of the general stages of dementia. 11. The skilled therapeutic intervention section illustrates the most appropriate treatment strategies based on residual abilities to assist in developing a functional maintenance program to focus on enhancing and retaining their abilities. Refer to the Dementia Clinical Training Took Kit for specific descriptions and examples. Step-by-Step Design for Resident Individualized Plan of Care Patient Name: ______________________________________ Diagnosis:__________________________________________ Precautions:________________________________________ Room No: ______________ Physician:_______________ MCA MCB Other Check off those clinical and behavioral characteristics that are present. Oriented to time & place (4) Memory deficits in personal history (4) Recognition of familiar persons & faces (4) Decreased ability to travel & handle finances (4) Personality & emotional changes (6) Can no longer live w/o assistance (5) Onset of peripheral vision loss (6) Knowledge of facts regarding self & others (5) Sense of reality based on misperception (5) Some disorientation to time &/or place (5) I/S with toileting & eating (5) Difficulty choosing proper clothes to wear (5) No noticeable changes in posture or gait (5) Largely unaware of recent events/life experiences (6) # of 4’s x4= # of 5’s x5= Total # of Responses Sum of 4’s; 5’s; 6’s; 7’s Knowledge of past life; can be sketchy (6) Unaware of surroundings, year, season (6) Require assist w/ADLs; becomes incontinent (6) Can distinguish familiar/unfamiliar persons (6) Intact ability to travel to familiar locations (4) Denial is dominant defense mechanism (4) All verbal abilities are loss (7) No recognition loved ones/familiar persons (7) Wandering pattern (6; 7) Progress to loss of ambulation (7) Resists caregiving w/unfamiliar persons (6; 7) ADLs are total assist (7) Will accept, but can't initiate interaction (7) Incontinent of urine (7) # of 6’s # of 7’s Sum of 4’s; 5’s; 6’s; 7’s / Total # of Responses x6= x7= Estimated GDS Stage = Step-by-Step Design for Resident Individualized Plan of Care (cont.) Patient Name: ______________________________________ Diagnosis:__________________________________________ Precautions:________________________________________ Residual Abilities Area of Cognition Orientation Memory Attention Association Sequencing Mild ( GDS 4) Oriented to person and place Excellent recent memory; average attention; preserved procedural memory Follows 3-step commands Simple reasoning of part to whole, function to object, color w/objects, items in class Can order components of simple familiar activities Moderate (GDS 5) Oriented to person; knows name & family names Can reminisce with assistance; preserved procedural memory Attention to task is good; can specify examples; can repeat Can do simple categorization and associations Severe (GDS 6-7) Oriented to self; responds to greetings till stage 7 Preserved procedural memory; some immediate memory until stage Will attend to pleasant stimuli Can often match like objects Grammar & syntax intact; can describe basic needs, feelings & wants; conversant; generates examples, copies and language Generally able to complete ADLs Grammar and syntax intact; reads at single word level; expresses needs, wants, feelings with assistance May carry out some highly routine procedures with assistance Limited ability to express needs; may answer yes/no questions; may retain some social graces Usually sufficient for ADLs Responds to stimuli in the visual field ADLs Can bathe, feed, dress self; continent Can bathe with assistance; feeds self Often can transfer, generally unsafe; sometimes feeds self Reasoning Able to solve everyday routine problems Can solve very simple everyday problems w/assist Little, if any, reasoning abilities Communication & Expression Perception Can to simple 2-3 step sequencing with assistance Room No: ______________ Physician:_______________ MCA MCB Other Ex Severe (GDS 7) Disoriented x 4 Preserved intact procedural memory Respond to music and/or gentle, tactile stimulation to face, shoulders No associative language skills; rarely initiate activity Unable Eyes generally closed; will open eyes to music and/or tactile stimulation Late to end stage, curled in fetal position, toileted, turned to prevent skin-breakdown, and tube fed Unable Nonverbal communication consisting of smiling, crying, or singing; may initiate physical movement of hands and feet Skilled Therapeutic Intervention Direct Restorative Tx Indirect Restorative Tx (FMP) Cog Retraining-Internal Cog Retraining-External Models of Compensation Environmental Modification ADLs Procedural Memory Shift stimulus input to visual Visual Memory Cue Cards Caregivers-Program Facilitators Hydration & Nutrition Management Mild ( GDS 4) X X X X X Moderate (GDS 5) X X X X X X X X X X Severe (GDS 6-7) Ex Severe (GDS 7) X X X X X X X X X X X X X Instructions To the Administration of the Mini Page 1 of 1 FAST SCALE ADMINISTRATION The FAST scale is a functional scale designed to evaluate patients at the more moderate-severe stages of dementia when the MMSE no longer can reflect changes in a meaningful clinical way. In the early stages the patient may be able to participate in the FAST administration but usually the information should be collected from a caregiver or, in the case of nursing home care, the nursing home staff. The FAST scale has seven stages: 1 which is normal adult 2 which is normal older adult 3 which is early dementia 4 which is mild dementia 5 which is moderate dementia 6 which is moderately severe dementia 7 which is severe dementia FAST Functional Milestones. FAST stage 1 is the normal adult with no cognitive decline. FAST stage 2 is the normal older adult with very mild memory loss. Stage 3 is early dementia. Here memory loss becomes apparent to co-workers and family. The patient may be unable to remember names of persons just introduced to them. Stage 4 is mild dementia. Persons in this stage may have difficulty with finances, counting money, and travel to new locations. Memory loss increases. The person's knowledge of current and recent events decreases. Stage 5 is moderate dementia. In this stage, the person needs more help to survive. They do not need assistance with toileting or eating, but do need help choosing clothing. The person displays increased difficulty with serial subtraction. The patient may not know the date and year or where they live. However, they do know who they are and the names of their family and friends. Stage 6 is moderately severe dementia. The person may begin to forget the names of family members or friends. The person requires more assistance with activities of daily living, such as bathing, toileting, and eating. Patients in this stage may develop delusions, hallucinations, or obsessions. Patients show increased anxiety and may become violent. The person in this stage begins to sleep during the day and stay awake at night. Stage 6 is severe dementia. In this stage, all speech is lost. Patients lose urinary and bowel control. They lose the ability to walk. Most become bedridden and die of sepsis or pneumonia. http://geriatrics.uthscsa.edu/educational/med_students/fastscale_admin.htm 2/13/2008 Functional Assessment Staging of Alzheimer’s Disease. (FAST)© STAGE 1. SKILL LEVEL No difficulties, either subjectively or objectively. 2. Complains of forgetting location of objects. Subjective word finding difficulties. 3. Decreased job function evident to co-workers; difficulty in traveling to new locations. Decreased organizational capacity.* 4. Decreased ability to perform complex tasks (e.g., planning dinner for guests), handling personal finances (forgetting to pay bills), difficulty marketing, etc. 5. Requires assistance in choosing proper clothing to wear for day, season, occasion. 6a. Difficulty putting clothing on properly without assistance. b. Unable to bathe properly; e.g., difficulty adjusting bath water temperature) occasionally or more frequently over the past weeks.* c. Inability to handle mechanics of toileting (e.g., forgets to flush the toilet, does not wipe properly or properly dispose of toilet tissue) occasionally or more frequently over the past weeks.* d. Urinary incontinence, occasional or more frequent. e. Fecal Incontinence, (occasional or more frequently over the past week). 7a. Ability to speak limited to approximately a half dozen different words or fewer, in the course of an average day or in the course of an intensive interview. b. Speech ability limited to the use of a single intelligible word in an average day or in the course of an interview (the person may repeat the word over and over. c. Ambulatory ability lost (cannot walk without personal assistance). d. Ability to sit up without assistance lost (e.g., the individual will fall over if there are no lateral rests [arms] on the chair). e. Loss of the ability to smile. STAGE••________ *Scored primarily on the basis of information obtained from a knowledgeable informant and/or caregiver. ©1984 by Barry Reisberg, M.D. All rights reserved.Reisberg, B. Functional Assessment Staging (FAST). Psychopharmacology Bulletin. 1988:24: 653-659. Sensory Diet Exploration: Activity Checklist Name: ______________________ The following is a checklist of things people may use or do in order to help decrease &/or to prevent distress. Please take a moment to check off those things that seem to be helpful for you! Each of these activities employs all or most of the sensory areas. However, they are categorized to help you identify some of the specific sensorimotor qualities you may want to focus on. Movement o Riding a bicycle o Running or jogging o Walking/hiking o Aerobics o Dancing o Stretching or isometrics o Lifting weights o Yoga or Tai Chi o Swimming o Jumping on a trampoline o Rocking o Shaking o Golf o Re-arranging furniture o Gardening o Yard work o Shopping o Taking a shower o Cleaning o Driving o Chopping wood o Washing the car Others: _______________________________________________________________ Different Types of Touch & Temperature o Blanket wrap/weighted blanket o Getting a massage o Holding/chewing ice o Soaking in a hot bath o Using arts/crafts supplies o Warming up to a fire/wood stove o Pottery/clay work o Petting a dog, cat, or other pet o Holding a pet o Planting or weeding o Warm/cold cloth to head/face o Hot/cold shower o Hand washing o Washing the dishes o Using a stress ball o Fidgeting with something o Twirling your own hair o Going barefoot o Getting a manicure/pedicure o Washing or styling your hair o Bean bag tapping/brushing o Cooking or baking o The feel of certain fabrics o Being hugged or held o Knitting/crocheting/sewing o Being in the shade/sunshine o Using powders/lotions Others: _____________________________________________________ Adapted from Wilbarger, 1995 and Williams & Shellenberger 1996; Champagne, 2004 Auditory/Listening o Enjoying the quiet o The sound of a water fountain o The sound of a fan o People talking o White noise o Music box o Wind chimes o Singing o Humming o Whistling o Plays/Theater o Live concerts o Radio shows o Ocean sounds o Rain o Birds chirping o Ticking of a clock o A cat purring o Using the telephone o Use of a ipod o Listening to music o Relaxation or meditation CDs Others: _______________________________________________________________ Vision/Looking Looking at: o Photos o The sunset or sunrise o Snow falling o Rain showers o Fish in a tank o Autumn foliage o Art work o A bubble lamp o A mobile o Waterfalls o Cloud formations o Stars in the sky o Ocean waves o Watching sports o Movies o Animal watching o Window shopping o Photography o Reading o Looking through different colored sunglasses o A flower gardens o Water or fish swimming o Looking through picture books Others: _______________________________________________________________ ❀Olfactory/Smelling o Scented Candles o Essential oils o Cologne/perfume o Baking/cooking o Coffee o Aftershave o Freshly cut grass o Flowers o Tangerines/citrus fruits o Herbs/Spices o Chopped wood o Smell of your pet o Linens o Scented lotions o Incense o Herbal tea o Mint leaves Others: _________________________________________________________________ 3 Adapted from Wilbarger, 1995 and Williams & Shellenberger 1996; Champagne, 2004 Gustatory/Tasting/Chewing o Chewing gum o Crunchy foods o Sour foods o Chewing ice o Sucking a thick milkshake o Chewing on your straw o Yawning o Deep breathing o Biting into a lemon o Eating a lollipop o Drinking coffee/cocoa o Drinking herbal tea o Drinking something carbonated o Listerine strips o Mints o Hot balls o Chewing carrot sticks o Spicy foods o Eating a popsicle o Blowing bubbles o Chocolate o Strong mints Others: _______________________________________________________________ Additional Questions: What kind of music is calming to you? ________________________________________ What kind of music is alerting to you? ________________________________________ Do you prefer bright or dim lighting when feeling distressed? ______________________ Are there other things that are not listed that you think might help? If so, what? ______________________________________________________________________ After reviewing all of the activities you have checked off and listed, what are the top five things that are the most helpful when you are feeling distressed? 1. _________________________________________________________ 2. _________________________________________________________ 3. _________________________________________________________ 4. _________________________________________________________ 5. _________________________________________________________ Adapted from Wilbarger, 1995 and Williams & Shellenberger 1996; Champagne, 2004 Stages of Dementia Mild Cognitive Imp Mild Dementia Moderate Dementia Severe Dementia Abilities for speech, walking, smiling Disease progression has Cognitive function declines to Currently 65-95% of diagnoses occur and eating are lost. Specific here. Symptoms include: the point where activities of begun to impair memory characteristics include: daily living become impaired. and ability to perform • No short-term memory complex tasks that require • Extremely limited • Short-term memory • Almost no long-term declarative new information and skills. verbalizations; sounds similar loss more pronounced memory to grunting, moaning or words • Cognitive • Long-term memory • Difficulty understanding others and are nonsensical. impairments start to intact but with some making self understood. affect activity • No awareness of person, loss Sometimes can be understood performance place or time when making simple requests. • Loss of judgment and • Mild verbal • Incontinent of urine and feces problem-solving • Unaware of surroundings, time, disturbances may abilities season and year. • No awareness of purpose of be noted. objects • Loss of concrete • Cannot find own room • May withdraw from thinking • Total dependence on others • Urine incontinence may start normal routine. for care • Disorientation to time initially in later part of this stage • Neuropsychological and place; still knows • Loss of motor skills, trunk • Sleep-cycle stages testing indicates self and family control • Personality and emotional abnormalities but • Some word loss; talks • Combative if frightened. Over changes; easily agitated/anxious does not meet around idea but can stimulated or evidence of sadness criteria for diagnosis make self understood • Swallowing problems, which • Repetitive questions and of dementia. • Can find own room but often necessitate texture behaviors • Duration may be up gets lost easily alteration to puree and • Delusions or hallucinations to 7 years. thickened liquids • Remembers past life • Combative behavior if rushed or • Weight loss in last stage of • Some appreciation of threatened illness; not able to consume lost skills • No initiation of any activity w/o enough intake to sustain self • Becomes angered prompts when confronted with • May suffer from recurring • Sexual behaviors may emerge pneumonia due to aspiration of losses. food/liquid • Sleeps more Suggested Strategies Early Stage Cognitive Impairment Name: Therapist Signature: PRESENTATION/APPROACH _____ Gain trust – provide sensitivity/understanding _____ Eliminate clutter/distractions _____ Begin with using person’s name. _____ Place objects within 24-48 inches SIMPLIFY _____ Set out safe supplies so they are visible and within arm’s reach at appropriate time(s) _____ Maintain what is familiar within safe limits _____ Keep supplies in same place _____ Use familiar equipment/supplies _____ Provide reminders to start activities/ADL’s _____ Provide close supervision for safety _____ Provide _________ supervision for quality _____ Distant supervision for problem solving _____ Provide _______assistance for problem solving unfamiliar/complex situations _____ Provide _______assistance for problem solving (all situations) _____ Establish and maintain daily routine _____ Incorporate preferences into routine: _____ ____________________________________ _____ Avoid change if possible _____ Maintain what is familiar to resident COMMUNICATION _____ Provide invitation and reminders to manage schedule/appointments _____ Provide concrete explanations and communication _____ Allow choices _____ Avoid complex written directions _____ Use labels for ________________________ _____ Use lists for __________________________ _____ Use memory book ____________________ _____ Use calendar for ______________________ _____ Verify information provided by resident Date: _____ Assist as needed with word finding _____ Simplify choices and assist as needed CUES _____ Needs occasional verbal cues if unfamiliar or complex task _____ Set out supplies at appropriate time of day for activity performance _____ Personalize walker/equipment to prompt use _____ Place call light in obvious location to remind to use ROUTINE & CONSISTENCY _____ Follow prior known routine & preferences _____ Honor food likes/dislikes AMBULATION _____ Provide reminders to use_______________ while walking _____ Maintain safe environment for walking _____ Provide _______supervision for safety _____ Provide cues to ______________________ while walking _____ Clutter free walking area/path with places to sit along path _____ Proper shoes and orthotics as needed _____ Visual aids in place _____ Provide appropriate lighting _____ Decrease glare _____ _____________________provided to assist resident in locating his/her room or familiar location BATHING _____ Provide repetitive situation – routine and consistency _____ Provide _________________supervision for Safety _____ Provide __________________assistance for problem solving Continued on back of sheet Name: _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ Suggested Strategies Early Stage Cognitive Impairment BATHING (cont) Promote independence Provide safe/familiar supplies within sight at preferred time __________________for shower/bath Provide ___________________assistance for set-up and clean-up Check to insure thoroughness for hygiene and dignity Use ____________________technique to gain agreement to bathing if resident does not believe they are in need of shower/bath Provide verbal cues/suggestions to change action/insure proper hygiene and/or safety GROOMING & DRESSING Provide ___________________supervision for safety and problem solving Provide verbal cues/suggestions for safety, problem solving or to change actions Provide repetition, routine and consistency Provide set-up of safe, familiar supplies within line of sight at preferred times: ____________________________________ Provide _______________assistance for set-up and clean up Use ________________________________ ___________________________________ technique, to gain agreement, if they do not believe they need to change clothing Maintain supervision for safety Use familiar grooming products when possible TOILETING Provide set-up of safe, familiar supplies within sight Be sure toilet paper is in on roll in holder Provide _________________supervision _____ Provide longer time to complete activity Date: _____ Provide reminders to toilet (as needed) _____ Discreetly check results for hygiene and to maintain dignity _____ Check for soiled laundry and/or odors _____ Provide assistance for problem solving in “new or unfamiliar” situations EATING & DRINKING _____ Eats independently _____ Provide routine and consistency in dining _____ Provide _______ cues to eat/drink _____ Provide _________________assist for problem solving_____________________ _____ Provide ________________cues/assistance for use of adaptive equipment _____ Allow to sit in same place during each meal _____ Follow:______________________________ ____________________________________ routine/preference as much as possible _____ Reduce unnecessary noise/distractions ADDITIONAL APPROACHES _____ ____________________________________ ____________________________________ ____________________________________ _____ ____________________________________ ____________________________________ ____________________________________ _____ ____________________________________ ____________________________________ ____________________________________ _____ ____________________________________ ____________________________________ ____________________________________ _____ ____________________________________ ____________________________________ _____ ____________________________________ ____________________________________ _____ ____________________________________ Name: Suggested Strategies Early Stage Cognitive Impairment Date: Suggested Strategies Middle Stage Cognitive Impairment Name: Therapist Signature: PRESENTATION/APPROACH _____ Eliminate external distractions (noise, clutter etc.) _____ Eliminate internal distractions (ex. toileting prior to activity) _____ Make eye contact. _____ Begin with using person’s name. _____ Place objects within 14-18 in. _____ Use short sentences and phrases. _____ Allow adequate processing and response time SIMPLIFY _____ Break familiar activities into single steps _____ Provide cues, sequencing through each step _____ Use familiar objects _____ Provide safe objects _____ 1:1 intervention during ADLs _____ Anticipate and minimize safety problems _____ Don’t rely on resident recalling or remembering information _____ Move slowly. _____ Watch for non-verbal response. COMMUNICATION _____ Wait 10–20 seconds for response _____ Speak slowly, couple with gestures (visual/tactile) _____ Anticipate needs _____ Use nouns _____ Ask close ended questions. _____ Provide only 1 step directions _____ Provide 2 choices _____ Make choices for resident based on information known about the resident _____ Avoid written cues _____ Look for non verbal communication CUES _____ Needs cues to process/follow 1 step directions _____ Cue through steps of familiar activity Date: _____ Cue through steps to engage in daily routine _____ Cues needed to process and follow 1 step Directions _____ Primarily verbal cues with occasional visual and tactile cues (gestures) _____ Frequent verbal cues with visual and tactile cues _____ Environmental cues (ie shave in bathroom) MIRRORING _____ May mirror behavior. Demonstrate appropriate behavior for situation/activity Hand Over Hand _____ Intermittent to initiate and complete task ROUTINE & CONSISTENCY _____ Incorporate personal routine & preferences _____ Honor food likes/dislikes AMBULATION _____ 1 step directions with cues for use of assistive device _____ 1 step directions for steps of transfer sequence _____ Provide figure/ground color contrast in the environment _____ Provide meaningful activity to reduce excess walking and or attempts at rising _____ Clutter free walking area/path with places to sit along path _____ Proper shoes and orthotics as needed _____ Visual aids in place _____ Provide appropriate lighting _____ Decrease glare BATHING _____ Set up safe environment and supplies _____ Provide 1 step directions and appropriate cues (verbal and visual/tactile as needed) to sequence through each step _____ Promote independence Continued on back of sheet Name: Suggested Strategies Middle Stage Cognitive Impairment BATHING (cont) _____ Insure safety – grab bars, physical assist/close supervision as needed, adjust water temperature _____ Keep resident warm and covered _____ Have shower area warm, reduce noise Provide home like atmosphere _____ Music/aromas to promote relaxation _____ If anxious, offer sponge bath vs shower _____ Simply explain each step of activity _____ Move slowly and gently _____ Use familiar products when available _____ Gain trust and agreement by bathing feet first and then moving upward _____ Offer hair wash at beauty shop if anxious GROOMING & DRESSING _____ Set up supplies in safe environment _____ Provide 1 step directions and appropriate cues (verbal and visual/tactile as needed) to sequence through each step _____ Encourage independence _____ Place objects in left to right sequence _____ Place items in hand to initiate _____ Maintain privacy and dignity – keep covered _____ Maintain supervision for safety _____ Provide safe choices of clothing, make up etc. _____ Provide 2 choices (clothing items etc.) _____ Use familiar grooming products when possible TOILETING _____ Set up all supplies _____ Provide 1 step cues to sequence through completion of all steps of activity _____ Assist as needed to insure good hygiene _____ Toilet transfer with _____ assist, verbal, visual and tactile cues as needed _____ Do not leave unattended on toilet _____ Follow established toileting schedule _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ Date: EATING & DRINKING Provide set up – simplify, removing items that are not needed Eliminate internal & external distractions Provide _______ cues to eat/drink Provide cue to initiate Check consumption frequently during meal and cue to continue as needed Offer food 1 item at a time on separate bowls/plates Provide cues to alternate solids and liquids Reduce unnecessary table clutter Eliminate what is not needed Reduce unnecessary noise/distractions Provide color contract between food and plate: ____________________________ Provide color contrast between plate and table: ____________________________ Pre-cut food and remove knife Closely supervise hot beverages ADDITIONAL APPROACHES ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ ____________________________________ Name: Suggested Strategies Middle Stage Cognitive Impairment Date: Name: Suggested Strategies Late – End Stage Cognitive Impairment Therapist Signature: PRESENTATION/APPROACH _____ Eliminate all distractions. _____ Make eye contact. _____ Begin with using person’s name. _____ Be close to person (as close as 8-14 in). _____ Use single words / short phrases _____ Allow time to respond. _____ Present objects at eye level. SIMPLIFY _____ Single steps with appropriate level cues _____ Gross motor aspects of activities _____ Place dining objects directly in hand and provide 1 step cues _____ Use familiar objects _____ Move slowly. _____ Watch for non-verbal response. COMMUNICATION _____ Wait 20-30 seconds for response _____ Speak slowly, couple with gestures (visual/tactile) _____ Anticipate needs _____ Interpret facial expressions, vocalizations _____ Caregiver must understand non-verbal communication _____ May respond with yes/no or phrases _____ Provide 2 choices _____ Avoid non-specific words, use nouns _____ Make choices for resident based on information known about the resident _____ Monitor responses CUES _____ Sensory cues – music and aromas (meaningful from long term memory) _____ Constant verbal, visual and tactile cues _____ Wait for subtle response _____ Cues needed to process and follow 1 step directions _____ Environmental Cues (ie shave in bathroom) Date: MIRRORING _____ May mirror behavior. Demonstrate appropriate behavior for situation/activity Hand Over Hand _____ Provide to gain attention to activity, coupled with verbal directions/cues to initiate & complete task ROUTINE & CONSISTENCY _____ Incorporate personal routine & preferences _____ Honor food likes/dislikes _____ Include frequent rest periods AMBULATION _____ Non ambulatory – provide AA/PROM with sensory stimuli. _____ Provide safe/comfortable positioning _____ Splints and positioning devices for contracture management _____ Provide cues for resident to assist with rolling _____ Provide cues for resident to grasp/hold rail _____ 1 step directions with cues to use assistive Device _____ 1 step directions to sequence through steps of transfer _____ Increase figure/ground color contrast _____ Provide meaningful activity to reduce excess walking and or attempts at rising _____ Clutter free walking area/path with places to sit along path _____ Proper shoes and orthotics as needed _____ Visual aides in place _____ Provide appropriate lighting BATHING ______ Provide appropriate cues (verbal, visual, tactile) to elicit movement of body parts _____ Limit time of ADL to 15-30 minutes _____ Keep resident warm and covered _____ Have shower area warm, reduce noise Continued on back of sheet Name: Suggested Strategies Late – End Stage Cognitive Impairment BATHING (cont) _____ Homelike décor _____ Music/aromas to decrease agitation and promote relaxation _____ Sponge bathing as appropriate _____ Simply explain each step of activity _____ Move slowly and gently _____ Use familiar products when available _____ Set up safe environment to prevent falls _____ Adjust and monitor water temperature _____ Gain trust and agreement by bathing feet first and then moving upward _____ Hair washed at beauty shop if anxious _____ If anxious offer sponge bath _____ Provide something to “hold” _____ Ensure proper alignment and support of body, including feet GROOMING & DRESSING _____ Promote participation – 1 step cues - verbal, visual and tactile cues _____ Inform resident of each step of activity _____ Limit time to 15-30 min _____ Hand over hand assist for oral hygiene (higher level 1) _____ Maintain privacy and dignity – keep covered _____ Provide support of posture and feet _____ Move slowly and gently _____ Use familiar grooming products when possible TOILETING _____ Verbal and tactile cues – toileting & pericare at bed level _____ Set up all supplies _____ Promote as much participation as possible -postural movement, hold grab bar, _____ Toilet transfer with _____ assist, verbal, visual and tactile cues _____ Assist with clothing management & hygiene _____ Do not leave unattended Date: _____ Insure proper postural support of trunk and feet _____ Follow toileting schedule/routine _____ Follow bowel and bladder program EATING & DRINKING _____ Insure safe and proper position – head/neck, trunk and feet supported as needed _____ Visual, verbal, tactile cues _____ Mirroring _____ Hand over hand assist _____ Finger foods _____ Reduce external distractions _____ Reduce internal distractions (ex. toileting) _____ Gain attention prior to providing food/drink _____ Allow significant response time _____ Provide food and drink slowly _____ Provide color contrast between plate/food/table _____ Provide 1 item at a time _____ Provide frequent nourishment and liquids _____ Use coated spoon between full bites _____ Use adapted cup _____ Place cup in hand with cues to drink ADDITIONAL APPROACHES _____ ____________________________________ ____________________________________ ____________________________________ _____ ____________________________________ ____________________________________ ____________________________________ _____ ____________________________________ ____________________________________ ____________________________________ _____ ____________________________________ ____________________________________ ____________________________________ _____ ____________________________________ Name: Suggested Strategies Late – End Stage Cognitive Impairment Date: Basic Activities of Daily Living: Using Adaptive Equipment Using adaptive equipment includes recognizing a physical disability, recognizing an object as a substitute for normal activity, accepting the equipment, and learning to use the equipment. Level GDS 2.0 Behavior USING ADAPTIVE EQUIPMENT Assistance In early stage, patient discusses/compares methods of equipment use to select best approach. May be concerned with social implications of equipment use. Patient varies spatial properties (posture, position or objects in space) in learning use of equipment. Maneuvers wheelchair in tight space, uses extension aids, one handed can openers/appliances. Varies use to discover better methods. May resist following recommended use until a problem is encountered. May not attend to hidden or secondary properties, such as energy expenditure, load on reacher. May not anticipate routine maintenance of equipment. May choose not to use equipment when it requires too much energy or it is too timeconsuming. As the disease progresses within this stage, patient may have trouble varying spatial properties, such as required by maneuvering wheelchairs in small spaces or using reachers. Still attends to all tangible properties of objects and environment, including qualities of floor and terrain that affect ambulation. Safety problems become more apparent towards later stage 2.0 in that patient does not consider spatial or surface properties before actions (slowing gait for uneven terrain). May choose not to use equipment. Goal Precautions Patient will compare methods to solve problems in equipment use. Caregiver will identify potential secondary effects to avoid undesirable consequences. Caregiver provides explanations of potential secondary effects to be avoided for safety or other reasons. Reminds patient to perform routine maintenance or checks needs for patient. Equipment may be stored away from view. Demonstration of undesirable outcomes may increase understanding and compliance with suggested precautions. As the disease progresses within this stage, Caregiver monitors application and use of new equipment until welllearned. Continues to point out secondary effects to be considered for safety reasons. Assists with identifying simple principles of judging distance and space, such as checking door width in public restroom for wheelchair access. Patient will learn use of equipment requiring neuromuscular adjustments and will solve problems requiring attention to all tangible features with caregiver assistance to avoid harmful effects. Caregiver will supervise use of appropriate adaptive equipment until well-learned and will identify secondary effects to be avoided for safety reasons. Caregiver will provide appropriate maintenance. As the disease progresses within this stage, Patient will learn use of requiring neuromuscular adjustments with caregiver assistance to avoid harmful effects. Caregiver: Same as above. Watch for impulsive behaviors that may be unsafe. Level GDS 3.0 ACL 4.8 to 4.6 Behavior ACL 4.8: Recognizes the loss of gross motor capability, marked loss of strength, ROM, coordination, or balance and can name several visible effects of loss during the process of doing an activity. May not anticipate the effects of the loss in a new activity. May learn a series of new actions by rote, attending to all striking visible effects on objects. May learn to use walker with wheels, swivel eating utensils. May don arm slings and prostheses, checking for correct positioning by close examination. Does not do neuromuscular adjustments or anticipate secondary effects. ACL 4.6: As the disease progresses within this stage, Recognition of physical disability is same; may be able to make a spontaneous adjustment in position, duration, or strength for a better effect (reducing downward pressure on walker with wheels with better mobility). Such adjustments may not be sustained. May attempt to adjust one feature of equipment (location of strap, foot rest) without awareness of secondary effects (edema, posture). GDS 4.0 ACL 4.4 to 4.0 May recognize loss of gross motor capability, marked loss of strength, ROM, coordination, or balance as restricting ability to complete a series of actions. May be trained to use adaptive equipment that requires a sequence of familiar actions (walker) slowly, one step at a time. Does not anticipate hazards, such as failure to lock wheelchair brakes before transfer. Does not generalize use of one piece of equipment to similar piece of equipment; once learned, may resist changes in equipment. May be trained to don equipment as part of routine dressing. Assistance Caregiver monitors application and use of equipment until well-learned. Caregiver provides explanation of secondary effects or hazards to be avoided. Caregiver solves problems requiring neuromuscular adjustments and monitors and provides for maintenance of equipment. As the disease progresses within this stage, Caregiver supervises donning complex equipment and checks adjustment of all equipment. Takes care of maintenance; stores equipment in easy to access locations. Monitors use until well-learned. Checks environment to remove safety hazards (rugs or slippery floors that impede wheelchair, walker use). Caregiver supervises donning complex equipment and checks adjustment of all equipment. Takes care of maintenance; stores equipment in easy to access locations. Monitors use until well-learned. Checks environment to remove safety hazards (rugs or slippery floors that impede wheelchair, walker use). Goal Patient will learn use of new equipment that does not require continuous neuromuscular adjustments with caregiver assistance to avoid harmful effects. Precautions Allow enough time for adapted activity performance. Monitor for undesirable effects of patient’s adjustments. Caregiver will supervise use of appropriate adaptive equipment until well-learned and will identify secondary effects to be avoided for safety reasons. Caregiver will provide appropriate maintenance. As the disease progresses within this stage, Patient will use adaptive equipment by using familiar movement patterns and will make simple spontaneous adjustments for better effects with caregiver assistance to avoid harmful effects. Caregiver will supervise application and use of adaptive equipment, and maintain equipment to avoid undesirable medical complications. Patient will use adaptive equipment using familiar movement patterns to complete routine tasks with assistance from caregiver to avoid harmful effects. Caregiver will supervise application and use of adaptive equipment, and maintain equipment to avoid undesirable medical complications. Monitor for correct positioning. Patient may forget to use equipment. Level GDS 4.0, cont. ACL 4.4 to 4.0 GDS 5.0 ACL 3.8 to 3.6 Behavior As the disease progresses within this stage, patient acceptance of adaptive equipment is dependent on both the sequence of familiar actions and its outcome to do highly valued tasks. Understands purpose of equipment when effect is immediate; does not understand secondary effects such as contracture prevention or energy conservation. If equipment requires neuromuscular adjustments in positioning or use, patient may abandon use or use in an unsafe manner (leaning on crutches or walker). May recognize the visible effects of a physical disability when this is pointed out but may not understand the medical cause. Knowledge of deficit may increase acceptance of adaptive equipment. Patient may imitate a familiar action to use a piece of equipment (washing body with hand mitt). May be able to learn to use familiar object or adaptive device using a normal action after much repetitive drilling. GDS 6.0 ACL 3.4 to 3.0 At initial stage, patient may recognize loss of gross motor capability, limb or grasp. May not note loss of strength, coordination, ROM. May accept adaptations that allow dominant hand to be used in a normal manner (built-up spoon). Does not imitate a modification of a normal action but repeats habitual actions over and over, or until distracted. May be able to propel wheelchair forward or backward but cannot get around furniture or through small doors. Assistance As the disease progresses within this stage, Caregiver supervises application or applies adaptive devices for patient. Points out visible cues to assist patient in correct application. Stores equipment in visible locations to assist in remembering to use equipment. Wheelchairs may be preferred for ambulation disabilities as patient may not be able to safely use crutches or walkers. Goal Precautions Caregiver points out visible effects of enhanced performance with adaptive equipment or uses visible effects of disability to assist with acceptance of equipment and compliance with safety precautions. Caregiver will apply and supervise use of all appropriate adaptive equipment to avoid undesirable medical conditions. Watch for falls in transfers or in ambulation with a new physical disability. May wander and get lost. Watch for discomfort that may result in striking out. Uncomfortable positioning devices may be refused or removed. In addition, Caregiver applies and supervises use of all adaptive equipment. Wheelchairs preferred for ambulation difficulties; extra locks may prevent wandering. Clears space to increase mobility and avoid damage to furniture. Splints, slings, and other passive positioning devices need to be regularly checked. Stops repetitive actions Caregiver applies and supervises use of all adaptive equipment. Wheelchairs preferred for ambulation difficulties; extra locks may prevent wandering. Clears space to increase mobility and avoid damage to furniture. Splints, slings, and other passive positioning devices need to be regularly checked. Stops repetitive actions. Patient will perform familiar actions with aid of appropriate adaptive equipment with assistance to avoid harmful effects. Remove potentially harmful adaptive equipment. Caregiver will apply and supervise use of all appropriate adaptive equipment to avoid undesirable medical conditions. Patient will perform familiar actions with aid of appropriate adaptive equipment with assistance to avoid harmful effects. Watch for falls in transfers or in ambulation with a new physical disability. May wander and get lost. Watch for discomfort that may result in striking out. Uncomfortable positioning devices may be refused or removed. Remove potentially harmful adaptive equipment. Level GDS 6.0, cont. ACL 3.4 Behavior May be able to propel wheelchair forward or backward but cannot get around furniture or through small doorways; forgets to lock brakes and may get lost if allowed outside. May contribute loss of abilities to nonmedical case, such as “I am weak because you don’t feed me enough.” Assistance ACL 3.2 As this stage advances, patient may still recognize loss of gross motor capability, limb or grasp. Spontaneously grasps piece of equipment and begins associated action based on the appearance of equipment. Does not sequence actions or note effects. Stops and stops on command. Caregiver applies equipment (bed rails, safety straps, anti-pressure cushions) and monitors for correct fit. Caregiver selects and maintains all equipment. Pushes wheelchair and locks to prevent aimless wandering. Security locks, gates, extra locks on wheelchairs, may prevent getting lost. Slip proof mats and treads prevent falls in the bathroom. Shower chair, tub bench, transfer tub bench, raised toilet seat, and may be used to assist positioning. Patient will do associated actions with equipment that resembles familiar objects. At end stage 6, patient will grasp a piece of equipment offered or eye level or may put/throw it down. Does not use crutches, canes, or walkers. No awareness of physical disability. No understanding of purpose of equipment. Sits in wheelchair but is unable to propel or propels for a short distance without awareness of destination. Uses grab bar when cued and may assist with use of transfer bar (ACL 2.4). May push or pull with upper extremities to shift body position in wheelchair when cued (ACL 2.8). May attempt to sit, stand, walk, use arms in normal manner requiring restraint to prevent falls. May refuse to wear uncomfortable equipment. Caregiver assists same as 3.2. Wheelchairs are preferred for ambulation and built-up utensils may be offered at eye level. Caregiver applies equipment (bed rails, safety straps, anti-pressure cushions) and monitors for correct fit. Caregiver selects and maintains all equipment. Pushes wheelchair and locks to prevent aimless wandering. Security locks, gates, extra locks on wheelchairs, may prevent getting lost. Slip proof mats and treads prevent falls in the bathroom. Shower chair, tub bench, transfer tub bench, raised toilet seat, may be used to assist positioning. Patient will grasp and feed self with built up spoon; will use wheelchair. Same as 3.4 Caregiver will apply and monitor use of all adaptive equipment to avoid undesirable medical complications. Watch for falls in transfers or in ambulation with a new physical disability. May wander and get lost. Watch for discomfort that may result in striking out. Uncomfortable positioning devices may be refused or removed. ACL 3.0 GDS 7.0 ACL 2.8 2.0 Goal Precautions Same as 3.4 Same as 3.4 Caregiver will apply and supervise use of all appropriate adaptive equipment to avoid undesirable medical conditions. Patient will cooperate with transfers, positioning, by grabbing bars or pushing/pulling when cued by caregiver. Level GDS 7.0, cont. ACL 1.8 – 1.0 Behavior No awareness of physical disability. No understanding of purpose of equipment. With tactile cues, may hold up arms, legs, or trunk while splint or straps are applied. Assistance Caregiver applies equipment (bed rails, safety straps, anti-pressure cushions) and monitors for correct fit. Caregiver selects and maintains all equipment. Goal Caregiver will apply and monitor use of all adaptive equipment to avoid undesirable medical complications. Precautions Check for improper fit or positioning of equipment that may restrict blood flow or cause discomfort. Patient will cooperate by holding body parts against gravity (ACL 1.8) Resource: Allen, C., Earhart, C., & Blue, T. (1992). Occupational Therapy Treatment Goals for the Physically and Cognitively Disabled. Bethesda, MD: The American Occupational Therapy Association, Inc. Environmental Modifications & Compensation: Architectural Barriers and Safety Environmental compensations are used to reduce disabilities and prevent medical complications associated with residual physical impairments. Following are guidelines per stage of cognitive function. The stated levels use a cross-walk between the Global Deterioration Scale (GDS) and the Allen Cognitive Level (ACL); it is important to recognize that the crosswalk is simply a guide and not a definitive final determination. An individual with dementia can demonstrate fluctuating levels of function over the course of the day, week and month and may flex between levels. In addition, individuals with dementia typically do not reside in nursing homes until the latter stages of dementia, commonly Stages 5-6-7 on the GDS or Stages 1-2-3 on the Allen Cognitive Scale. Key Principles for Intervention: 1. The concept of environmental function is to elicit function and enhance quality of life through a well-designed environment, 2. The priority of care for an individual is modification of the environment to facilitate remaining residual abilities. 3. Consistent with this care priority, the individual must be able to find whatever he/she is looking for, recognize it, and then use it safely. 4. The care or therapeutic need is given priority over the aesthetic effect of any change in the environment. 5. Specific modifications are listed in list format at end of table. Level GDS 2.0 ACL 5.0-5.8 Functional Outcome Compensate for impaired mobility and architectural barriers to reduce personal care, locomotion, and/or body disposition disabilities, and prevent medical complications. ARCHITECTURAL BARRIERS AND SAFETY Treatment Methods Caregiver Assistance Collaborate with patient and caregiver Standby: To provide cuing to to anticipate home/work and anticipate hazards, provide more environmental barriers. Identify need efficient actions. for safety equipment, relevant adaptive equipment, and other environmental adaptations. Plan actions for patient to use relevant assistive/adaptive equipment. Begin training patient in standard procedures with environmental aids. Anticipate need for extra assistance and provide a plan to direct others. Teach caregiver methods to facilitate carryover. Precautions Make final assessment of equipment needs after making a home visit and before ordering equipment. Level GDS 3&4 ACL 4.0 to 4.8 GDS 5&6 ACL 3.8 to 3.0 Functional Outcome Compensate for impaired mobility and architectural barriers to reduce personal care, locomotion, and/or body disposition disabilities, and prevent medical complications. Compensate for impaired mobility and architectural barriers to reduce personal care, locmotor, and/or body disposition disabilities associated with patient care; prevent medical complications and protect environment. Treatment Methods Collaborate with caregiver and patient to confirm future needs. Emphasize avoiding potential problems and simplifying task environment. Teach caregiver to identify and remove potential safety hazards in the home and community. Adapt home environment to minimize barriers and avoid potentially hazardous situations, such as nonslip mats, rearrangement of furniture, grab bars, bath bench, etc. Initiate training of patient in standard procedures. Train caregiver in methods and supervise performance with patient to facilitate compliance with safety standards. Collaborate with caregiver to confirm future needs. Protect patient by adapting home/living environment, including but not limited to: non-slip treads, stabilizing rugs, wiping up floor spills, avoiding changing basic familiar pattern of furniture, safety rails, using stove burner and electrical outlet covers. Begin rote teaching for integration into procedural memory in standard procedures with environmental aids. Protect environment by using toilet seat cover locks and removing valuables that can be knocked over. Train caregiver in methods and supervise performance with patient. Caregiver Assistance Minimum: To continue training patient with environmental aids; removal of safety hazards and assisting with unfamiliar architectural barriers. Precautions Caregiver to prevent medical complications associated with potential safety hazards. Make at least two home visits: one with caregiver to confirm before ordering equipment and one with caregiver and patient to practice methods in situationspecific settings. Do not expect patient to generalize procedures learned in clinic to home and community environments. Moderate: To continue rote teaching with practice; complete sequencing of standard procedures; protect patient and environment. Same as ACL level 4.0 – 4.8. Patient and environment need to be protected due to absence of goal directed behavior on the part of the patient. Simplify verbal instructions with the patient, i.e., noun + verb. Level GDS 7.0 ACL 2..0 – 2.8 Functional Outcome Compensate for impaired mobility and architectural barriers to reduce personal care, locmotor, and/or body disposition disabilities associated with patient care; prevent medical complications and protect environment. GDS 7.0 Compensate for impaired mobility and architectural barriers to reduce personal care, locmotor, and/or body disposition disabilities associated with total patient care; prevent medical complications and protect environment. ACL 1.8 to 1.0 Treatment Methods Collaborate with caregiver to anticipate future needs, including environmental adaptations and safety equipment. Initiate facilitating postural actions to use grab bars and bath seats. Provide environmental adaptations to ensure patient safety, such as padding guardrails, use of joint pads, restraints, positioners, etc. Adapt home environment to facilitate wheelchair/bed maneuverability. Train caregiver in methods and supervise performance with patient. Collaborate with caregiver to anticipate future needs. Provide environmental adaptations to ensure patient safety, such as padding guardrails, applying joint pads and positioning devices. Train caregiver in proper positioning techniques. Caregiver Assistance Maximum: To facilitate postural actions to use environmental aids; protect patient and environment. Precautions Caregiver to prevent medical complications. Protect the environment in the event the patient is mobile through his/her own actions. Total: To position and protect patient. Caregiver to prevent medical complications. Resource: Allen, C., Earhart, C., & Blue, T. (1992). Occupational Therapy Treatment Goals for the Physically and Cognitively Disabled. Bethesda, MD: The American Occupational Therapy Association, Inc. SPECIFIC MODIFICATION One of the greatest concerns facing caregivers for individuals with Alzheimer’s disease, both in the home environment and in assisted/long-term care settings, is potentiality for wandering away and becoming lost. Exit control and maintaining the least restrictive environment can be difficult goals to achieve simultaneously; the following is a list of ideas that may be utilized. 1. Simple Methods to Prevent Elopement (Individuals with Alzheimer’s disease that leave without supervision or the capability of finding their own way back.) • Home setting – Move the door lock from their normal placement near the doorknob to either the top or bottom of the doorway. • Identification band or metal ID bracelet with inclusion of name, address and telephone number for added safety. • Conceal entrances and exits that must remain unlocked through the one of the following • Wall or screen placed across the entrance to conceal it; • Horizontal min-blinds the same color as the door; • Lightweight cotton covering the same color as the door. • Any plans to place visual barriers on exits should be reviewed by the fire marshal before use. 2. Secure Systems Outdoors • Outdoors area must also be secured. • Automatically locking doors; • If stockade fence – soften look with plants. 3. Electronic Systems • Alarm systems of varying sophistication are available, • Consideration – cost factor 4. Spaces for Wandering and Pacing • Pacing is one common characteristic of individuals with Alzheimer’s disease and is a need that • needs to be met. Regularly scheduled exercise may help provide a satisfying substitute. 5. Outdoors Spaces • Fenced in back yards at home and outdoor parks at long-term care facilities are ideal for outdoor • • wandering. Flat surfaces and secure gates are needed so the person can wander or pace without constant supervision or constant companion. The way back to the house/facility should be visible from all corners of this outside area. 6. Indoor Spaces • Long hallways and large day areas are often chosen for wandering or pacing by the individual • • • with Alzheimer’s disease. Careful attention needs to be given to maintaining the wide hallways free of clutter, carts and “bunching” of slow moving residents in wheelchairs. Sturdy handrails for unsteady walkers are highly recommended. Keep in mind that long hallways and the glare from overhead lights may increase the perceptual deficits common in the later stages of the disease/syndrome. 7. Places to Gather • • Key is to promote pleasant, comfortable settings for social interaction. Intent – homelike living areas, not bare. 8. Furniture Arrangement • Consider arrangement of chairs and sofas in “conversational groupings” to encourage • conversation. Chairs arranged in rows or lined up against a wall discourage social interaction. 9. Televisions • A television placed in a day room can draw individuals together and enhance the social • atmosphere. One aspect to remember – Individuals will experience increased difficulty comprehending the television programs and/or discriminating through the background noise as disease progresses; consideration needs to be given to areas without television in the background or eliminating distractions during primary activities of daily living. 10. Places to Get Away • Places to get away from the crowds and noisy areas offer a quiet space for peace and quiet. • Available space for this purpose is rare in long-term care. • Consideration – Can a “quiet spot” be identified in your setting? 11. Natural Areas • Access to outdoor areas where one can experience the sounds and sights of outside promotes • relaxation and ‘sense of peace’ for people with Alzheimer’s disease. This is an important adjunct for quality of life. 12. Sensory Input • One of the greatest opportunities for environmental modification is sensory input. • Utilization of sensory input through the visual modality and use of texture can enhance intact • • functional abilities. Attention should be focused on minimizing extraneous background noise and smells. One consideration would be for staff to reduce “rushing from one task to another” with moving more slowly and keeping voice low when helping residents. 13. Visual Input - Considerations • Use black and white line drawings of the object or representative symbols to facilitate • • • • • • comprehension. Examples would include the outline of a toilet for a bathroom and knife, fork, and spoon for the dining room. Use written single words to identify room, object, other Be selective in use of colors. Peach, pink, beige, ivory, light blue, green, and lavender are relaxing colors. White, yellow, orange and red are livelier, more stimulating colors. Alternating black and white color segments can appear as holes that need to be avoided. Mirrors can be confusing due to the perceptual discrimination deficits in the later stages of the disease. 14. Olfactory Inputs – Overall, reduce or eliminate strong and offensive odors. 15. Aural Inputs • Loud noises can trigger agitation and restlessness. • Quiet time with lights dimmed can facilitate a calm and restful state and reduce sundowning syndrome. Basic Activities of Daily Living: Bathing Bathing includes using soap, water, towel, and toiletries to clean, rinse, dry, moisturize, and deodorize body and hair. Bathing may be done in bed, bathroom tub or shower. Excludes grooming. Level GDS 2.0 ACL 5.8 to 5.0 GDS 3.0 ACL 4.8 to 4.6 GDS 4.0 ACL 4.4 to 4.0 Behavior Initiates and completes routine bathing routine bathing independently. Attends to all surface qualities of skin, nails, hair, and may make bath product selections based on the subtle effects produced by these products. May not read labels of new products; may fail to consider passage of time, alter rate of bathing, or to anticipate hazards in a new environment. May coordinate bathing schedule with others. Attends to all striking features of self and bathing environment. Checks quality of results on completion. May learn a new procedure, such as bathing to conserve water) by rote. Understands secondary effects when they are explained; examples include need to conserve water, drying effects of prolonged or too frequent bathing, scheduling baths to avoid inconvenience to others. Reports low supplies to caregivers. Initiates bath, shower and shampoo at customary time and follows typical schedule invariantly. May collect supplies from familiar locations. May want same products. May use excessive amounts of shampoo or lotion thinking that “more is better.” May not do fine-motor adjustments to open tight or unusual containers. May resist changing routine to accommodate heat or exercise. Little or no awareness of sharing bathing space and supplies with others; may not hang up towels, clear area of toiletries, etc. BATHING Assistance Caregiver explains secondary effects (i.e., frequency, conservation, social rules if shared space) as needed. Caregiver explains secondary effects (i.e., frequency, conservation, social rules if shared space) as needed. Caregiver provides needed supplies in open cupboards or shelves. Goal Patient will complete routine bathing independently and will check quality. Patient will understand explanations of secondary effects. Caregiver will explain secondary effects that may result in harm or undesirable social consequences/ Patient will initiate and complete routine bathing with variations in daily schedule, product use, or product storage with assistance to avoid harmful or undesirable effects. Precautions Remove unforeseen hazards. Caregiver explains consequences of changes in product use or routine. Caregiver purchases familiar bathing supplies, clearly labeled, and stores in visible location within 24 inches of tub/shower. Check for results. Point out missed hidden body parts. Patient will initiate and complete bathing by securing own supplies from visible locations, with assistance to avoid harmful effects. Caregiver will provide familiar, safe set-up and be available to solve problems, check results. May become upset if routine products are not available. Allow ample time for task completion. Protect from unforeseen hazards, such as slippery floor, electrical appliances near water. Level GDS 4.0, cont. ACL 4.4 to 4.0 GDS 5.0 ACL 3.8 to 3.6 GDS 6.0 ACL 3.4 to 3.0 Behavior As the disease progresses within this stage, patient will recognize need for bath but may initiate at inappropriate time. Collect supplies from visible location and follows routine but may miss small or hidden places, such as back of head, ears, and fingernails. Awareness of environment diminishes with failure to ask for help when a problem is present such as no soap or unfamiliar controls on the faucets. May not note wet floors. Actions of washing follow perimeter of body; may try to do back. May stop when problem is encountered, such as no shampoo or soap, but may not ask for help. May forget steps in a sequence (rinse or dry). Does not measure amounts of shampoo, lotions, or deodorant. Picks up washcloth, soap, towel, and wipes easy to reach body parts. Starts and stops actions on command. Does not sequence actions. May wash in one spot, forget to use soap. May forget to rinse or dry off. May stay in tub or shower for long time if allowed. May initiate bath or shower at odd time. As the disease progresses within this stage, patient may spontaneously grasp washcloth, soap and/or towel and initiate associated movement. At later stage 6, patient grasps washcloth, soap, towel or shampoo or puts them down when placed in hand. May do back and forth movements for brief periods. Assistance As the disease progresses within this stage, caregiver places needed supplies in arm’s length, visible. Demonstrates unusual controls on faucets; opens unusual product dispensers. Uses anti-slip mats. May leave unsupervised with set-up. Goal Patient will complete bath or shower with set-up to avoid harmful effects. Precautions Store supplies in hidden cupboards or lock bathroom door to limit bathing at inappropriate times. Watch for floods, falls. May take 2-3 times average to complete task. Reminds patient when to bath; prohibits too frequent bathing. Provides essential safe tools at proper times. Sequences with verbal cues through correct routine. Pre-measures amounts of shampoo or lotion. Reminds patient to wash hidden areas. Washes hard to reach areas for patient. Checks water temperature. Early Stage 6: Reminds patient when to bath; prohibits too-frequent bathing. Provides essential safe tools at proper times. Sequences with verbal cues through correct routine. Pre-measures amounts of shampoo or lotion. Reminds patient to wash hidden areas. Washes hard to reach areas for patient. Checks water temperature. Patient will follow cues to complete bathing and shampooing routine and will state when he or she is done. Restrict access to harmful materials. Expect waste if allowed to measure amounts. Do not leave unsupervised for more than a few minutes. As the disease progresses within this stage, additional caregiver assistance is required. Caregiver hands bathing tools to patient while in bath or seated in shower. Starts and stops actions with short commands. Caregiver will initiate and supervise bathing. Will demonstrate modifications for more effective results. Patient will sustain familiar actions to complete a bath or shower and shampoo with assistance to sequence actions. Watch for impulsive actions that may result in falls. Do not leave alone. If showers are attempted, watch for flooding and falls. Check water temperatures. Patient may leave tub or shower before done. Caregiver will initiate and supervise bath and shampoo; will sequence through actions. Patient will start and stop actions on command. If shower is attempted, caregiver will get wet. Patient will grasp familiar bathing tools when placed in hand. Remove sharp or dangerous objects from reach. Do not leave patient. Watch for falls on wet floor. Caregiver will initiate and supervise bathing; providing assistance. Level GDS 7.0 ACL 2.8 ACL 2.6 2.4 ACL 2.2 to 2.0 ACL 1.8 to 1.6 ACL 1.4 to 1.0 Behavior Uses grab bars to get in and out of tub. May walk to bathroom and step into tub with assistance. Moves body parts on command. May be able to bend at waist to put head under faucet for shampoo. Sits for sponge bath. Moves extremities. Moves trunk to assist or prevent falling to one side. May do a pivot transfer with assistance. Aware of caregiver’s efforts to bathe. May move arms or legs, or may roll over to assist with bathing with proprioceptive cues. May hold trunk or other body part against gravity with continuous cuing. May resist bathing. No awareness of need to bathe. May move away from caregiver’s touch. Assistance Caregiver baths patient (sponge or seated tub bath). Cues to walk to bathroom. Uses bathing chair, nonskid bath mats. Dries patients in both to avoid falls. Same as 2.8 Caregiver gives sponge bath to patient in bed or seated in chair. Gives verbal commands to move body parts. Goal Patient will cooperate with bathing by using grab bars to stabilize. Caregiver maintains cleanliness to avoid undesirable medical complications. Patient will cooperate with bathing by moving body parts. Caregiver maintains cleanliness to avoid undesirable medical complications. Precautions Baths recommended avoiding falls. May be frightened by risk of fall and refuse to enter tub. Grasp of grab bars may be too weak or tight. Moves slowly Baths recommended to avoid falls. May be frightened by risk of fall and refuse to enter tub. Watch for discomfort, which may result in striking out. Watch for falls. Caregiver gives sponge bath to patient in bed with passive supports. Touches body parts to cue desired movements. Caregiver maintains cleanliness to avoid undesirable medical complications. Monitor for skin problems. Patient may resist both. Caregiver gives sponge bath to patient in bed. Caregiver maintains cleanliness to avoid undesirable medical complications. Monitor for skin problems due to uncleanliness. Resource: Allen, C., Earhart, C., & Blue, T. (1992). Occupational Therapy Treatment Goals for the Physically and Cognitively Disabled. Bethesda, MD: The American Occupational Therapy Association, Inc. Basic Activities of Daily Living: Dressing Dressing includes selecting and putting on clothes with consideration for the time of day, temperature, season, comfort, and how garments go together. Dressing includes obtaining clothes from storage areas, dressing and undressing in a sequential fashion, fastening and adjusting clothing and shoes, and applying and removing assistive or adaptive equipment, protheses, or orthoses. Level GDS 2.0 ACL 5.8 to 5.0 GDS 3.0 ACL 4.8 to 4.6 Behavior Speculates and plans for dressing needs, including considering all properties of garments, demands of social situation, donning time, personal resources, for routine, special events. DRESSING Assistance None needed As the disease progresses within this stage, the criteria for wardrobe may be idiosyncratic or “to be different.” Results may be odd or idiosyncratic. Varies strength, range of motion, in donning tight fitting garments or shoes and working clasps, ties, straps. Caregiver offers explanations of undesirable secondary effects of selections. Check for proper donning of complex adaptive equipment. Searches for desired clothing items in drawer or closet and considers all striking features of garments including color, pattern, condition, and general fit. May not attend to less striking features such as cleanliness, fabric type, or current style in making selection. May don clothing slowly, checking results by examining in mirror from several angles on completion. Learns by rote a sequence of new actions, such as putting on prosthesis. May recognize predictable problems with fit or function of adaptive equipment. As the disease progresses within this stage, fine motor adjustments (jewelry fasteners, small bows, necktie, and buckles) may be abandoned. Changes one item in a familiar outfit to produce a “new” outfit; does not consider hw change affects whole look. Follows suggested ideas for spatial adjustments, i.e., location of scarf, strap on splint. Caregiver points out consequences of selection, such as being underdressed or overdressed for the weather or occasion. Demonstrates new sequences of actions. Goal Patient dresses self, including putting on and removing adaptive equipment, independently and in a timely fashion. Patient will consider coordination of clothing for pleasing effects with caregiver assistance to identify social consequences. Caregiver will explain secondary effects of selections to avoid undesirable consequences. Patient will dress self independently and will vary combinations one feature at a time. Patient will select garments considering all striking features with caregiver assistance to consider secondary effects. Caregiver will explain secondary effects of selection to avoid undesirable consequences. Precautions May resist suggestions to alter selections based on secondary effects. Allow additional time for new garments for making new combinations. Monitor for appropriateness of new combinations. Level GDS 4.0 ACL 4.4 to 4.0 GDS 5.0 ACL 3.8 to 3.6 GDS 6.0 ACL 3.4 to 3.0 Behavior Initiates dressing at customary time of day. Selects items from wardrobe but may fail to consider time of day, temperature, season, cleanliness, coordination of color. May want to wear the same outfit over and over or to an event because “I wore it there before.” May miss subtle problems such as shirt out in back, skirt too short for slip, missing buttons, tears. Dons items slowly in correct sequence; may use accessories incorrectly. May be trained to initiate dressing at a particular time of day. Dons all common articles of clothing slowly with some errors in sequence. Recognizes when dressing is completed (all body is covered). Stops when a problem occurs, such as a broken zipper; may not ask for help. May imitate a modification of a habitual action (pulling on shoes). Picks up garment in close proximity and begins to don it. Associates action with garment type. May stop before completion, but may resume on command. May pick up any nearby garment. May be unable to don tight-fitting garments, hosiery, or do fasteners. As the disease progresses within this stage, patient grasps garment offered at eye level or puts/throws it down. May walk away. Assistance Caregiver simplifies selections by reducing number of available garments, or groups garments in ready to wear combinations. Suggests changes for inappropriate choices. Caregiver groups clothing items in drawers or closet to assist in proper selection or provides corrections to poor selections. Assists with small, hidden, unusual fasteners. Demonstrates simple modifications in habitual actions that increase effective donning; expect to repeat such instruction next time. Puts on and adjusts adaptive equipment. Caregiver hands garment to patient and cues to move. Guidelines for Assistance: 1. Selects clothes. 2. Positions garments next to body part and cues patient to move when appropriate. As this stage progresses, the caregiver will need to hand garment to patient, one at a time. 3. Redirect attention as necessary. 4. Works fasteners, laces. 5. Applies adaptive equipment. 6. Monitors clothing for periodic readjustment Goal Patient will initiate and complete dressing at customary time of day with assistance in selecting and donning. Caregiver will provide assistance in selection and donning, will check results, and correct errors. Will apply and adjust adaptive equipment. Patient will complete dressing with caregiver assistance. Caregiver will provide assistance in donning and doffing, will check results and correct errors. Will apply and adjust adaptive equipment. Patient will complete dressing with caregiver assistance. Patient will grasp and being correct actions of donning familiar garments. Patient will grasp garments when handed to him/her. Caregiver will select and assist with donning clothes and adaptive equipment. Precautions Allow ample time for completeness of dressing (2-3 times average rate). May be upset if familiar combinations are not available. May argue with suggested corrections of errors. May argue with caregiver suggestions to change selections. Monitor all adaptive equipment for proper fit to avoid medical complications. May reject offered garment. Avoid unfamiliar, tight fitting apparel. Level GDS 7.0 ACL 2.8 Behavior This stage shows a progression from extensive assist to dependent status. The following grooming characteristics may be present. ACL 2.8 Stands, sits, grabs onto bars, railing, or other support for stability while being dressed. Usually moves slowly. ACL 2.6 2.2 ACL 2.0 Assistance Caregiver will dress patient, apply adaptive equipment to avoid medical complications. Caregiver selects garments and dresses patient. Uses loose-fitting, easy to remove garments. Sits while being dressed. Pushes arm or leg through garment when held next to body part. May remember and initiate familiar dressing movements (raising arms overhead). Caregiver selects clothes. Positions garments nest to body part and cues patient to move when appropriate. Works fasteners, laces; applies adaptive equipment. Monitors clothing for periodic readjustment. Sits while dressed by caregiver. Moves extremities or trunk to assist with donning. Caregiver selects garments. Verbally commands or tactile cues to move trunk or body parts. Loose fitting garments. ACL 1.8 Patient may move arm or leg to assist with donning garments, and equipment when used.. ACL 1.6 to 1.0 Unable to select, obtain or don clothing or adaptive equipment. Goal Caregiver selects garments. Verbally commands or provides tactile cues to elicit cooperative gestures. Loose fitting garments preferred. Caregiver selects garments and dresses patient. Patient will use grab bars or other objects for stability while dressing. Patient will push arms and legs through garments when cued to assist with dressing. Caregiver will dress patient, apply adaptive equipment to avoid medical complications. Patient will move arms, legs, trunk, in response to cues to assist with dressing. Caregiver will dress patient, apply adaptive equipment to avoid medical complications. Caregiver will dress patient, apply adaptive equipment to avoid medical complications. Caregiver will dress patient, apply adaptive equipment to avoid medical complications. Precautions Inspect for signs of binding, skin redness from ill-fitting garments or adaptive equipment. Ensure stability (chair with back or wheelchair). Watch for needed readjustment. Dons shoes, pants while seated to avoid falls. Same as 2.8 (above) Same as 2.8 May resist dressing. Inspect for signs of binding, skin redness from ill-fitting garments or adaptive equipment. Inspect for signs of binding, skin redness from ill-fitting garments or adaptive equipment. Resource: Allen, C., Earhart, C., & Blue, T. (1992). Occupational Therapy Treatment Goals for the Physically and Cognitively Disabled. Bethesda, MD: The American Occupational Therapy Association, Inc. Basic Activities of Daily Living: Eating Eating includes sitting at the table, putting food in the mouth, cutting food into bite-sized pieces, chewing and swallowing without letting food escape, removing food that soils from face, hands and clothing, adjusting pace and sequencing according to food temperature; adjusting seasonings, and opening packages. Level GDS 2.0 ACL 5.8 to 5.0 GDS 3.0 ACL 4.8 to 4.6 Behavioral Characteristics Seeks information about tangible secondary properties of food, either through reading label or asking about ingredients before eating to comply with special diets. May attempt to discern table etiquette in order to comply with social standards in a new situation. As the disease progresses within this stage, patient may be aware of socially appropriate table manners but may chose not to alter behavior. May express strongly held food preferences. May understand explanations of food groups and dietary restrictions but choose to not alter diet. May not see crumbs or small spills but cleans up when cued. Attends to all striking visible features of food and social situation. Eats and attends to social conversation though may not be able to talk and eat at the same time. Manages all utensils use. Follows a schedule prepared by others of mealtimes or special dietary needs. May need to be reminded to check for less tangible food properties (temperature, spiciness) and may not be able to apply principles of dietary restrictions. Can learn to use new utensils or procedures of eating new foods by rote. EATING Assistance Caregiver assists with identifying all properties of food to comply with dietary restrictions. Goal Patient will feed self independently and will learn use of new utensils by varying actions. Patient will comply with dietary restrictions with assistance from caregivers. Precautions May not comply with dietary restrictions. Caregiver will identify applications of dietary restrictions in new foods. Caregiver assists with identifying all properties of food to comply with dietary restrictions. Patient will feed self independently and will learn use of new tools or utensils. Caregiver will identify applications of dietary restrictions in new foods. Monitor new food for compatibility with dietary restrictions. Level GDS 3.0, cont. ACL 4.8 to 4.6 GDS 4.0 ACL 4.4 to 4.0 Behavioral Characteristics As the disease progresses within this stage, patient alter rate of eating upon request but may not sustain. Attempts to vary actions to open an unusual container or to cut food more effectively but may not succeed. Initiates coming to table at routine times of day. Uses common utensils in customary fashion. May see and clean up/request help for highly visible spills or dropped food items, but doesn’t anticipate these errors, such as pouring liquids to fast, tilting plate being passed, and picking up hot plate without hot pad. Attempts to comply/replicate standard social behavior for table manner when reminded. May have trouble waiting for others, for food to cool or be served, but understands the explanation for the delay. Recognizes well-learned special diets. May resist changes in diet and menu. As the disease progresses within this stage, patient may not attend to spillage or crumbs and use of knife/fork may be clumsy. May be unable to eat and talk at the same time but indicates awareness of others at the table. Overfills liquid containers. May refuse to try unfamiliar foods. Assistance As the disease progresses within this stage, caregiver demonstrates use of unfamiliar utensils or procedures. Caregiver monitors compliance with special diets. Assists with unusual containers. Reminds patient of standard social manners. Warns patient to take precautions when passing hot, heavy, or liquid dishes. Goal As the disease progresses within this stage, Patient will feed self with conventional utensils and will comply with reminders of standard table manners and dietary restrictions. Caregiver will remind patient of standard table manners and will monitor compliance with dietary restrictions. Patient will feed self with conventional utensils and will comply with reminders of standard table manners and dietary restrictions. Caregiver will remind patient of standard table manners and will monitor compliance with dietary restrictions. As the disease progresses within this stage, regular mealtime routine with familiar food items is preferred by the patient. Caregiver trains in highly desirable social manners. Reminds patient to check for temperature of hot foods and assists with cutting of difficult items. Cues patient not to overfill glasses and mugs. As the disease progresses within this stage, Patient will feed self with conventional utensils and, with assistance, will comply with special dietary instructions. Will learn to follow highly desirable social routines, one step at a time. Caregiver will provide for patient’s nutritional needs and will train in desirable social and table manners as needed. Precautions As the disease progresses within this stage, Watch for handling of hot, heavy or liquid dishes. May resist changes in diet or new restrictions. Watch for handling of hot, heavy or liquid dishes. May resist changes in diet or new restrictions. Level GDS 5.0 ACL 3.8 to 3.6 GDS 6.0 ACL 3.4 to 3.0 Behavioral Characteristics May be trained to present self at dining area at regular mealtimes. At an earlier stage 5, the patient can follow a routine such as waiting for others before eating, passing dishes, sitting until all are finished, checking surrounding areas for spilled food, wiping mouth with napkin. Performance at later stage 5 is dependent on imitating identified target behaviors. Does not engage in social conversation at the table. May anticipate meal times based on familiar signs (kitchen activity/smells). Uses all utensils except knife; cuts with side of spoon or fork. Eating is self-absorbed and rate may be rushed with patient not stopping to swallow between bites or chewing inadequately. May eat strongly preferred food items only (candy) and does not understand need to eat balanced diet, follow dietary restrictions, or other amounts. As the disease progresses within this stage, patient demonstrates no awareness of others at the same table, does not talk, pass dishes, observe usual manners. Unaware of spilled food on table, self or floor. May chew noisily or loudly. May ask for food at any time of the day when hungry. Assistance Caregiver trains patient in highly desirable social manners, one at a time over several weeks. Provides assistance with new containers or difficult cutting that requiring neuromuscular adjustments. As the disease progresses at this stage, caregiver demonstrates desired modeling of target behaviors, including standard table manners, with elicited imitative responses. Cues patient when to wait for food to cool and be prepared or served. Plans and supervises special dietary needs. Caregiver reminds patient of mealtimes. Serves appropriate serving sizes or restricts access to undesirable food items to prevent overconsumption. Cuts meats or other difficult items. Pours liquids. Reminds patient to dispose of trash in proper container. Plans and supervises all special dietary needs. As the disease progresses within this stage, the Caregiver cues patient to chew longer or slow down as necessary. Goal Caregiver will provide for patient’s nutritional needs and will train in desirable social and table manners as needed. Patient will feed self using conventional eating utensils, with assistance, to comply with special dietary needs. Precautions May overeat if given free access to preferred food items. Cannot follow dietary restrictions. Failure to observe manners may alienate others. Check food and beverage temperatures Patient will be trained to follow/imitate highly desirable social and table manners and routines. Caregiver will provide for nutritional needs with appropriate food portions, restricting access to undesirable foods, assisting with cutting and containers. Patient will feed self with conventional utensils with assistance in cutting foods and opening containers. May overeat if given free access to preferred food items. Cannot follow dietary restrictions. Failure to observe manners may alienate others. Check food and beverage temperatures. Level GDS 6.0 ACL 3.4 to 3.0 GDS 7.0 ACL 2.8 Behavioral Characteristics May anticipate meal times based on familiar signs (kitchen activity/smells). Uses all utensils except knife; cuts with side of spoon or fork. Eating is self-absorbed and rate may be rushed with patient not stopping to swallow between bites or chewing inadequately. May eat strongly preferred food items only (candy) and does not understand need to eat balanced diet, follow dietary restrictions, or other amounts. Assistance Caregiver reminds patient of mealtimes. Serves appropriate serving sizes or restricts access to undesirable food items to prevent overconsumption. Cuts meats or other difficult items. Pours liquids. Reminds patient to dispose of trash in proper container. Plans and supervises all special dietary needs. As the disease progresses within this stage, patient demonstrates no awareness of others at the same table, does not talk, pass dishes, observe usual manners. Unaware of spilled food on table, self or floor. May chew noisily or loudly. May ask for food at any time of the day when hungry. As the disease progresses within this stage, the Caregiver cues patient to chew longer or slow down as necessary. May walk to familiar eating area without an escort when told. May pick up spoon or cup and begin to eat/drink without being cued. May have difficulty keeping small food (peas) or liquids on utensil. Does not cut with knife. Eats food as is on plate. May eat until plate is empty or may refuse certain foods. Cannot alter rate of eating, which may be very slow. No awareness of others at table, spills, temperature of foods or table manners. Caregiver reminds patient of mealtimes and escorts to table. Precuts foods into bite-sized pieces. Checks food temperatures. Assists with opening containers. Cues to wipe face with napkin. Takes into account food preferences, increases intake. Goal Caregiver will provide for nutritional needs with appropriate food portions, restricting access to undesirable foods, assisting with cutting and containers. Patient will feed self with conventional utensils with assistance in cutting foods and opening containers. Caregiver will meet nutritional needs of patient by precutting foods and assisting with self feeding as needed. Patient will feed self with conventional utensils with assistance from caregiver to cut food, open containers. Precautions May overeat if given free access to preferred food items. Cannot follow dietary restrictions. Failure to observe manners may alienate others. Check food and beverage temperatures. Watch for choking. Precut solid foods and avoid stringy, hard to chew foods. Check temperature of foods. Watch for spills with liquids. Consider food preferences. Level GDS 7.0, cont. ACL 2.4 ACL 2.2 to 2.0 ACL 1.8 ACL 1.6 – 1.4 Behavioral Characteristics May walk to table and sit when told or may follow guide to table. May pick up spoon or cup and begin to eat/drink without being cued. May start eating as soon as food is seen or served. May eat slowly or not finish meal. May be unable to get food on utensil and may use fingers. May show no awareness of others at the table. May ignore spills, dribbling of food on face. Is unaware of temperature of food and sequence of dishes. Sits while eating. Spontaneously picks up food with fingers and places them in mouth. May pick up a cup or spoon to drink or eat. Does not note temperature of food or cut food up into bite-size pieces. May be unable to get good on spoon. May eat very slowly. May need reminders to keep eating. May place non-edible objects in mouth. Does not note spills. May pick up soft finger food and place in mouth. May drink from a cup placed in hand. Does not use utensils such as spoon or fork. May spill food or liquid without awareness. May push caregiver away. Turns head, opens mouth, or swallows on command. May sit in bed with support to hold body against gravity. May cooperate with hand-over-hand feeding for soft foods. May express food preferences with grunts or smiles. Assistance Caregiver reminds patient of mealtimes and escorts to table. Precuts foods into bite-sized pieces. Checks food temperatures. Assists with opening containers. Cues to wipe face with napkin. Caregiver assists to transfer to chair or serves on tray in bed or wheelchair. Precuts food. Serves easy to chew food. Removes non-edible objects from view. Fills cups to half-full to prevent spills; checks food temperature. Cues to continue eating. Caregiver places soft finger food in front of patient. Places cup with liquid in hand. Cuts food into bitesized pieces and places them on food or spoon; guides utensil to mouth with hand-over-hand assist or feeds patient. If receiving enteral nutrition, Caregiver positions tube, feeds patient, and monitor intake to ensure adequate nutrition For PO intake, Caregiver places soft food on spoon and feeds patient with verbal commands to open, swallow. Places spoon in patient’s hand and guides to mouth. Goal Caregiver will meet nutritional needs of patient by precutting foods and assisting with self feeding as needed. Precautions Watch for choking. Precut solid foods and avoid stringy, hard to chew foods. Check temperature of foods. Watch for spills with liquids. Patient will self- feed with spoon or with fingers with assistance from caregiver. Caregiver will meet nutritional needs of patient by precutting foods and assisting with self feeding as needed. Watch for choking. Precut solid foods and avoid stringy, hard to chew foods. Check temperature of foods. Watch for spills with liquids. Patient will self- feed with spoon or with fingers with assistance from caregiver. Caregiver will provide for nutritional needs of patient by providing soft finger foods, liquids in cups, and assistance with foods. Patient will feed self soft finger foods. Caregiver will provide for nutritional needs of patient with either tube feeding or will feed a soft diet with commands or handover-hand methods. Watch for choking. Precut solid foods and avoid stringy, hard to chew foods. Check temperature of foods. Watch for spills with liquids. Check weights to ensure adequate intake. Watch for choking Level GDS 7.0, cont. ACL 1.2 – 1.0 Behavioral Characteristics Licks lips, salivates, or sniffs in response to food smells. Does not open mouth or swallow on command. Unable to meet nutritional needs through P.O. intake. Per advance directives, patient’s nutritional needs met through enteral feeding. Assistance Caregiver positions tube and feeds patient. Monitor intake to ensure adequate nutrition. Goal Caregiver will provide for nutritional needs of patient with regular tube feedings. Precautions Check weights to ensure adequate intake. Resource: Allen, C., Earhart, C., & Blue, T. (1992). Occupational Therapy Treatment Goals for the Physically and Cognitively Disabled. Bethesda, MD: The American Occupational Therapy Association, Inc. Basic Activities of Daily Living: Grooming Grooming includes care of the hair (combing, brushing, arranging, curling), teeth (brushing, flossing), face (washing, shaving, applying make-up and/or lotion, and the hands (applying lotion, trimming, trimming, applying nail polish). Level GDS 2.0 ACL 5.8 to 5.0 GDS 3.0 ACL 4.8 to 4.6 GDS 4.0 ACL 4.4 to 4.0 Behavioral Characteristics Independent in all grooming tasks. Makes successful fine motor adjustments with new grooming tools (curling iron). May not read directions before using new products. Varies routines, products and methods to produce new results. Applies own criteria for judging appropriate grooming outcomes and may not consider social consequences of this, which becomes more pronounced as the disease progresses within this stage. Varies pace as needed Initiates grooming tasks and varies one aspect of typical routine or one feature (hair style, make-up) on his/her own. Checks results of grooming, hair styling, and/or application of make-up by close examination when done. Corrects all errors one at a time. Learns new grooming procedures slowly by rote. May rigidly follow prescribed routines such as dental appliances. Initiates and completes a familiar routine of grooming. Combs, brushes, styles hair or applies make-up to match a previous performance (i.e., a particular hairstyle). May insist on familiar products/styles/time of day for tasks. Works at invariant pace, slower than average, and can’t alter pace. Finds supplies in familiar locations. May be unable to master use of new tools requiring neuromuscular adjustments (curling iron). Missing hidden spots and may prefer striking effects in make-up, perfume (“more is better”). GROOMING Assistance Caregiver points out consequences of selections that deviate markedly from social standards of grooming. Points out potential harmful secondary effects of new procedures or products. Reminds to check supply inventories and make appointments. Goal Patient will complete routine grooming care independently with assistance to avoid harmful effects in new tasks. Caregiver will explain potential harmful secondary effects of new procedures / products. Precautions May get busy doing routines and forget about the passage of time. May question need to conform to expectations of others for grooming. May miss dental/hair appointments. Demonstrates new grooming procedures slowly, one step at a time. Provides explanation of secondary effects. Provides supplies in accessible locations or inside drawers if familiar. Explains consequences of variations or product substitutions. Supervises use of potentially harmful products. Caregiver provides familiar, safe objects and products for hair arrangement, shaving, teeth and nail care. Stores objects in familiar and visible locations. Supervises use of new, sharp, or harmful tools or products Supervises timed procedures (facial mask, hair dyes, hot curlers). Checks heat setting on hot curlers. Suggest corrections for socially unacceptable results (heavy make-up). Patient will complete familiar grooming routines with some variations from his or her standard with assistance to avoid harmful or undesirable effects. Caregiver will assist with error correction and supervise use of new or potentially harmful products. Patient will complete familiar routine of grooming with assistance in set-up to avoid harmful effects. Caregiver will assist with error correction and supervise use of new harmful materials and new procedures and products. Vigilance is recommended to anticipate consequences of changes in actions, products for patients. Actions may be impulsive. Patient may be upset if usual materials are not available. May argue with corrections of heavy make-up application. Allow ample time for task completion (at 2-3x the average rate). Level GDS 4.0, cont. GDS 5.0 ACL 3.8 to 3.6 GDS 6.0 ACL 3.4 to 3.0 Behavioral Characteristics As the disease progresses within this stage, successful completion of familiar (combing, shaving, nail care, washing face) will require that all necessary tools/accessories are visible and within reach Combs, brushes hair, or shaves face or legs until all area is covered. Recognizes completion (all nails are trimmed). May miss back of head, sides of face, or other hidden surfaces. May attempt to style hair; uses clips in front only. Brushes front surfaces of teeth only. May forget a step of a customary routine (using mouthwash or rinsing mouth) and think they are done. May use all available lotion, shampoo. Alters amounts of make-up, toothpaste, lotion only with assistance. May engage in impulsive actions (shaving off eyebrows). Spontaneously sustain actions of combing, brushing, shaving with electric razor, applying make-up or lotion. As the disease progresses within this stage, the patient grasps brush, comb or toothbrush when offered at eye level and may do back and forth action in one place with cueing only. No awareness of effects. Uses too much/too little toothpaste, lotion, make-up. Misses obvious dirt when washing face or hands. May start actions when objects are seen. Assistance Caregiver provides necessary safe objects at appropriate time of day. Provides correct amounts of shampoos, lotions. Sequences actions, demonstrates changes in locations, amounts for more effective results. Checks for and corrects socially unacceptable results. Goal Patient will recognize completion of grooming tasks. Caregiver will supervise and provide appropriate assistance to avoid harmful effects. Caregiver will arrange for long-term or special dental care. Precautions Restrict access to dangerous or undesirable objects. Do not leave unsupervised with any sharp, toxic or hot materials. Check every few minutes if left alone. Assists with styling back of head, cutting nails, correcting socially inappropriate results. Caregiver provides necessary safe objects at appropriate time of day. Sequences through actions; stops excessive actions. Checks results. Does hard to reach spots and corrects errors. Arranges hair, trims nails, flosses teeth, applies make-up, and shaves with straight razor. As this stage progresses, the caregiver offers or places grooming items (comb, brush, toothbrush with toothpaste) within 6 inches for the patient and provides gestural cue to begin action associated with object. Patient will maintain grooming actions and cooperate with caregiver assistance. As the disease progresses, Patient will initiate familiar actions of brushing, combing or Patient will grasp grooming objects. Caregiver will provide tools and objects and appropriate assistance with cues to avoid harmful or undesirable effects. Restrict access to harmful or undesirable objects. Monitor for excessive use of materials or actions. Do not leave alone when using water. Watch for discomfort that may result in striking out. Watch for loss of balance while bending, standing Level GDS 7.0 ACL 2.8 to 1.0 ACL 2.4 ACL 2.0 ACL 1.8 ACL 1.4 ACL 1.0 Behavioral Characteristics This stage shows a progression from extensive assist to dependent status. The following grooming characteristics may be present. Holds mouth open while standing next to sink. Leans over at waist to spit when cued. May stand while shaved or combed. While seated, may hold mouth open verbal cues. May swish water, lean to spit into adjacent bowl. May lean forward or back to allow for shaving or combing hair. While seated, may open mouth and keep open with continuous tactile cues to allow brushing. May drink rinse water. May rotate head to cooperate. May turn head or open mouth on command or with tactile cues. Unable to comb hair, shave, care for teeth or nails. Individual may turn head or open mouth on command or with tactile cue. Assistance Caregiver leads to basin, gives verbal cues to open mouth, drink, rinse, bend, spit. Caregiver initiates all grooming tasks. Gives verbal commands to rinse, spit, lean, turn head, close or open mouth. Caregiver brushes teeth, holding mouth open with hand or verbal commands. Provides rinse water, bowl near face to spit in. Caregiver does all tasks. Provides water to rinse mouth after meals; lifts and holds head. Caregiver does all tasks. Goal Caregiver will maintain all hair, teeth, facial care needs. Precautions Watch for discomfort that may result in striking out. Watch for loss of balance while bending, standing Caregiver will maintain all hair, teeth, facial care needs. Watch for discomfort that may result in striking out. Caregiver will maintain all hair, teeth, facial care needs. Watch for loss of balance while bending, standing Inspect for dental problems. Remove dentures Caregiver will maintain all hair, teeth, facial care needs. Inspect for dental problems. Remove dentures Caregiver will maintain all hair, teeth, facial care needs. Inspect for dental problems. Remove dentures Resource: Allen, C., Earhart, C., & Blue, T. (1992). Occupational Therapy Treatment Goals for the Physically and Cognitively Disabled. Bethesda, MD: The American Occupational Therapy Association, Inc. Basic Activities of Daily Living: Toileting Toileting includes recognizing the need to void, going to the bathroom, closing the door, adjusting garments, sitting down, voiding, wiping the body clean, readjusting garments, flushing the toilet, washing and drying hands, and leaving the bathroom. Level GDS 2.0 ACL 5.8 to 5.0 GDS 3.0 ACL 4.8 to 4.6 Behavior Independently performs all toileting. Can explore a new environment to locate a bathroom without assistance. Can figure out use of stiff or new flush controls and learn use of assistive devices by varying neuromuscular effects. May not anticipate need for toileting in new situations or consider sanitary requirements in unusual circumstances. Independently performs usual toileting routine. Notes all striking cues in a new environment to locate a public restroom. May not anticipate need to use bathroom before trips, but can learn to take this precaution for regularly scheduled events. May learn bathroom etiquette (amount of time, conservation of paper, putting lid down after use) by rote. As the disease progresses in this stage, patient will still scan visible environment for needed supply (toilet paper, paper towels, soap dispenser) but may not find it unless at or near eye level. TOILETING Assistance Caregiver identifies sanitary conditions when conventional needs for toileting do not exist. Goal Patient will independently perform toileting routine with assistance from caregiver to following social rules. Precautions Caregiver will identify desirable behaviors for patient to maintain social and hygienic standards. Caregiver identifies social conventions related to toileting when patient must share facilities with others. Reminds patient to use bathroom before trip. Patient will independently perform toileting routine with assistance from caregiver to following social rules. Caregiver will identify desirable behaviors for patient to maintain social and hygienic standards. As the disease progresses in this stage, Caregiver provides all supplies for customary toileting routine in visible locations. Checks for errors in adjusting garments and assists with fasteners as needed As the disease progresses in this stage, Patient will initiate and complete usual toileting routine when all supplies are available with caregiver assistance to solve problems and avoid undesirable effects. Caregiver will provide appropriate set-up and assistance with solving problems to avoid undesirable effects. As the disease progresses in this stage, Patient may take longer than average to complete toileting routine. Level GDS 4.0 ACL 4.4 to 4.0 GDS 5.0 ACL 3.8 to 3.6 Behavior Follows a routine of toileting without variation in a familiar environment. Recognizes difficulties that interfere with completion of toileting and asks for help, i.e., no paper, door latch that won’t close, inability to operate flush. Checks results of wiping and may be able to report change in bowel or bladder habit. Does not anticipate need to use toilet before going to an event or location with limited access to toileting facilities. Needs to have public restrooms pointed out; may be unable to operate if unfamiliar or stiff flush control. May fail to note errors in clothing adjustment at back. May use too much paper thinking “more is better.” Does not consider needs of others, such as limiting time in bathroom, lowering seat, etc. As the disease progresses in this stage, patient will need to be escorted to a public restroom. Has trouble with some fasteners requiring fine adjustments. May complete sequencing of toileting actions with one or two steps left out, i.e., door left open, forgets to wash, zip pants up. Can recognize completion of task and inform caregiver when through. May not ask for assistance with fasteners. May be able to imitate a modification of wiping for more desirable results, although effects are still not noted. Examples of modifications include wiping longer, harder, using less paper. Assistance Provides all supplies for customary toileting routine in visible locations. Checks for errors in adjusting garments and assists with fasteners as needed. Monitors amount of toilet paper used and provides precut amounts if necessary. Reminds patient to use bathroom before trips and other conditions with limited access to restrooms. Points out locations of public facilities and demonstrates use of unfamiliar controls. Goal Patient will initiate and complete usual toileting routine when all supplies are available with caregiver assistance to solve problems and avoid undesirable effects. Precautions May take longer than average to complete toileting routine. Caregiver will provide appropriate set-up and assistance with solving problems to avoid undesirable effects. At the latter stage 4.0 of disease progression, patient needs to be escorted to public restrooms. Caregiver checks quality of result and is available to assist with fasteners. Pre-tears toilet paper to prevent excessive use. Patient will imitate modifications of actions for better results. Caregiver will demonstrate modified actions, check results, and correct errors as needed. Failure to check results may produce skin problems, undesirable social problems (appearance). Do not leave alone in bathroom. May fall. Level GDS 6.0 ACL 3.4 to 3.0 GDS 7.0 ACL 2.8 ACL 2.6 Behavior Recognizes the need to void and goes to familiar bathroom. Operates ordinary door handles but may not close door while in bathroom. Doffs and dons most clothing items slowly; may need assistance with new and unusual fasteners. Wipes but does not check results and may wipe over and over using excessive amounts of toilet paper. May forget to flush, wash hands. May not adjust garments, may leave shirt untucked, or zipper open. As the disease progresses within this stage, patient may still recognize the need to use toilet, walks toward the bathroom but may get distracted on the way and not arrive on time. May be unable to doff and don loosefitting pants. May take toilet paper in hand but wipes ineffectively or only when cued. May flush toilet if cued. Does hand washing if cued. Men may miss toilet if urinating while standing. Slowly walks to familiar bathroom. Grabs bar or other objects (toilet paper dispenser) to stabilize self when sitting down or standing up. May grip toilet paper or pants but needs assistance in wiping and adjusting garments. May communicate need to use toilet immediately before. May walk to bathroom but not get there in time. May put hands under water. Assistance Caregiver checks quality of result and is available to assist with fasteners. Pre-tears toilet paper to prevent excessive use. Goal Patient will initiate and complete toileting in familiar environment with caregiver assistance to avoid ineffective results. Precautions Failure to check results may produce skin problems, undesirable social problems (appearance). Caregiver will check results and correct errors to avoid undesirable medical and social consequences. Do not leave alone in bathroom. May fall. As the disease progresses within stage 6, caregiver needs to sequence the patient through the actions. Caregiver leads to bathroom, or checks to make sure the patient arrives at bathroom. Assists to remove garments. Places toilet paper in patient’s hand, checks results. Assist with fasteners. Cues to flush, washes hands. Assists males with hitting toilet when standing up. As the disease progresses within stage 6, Patient will initiate and complete toileting with appropriate assistance from caregiver. Caregiver leads to bathroom on request or at regular intervals. Assists with garments, wipes patient, readjusts garments, cues and assists with hand washing. Easy to remove garments reduce accidents. Install grab bars for stability. Patient will use grab bars when standing and sitting and will cooperate with caregiver assistance. Caregiver leads to bathroom on request or at regular intervals. Assists with garments, wipes patient, readjusts garments, cues and assists with hand washing. Easy to remove garments reduce accidents. Caregiver will provide appropriate cues to sequence patient through toileting activities and will check results to ensure safe and hygienic outcomes. Caregiver will ask patient about need to use toilet at regular intervals and will provide assistance to complete activities Patient will communicate need to use toilet and cooperate with caregiver assistance. Caregiver will ask patient about need to use toilet at regular intervals and will provide assistance to complete activities. May pull on bathroom hardware. Watch for falls. Watch for falls. Level GDS 7.0 ACL 2.4 ACL 2.2 ACL 2.0 ACL 1.8 – 1.6 ACL 1.4 to 1.0 Behavior Follows caregiver through open doorway to bathroom. Sits and stands spontaneously. May not wait to be wiped or have garments adjusted. May put hands under water when cued. May cooperate with a pivot transfer to toilet. Stands or sits on command while being wiped and garments are adjusted. Sits on toilet when placed by caregiver. May lean to assist wiping when cued. No awareness of need or no communication of need to defecate or urinate. May cooperate by rolling onto side to ease placement of bedpan or assist with cleaning when cued. No awareness of need to defecate or urinate. Does not assist caregiver in toileting activities. Assistance Caregiver takes patient to bathroom at regular intervals. Assists with garments, wiping. Flushes toilet. Cues to put hands under water and applies soap, rinses. Caregiver takes patient to bathroom at regular intervals. Gives assistance with tactile and verbal cues to do pivot transfer. Wipes patient, arranges clothing. Caregiver positions patient on bedpan or toilet at regular intervals. Wipes and arranges clothing. Caregiver places diapers on patient, checks and changes regularly or caregiver positions bedpan at regular intervals. Caregiver places diapers on patient, checks and changes regularly. Goal Patient will follow caregiver to bathroom and cooperate with assistance to complete toileting. Precautions Watch for falls. Patient will stand/sit on command and cooperate with pivot transfers. Watch for falls. Observe for body mechanics to avoid injury. Caregiver will control bowel and bladder accidents and will prevent medical complications of incontinence. Patient will sit on toilet and cooperate with assistance. Do not leave unattended on toilet. Caregiver will control bowel and bladder accidents and will prevent medical complications of incontinence Caregiver will control bowel and bladder accidents and will prevent medical complications of incontinence. Caregiver will control bowel and bladder accidents and will prevent medical complications of incontinence. Watch for skin breakdown. Watch for skin breakdown. Resource: Allen, C., Earhart, C., & Blue, T. (1992). Occupational Therapy Treatment Goals for the Physically and Cognitively Disabled. Bethesda, MD: The American Occupational Therapy Association, Inc. Basic Activities of Daily Living: Walking and Exercising Walking and exercising include awareness of how to move a normal body to different locations in space or through different movement patterns. Level GDS 2.0 ACL 5.8 to 5.0 Behavior Ambulates or runs to familiar and new locations independently. In an early stage 2, patient will plan a new route with assistance from maps. The ability to effectively use a map diminishes by mid-stage 2 (ACL 5.4). Notes spatial arrangements of buildings and streets during the walk. Discovers new routes and remembers them. May consider and follow recommended exercise programs, substituting methods when indicated. Understands secondary effects and factors to be considered in pursuing a conditioning program or other excise program. As the disease progresses within this stage, these secondary effects will need to be explained. Patient may refuse to comply with them and the exercise program. Ambulation to familiar routes remains intact. Ambulation to new locations is by trial and error; may forget newly discovered routes and have to rediscover them. GDS 3.0 ACL 4.8 to 4.6 Varies routes taken within familiar neighborhood to reach destinations associated with routine activities. Scans visible environment to search for desired cue, such as a landmark, to guide direction. Early in this stage, patient reads street signs and attempts to use this information in guiding route but may still be unable to find way home if lost. Follows a verbal explanation of a safety hazard when effects are immediate and visible such as a railroad crossing; may not understand less visible hazards such as a “bad neighborhood.” WALKING AND EXERCISING Assistance Goal Caregiver provides information to ACL 5.6: Patient will compare assist comparisons or selections in methods of exercise and follow exercise programs or activities. suggested protocols to avoid harmful effects. As the disease progresses within this Caregiver will provide information stage (ACL 5-4), Caregiver identifies as needed to avoid harmful effects. safety hazards that are secondary and not visible, including need to plan for water, food, proper dressing, first aid, ACL 5.4: Patient will ambulate to emergency plan for hikes in remote new locations of desirable areas. activities and follow an exercise program with assistance to avoid Points out secondary effects of injury. altering exercise programs (injury, exhaustion) and precautions for Caregiver will provide warnings exercise (hot or cold weather, smog regarding safety hazards. alerts, etc). At end stage 2.0 (ACL 5.0), Caregiver identifies potential hazards of walking in unfamiliar areas. Caregiver escorts to all new locations. Points out landmarks to be used as cues to guide direction in new environment and accompanies until well-learned. Points out visible hazards requiring adjustments in pace or routes. Checks performance of all graded exercise, ACL 5.0: Patient will walk to desired new locations with assistance to identify safety hazards. Caregiver: Same as above. Early stage 3.0: Patient will ambulate to desired new locations with assistance and will scan environment for safety hazards. Caregiver will provide assistance to ensure safety in walking in community. Precautions Patient may refuse to comply with exercise protocols. Variations in usual routes do not anticipate hazards or influence of time of day or safety of the route. May get lost. “Pleasure hikes” should be supervised. Variations in exercise programs should be checked for safety. Level GDS 3.0, cont. ACL 4.8 to 4.6 GDS 4.0 ACL 4.4 to 4.0 Behavior May attempt to alter pace in response to time constraint but this is not maintained. Needs new routes identified and learns them after several days to weeks of practice. Learns an exercise program by rote and does it invariantly. Assistance Walks or urns within fitness capacity to reach a predetermined familiar destination within ½ to 1 mile. Chooses to go by familiar routes. Notes striking features at eye level but fails to attend to signs except as landmarks. Poor attention to terrains changes or activity or noise outside visual field and may not alter pace in response to a time constraint. May ask for assistance if lost. May follow suggested routes given for safety reasons but does not understand reason behind suggestion. Needs new routes identified by others and learns these after several days to weeks of practice. May be trained to follow an exercise program after doing the program several times; may get bored and abandon a repetitive exercise routine. Can count up to 20 repetitions of exercise. Does not anticipate hazards or secondary effects of incorrect practice of program. Caregiver escorts to all new locations. Points out landmarks to be used as cues to guide direction in new environment and accompanies until well-learned. Points out visible hazards requiring adjustments in pace or routes. Checks performance of all graded exercise, As the disease progresses within this stage, awareness of changes in familiar landmarks diminishes, thus unexpected changes, such as removal of landmark or need to detour, creates confusion. Patient may resist going to a new environment and prefers familiar premises. Transfers from standing to sitting are generally safe but slow. Goal Later stage 3.0: Patient will vary routes to familiar locations with caregiver assistance to identify hazards. Precautions Caregiver will provide assistance to avoid hazards or getting lost. Patient will ambulate and perform transfers independently using one or two visual cues to navigate to reach desired destination. Fails to attend to potential hazards. Patient will ask for assistance if lost. Patient will learn new route or exercise program after several days to weeks of practice. Caregiver will provide assistance to avoid hazards or getting lost. As the disease progresses within this stage, it will be necessary to eliminate expectation of learning new routes with dependence on visual cues. Appropriate Goal (ACL 4.0): Patient will ambulate and perform transfers independently within a familiar environment to reach a desired location. Caregiver goal: Same as above May become very anxious to highly stimulus-laden environments such as airports, malls, amusement parks, casinos. May resist going to such places. Level GDS 5.0 ACL 3.8 to 3.6 GDS 6.0 ACL 3.4 to 3.0 Behavior Ambulates within familiar living areas separated by closed doors or short distances (next door neighbor, backyard). Aware of inside and outside of premises. Aware of destination after arrival and may express surprise. May wander to a new location to access a desired activity, get lost, and be unable to retrace steps. May imitate change in duration or amount of graded ROM or strengthening exercise but needs cues to maintain. Ambulates within 2 or 3 familiar contiguous rooms to access desirable activities, i.e., toilet, food, coffee, without assistance. Follows a guide to new locations without awareness of destination. Can alter ambulation pace on command but is easily distracted and reverts to previous pace. Is often impulsive when changing body position from sit to stand and easily loses balance. May walk into others and does not note differences in terrain or traffic lights. Can complete ROM exercises with direct supervision. As the disease progresses within this stage, the pace of ambulation decreases and will move towards objects that elicit familiar actions, such as picking up a telephone. ROM exercises are repeated in a perseverative fashion. At the latter point in this stage, balance issues become more prevalent and attention span becomes more fleeting. Briefly imitates ROM exercise. Assistance Caregiver restricts access to new or undesirable areas by locking doors to outside. Escorts to all new locations outside living area. Provides cues to modify pace as needed. Provides direct supervision of all graded exercise programs with appropriate cues to ensure proper duration, force of actions. Caregiver restricts access to undesirable locations or objects by closing doors or removing objects from view. Escorts to all new locations. Checks position of chairs before patient sits down. Stops perseverative movements with verbal commands. Directly supervises all ROM and exercises programs. Goal Patient will ambulate and transfer safely within a familiar setting with assistance to avoid getting lost or fatigued from overexertion. Precautions Wanders and may get lost outside restricted areas. Impulsive actions may result in falls. Caregiver will escort to new locations. Caregiver will supervise graded exercise program to ensure proper performance. Patient will ambulate in restricted areas. Caregiver will escort to new locations. Caregiver will provide cues and assistance in climbing stairs, sitting down, and transferring. Wanders and may get lost outside restricted areas. Impulsive actions may result in falls. Level GDS 7.0 ACL 2.8 ACL 2.6 Behavior Assistance Goal Grabs railing, bar or other objects to stabilize position or to sit, stand, or step up. May not note position on chairs before sitting; may grab unstable objects. May cooperate with upper extremity resistive exercises by pushing or pulling with cues. Walks to a known destination such as bedroom or bathroom. May push or bang on closed doors. Does not note uneven terrain. Steps up a stair when cued. Caregiver guides to desired locations by walking next to or in front of patient. Points to railings. Positions chairs before patient sits. Patient will stabilize self when changing body position. Caregiver will provide cues and assistance in climbing stairs, sitting down, and transferring. May grab unstable objects or people to prevent a fall. Caregiver opens door to allow access to desired destination. Assists up stairs or steps by cues and physical guidance. Removes area rugs and obstacles. Caregiver confines to safe, level areas. Closes doors to restrict access. Positions chair before patient sits. Patient will walk to known destination within restricted areas. Caregiver will cue to climb stairs and provide safe walking areas. May wander or get lost if unrestricted. Patient will ambulated to/within restricted areas with falling. Caregiver will provide safe environment. Patient will stand and make pivot transfers with assistance. Caregiver will provide cues, assistance in standing, transfer. Patient will maintain seated position. Caregiver will assist with seated transfers. Patient will cooperate with ROM exercise by holding body parts against gravity. Caregiver will assist ROM exercises. Caregiver will provide safe environment to minimize/prevent falls and protect against medical complications due to immobility. May wander or get lost if unrestricted. ACL 2.4 Ambulates slowly and aimlessly through doorways and around furniture. Stands and sits. May pace excessively. ACL 2.2 ACL 2.0 Stands and may take a few steps with assistance. May cooperate with a pivot transfer. Uses “righting reflex” with upper extremities to prevent falling. Does not ambulate. Holds body upright while sitting. ACL 1.8 May raise arms to do ROM. May resist passive ROM by pushing away. ACL 1.6 to 1.0 Does not ambulate. Does not cooperate with transfer from lying to sitting position. Does not assist with passive ROM exercise. Caregiver provides tactile and verbal cues to assist standing, stepping, and making pivot transfers. Caregiver provides continuous cues to lean to transfer from one seated position to another. Bed with side rails. Caregiver provides continuous cues to do ROM exercise or lift buttocks off bed. Bed with/without side rails. Caregiver turns body to maintain skin integrity. Passive supports to maintain sitting in bed. Passive ROM for joint mobility. Precautions Watch for falls. Observe proper body mechanics to avoid back injury. Watch for fatigue or discomfort that results in pushing away. May resist by pushing away. If used, side rails in proper position. Check for skin integrity. Resource: Allen, C., Earhart, C., & Blue, T. (1992). Occupational Therapy Treatment Goals for the Physically and Cognitively Disabled. Bethesda, MD: The American Occupational Therapy Association, Inc.
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