Mainstreaming Disability
Data Collection and
Reporting:
Transitioning from data collection to data
analysis and data presentation
Jennifer H Madans/Mitchell Loeb
National Center for Health Statistics, USA and
Washington Group on Disability Statistics
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WG Data Collection Tools:
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Short set on functioning: adopted in 2006
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measures difficulty functioning in 6 universal, basic
activities
Extended set on functioning for adults: adopted 2010
WG/UNICEF Module on Child Functioning: adopted in
2016
WG/UNICEF Module on Inclusive Education: in testing
WG/ILO Disability module for inclusion on labor force
surveys: in testing
Module on Mental Health: under development
Modules on environment & participation: under
development
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The Washington Group Short Set…
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has been used in censuses or surveys in over
78 countries
has been promoted by international aid
programs, (DFID/UK and DFAT/Australia), as
the means to collect disability data in all
programs and projects,
has been introduced as the means for
collecting disability data by the UN Statistical
Division (UNSD) and the UN Economic
Commission for Europe for the 2020 round of
censuses.
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Workshops and Expert Consultations:
Nairobi, Kenya
06/2005
Mumbai, India*
09/2012
Bishkek, Kyrgyz Republic
12/2006
Belmonpan, Belize*
01/2013
Sarajevo, Bosnia &
Herzegovina
02/2008
Amman, Jordan
05/2013
Bangkok, Thailand
04/2008
Podgorica, Montenegro*
07/2013
Ohrid, Macedonia
11/2008
Apia, Samoa*
06/2014
Dhaka, Bangladesh
08/2009
Hammamet, Tunisia*
02/2015
Muscat, Oman
10/2010
04/2013
Geneva, Switzerland*
07/2015
Damascus, Syria
12/2010
NY, New York*
06/2016
Sharjah, UAE
05/2011
Nadi, Fiji
07/2016
Bogotá, Colombia
07/2012
08/2013
Westchester, NY*
10/2016
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*in collaboration with UNICEF
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Planned workshops:
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UNSD: regional ‘stock-taking’ workshops
UNICEF: regional workshops on the
measurement of disability
WG: regional implementation workshops
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Pacific (Fiji) – 2016
Middle East – early 2017
Caribbean – spring 2017
Asia or Africa – fall 2017
Open meeting – place and date to be determined
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Selected joint activities:
• Handicap International: initiatives in the
Andean region, east Africa, in emergency
response situations; and training
(development of e-learning modules)
• US AID: development of a disability module to
include the WG Short Set in the Demographic
and Health Surveys (DHS)
• UNICEF: deployment of the Module on Child
Functioning in the Multiple Indicator Cluster
Surveys (MICS)
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Selected joint activities:
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ITU: participation at the 4th Meeting of the Expert
Group on ICT Household Indicators 7th Meeting of
the ITU Expert Group on Telecommunication/ICT
Indicators
Global Action on Disability (GLAD) Network: to
provide support and coordination in enhancing the
inclusion of persons with disabilities in
international development and humanitarian
action.
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Volume on the history and
accomplishments of the WG:
International Measurement of
Disability:
Purpose, Method and Application
The Work of the Washington
Group
B. M. Altman (Editor)
Springer (Publisher)
Publication: June, 2016
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Disaggregation requirements
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Need a straightforward and simple way to
identify persons with disabilities: the WG
questions identify those at greater risk than
the general population for limitations in
participation.
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Need indicator/outcome data (education,
employment, income, health care access) from
data collections (census/surveys) that also
include the above disability identifier.
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Disaggregation in US NHIS data
NHIS 2013: 18-64 years of age
Weighted %
Disability status:
WG Short set: Cut-off is
at least a lot of difficulty
in at least 1 domain
Without
disability
With
Disability
Employment Status Last Week=Working
73.4
29.1
Current every day smoker
14.5
27.8
Covered by health insurance? (Yes)
79.5
81.0
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Reporting data on disability during the
transitions to new data collection methods
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Currently available data have been collected
using different approaches and different data
collection tools and are, therefore, not
comparable cross-nationally
Reporting of estimates that are not comparable
reduces confidence in the data
Should we only report comparable data or find
a way to clearly report data that are not
comparable?
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Option for reporting disaggregated data that
maximizes comparability and transparency
Disaggregation variable
Employment Status:
% working
Table 1: Results from Censuses/Surveys
Determination of
# of
disability:
questions
Type of Disability/Impairment
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5
2
Activity limitation
3
5
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Response options:
Cut-off in bold
Country
Year
Yes/No
Yes/No
Yes/No
Morocco
Cambodia
Hungary
2004
2008
2011
Yes/No
Yes/No
No difficulty
Some difficulty
A lot of difficulty
Completely unable
Panama
Malawi
Poland
2010
2008
2009
Philippines
Mexico
2010
2010
Turkey
2011
Washington Group (modified)
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Yes/No
7
Yes/No
Washington Group (as intended)
6
No difficulty
Yes, some difficulty
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Yes, a lot of difficulty
Cannot do it at all
With
disability
Without
disability
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For more information about the WG visit our new
website:
http://www.washingtongroup-disability.com/
Questions:
[email protected]
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