Putting the UK Vision Strategy into action for children and young people Throughout this document, we have used the following abbreviations: CYP (children and young people) and CYPF (children, young people and their families). These guidelines are intended for those responsible for commissioning and providing services for children and young people and their families. They will assist with the interpretation and implementation of the UK Vision Strategy across health, education and social care. They should be read in conjunction with the UK Vision Strategy 2013-2018, the framework of outcomes entitled ‘Seeing it My Way’, and the attached Pathway for Children and Young People. Strategy Outcome 1 Everyone in the UK looks after their eyes and their sight In the next five years, we will work to: raise awareness and understanding of eye health particularly focusing on people most at risk of eye disease encourage every individual to develop personal responsibility for their eye health and sight raise awareness of eye health and the impact of sight loss among health and social care practitioners and ensure the early detection of sight loss and prevention where possible. Priority actions 1.1 To make the eye health of children and young people a public health priority, supported by targeted, evidence based campaigns. 1.2 To increase public understanding of children’s and young people’s eye health through education and campaigns and to promote the uptake of routine sight tests. To ensure that genetic services (including counseling and, where indicated, genetic testing) are offered to all those at risk of inherited eye disease. Page 1 of 5 1.3 To increase the understanding of children’s and young people’s eye health among health and social care and education practitioners, through training and development programmes. 1.4 To identify, assess and treat potential causes of vision impairment amongst CYP through the implementation of the National Screening Committee programmes and other strategies. 1.5 To identify CYP with health conditions associated with an elevated risk of sight loss (for example, certain physical disabilities, learning disabilities and/or complex needs) and provide appropriate screening and treatment. To increase awareness of the links between those conditions and vision impairment among healthcare practitioners, including eye health, social care and education practitioners. 1.6 To promote investment in research to reduce sight loss in CYP and establish an evidence base for effective rehabilitation and/or habilitation and support. Strategy Outcome 2 Everyone with an eye condition receives timely treatment and, if permanent sight loss occurs, early and appropriate services and support are available and accessible to all. In the next five years, we will work to: improve the co-ordination, integration, reach and effectiveness of eye health and eye care services. ensure that, when sight loss occurs, emotional support, habilitation and/or rehabilitation will be provided in a timely fashion, enabling people to regain or retain their independence. Priority actions 2.1 To improve access to eye health treatments and vision impairment services for all CYP, especially those who are already experiencing sight loss, or those known to be at higher risk (for example, those with certain physical disabilities, learning disabilities and/or complex needs). 2.2 To involve CYP and the professionals who work with them in the development, design and delivery of services to ensure that these meet identified needs. Page 2 of 5 2.3 To support the commissioning of evidence-based, integrated eye care and sight loss services. These should enable CYPF to make best use of community and hospital resources including low vision services. There should be timely access to a paediatric ophthalmologist for all children presenting with vision impairment and for those with a high risk of sight loss (for example, those with certain physical disabilities, learning disabilities and/or complex needs). 2.4 Services should provide seamless pathways through health, social care, education and voluntary sector through to employment, with a broad range of support provision available at all times. CYP with additional disabilities or complex needs (and their families) may require additional help in order to coordinate services and the provision of support. 2.5 To provide reliable, accessible and relevant information in a range of formats and languages on eye conditions, eye care, sight loss services, support networks and legal entitlements, so that CYPF can understand their options, select services and make informed decisions. 2.6 To make emotional support an integrated part of all eye care and sight loss services for all CYPF with counseling and peer support available as soon as a potential problem is identified. A suitably trained and qualified professional should be available in all paediatric eye centres/clinics to offer practical and emotional support, advice and information to CYP with vision impairment and their families. 2.7 To ensure that all habilitation training and support is led by a qualified habilitation specialist. Habilitation services should cover mobility and other skills needed to promote independence in a variety of settings at school, home and in the community. 2.8 To ensure that all assessments consider the impact of eye conditions on the physical and emotional wellbeing of CYP and that they and their families are treated as equal partners in the assessment process. 2.9 To increase understanding of the causes and likely impact of sight loss on CYPF among health and social care, education and employment practitioners who routinely come into contact with CYP. Page 3 of 5 Strategy Outcome 3 A society in which people with sight loss can fully participate In the next five years, we will work to: improve attitudes, awareness and actions within education, employment and other services ensure that children and young people with vision impairment can take their place in society achieve improved compliance with equality legislation. Priority actions 3.1 To increase awareness of rights and services among all individuals with sight loss, and their families, parents and carers, to improve uptake of services and increase confidence in seeking equal entitlement. 3.2 To support equality of access to education and vocational training, including access to all materials for people of all ages with vision impairment. CYP should be assured full access to the academic and habilitation (mobility and independence skills) curricula and equality of opportunity. CYP should have the opportunity to build their confidence in their abilities through full participation, including social activities, and maximise their independence through their pre-school and school years. Vision impaired CYP with additional or complex disabilities should receive the best possible education and care in the environment that is best suited to their needs. 3.3 To establish or maintain a clear and smooth transition pathway from children and young people’s services into adult services, thus ensuring young people are enabled to fulfill their potential and build their confidence; and that rights to benefits and support are not lost during the transition. This applies equally to health services and social care services. Attention should be paid to other periods of transition such as between primary and secondary education. 3.4 To work in partnership with employers to remove barriers to recruitment and employment of young people with sight loss. Employers and the general public should be made aware of the support available from Access to Work and similar schemes. 3.5 To ensure that young people acquire employment related social and independence skills and receive advice for planning their career pathways. Page 4 of 5 3.6 To ensure CYPF obtain benefits to which they are entitled in order to achieve equality of opportunity, independence and wellbeing. There should be clear, accessible guidance on how to apply for benefits backed up by transparent decision making procedures. 3.7 To ensure providers of public services produce information that is accessible to CYP with sight loss, and where appropriate, in the formats of their choice. 3.8 To enable CYP with vision impairment to be fully informed about new technologies and products that promote independence. To ensure that formal and informal opportunities are available for learning how to use new applications and devices. To encourage manufacturers to design new products for mass markets that are fully accessible. 3.9 To ensure social, cultural, sports and leisure activities are fully inclusive to CYP with sight loss including those with additional physical or learning disabilities and/or complex needs. 3.10 To enable CYP with sight loss to move around freely, safely and independently by implementing the principles of inclusive design, including clear pavements, safe crossings and the use of bold and contrasting signage. 3.11 To support transport providers in the delivery of accessible "end to end journeys", for example appropriate transport interchanges and booking and ticketing facilities, as well as the provision of real time information technology, such as audio/visual information systems on buses. Page 5 of 5
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