Invisible Disabilities and Caregivers in the Workplace 1 Disabilities in the Workplace Define “disability” Common invisible disabilities in the workplace Hiring people with disabilities and caregivers of someone with a disability Creating an inclusive environment Tips for working with people with disabilities Resources available to employers 2 What’s a Disability? A person has a disability if he/she has a mental or physical impairment that significantly limits one or more life areas. Source: Americans with Disabilities Act 3 What’s a Life Event? • • • • • • • • • • Caring for oneself Performing manual tasks or working Seeing or hearing Eating Sleeping and breathing Walking or standing Lifting or bending Speaking Learning or reading Concentrating, thinking, communicating. 4 Examples of Invisible Disabilities AIDS/HIV Anxiety Disorders Arthritis ADD/ADHD Autism Bipolar Disorder Brain Injury Cancers Chronic Fatigue Diabetes Heart Conditions Learning Disabilities Lyme Disease Hearing Loss PTSD Breathing Disorders Sleep Disorders Vision Impairments Gastrointestinal Disorders Depression Migraine Headaches Memory Loss 5 Disability Statistics • • • • • 56.7 million people in the US have a disability (19%) 39.8 million caregivers provider care to an adult with a disability Half of those living with a disability are between ages 18 and 64 Employment rate – between 24% and 53% employed Almost 30% of those between 18-64 live in poverty • Question – what state has the least amount of people with disabilities? • Question – what state has the least amount of people with disabilities? 6 Aging and Disabilities The older you get, the more likely it is to be diagnosed with a disability. Under 5 – 1% 6-17 years old – 5% 18 – 64 years old – 10.5% Over 65 – 36.6% 7 Caregiver Statistics • Nearly 40 million Americans provided unpaid care to an adult in the last year • 40 percent of caregivers are male • Nearly 1 in 10 caregivers is 75 or older • Total caregiving hours are particularly high for those caring for a spouse or partner (an average of 44.6 hours a week) • 40 percent of caregivers report wielding a high burden of care; 18 percent report a moderate burden of care • When asked if they had a choice in taking on their caregiving role, half of respondents said no 8 So, now what? You want to hire someone and they share with you they have a disability. What do you do? You might have an employee who is a caregiver for someone with a disability. How can you accommodate this team member? 9 Caregiving 101 Don’t imply that child care is more important than caring for an older adult. Share corporate policies on elder care and be more accepting of requests for time off on short notice. Design policies that accommodate caregiving responsibilities without penalizing the employee, such as not requiring the use of vacation time to provide care. 10 Caregiving 101 • Have resources like Employee Assistance Programs to help those caring for others cope with the stress. • Flexible use of benefit time. • Discounted home care through a specific vendor for caregivers so they can come to work • Medicare, Medicaid and insurance experts to help caregivers navigate the system • Technology from home or mobile devices Source: National Alliance on Caregiving www.caregiving.org 11 Person First Language The person is always first and the disability is always second. Examples: Joe is our administrative assistant. He’s a person who utilizes a wheelchair. Sally works in the mailroom. She is hard of hearing and uses an interpreter to communicate. Mike works in the cafeteria. He has a learning disability and his manager reads aloud all the written instructions so he understands. 12 Technology and Accommodations There are so many options to make work more accessible for someone with a disability or caring for a loved one with a disability. 13 14 15 Disability Etiquette 1. It’s not your news to share. 2. People with disabilities want to blend in, like everyone else. 3. Their wheelchairs, walkers or crutches are an extension of their body. 4. It’s ok to ask them to repeat themselves. 5. Don’t speak loudly or slowly. 6. Get on their eye level. 7. Ask before helping. 8. Be age appropriate. 16 What to do… Short Attention Span? When interacting with a person who has difficulty with attention or shortterm memory: • Use short sentences. • Maintain eye contact. • Ask them to repeat what you said. 17 What to do… Visual Impairment? When talking with a person who is blind or has low-vision: • Always identify yourself at the beginning of the conversation and inform when you’re leaving; • Ask if he/she would like verbal cues as to what is ahead when you approach steps, curbs, or other barriers. 18 What to do… Mental Illness? When talking with a person with a psychiatric disability, make eye contact and be aware of your body language. Be patient and understanding, and speak normally as mental illness does not mean an inability to hear or understand language. It also does not mean that the person will behave inappropriately. 19 What to do… Hearing Loss? When speaking with a person who is deaf or has a hearing loss, always: • Look directly at the person. • Keep your mouth and face free of hands or shadows. 20 What to do… Speech Disability? If you are speaking with a person with a speech disability: • Listen carefully and repeat what you've heard • Don't pretend to understand if you don't • Don’t rush the conversation 21 Resources for Employers Iowa Vocational Rehabilitation Job Coaching through Providers (like Easter Seals Iowa) JAN – Job Accommodation Network Americans with Disabilities Act (ADA) Lending Centers – Easter Seals Iowa and Camp Sunnyside National Alliance for Caregiving 22 When we fail to support caregivers, we put both the caregiver and the care recipient at risk. — Gail Gibson Hunt, AARP 23 Picture PlaceHolder Becky Pospisal Chief Compliance Officer [email protected] 515-309-1802 24
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