Addressing Cultural Competence with QI November 9, 2007 Kathleen Clanon, MD, FACP Hela Issaq, MPH Patricia Calloway, RN 1 Funded by HRSA HIV/AIDS Bureau Questions for this Session • Are the cultural challenges of HIV care a problem, and is it our problem? • Together with our patients, can we address the problem and if so, how? • What improvement ideas might work in our clinics? • How can we tell if the improvement ideas were successful? 2 National Quality Center (NQC) Disparities in Outcomes In the United States, decline in HIV-related mortality 1995-2001 • white men 85% • black men 65% • black women 50% CDC AIDS/HIV Surveillance Report, Year End Edition 2001. 3 National Quality Center (NQC) Is It an Access Issue? • U.S. Military study. 129 soldiers starting HAART 1997-2003. Blacks After 12 Months: AAs: 81 were African-American % Undetectable • All had coverage for M.D. visits and meds. • % BLQ on meds varied by race at 12 months: 92% for whites 63% for AAs % Dectectable 66% Whites Whites: And at 24 months: 68% for whites 54% for AAs % Undetectable % Dectectable 92% Hartzell J JAIDS; 44,4:April 1, 2007 4 National Quality Center (NQC) 1972 – The Tuskegee Syphilis Experiment 5 National Quality Center (NQC) Patients with Linguistic Barriers • Are less satisfied with care • Make fewer visits and receive fewer preventive svs • Are less likely to use or return to clinics • Score lower on health knowledge and understanding of dx and rx • Have longer hosp stays Slide courtesy R. Like, MD Fortier, J Bishop, D ‘Developing a Research Agenda for Cult. Comp. In Health Care, Rockville, MD OMH and AHRQ, 2002 6 National Quality Center (NQC) Cultural Competence Balancing Act Improving Health Care Outcomes Culture/Race Blind 7 Stereotyping, Over-generalization, Bias National Quality Center (NQC) Is It Our Problem? Programs may decide to work on cultural competence as a result of: patient complaints of different treatment based on race or primary language. staff complaints of culturally-based conflict. concerns about demographic mismatches between staff and clients. different rates of retention in care between groups. Have you seen any red flags like this in your program? 8 National Quality Center (NQC) Disparities and Cultural Competence • Are the cultural challenges of HIV care a problem, and is it our problem? • Together with our patients, can we address the problem and if so, how? • What improvement ideas might work in our clinics? • How can we tell if the improvement ideas were successful? 9 National Quality Center (NQC) Tackling the Tough Problems: Quality as a Tool Quality Improvement principles work with: • • • • • 10 Systems not individuals Problem-solving approach Multidisciplinary teams Steady, incremental change No blaming National Quality Center (NQC) • Are the cultural challenges of HIV care a problem, and is it our problem? • Together with our patients, can we address the problem and if so, how? • What improvement ideas might work in our clinics? • How can we tell if the improvement ideas were successful? 11 National Quality Center (NQC) Step One: Examine the Evidence Clinical quality data Break it out by race and ethnicity; are there differences in success rates for Paps, vaccinations, ARV prescribing or other clinical quality measures? Patient satisfaction survey results Break it out by different racial and ethnic groups; are there differences in satisfaction rates? Do an organizational cultural competence assessment Cultural Competence Health Practitioner Assessment (CCHPA) http://www11.georgetown.edu/research/guccd/nccc/features/CCHPA.html 12 National Quality Center (NQC) Collecting Race and Ethnicity Data • Guessing is inaccurate, asking patients is better, but guessing is what usually happens. • Latino, Asian and multiracial patients especially likely to be inaccurately identified if not asked. • Staff (and patients) uncomfortable about asking, even if it is the policy to ask. Hasnain-Wynia R. and D.W. Baker. Obtaining Data on Patient Race, Ethnicity, and Primary Language in Health Care Organizations: Current Challenges and Proposed Solutions. Health Services Research. August 2006; 41(4p1):1501-18. 13 National Quality Center (NQC) Collecting Race and Ethnicity Data • Train staff why race and ethnicity data are important. • Provide staff with script: “We use this information to monitor care to ensure that all patients get the best care possible.” Seigal B. Enhancing Public Hospitals’ Reporting of Data on Racial and Ethnic Disparities in Care. The Commonwealth Fund. January 2007. www.cmwf.org/publications. 14 National Quality Center (NQC) Breaking Out the Data Organizational Measures Racial and Ethnic Comparison Between Staff and Patients 100 90 80 Percent 70 60 All Staff 50 Patients 40 30 20 10 0 White 15 Black Latino National Quality Center (NQC) Breaking Out the Data Clinical Quality Data Percentage of Patients Who Had Two Visits in 2006 100 90 80 Percent 70 60 50 40 Black Latino White Asian 30 20 10 0 16 National Quality Center (NQC) Step Two: Make a Change Case Study AMC Clinic discovers that only 50% of their African American patients are undetectable on ARVs, compared to 75% of their white patients. The AMC Quality Committee takes on the issue. Their plan: Concrete Aim: Improve the success rate of African American patients on ARVs. Measure: Rate of African American patients undetectable on ARVs increases to at least 75%. Changes to test: Adherence counseling provided by peers instead of MD, RN. Offer written materials for patients that are designed by and for African American patients. Have a staff member ask patients if they have any concerns about effects of ARVS in people of different races. 17 National Quality Center (NQC) Grantee Experience Hela Issaq, MPH QM Coordinator, Parts C and D, Oakland, CA Patricia Calloway, RN QM Coordinator, Part A, Oakland, CA 18 National Quality Center (NQC) Questions Added to Consumer Survey Oakland, CA I got services in the language I wanted* The staff asked about my health beliefs during my visits* The waiting room has materials that show people from my racial or ethnic group* The staff at the clinic show respect for my religious beliefs* *Answer choices for questions were: All of the time, Most of the time, Sometimes, Rarely, Never, Doesn’t apply 19 National Quality Center (NQC) Grantee Quality Improvement • Chart reviews- better data collection of race, ethnicity and primary language • Contract language • Cultural Competence Assessments- self and agency • Adding and/or improving language services for limited English proficient clients • Share the concept of Gracious Space (shapes our interactions with others) 20 National Quality Center (NQC) Choose Potential PDSA’s for Your Clinic 1. Look at exercise handout. 2. Choose 2 potential changes to test in your clinic or practice. Hints: A. Choose from different categories. B. Choose one long term and one short term project. C. Choose something that staff and patients can get excited about. 3. Volunteers report out to the group. Which of these might you choose? 21 National Quality Center (NQC) Step Three: Measure Progress • Are the cultural challenges of HIV care a problem, and is it our problem? • Together with our patients, can we address the problem and if so, how? • What improvement ideas might work in our clinics? • How can we tell if the improvement ideas were successful? 22 National Quality Center (NQC) Step Three: Measure Progress Look for narrowing of racial and ethnic gaps in: % of patients undetectable on ARVs, by race and ethnicity % of patients receiving annual Gyn exam, by race and ethnicity % of clients with broken appointments, by race and ethnicity 23 National Quality Center (NQC) General Cultural Competence Resources • Cultural Competence Resources for Health Care Providers http://www.hrsa.gov/culturalcompetence • Indicators of Cultural Competence in Health Care Delivery Organizations: An Organizational Cultural Competence Assessment Profile http://www.hrsa.gov/culturalcompetence/indicators/ • AIDS Education and Training Centers, Guiding Principles for Cultural Competency http://www.aidsetc.org 24 National Quality Center (NQC) National Quality Center (NQC) www.NationalQualityCenter.org Clanon: [email protected] Issaq: [email protected] Calloway: [email protected] 25 Funded by HRSA HIV/AIDS Bureau Extra Data Slides 26 Funded by HRSA HIV/AIDS Bureau Definitions Cultural Competence: “A set of congruent behaviors, attitudes, and policies that come together in a system, agency, or among professionals that enables effective work in crosscultural situations.”1 Health Disparities “Racial or ethnic differences in the quality of healthcare that are not due to access–related factors or clinical needs, preferences, and appropriateness of intervention.”2 1. 2. 27 HRSA’s Office of Minority Health The Institute of Medicine National Quality Center (NQC) Perception of Racial Discrimination by the Health Care System Have you or a family member or a friend been treated unfairly because of your race or ethnicity? 40 Concern that you or family member will be treated unfairly in the future because of race or ethnicity? 80 60 White Black Latino 20 0 YES White Black Latino 40 20 0 Yes NO Kaiser Family Foundation Survey of Race, Ethnicity and Medical Care 1999. 28 National Quality Center (NQC)
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