South Tyneside Carers Strategy 2015-17 yneside hT ut Support rers So Ca Think Carer! 1 2 Contents Foreword................................................................................................................. 4 Safeguarding........................................................................................................... 5 Executive Summary.................................................................................................. 6 Introduction............................................................................................................. 8 How we consulted................................................................................................... 9 National, Strategic and Local Context..................................................................... 10 Framework and Approach………………………………………………….................14 Next Steps…………………………………………………......................................... 15 Useful contacts.................………………………………………………….................16 3 Foreword Caring for our relatives and friends when they are in need is a challenge that many of us face in our lives. At any one time, one in ten people in Britain is a carer; the majority of them are women. From the work we do with Carers, we know that Carers need services and support which are individual to their circumstances, that are flexible and, that respond to changing needs. From April 2015, new legislation, The Care Act 2014, means for the first time, Carers are on the same legal footing as those they care for. Carers continue to be a high priority in South Tyneside. As co-chairs of the Carers Strategy Group, we see in practice how committed the agencies working in South Tyneside are to Carers. We have refreshed our Carers Strategy since it was developed in 2012, to be sure it still meets the priorities identified by Carers in South Tyneside. We hope it is helpful in outlining our central plans for Carers. We are continuing to address the key areas that matter to Carers, and monitor our progress through a Second Carers Strategy Action Plan to ensure that we deliver services and support that Carers deserve. We are taking our work forward in a meaningful way that recognises the wide and diverse voices of Carers in South Tyneside. 4 Joyce Butters Les Grey Carer/Co-Chair of South Tyneside Carers Strategy Group Chair of South Tyneside Carers Strategy Group Safeguarding We are committed to safeguarding and promoting the welfare of children, young people, vulnerable adults and Carers. We believe that all children, young people, vulnerable adults and Carers have an equal right to protection from abuse, regardless of their age, race, religion, ability, gender, language, background or sexual identity and consider the welfare of the child, young person, vulnerable adult or carer as paramount. 5 Executive Summary There are 6.5 million Carers in England & Wales, and the number is expected to rise by 40% by 2037 (Source: Carers UK). Every year over 2.1 million adults become carers and almost as many people find that their caring responsibilities come to an end. This ‘turnover’ means that caring will touch the lives of most of the population, as we all need or provide care or support family members caring for loved ones at some point in our lives. 3 in 5 people will be carers at some point in their lives. Care organisations in South Tyneside are committed to working together to promote the needs and rights of local people who have caring responsibilities. Our vision is for Carers in South Tyneside to be recognised and valued for the positive contribution they make to our community and the lives of the people they support. We will work to ensure that Carers are empowered and enabled to take control of their own lives by recognising and identifying their own needs, by having more choice and control and through access to high quality, flexible support services. Definition of a Carer A Carer is anyone who provides or intends to provide unpaid help to someone who has a disability, physical or mental health problems, is frail or has substance misuse related problems. Aims of the Strategy The aims of this strategy are to: • Promote the Carers agenda across the Borough • Identify the issues and challenges Carers face in South Tyneside • Ensure Carers are encouraged and supported to identify themselves • Improve the assessment process for Carers, putting them at the centre of assessing their own needs and identifying how those can be met • Work in partnership with statutory, voluntary and community organisations to develop a wide range of quality, innovative and preventative services that ensure greater social inclusion and quality of life for Carers • Ensure Carers are signposted to the most effective, appropriate and flexible support, advocacy and information services • Promote Carer consultation and involvement in the design, delivery and review of services 6 Our priorities are based on a national resource, ‘Think Local Act Personal – Making it Real for Carers’, which identifies 6 themes: 1. Information and Advice: having the information I need when I need it 2. Active and supportive communities: keeping friends and family in place 3. Flexible and integrated support: my support, my own way 4. Workforce: my support staff 5. Risk enablement: feeling in control and safe 6 Personal budgets and self-funding: my money * Personalisation means that everyone who needs health and social care support, will have greater choice, control and flexibility over how they receive their care and support. Organisations contributing to this strategy Carers and Carers support groups Age UK (South Tyneside) Alzheimer’s Society BLISS=Ability North East Council on Addiction (NECA) Carers Drug and Alcohol Network (SOTW) Carers Association South Tyneside (CAST) Children, Adults & Health Group Community Health Services Mental Health Carers Support Team Northumberland, Tyne and Wear (NTW) NHS Trust South Tyneside Council South Tyneside NHS Foundation Trust South Tyneside Clinical Commissioning Group Next Steps Our first action plan was launched in August 2012. It has been regularly monitored by the Carers Strategy Group and updated on a bi-annual basis. We have now developed our Second Action Plan to extend activities through to 2017. It can be found on South Tyneside Council website at www.southtyneside.gov.uk/Carers 7 Introduction Why do we need a Carers Strategy? We want to implement the National Carers Strategy at the local South Tyneside level in partnership with the Council, the CCG. Health Trusts and our voluntary sector partners. Most importantly, we want Carers to identify the priorities for development in South Tyneside which will help to meet their needs. We want to be clear with Carers regarding how we aim to meet their needs and improve carer outcomes in South Tyneside. How has the Strategy been developed? The original Carers Strategy was developed in 2012 by the South Tyneside Carers Strategy Group. This Group is made up of Carers, key staff in health, social care and the voluntary sector. It strives to give Carers the strong strategic voice that will make a difference and makes sure that issues affecting Carers are heard, acknowledged and, most important of all, acted upon. Consultation with Carers took place from October 2011 to December 2011 and involved a combination of questionnaires, focus groups and consultation meetings, through partners who work with or on behalf of Carers. This was extended during 2013 and 14 with a further Carers Survey, and Think Local Act Personal consultation sessions. Results and issues have been analysed and incorporated into this Strategy. The Strategy reflects the views of both Carers and partners. The Second Action Plan was developed, in 2015. This sets out in detail our commitment to taking action on the priorities set out in this Strategy. The Strategy covers the period 2015-2017 and will be reviewed annually, with the Action Plan being reviewed and updated bi-annually as our public update document. The Carers Strategy Group is responsible for regularly monitoring the action plan on a monthly basis. Progress reports are submitted to the South Tyneside Health and Wellbeing Board, through agreed governance arrangements. We are confident that the priorities outlined in this Strategy continue to be what Carers have said they need and want us to improve, both at a local and national level. Our Young Carers are an integral part to all of the actions identified. We will be working closely with all services supporting children, adults and families, and adopting a ‘think family’ approach to all of the work carried out. To support this work, we have consulted separately with our Young Carers Steering Group, who have developed a Young Carers Delivery Plan to inform our activities. The Carers Strategy will strive to promote equality of opportunity, and access to support and information, and promote good relations between diverse communities through engagement with partners and communities. 8 How we consulted with the Carers on this Strategy Our Plans Our plans began in June 2011 with the Carers Strategy Group aiming to consult with all Carers in South Tyneside in the development of the Draft Carers Strategy. Our Vision Our vision is for Carers in South Tyneside to be recognised and valued for the positive contribution they make to our community and the lives of the people they support. How we consulted Our original consultation took place during 2011. We consulted by a range of mechanisms which have contributed to this plan including: • South Tyneside website – www.southtyneside.gov.uk/Carers • Questionnaires • Press We expanded this during 2013 and 14, using the national Carers Survey, and events using Think Local Act Personal resources and themes to consult with Carers. We consulted with: • Carers who live in South Tyneside • Carers representatives from Carers Strategy Group • Carers who are employees of South Tyneside Council, South Tyneside PCT and South Tyneside Foundation Trust • Health • Voluntary Sector • Local Authority • GPs 9 Results from the 2014 Carers Survey: • Carers are mostly ‘quite satisfied’ with the support/services they and their cared for person have received – 22%. 19% said they were very satisfied and 11% said they were satisfied. Only 2% said they were very dissatisfied and 3 people said they were extremely dissatisfied. • 81% of carers have received information and advice and 68% have had support from Carer’s groups. • 72% of carers felt that they do some of the things they value and enjoy with their time but not enough. • 64% of carers felt that they have some control over their daily like but not enough. Both of these areas represent slight increases in satisfaction from previous years results. • 54% of carers feel that they are looking after themselves, although 20% said they felt they were neglecting themselves • 51% of carers said they had some social contact with people but not enough. • 42% of carers said they have some encouragement and support but not enough. • When asked if they had been involved in discussions and consulted 37% said that there had been no discussions that they were aware of while 24% said they had always felt involved and consulted. Celebration Event Following the success of previous year’s events, we held another event this year where Carers gathered at South Tyneside College for some much deserved time for themselves.Some had booked in for relaxing beauty therapy sessions, and throughout the day advice and information were on hand from benefits advisers, Social Care, and a wide range of voluntary sector organisations. There were also key speakers in attendance from the Adult Social Care to provide an update on changes to Carers Rights through the Care Act, as well as updates on the Carers Survey and Carers Strategy. National, Strategic and Local context National context The Department of Health launched the Carers Strategy: Second National Action Plan 2014-16 in October 2014. This Action Plan builds on the national Carers Strategy of 2008 and the Coalition Government’s update of 2010. It retains the strategic vision for recognising, valuing and supporting carers, and the four areas for priority action. It provides an update on national achievements over the term of the Carers Strategy, with clear references to the Care Act 2014 throughout, which provides increased rights to assessment and support for Carers. 10 For more information, the Second National Carers Action Plan can be found at: gov.uk/carers_strategy-second-national-action-plan Strategic context The South Tyneside Partnership has a clear 20 year vision for the future prosperity of the borough: “South Tyneside will be an outstanding place for people to live, learn, visit, work and do business. Everything we do is focussed around delivering our vision for South Tyneside.” Local residents have told us that they view health as one of the borough’s biggest priorities for improvement. As a result, the South Tyneside Partnership has identified Healthier People as one of its priority areas, and the South Tyneside Plan, ‘Shaping Our Future’, clearly defines the aims of all future partnership activity: “We want people in South Tyneside to live healthier and longer lives. We will encourage people to make positive decisions about things that impact on their health. We will improve health in specific groups and areas by focussing on prevention and early intervention, and improving access to personalised services and support.” South Tyneside Health and Wellbeing Board will be responsible for the Healthier People priority, delivered through ‘Our Better Health and Wellbeing Strategy’, which provides an overarching framework for the Board to agree commissioning plans for the NHS, Social Care, Public Health and other services. South Tyneside Carers Strategy will be closely aligned to the Healthier People priority and the Health and Wellbeing Strategy. This will ensure that improved services for Carers are seen as an integral part of all plans, and result in services which are as flexible as possible and provide greater choice and control for those who require help and support. Local context The 2011 Census found that there were 26,853 residents in South Tyneside aged 65 and over. This was 18.1% of the total population (148,617). This rate of older people is above the regional and national averages of 17.3% and 16.3% respectively. As South Tyneside ages, this is expected to increase to 21% by 2021. In South Tyneside there are 16,740 Carers (Census Survey 2011). The Carers Strategy will support key partners to address many issues that Carers have identified by developing appropriate solutions at a local level whilst ensuring a strategic fit into national policies. 11 Population Age (years) All ages 77 £ 78 £ 81 £ 82 £ Early mortality rate, heart 8 disease/stroke 78 ¤ 67 ¤ 4.9% 7,500 - 3.4% ¤ ¤ 110 ¤ Female life expectancy In the future 2013 England Male life expectancy Estimates of resident population (‘000s)¹ Now S. Tyneside 7 2021 2030 7 148 154 £ n/a 0-14 24 26 £ n/a % and number diagnosed with 9 heart disease 65+ 27 32 £ n/a Early mortality rate all cancers If the way services are delivered remains the same, an aging population will lead to an increased demand for health and social care services. (n/a not available) Population by ethnic group, 2011 (‘000s) 2 S Tyneside England White British BME % BME 141 7 5% 43,000 11,000 20% BME = Black and minority ethnic groups Society, economy and environment 40% of the population of South Tyneside lives in areas that are among the 20% most disadvantaged across England. The most disadvantaged communities in South Tyneside are almost exclusively in the Northern half of the district. 10 137 Health, Long Term Conditions and Care S. Tyneside England % and number diagnosed with 9 diabetes 6.7% 8,500 £ 5.8% % and number diagnosed with 9 COPD 3.5% 5,300 £ 1.7% % adults/manual workers that 11 smoke 22% 28% ¤ 20% % and number diagnosed with dementia9 0.8% 1,300 £ 0.5% 76% – 77% 78% – 79% Rate & no. people 65+ admitted to 120 14 335 residential care £ 70 60 590 – 35 40 365 £ 30 15 165 ¤ 35 90 2,470 £ 56 Coverage, breast screening 12 13 Coverage, cervical screening 7,200 adults of working age, or 7.6% of this population group, claim Jobseekers’ Allowance (JSA)3. Across England 3.8% claim JSA3. South Tyneside is among the three Local Authority populations in the N.E. with the highest proportion of JSA claimants3. Rate and number supported to live at home Health, Long Term Conditions and Care Mental health 18-64 34,000 people, or 23% of the population, have a limiting longterm illness4. This compares to 22% of the population across the North East and 18% across England. 9,800 people of working age, or 10% of the total working age population, claim disability related benefits5. 7% of the England working age population claim this benefit. 12 Physical disability 18-64 15 15 Learning disability 18-64 Older people 65+ 15 15 30% rising trend, ¤ falling trend, – constant trend; significantly worse than England value at 95% confidence, not significantly different, significantly better © NHS South of Tyne and Wear, June 2011 £ 13 Proportion of people in South Tyneside providing one or more hours of unpaid care each week at the 2011 Census Framework and Approach What will the strategy do? South Tyneside Carers Strategy will provide a framework and establish support for Carers in South Tyneside. The Strategy and Second Action Plan will provide a framework for the work of the Carers Strategy Group during 2015-2017. We will be concentrating on issues affecting Carers, which have been identified locally, as well as following updates within the wider National Carers Strategy, through implementation of the Care Act, and the ambitious Integrated Care programme within South Tyneside. A bi-monthly Action Plan update will be robustly monitored by the Carers Strategy Group. This will enable us to be accountable to deliver on our plans, to deal in a systematic way with the wide range of actions we have identified. It will be our key way of measuring achievements and making progress for Carers. Our Second Action Plan identifies the 6 themed priorities and identified actions for delivery, and can be found at www.southtyneside.gov.uk/Carers 14 Next Steps The Carers Strategy Second Action Plan will be updated on a bi-annual basis. 15 Useful Contacts If you are worried about someone’s safety contact South Tyneside Council; • if it is about a child or young person phone 0191 424 5010 (office hours) • if it is about an adult phone 0191 424 6000 • If it is out of office hours call 0191 456 2093 We can help children and adults who may have been neglected, abused or harmed physically, sexually or financially. Carers Groups Age UK (South Tyneside) 29 Beach Road South Shields Tyne and Wear NE33 2QA Phone: (0191) 456 6903 Fax: (0191) 455 7431 Email: [email protected] Alzheimer’s Society 3rd Floor Edinburgh Buildings 2 Station Approach South Shields Tyne and Wear Phone: 0191 427 5443 Fax: (0191) 4545209 Email: [email protected] BLISS=Ability 34-36 New Green Street South Shields NE33 5DL Phone: (0191) 427 1666 Web: www.blissability.co.uk Email: [email protected] 16 Carers Association in South Tyneside (CAST) 1 Beach Road South Shields Tyne and Wear NE33 2QA Phone: (0191) 454 3346 Email: [email protected] First Contact Clinical Carers Drug and Alcohol Network TEDCO Business Works Henry Robson Way Station Road South Shields NE33 1RF Phone: (0191) 4274685 Email: [email protected] Mental Health Concern 8 Derby Terrace South Shields Tyne and Wear NE33 4PN Phone: (0191) 4270011 Email: [email protected] Young Carers Project (CAST) 1 Beach Road South Shields Tyne and Wear NE33 2QA Phone: (0191) 454 3346 Email: [email protected] Other Organisations South Tyneside Council Children, Adults and Families Group Town Hall & Civic Offices Westoe Road South Shields Tyne & Wear NE33 2RL Phone: (0191) 424 6000 Website: www.southtyneside.gov.uk Northumberland Tyne and Wear NHS Trust Head Office Wellfield Mews Cherry Knowle Hospital Ryhope Sunderland SR2 ONB Phone: (0191) 565 6256 South Tyneside NHS Foundation Trust South Tyneside District Hospital Harton Lane South Shields Tyne and Wear NE34 0PL Phone: (0191) 404 1000 (Main Switchboard) Fax: (0191) 202 2197 (Harton Wing admin) Email: [email protected] Moving Forward South Tyneside Mental Health Concern Carers Support Service Unit 12 Cookson House River Drive South Shields NE33 1TL Phone: (0191) 493 6917 Email: [email protected] 17 18 19 7008
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