Measuring Non-fatal Road Injury Professor James Harrison Research Centre for Injury Studies and AIHW National Injury Surveillance Unit Flinders University October 2015 Research Centre for Injury Studies • Flinders University • Australia Why measure serious road injury? • Deaths are important, but: – Much less numerous than non-fatal cases – Becoming less common (thankfully) – Not a reliable guide to risk factors for disability • Non-fatal injuries – Some are near-fatalities – Many leave persistent disability Research Centre for Injury Studies • Flinders University • Australia Why measure serious road injury? • Deaths are important, but: – Much less numerous than non-fatal cases – Becoming less common (thankfully) – Not a reliable guide to risk factors for disability • Non-fatal injuries – Some are near-fatalities – Many leave persistent disability Measuring non-fatal road injury: - the case for doing so has become compelling - the questions now are exactly what to measure, and how best to do so. Research Centre for Injury Studies • Flinders University • Australia Three themes Decide exactly what we need to know about serious road injury (…and are willing to pay for…) • Information goals; definitions & specifications Count the cases • Relevant attributes: sufficiently accurate, consistent & timely Determine consequences (burden / disability / cost) • …in a way that is practicable and consistent with required attributes (These themes are more distinct when measuring serious non-fatal road injury than when measuring road deaths.) Research Centre for Injury Studies • Flinders University • Australia Three themes Decide exactly what we need to know about serious road injury (…and are willing to pay for…) • Information goals; definitions & specifications Count the cases • Relevant attributes: sufficiently accurate, consistent & timely Determine consequences (burden / disability / cost) • …in a way that is practicable and consistent with required attributes (These themes are more distinct when measuring serious non-fatal road injury than when measuring road deaths.) Research Centre for Injury Studies • Flinders University • Australia Severity • Much more to it than for road deaths • Which consequence (or outcome)? – Probability of having died (though did not) – Disability (Which domains? As at when?) – Dollar cost (Of what? To whom? As at when?) • Threshold for inclusion? • Directly observed cases? Weighted counts? Research Centre for Injury Studies • Flinders University • Australia Severity ‘severe’, etc.for don’t havedeaths specific • Much‘Serious’, more to it than road and generally accepted meanings. • Which consequence (or outcome)? – Probability of having died (though did not) – Disability (Which domains? As at when?) – Dollar cost (Of what? To whom? As at when?) • Threshold for inclusion? • Directly observed cases? Weighted counts? Research Centre for Injury Studies • Flinders University • Australia Severity ‘severe’, etc.for don’t havedeaths specific • Much‘Serious’, more to it than road and generally accepted meanings. AIS? • Which consequence (or outcome)? – Probability of having died (though did not) – Disability (Which domains? As at when?) – Dollar cost (Of what? To whom? As at when?) • Threshold for inclusion? • Directly observed cases? Weighted counts? Research Centre for Injury Studies • Flinders University • Australia Severity • MuchAIS more to it than for these roadand deaths ‘maintains ties’ with other or components of severity: • Whichdimensions consequence (or outcome)? - Threat to life; mortality - Energy dissipated / absorbed – Probability of having died (though did not) - Tissue damage – Disability (Whichneed domains? Ascare at when?) - Hospitalisation; for intensive - Treatment: / costAs at when?) – Dollar cost (Ofduration what?/ complexity To whom? - Disability: temporary; permanent - Impairment Threshold for inclusion? - Quality of life • • Directly observed cases? Weighted counts? Research Centre for Injury Studies • Flinders University • Australia Severity • MuchAIS more to it than for these roadand deaths ‘maintains ties’ with other or components of severity: • Whichdimensions consequence (or outcome)? - Threat to life; mortality - Energy dissipated / absorbed – Probability of having died (though did not) - Tissue damage – Disability (Whichneed domains? Ascare at when?) - Hospitalisation; for intensive - Treatment: / costAs at when?) – Dollar cost (Ofduration what?/ complexity To whom? - Disability: temporary; permanent - Impairment Threshold for inclusion? - Quality of life • • Directly observed cases? Weighted counts? But validation is mainly with respect to mortality and threat to life. Much less evidence concerning disability, impairment, quality of life. Research Centre for Injury Studies • Flinders University • Australia Severity • Much more to it than for road deaths • Which consequence (or outcome)? – Probability of having died (though did not) – Disability (Which domains? As at when?) – Dollar cost (Of what? To whom? As at when?) • Threshold for inclusion? • Directly observed cases? Weighted counts? Research Centre for Injury Studies • Flinders University • Australia Severity • Much more to it than for road deaths • Which consequence (or outcome)? – Probability of having died (though did not) This choice is not self-evident. However, it – Disability (Which domains? As at when?) is feasible to produce estimates for the same – Dollar cost (Of what? To of whom? As one at when?) cases in terms more than outcome. • Threshold for inclusion? • Directly observed cases? Weighted counts? Research Centre for Injury Studies • Flinders University • Australia Severity • Much more to it than for road deaths • Which consequence (or outcome)? – Probability of having died (though did not) – Disability (Which domains? As at when?) – Dollar cost (Of what? To whom? As at when?) • Threshold for inclusion? • Directly observed cases? Weighted counts? Research Centre for Injury Studies • Flinders University • Australia Severity • Much more to it than for road deaths • Which consequence (or outcome)? – Probability of having died (though did not) – Disability (Which domains? As at when?) – Dollar cost (Of what? To whom? As at when?) • Threshold for inclusion? • Directly observed cases? Weighted counts? Research Centre for Injury Studies • Flinders University • Australia Health state after injury? • Rapid progress in knowledge based on – Prospective follow-up of sets of cases; with – Application of health outcome measures • How to do this? – Special studies (each a one-off) – Routinely, as part of case documentation • A world-leading system in Victoria follows all survivors of serious trauma by CATI to 24 months. Research Centre for Injury Studies • Flinders University • Australia Current projects • Outcomes to 24 months – Gabbe, Simpson, Harrison, et al. (2015) Return to work and functional outcomes after major trauma: who recovers, when and how well? Ann Surg (accepted Sept 2015) – Reports routine follow up to 24 months of all adult major trauma patients in Victoria injured mid-2007 to mid-2012 who survived to initial discharge (n=8,844) – Results presented here expand on those in the paper, to show additional road injury case groups • Outcomes & experiences to 5 years – NHMRC project grant; Professor Belinda Gabbe is CI-A – Cases: all in 1 year of Victorian follow-up system, already interviewed at 6, 12, 24 months – This project is following the whole group to 5 years and conducting face-to-face interviews with a sample (incl. qualitative topics) Research Centre for Injury Studies • Flinders University • Australia Survivors to discharge after serious injury: outcomes to 24 months (Victoria; onset 2007-12) 100 80 Upper good recovery Lower good recovery Upper moderate disability 60 Lower moderate disability Upper severe disability Lower severe disability 40 Vegetative state Death 20 0 6 All ma u t ra s ca 12 24 es 6 12 24 All 12 24 t an p ccu O V es s ca I RT 6 M 6 12 24 list M c rcy o t o l da e P 6 12 24 list c y c 6 12 24 ian tr es d Pe Months of follow-up Type of case Notes: RTI = Road Traffic Injury MV = Motor Vehicle Research Centre for Injury Studies • Flinders University • Australia Survivors to discharge after serious injury: outcomes to 24 months (Victoria; onset 2007-12) Categories of Glasgow Outcome Scale - Extended 100 80 Upper good recovery Lower good recovery Upper moderate disability 60 Lower moderate disability Upper severe disability Lower severe disability 40 Vegetative state Death 20 0 6 All ma u t ra s ca 12 24 es 6 12 24 All 12 24 t an p ccu O V es s ca I RT 6 M 6 12 24 list M c rcy o t o l da e P 6 12 24 list c y c 6 12 24 ian tr es d Pe Months of follow-up Type of case Notes: RTI = Road Traffic Injury MV = Motor Vehicle Research Centre for Injury Studies • Flinders University • Australia Survivors to discharge after serious injury: outcomes to 24 months (Victoria; onset 2007-12) 100 80 Upper good recovery Lower good recovery Upper moderate disability 60 Lower moderate disability Upper severe disability Lower severe disability 40 Vegetative state Death 20 0 6 All ma u t ra s ca 12 24 es 6 12 24 All 12 24 t an p ccu O V es s ca I RT 6 M 6 12 24 list M c rcy o t o l da e P 6 12 24 list c y c 6 12 24 ian tr es d Pe Months of follow-up Type of case Notes: RTI = Road Traffic Injury MV = Motor Vehicle Research Centre for Injury Studies • Flinders University • Australia Survivors to discharge after serious injury: outcomes to 24 months (Victoria; onset 2007-12) 100 80 Upper good recovery Lower good recovery Upper moderate disability 60 Lower moderate disability Upper severe disability Lower severe disability 40 Vegetative state Death 20 0 6 All ma u t ra s ca 12 24 es 6 12 24 All 12 24 t an p ccu O V es s ca I RT 6 M 6 12 24 list M c rcy o t o l da e P 6 12 24 list c y c 6 12 24 ian tr es d Pe Months of follow-up Type of case Notes: RTI = Road Traffic Injury MV = Motor Vehicle Research Centre for Injury Studies • Flinders University • Australia Survivors to discharge after serious injury: outcomes to 24 months (Victoria; onset 2007-12) 100 80 Upper good recovery Lower good recovery Upper moderate disability 60 Lower moderate disability Upper severe disability Lower severe disability 40 Vegetative state Death 20 0 6 All ma u t ra s ca 12 24 es 6 12 24 All 12 24 t an p ccu O V es s ca I RT 6 M 6 12 24 list M c rcy o t o l da e P 6 12 24 list c y c 6 12 24 ian tr es d Pe Months of follow-up Type of case Notes: RTI = Road Traffic Injury MV = Motor Vehicle Research Centre for Injury Studies • Flinders University • Australia Summary We should measure and monitor non-fatal road injury Think carefully about exactly what information is needed … and design information systems accordingly Technical basis Follow-up registers for outcome measurement Population data linkage, to: Combine data on crashes with health service data to get benefits of both. Refine indicators (e.g. to minimise under- and over-counting). Improve understanding of the extent to which post-injury disability reflects preinjury state rather than effects of injury. Monitoring p(survival)|diagnosis. Can be suitable for comparisons (national, international). No available method is perfect. TMPM? p(disability)|diagnosis. Apply periodically-updated weights to latest set of case-data to estimate future disability. Research Centre for Injury Studies • Flinders University • Australia
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