National Drug Treatment Monitoring System (NDTMS) Adult drug treatment business definition NDTMS data set M Adult drug treatment business definition v11.06 About Public Health England Public Health England exists to protect and improve the nation's health and wellbeing, and reduce health inequalities. It does this through world-class science, knowledge and intelligence, advocacy, partnerships and the delivery of specialist public health services. PHE is an operationally autonomous executive agency of the Department of Health. Public Health England Wellington House 133-155 Waterloo Road London SE1 8UG Tel: 020 7654 8000 www.gov.uk/phe Twitter: @PHE_uk Facebook: www.facebook.com/PublicHealthEngland © Crown copyright 2014 You may re-use this information (excluding logos) free of charge in any format or medium, under the terms of the Open Government Licence v2.0. To view this licence, visit OGL or email [email protected]. 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Published November 2015 PHE publications gateway number: 2015474 2 Adult drug treatment business definition v11.06 Revision history Version Author Reason for change Date 11.06 N Alhaddad CDS-M 01/10/2015 All previous revision history archived to appendix L Introduction of new CDS M fields - software system and version used religion or belief disability sexual orientation patterns of tobacco use (TOP) smoking cessation (SIR) Removed items (removed from NDTMS schema): - drinking days more than binge limit - AUDIT score - smoking status - treatment goal - sexual orientation (local field) Recovery Support sub intervention definition for Adult Smoking cessation 3 Adult drug treatment business definition v11.06 Contents About Public Health England 2 1 Introduction 5 2 Requirements 6 3 Data entities 7 4 Data items 8 APPENDIX A – Data items to be updated as episode of treatment progresses 17 APPENDIX B – Scenarios and examples 23 APPENDIX C – Definitions of interventions and sub interventions 30 APPENDIX D – General healthcare assessment 36 APPENDIX E – Accommodation need guidance for adult services 38 APPENDIX F – Adult discharge codes from April 2009 39 APPENDIX G – Parental status from April 2009 42 APPENDIX H – Setting 43 APPENDIX I – Time in treatment 45 APPENDIX J – Outcomes process maps 46 Process map for completing Alcohol and YP Outcomes Records (AOR/YPOR) Process map for clients transferring between adult services and changing problem substance: from drug to alcohol Process map for clients transferring between adult services and changing problem substance: from alcohol to drug Process map example for clients being transferred from a YP service to an adult service APPENDIX K – External references 51 APPENDIX L – Revision history 52 4 Adult drug treatment business definition v11.06 1 Introduction This document establishes, at a business level, the set of performance data items (known as the NDTMS data set) to be collected and utilised by the NDTMS. In support of evolving business requirements, the data items, which are collected by the NDTMS programme, are reviewed on an annual basis. This version (commonly referred to as the NDTMS data set M) will come into effect for national data collection on 1 April 2016. This document contains definitions that are primarily applicable to use with clients aged 18 or over. Information and definitions relating to data collection from the young people’s treatment system can be found at www.nta.nhs.uk/core-data-set.aspx The NDTMS itself is scoped at capturing performance data on clients who reach the assessment/triage stage at the agency that generates the report. This document should not be interpreted as a technical statement – it is intended to serve the business perspective of what data will be so managed. From this document, the technical specification will be derived and established as described in Ref [1]. Code sets for the data items listed in this document are provided in Ref [2]. Both documents are available from the PHE web site see above. A companion document – ‘An implementation guide to core data set J’ Ref [3] introduced for CDS-J 2012, remains relevant to CDS-L 2013. It contains various implementation examples and scenarios. 5 Adult drug treatment business definition v11.06 2 Requirements The data items contained in the NDTMS data set are intended to address the following critical requirements: • provide measurements to support the upcoming Public Health Outcomes Framework • provide measurements that support the outcome and recovery focus of the government’s drug strategy, such as: o proportion of clients successfully completing treatment o proportion of clients that do not return to treatment following a successful completion o value for money and where applicable payment by results o housing and employment o health and quality of life outcomes 6 Adult drug treatment business definition v11.06 3 Data entities The data items (listed later in this document) may be considered as belonging to one of seven different entities or groups. These are: • • • • • • • client details episode details (including client details which may vary over time) time in treatment treatment intervention (modality) details sub intervention details reatment Outcomes Profile (TOP) details local (ie regional) fields whose usage will depend on regional requirements 7 Adult drug treatment business definition v11.06 4 Data items Sect No 1 Sect No 2 Item Description Initial of client’s first name The first initial of the client’s first name – for example Max would be ‘M’. Initial of client’s surname The first initial of the client’s surname – for example Smith would be ‘S’, O’Brian would be ‘O’ and McNeil would be ‘M’. Date of birth of client The day, month and year that the client was born. Sex of client The client gender at registration. Ethnicity The ethnicity that the client states as defined in the OPCS census categories. If a client declines to answer then ‘not stated’ should be used, if a client is not asked then the field should be left blank. Nationality Country of nationality at birth. Item Description Referral date The date that the client was referred to the agency for this episode of treatment – for example it would be the date a referral letter was received, the date a referral phone call or fax was received or the date the client self-referred. For scenario examples and how this date is used in waiting times calculations please see appendix B. Agency code A unique identifier for the treatment provider (agency) that is defined by the regional NDTMS centres – for example L0001. Software system and version used A mandatory, system identifier representing the clinical system and version used at the agency, for example agencies using the data entry tool would have DET V7.0 populated in the field. Client reference A unique number or ID allocated by the treatment provider to a client. The client reference should remain the same within a treatment provider for a client during all treatment episodes. (NB: this must not hold or be composed of attributers which might identify the individual). Client ID A mandatory, technical identifier representing the client, as held on the clinical system used at the agency 8 Adult drug treatment business definition Sect No Item v11.06 Description (treatment provider). NB – this should be a technical item, and must not hold or be composed of attributers, which might identify the individual. A possible implementation of this might be the row number of the client in the client table. Episode ID A mandatory, technical identifier representing the episode, as held on the clinical system used at the treatment provider. NB – this should be a technical item, and should not hold or be composed of attributers, which might identify the individual. A possible implementation of this might be the row number of the episode in the episode table. Consent for NDTMS Whether the client has agreed for their data to be shared with regional NDTMS teams and PHE. Informed consent must be sought from all clients and this field needs to be completed for all records triaged after 1 April 2006. It does not need to be completed for clients triaged before this date (it is assumed that all records previously returned have been consented for). Previously treated Has the client ever received structured drug treatment at this or any other treatment provider. Postcode The postcode of the client’s place of residence. Depending upon regional preference regarding client confidentiality, this postcode may or may not be truncated, by removing the final two characters of the postcode (ie ‘NR14 7UJ’ would be truncated to ‘NR14 7’). If a client states that they are of No Fixed Abode (denoted by having an accommodation need of NFA) the postcode should be left blank. Accommodation need The accommodation need refers to the current situation (28 days prior to treatment start) of the client with respect to housing need. The NDTMS data set – reference data [2] contains two sets of reference data for accommodation need, to cater for those providing services to adults and young persons. Appendix E and the NDTMS reference data [2] gives some guidance as to the use of this field for adult services. The religion or belief of the client. If a client is not asked then the field should be left blank. Religion or belief Sexual orientation The sexual orientation that the client states. If a client declines to answer then ‘not stated’ should be used, if a client is not asked then the field should be left blank. If a client is not asked then the field should be left blank. Disability 1 Whether the client has a disability. Disability 2 Whether the client has a secondary disability. Disability 3 Whether the client has a third disability. 9 Adult drug treatment business definition Sect No v11.06 Item Description Parental status The parental status of the client – whether or not the client has children, whether none of, some of or all of the children live with the client. A child is a person who is under 18 years old. See appendix G for revised data items and definitions. DAT of residence The Drug Action Team (or partnership area) in which the client normally resides (as defined by their postcode of their normal residence). If a client states that they are of No Fixed Abode (denoted by having an accommodation need of NFA) then for Tier 3 agencies the partnership (DAT) of the treatment provider should be used as a proxy; and for Tier 4 treatment providers the DAT of the referring partnership should be used as a proxy. Note – although the accommodation need is the status at the start of the episode, the DAT of residence is the current situation. PCT of residence Please note that PCT codes are no longer collected for new clients. These have however been retained as a placeholder for analysis purposes. All PCT validations have been relaxed. Local authority The local authority in which the client currently resides (as defined by their postcode of their normal residence). If a client states that they are of No Fixed Abode (denoted by having an accommodation need of NFA) then for Tier 3 agencies the local authority of the treatment provider should be used as a proxy; and for Tier 4 treatment providers the local authority of the referring partnership should be used as a proxy. Note – although the accommodation need is the status at the start of the episode, the local authority is the current situation. GP practice code This field has been added to the data set in order to support potential future reporting requirements from the NDTMS. Should this be required, further information regarding the validation and submission of GP practice codes will be issued. Problem substance No 1 The substance that brought the client into treatment at the point of triage/initial assessment, even if they are no longer actively using this substance. If a client presents with more than one substance the agency is responsible for clinically deciding which substance is primary. ‘Poly drug’ should no longer be used in this field; instead the specific substances should be recorded in each of the problem substance fields. Age of first use of problem substance No 1 The age (in years) that the client recalls first using the problem substance No 1. 10 Adult drug treatment business definition Sect No v11.06 Item Description Route of administration of problem substance No 1 The route of administration of problem substance No 1 recorded at the point of triage/initial assessment. Problem substance No 2 An additional substance that brought the client into treatment at the point of triage/initial assessment, even if they are no longer actively using this substance. ‘Poly drug’ should no longer be used in this field; instead the specific substances should be recorded in each of the problem substance fields. Problem substance No 3 An additional substance that brought the client into treatment at the point of triage / initial assessment, even if they are no longer actively using this substance. ‘Poly drug’ should no longer be used in this field; instead the specific substances should be recorded in each of the problem substance fields. Referral source The source or method by which a client was referred for this treatment episode. A valid referral source code should be used as defined in the NDTMS data set – reference data Ref [2]. Triage date The date that the client made a first face-to-face presentation to this treatment provider. This could be the date of triage/initial assessment though this may not always be the case. Care plan start date Date that a care plan was created and agreed with the client for this treatment episode. Injecting status Is the client currently injecting, have they ever previously injected or never injected. Children The number of children under 18 that live in the same household as the client at least one night a week. The client does not necessarily need to have parental responsibility for the children. Where the client declined to answer, code ‘98’ is used. Are any of your children/the children living with you This question applies to children of the client in treatment (regardless of whether this child lives with the client or not) and to children living with the client (regardless of whether this is the child of the client or not). Pregnant Is the client pregnant. Drinking days Number of days in the 28 days prior to initial assessment that the client consumed alcohol. Units of alcohol Typical number of units consumed on a drinking day in the 28 days prior to initial assessment. Dual diagnosis Is the client currently receiving care from mental health services for reasons other than substance misuse. Hep C tested Has the client been tested for Hep C? This test may be within the current treatment episode or previously to the 11 Adult drug treatment business definition Sect No Item v11.06 Description episode. If the response is ‘Yes’ the ‘Hep C – latest test date’ should be completed. Hep C latest test date Date that the client was last tested for Hepatitis C. This test may be within the current treatment episode or previously to the episode. If the exact date is not known then the first of the month should be used if that is known. If only the year is known then 1 January for that year should be used. Hep C intervention status Within the current treatment episode, whether the client was offered a test for Hepatitis C, and if that offer was accepted by the client. Hep B vaccination count The number of Hepatitis B vaccinations given to the client within the current treatment episode, or whether the course of vaccinations was completed. Vaccinations can be provided by the treatment agency or elsewhere, such as in primary care. Where this, or a partner treatment provider, provides one vaccination to a client but this actually completes the course, then ‘course completed’ should be recorded rather than ‘one vaccination’. Hep B intervention status Within the current treatment episode, whether the client was offered a vaccination for Hepatitis B, and if that offer was accepted by the client. Drug treatment health care assessment date The date that the initial health care assessment was completed in accordance to defined local protocols. The full scope and depth of the assessment will vary according to the presenting needs of the client, but should include an initial assessment of the client’s physical health and mental health needs. Any arising needs should form part of the care plan and would be directly responded to by the drugs agency itself or, where health needs are more specialised (eg dental care, sexual health) a formal referral is made to an appropriately qualified professional and followed up and reviewed by the drugs worker as part of the on-going delivery of the care plan. TOP care coordination Does the treatment provider currently have care coordination responsibility for the client in regards to completing the TOP information when appropriate during the client’s time in structured treatment. Discharge date The date that the client was discharged ending the current structured (Tier 3/Tier 4) treatment episode. If a client has had a planned discharge then the date agreed within this plan should be used. If a client’s discharge was unplanned then the date of last face-to-face contact with the treatment provider should be used. If a client has had no contact with the treatment provider for two months then for NDTMS purposes it is assumed that the client has exited treatment and a discharge date should be returned at this point using the date of the last face-to-face contact with the client. It should be noted that this is not meant to determine clinical practice and it is understood that further work beyond this point to re-engage the client with treatment may occur. Note: this process should be used for clients triaged after 1 April 2006 and records should not be amended retrospectively. Discharge reason The reason why the client’s episode of structured treatment (Tier 3/Tier 4) was ended. For discharge codes and definitions see appendix F. 12 Adult drug treatment business definition Sect No 3 Sect No 4 v11.06 Item Description Time in treatment assessment date The date that the time in treatment will commence from. Where this is a first occurrence, the date field should be populated with the modality start date of the first structured intervention, all subsequent occurrences should capture the date at which there was a change in the time in treatment threshold. Time in treatment The time per week that the client will be spending in episode of structured treatment. This will take into account the time receiving any combination of pharmacological, psychosocial and recovery support interventions. If a client is only receiving recovery support then the time in treatment is not expected to be returned. See appendix I for the definitions of time in treatment. Time in treatment ID A mandatory, technical identifier representing the time in treatment, as held on the clinical system used at the treatment provider. (NB: this should be a technical item, and should not hold or be composed of attributers, which might identify the individual). This field is mandatory if any items in this section (time in treatment) are not null. Item Description Treatment modality The treatment modality/intervention a client has been referred for/commenced within this treatment episode as defined in appendix C of this document, and as explained in more detail in the implementation guide to core data set J document Ref [3]. A valid treatment modality code should be used as defined in the NDTMS data set – reference data [2]. The NDTMS data set – reference data [2] contains two sets of reference data for treatment modality, to cater for those providing services to adults and young persons. A client may have more than one treatment modality running sequentially or concurrently within an episode and may have more than one of the same type running concurrently as long as the setting in each are different. Current definitions and name changes for all the structured modalities/interventions can be found in appendix C. Date referred to modality The date that it was mutually agreed that the client required this modality/intervention of treatment. For the first modality/intervention in an episode, this should be the date that the client was referred into the treatment system requiring a structured modality/intervention. For subsequent modalities, it should be the date that both the client and the keyworker agreed that the client is ready for this modality/intervention. For scenario examples and how this date is used in waiting times calculations please see appendix B of this document. Setting The setting that this intervention is being provided in, if the setting differs from the one that the treatment provider is registered under in the agency table. This field should be used where a provider has multiple treatment settings or 13 Adult drug treatment business definition Sect No Item v11.06 Description where the client is being treated at another setting that would not report to NDTMS. If the setting of the intervention is the same as that registered then this field must be left blank. See appendix H for a definition of the different setting types. Sect No 5 Modality ID A mandatory, technical identifier representing the modality, as held on the clinical system used at the agency. (Note: this should be a technical item, and should not hold or be composed of attributers, which might identify the individual). A possible implementation of this might be the row number of the modality in the modality table. This field is mandatory if any items in this section (modality) are not null. Date of first appointment offered for modality The date of the first appointment offered to commence this modality/intervention. This should be mutually agreed to be appropriate for the client. The current definition of when a modality commences can be found in appendix C of this document. Modality start date The date that the stated treatment modality/intervention commenced, ie the client attended for the appointment. The current definition of when a modality commences can be found in appendix C of this document. Modality end date The date that the stated treatment modality/intervention ended. If the modality has had a planned end then the date agreed within the plan should be used. If it was unplanned then the date of last face to face contact date within the modality should be used. Modality exit status Whether the exit from the treatment modality was planned or unplanned. Item Description Sub intervention assessment date Sub interventions received The date that the sub intervention review was completed. Sub modality ID The sub interventions that have been received since the previous review had been completed. If it is the first review then it will be the sub interventions since the client commenced their latest treatment journey. If it is the first review for a client already in treatment on 1 November 2012, then it will be the sub interventions that have been received since then. Sub interventions should be submitted at a minimum of every six months while a client remains in one or more of the three high-level intervention types. If a client ends any of the three high level interventions before six months then the sub interventions should be returned at the time of them finishing. See appendix C for the sub intervention types. A mandatory, technical identifier representing the sub modality/intervention, as held on the clinical system used at the treatment provider. NB: this should be a technical item, and should not hold or be composed of attributers, which might identify the individual. This field is mandatory if any items in this section (sub intervention) are not null. 14 Adult drug treatment business definition Sect No 6 v11.06 Item Description Treatment Outcomes Profile (TOP) date Date of most recent care plan review. All outcome status submitted in this section of the data set will be associated and stored as being the status as of this date. TOP ID A mandatory, technical identifier representing the TOP, as held on the clinical system used at the treatment provider. (NB: this should be a technical item, and should not hold or be composed of attributers, which might identify the individual). A possible implementation of this might be the row number of the TOP in the TOP table. This field is mandatory if any items in this section (TOP) are not null. Treatment stage Stage of treatment that the TOP data relates to. Alcohol use Number of days in previous 28 days that client has used. Consumption Typical number of units consumed in a drinking day in the last 28 days. Opiate use Crack use Number of days in previous 28 days that client has used opiates. Number of days in the 28 days prior to treatment that the client smoked tobacco, in whatever form (ready-made cigarettes, hand-rolled cigarettes, cannabis joints with tobacco, cigars, pipe tobacco, shisha/waterpipes, etc), but not including nicotine replacement therapy and e-cigarettes. Number of days in previous 28 days that client has used crack. Cocaine use Number of days in previous 28 days that client has used powder cocaine. Amphetamine use Number of days in previous 28 days that client has used amphetamines. Cannabis use Number of days in previous 28 days that client has used cannabis. Other drug use Number of days in previous 28 days that client has used other problem drug. IV drug use Number of days in previous 28 days that client has injected non prescribed drugs. Sharing Has client shared needles or paraphernalia in last 28 days. Shop theft Number of days in previous 28 days that client has been involved in shop theft. Drug selling Number of days in previous 28 days that client has been involved in selling drugs. Other theft Has client has been involved in theft from or of a vehicle, property or been involved in fraud in last 28 days. Assault/violence Has client committed assault/violence in last 28 days. Tobacco use 15 Adult drug treatment business definition Sect No Sect No 7 v11.06 Item Description Psychological health status Self-reported score of 0-20. Paid work Number of days in previous 28 days that client has had paid work. Education Number of days in previous 28 days that client has attended college/education system. Acute housing problem Has client had acute housing problem (been homeless) in last 28 days. Housing risk Has client been at risk of eviction within past 28 days. Physical health status Self-reported score of 0-20. Quality of life Self-reported score of 0-20. Item Description Injected in last 28 days Has the client injected in the last 28 days. Ever shared Has the client ever shared injecting paraphernalia. Previously Hep B infected Has the client ever had a previous Hepatitis B infection. Hep C positive Is the client Hep C positive. Referred for hepatology Has the client been referred to a hepatology unit. Employment status The client’s current employment status. 16 Adult drug treatment business definition v11.06 APPENDIX A – Data items to be updated as episode of treatment progresses Sect No No 1 2 Field Description Rules and Guidance 1 Initial of client’s first name MUST be completed. If not, record rejected. Should not change. 2 Initial of client’s surname MUST be completed. If not, record rejected. Should not change 3 Date of birth of client MUST be completed. If not, record rejected. Should not change. 4 Sex of client MUST be completed. If not, record rejected. Should not change. 5 Ethnicity Should not change. 6 Nationality Should not change. 7 Referral date MUST be completed. If not data may be excluded from performance monitoring reports. Should not change. 8 Agency code MUST be completed. If not, record rejected. Should not change. 9 Software system used MUST be completed. If not, record rejected. May change (ie current situation). 10 Client reference Should not change and should be consistent across all episodes at the agency. 11 Client ID MUST be completed. If not, record rejected. Should not change. 12 Episode ID MUST be completed. If not, record rejected. Should not change. 17 Adult drug treatment business definition Sect No No v11.06 Field Description Rules and Guidance 13 Consent for NDTMS Client must give consent before their information can be sent to NDTMS. May change (ie current situation). 14 Previously treated Not expected to change (ie as at start of episode). 15 Postcode May change (ie current living situation). 16 Accommodation need Not expected to change (ie as at start of episode). 17 Parental status Not expected to change (ie as at start of episode). 18 Religion or belief Not expected to change (ie as at start of episode). 19 Sexual orientation Not expected to change (ie as at start of episode). 20 Disability 1 Not expected to change (ie as at start of episode). 21 Disability 2 Not expected to change (ie as at start of episode). 22 Disability 3 Not expected to change (ie as at start of episode). 23 Are any of your children/the children living with you Not expected to change (ie as at start of episode). 24 DAT of residence MUST be completed. If not data may be excluded from performance monitoring reports. May change (ie current living situation). 25 PCT of residence There is no need to collect PCT data – retained as a data item. May change (ie current living situation). 26 GP practice code May change (ie current living situation). 27 Problem substance No 1 MUST be completed. If not, record rejected. Not expected to change (ie as at start of episode). 28 Age of first use of problem substance No 1 Not expected to change (ie as at start of episode). 29 Route of administration of problem substance No 1 Not expected to change (ie as at start of episode). 18 Adult drug treatment business definition Sect No No v11.06 Field Description Rules and Guidance 30 Problem substance No 2 Not expected to change (ie as at start of episode). 31 Problem substance No 3 Not expected to change (ie as at start of episode). 32 Referral source Not expected to change (ie as at start of episode). 33 Triage date Trigger to submit record and MUST be completed. If not, record rejected. Not expected to change (ie as at start of episode). 34 Care plan started date MUST be completed when modality start date given. Not expected to change (ie as at start of episode). 35 Injecting status Not expected to change (ie as at start of episode). 36 Children Not expected to change (ie as at start of episode). 37 Pregnant Not expected to change (ie as at start of episode). 38 Drinking days Not expected to change (ie as at start of episode). 39 Units of alcohol Not expected to change (ie as at start of episode). 40 Dual diagnosis Not expected to change (ie as at start of episode). 41 Hep C tested May change (ie current situation). 42 Hep C latest test date May change (ie current situation). 43 Hep C intervention status May change (ie current situation). 44 Hep B vaccination count May change (ie current situation). 45 Hep B intervention status May change (ie current situation). 46 Drug treatment health care Not expected to change (to be completed when initial health care assessment is completed). assessment date 47 TOP care coordination May change (ie current situation). 48 Discharge date Discharge date required when client is discharged. ALL structured modalities MUST now have end dates. Discharge reason MUST be given. 19 Adult drug treatment business definition v11.06 Sect No No Field Description Rules and Guidance 49 Discharge reason Discharge reason required when client is discharged. Discharge date MUST be given Should only change from ‘null’ to populated as episode progresses. 50 Time in treatment assessment date Must be completed for each time in treatment return. Should not change – otherwise the regional NDTMS team should be advised. 51 Time in treatment Not expected to change (ie as at time in treatment date). 52 Time in treatment ID MUST be completed if any items in this section above are not null. If not, record rejected. Should not change. 53 Treatment modality Required as soon as modality is known. Should not change. 54 Date referred to modality Waiting times calculated from this field. MUST be completed for new presentations/modalities. Should not change. 55 Modality ID MUST be completed if any items in this section above are not null. If not, record rejected. Should not change. 56 Setting Not expected to change (ie as at modality start date). 57 Date of first appointment offered for modality Waiting times calculated from this field. Should not change. 58 Modality start date Required when client actually starts modality. Trigger for waiting times to be calculated. Should only change from ‘null’ to populated as episode progresses. 59 Modality end date Required when client completes modality or is discharged. Should only change from ‘null’ to populated as episode progresses. 60 Modality exit status Required when client completes modality or is discharged. Should only change from ‘null’ to populated as episode progresses. 61 Sub intervention assessment date Must be completed each time a sub intervention review is completed. Should not change – otherwise the regional NDTMS team should be advised. 62 Sub interventions received Not expected to change (ie as at sub intervention review date). 3 4 5 20 Adult drug treatment business definition Sect No No 6 v11.06 Field Description Rules and Guidance 63 Sub modality ID MUST be completed if any items in this section above are not null. If not, record rejected. Should not change. 64 Treatment Outcomes Profile (TOP) date Not expected to change (ie as at TOP date). 65 TOP ID MUST be completed if any items in this section above are not null. If not, record rejected. Should not change. 66 Treatment stage Not expected to change (ie as at TOP date). 67 Consumption Not expected to change (ie as at TOP date). 68 Alcohol use Not expected to change (ie as at TOP date). 69 Opiate use Not expected to change (ie as at TOP date). 70 Tobacco use Not expected to change (ie as at TOP date). 71 Crack use Not expected to change (ie as at TOP date). 72 Cocaine use Not expected to change (ie as at TOP date). 73 Amphetamine use Not expected to change (ie as at TOP date). 74 Cannabis use Not expected to change (ie as at TOP date). 75 Other drug use Not expected to change (ie as at TOP date). 76 IV drug use Not expected to change (ie as at TOP date). 77 Sharing Not expected to change (ie as at TOP date). 78 Shop theft Not expected to change (ie as at TOP date). 79 Drug selling Not expected to change (ie as at TOP date). 80 Other theft Not expected to change (ie as at TOP date). 81 Assault/violence Not expected to change (ie as at TOP date). 82 Psychological health status Not expected to change (ie as at TOP date). 21 Adult drug treatment business definition Sect No No 7 v11.06 Field Description Rules and Guidance 83 Paid work Not expected to change (ie as at TOP date). 84 Education Not expected to change (ie as at TOP date). 85 Acute housing problem Not expected to change (ie as at TOP date). 86 Housing risk Not expected to change (ie as at TOP date). 87 Physical health status Not expected to change (ie as at TOP date). 88 Quality of life Not expected to change (ie as at TOP date). 89 Local agency details May change (local modality item). 90 Injected in last 28 days Not expected to change (ie as at start of episode). 91 Ever shared Not expected to change (ie as at start of episode). 92 Previously Hep B infected May change (ie current situation). 93 Hep C positive May change (ie current situation). 94 Referred for hepatology May change (ie current situation). 95 Local authority NOW PART OF CORE DATA SET. MUST be completed. If not, record rejected. May change (ie current living situation). 96 Employment status Not expected to change (ie as at start of episode). Where items are designated as ‘not expected to change’ this does not include corrections or moving from a null in the field to it being populated. 22 Adult drug treatment business definition v11.06 APPENDIX B – Scenarios and examples B.1 Waiting times measurement within NDTMS – key points: • all waiting times are measured in calendar days. • the agency ‘referral date’ recorded by a treatment provider may be later than the ‘date referred to modality’ if the initial contact of a client entering the treatment system is a third party treatment provider. This is because the wait for the client is now being measured across the treatment system. • the date of ‘first appointment offered for modality’ may be a future date, but the waiting times will only be calculated when a client actually commences a modality, ie when the modality start date is present in the data. • waiting times will be reported at both a treatment system and treatment provider level. For the treatment system, it will be calculated from the ‘date referred to modality’ to the ‘first appointment offered for modality’ for all modalities/interventions. For a treatment provider it will be the ‘(agency) referral date’/‘date referred to modality’ (whichever is later) to the ‘first appointment offered to modality’ for the earliest modality/intervention in an episode and then the ‘date referred to modality’ to the ‘first appointment offered for modality’ for all subsequent modalities/interventions. 23 Adult drug treatment business definition B.2 v11.06 Waiting times scenario 1 – self referral Key point – the agency ‘referral date’ and the ‘date referred to modality’ are the same. Client self refers to agency (treatment provider) A 01/04/06 Client attends GP surgery agreed Tier 3 Specialist Prescribing itrequired. After initial assessment is agreed 06/04/06 client requires prescribing Records returned to NDTMS: (Agency) referral date – 01/04/06 Date referred to modality – 01/04/06 Modality type – specialist prescribing Mutually received Referral agreed first by Agency appointment A for 08/04/06 and client presents for prescribing 15/04/06 treatment 10/04/06 Record returned to NDTMS: st Client DNAs Mutually agreed first 1appointment Appointment offered for prescribing and attends20/04/06 subsequent appointment 22/04/06 Record returned to NDTMS: Date of 1st Appointment offered for Modality Start Date – 22/04/06 modality – 20/04/06 Date of first appointment offered for modality – 15/04/06 Waiting times calculated: For partnership – 01/04/06 to 15/04/06 = 14 days For agency A – 01/04/06 to 15/04/06 = 14 days 24 Adult drug treatment business definition B.3 v11.06 Waiting times scenario 2 – referral from a third party treatment provider Key point – the agency ‘referral date’ is after the ‘date referred to modality’. The ‘date referred to modality’ that is used reflects the clients experience of when the wait started. Client attends triage gateway service No data returned to NDTMS by gateway service, but referral made to treatment provider A Agreed tier 3 specialist prescribing required 06/04/06 Records returned to NDTMS: (treatment provider) referral date – 08/04/06 Referral received by treatment provider A 08/04/06 Date referred to modality – 06/04/06 Modality type – specialist prescribing Client presents for treatment 10/04/06 Note 06/04/06 used as date referred into the treatment system Record returned to NDTMS: Mutually agreed first appointment for prescribing 20/04/06 Date of first appointment offered for modality – 20/04/06 Client DNAs first appointment offered and attends subsequent appointment 27/04/06 Record returned to NDTMS: Modality start date – 27/04/06 Waiting times calculated: For partnership – 06/04/06 to 20/04/06 = 14 days For agency A – 08/04/06 to 20/04/06 = 12 days Note the referral date is used to calculate the agency waiting time 25 Adult drug treatment business definition B.4 v11.06 Waiting times scenario 3 – Tier 4 Key point – the wait for residential rehab begins when it has been agreed that the client will be referred for funding. Client attending Tier 3 community service: treatment provider A receiving specialist prescribing Mutually agreed with client and keyworker that client ready for residential rehab and that they will be referred for funding 06/04/06 Record returned to NDTMS by treatment provider B: (Agency) referral date – 08/04/06 Referral made to rehab treatment provider B Date referred to modality – 06/04/06 Modality type – residential rehab Received by treatment provider B 08/04/06 Note 06/04/06 used as date agreed client would be referred for funding Record returned to NDTMS by treatment provider B: Mutually agreed first appointment for residential rehab 22/04/06 Date of first appointment offered for modality – 22/04/06 Record returned to NDTMS by treatment provider B: Client attends and admitted into residential rehab at agency B 22/04/06 Modality Start Date – 22/04/06 Waiting times calculated: For partnership – 06/04/06 to 22/04/06 = 16 days For treatment provider B – 08/04/06 to 22/04/06 = 14 days 26 Adult drug treatment business definition B.5 v11.06 Waiting times scenario 4 – prison referrals Key point – the waiting time begins once the client has been released and is available for treatment. Client currently in prison referred to agency C 01/04/06 Records returned to NDTMS by treatment provider C: Agreed client requires structured day programme at treatment provider C Referral date 1/4/06 Prison release date 01/05/06 Referred to modality date 1/5/06 Client offered appointment for structured day programme for 10/05/06 Records returned to NDTMS by treatment provider C: Client exits prison 01/05/2006 and attends structured day programme 10/05/06 Record returned to NDTMS by treatment provider C: Date of first appointment offered for modality – 10/05/06 Modality start date – 10/05/06 Waiting times calculated: For partnership – 01/05/06 to 10/05/06 = 9 days For treatment provider C – 01/05/06 to 10/05/06 = 9 days Note the date referred to modality is used to calculate treatment provider waiting time 27 Adult drug treatment business definition B.6 v11.06 Waiting times scenario 5 – subsequent wait within an episode Key point – the wait for a subsequent intervention within an episode should begin when both the client and keyworker agree that client is ready. Client currently in specialist prescribing at treatment provider D Mutually agreed 01/05/06 client requires structured day programme Records returned to NDTMS by treatment provider D – second modality record: This intervention also offered by treatment provider D Date referred to modality – 01/05/06 Client offered appointment for structured day programme for 20/05/06 Records returned to NDTMS by treatment provider D: Client attends structured day programme appointment 20/05/06 Record returned to NDTMS by treatment provider D: Modality type – structured day programme Date of first appointment offered for modality – 20/05/06 Modality start date – 20/05/06 Waiting times calculated for subsequent intervention: For partnership – 01/05/06 to 20/05/06 = 19 days For treatment provider D – 01/05/06 to 20/05/06 = 19 days 28 Adult drug treatment business definition v11.06 B.7 Waiting times scenario 6 – measuring inpatient detoxification and residential rehabilitation as a package Records returned to NDTMS: Client agrees with key worker in Tier 3 that package of inpatient detoxification (IPD) AND residential rehabilitation (RR) is required RR agency report date referred to modality as 01/09/06 Funding for RR is applied for on 01/09/06 Funding application accepted and key worker notifies the client, IPD and RR agencies on 12/09/06 Records returned to NDTMS: Referral letters received by agencies 14/09/06 IPD and RR report (agency) referral date as 14/09/06 Client commences inpatient detoxification at on 19/09/06 Records returned to NDTMS: IPD agency reports date referred to modality as 12/09/06 IPD agency date of first appointment offered for modality and modality start date as 19/09/06 RR agency reports date of first appointment offered as 19/09/06 Client successfully completes inpatient detoxification 19/10/06 Records returned to NDTMS: Client starts RR at Agency C on 23/10/06 RR agency reports modality start date as 23/10/06 Waiting times calculated: For partnership IPD = 7 days For IPD agency = 5 days For partnership RR = 18 days For RR agency = 5 days 29 Adult drug treatment business definition v11.06 APPENDIX C – Definitions of interventions and sub interventions See ‘An implementation guide to core data set J’ Ref [3] for further definitions. C.1 Pharmacological The psychosocial interventions that are integral to a service user’s pharmacological intervention are now reported separately from the pharmacological intervention itself – as interventions within the psychosocial intervention type. This should not be taken to suggest that these are not still core elements of the pharmacological interventions. This change does enable the basis of the pharmacological intervention to be reported for the pharmacological intervention – as defined below. It also means that the psychosocial returns will include all psychosocial interventions provided, whether integral to the pharmacological intervention, additional to the pharmacological intervention, or provided in the absence of a pharmacological intervention. Therefore, in addition to completing interventions concerning pharmacological, all specific structured psychosocial intervention(s) delivered as integral to or alongside prescribing should be reported through 'psychosocial’. Recovery support intervention(s) that are integral to or alongside pharmacological and/or psychosocial interventions should also be recorded, through ‘recovery support’. Basis of pharmacological Definition intervention Assessment and stabilisation Prescribing of a receptor agonist (such as methadone), or partial agonist (such as buprenorphine), or other pharmacotherapy specific to substance misuse, to stabilise use of illicit drug(s), following and alongside continuing appropriate assessment. It also includes re-induction onto opioid substitution treatment prior to prison release, in the limited circumstances where this is appropriate. Maintenance Prescribing of substitute medications under a stable dose regimen to medically manage physiological dependence and minimise illicit drug use. Maintenance prescribing may be provided to support the individual in achieving or sustaining medication assisted recovery. Withdrawal Prescribing of an agonist or partial agonist or other medication, usually up to12 weeks and 28 days as an inpatient, to facilitate medically supervised assisted withdrawal and to manage withdrawal symptoms. Relapse prevention Prescribing medication for drug and/or alcohol relapse prevention support (such as naltrexone as part of opioid relapse prevention therapy). 30 Adult drug treatment business definition C.2 v11.06 Psychosocial The psychosocial intervention and its sub interventions should be used by both prescribing and non-prescribing services. They should be used to report structured psychosocial interventions delivered alone, as well as psychosocial interventions integrated with or additional to a pharmacological modality/intervention. Recovery support interventions that are integral to, or provided alongside a pharmacological intervention, and/or psychosocial interventions should also be recorded using recovery support intervention codes. Psychosocial sub intervention Definition Motivational interventions Motivational interventions aim to help service users resolve ambivalence for change, and increase intrinsic motivation for change and self-efficacy through a semi-directive style and may involve normative feedback on problems and progress. They may be focused on substance specific changes and/or on building recovery capital. Motivational interventions can be delivered in groups or one-to-one and may involve the use of mapping tools. Motivational interventions require competences over and above those required for key working, and delivery within a clinical governance framework that includes appropriate supervision. Motivational interviewing and motivational enhancement therapy are both forms of motivational interventions. Contingency management Contingency management (CM) provides a system of reinforcement or incentives designed to motivate behaviour change and/or facilitate recovery. CM aims to make target behaviours (such as drug use) less attractive and alternative behaviours (such as abstinence) more attractive. CM requires competences over and above those required for key working, and delivery within a clinical governance framework that includes appropriate supervision. Family and social network interventions Family and social network interventions engage one or more of the client’s social network members who agree to support the client’s treatment and recovery. The interventions use psychosocial techniques that aim to increase family and social network support for change, and decrease family and social support for continuing drug and/or alcohol use. These interventions may involve the use of mapping tools. They require competences over and above those required for key working, and delivery within a clinical governance framework that includes appropriate supervision. Examples: social behaviour and network therapy (SBNT), community reinforcement approach (CRA), behavioural couples therapy (BCT) and formal family therapy. 31 Adult drug treatment business definition v11.06 Cognitive and behavioural based relapse prevention interventions (substance misuse focused) Cognitive and behavioural based relapse prevention interventions develop the service user’s abilities to recognise, avoid or cope with thoughts, feelings and situations that are triggers to substance use. They include a focus on coping with stress, boredom and relationship issues and the prevention of relapse through specific skills, eg drug refusal, craving management. They can be delivered in groups or one-to-one and may involve the use of mapping tools. They require competences over and above those required for key working, and delivery within a clinical governance framework that includes appropriate supervision. Examples: CBT based relapse prevention (which may include mindfulness and ‘third wave’ CBT), behavioural self-control (alcohol). Evidence-based psychological interventions for co-existing mental health problems NICE guidelines for mental health problems generally recommend a stepped care approach. Low intensity psychological intervention for co-existing mental health problems, include guided self-help or brief interventions for less severe common mental health problems. High intensity psychological therapies (such as cognitive behavioural therapy) are recommended for moderate and severe problems. Typically formulationbased and delivered by clinicians with specialist training who are registered with a relevant professional/regulatory body. They can be delivered in groups or one-to-one. Both low and high intensity interventions require additional competences for the worker and delivery within a clinical governance framework that includes appropriate supervision. A type of psychotherapy that draws on psychoanalytic theory to help people Psychodynamic therapy (substance understand the developmental origins of emotional distress and behaviours such as substance misuse, by exploring unconscious motives, needs, and use focused) defences. Psychodynamic therapy requires additional competences for the worker and delivery within a clinical governance framework that includes appropriate supervision. Therapists should be registered with an appropriate professional/regulatory body. 12-step work A 12-step intervention for recovery from addiction, compulsion or other behavioural problems. Interventions are delivered within a clinical governance framework that includes appropriate supervision. The aim of 12-step work is to facilitate service users to complete some or all of the 12 steps. Counselling – BACP Accredited A systematic process that gives individuals an opportunity to explore, discover and clarify ways of living more resourcefully, with a greater sense of well-being. This requires additional competences for the worker and delivery within a clinical governance framework that includes appropriate supervision. Other An intervention based on established psychological models/theories that have an evidence base, and that is undertaken by a worker with the required competences with adequate supervision and clinical governance arrangements This category can only be used where an intervention is not covered by individual, or a combination of, categories above. It is anticipated that use of this category would be relatively uncommon. 32 Adult drug treatment business definition C.3 v11.06 Recovery support During structured treatment, recovery support interventions should be recorded for interventions delivered alongside and/or integrated with a psychosocial or pharmacological intervention. Recovery support interventions can also be delivered and recorded outside of structured treatment, following the recording of an exit from structured treatment. Recovery support sub intervention Definition Peer support involvement A supportive relationship where an individual who has direct or indirect experience of drug or alcohol problems may be specifically recruited on a paid or voluntary basis to provide support and guidance to peers. Peer support can also include less formal supportive arrangements where shared experience is the basis but generic support is the outcome (eg as a part of a social group). This may include mental health focused peer support where a service user has co-existing mental health problems. Where peer support programmes are available, staff should provide information on access to service users, and support access where service users express an interest in using this type of support. Facilitated access to mutual aid Staff provide a service user with information about self-help groups. If a service user has expressed an interest in attending a mutual aid group, staff facilitate the person’s initial contact with the group, for example by making arrangements for them to meet a group member, arranging transport, accompanying him or her to the first session and dealing with any concerns. These groups may be based on 12-step principles (such as Alcoholics Anonymous, Narcotics Anonymous and Cocaine Anonymous) or another approach (such as SMART Recovery). Family support Staff have assessed the family support needs of the individual/family as part of a comprehensive assessment, or on-going review of their treatment package. Agreed actions can include arranging family support for the family in their own right or family support that includes the individual in treatment. Parenting support Staff have assessed the family support needs of the individual as part of a comprehensive assessment, or on-going review of their treatment package. Agreed actions can include a referral to an in-house parenting support worker where available, or to a local service which delivers parenting support. Housing support Staff have assessed the housing needs of the individual as part of the comprehensive assessment, or on-going recovery care planning process, and has agreed goals that include specific housing support actions by the treatment service, and/or active referral to a housing agency for specialist housing support. Housing support covers a range of activities that either allows the individual to maintain their accommodation or to address an urgent housing need. 33 Adult drug treatment business definition Recovery support sub intervention v11.06 Definition Employment support Staff have assessed the employment needs of the individual as part of the comprehensive assessment, or on-going recovery care planning process, and agreed goals that include specific specialised employment support actions by the treatment service, and/or active referral to an agency for specialist employment support. Where the individual is already a claimant with Jobcentre Plus or the Work Programme, the referral can include a three way meeting with the relevant advisor to discuss education/employment/training (ETE) needs. The referral can also be made directly to an ETE provider. Education and training support Staff have assessed the education and training related needs of the individual as part of the comprehensive assessment, or on-going recovery care planning process and agreed goals that include specific specialised education and training support actions by the treatment service, and/or active referral to an agency for specialist education & training support. Where the individual is already a claimant with Jobcentre Plus or the Work Programme, the referral can include a three way meeting with the relevant advisor to discuss ETE needs. The referral can also be made directly to an ETE provider. Supported work projects Staff have assessed the employment related needs of the individual as part of the comprehensive assessment, or on-going recovery care planning process and agreed goals that include the referral to a service providing paid employment positions where the employee receives significant on-going support to attend and perform duties. Recovery checkups Following successful completion of formal substance misuse treatment there is an agreement for periodic contact between a service provider and the former participant in the structured treatment phase of support. The periodic contact is initiated by the service, and comprises a structured check-up on recovery progress and maintenance, checks for signs of lapses, sign posting to any appropriate further recovery services, and in the case of relapse (or marked risk of relapse) facilitates a prompt return to treatment services. Evidence-based psychosocial interventions to support substance misuse relapse prevention Evidence based psychosocial interventions that support on-going relapse prevention and recovery, delivered following successful completion of structured substance misuse treatment. These are interventions with a specific substance misuse focus and delivered within substance misuse services. Evidence-based mental health focused psychosocial interventions to support continued recovery Evidence-based psychosocial interventions for common mental health problems that support continued recovery by focusing on improving psychological well-being that might otherwise increase the likelihood of relapse to substance use. These are delivered following successful completion of structured substance misuse treatment and may be delivered by services outside the substance misuse treatment system following an identification of need for further psychological treatment and a referral by substance misuse services. 34 Adult drug treatment business definition Recovery support sub intervention v11.06 Definition Smoking cessation Specific stop-smoking support has been provided by the treatment service, and/or the individual has been actively referred to a stop smoking service for smoking cessation support and take-up of that support is monitored. Suitable support will vary but should be more than very brief advice to qualify as an intervention here. It will most commonly include psychosocial support and nicotine replacement therapy, and will be provided by a trained stop smoking advisor. Complementary therapies Complementary therapies aimed at promoting and maintaining change to substance use, for example through the use of therapies such as acupuncture and reflexology that are provided in the context of substance misuse specific recovery support. Other A recognised recovery activity or support intended to promote and maintain a service user’s recovery capital, which is not captured by an individual type or combination of types above. 35 Adult drug treatment business definition v11.06 APPENDIX D – General healthcare assessment There is now a requirement that all service users within specialist drug treatment providers receive a general healthcare assessment. This will be monitored within updated NDTMS reporting mechanisms for Tier 3 and 4 services and will be measured against local standards. PHE has defined the healthcare assessment as follows: ‘As part of their assessment and care plan, all drug users require a general healthcare assessment, which appraises and responds to (by direct intervention or referral) their risk of, for example, injecting-related wound infection, blood borne viruses, overdose (accidental or intentional), sexually transmitted disease or poor dental health, and will also include a basic health screen carried out by a trained professional.’ Adult Treatment Plan Guidance Notes 2006-07 Purposes/aims: • to identify unmet health needs and address these through care planning • to ensure account is taken of health problems which could interact with drug treatment • as a means of attracting and retaining patients into drug treatment • to improve drug treatment outcomes such as abstinence and relapse prevention in line with current evidence • to create opportunities for harm minimisation interventions The intention is first to define a universal healthcare assessment, which should be carried out by all agencies on all drug users. DANOS competencies required are: AF3 ‘Carry out comprehensive substance misuse assessment’). In the future, PHE intends to issue further guidance on incremental health assessment according to drug worker competencies, service amenities and drug user needs. Therefore, as a first stage towards this goal, the minimum definition is as follows: All drug users presenting to specialist drug agencies will receive as part of their assessment: Verbal health assessment a. General – health questions should address: • current illnesses/symptoms particularly epilepsy, asthma, liver disease • prescribed/OTC (over the counter) drugs • cigarette smoking 36 Adult drug treatment business definition v11.06 • sexual health (risks and STD history) including smear status in women aged 25-64 • current use of/need for contraception • dental health • diet and weight loss b. Drug-related – health questions should address: All patients • blood-borne virus testing and results (HIV, HBV, HCV) • Hepatitis immunisation status (HBV, HAV) and other immunisations (Tetanus, TB) • history of fits/blackouts • history of overdose Drug smokers • smoking methods • wheeze/breathlessness/cough/sputum (are you coughing anything up?)/ haemoptysis (are you coughing up any blood?)/chest pain Past and current injectors • injecting status and problems • history of skin infection/cellulitis/ulcer/abscess • history of septicaemia (blood poisoning)/endocarditis (infection in your heart valves or the lining of your heart?) • history of DVT/PE/other thrombosis (blood clot in your leg/lung/anywhere else?) Basic physical health assessment by examination All patients should be offered examination of: • injection sites • any current concerns related to wound infections and skin swellings 37 Adult drug treatment business definition v11.06 APPENDIX E – Accommodation need guidance for adult services The accommodation need for adult services has been defined with high-level reference data. The following provides guidance as to the sub-categories that make up the highlevel view. NFA – urgent housing problem: • lives on the streets • use night hostels (night-by-night basis) • sleeps on a different friend’s floor each night Housing problem: • staying with friends/family as a short term guest • night winter shelter • direct access short stay hostel • short term B&B or other hotel • squatting No housing problem: • local authority/Registered Social Landlord (RSL) rented • private rented • approved premises • supported housing/hostel • traveller • own property • settled with friends/family 38 Adult drug treatment business definition v11.06 APPENDIX F – Adult discharge codes from April 2009 When the current NDTMS discharge codes were defined, a scenario that described a need for treatment for alcohol dependence following the completion of drug treatment was not included, however the expectation then, as now, is that if a client has completed drug treatment but still requires a structured alcohol intervention then, depending where the alcohol treatment is provided, the following processes should be followed: Below are the current discharge reasons and their definitions. Data item name Definition Treatment completed – drug free The client no longer requires structured drug treatment interventions and is judged by the clinician not to be using heroin (or any other opioids) or crack cocaine or any other illicit drug. Treatment completed – occasional user (not heroin and crack) The client no longer requires structured drug treatment interventions and is judged by the clinician not to be using heroin (or any other opioids) or crack cocaine. There is evidence of use of other illicit drug use but this is not judged to be problematic or to require treatment. Transferred – not in custody The client has finished treatment at this provider but still requires further structured drug treatment interventions and the individual has been referred to an alternative non-prison provider for this. This code should only be used if there is an appropriate referral path and care planned structured drug treatment pathways are available. 39 Adult drug treatment business definition v11.06 Data item name Definition Transferred – in custody The client has received a custodial sentence or is on remand and a continuation of structured treatment has been arranged. This will consist of the appropriate onward referral of care planning information and a twoway communication between the community and prison treatment provider to confirm assessment and that care planned treatment will be provided as appropriate. Incomplete – dropped out The treatment provider has lost contact with the client without a planned discharge and activities to re-engage the client back into treatment have not been successful. Incomplete – treatment withdrawn by provider The treatment provider has withdrawn treatment provision from the client. This item could be used, for example, in cases where the client has seriously breached a contract leading to their discharge; it should not be used if the client has simply ‘dropped out’. Incomplete – retained in custody The client is no longer in contact with the treatment provider as they are in prison or another secure setting. While the treatment provider has confirmed this, there has been no formal two-way communication between the treatment provider and the criminal justice system care provider leading to continuation of the appropriate assessment and careplanned structured drug treatment. Incomplete – treatment commencement declined by the client The treatment provider has received a referral and has had a face-to-face contact with the client after which the client has chosen not to commence a recommended structured drug treatment intervention. Incomplete – client died During their time in contact with structured drug treatment the client died. Additional ‘transferred’ discharge codes for use by residential rehabilitation and inpatient detoxification providers only Four new ‘transferred’ discharge codes have been added to the data set for use by residential rehabilitation and inpatient detox providers only in order for NDTMS to more accurately record the discharge status of clients leaving a residential or inpatient facility. Residential and inpatient providers should use these codes instead of the ‘transferred’ codes above. Unlike the existing ‘transferred’ discharge codes that record the status of a client with the treatment system at the point of discharge from a provider, the residential and inpatient codes additionally record the outcome of the residential programme and what further structured interventions are required. This allows residential and inpatient providers to record where clients have successfully completed the treatment programme and have been transferred for continued structured treatment at another provider at either at a second stage residential provider or at a community provider. This may be the case for clients at residential and inpatient services that have been commissioned to provide treatment as a part of a longer treatment journey. The previous data sets recorded this as a ‘transferred on’, which did not capture information that the client has successfully completed that part of their treatment journey at the residential or inpatient provider. 40 Adult drug treatment business definition v11.06 Data item name Definition Transferred – treatment programme completed at the residential/inpatient provider – additional residential treatment required The client has completed the structured treatment programme at the provider by meeting the goals of their care plan. Although they have finished treatment at this provider they still require continued structured treatment interventions and have been transferred to an alternative residential provider for this. This code should only be used if there is an appropriate referral path and care planned structured treatment pathways are available. Transferred – treatment programme completed at the residential/inpatient provider – additional community treatment required The client has completed the structured treatment programme at the provider by meeting the goals of their care plan. Although they have finished treatment at this provider they still require continued structured treatment interventions and have been transferred to an alternative community provider for this. This code should only be used if there is an appropriate referral path and care planned structured treatment pathways are available. Transferred – treatment programme not completed at the residential/inpatient provider – additional residential treatment required The client has not completed the structured treatment programme at the provider because they have not met the goals of their care plan. They require continued structured treatment interventions and have been referred to an alternative residential provider for this. This code should only be used if there is an appropriate referral path and care planned structured treatment pathways are available. Transferred – treatment programme not completed at the residential/inpatient provider – additional community treatment required The client has not completed the structured treatment programme at the provider because they have not met the goals of their care plan. They require continued structured treatment interventions and have been referred to an alternative community provider for this. This code should only be used if there is an appropriate referral path and care planned structured treatment pathways are available. 41 Adult drug treatment business definition v11.06 APPENDIX G – Parental status from April 2009 Parental status should include biological parents, step-parents, foster parents, adoptive parents and guardians. It should also include de facto parents where an adult lives with the parent of a child or the child alone (for example, clients who care for younger siblings or grandchildren) and have taken on full or partial parental responsibilities. The minimum period of cohabitation would be one month. Data item name Definition All the children live with client The client is a parent of one or more children under 18 and all the client’s children (who are under 18) reside with them full time. Some of the children The client is a parent of children under 18 and some of the client’s children live with client (who are under 18) reside with them, others live full time in other locations. None of the children live with client The client is a parent of one or more children under 18 but none of the client’s children (under 18) reside with them, they all live in other locations full time. Not a parent The client is not a parent of any children under 18. Client declined to answer Only use where client declines to answer. The second part of the parental status question triggered by a response that the client is living with one or more of their children or children: Are any of your children/the children living with you. Note: This question applies to children of the client in treatment (regardless of whether this child lives with the client or not) and to children living with the client (regardless whether this is the child of the client or not). Data item name Definition A child looked after or in foster care The definition of a looked after child is ‘Children looked after includes all children being looked after by a local authority including those subject to care orders under Section 31 of the Children Act 1989 and those looked after on a voluntary basis through an agreement with their parents under Section 20 of the Children Act 1989’. Subject to a child protection plan These are formal plans developed by the local authority confirming intentions for a child’s protection. The initial child protection conference is responsible for agreeing a child protection plan for any child with or without a care status. Permissible responses: • both • neither • declined to answer 42 Adult drug treatment business definition v11.06 APPENDIX H – Setting The settings below should be recorded in the intervention/modality record where the intervention being delivered is at a different setting to the one the provider is registered as on the NDTMS agency database. Setting Definition Community A structured drug and alcohol treatment setting where residence is not a condition of engagement with the service. This will include treatment within community drug and alcohol teams and day programmes (including rehabilitation programmes where residence in a specified location is not a condition of entry). Inpatient unit An inpatient unit provides assessment, stabilisation and/or assisted withdrawal with 24hour cover from a multidisciplinary clinical team who have had specialist training in managing addictive behaviours 1. In addition, the clinical lead in such a service comes from a consultant in addiction psychiatry or another substance misuse medical specialist. The multi-disciplinary team may include psychologists, nurses, occupational therapists, pharmacists and social workers. Inpatient units are for those alcohol or drug users whose needs require supervision in a controlled medical environment. Primary care Structured substance misuse treatment is provided in a primary care setting with a General Practitioner, often with a special interest in addiction treatment, having clinical responsibility. Prison Structured drug and alcohol treatment delivered by a locally commissioned substance misuse team within the prison establishment providing the full range of drug and alcohol interventions in line with the evidence base articulated in the Patel Report2. Residential A structured drug and alcohol treatment setting where residence is a condition of receiving the interventions. Although such programmes are usually abstinence based, prescribing for relapse prevention or for medication assisted recovery are also options. The programmes are often, although not exclusively, aimed at people who have had difficulty in overcoming their dependence in a community setting. A residential programme may also deliver an assisted withdrawal programme. This should be sufficiently specialist to qualify as a ‘medically monitored’ inpatient service – and it should meet the standards and criteria detailed in guidance from the Specialist Clinical Addictions Network1. This level of support and monitoring of assisted withdrawal is most appropriate for individuals with lower levels of dependence and/or without a range of associated medical and psychiatric problems. Within the residential setting, people will receive multiple interventions and supports (some of which are described by the intervention codes) in a coordinated and controlled environment. The interventions and support provided in this setting will normally comprise both professionally delivered interventions and peer-based support, as well as work and leisure activities. 1 SCAN (2006). Inpatient Treatment of Drug and Alcohol Misusers in the National Health Service Patel K (2010) Reducing Drug-Related Crime and Rehabilitating Offenders – Recovery and rehabilitation for drug users in prison and on release: recommendations for action. London: House of Lords 2 43 Adult drug treatment business definition Recovery house v11.06 A recovery house is a residential living environment, in which integrated peer-support and/or integrated recovery support interventions are provided for residents who were previously, or are currently, engaged in treatment to overcome their drug and alcohol dependence. The residences can also be referred to as dry-houses, third-stage accommodation or quasi-residential. Supported housing that does not provide such integrated substance misuse peer or recovery support as part of the residential placement is not considered a recovery house for this purpose. Recovery houses may be completely independent, or associated with a residential treatment provider or housing association. Some will require ‘total abstinence’ as a condition of residence whereas others may accept people in medication assisted recovery who are otherwise abstinent. 44 Adult drug treatment business definition v11.06 APPENDIX I – Time in treatment Time in treatment covers the time spent in an average week in structured treatment on one or more of the interventions defined above. The time will usually be that actually spent but may include service user absence, within the programme’s stipulated attendance requirements. Interventions included in calculating the time should be exclusively made up of the pharmacological, psychosocial and recovery support interventions defined earlier, but not only recovery support interventions. A client receiving only recovery support interventions would not be in structured treatment. In deciding which threshold to record for a fractional time spent in treatment, the actual time should be rounded up to the nearest whole hour, eg 14.5 hours rounds up to 15 hours, so would be recorded as ‘high’. Threshold Definition Standard One or more of the interventions defined above is received by, or made available to, the service user for 14 hours or less per week. This can include service user absence, within the programme’s stipulated attendance requirements. Interventions should be exclusively made up of a combination of pharmacological, psychosocial and recovery support interventions, as defined here, but not only recovery support interventions. (14 hours or less per week) One or more intervention types defined above is received by, or made available to, the service user for more than 14 and less than 25 hours per (More than 14 hours week. This can include service user absence, within the programme’s and less than 25 hours) stipulated attendance requirements. This could include non-residential or residential rehabilitation programmes, including services previously recorded as structured day programmes. Interventions should be exclusively made up of a combination of pharmacological, psychosocial and recovery support interventions, as defined here, but not only recovery support interventions. High Very high (25 or more hours per week) One or more intervention types defined above is received by, or made available to, the service user for 25 or more hours per week. This can include service user absence, within the programme’s stipulated attendance requirements. This could include non-residential or residential rehabilitation programmes, including services previously recorded as structured day programmes. Interventions should be exclusively made up of a combination of pharmacological, psychosocial and recovery support interventions, as defined here, but not only recovery support interventions. 45 Adult drug treatment business definition v11.06 APPENDIX J – Outcomes process maps The following process maps outline the steps for recording outcomes information for alcohol clients via the Alcohol Outcomes Record (AOR) and for young people in treatment via the Young Persons Outcomes Record (YPOR). They demonstrate how completing AORs and YPORs aligns with the existing processes of completing Treatment Outcomes Profile (TOPs) for adult drug clients. Examples are provided for clients who are transferring between alcohol and drug treatment episodes and between adult and young people’s services. 46 Adult drug treatment business definition v11.06 Process map for completing Alcohol and YP Outcomes Records (AOR/YPOR) Client enters treatment Each YP attending a young person’s provider should complete the YPOR, regardless of that client’s age Each client attending an adult service with a primary problem substance of alcohol should complete the AOR (or the TOP if deemed useful at a local level) Local treatment Provider: The provider completes an outcomes record The outcomes record needs to be anchored to the earliest modality start date and completed +/- 14 days of this date Optional: An outcomes record can also be completed and submitted at care plan review if deemed useful At exit, a final outcomes record must be completed +/- 14 days either side of the discharge date 47 Adult drug treatment business definition v11.06 Process map for clients transferring between adult services and changing problem substance: from drug to alcohol Primary drug client (problem substance No 1 is not alcohol) Local treatment Provider b: alcohol treatment Provider a: drug treatment Provider completes a start TOP that is anchored to earliest modality start date TOP six month reviews should also be anchored to the earliest modality start date Client needs alcohol treatment and is discharged from provider (transferred using code 83) and starts an intervention at the adult service within 21 days If the provider wishes to gain baseline data for the client’s status at the start of their service they may complete an AOR/TOP AORs can be completed at care plan reviews if deemed useful at a local level At exit, a final outcomes record must be completed +/- 14 days either side of the discharge date 48 Adult drug treatment business definition v11.06 Process map for clients transferring between adult services and changing problem substance: from alcohol to drug Primary alcohol client (problem substance No 1 is alcohol) Local treatment Provider b: drug treatment Provider a: alcohol treatment The provider completes a TOP or AOR The outcomes record needs to be anchored to the earliest modality start date and completed +/- 14 days of this date AORs can be completed at care plan reviews if deemed useful at a local level Client needs further drug treatment and is discharged from provider (transferred using code 83) and starts an intervention at the adult service within 21 days Provider completes a start TOP Six month reviews should then be completed at regular intervals At exit, a TOP must be completed +/-14 days either side of the discharge date 49 Adult drug treatment business definition v11.06 Process map example for clients being transferred from a YP service to an adult service Client enters treatment at a young person’s provider Each YP attending a young person’s provider should complete the YPOR, regardless of that client’s age Local treatment YP provider: The provider completes a YPOR The YPOR needs to be anchored to the earliest modality start date and completed +/- 14 days of this date YPORs also completed at care plan reviews if deemed useful at a local level Client is discharged from YP provider, transferred to adult service (using code 85) and starts an intervention at the adult service within 21 days Adult provider: Depending on the problem substance No 1 of the client, the provider must either: Complete a start TOP Complete the AOR YP provider: Complete an exit YPOR to show outcomes at the end of the YP’s time in YP service This and any further review records should be anchored to the first modality start date at the adult service At exit, a final outcomes record (AOR or TOP) must be completed +/-14 days either side of the discharge date 50 Adult drug treatment business definition v11.06 APPENDIX K – External references Ref No Title Version 1 NDTMS data set – technical definition 11.04 2 NDTMS data set – reference data 11.06 3 An implementation guide to core data set J 1.00 This document uses the convention that any external references are indicated by square brackets, for example [3] 51 Adult drug treatment business definition v11.06 APPENDIX L – Revision history Version Author Purpose/reason Date 4.00 M Roxburgh New items added for 2007/2008 data collection: 04/10/2006 • • • • • • • • • • • nationality accommodation need frequency of use of problem substance No 1 children pregnant drinking days units alcohol dual diagnosis Hep C – intervention status modality exit status sexuality (regional item) Items removed: • accommodation status (replaced by accommodation need) • postcode in-code (technical change to existing postcode field will enable this to be captured by regional NDTMS centres without requiring a separate data item) • parental status (replaced with number of children and pregnancy) 4.10 M Roxburgh Parental status reinstated, in order to ensure that existing DH and NTA commitments to hidden harm data monitoring are not discontinuous. The wider YP treatment monitoring requirements are currently being reviewed. This will probably lead to further YP specific changes being announced as part of NDTMS data set E (April 07) Employment status moved from regional data items to national data items Description of client reference corrected (field may contain attributable information) 26/10/2006 4.20 G Scott 4.30 G Scott Update following review by external parties Clarification of guidance relating to clients that are NFA Clarification of definition of nationality 09/11/2006 4.40 G Scott Clarify all references to “last month” or “four weeks” to 30 days 12/02/2007 52 03/11/2006 Adult drug treatment business definition v11.06 Version Author Purpose/reason Date 5.00 G Scott Update for CDS-E – inclusion of Treatment Outcomes Profile (TOP): 29/05/2007 • Treatment Outcomes Profile (TOP) date • treatment stage • alcohol use • opiate use • crack use • cocaine use • amphetamine use • cannabis use • other drug use • IV drug use • sharing • shop theft • drug selling • other theft • assault/violence • psychological health status • paid work • education • acute housing problem • housing risk • physical health status • quality of life Fields changed: • injected in the last 28 days (was injected in the last 30 days) Fields removed: • • • parental status frequency of use of problem substance No 1 employment status 5.20 G Scott Reclassification of parental status as NDTMS data set 30/08/2007 5.30 M Kozikova Uplifting external references 02/07/2008 6.00 J Knight Update for CDS-F: 28/01/2009 • • • • new discharge coding (see appendix F) new parental status coding (see appendix G) new TOP care coordination field revised definition of children data item 53 Adult drug treatment business definition v11.06 Version Author Purpose/reason Date 6.01 R Bull Discharge date restored 16/02/2009 6.10 R Bull Consolidation of 6.0.0, 6.0.1 changes 16/02/2009 7.01 J Jaswani CDS-G modality code definitions Inpatient treatment 01/03/2010 • • • inpatient treatment assessment only inpatient treatment stabilisation inpatient treatment detoxification (assisted withdrawal) Psychosocial interventions • • • • • behavioural couples therapy family therapy contingency management (drug specific) psychosocial intervention to address common mental disorders other formal psychosocial therapy (eg community reinforcement approach or social behaviour network therapy) 7.02 M Hinchcliffe Appendix A No 29 – ‘pregnant’ Updated to ‘Not expected to change (ie as at start of episode)’ in line with YP and adult alcohol business definition 21/04/2010 7.03 M Hinchcliffe ‘Client reference’ definition updated with clarification “(NB: this must not hold or be composed of attributers which might identify the individual)” 11/05/2010 Change to ‘PCT of residence’ data item description 7.04 M Hinchcliffe Appendix A No 22 and 23 – “May be left blank if client has no second drug” removed for ‘problem substance No 2’ and ‘problem substance No 3’ 03/09/2010 7.05 M Hinchcliffe Sex worker category data item removed This item was previously included within the data set for collection and use at regional level only. Following consultation, this data item will be removed from the data set at the next revision in April 2011. In the interim, the NDTMS systems will be amended to exclude any data submitted in this field and cease any entries from being uploaded onto the database 14/10/2010 8.00 M Hinchcliffe The following fields have been updated to be mandatory and must be completed in all records: 04/01/2011 • • • • 1 client ID episode ID modality ID1 TOP ID1 MUST be completed if any items in this section are 54 Adult drug treatment business definition Version Author v11.06 Purpose/reason not null. If not, record rejected ‘Local authority’ field (previously a local field) now part of the core data set and is mandatory. ‘Local authority’ must be completed in all records Date New field added to core data set for ‘GP practice code’. This field has been added to the data set in order to support potential future reporting requirements from the NDTMS. Should this be required, further information regarding the validation and submission of GP practice codes will be issued New field added to core data set – ‘Hep C tested’. Permissible values: • • • no yes not asked 8.02 M Hinchcliffe Updated external references Section C 5.1 – tier 4b services removed 24/01/2011 8.03 M Hinchcliffe Definition of ‘local authority’ updated as below: 01/03/2011 The local authority in which the client currently resides (as defined by their postcode of their normal residence) If a client states that they are of No Fixed Abode (denoted by having an “accommodation need” of NFA) then for Tier 3 agencies the local authority of the treatment provider should be used as a proxy; and for Tier 4 treatment providers the local authority of the referring partnership should be used as a proxy 10.01 N Ramnarine Updated external links 06/07/2012 Definitions of interventions and sub interventions added Definitions of time in treatment added 10.02 N Ramnarine Updated following review 10/07/2012 10.03 D Mhambi CDS-K benchmark update 31/01/2013 Six data items, Sect No 2: Discharge reason New discharge codes have been added to core data set K specifically for residential rehabilitation and inpatient detox providers. These codes are to be used on or after 1 April 2013. Appendix F – additional ‘transferred’ discharge codes for use by residential rehabilitation and inpatient detoxification providers only Four new ‘transferred’ discharge codes have been added to the data set for use by residential 55 Adult drug treatment business definition Version Author v11.06 Purpose/reason rehabilitation and inpatient detox providers only, in order for NDTMS to more accurately record the discharge status of clients leaving a residential or inpatient facility Residential and inpatient providers should use these codes instead of the current ‘transferred’ codes. Unlike the current ‘transferred’ discharge codes, that record the status of a client with the treatment system at the point of discharge from a provider, the residential and inpatient codes additionally record the outcome of the residential programme and what further structured interventions are required. This allows residential and inpatient providers to record where clients have successfully completed the treatment programme and have been transferred for continued structured treatment at another provider, either at a second stage residential provider or at a community provider This may be the case for clients at residential and inpatient services that have been commissioned to provide treatment as part of a longer treatment journey. The previous data sets recorded this as ‘transferred on’, which did not capture information that the client has successfully completed that part of their treatment journey at the residential or inpatient provider Data item name: transferred – treatment programme completed at the residential/inpatient provider – additional residential treatment required Data item definition: the client has completed the structured treatment programme at the provider by meeting the goals of their care plan. Although they have finished treatment at this provider, they still require continued structured treatment interventions and have been transferred to an alternative residential provider for this. This code should only be used if there is an appropriate referral path and care planned structured treatment pathways are available Data item name: transferred – treatment programme completed at the residential/inpatient provider – additional community treatment required Data item definition: the client has completed the structured treatment programme at the provider by meeting the goals of their care plan. Although they have finished treatment at this provider, they still require continued structured treatment interventions and have been transferred to an alternative community provider for this. This code should only be used if there is an appropriate referral path and care planned structured treatment pathways are available 56 Date Adult drug treatment business definition Version Author v11.06 Purpose/reason Date Data item name: treatment programme not completed at the residential/inpatient provider – additional residential treatment required Data item definition: the client has not completed the structured treatment programme at the provider because they have not met the goals of their care plan. They require continued structured treatment interventions and have been referred to an alternative residential provider for this. This code should only be used if there is an appropriate referral path and care planned structured treatment pathways are available Data item name: treatment programme not completed at the residential/inpatient provider – additional community treatment required Data item definition: the client has not completed the structured treatment programme at the provider because they have not met the goals of their care plan. They require continued structured treatment interventions and have been referred to an alternative community provider for this. This code should only be used if there is an appropriate referral path and care planned structured treatment pathways are available 11.01 D Mhambi Bringing the document in line with CDS-L requirements, through the addition of the: • • • • 11.03 D Mhambi 13/05/2013 consumption field: Typical number of units consumed in a drinking day in the last 28 days are any of your children/the children living with you Appendix G: Second parental status question: Are any of your children/the children living with you Appendix J: Outcomes process maps Uplift 11.03 fixes: 13/08/2013 Updated appendix G relating to the episode level question: “Are any of your children/the children living with you?” Data item description: this question applies to children of the client in treatment (regardless of whether this child lives with the client or not) and to children living with the client (regardless whether this is the child of the client or not) Data item name: a child looked after or in foster care Description: the definition of a “looked after child” is “Children looked after includes all children being looked after by a local authority, including those subject to care orders under Section 31 of the 57 Adult drug treatment business definition Version Author v11.06 Purpose/reason Children Act 1989 and those looked after on a voluntary basis through an agreement with their parents under Section 20 of the Children Act 1989” Date Data item name: subject to a child protection plan Description: these are formal plans developed by the local authority confirming intentions for a child’s protection. The initial child protection conference is responsible for agreeing a child protection plan for any child with or without a care status. Permissible responses: • both • neither Declined to answer 11.04 W Nielsen Extensive corrections, re-formatting and updating of NDTMS documentation, bringing in line with PHE style 58 22/12/2014
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