GUMCADv2 Genitourinary Medicine Clinic Activity Dataset (version 2) Technical guidance and extract specification for data extract GUMCADv2 Technical guidance and extract specification for data extract About Public Health England Public Health England exists to protect and improve the nation's health and wellbeing, and reduce health inequalities. It does this through world-class science, knowledge and intelligence, advocacy, partnerships and the delivery of specialist public health services. PHE is an operationally autonomous executive agency of the Department of Health. Public Health England Wellington House 133-155 Waterloo Road London SE1 8UG Tel: 020 7654 8000 www.gov.uk/phe Twitter: @PHE_uk Facebook: www.facebook.com/PublicHealthEngland HIV/STI Department Public Health England 61 Colindale Avenue London NW9 5EQ Tel: 020 8200 4400 Current Version: (v23) re-issued 01/12/2015 following enhancements to guidance and SHHAPT coding (all associated changes are highlighted in green). Previous Version: (v22) re-issued 02/04/2015 following the publication of the Information Standards Notice on 12 November 2014 for amendments to SHHAPT coding, gender coding, patient geography and data item (column) names (all associated changes are highlighted in blue). © Crown copyright 2015 You may re-use this information (excluding logos) free of charge in any format or medium, under the terms of the Open Government Licence v3.0. To view this licence, visit OGL or email [email protected]. Where we have identified any third party copyright information you will need to obtain permission from the copyright holders concerned. For queries relating to this document please contact: [email protected] Published: 01/12/2015 PHE publications gateway number: 2015003 2 GUMCADv2 Technical guidance and extract specification for data extract Contents About Public Health England 2 Contents 3 1. Introduction 5 2. Data extract specification Description Time period Frequency Format Transmission Coding and formatting Definition of a sexual health and HIV episode (NHS Data Dictionary) Rules for specific GUMCADv2 items 6 6 6 6 6 7 7 7 8 3. Other sexual and reproductive health data reporting GUMCADv2 Shared Data Items GUMCADv2 and CTAD GUMCADv2 and HARS GUMCADv2 and SRHAD 11 12 12 13 14 Appendix 1: Data items collected in GUMCADv2 16 Appendix 2: Example of CSV format for GUMCADv2 18 Appendix 3: Coding specification for GUMCADv2 extract 19 Appendix 4: SHHAPT codes and notes A. SHHAPT codes B. SHHAPT code suffixes C. Permissible SHHAPT/suffix combinations D. HIV/STI test code combinations 27 27 43 45 46 Appendix 5: READ codes and definitions READ Code Version 2 READ Code Clinical Terms Version 3 (CTV3) 48 48 48 3 GUMCADv2 Technical guidance and extract specification for data extract Document control Current version Current status Authors Reviewers Issued to To provide guidance and specifications to providers of software to Level 3 (GUM) and Level 2 (non-GUM) sexual health services for the recording and extraction of GUMCADv2 data. Published Author name Section Date amended/ added amended Previous changes not documented Holly Mitchell All 20/02/13 Stephen Duffell All 25/02/13 Mandy Yung All 25/02/13 08/04/13 Stephen Duffell All 01/10/14 Stephen Duffell SHHAPT coding 01/09/15 Reviewer name Section reviewed Date reviewed Hamish All 27/03/13 Mohammed Gwenda Hughes All 10/06/13 Danielle Mercey All 12/03/15 David Philips All 12/03/15 Hamish All 12/03/15 Mohammed Danielle Mercey SHHAPT coding 01/09/15 David Philips SHHAPT coding 01/09/15 Hamish SHHAPT coding 01/09/15 Mohammed Person(s) issued to Date issued Software Providers (public) 01/10/2015 File reference 4 GUMCADv2 Technical Guidance and Extract Specification for Data Extract 1. Introduction The Department of Health (DH) requires information on diagnoses made and services provided by Level 3 specialist sexual health and HIV services/genitourinary medicine (GUM) clinics and Level 2 commissioned sexual health (non-GUM) services. This data is submitted to Public Health England, which has responsibility for collating the data and providing epidemiological and public health updates on diagnoses of sexually transmitted infections (STIs) and the provision of STI related services to the DH, local authorities and all those involved in health protection. These data are referred to as the Genitourinary Medicine Clinic Activity Data Set (GUMCADv2) (ISB 0139) and are provided as anonymised, patient-level electronic data. Diagnoses made and services provided by the majority of Level 2 and 3 sexual health services are currently coded using Sexual Health and HIV Activity Property Type (SHHAPT) codes1. These codes are used by services for patient management and audit, and for coding the data which are reported to PHE. They are therefore the means through which specific activities within clinics are described and monitored. GPs and some Level 2 sexual health services using a GP clinical information system are able to report using national READ codes – Version 2 and Clinical Terms Version 3 (CTV3). Comprehensive behavioural guidance on completing and transmitting the GUMCADv2 return for GUM and non-GUM staff is available at https://www.gov.uk/genitourinarymedicine-clinic-activity-dataset-gumcadv2. 1 Previously known as KC60 codes 5 GUMCADv2 Technical Guidance and Extract Specification for Data Extract 2. Data extract specification Description Every Level 2 (non-GUM) and Level 3 (GUM) sexual health service is required, by law, to generate a quarterly GUMCADv2 extract of patient attendances* and associated STI tests and diagnoses relating to a Sexual Health and HIV episode of care. The list of GUMCADv2 data items and related coding specifications are shown in Appendix 1. * Integrated sexual health services should include all attendances in their GUMCADv2 extract ie attendances solely for SRH services should be included in the extract (please see new ‘SRH’ SHHAPT code – Appendix 4). Time period The extract will cover one calendar quarter: Q1: 1 January to 31 March Q2: 1 April to 30 June Q3: 1 July to 30 September Q4: 1 October to 31 December Frequency Reports will be run quarterly, six weeks after the end of the quarter. Format Data extracts should be formatted into a single comma delimited CSV file2. The format of the CSV file and an example of the field content is shown in Appendix 2. Please note the following: 2 the name and content of the ‘PCT’ (PCT of residence) data item has now been changed to the ‘LA’ (local authority of residence) data item – see section 3 and Appendices 1, 2 and 3 for further details the name (not the content) of the ‘KC60/READ’ data item has now been changed to the ‘Episode_Activity’ data item – see Appendices 1, 2 and 3 for further details PHE is working towards changing GUMCADv2 files to XML format to be compliant with e-GIF standards 6 GUMCADv2 Technical Guidance and Extract Specification for Data Extract Transmission Electronic files will be transmitted to PHE. Data must be submitted to the GUMCAD team at PHE through the secure HIV and STI Web Portal (HSWP). Use of the portal requires a username and password which can be obtained from the GUMCAD team at PHE Colindale. The portal supports the Transport Layer Security (TLS) method of communication. Requests for user accounts should be sent to: [email protected]. The HSWP can be found at: www.hpawebservices.org.uk/HIV_STI_WebPortal/Login.aspx. Coding and formatting The coding and formatting of the data items required are presented in Appendices 1, 2 and 3. The full list of SHHAPT codes (and suffixes) is provided in Appendix 4. A list of permissible READ codes is available in Appendix 5. All fields specified are defined using the NHS data dictionary. Please note that the SHHAPT code list is held and maintained by the GUMCAD team at PHE (not the NHS data dictionary). Please note that new SHHAPT codes were released on 1 January – see Appendix 4 for further details. Definition of a sexual health and HIV episode (NHS Data Dictionary) http://www.datadictionary.nhs.uk/data_dictionary/HIVSTIEpisode A Sexual Health and HIV Episode is an ACTIVITY GROUP. A Sexual Health and HIV Episode is an episode of care, under one Health Care Provider, comprising of one or more attendances, where a CONSULTANT has overall responsibility for the PATIENT who attends for screening, diagnosis and management of sexually transmissible infections and related conditions. The patient may be seen by other CARE PROFESSIONALS, during the same care episode, who are working on behalf of the consultant. The episode starts on the date the patient first sees or is in contact with a care professional in respect of a REFERRAL REQUEST from either a health care provider or a self-referral. The episode ends when either the patient is formally discharged or has not had face to face contact with the SERVICE for at least six months. Each Sexual Health and HIV Episode may be for one or more SEXUAL HEALTH AND HIV ACTIVITY PROPERTY TYPES (SHHAPT) code and each SHHAPT code is recorded at a first attendance. The only exception to this is where the patient 7 GUMCADv2 Technical Guidance and Extract Specification for Data Extract attends for HIV-related care in which case the relevant SHHAPT code should be recorded at every attendance. Rules for specific GUMCADv2 items Attendance type The GUMCADv2 return requires information on the attendance type to distinguish between new and follow-up patient attendances and whether they are face-to-face or telephone/telemedicine consultations. All attendance types are reported in the First_Attendance field. The national categories, as defined by the NHS Data Dictionary, are as follows: First attendance face-to-face: All attendances relating to a new Sexual Health and HIV episode of care where the patient is registered at the service for the first time (new) or where the previous episode was discharged/closed (re-book). All attendances by an existing patient with a new episode 26 weeks (or more) after the last attendance should be routinely classified as a re-book attendance (which can be manually altered by service staff as required). All first attendances face-to-face should be reported with an STI code (SHHAPT/READ) in the KC60 field Follow-up attendance face-to-face: All attendances relating to an existing Sexual Health and HIV episode of care. Attendances within 26 weeks of the last attendance should be routinely classified as a follow-up attendance (which can be manually altered by service staff as required). The majority of follow-up attendances face-to-face would be reported without an STI code (SHHAPT/READ) as the episode would have been coded at the first attendance face-to-face ie the KC60 field would remain blank. However, if a new diagnosis is made at a follow-up attendance the attendance type should be updated to reflect the new episode of care ie the attendance type becomes a first attendance face-to-face (re-book) and should be reported with an STI (SHHAPT/READ) code First telephone or telemedicine consultation: All telephone or telemedicine consultations relating to a new Sexual Health and HIV episode of care where the patient is registered at the service for the first time (new) or where the previous episode was discharged (re-book) All attendances by an existing patient with a new episode 26 weeks (or more) after the last attendance should be routinely classified as a re-book telephone or telemedicine consultation (which can be manually altered by service staff as required). All first telephone or telemedicine consultations should be reported without an STI code (SHHAPT/READ) ie testing/diagnosis cannot be made over the phone. 8 GUMCADv2 Technical Guidance and Extract Specification for Data Extract Episode activity – STI codes (SHHAPT/READ) STI codes (SHHAPT/READ) for diagnoses and services should only be used once per patient episode. However, the following SHHAPT codes are attendance based and can be used as often as required. H – Patient is known HIV positive H2 - Attendance for HIV related care SRH – Attendance for SRH related care only SW - Patient is a sex worker Z - Patient is a prisoner Please note that new SHHAPT codes were released 01/01/2015. A full list of SHHAPT codes is given in Appendix 4. A reduced list of READ codes has been developed by the GUMCAD team at PHE (Appendix 5). This will help to ensure accurate and consistent recording of data across all applicable sites. At present, any READ code relating to sexual health may be submitted by sites using READ codes (ie Level 2 (non-GUM) services). However, the GUMCAD team at PHE does not manage the READ code list and it is therefore subject to change (in relation to the release of new codes. Allocation of local authority of residence Following the abolition of PCTs (from 01/04/2013), the PCT (of residence) data item has now been replaced by LA (local authority district of residence). There is an LA (or equivalent – as defined by ONS) for each postcode in the UK*. LA (of residence) should be generated from the patient postcode (using the same patient postcode used to generate LSOA of residence). Records where the patient’s postcode has not been provided to generate LA (of residence) should be allocated to ‘not known’ and coded "X99999999". Postcodes outside the UK (overseas visitors) should be allocated to ‘not applicable’ and coded as “X99999998” – see Appendix 3 for further details. PHE can provide postcode/LA data (updated once per quarter) to facilitate mapping LSOA (of residence) from patient postcode. *UK includes, England, Wales, Scotland, Northern Ireland, Channel Islands and Isle of Man. 9 GUMCADv2 Technical Guidance and Extract Specification for Data Extract Allocation of LSOA of residence There is a Lower Layer Super Output Area (LSOA) (or equivalent – as defined by ONS) for each postcode in the UK*. LSOA (of residence) should be generated from the patient postcode (using the same patient postcode used to generate LA of residence). Records where the patient’s postcode has not been provided to generate LSOA (of residence) should be allocated to ‘not known’ and coded “X99999999”. Postcodes outside the UK (overseas visitors) should be allocated to ‘not applicable’ and coded “X99999998” – see Appendix 3 for further details. PHE can provide postcode/LSOA data (updated once per quarter) to facilitate mapping LSOA (of residence) from patient postcode. *UK includes, England, Wales, Scotland, Northern Ireland, Channel Islands and Isle of Man. Allocation of changing patient residence A single patient should only ever have one LSOA and one LA throughout a quarterly data extract (the most recent information should be reported). Allocation of changing patient details A single patient should only ever have one gender, ethnic group and country of birth throughout a quarterly data extract (the most recent information should be reported). A single patient may have more than one age or sexual orientation throughout a quarterly data extract. However, a single patient must not have more than one sexual orientation within the same episode of care eg patients cannot be recorded as ‘heterosexual’ for one diagnosis and ‘homosexual’ for another diagnosis within the same episode of care. Recoding sexual orientation Clinical staff taking sexual histories are advised to enter accurate information during the clinical consultation or as soon as possible thereafter. Patient software systems (PSSs) should default to ‘Not known’ (they should not default to ‘heterosexual’). To improve the quality of sexual orientation information recorded, PSSs should prevent completion of data entry until sexual orientation has been recorded. A single patient must not have more than one sexual orientation within the same episode of care eg patients cannot be recorded as ‘heterosexual’ for one diagnosis and ‘not known’ for another diagnosis within the same episode of care. 10 GUMCADv2 Technical Guidance and Extract Specification for Data Extract 3. Other sexual and reproductive health data reporting Sexual health services that are required to report GUMCADv2 (Level 3 GUM and Level 2 nonGUM) may also be required to report other mandatory sexual and reproductive health datasets to PHE or HSCIC – outlined in the tables below. Mandatory sexual and reproductive health datasets Dataset Information Collected Services Affected Responsible Organisation CTAD Chlamydia Testing Activity Dataset Chlamydia tests & diagnoses All laboratories commissioned to provide chlamydia testing Public Health England (PHE) GUMCADv2 Genitourinary Medicine Clinic Activity Dataset STI diagnoses & services provided Level 2 (non-GUM) & Level 3 (GUM) sexual health services Public Health England (PHE) HARS HIV & AIDS Reporting System HIV outpatient service provision HIV outpatient services Public Health England (PHE) Contraceptive service provision Settings offering contraceptive services (excluding general practice) Health & Social Care Information Centre (HSCIC)* Sexual & Reproductive SRHAD Health Activity Dataset *SRHAD is sponsored by PHE Reporting requirements of mandatory sexual and reproductive health datasets Sexual Health Service Type General Practice Service Level 1 (non-GUM) 2 (non-GUM) GUM 3 (GUM) Integrated GUM & SRH 3 (GUM) Other Sexual Health Services (e.g. Outreach, CSO, TOP) 1 (non-GUM) SRH Young People's Services 2 (non-GUM) 1 (non-GUM) 2 (non-GUM) 1 (non-GUM) 2 (non-GUM) CTAD GUMCADv2 HARS SRHAD Key Submission is required Submission may be required (determined by the nature of the services provided) Data are collated and submitted by Laboratories (Sexual Health Services are not required to submit CTAD data) Submission is not required 11 GUMCADv2 Technical Guidance and Extract Specification for Data Extract 3.1. GUMCADv2 Shared Data Items Some data items in GUMCADv2 overlap with data items in CTAD, HARS and SRHAD e.g. ‘Gender’. The table below provides a summary of the GUMCADv2 data items that are shared with CTAD, HARS and SRHAD – all reports use the same NHS Data Dictionary terminology and coding, however, the data item name may differ across datasets e.g. ‘Clinic ID’ in GUMCADv2 is named ‘Venue Code’ in CTAD, ‘Site Code’ in HARS and ‘Clinic ID’ in SRHAD. GUMCADv2 data items shared with CTAD, HARS & SRHAD GUMCADv2 Data Items CTAD¹ HARS² SRHAD³ Clinic ID Patient ID Episode Activity (SHHAPT or READ code) Gender Sexual Orientation Age Ethnicity Country of Birth LA of Residence LSOA of Residence Attendance Type Attendance Date ¹Reported to PHE by all laboratories commissioned to provide chlamydia testing ²Reported to PHE by all HIV outpatient services ³Reported to the HSCIC by all sexual and reproductive health services (excluding GPs) GUMCADv2 and CTAD The Chlamydia Testing Activity Dataset (CTAD) is a quarterly disaggregate dataset of all chlamydia tests carried out using nucleic acid amplification (NAAT) testing, from all age groups and from all testing venues, which are undertaken by publicly commissioned laboratories in England. CTAD is an approved mandatory dataset that is reported directly to PHE by the laboratories. All GUMCADv2 reporters (Level 3 GUM and Level 2 non-GUM) contribute to the CTAD report indirectly via the information they send to laboratories with their chlamydia samples (sexual health services are not required to submit CTAD data directly to PHE). National reporting of chlamydia data comprises of a combination of data sourced from CTAD and GUMCADv2. CTAD data reported via Level 3 GUM services does not include patient residence data (via postcode) for reasons of patient confidentiality, therefore the patient 12 GUMCADv2 Technical Guidance and Extract Specification for Data Extract residence data from CTAD is supplemented with (equivalent) patient residence data from GUMCADv2 (via LSOA). It is therefore essential that Level 3 GUM services report data consistently as ‘Level 3 GUM’ to GUMCADv2 and to CTAD** (via the laboratories) to enable accurate reporting – please see the table below. Samples sent to the lab should be correctly identified using the GUMCADv2 ‘ClinicID’ code and the corresponding Level 3 GUM or Level 2 non-GUM service type – which is reported via CTAD’s ‘Testing Service Type’ code shown below. GUMCADv2 Sexual Health Services and CTAD Testing Service Type GUMCADv2 Sexual Health Services CTAD Testing Service Type (TST) Code GUM (Level 3) GUM (01) Integrated GUM & SRH (Level 3) GUM (01) SRH Services (Level 2) Community Sexual Health Services (02) Young People’s Services (Level 2) Community Sexual Health Services (02) Enhanced General Practices (Level 2) General Practice (03) Internet services (06) Other services (XX) Other (Level 2) Further information on the CTAD dataset can be found here: http://www.chlamydiascreening.nhs.uk/ps/info-management.asp. [email protected] GUMCADv2 and HARS The HIV and AIDS Reporting System (HARS) is a quarterly disaggregate dataset that collects information on patients diagnosed with HIV infection attending HIV outpatient care. HARS is an approved mandated dataset that is reported directly to PHE by HIV outpatient services. GUMCADv2 Level 3 (GUM) services that provide specialist HIV treatment and care will also be required to report HARS. Some episode activity collected in GUMCADv2 overlaps with care activity collected in HARS e.g. new HIV diagnosis - please see table below. 13 GUMCADv2 Technical Guidance and Extract Specification for Data Extract GUMCADv2 and HARS shared episode activity SHHAPT HARS Data SHHAPT Description Code Item H1 New HIV Diagnosis H1A New HIV Diagnosis - Acute Dx_UK_date New HIV Diagnosis - AIDS H1B defined H2 HIV related care HIV_care_date SW Sex worker Sex_worker Z Prisoner Prisoner HARS Description HIV diagnosis date in the UK Consultation date for HIV care Sex worker Prisoner Please note the episode activity coding required in GUMCADv2 may not be the same as the equivalent care activity coding in HARS. Further information on the HARS dataset can be found here: https://www.gov.uk/guidance/hiv-surveillance-systems#hiv-and-aids-reporting-system-hars [email protected] GUMCADv2 and SRHAD The Sexual and Reproductive Health Activity Dataset (SRHAD) is an annual disaggregate dataset that collects information on contraceptive service provision and other reproductive health activities from all sexual and reproductive health (SRH) services. SRHAD is an approved mandatory dataset that is reported directly to the Health and Social Care Information Centre (HSCIC). Some GUMCADv2 reporters (Level 3 GUM and Level 2 non-GUM) will also be required to report SRHAD (depending on the level of SRH services provided). Some episode activity collected in GUMCADv2 overlaps with care activity collected in SRHAD e.g. sexual assault – please see table below. 14 GUMCADv2 Technical Guidance and Extract Specification for Data Extract GUMCADv2 and SRHAD shared episode activity SHHAPT Code 40 41 P3* P4 SRH* All SHHAPT codes SHHAPT Description Sexual assault Acute Sexual assault Non-acute Contraception Cervical cytology performed SRH patient only SRHAD Data Items SRHAD Description SRH Care Activity: 40 Sexual assault - Acute Sexual assault – Nonacute Contraception Method Status, SRHAD contraception Contraception Main Method, related data items Contraception Other Method, Contraception Method Post Coital. SRH Care Activity:11 Cervical Screening SRH Care Activity: 41 All Contraception related items and SRH Care Activity Attendances related SRH Care Activity: 34 to STI care only i.e. no SRH related care provided Attendances related to SRH care only i.e. no STI related care provided STI related care * These SHHAPT codes relate to multiple care activities in SRHAD. Please note the episode activity coding required in GUMCADv2 may not be the same as the equivalent care activity coding in SRHAD. Further information on the SRHAD dataset can be found here: www.hscic.gov.uk/datacollections/srhad [email protected] 15 GUMCADv2 Technical Guidance and Extract Specification for Data Extract Appendix 1: Data items collected in GUMCADv2 Position¹ Field Name 1 2 3 Description ClinicID Clinic (service) ID code PatientID Local patient identifier number Episode_Acti SHHAPT code vity NHS Data Dictionary Data element Site code (of treatment) Local patient identifier Sexual health and HIV activity property type Variable Length (Maximum)² AN(9) Example³ AN(20) PAT123 AN(6) C10A Diagnostic or procedure coding (sexual health and human immunodeficiency virus relevant read code) Person stated gender code Age at attendance date Sexual orientation (current) Ethnic category AN(7) 9Oq0.00 N(1) 1 N(3) 16 N(1) 1 AN(2) A Country code (birth) Ons local government geography code (local authority district) Lower layer super output area (residence) A(3) GBR AN(3) or AN(9) 95A or E060000 01 AN(8) or AN(9) 95AA01S 1 or E010000 01 RCC25 OR (previously ‘KC60’ or ‘READ’) READ code 4 Gender Gender 5 Age 6 Sex_Ori Age at attendance date in years Sexual orientation 7 Ethnicity 8 9 10 Patient’s ethnic category Country_Birth Patient’s country of birth LA Local Authority District (LA) code of (previously patient residence ‘PCT’) LSOA Lower Layer Super Output Area of residence code 16 GUMCADv2 Technical Guidance and Extract Specification for Data Extract 11 12 First_Attenda Attendance type nce AttendanceD Date of attendance ate First attendance N(1) 1 Attendance date N(10) CCYY-MMDD 2007-1031 ¹Refers to the horizontal position of the field within CSV format ²AN = Alpha-numeric, N = Numeric, A = Character. Number in brackets denotes the string length. Code entries which are shorter than the string length should not include leading/trailing zeroes or spaces ³Example of field content, also used to illustrate extract format expected 17 GUMCADv2 Technical Guidance and Extract Specification for Data Extract Appendix 2: Example of CSV format for GUMCADv2 An example of the field content for one row of data is shown below and is used to illustrate how the data should appear in the CSV file. Files that do not comply with the required format will be rejected when submitted to PHE. SHHAPT or READ: CSV Example (one row of data) ClinicID,PatientID,Episode_Activity,Gender,Age,Sex_Ori,Ethnicity,Country_Birth,LA,LSOA,First_Attendance, AttendanceDate RCC25,PAT123,C10AM,1,16,1,A,GBR,E06000001,E01000001,1,2014-10-31 18 GUMCADv2 Technical guidance and extract specification for data extract Appendix 3: Coding specification for GUMCADv2 extract Data item NHS Data Dictionary name Definition/comments ClinicID SITE CODE (OF TREATMENT) Format: AN(9) An identifier for a CLINIC OR FACILITY. An Organisation Data Service (ODS) Code should be entered. This code can be ascertained direct from ODS: http://www.connectingforhealth.nhs.uk/systemsandservices/data/ods PatientID LOCAL PATIENT IDENTIFIER Format: AN(20) Note: This is a number used to identify a PATIENT uniquely within a Health Care Provider. It may be different from the Patient’s case note number and may be assigned automatically by the computer system. Episode_Activity SEXUAL HEALTH AND HIV ACTIVITY PROPERTY TYPE Format/length: AN(6) National Codes: The national SHHAPT codes and their definitions are given in Appendix 4. Notes: SEXUAL HEALTH AND HIV ACTIVITY PROPERTY TYPE renamed from GENITOURINARY EPISODE TYPE (previously ‘KC60’ or ‘READ’) DIAGNOSTIC OR PROCEDURE CODING (SEXUAL HEALTH AND HUMAN IMMUNODEFICIENCY VIRUS RELEVANT READ CODE) Format/length: (AN(7) National Codes: A list of national sexual health related READ codes (including a reduced list of recommended codes) and their definitions are given in Appendix 5. 19 GUMCADv2 Technical guidance and extract specification for data extract Data item NHS Data Dictionary name Definition/comments Gender PERSON STATED GENDER CODE Format/length: N(1) National Codes: 1 Male 2 Female 9 Not Specified/indeterminate, ie unable to be classified as either male or female or gender is not known. Please note there is no longer a separate code for ‘Not Known’ (previously code ‘0’) Age AGE AT ATTENDANCE DATE Format/length: N(3) This is usually derived as the number of completed years between the PERSON BIRTH DATE of the PATIENT and the ATTENDANCE DATE . However, age can be manually entered in the absence of patient date of birth. Not known = 999, ie date of birth not known and age cannot be estimated Sex_Ori SEXUAL ORIENTATION (CURRENT) Format/length: N(1) See SEXUAL ORIENTATION CODE for the National Codes. The current SEXUAL ORIENTATION of a PERSON National Codes: 1 Heterosexual 2 Gay/Lesbian 3 Bi-sexual 9 Not Known 20 GUMCADv2 Technical guidance and extract specification for data extract 21 GUMCADv2 Technical guidance and extract specification for data extract Ethnicity ETHNIC CATEGORY Format/length: AN(2) The ethnicity of a PERSON, as specified by the PERSON. National Codes: White A British B Irish C Any other White background Mixed D White and Black Caribbean E White and Black African F White and Asian G Any other mixed background Asian or Asian British H Indian J Pakistani K Bangladeshi L Any other Asian background Black or Black British M Caribbean N African P Any other Black background Other Ethnic Groups R Chinese S Any other ethnic group Z Not stated Note: ETHNIC CATEGORY is the classification used for the 2001 census, replacing ETHNIC GROUP in the flows through the NHS-wide Clearing Service. 22 GUMCADv2 Technical guidance and extract specification for data extract Country_Birth COUNTRY CODE (BIRTH) LA ONS LOCAL GOVERNMENT GEOGRAPHY CODE (LOCAL AUTHORITY DISTRICT) (previously PCT) Format/length: A(3) This is the country where the PATIENT was born. COUNTRY CODE (BIRTH) is the same attribute COUNTRY CODE Refer to the ISO 3166-1 standard for actual list of alphabetic codes and countries. The alphabetic code to be used is the 3-char alphabetic code available on the International Organisation for Standardisation website http://www.iso.org/iso/home.htm Note: The 2-char alphabetic code must not be used. Refer to the ISO 3166-1 standard for actual list of alphabetic codes and countries. Where country of birth is unknown please record this as ZZZ Notes: UK Government Data Standards Catalogue (GDSC), Version 2.0, Agreed 01.01.02. GDSC: http://www.govtalk.gov.uk/gdsc/html/default.htm Max 3 Characters Reference: http://www.iso.org/iso/home.htm Format/length: AN(3) or AN(9) - Please note LA codes for Northern Ireland (DCA) are 3 digits – all other codes are 9 digits. ONS LOCAL GOVERNMENT GEOGRAPHY CODE (LOCAL AUTHORITY DISTRICT is the LOCAL AUTHORITY DISTRICT code derived from the PATIENT's POSTCODE OF USUAL ADDRESS, where they reside within the boundary of a: local authority district (LAD) – in England or Wales unitary authority (UA) – in England metropolitan district (MD) – in England London borough (LB) – in England council area (CA) – in Scotland district council area (DCA) – in Northern Ireland There is an LA for each postcode in the UK* (or equivalent – as defined by ONS). Records where the patient’s postcode has not been provided to generate LA of residence should be allocated to 23 GUMCADv2 Technical guidance and extract specification for data extract ‘not known’ and coded "X99999999". Postcodes outside the UK (overseas visitors) should be allocated to ‘not applicable’ and coded as “X99999998”. Please contact PHE for a current postcode mapping file: [email protected] 24 GUMCADv2 Technical guidance and extract specification for data extract LSOA LOWER LAYER SUPER OUTPUT AREA (RESIDENCE)) Format/length: AN(8) or AN(9) - Please note LSOA codes for Northern Ireland (SOA) are 8 digits – all other codes are 9 digits. Notes: the Lower Layer Super Output Area for where the PATIENT is resident. This is the GEOGRAPHIC AREA CODE where the GEOGRAPHIC AREA TYPE is classification Lower Layer Super Output Area. There is a Lower Layer Super Output Area (or equivalent – as defined by ONS**) for each postcode in the UK*. Records where the patient’s postcode has not been provided to generate LSOA of residence should be allocated to ‘not known’ and coded “X99999999”. Postcodes outside the United Kingdom should be allocated to ‘not applicable’ and coded “X99999998”. Lower Layer Super Output Areas are a geographic hierarchy designed to improve the reporting of small area statistics. Lower Layer Super Output Areas are built from groups of contiguous Output Areas and have been automatically generated to be as consistent in population size as possible, and typically contain from four to six E01000001 – E01033768 = England W01000001 – W01001958 = Wales S01000001 – S01006505 = Scotland (**data zone) 95AA01S1 – 95ZZ16S2 = Northern Ireland (**SOA) L99999999 (pseudo) = Channel Islands M99999999 (pseudo) = Isle of Man X99999998 = Outside the UK X99999999 = Not known Please contact PHE for a current postcode mapping file: [email protected] 25 GUMCADv2 Technical guidance and extract specification for data extract First_Attendance FIRST ATTENDANCE. Format/length: N(1) The National Codes for ‘FIRST ATTENDANCE’ (denoting attendance type) in the NHS Data Dictionary are: 1 First attendance face to face 2 Follow-up attendance face to face 3 First telephone or telemedicine consultation 4 Follow up telephone or telemedicine consultation Notes: This indicates whether a patient is making a first or follow-up attendance. For Genitourinary Clinic Attendances a FIRST ATTENDANCE is the first in a series, or the only attendance by a PERSON at a Consultant Clinic. AttendanceDate ATTENDANCE DATE Re-book should still be collected locally. It is used to identify frequently repeat attendees recurring infections which are of significance in managing individual patient care and for protecting public health. Format/length: N(10) – ccyy-mm-dd ATTENDANCE DATE is the same as attribute ACTIVITY DATE of ACTIVITY DATE TIME where the ACTIVITY DATE TIME TYPE is National Code 33 'Attendance Date' UK Government Data Standards Catalogue (GDSC), Version 1.0, Agreed 01.01.02. GDSC: http://www.govtalk.gov.uk/gdsc/html/default.htm This is the e-GIF standard that should be used for all new and developing systems and for XML messages *UK includes, England, Wales, Scotland, Northern Ireland, Channel Islands and Isle of Man. 26 GUMCADv2 Technical Guidance and Extract Specification for Data Extract Appendix 4: SHHAPT codes and notes A. SHHAPT codes SHHAPT Description code Diagnosis Codes 40 Sexual Assault (Acute Presentation) Definition and guidance The time between sexual assault and medical examination is within 7 days. this code is shared with the SRHAD report. Please speak to your software provider to determine if coding is required for GUMCAD and SRHAD ie this may need to be coded twice in order to appear in both reports 41 Sexual Assault (Non-acute Presentation) http://www.hscic.gov.uk/datacollections/srhad. The time between sexual assault and medical examination is more than 7 days. this code is shared with the SRHAD report. Please speak to your software provider to determine if coding is required for GUMCAD and SRHAD ie this may need to be coded twice in order to appear in both reports A1 Primary syphilis http://www.hscic.gov.uk/datacollections/srhad. This refers to primary infectious syphilis. Laboratory confirmation is required. the X suffix can be added where the current episode is known to have been previously diagnosed at another sexual health service (A1X)* A2 *see tables D and E for further details on using suffixes. Secondary syphilis This refers to secondary infectious syphilis. Laboratory confirmation is required. the X suffix can be added where the current episode is known to have been previously diagnosed at another sexual health service (A2X)* *see tables D and E for further details on using suffixes. GUMCADv2 Technical guidance and extract specification for data extract A3 Early latent syphilis This refers to patients who acquired syphilis in the preceding 2 years who have no signs of primary or secondary syphilis. Proof of negative serology within the preceding 2 years is required. the X suffix can be added where the current episode is known to have been previously diagnosed at another sexual health service (A3X)* A4 Cardiovascular syphilis *see tables D and E for further details on using suffixes. This refers to cardiovascular syphilis the X suffix can be added where the current episode is known to have been previously diagnosed at another sexual health service (A4X)* A5 Neurosyphilis *see tables D and E for further details on using suffixes. This refers to syphilis of the nervous system. the X suffix can be added where the current episode is known to have been previously diagnosed at another sexual health service (A5X)* A6 All other late and latent syphilis *see tables D and E for further details on using suffixes. This refers to latent syphilis after the first two years of infection and all other latent syphilis. the X suffix can be added where the current episode is known to have been previously diagnosed at another sexual health service (A6X)* A7A Congenital syphilis *see tables D and E for further details on using suffixes. Serological evidence of syphilis in an infant or child and clinical signs consistent with congenital syphilis, for example: early (<2 years): snuffles, skin and mucous membrane lesions, lymphadenopathy, hepatosplenomegaly late (>2 years): gummatous ulcers, interstitial keratitis, optic atrophy, sensorineural deafness, Hutchinson’s incisors the X suffix can be added where the current episode is known to have been previously diagnosed at another sexual health service (A7AX)* *see tables D and E for further details on using suffixes. 28 GUMCADv2 Technical guidance and extract specification for data extract B Gonorrhoea This includes all cases of complicated and uncomplicated genital gonorrhoea (pre- and post-pubertal). NAAT-positive or culture confirmed. Genital gonorrhoea would include urethral and cervical urethral infections. The O and R suffixes can be added to report pharyngeal (BO) and rectal infections (BR).* The X suffix can be added where the current episode is known to have been diagnosed at another sexual health service. (BX)* Patients thought to be newly infected after a previous episode should be regarded as a new episode and investigated, treated and diagnosed/coded accordingly. Treatment failures should not be given a new diagnosis. Treatment failures include those in whom first line antibiotics have failed (for example, symptoms not resolved or antibiotics not taken correctly) and those who have had sexual intercourse with an untreated partner (not a new partner) within 6 weeks. C1 C2 C3 C4 *see tables D & E for further details on using suffixes.. Chancroid Laboratory confirmation is required for this condition. Lymphogranuloma Laboratory confirmation is required for this condition. venereum (LGV) the O and R suffixes can be added to report pharyngeal (C2O) and rectal infections (C2R)* Donovanosis Chlamydia *see tables D and E for further details on using suffixes. Laboratory confirmation is required for this condition. This includes all cases of complicated and uncomplicated genital chlamydia trachomatis infections (diagnosed by culture or antigen detection). genital chlamydia would include urethral and cervical urethral infections the O and R suffixes can be added to report pharyngeal (C4O) and rectal infections (C4R)* the X suffix can be added where the current episode is known to have been diagnosed at another sexual health service. (C4X)* patients thought to be newly infected after a previous episode should be regarded as a new episode and investigated, 29 GUMCADv2 Technical guidance and extract specification for data extract C4N Non-specific genital infection (NSGI) C5A Pelvic inflammatory disease (PID) and epididymitis C5B Ophthalmia neonatorum C6A Trichomoniasis treated and diagnosed/coded accordingly treatment failures should not be given a new diagnosis. Treatment failures include those in whom first line antibiotics have failed (for example, symptoms not resolved or antibiotics not taken correctly) and those who have had sexual intercourse with an untreated partner (not a new partner) within 6 weeks *see tables D and E for further details on using suffixes. This includes all cases of complicated and uncomplicated NSGI. the R suffix can be added to report Proctitis (C4NR)* in males, NSGI is diagnosed in the absence of gonorrhoea and laboratory confirmed chlamydia and the presence of polymorphonuclear leucocytes at >5 per high power field females being treated for non-specific mucopurulent cervicitis should be coded C4N patients thought to be newly infected after a previous episode should be regarded as a new episode and investigated, treated and diagnosed/coded accordingly treatment failures should not be given a new diagnosis. Treatment failures include those in whom first line antibiotics have failed (for example, symptoms not resolved or antibiotics not taken correctly) and those who have had sexual intercourse with an untreated partner (not a new partner) within 6 weeks *see tables D and E for further details on using suffixes. This includes all cases of pelvic inflammatory disease and all cases of epididymitis C5A should be reported with B for gonococcal infections and with C4 for chlamydial infections all other complications should be coded D2B This includes all cases of ophthalmia neonatorum. C5B should be reported with B for gonococcal infections and with C4 for chlamydial infections. Diagnosis of trichomoniasis associated with bacterial vaginosis (BV) should only be coded C6A (for trichomoniasis) ie do not also code C6B (for BV). the X suffix can be added where the current episode is known to have been previously diagnosed at another sexual health service (C6AX)* 30 GUMCADv2 Technical guidance and extract specification for data extract *see tables D and E for further details on using suffixes. C6B C6C C7 C8 C9 Anaerobic/ bacterial vaginosis (BV) and anaerobic balanitis Diagnosis of bacterial vaginosis (BV) is generally based on microscopy, pH vaginal fluid and the amine test. this diagnosis is very rarely appropriate in males and used only if the patient has confirmed anaerobic balanitis all other / non-confirmed anaerobic balanitis should be coded C6C This includes 'other' and non-confirmed anaerobic balanitis. Other vaginosis/vaginitis/ balanitis Anogenital This is diagnosed only when there is microscopic or culture candidosis evidence of candida infection. Scabies Pediculosis pubis C10A Anogenital Herpes simplex: 1st episode C10B Anogenital Herpes simplex: recurrence if there is no microbiological evidence then infection should be coded C6C asymptomatic patients who do not require treatment should be coded D3 This includes cases treated on either a clinical or epidemiological basis. treatment failures should not be given a new diagnosis. Patients who are thought to be re-infected should be regarded as new cases, and investigated, treated and diagnosed/coded accordingly This includes cases treated on either a clinical or epidemiological basis. treatment failures should not be given a new diagnosis. Patients who are thought to be re-infected should be regarded as new cases, and investigated, treated and diagnosed/coded accordingly. A first episode of anogenital herpes should only be recorded if the patient has never previously had a confirmed diagnosis (at any sexual health service). Laboratory confirmation is required for this condition. This includes all subsequent episodes of anogenital herpes. If there has been previous laboratory confirmation, then clinical judgement is enough for this diagnosis. 31 GUMCADv2 Technical guidance and extract specification for data extract C11A C11D C12 C13 C14 C15 C16 D2A Anogenital warts infection: 1st episode Anogenital warts infection: recurrence Molluscum contagiosum Viral hepatitis B (HbsAg positive): first diagnosis Viral hepatitis C: 1st diagnosis Viral hepatitis A: acute infection Mycoplasma genitalium Urinary tract infection A first episode of anogenital warts should only be recorded if the patient has never previously received treatment for the condition (at any sexual health service). diagnosis refers to macroscopic warts. It does not refer to acetowhite patches, abnormalities revealed by acetowhite staining nor the cytological finding of a wart virus change ie these should not be coded C11A This includes all subsequent episodes of anogenital warts. diagnosis refers to macroscopic warts. It does not refer to acetowhite patches, abnormalities revealed by acetowhite staining nor the cytological finding of a wart virus change ie these should not be coded C11D Diagnosis refers to presence of characteristic lesions, or characteristic histopathological features if biopsy has been performed. This includes 1st diagnoses of antigen positive hepatitis B only. subsequent attendances for hepatitis B management and/or other STI services should not be coded C13 (hepatitis B management should be coded D2B) First diagnoses of hepatitis C, defined as anti-HCV positive or HCV RNA positive. Diagnoses of acute hepatitis A, defined as detection of hepatitis A virus specific IgM antibodies. Laboratory confirmation is required for this condition. This includes patients where any of the following conditions are met (otherwise patients should be coded D2B): i. Culture positive UTI. ii. Moderately to highly likely UTI based on clinical and dipstick* criteria. iii.Treated for UTI based on moderate/severe symptoms of UTI without culture or dipstick* D2B Other conditions requiring services/treatment at Sexual Health services * LE or Nitrite positive. This includes any new episode where an STI service and/or treatment was required for a condition that is not covered by any other SHHAPT code. 32 GUMCADv2 Technical guidance and extract specification for data extract H H1 HIV positive New HIV diagnosis For known HIV positive patients who are attending for STI care only (and can be coded as often as required within an episode). patient attending for HIV care should be coded H2 (not H) cannot be reported on the same date as H1, H1A, H1B or H2 This includes all new HIV diagnoses (that are not defined as 'acute' or AIDS related). the X suffix can be added where the patient is known to have been previously diagnosed with HIV (at any other clinical setting) and has not previously accessed HIV care (H1X)* known HIV positive patients transferring their existing HIV care to a new service should be coded H2 H can be coded at each associated attendance within a single episode. cannot be reported on the same date as H or H2. cannot be reported in the same patient history as H1A or H1B *see tables D and E for further details on using suffixes. H1A New HIV diagnosis: Acute This includes all new HIV diagnoses which have evidence of one or more of the following in the last 6 months: a) a documented negative HIV test. b) laboratory evidence (eg RITA assay, RNA, neutralisable p24 antigen and antibody negative). c) evidence of seroconversion illness. the X suffix can be added where the patient is known to have been previously diagnosed with HIV (at any other clinical setting) and has not previously accessed HIV care (H1X)* known HIV positive patients transferring their existing HIV care to a new service should be coded H2 cannot be reported on the same date as H or H2 cannot be reported in the same patient history as H1 or H1B *see tables D and E for further details on using suffixes. 33 GUMCADv2 Technical guidance and extract specification for data extract H1B H2 New HIV diagnosis: Late (AIDS defined) Attendance for HIV-related care This includes all new HIV diagnoses which have a clinical AIDS diagnosis within 3 months of initial HIV diagnosis. the X suffix can be added where the patient is known to have been previously diagnosed with HIV (at any other clinical setting) and has not previously accessed HIV care (H1BX).* known HIV positive patients transferring their existing HIV care to a new service should be coded H2 cannot be reported on the same date as H or H2 cannot be reported in the same patient history as H1 or H1A *see tables D and E for further details on using suffixes. This includes all attendances relating to HIV care. Cervical cytology: minor abnormality Cervical cytology: major abnormality Pregnant 1-12 weeks H2 can be coded at each associated attendance within a single episode cannot be reported on the same date as H, H1, H1A or H1B Includes smears showing lower grades (ie “borderline” or “mild”) of dyskaryosis on cytological examination. Includes smears showing moderate or worse (ie “moderate” or “severe”) dyskaryosis on cytological examination. For those known to be in the 1st trimester of pregnancy (only required once per pregnancy). Pregnant 13-28 weeks cannot be reported on the same date as PR2 or PR3 For those known to be in the 2nd trimester of pregnancy (only required once per pregnancy). Pregnant 29 weeks – full term cannot be reported on the same date as PR1 or PR3 For those known to be in the 3rd trimester of pregnancy (only required once per pregnancy). SG1 Shigella flexneri cannot be reported on the same date as PR1or PR2 Laboratory confirmation is required for this condition. SG2 Shigella sonnei Laboratory confirmation is required for this condition. SG3 Shigella other / unspecified Laboratory confirmation is required for this condition. P4A P4B PR1 PR2 PR3 34 GUMCADv2 Technical guidance and extract specification for data extract Service Codes D3 Other episodes not requiring treatment P1A HIV antibody test This includes any new episode where no STI services and/or treatment were required ie no other SHHAPT code is appropriate. D3 can be used to code negative HIV/STI tests (P1A and T1T7) although this is not strictly necessary ie negative HIV/STI tests can be reported without D3 D3 can be used in conjunction with 'prisoner' (Z) and 'sex worker' (SW) codes D3 can be used to code patients who have been triaged or have seen a health advisor but have 'walked-out' before seeing a clinician patients who do not attend should not be coded D3 D3 can be used only once per episode For those receiving an HIV antibody test which is not part of a full sexual health screen (as described by code T4). Cannot be reported on the same date as P1B, P1C, T3, T4 or T7.* P1B P1C HIV antibody test offered and refused HIV test not appropriate *see section ‘F’ for further details on HIV/STI test code combinations. For those offered an HIV antibody test who decline the test. Including where a clinician believes there is a HIV risk that could be tested on that day, where a pre-test discussion/counselling has taken place or where the patient intends to test in the future. Cannot be reported on the same date as P1A, P1C, T4 or T7.* *see section ‘F’ for further details on HIV/STI test code combinations. For those accessing STI services who were not offered an HIV test because the clinician deemed it was not appropriate eg the patient has recently tested or is still inside the HIV ‘window’ period. Patients already known to be HIV positive do not need to be coded P1C – they should be coded H or H2 (as appropriate). It may be more appropriate to code some patients SRH instead of P1C e.g. patients attending for continued contraceptive care where HIV testing is not relevant to the consultation. 35 GUMCADv2 Technical guidance and extract specification for data extract Cannot be reported on the same date as P1A, P1B, T4 or T7.* P2A P2B P2C P2D P2E P2I P3 Hepatitis B vaccination: 1st dose *see section ‘F’ for further details on HIV/STI test code combinations. The 1st dose of any new hepatitis B vaccination course (including patients who may have been previously vaccinated but are now receiving the 1st dose of a new vaccination course). Hepatitis B vaccination: 2nd dose cannot be reported on the same date as P2B, P2C, P2D or P2E The 2nd dose of a hepatitis B vaccination course (including those who are known to have received a 1st dose at another service). Hepatitis B vaccination: 3rd dose cannot be reported on the same date as P2A, P2C, P2D or P2E The 3rd dose of a hepatitis B vaccination course (including those who are known to have received a prior dose at another service). Hepatitis B vaccination: 4th dose cannot be reported on the same date as P2A, P2B, P2D or P2E The 4th dose of a hepatitis B vaccination course (including those who are known to have received a prior dose at another service). Hepatitis B vaccination: Booster Hepatitis B immune Contraception (excluding condom provision) cannot be reported on the same date as P2A, P2B, P2C or P2E For hepatitis B vaccination boosters (including those who are known to have been vaccinated at another service). cannot be reported on the same date as P2A, P2B, P2C or P2D Includes patients who have natural immunity and vaccinated immunity. For females only: to be used to record the provision of contraception and family planning advice. The provision of condoms is not included. this code is related to multiple activities in the SRHAD report. Please speak to your software provider to determine if 36 GUMCADv2 Technical guidance and extract specification for data extract P4 PEPS PN PNC PNG PNH PNN PNP PNS Cervical cytology done Post exposure prophylaxis: Sexual exposure Partner notification initiated Partner notification: chlamydia contact Partner notification: gonorrhoea contact Partner notification: HIV contact Partner notification: nonspecific genital infection (NSGI) contact Partner notification: PID / epididymitis contact Partner separate coding is required for GUMCADV2 and SRHAD ie this may need to be coded twice in order to appear in both reports integrated services should use code SRH where the patient only accessed SRH services without accessing STI services See http://www.hscic.gov.uk/datacollections/srhad. Includes all patients having a cervical cytology, regardless of outcome. For patients given HIV prophylaxis following sexual exposure (PEPSE). Partner notification has been initiated for this patient by this service. for use in non-GUM Level 2 and Level 1 services only This includes those presenting as a partner of an index case diagnosed with chlamydia (at this or any other service). If the partner is found to be infected with chlamydia they should also be coded C4. This includes those presenting as a partner of an index case diagnosed with gonorrhoea (at this or any other service). If the partner is found to be infected with gonorrhoea they should also be coded B. This includes those presenting as a partner of an index case diagnosed with HIV (at this or any other service). If the partner is found to be infected with HIV they should also be coded H1, H1A or H1B. This includes those presenting as a partner of an index case diagnosed with NSGI (at this or any other service). If the partner is found to be infected with NSGI they should also be coded C4N. This includes those presenting as a partner of an index case diagnosed with PID / epididymitis (at this or any other service). If the partner is found to be infected with PID /epididymitis they should also be coded C5A. Can be reported on the same date as PNC or PNG. This includes those presenting as a partner of an index case 37 GUMCADv2 Technical guidance and extract specification for data extract notification: syphilis contact PNT REF1 REF2 REF3 Partner notification: trichomoniasis contact Referred from chlamydia screening programme Referred to GUM (Level 3) Sexual Health Services Referred from home testing / sampling service diagnosed with syphilis – of any stage (at this or any other service). if the partner is found to be infected with syphilis they should also be coded A1, A2 A3, A4, A5, A6 or A7A This includes those presenting as a partner of an index case diagnosed with trichomoniasis (at this or any other service). if the partner is found to be infected with trichomoniasis they should also be coded C6A To identify those referred from the chlamydia screening programme - self referral is sufficient. REF1 should be reported with supplementary STI test and/or diagnosis codes For Level 2 & Level 1 sexual health services to identify those being referred to Level 3 GUM services. For use in non-GUM Level 2 & Level 1 services only REF2 should be reported with supplementary STI test and/or diagnosis codes. To identify those referred from home testing / home sampling services with a reactive test result - self referral is sufficient. home testing/home sampling services would include services accessed outside of a normal clinic setting eg outreach, over the counter or internet testing REF2 should be reported with supplementary STI test and/or diagnosis codes 38 GUMCADv2 Technical guidance and extract specification for data extract SRH Sexual reproductive health patient (only) To identify those attending for SRH services where a full sexual health screen / HIV testing was not relevant to the consultation ie those not coded P1A, P1B, P1C, T4 or T7. Please review BHIVA guidelines on HIV testing to determine whether HIV testing is relevant to the SRH consultation (see section 4 of the guidelines). http://www.bhiva.org/documents/guidelines/testing/glineshivtest08.pdf SW T1 Sex worker Chlamydia test patients coded SRH do not need to be coded P1C (HIV testing not appropriate) or T9 (STI testing not required/appropriate) this code will identify patients that should be excluded from calculations to measure HIV test coverage/uptake SRH can be coded at each associated attendance within a single episode this code is related to multiple activities in the SRHAD report. Please speak to your software provider to determine if separate coding is required for GUMCADV2 and SRHAD, ie this may need to be coded twice in order to appear in both reports For the provision of services to a patient known to be a current sex worker. SW can be coded at each associated attendance within a single episode. For those tested for chlamydia (but are not tested for gonorrhoea or syphilis). Cannot be reported on the same date as T2, T3 or T4.* T2 T3 *see section ‘F’ for further details on HIV/STI test code combinations. Chlamydia and For those given a sexual health screen which only includes chlamydia and gonorrhoea testing (and excludes syphilis testing). gonorrhoea tests Cannot be reported on the same date as T1, T3, T4 or T7.* Chlamydia, gonorrhoea and syphilis tests *see section ‘F’ for further details on HIV/STI test code combinations. For those given a sexual health screen which only includes chlamydia, gonorrhoea and syphilis testing (and excludes HIV testing). Cannot be reported on the same date as P1A, T1, T2, T4, T7 or T9.* 39 GUMCADv2 Technical guidance and extract specification for data extract T4 T5 T6 T7 T8 T9 Full sexual health screen (chlamydia, gonorrhoea, syphilis and HIV tests) Herpes simplex virus (HSV) test Hepatitis A/B/C test Syphilis and HIV antibody test Self sampling (chlamydia, gonorrhoea or HIV) without HCW consultation STI testing not required / appropriate (chlamydia, gonorrhoea or syphilis) *see section ‘F’ for further details on HIV/STI test code combinations. For those given a full sexual health screen including chlamydia, gonorrhoea, syphilis and HIV testing. Cannot be reported on the same date as P1A, P1B, P1C, T1, T2, T3, T7 or T9.* *see section ‘F’ for further details on HIV/STI test code combinations. For those tested for the herpes simplex virus (HSV).* *see section ‘F’ for further details on HIV/STI test code combinations. For those tested for hepatitis A, B or C.* *see section ‘F’ for further details on HIV/STI test code combinations. For those tested for syphilis and HIV (and excludes chlamydia and gonorrhoea testing). Cannot be reported on the same date as P1A, P1B, P1C, T2, T3 or T4.* *see section ‘F’ for further details on HIV/STI test code combinations. Self sampling of STIs without ‘face to face’ health care worker (HCW) consultation. Can be reported on its own or in conjunction with other test codes – P1A, T1, T2, T3, T4, T5, T6 or T7.* This code will identify patients that do not have a consultation / sexual health history taken. Self sampling includes urine specimens (commonly known as 'pee & go'), swabs (vaginal, anal or pharyngeal) or blood specimens. *see section ‘F’ for further details on HIV/STI test code combinations. For those accessing STI services where testing for chlamydia, gonorrhoea or syphilis is not required, appropriate or is declined. P1B or P1C should be coded when HIV testing is refused/not appropriate. Patients only attending for SRH care (and not STI care) should be coded SRH instead of T9. Cannot be reported on the same date as T3 or T4.* *see section ‘F’ for further details on HIV/STI test code combinations. 40 GUMCADv2 Technical guidance and extract specification for data extract T10 TS TT W1 Rapid testing – same-day results (chlamydia, gonorrhoea or HIV) Microscopy (gonorrhoea or syphilis) 3 site testing (chlamydia or gonorrhoea) HPV vaccination: 1st dose For those receiving at least 1 rapid test (same-day results) for chlamydia, gonorrhoea or HIV.* Should be reported in conjunction with other test codes - P1A, T1, T2, T3, T4 or T7. *see section ‘F’ for further details on HIV/STI test code combinations. For use with any test where microscopy is undertaken.* Can be reported on its own or in conjunction with other test codes T2, T3, T4 or T7. *see section ‘F’ for further details on HIV/STI test code combinations. For those receiving 3 site testing (genital, pharyngeal and rectal) for chlamydia or gonorrhoea.* Should be reported in conjunction with other test codes - T1, T2, T3 or T4. *see section ‘F’ for further details on HIV/STI test code combinations. The 1st dose of any new human papillomavirus vaccination course (including patients who may have been previously vaccinated but are now receiving the 1st dose of a new vaccination course). the Q suffix can be added if the quadrivalent vaccine is used (W1Q)* cannot be reported on the same date as W2 or W3 W2 HPV vaccination: 2nd dose *see tables D and E for further details on using suffixes. The 2nd dose of a human papillomavirus vaccination course (including those who are known to have received the 1st dose at another service). the Q suffix can be added if the quadrivalent vaccine is used (W2Q)* cannot be reported on the same date as W1 or W3 W3 HPV vaccination: 3rd dose *see tables D and E for further details on using suffixes. The 3rd dose of a human papillomavirus vaccination course (including those who are known to have received a prior dose at another service). 41 GUMCADv2 Technical guidance and extract specification for data extract the Q suffix can be added if the quadrivalent vaccine is used (W3Q)* cannot be reported on the same date as W1 or W2 Z Prisoner *see tables D and E for further details on using suffixes. For the provision of services to a patient known to be a current prisoner. Z can be coded at each associated attendance within a single episode Unspecified Codes O11O99 Unspecified Codes All codes from O11 to O99 are reserved by PHE for use with future national reporting requirements in response to newly identified sexual health issues. PHE will notify services as and when codes are officially released for use in GUMCAD reporting ie codes O11-O99 should not be used unless notified by PHE A range of unspecified (‘dummy’) codes have been devised to allow a more timely response to future infection outbreaks. The codes will be released by PHE as and when an appropriate need for new surveillance is identified (at which time detailed guidance will be given). The unspecified (‘dummy’) codes range from O11 to O99 inclusive (O11, O12, O13 etc.) – this range of codes should be reserved in software systems and should not be used for any other surveillance (national or local) until notified otherwise by PHE. 42 GUMCADv2 Technical guidance and extract specification for data extract B. SHHAPT code suffixes Suffix Description Definition and Guidance M Medication given For use in Level 2 services*: the 'M'. Suffix is added to the primary SHHAPT code where treatment is given/prescribed for the presenting condition (including patients referred to Level 3 GUM services for further management). O Pharyngeal infection Q Quadrivalent HPV vaccine R Rectal infection patients referred to Level 3 GUM* should also be coded REF2 level 3 GUM* services provide treatment for all diagnoses as standard and are therefore not required to use the 'M' suffix See table E for further details on using suffixes. The ‘O’ suffix is added to the primary SHHAPT code where diagnosis includes a pharyngeal infection. Compatible SHHAPT Codes B, C4, C10A, C10B, C11A, C11D. B, C4, C2 where the patient has a multiple site infection (genital, rectal and /or pharyngeal) each site of infection should be coded eg a 3 site infection of gonorrhoea should be coded B (genital), BO (pharyngeal) and BR (rectal) See table E for further details on using suffixes. The ‘Q’ suffix is added to the primary SHHAPT W1, W2, W3 code for those receiving the quadrivalent vaccine for HPV. See table E for further details on using suffixes. The ‘R’ suffix is added to the primary SHHAPT B, C4, C2, code where diagnosis includes a rectal infection. C4N where the patient has a multiple site infection (genital, rectal and /or pharyngeal) each site of infection should be coded eg a 3 site infection of gonorrhoea should be coded B (genital), BO (pharyngeal) and BR (rectal) See table E for further details on using suffixes. 43 GUMCADv2 Technical guidance and extract specification for data extract X Diagnosed previously elsewhere The ‘X’ suffix is added to the primary SHHAPT code where a patient is known to have been recently diagnosed with their presenting condition at another health setting in the UK before this attendance. A1, A2, A3, A4, A5, A6, A7A, B, C4, C6A, H1, H1A, H1B This includes: diagnoses of chlamydia, gonorrhoea or syphilis that were made in the last 6 weeks diagnoses of HIV where the patient has not previously accessed HIV care (this may include diagnoses made more than 6 weeks ago) See table E for further details on using suffixes. Please note: When an episode is diagnosed with a multi-site infection (genital, pharyngeal or rectal), the episode should be coded with each site of infection code eg genital, pharyngeal and rectal gonorrhoea should be coded B, BO and BR (the previously required hierarchy has been abolished). 44 GUMCADv2 Technical guidance and extract specification for data extract C. Permissible SHHAPT/suffix combinations SHHAPT/ Description Suffix combinations A1X Syphilis A2X A3X A4X A5X A6X A7AX BR BO BX BM BRX Gonorrhoea BRM BOX BOM C2R C2O C4R C4O C4X C4M C4RX C4RM C4OX C4OM LGV Chlamydia Service type* Primary syphilis, diagnosed previously elsewhere Secondary syphilis, diagnosed previously elsewhere Early latent syphilis, diagnosed previously elsewhere Cardiovascular syphilis, diagnosed previously elsewhere Neurosyphilis, diagnosed previously elsewhere Other late/latent syphilis, diagnosed previously elsewhere Congenital syphilis, diagnosed previously elsewhere Rectal infection Pharyngeal infection Diagnosed previously elsewhere Medication given Rectal infection, diagnosed previously elsewhere Rectal infection, medication given Pharyngeal infection, diagnosed previously elsewhere Pharyngeal infection, medication given Rectal infection Pharyngeal infection Rectal infection Pharyngeal infection Diagnosed previously elsewhere Medication given Rectal infection, diagnosed previously elsewhere Rectal infection, medication given Pharyngeal infection, diagnosed previously elsewhere Pharyngeal infection, medication 45 All services All services All services All services All services All services All services All services All services All services Level 2 services All services Level 2 services All services Level 2 services All services All services All services All services All services Level 2 services All services Level 2 services All services Level 2 services GUMCADv2 Technical guidance and extract specification for data extract C4NR C6AX C10AM C10BM C11AM C11DM H1X H1AX H1BX W1Q W2Q W3Q given NSGI Proctitis Trichomoniasis Trichomoniasis, diagnosed previously elsewhere Herpes Medication given Warts Medication given HIV Diagnosed previously elsewhere HPV vaccine Quadrivalent vaccine *Level 2 service: commissioned sexual health (non-GUM) services 46 All services All services Level 2 services Level 2 services Level 2 services Level 2 services All services All services All services All services All services All services GUMCADv2 Technical guidance and extract specification for data extract D. HIV/STI test code combinations SHAPPT codes for HIV/STI testing should be used in the appropriate way to ensure coding provides an accurate reflection of the services provided. The table below illustrates the 1-to-1 relationship between each HIV/STI code and highlights whether the combination is ‘Accepted’, ‘Incomplete’ or ‘Rejected’. SHHAPT Code P1A: HIV antibody test P1B: HIV test offered & refused P1C: HIV test not appropriate P1A P1B P1C T1 T2 T3 T4 T5 T6 T7 T8 T9 T10 TS TT T1: Chlamydia test T2: Chlamydia & gonorrhoea tests T3: Chlamydia, gonorrhoea & syphilis tests T4: Full sexual health screen (chlamydia, gonorrhoea, syphilis & HIV tests) T5: Herpes simplex virus (HSV) test T6: Hepatitis A / B / C test T7: Syphilis & HIV antibody test T8: Self sampling of STIs T9: STI testing not required/appropriate (chlamydia, gonorrhoea or syphilis) T10: Rapid testing – same day results (chlamydia, gonorrhoea or HIV) TS: Microscopy TT: 3 site testing (chlamydia or gonorrhoea) HIV/STI test code combinations – key Accepted: code combination can be reported together. Incomplete: code combination can only be reported together when accompanied by a 3rd code (or 4th code etc.). e.g. T6 & TT cannot be reported on their own - because 3 site testing isn’t conducted when testing for Hepatitis A /B/C. However, combining T6 & TT with a 3rd code, such as T2, would complete the coding combination – such as reporting T6, TT & T2 for testing of Hepatitis A /B/C and 3 site testing for chlamydia/gonorrhoea. Rejected: code combination cannot be reported together 47 GUMCADv2 Technical guidance and extract specification for data extract Appendix 5: READ codes and definitions READ Code Version 2 The MS Excel Workbook embedded below contains all permissible READ Version 2 codes for GUMCADv2. Demographic and Attendance related READ codes are provided in the separate tabs. GUMCADv2 READ CODE v2_230315.xlsx READ Code Clinical Terms Version 3 (CTV3) A number of sites submitting GUMCADv2 will be submitting codes using READ CTV3 codes. The MS Excel Workbook embedded below contains all permissible READ CTV3 codes. Demographic and Attendance related READ codes are provided in the separate tabs. GUMCADv2 READ_CODE_CTV3_230315.xlsx The sexual health related READ codes are available as: 1. Recommended List of READ Codes The recommended list of READ codes is a shortened list of READ codes that are compatible with the SHHAPT codes used by other Level 2 and 3 sexual health services. We recommend that this list be adopted to standardise data collection. The GUMCAD team and the main GP PSSs are developing standard data collection templates to aid collection of GUMCADv2 which is based on this list of codes. Once the templates are available we will contact the relevant services. 2. All Permitted READ Codes This provides the full list of all sexual health related READ codes permitted in GUMCADv2. 48
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