February 10, 2017
Clinical Trials
There are a number of clinical studies with Canadian locations that are currently recruiting participants. To find more
details, visit http://www.muscle.ca/research/clinical-trials-and-registries/find-a-clinical-trial/.
From Muscular Dystrophy News Today read about:
More Research Needed to Understand Physiological Responses to Assistive Technology, Study Finds
Why Muscles Don’t Break: New Research Offers Possibilities for MD Therapies
Physical Activity Encouraged for Duchenne MD Patients Who Are Less Active Than Peers, Study Finds
Noninvasive Breathing Support Device Seen to Help DMD Patient Live to Mid-50s in Case Report
From the Friedrich’s Ataxia Newsletter
Increased Iron Storage Protein in Ataxia Patients May Have Protective Role
Measuring Mitochondrial Capacity in Friedreich’s Ataxia May Offer Monitoring Possibilities
Heart Transplant Viable Long-Term Option for Friedreich’s Ataxia Patients, Case Studies Suggest
Caregiver Retreat – St. John’s, NL
Muscular Dystrophy Canada – Atlantic Services is delighted to provide a Caregiver
Retreat in St. John’s, NL this spring.
Presented by Lawtons Home HealthCare, and with specialist content delivered by our
partnering organization Caregivers Nova Scotia, this Retreat will provide unpaid caregivers of persons with
neuromuscular disorders an opportunity to relax with peers as well as to learn skills and resources that will aid in their
role as caregiver. We hope your caregiver(s) can join us at the Murray Hill Premises Hotel on May 27 & 28, 2016.
Click here to register: https://goo.gl/forms/qT0bGsDQsuRfJyzi2
Family Retreat
We’re excited to host the 4th Atlantic Family Retreat in the Fall of 2017 at the
wonderful Camp Brigadoon in Aylesford Lake, NS.
This event focuses on family time and peer support opportunities, ensuring these are
the core of the activities chosen for the weekend. Families enjoy favourite outdoor pursuits such as the “Big Canoe”,
fishing dockside, and camp fires each night.
Lawtons Home HealthCare is our presenting sponsor and their staff will be active on site for the weekend event. Cindie
Smith of Caregivers Nova Scotia will be on-site for a session focused on caregivers. There are more sessions to be
announced. This year’s theme takes inspiration from our history, when brigands and privateers sailed along our Atlantic
coast.
We will be opening registration to first-time attendees early, on May 1st. General registration will open June 1st. More
information will follow as we approach these dates.
http://www.muscle.ca/we-can-help/educational-events/atlantic-canada-family-retreat/
Scholarships for Students with Disabilities
Partnership for Access Awareness Nova Scotia (PAANS)
To assist Nova Scotians with disabilities in their pursuit of post-secondary education and training.
Twelve scholarships in the amount of $1,500.00, four in the amount of $2,000.00, two in the
amount of $1000.00 are anticipated to be available for the academic year beginning September
2017. Need more info visit: http://www.paans.ca/scholarship.html . Deadline to apply is 4:30
pm on Friday, April 7, 2017.
2017 AMI Robert Pearson Memorial Scholarship campaign
The program is open to Canadian citizens or permanent residents of Canada with a permanent disability who are
currently registered in and returning to a full-time program of study at an accredited Canadian post-secondary college or
university. In 2017, AMI will award two $5,000 bursaries to two deserving students with a permanent disability; one
from the English community and one from the French. For more information, visit ami.ca/scholarship . Deadline to
apply is April 30, 2017
NEADS National Student Awards Program
The NEADS National Student Awards Program is offered to encourage full access to post-secondary education for
persons with disabilities, who often have greater barriers to participation in higher education, as well as extra costs
because of their disabilities. Students must currently be registered in and continuing at post-secondary institution and
provide documented proof of registration as part of the application and on receipt of the award. For more info visit
http://www.neads.ca/en/about/projects/ete2/scholarship/ Deadline to apply is April 30, 2017
For more information on post-secondary government funding and loans programs visit the National Educational
Association of Disabled Students. http://www.disabilityawards.ca/about.php?lang=EN
Fundy Chapter
The next chapter meeting will be held on Saturday, February 18th at 1. p.m. at the Loch Lomond Village. Weather
permitting.
2017 Atlantic Fire Fighter Raffle - Choose Your Wheels:
2017 Harley-Davidson Road King OR 2017 RZR 900 Trail (includes a
trailer) both valued at $26,000 (winners choice)
2nd prize is a leather jacket (compliments of Red Rock HarleyDavidson)
Tickets are $20 each with only 4000 printed and is licensed in all four
Atlantic provinces. The draw will take place on Thursday, July 13,
2017 in Dartmouth. This raffle is a wonderful opportunity for Fire
Fighters and volunteers to help our families affected by
neuromuscular disorders.
For more information or to purchase a ticket, please contact Shelley at [email protected]
Who will you walk for?
Join us for the Walk for Muscular Dystrophy and help raise spirits and funds in
support of those affected by neuromuscular disorders. The Walk for Muscular
Dystrophy is a fully accessible community event that is fun for your family,
friends and colleagues.
There are many ways and reasons to get involved. The Walk for Muscular Dystrophy is the perfect opportunity to make
new friends and build connections with others who understand the effects of living with a neuromuscular disorder.
Create your own network of support and together, raise awareness.
Your contribution will help support individuals and families affected by neuromuscular disorders through initiatives
including education, information, advocacy and funding for research and assistive devices.
Join our community of hope and help make a difference. www.walk4md.com