How do we unify data collection?
Paper, Digital, Screening Group
Education, Data Storage, Data
Transfer, Follow-up
February 2017
Think Tank Survey Monkey
2016
Follow-up Survey
39 questions
Categories
1. Data about screening groups themselves
2. Data about the screening protocols and what
data is being collected and who is helping
collect and analyze the data
3. How is the data obtained and stored?
4. Follow-up after screening
5. Participation in a national data repository?
3. How is the data obtained and
stored
Is the information protected?
4. Follow-up after screening
5. Participation in a national
data repository?
Key Discussion Points
• How do we acquire the data?
– H and P
• Paper
• Digital
• Other
– ECG
• Paper
• Digital
• Other
– Echocardiography
• Paper
• Digital
• Other
Key Discussion Points
• How do we educate the screening groups to
do it uniformly?
– Train the trainer
– A teaching manual
– Web-based review
– Web-based live
Key Discussion Points
• How do we store the data and how do we
transfer the data to storage?
– Internet and web based
– How are programs doing it this way currently?
– IT partnership
– Funding for the storage, IT partnership, webbased support, etc.
Key Discussion Points
• How do we insure the follow-up for individual
patients?
– Information transmission (screening results)
– Uniform decision about criteria warranting followup with primary care takers
• Follow-up to make sure that this occurs
– Longer-term follow-up to assess and document
outcome
– Other issues/questions with regard to follow-up
Thanks to everyone for their hard
work and for the discussion that is
about to occur