Home Instruction for Parents of Preschool Youngsters Program Collaboration to Serve Children with ASD Dr. Karen Berkman Brenda Brinson Dr. Mary Lindsey Shanica Meadows Home Instruction for Parents of Preschool Youngsters PRESENTATION OBJECTIVES • • • • • Insight into Autism Show how the HIPPY model was applied Share how the project was developed View video clips on parent perspectives Discuss research findings and success stories • Questions and Answers Project Question? Can children diagnosed with autism spectrum disorder benefit from the HIPPY program? Home Instruction for Parents of Preschool Youngsters Essential Features of the HIPPY Model Model Enhancements for HIPPY/CARD Collaboration + • HIPPY Curriculum Supplement for Youngsters Needing Additional Communication Support Model Enhancements for HIPPY/CARD Collaboration + • Autism Director • Community Partners (referrals) • Specialized Training/Strategies for Home Visitors and Autism Consultants • Conduct Monthly Staff Meetings Model Enhancements for HIPPY/CARD Collaboration + • Home Visitor and Autism Consultants conduct visit together • Role play strategies • Discuss parent tips sheet Model Enhancements for HIPPY/CARD Collaboration + • Increase time for home visit • Create visual supports for group meetings • Interactive Group Model Enhancements for HIPPY/CARD Collaboration Ongoing Evaluation + Child Outcomes Parent Outcomes Performance Database Review/Revision Project Development WHY COLLABORATE Project Development CARD approached HIPPY about the idea of serving children with ASD utilizing the HIPPY curriculum The Children’s Board of Hillsborough County funded a comprehensive project that included a pilot CARD/HIPPY collaboration to serve children with disabilities A three year cycle was completed and currently tracking child outcomes Children with ASD • Demonstrate difficulty in social communication • Display repetitive and restricted interests and behavior • May have sensory hyper or hyposensitivity • May have challenging behavior • May have higher level skills but challenged by simple tasks Home Instruction for Parents of Preschool Youngsters Project Participants • Children diagnosed with autism spectrum disorder by a licensed medical or clinical professional • 16+ children between 3-4 years old living in Hillsborough County • Families willing to devote 15 minutes per day to complete HIPPY program activities Developed Strategies • Visual Supports for responses (picture responses, picture schedule, first-then) • Reinforcement strategies • Timer • Social experience story • Hand over hand assistance with fading STAFF TRAINING • TRAINING: – CARD trained all HIPPY home visitors on overview of ASD, engagement and behavioral strategies, and data collection – HIPPY trained CARD Staff on the HIPPY model • CARD and HIPPY partnered on home visits to teach families strategies to give children easier access to the HIPPY curriculum Implement Strategies Tip Sheet • Create parameters for activities (#, time) • Get attention and provide simple requests…wait • State what you want, not what you don’t • Provide opportunities to make positive choices • Lessen prompting…have a plan • Have high expectations…adjust as needed Child's Name: HIPPY Curriculum: HIPPY Home Visitor: Week: Parent's Name: Expected Week: CARD Consultant: Dates: Was Your How long did Which strategies suggest by the Home Visitor or Child If any, what difficulties did you have it take to CARD Consultant were used? Activity Cooperative? with this activity? complete the Other than these strategies, write in what you did task? to engage your child to participate? √ OR X □ Picture Schedule □ Timer □ Rewards □ First/Then Board 1 ▫ □ Hand Over Hand Assistance □ Social Experience □ ASD Add On 2 3 4 5 □ Rewards ▫ □ Picture Schedule □ Timer First/Then Board □ Hand Over Hand Assistance Experience □ ASD Add On □ Rewards ▫ □ Picture Schedule □ Timer First/Then Board □ Hand Over Hand Assistance Experience □ ASD Add On □ Rewards ▫ □ Picture Schedule □ Timer First/Then Board □ Hand Over Hand Assistance Experience □ ASD Add On □ Rewards ▫ □ Picture Schedule □ Timer First/Then Board □ Hand Over Hand Assistance Experience □ ASD Add On □ □ Social □ □ Social □ □ Social □ Social □ Enhancement for Communication Support The HIPPY Curriculum Supplement For Youngsters Needing Additional Communication Support Weeks Year 1 1-10 Year 1: Week 1 Activity 1: Literacy Page 2 ● What to Do 1 Point to what you think this book is about from the picture. HIPPY Pages 2-5 clown storm dog Year 1: Week 2 Activity 3: Science HIPPY Pages 7-10 Page 7 ● What to Do 2 On your head I see your hair, your ears, and your face. Look at your hair. Point to some things that describe your hair. (Accept your child’s responses and offer some of your own.) long short braided straight curly blonde brown red black HIPPY Curriculum Supplement © Center for Autism & Related Disabilities at USF 15 Assess/Evaluate Children’s Progress • Pre-post data on HIPPY Skills Test • Pre-post data on Get Ready 2 Read Test • Pre-post data on Bracken Results and Findings The HIPPY Skills Test is a locally developed tool that tests mastery of the HIPPY curriculum each program year. Results are based on a total of 6 children who completed pre and post tests in 2013-2014 and 5 children who completed pre and post tests in 2014-2015. Results and Findings HIPPY SKILLS TEST 2013-2014 Six children improved their HIPPY SKILLS TEST from pre to post in 2013-2014. All six children scores improved from pre to post. HIPPY SKILLS TEST -2013-2014 8 8 7 7 6 5 5 Pre 4 Post 3 3 2 2 2 1 1 1 0 0 0 0 0 1 2 3 4 5 6 Results and Findings HIPPY SKILLS TEST 2014-2015 Five children in 2014-2015 had pre and post HIPPY Skills Test scores. Three showed no change and two improved. HIPPY SKILLS Test -2014-2015 10 10 9 8 7 7 Pre 6 5 Post 5 4 3 2 2 1 0 0 0 0 0 0 1 2 3 4 5 0 Our Stories, Our Successes I am Ashley – Age 4 and I was diagnosed with moderate autism after I began HIPPY one year ago. Because of HIPPY I am now talking and I enjoy story time and answering questions about the story. HIPPY Skills Test Pre-test = 0 Post test = 6 Our Stories, Our Successes I am Carmen – age 4. I have high functioning autism. I was diagnosed last year through my participation in HIPPY 3. My speech has improved a lot and I can now say my name and age. I’ve learned how to jump and I love the color red. HIPPY Skills Test Pre-test = 0 Post test = 1 Results and Findings The Get Ready To Read is a national screening tool to determine a child’s prereading skills. Results are based on children enrolled in the Year 2 and Year 3 curricula. A total of 4 children completed pre and post tests in 20132014 and 5 children completed pre and post tests in 2014-2015. Results and Findings GET READY TO READ 2013-2014 Four children had pre and post Get Ready to Read scores for 2013-2014. All children scores improved from pre to post. 24 25 Get Ready to Read Pre and Post 2013-2014 20 20 16 15 Get Ready to Read Pre 11 Get Ready to Read Post 10 7 4 5 0 0 0 1 2 3 4 Results and Findings GET READY TO READ 2014-2015 Five children had pre and post Get Ready to Read scores for 2014-2015. All children scores improved from pre to post in 2014-2015 except one whose scores were unchanged. Get Ready to Read Pre and Post 2014-2015 25 23 23 20 17 16 Pre 16 Post 15 10 8 8 7 5 4 5 0 0 1 2 3 4 5 6 8 Our Stories, Our Successes I am Jossie – age 6. I have high functioning autism. I can read and am in a regular first grade class. HIPPY SKILLS TEST Pre-test = 0 Post test = 5 GR2R Pre-test = 83 Post test = 105 BRACKEN Pre-test/Post test 11/14 4/15 Colors = 10/10 Letters = 15/15 Numbers = 15/18 Size = 4/11 Shapes = 16/16 Results and Findings The Bracken School Readiness Assessment is a quick screen concept knowledge of young children. It is administered as a statewide assessment for Florida HIPPY programs. Results are based on children 9 children who completed pre and post tests in 2014-2015. Results and Findings BRACKEN SCHOOL READINESS ASSESSMENT Eight of the nine children with pre and post total Bracken Scores improved from pre to post. The greatest improvement from pre to post was 41 points. PRE and POST Bracken Scores For Children with Autism Spectrum Disorder 80 74 68 70 70 67 60 60 55 Bracken Scores 50 39 40 38 Pre Bracken 33 Post Bracken 32 30 21 20 11 10 6 3 0 0 2 0 0 1 2 3 4 5 6 7 8 Children with Autism Spectrum Disorder 9 Results and Findings As a group children with autism improved by 74% from pre to post. This improvement was 33% more than the improvement seen by the entire group of HIPPY children in Florida as a whole which improved by 41% from pre to post. Children Pre Bracken Mean Test Score Post Bracken Mean Test Score Change % Increase Children with 23.44 Autism Spectrum Disorder 40.88 17.44 74% All HIPPY Children 53.57 15.46 41% 38.11 Our Stories, Our Successes My name is Deshaun – I was diagnosed with moderate autism while enrolled in HIPPY. When I started HIPPY I did not talk or play with others. Now I love to talk, laugh and give hugs! 2015 HIPPY graduate! BRACKEN (Y2) Hippy Skills Test (Y1) Pre-test = 0 Post test = 2 Color = 0/1 Letters = 0/4 Numbers = 0/0 Size = 0/4 Shapes = 0/2 GR2R Pre-test = 56 Post test = 63 Pre-test/Post test Our Stories, Our Successes Hi my name is Reece – I have moderate autism. I have sensory challenges but I love to read. My mom was so amazed when I did the sensory activity that she took a picture and posted it on Facebook! BRACKEN Start Date: 2/2015 HIPPY SKILLS TEST Pre-test = 4 Post Test = 7 Pre-test/post test 3/15 1/16 Colors = 10/10 Letters = 15/15 Numbers = 17/18 Size = 11/8 Shapes = 15/16 Lessons Learned • Parents are overwhelmed and frustrated therefore attrition is high • May need to provide additional strategies to help parents engage their child with the curriculum • HIPPY alone is not enough, programs need specialized consultation and case management to engage families with ASD • Focus on the strengths and positive abilities not the negatives or deficits • Access to the curriculum need to be individualized • Positive performance outcomes are related to structured parent/child engagement • Have high expectations and give hope to families that things will improve • Increased documentation and tracking for home visitors Questions? For more information contact: Mary Lindsey, Ph.D. State Director, Florida HIPPY T&TA Center 813-974-4858 [email protected] Brenda Brinson Program Manager, Hillsborough HIPPY 813-974-4909 [email protected] Karen Berkman, Ph.D. Executive Director, CARD USF 813-974-4033 [email protected] Shanica Meadows Lead Home Visitor, Hillsborough HIPPY 813-420-4782 [email protected]
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