STP aide-mémoire: Personalisation and Choice Publications Gateway Reference: 05372 1. Introduction Working alongside population based models of care, integrated personal commissioning (IPC), personal health budgets (PHBs) and meaningful patient choice enable patients to personalise their care to better meet their needs and preferences1. The NHS Choice Framework lays out the choices that should be available to patients, but people’s awareness of their legal rights to choice is low, and rollout of PHBs and IPC is at an early stage. A significant change is needed to truly empower patients from all backgrounds and unlock the benefits of choice, PHBs and IPC. STPs provide the opportunity to harness excellence where it exists within the footprint and accelerate wider adoption (e.g. where there are existing IPC sites, localities with high performance in PHBs, or where pioneer areas are preparing to test enhanced choice in maternity care). 2. Success in 2020 i. PHBs and integrated personal budgets, including NHS and social care funding, are available to everyone who could benefit (in line with Mandate requirements) • In each footprint at least 1-2 people per 1,000 of the population has a PHB or integrated personal budget incorporating NHS funding. PHBs should be in place: o to deliver NHS Continuing Healthcare and continuing care for children; o for people with high cost packages of support e.g. people with a learning disability; and o in specific areas where the model will deliver a positive impact e.g. in wheelchair services and end of life care. • People have the support they need to successfully manage their PHB, with choice over how it is used. ii. IPC is a mainstream model of care for people with highest health and care needs, planned and delivered with partners in local government and the voluntary sector • Core service components of the IPC model are in place for target cohorts in each locality, underpinned by contracting and payment mechanisms that enable personalised care. • Peer support and community capacity is harnessed and coordinated better with formal care services, to support self-care for the IPC cohort. • People with the highest needs have routine access to person-centred care and support planning, including integrated personal budgets that blend funding from health and social care. iii. Patients make meaningful choices about whether, where and how they receive their healthcare • Patients are able to say: o I have discussed with my GP/ healthcare professional different options and pros and cons including, where appropriate, whether to have treatment. o I was offered a choice of where to go for my care or tests, as appropriate. 1 IPC is a whole-system model to enable integrated, personalised care and support across the totality of health and social care for people with complex needs. PHBs focus on specific areas of care, for example NHS continuing healthcare, and are available to anyone that could benefit, regardless of whether they are in the IPC cohort or not. There are specific mandated duties relating to personal health budgets (The Care Act 2014: http://www.legislation.gov.uk/ukpga/2014/23/contents/enacted; Children and Families Act 2014: http://www.legislation.gov.uk/ukpga/2014/6/contents/enacted; NHS Responsibilities and Standing Rules (Amendment) regulations 2013: http://www.legislation.gov.uk/uksi/2013/2891/pdfs/uksi_20132891_en.pdf). IPC is currently a demonstrator programme and is expected to be rolled out across England by 2020-21. 1 o I was given an opportunity to choose a suitable alternative provider when I was going to wait longer than the maximum time specified in my legal rights. o Information was available and I was able to find it in a format that was accessible, helping me make a decision about my needs. o I was given sufficient time to consider what was right for me. 3. How are we going to get there? Planning Implementation i. PHBs and integrated personal budgets including NHS funding are available • Assess PHB baseline data in CCG IAF and benchmark across STP footprint, identifying groups who could benefit from an expanded PHB offer. • Develop robust financial plans for PHB rollout to reach at least 1-2 in 1,000 population per year by 2020. • Ensure alignment between PHB rollout and other national programmes, such as learning disabilities, special education needs disability reforms, mental health, self-care, IPC and vanguard sites. • Assess what support is needed locally to enable people to take up the offer of a PHB including role of the voluntary sector in providing this support. • Sign up to PHB national delivery support programme and expand PHB coverage in and beyond NHS Continuing Healthcare and continuing care for children. • Identify contracts where funding can be freed up, consider contract variations and signal in commissioning intentions. • Explore potential for PHBs in new service areas such as wheelchairs, end of life, and their potential impact on employment. • Invest in evidence-based approaches to improve people’s knowledge, skills and confidence for self-management e.g. care planning, education, health coaching, peer support, group based activities, asset based approaches and realising the value. ii. IPC is a mainstream model of care for people with highest health and care needs • Identify any IPC Demonstrator Sites in the footprint, establishing local process for keeping STP teams up-to-date with IPC developments. • Identify a locality that is well placed to join the IPC early adopter programme. • Assess multidisciplinary team capability to deliver personalised care and support planning and integrated personal budgets. • Ensure local alignment with vanguards in the footprint and teams leading PHB rollout. • Build in consideration of IPC / PHB to population based contracting to ensure compatibility. • Identify locally those with highest need who could benefit from IPC and begin work on linked datasets for health and social care for these cohorts; adopt core IPC service components emerging from the Demonstrator Programme. 2 iii. Patients make meaningful choices about whether, where and how they receive their healthcare • Complete self-assessment using the CCG choice planning and improvement guide (to be published shortly) to baseline local choice and identify areas for improvement • Embed choice in local commissioning policies and plans, including expansion into services which currently have no legal rights to choice but where patients would benefit, for example, end of life care. • Initiate local patient awareness and engagement campaigns to promote choices available to patients, drawing on the national awareness campaign and media materials for local adaptation. • Embed choice in protocols, referral and clinical pathways, and increase utilisation of the NHS e-Referral Service, to enable efficient and effective choice. • Commissioners and providers to ensure there is a range of accessible information available locally that supports patients to make meaningful choices. • Enable patients to choose about whether, and if so, where to have treatment by implementing shared decision making principles consistent with RightCare. • Inform and support patients to use their legal right to choose an alternative provider if they will not be seen and treated within maximum legal waiting times. • Implement processes, products and lessons emerging from Maternity Pioneers. 3
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