Comments on NDIA solutions for assistive technology NDS appreciates the opportunity to comment on the National Disability Insurance Agency (NDIA) discussion paper ‘Towards Solutions for Assistive Technology’. NDS strongly supports the objectives of the discussion paper to maximise participant choice and control, expand innovation and ensure sustainability around the use of technology. We also endorse the capacity building framework. However, we are disappointed that the discussion paper narrowly focuses on misguided strategies to reduce cost through wholesale prices. The paper proposes a managed approach (either by the NDIA or external organisation) to the sourcing and procurement of bulk assistive technology products, with an expert panel overseeing decisions about what products to buy. This option would not be appropriate for a great majority of assistive technology; it is at odds with the broader NDIS market design principles and inconsistent with ‘best practice’ research. Wholesale provision, through a managed tender process, has a place but should not be the main strategy for delivering sustainability. NDS would like to see the NDIA explore and test a broader market-based approach to assistive technology provision. Once properly tested in trial sites we will know what problems need fixing, whereas the current procurement proposals seem to be leaping to solutions for historic problems in non-NDIA funding regimes. The problem with current processes for accessing assistive technology, including in the NDIA trial sites where they use state equipment schemes, is that funding criteria and constraints prevent efficient markets from developing –reducing choice and timeliness of supply. The NDIA should, instead, make strategic investments that enhance existing technology markets so they become more inclusive, responsive and efficient. This can be achieved by making sure reliable advice and support for helping consumers make informed choices are available, collecting information about market activity and prices to inform package sizes; and enabling specialist and volunteer networks that provide adaptation, refurbishment and loan schemes. This submission builds a case for, and proposes steps towards, a more market-oriented approach to assistive technology consistent with the NDIS objectives. Tap into the ordinary yet constantly evolving technology markets The dynamic role technology plays in enhancing the lives of people with disability and in reducing long-term support costs is indisputable. We should also recognise that this happens in ordinary life too. Technology companies play a major role in constantly adapting and modifying offerings to better meet all of our needs and desires. By recognising the impact of technology in our lives, and the way markets and choice drive this for most people, we can look at better ways to include people with disability in this much wider market. Unfortunately governments have mostly failed to use ordinary markets or create disability funding regimes that allow a sufficiently personalised or innovative response to technological disability support options. As a result, people with disability’s life plans are National Disability Services: Submission on NDIA Solutions for Assistive Technology frustrated by administrative hurdles, waiting lists, nonsensical delays in authorising procurement, inadequate adjustments and many missed market opportunities1. These well-documented barriers preventing good use of general and disability-specific technology are imposed by overly bureaucratic and underfunded regimes. The NDIS provides the perfect opportunity to turn this around with its individualised funding completely changing market demand. It gives us an opportunity to explore the potential of the wider market that has proven to effectively offer innovation, choice and efficiency in technology to all people. We are very disappointed that the main proposals in the paper set up supply constraints rather than allowing the market to develop. Build from the evidence to test the market The NDIA must use a more evidence-based and evaluative approach. Good research is available on the practical challenges and opportunities with assistive technology and related markets,2 which emphasise the importance of consumer choice and considering what’s involved in every step of the pathway to accessible technology, such as adequate advice and support to inform good choices. We also urge the NDIA to take advantage of the ‘learn and build’ approach to the scheme implementation by carrying out market trials of the technology funding approaches. This should be done as soon as possible as part of an evaluative process. Make use of the value-add that comes from competing retailers Some of the costing assumptions in the paper have not considered the value of human services provided by assistive technology retailers. Assistive technology is not simply a product market, it involves significant human services as acknowledged in the proposed capacity building framework. Retailers provide a number of services, including information, advice, personalisation, trialing and fitting services. However, these services would be absent in a predominantly wholesale environment. Therefore some purported financial gains from a wholesale approach to purchasing will be lost through additional, less efficient, expenditure on information and advice provision through individual plans. This loss would add to efficiency losses in a market that is driven by government tender processes rather than consumer demand and need. Invest in increasing choice and control We commend the choice and flexibility in the proposed capacity building framework which recognises that individual interests, circumstances and capacity can all vary, in addition to the complexity of technological support options. However, we are concerned that there is no clarity in the paper about how essential and independent information 1 Layton, N. Wilson, E. Colgan, S. Moodie, M, Carter, R. 2010. The Equipping Inclusion Studies: Assistive Technology Use and Outcomes in Victoria. Burwood: School of Health and Social Development and Deakin Health Economics, Deakin University. A comprehensive European position paper on the delivery of effective assistive technology published in 2013 comprises more than a decade of research and policy review (http://www.atis4all.eu). This was 'translated' for Australia by Australian Rehabilitation & Assistive Technology Association (http://www.arata.org.au) 2 2 National Disability Services: Submission on NDIA Solutions for Assistive Technology and advice will be provided and funded, or how related expertise should be developed and sustained. It is also important to acknowledge that some technology will always require expert assistance regardless how expert the consumer. The evidence is clear that to ensure enough information, advice and decision support is available to ‘novice’ or ‘developing’ participants using assistive technology, we need to invest in specialist advisors and allied health professionals. Otherwise, these services will not be available where and when required. The NDIA funding and pricing approach must look to ensure sufficient clinical governance and supervision to prevent undersupply and loss of expertise. The NDS would like to see direct bulk purchasing explored for technological expert advice hubs that are widely accessible, consistent with the ‘Information, Linkages and Capacity Building’ (ILC) proposals recently released by the Government. This should enhance existing ‘independent living centres’ and other not-for profit and independent advice providers. This approach could proceed in the trial sites and be evaluated. Another avenue that should be explored is investment in remote communication technology and infrastructure to help improve staff supervision and direct service provision. Telecommunications, video conferencing, internet, video games or virtual worlds3 could all play a role in developing participant capacity and assisting with the ongoing use of technology. Communication technology is particularly useful for remote and rural regions but it could also be beneficial for using allied health professional staff in urban environments. The investment required for this infrastructure can be significant and the public benefits are widespread. This means it is best achieved through collaborative government initiatives between the NDIA, aged care, health and education which all have some similar needs. Ensure sustainability with clearer guidance for determining individual funding - not by constraining the market The paper recognises the diversity of assistive technology; from mass-produced products to complex and custom-made solutions. For much of this technology (though not all) a normal competitive consumer market should work well at producing the innovation required, including a diverse range of products, timely supply and competitive prices, such as wholesaling simple products to attract customers to their retail outlet. This is assuming the demand side issues have been addressed with capacity support and advice for decisions and individualised funding. However, we recognise that there must be a limit to funding. Similar to other support types, the amount of funding the NDIA makes available for technology must have defined boundaries informed by evidence about reasonable costs, investment outcomes and the market. NDS is surprised that options for determining the size of funding for technology, within individual packages, have not been explored in the paper. There are complex questions that need to be answered about pricing and provision in plans, including: What is reasonable and necessary? What up-front costs will pay off over the longer term? 3 Enaksa Garde, E and Bruce, W. 2013. Literature Review: Specialist Support at A distance, Scope, Practical Design Fund Project (NDIA) 3 National Disability Services: Submission on NDIA Solutions for Assistive Technology How much depreciation and maintenance should be built in? Can participants invest their own money to customise products, such as choosing a preferred colour? Developing guidelines to address these questions is a significant part of the task of ensuring sustainability for the NDIA using a market model as adopted for other supports. These matters should be addressed urgently. The existing market is already regulated by legislation covering consumer protection, therapeutic goods and imports and state-based funding rules. With the implementation of the NDIA, the market could benefit from additional surveillance of price and independent sign off processes for some more expensive prescribed technology (similar to the pharmaceutical market) in addition to NDIA registration requirements. Facilitate the growth of hire and refurbishment service options Some assistive technology needs can be effectively met using hire and refurbishment options. This is particularly useful for people whose function and requirements change rapidly. This may be due to the development of capacity over time (such as children), or the progression of a particular condition. The market can, and does deliver these options where possible, as many suppliers routinely recycle and reissue assistive technology through rental programs. There are also volunteer-based networks in place that facilitate reuse. However, the proposed tender, panel and wholesale approach may reduce the viability of some of these smaller services. This is a major concern as a vibrant and diverse market should include many niche providers and networks of equipment. Value and enhance existing networks and services NDS is disappointed by the lack of consideration of how to retain or grow very effective initiatives with strong infrastructures and networks in place. This includes, but is not limited to the volunteer-based ‘Technical Aid’ organisations4, the Victorian Communication Network and several specialised technology equipment libraries or loan scheme networks, such as those run by organisations which support people with MND and with blindness or low vison. These services have evolved over time in response to specific needs and have built significant social capital. The NDIA needs to make sure they remain viable or the sector will lose infrastructure and expertise around some assistive technology needs. This could create under-supply and drive up prices as well as reducing positive outcomes for people with disability. NDS would like to see bulk purchasing of information and advice from these services consistent with the ILC proposals, as well as a funding model that maintains the ability of these services to operate in the market place. This means not narrowing the scope for choice to a managed wholesale procurement approach. 4 Not-for-profit Technology Assisting Disability (TAD) organisations operate across Australia drawing on the qualified volunteers (e.g. professional engineers, architects, technicians, tradespeople, skilled handymen, etc.) in concert with occupational therapists, physiotherapists, and rehabilitation specialists. These remarkable services meet specific life-style equipment needs for people with disability through advice, design, construction and adaption of equipment otherwise commercially unavailable. 4 National Disability Services: Submission on NDIA Solutions for Assistive Technology Limit ‘panel’-informed and managed procurement The proposed approach to manage bulk purchasing of wholesale products informed by an expert panel can only efficiently apply to commonly used and generic products that do not benefit from human assistance or tailoring. As noted earlier there is a value-add in retail services for many assistive technologies that is not available in a wholesale environment, and which must be paid for in individuals’ plans if a wholesale approach is adopted too broadly. A panel-informed approach to procurement decisions will limit choice, personalisation and innovation which are essential for a vibrant market and especially the fast-evolving possibilities of technology. Some reports from the trial sites show that a lack of regard for the need to closely tailor some technology, with an over-emphasis on using generic products, has led to wasted efforts, costing more in the long run and delaying provision. The proposed tender process to determine suppliers coupled with the panel approach to determine products, with relatively tight prescription, can seriously impede innovation as evident in the tendering and prescriptive approach to purchasing and contracting Disability Employment Services. There is also a risk that by favoring big supply tenderers, some of the smaller local technology providers will find it hard to stay in business. This is a particular risk in rural regions where participants are likely to lose access to local technology providers. For these reasons NDS urges caution with adopting this procurement model and suggests that firstly a market approach should be tested and if problems are evident trials should be established comparing managed and market approaches. Evaluation of costs and outcomes would help clarify the best way to proceed. NDS suspects the efficiency and cost savings predicted in the discussion paper would not eventuate. We note that recent work comparing recommended retail prices across six OECD countries and Australia found that on average Australian assistive technology prices were 14% lower.5 Promote innovation to improve total system efficiency Achieving improved efficiency through innovation and investment in technology is not just about reducing the cost of technology: it must be seen in the context of overall support services. Often technology innovations can dramatically reduce the need for other support options over the shorter and longer term as well as improve outcomes. However, the ‘panel’ proposal may inadvertently restrict innovation, as a panel decision on what choices will be available for participants is at high risk of missing the full possibilities of technology. There is yet-to-be-invented technology which will dramatically improve support options and efficiency. It is inherently hard to illustrate this but an example on the horizon is software for instant Auslan interpreting (translation on a hand held device in both directions). A communication support of this nature would profoundly improve community access for Deaf participants, as well as significantly reducing demand for interpreters. Another example currently under development is the use of robotic technologies to undertake some personal care tasks. 5 Assistive Technology Suppliers Australasia (ATSA). 2014. Assistive Technology Pricing: Is it fair and reasonable? briefing and background: http://www.atsa.org.au 5 National Disability Services: Submission on NDIA Solutions for Assistive Technology The scope for innovation is very wide indeed. To fully embrace the opportunities we need a true market approach - one which can broaden not just the disability sector’s ideas of how to meet support needs, but also the wider community’s. Innovation may come from technology sectors or elsewhere and for that to happen these other sectors need to know about opportunities in the disability sector. The NDIA should play a role in facilitating this market by distributing information, rather than constraining it by preventing retail and other business responses. In addition, some targeted seed investment and partnerships could help create connections between developers and suppliers and which have regard for existing expertise. Cooperate across sectors on investment and innovation NDS has long called for improved consistency in the approaches to funding and accessing technology and equipment across allied sectors. Particularly, across the aged care and disability sectors where there is significant scope for improving equity of access to assistive technologies as well as reducing costs. However, the opportunity for better cooperation is not only about joint bulk procurement of some simple items. It is about joint investment, expertise and supply, and is particularly relevant for major infrastructural developments such as the National Broadband Network. Across Europe there are a range of telecare and telehealth services being explored in aged-care, health care, and to a lesser extent the disability sector. The NDIA could play an important role in promoting and evaluating this kind of innovation through cross-sector initiatives. February 2015 Contact: Dr Ken Baker Chief Executive National Disability Services Ph: 02 6283 3200 Mob: 0409 606 240 [email protected] National Disability Services is the peak industry body for non-government disability services. Its purpose is to promote and advance services for people with disability. Its Australia-wide membership includes more than 1000 non-government organisations, which support people with all forms of disability. Its members collectively provide the full range of disability services—from accommodation support, respite and therapy to community access and employment. NDS provides information and networking opportunities to its members and policy advice to State, Territory and Federal governments. 6
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