Information Therapy:a must, not
just a nice to have
2 June 2015
@MarkDuman
Topics
• Understanding what is meant by information for
patients
• Personalising the experience of information
provision
• Integrating information provision into
healthcare delivery
• The need for culture change to make
"information therapy“ a reality.
Information
Types
Types of information
1. Wellbeing & Lifestyle – diet, activity, etc
2. General Clinical – diagnosis, prognosis,
treatment, etc
3. Information to facilitate evidence-based
Patient Choice
4. Access/ Service – directions, waiting times,
support, benefits, quality
Government Portals
tinyurl.com/2msj82
Shared Decision Making
Enlarged Prostate
For the following questions, please mark your views on the scale
below each question. There are no correct (or incorrect) answers.
Q. How important is it to you to retain your ability to have erections?
A. 1
2
3
4
5
not important
very important
at all
Q. How important is it to you to avoid wearing pads to deal with leaking urine?
A. 1
2
3
4
5
not important
very important
at all
Q. How important is it to you to avoid problems with the bowel?
A. 1
2
3
4
5
not important
very important
at all
Self Management /
Structured Patient Education
Technology
Board Game
• Action Zone! is a board game about
epilepsy and the brain created for
children aged 5 years and above.
• It enables them to learn more
about epilepsy and to understand
that children with epilepsy can do
many of the things that other
children can do
• Players win tokens by answering
the questions correctly as they
move closer to the Brain. The
winner is the person with the most
tokens.
“People”
Key Points: Information as a Therapy
• Quality product(s)
• One size does not fit all – Tailor information
• Elicit behaviour change/ action
• Train staff it’s “Education”
• Consider Design
• Evaluate Impact
Making it
Personal
“We see things as we are, not as they are” *
Person
Patient
Condition
Treatment
‘X’
‘Professional/ System’
Person/ Society
‘Soft/ Social’
‘Hard/ Medical’
*Talmud Berachot 55b
Pharmako (φάρμακο)
Poison
[Image removed]
Medicine/
Drug
‘A Personalised Health Service’
Past Medical
History
Current Medication
Beyond Health
Ethnicity/
Communication
Preferences
Motivation
“A poison”
“A miracle
cure”
Health Literacy
Medicines Beliefs
Health Beliefs
Patient Activation
KPMG
‘Activated' Patients Lower Costs
Users
Individuals
www.kingsfund.org.uk/publications/supportingpeople-manage-their-health, May 2014
Integrating patient
information into
healthcare delivery
“Map of Medicine”
Information Prescriptions
Care Planning
Culture
Change
1. Clinicians
Despite concerted efforts to tackle
the “effectiveness of consultations
between patients and clinicians,”
the biggest problem is the
“reluctance of clinical staff to
provide active support for patient
engagement.”
RCGP, Sep 11
“Patients will need better information if they are going to improve their
lifestyle, manage their disease, and participate in complex decisions
about treatment.
Better health-literacy education in schools will help, as will betterwritten health materials and well-trained educators for patients.
But a great deal could be accomplished if doctors and other health
professionals took time, at the end of each consultation, to make
sure the patient had understood the key points discussed, and that
they felt free to ask questions.”
Taking health literacy seriously. The Lancet 2005; 366:95
26
2. Payors/ Purchasers
Information: first line Rx
www.pifonline.org.uk
3. Public - Increase Expectations
Health
System
Manager
Patients/ Public
Care Plan: Getting from A to…?
1 million patients in the UK 2013 Doctor-Patient Survey
64% of them said they were as “involved in healthcare as
they wanted to be”
But only 3% had a care plan
In summary…
Problem  Solution
Think EXPERIENCE, not process
Thank you