CULTURAL ASPECTS OF CARE OBJECTIVES Know and understand: • How culture influences health behavior and preferences about provision of health care • Principles of respectful communication with patients from a different cultural background • Questions to include in history-taking • Ways in which end-of-life care may need to be adapted Slide 2 TOPICS COVERED (1 of 3) • Cultural Competence • No Culture Is Monolithic • Addressing the Patient • Language and Literacy • Respectful Nonverbal Communication • Unspoken Challenging Medical Issues Slide 3 TOPICS COVERED (2 of 3) • History of Traumatic Experiences • Immigration Issues • Acculturation • Tradition and Health Beliefs • Attitudes toward Health Services • Culture-Specific Health Risks Slide 4 TOPICS COVERED (3 of 3) • Culture and Religion • Approaches to Decision Making • Disclosure and Consent • Gender Issues • End-of-Life Care • ETHNICS Mnemonic Slide 5 CULTURAL COMPETENCE • Not a form of “political correctness” • Most definitions emphasize a careful coordination of individual behavior, organizational policy, and system design to facilitate mutually respectful and effective cross-cultural interactions • Combines attitudes, knowledge base, acquired skills, and behavior • An approach, not a technique Slide 6 NO CULTURE IS MONOLITHIC • The cultural information in this presentation is accurately described in general • Beliefs, traditions, customs, and preferences of the individuals in a cultural group vary widely • Clinicians must never assume that any person’s cultural background dictates his or her health choices or behavior Slide 7 ADDRESSING THE PATIENT • Determine the patient’s preferred term for cultural identity and use it in conversation and in health records • Use the patient’s title (eg, Dr, Reverend, Mr, Mrs, Ms, Miss) and surname unless the patient requests a more casual form of address • Ask how to pronounce the patient’s name Slide 8 LANGUAGE AND LITERACY • What language does the patient feel most comfortable speaking? Will a medical interpreter be needed? • Does the patient read and write English? • If the patient is not literate, can someone assist at home with written instructions? Slide 9 Percent of adults 65 yr EDUCATION & LITERACY (1 of 2) 80 73 70 60 50 40 30 24 20 10 19 5 0 1965 2004 Completed high school Bachelor's degree EDUCATION & LITERACY (2 of 2) Despite gains in education level, older adults still rank below working-age adults: • Far lower education and literacy levels • Half as likely to have a personal computer and use the Internet • Lower average levels of health literacy RESPECTFUL NONVERBAL COMMUNICATION (1 of 2) • Hand gestures, facial expression, physical contact, and eye contact can hold different meanings for people from different cultural backgrounds • Watch for body language cues that appear to be significant to the patient • Be alert to making negative judgments about a patient based on cultural assumptions about the meaning of body language Slide 12 RESPECTFUL NONVERBAL COMMUNICATION (2 of 2) • Use conservative body language early in the clinical relationship or when in doubt Assume a calm demeanor Avoid expressive extremes such as very vigorous handshakes, a loud voice, excessive hand gestures, and impassive facial expression • Determine what distance seems to be the most comfortable for each patient Slide 13 HISTORY OF TRAUMATIC EXPERIENCES Include relevant questions in history-taking: • Is the patient a refugee or survivor of violence or genocide? • Are family members missing or dead? • Have the patient or family members been tortured? Slide 14 IMMIGRATION ISSUES Immigration status • Consider assuring each patient that information given will be kept in confidence, especially since patients may not have appropriate documents History of immigration or migration • The history of a group can affect attitudes and behaviors of many generations of its members • A person’s migration history often provides insight into the key life transitions informing his or her outlook Slide 15 ACCULTURATION (1 of 2) • A process in which members of one cultural group adopt the beliefs and behaviors of another group • May be evidenced by changes in language preference, attitudes and values, and/or ethnic identification • Can be an issue dividing families • May greatly affect a person’s health behavior and preferences about end-of-life care Slide 16 ACCULTURATION (2 of 2) • Ask how long the patient has lived in North America and whether he or she was born here • Remember that the degree to which a person is acculturated to Western customs and attitudes is the consequence of many factors, not just length of time since immigration • It can be useful to ask patients directly about their adherence to cultural traditions Slide 17 TRADITION AND HEALTH BELIEFS • Some non-Western paradigms about illness: Illnesses have spiritual causation Illnesses result from imbalance in essential physical components or bodily humors Illnesses are caused by a person’s actions in past lives • Ask about use of alternative remedies and rituals • Negotiate a common understanding of causation, diagnosis, and treatment Slide 18 ATTITUDES TOWARD NORTH AMERICAN HEALTH SERVICES Minority patients may be uncomfortable due to: Lack of familiarity with Western practices Dissatisfying previous encounters Belief that insensitivity or discrimination is inevitable for anyone in the cultural or ethnic group Having been stereotyped or treated insensitively or even unfairly by clinicians in the past Slide 19 UNSPOKEN CHALLENGING MEDICAL ISSUES • Lack of trust in health care providers and the health care system • Fear of medical research and experimentation • Fear of medications or their side effects • Unfamiliarity or discomfort with the Western biomedical belief system Slide 20 CULTURE-SPECIFIC HEALTH RISKS • Epidemiologic and medical research has identified numerous differences among ethnic and cultural populations with regard to specific health risks • Clinicians who treat many patients from a specific group should stay abreast of the latest findings in relevant areas Slide 21 INTERFACE BETWEEN CULTURE AND RELIGION • Impact of religion on culture and health behavior and decision making can be subtle and complex • Most patients prefer or accept clinicians asking about their spiritual beliefs and their impact on world view, health behavior, and decision making • Questions regarding religion and spirituality should be incorporated sensitively and early in the patient-physician relationship APPROACHES TO DECISION MAKING • In many non-Western cultures, decision making about health care is family-centered or community-centered • Autonomy principles allow competent persons to involve others in their health decisions or to cede those rights to a proxy decision maker • Ask patients if they would prefer to involve or defer to others about decision making Slide 23 DISCLOSURE AND CONSENT • Some cultures believe that patients should not be informed of a terminal diagnosis, as this may damage health or hasten death • It can be difficult to obtain informed consent from these patients • Early in the clinical relationship, explore each patient’s preferences regarding disclosure of serious findings, and reconfirm these wishes at intervals Slide 24 GENDER ISSUES • Cultural norms for men and women can influence their expectations about interaction with providers, and their health behavior, decision making, disclosure, and consent • Explore each patient’s decision making preferences and their attitudes toward their autonomy early in the clinical relationship, confirm these preferences at intervals, and follow the patient’s wishes whenever possible Slide 25 END-OF-LIFE DECISION MAKING AND CARE INTENSITY • Listen carefully to the patient’s goals and concerns and avoid making culture-based assumptions The assumption that “no one would want to live in that condition” or that “everyone would want treatment in this situation” is likely to be faulty • Strive to understand the overall approach to life and death, and as far as possible provide care congruent with that approach Slide 26 ATTITUDES TOWARD ADVANCE DIRECTIVES • Be sensitive to the possibility that some minority older persons will prefer to: Use verbal directives Dictate directives to family members or others Avoid discussing directives so as to observe proscriptions against talking about death • Allow patient to indicate the interventions they do want as well as those they do not want Slide 27 THE ETHNICS MNEMONIC • Practical interviewing tool to facilitate effective health interviews and care planning in crosscultural settings, described by Kobylarz in 2002 Kobylarz FA, Heath JM, Like RC. J Am Geriatr Soc. 2002;50:1582-1589. • Designed to be integrated into a 15-minute visit in multiple settings • ETHNICS: Explanation, Treatments, Healers, Negotiate, Intervene, Collaborate, Spirituality SUMMARY • Cultural competence is a nuanced understanding of the impact of culture on health care encounters • Culture influences health behavior and patient preferences about treatment • Clinicians should remain alert to differences among patients from a given culture • It is important to explore the patient’s attitudes about such issues as disclosure, consent, and decision making early in the clinical relationship Slide 29 CASE 1 (1 of 3) • An 81-year-old woman is brought to the office by her family because of increasing abdominal distension, nausea, and vomiting. She recently immigrated to the US from India after the death of her husband. • Thorough evaluation confirms a diagnosis of pancreatic cancer with liver metastases. The family believes she will not be able to tolerate this news because she has just lost her husband, and requests that the diagnosis be withheld from her. • She is anxious and wants to know what is wrong. Slide 30 CASE 1 (2 of 3) Which of the following is the most appropriate course of action? (A) Inform the patient of the diagnosis. (B) Tell the patient she has a minor illness that will soon resolve. (C) Meet with the patient and the family together to explore their concerns. (D) Seek advice from the legal department of the local hospital. Slide 31 CASE 1 (3 of 3) Which of the following is the most appropriate course of action? (A) Inform the patient of the diagnosis. (B) Tell the patient she has a minor illness that will soon resolve. (C) Meet with the patient and the family together to explore their concerns. (D) Seek advice from the legal department of the local hospital. Slide 32 QUESTION 2 (1 of 2) Which of the following is meant by culturally competent care? (A) Allocation of resources in proportion to the cultural composition of the community (B) Delivery of health services according to the cultural practices of the caregiver (C) Delivery of health services that acknowledges cultural diversity in the clinical setting (D) Characterizing patients based on their cultural backgrounds rather than their individual preferences Slide 33 QUESTION 2 (2 of 2) Which of the following is meant by culturally competent care? (A) Allocation of resources in proportion to the cultural composition of the community (B) Delivery of health services according to the cultural practices of the caregiver (C) Delivery of health services that acknowledges cultural diversity in the clinical setting (D) Characterizing patients based on their cultural backgrounds rather than their individual preferences Slide 34 QUESTION 3 (1 of 2) Which of the following is true about health literacy? (A) Health literacy is the degree to which a person can obtain, process, and understand information to make appropriate health decisions. (B) People with limited health literacy are more likely to ask questions about care during physician visits. (C) Health status, rate of hospitalization, and health care costs of people with limited health literacy are similar to those of people with adequate literacy. (D) In the United States, 12% of the population lacks health literacy. Slide 35 QUESTION 3 (2 of 2) Which of the following is true about health literacy? (A) Health literacy is the degree to which a person can obtain, process, and understand information to make appropriate health decisions. (B) People with limited health literacy are more likely to ask questions about care during physician visits. (C) Health status, rate of hospitalization, and health care costs of people with limited health literacy are similar to those of people with adequate literacy. (D) In the United States, 12% of the population lacks health literacy. Slide 36 ACKNOWLEDGMENTS Editor: Annette Medina-Walpole, MD GRS Chapter Author: Reva N. Adler, MD GRS Question Writer: Pushpendra Sharma, MD Medical Writers: Beverly A. Caley Faith Reidenbach Managing Editor: Andrea N. Sherman, MS Copyright © 2010 American Geriatrics Society Slide 37
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