Nurses & Palliative Care Your Role in Providing Better End-of-Life Patient Outcomes Why is this important? Because you’re all about to be real nurses, and not just playing one on TV… Why aren’t doctors talking to their patients about palliative care? Palliative care is – in a way – the acknowledgement of failure on the part of medicine. Are patients even interested in palliative care? A 2011 study in Taiwan tracked and surveyed 314 palliative patients and their physicians. They asked questions regarding two very basic endof-life issues: 1. Truth telling regarding the disease process. 2. The patient’s desire for supportive care. Huang, H-L., Cheng, S-Y., Yao, C-A., Hu, W-Y., Chen, C-Y., Chiu, T-Y. (2015). Truth telling and treatment strategies in end-of-life care in physician-led accountable care organizations: Discrepancies between patients’ preferences and physicians’ perceptions. Medicine, 94(16), e657. Are patients even interested in palliative care? 94% of patients wanted to be fully informed regarding their disease prognosis 98% of patients wanted to know the truth regarding their terminal status 80% of physicians were willing to tell the truth about the patient’s prognosis or terminal status 90% of patients wished to be given the option for supportive care instead of life-prolonging treatments, but only 16% of physicians offered these treatments or even considered them important. Huang, H-L., Cheng, S-Y., Yao, C-A., Hu, W-Y., Chen, C-Y., Chiu, T-Y. (2015). Truth telling and treatment strategies in end-of-life care in physician-led accountable care organizations: Discrepancies between patients’ preferences and physicians’ perceptions. Medicine, 94(16), e657. What is causing this disparity? Disparities in palliative care come down to deficiencies in medical education. The American Hospital Association’s Physician Leadership Forum harshly criticized their own education system, citing a lack of any education in palliative/end-of-life care1. Conversely, a core competency of independently practicing Nurse Practitioners includes “…anticipatory guidance, counseling, disease management, palliative, and end-of-life care”2. 1. Combes, J.R. & Arespacochaga, E. (2012). Lifelong learning physician competency development. American Hospital Association’s Physician Leadership Forum, Chicago, IL. 2. Thomas, A., Crabtree, M.K., Delaney, K.R., Dumas, M.A., Kleinpell, R., Logsdon, M.C., Marfell, J. & Nativio, D.G. (2014). Nurse practitioner core competencies content. The National Organization of Nurse Practitioner Faculties. Retrieved May 12, 2015, Retrieved from http://c.ymcdn.com/sites/nonpf.site-ym.com/resource/resmgr/Competencies/NPCoreCompsContentFinalNov20.pdf How are deficiencies in medical education affecting patients? In a 2002 Canadian study, 134 physicians were asked to rate their competency and their opinions on the importance of issues within the scope of palliative care: Pain Symptom control Bereavement Barnabe, C. & Kirk, P. (2002). A needs assessment for southern Manitoba physicians for palliative care education. Journal of Palliative Care, 18(3), 175-84. How are deficiencies in medical education affecting patients? In a 2014 American study, 280 medical interns, residents, fellows, attendings, and specialists in five New York hospitals responded to an anonymous survey regarding their approach to palliative care: The results suggested that these physicians largely felt uncomfortable and even fearful of having end-of-life discussions with their patients and families. Over 50% admitted to relegating the role to other providers! Litauska, A., et al. (2014). Do residents need end-of-life care training? Palliative & Supportive Care, 12(3), 195-201. How do Nurse Practitioners improve palliative patient outcomes? Higher self-care assessments and improved symptom management Higher quality of life scores Higher education scores (patients have a better understanding of their condition) Higher overall psycho-social behavioral outcomes Positive feelings towards discussions on Advanced Directives Shorter lengths of stay in the hospital (with higher profits for the hospital)* Fewer ED visits Lower patient costs
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