Mailed free to requesting homes in Douglas, Northbridge, Uxbridge, Linwood, Whitinsville and North Uxbridge Vol. VI, No. 26 ONLINE: Complimentary to homes by request www.StonebridgePress.com Friday, April 28, 2017 WCS student takes action to raise awareness BY RAYANNE COOMBS TRIBUNE CORRESPONDENT Kade McCann was a junior at the Whitinsville Christian School when he and his family first learned of his diagnosis of myotonic dystrophy, a genetic dis- ease that is a form of muscular dystrophy characterized by progressive muscle wasting and weakness. McCann, a member of the WCS track team explained, “I was first diagnosed on April 14th, 2016. I had been battling with the symptoms of the condition all my life. For example, severe gastrointestinal issues, speech problems, and muscle weakness and fatigue.” Turn To WCS page A14 Rayanne Coombs photo Walkers and runners raised over $7,500 for the Muscular Dystrophy Association. See more photos page 14. Award given to Trail Riders for ongoing stewardship rience, fostering shared stewardship of resources, promoting the agency’s mission, and supporting staff at a particular park or throughout the park system. Cary VandenAkker, the Douglas State Forest supervisor, nominated BSTRA. This is his presentation. The Bay State Trail Riders Association is a dedicated group of horseback riders who have been strong advocates for preserving and maintaining multi-use trails, which are horse friendly. Just since 1995, BSTRA has put over $210,000 worth into 13 Massachusetts state park trail projects, which DCR Chris Hookie photo ultimately benefit all trail users. They have accomplished Bay State Trail Riders accepted a stewardship award. this through memberships, Bay State Trail Riders our properties. This award is grant writing, donations and Association received the Shared given to a Friends group, local, putting in hundreds of hours of Stewardship award from the state or national organization, volunteer work. Department of Conservation or individual including Scouts Douglas State Forest, Upton and Recreation. and other youth volunteers, State Forest and the Southern Everyone has a role to play for their extraordinary service Turn To DCR page A16 in preserving and enhancing in enhancing the visitor expe- Cormier Woods needs your help BY MARY BEAUCHAMP, TRUSTEE Join us on Saturday, May 6 from 9 a.m. to 1 p.m. for a volunteer Work Day at Cormier Woods Reservation in Uxbridge and Mendon. This historic and beautiful 185-acre property was donated to The Trustees by D. James Cormier. It was opened to the public in the fall of 2008 and is the first Trustees property in the Blackstone Valley. Participants will help with clean-up and brush clearing of trails and parking areas. This annual work day will help us to begin spring maintenance of the trails after the long winter, however, ongoing stewardship is required year-round. Consider joining with a local team of like-minded people as a Trail Steward for Cormier Woods. Cormier Woods is abutted by Meadow Brook Woods in Mendon, an 87-acre property that includes nine-acre Inman Pond, lush woods, and rushing streams. The trail local system was recently expanded with connection from Cormier Woods to the Mendon Town Forest via a newly established trailhead on Asylum Street in Mendon. http://www.mendonma.gov/town-forest-committee Registration is required. Visit www.volunteer.thetTurn To CORMIER page A15 Courtesy photo Olivia LeBoeuf, Hannah Kasputis, Michael Valliere and Liam Walsh find Italy on the globe. See more photos page 10. Tiny students learn about the world SUTTON — Students at Country Montessori Preschool and Kindergarten of Sutton studied the countries of Madagascar and Italy during a weeklong study program. Kindergarten students learned many facts about Madagascar, a country in southeast Africa. They discovered Madagascar is an island that once was part of Africa by studying a three dimensional model of the country. The students learned that several species of animals like lemurs and fossa are found only in Madagascar. They learned that valuable Madagascar vanilla bean is derived from a beautiful orchid that blooms for one day. “The children played a djembe, an African drum, made percussion instrument shakers and created draw- ings of the native ring-tailed lemurs and chameleons,” explained teacher Anne Williams. Students were taught about the tropical country’s typography and climate. The children sampled foods the Madagascar people eat such as bananas, mangoes and rice. Preschoolers in Melissa Connors’, Erin Moore’s and Jen Lahue’s class learned to say several words in Italian, locate the country on the globe, listened to stories about ancient landmarks and created several arts and crafts projects during their study of Italy. They played with miniature Roman people on a foam mat illustration of the city of Rome displaying the Coliseum, Trevi Fountain and Roman Forum. Children created models Turn To STUDENTS page A10 14 • Friday, April 28, 2017 Blackstone Valley Tribune WCS continued from page A1 Suzette McCann, Kade’s mother said, “After the diagnosis we began a long process of DNA extraction at Boston Children’s Hospital.” According to the CDC, muscular dystrophies are a group of diseases caused by defects in a person’s genes. Over time, this muscle weakness decreases mobility and makes the tasks of daily living difficult. Different types of muscular dystrophy affect specific groups of muscles, have a specific age when signs and symptoms are first seen, vary in how severe they can be, and are caused by imperfections in different genes. Muscular dystrophy can run in the family, or a person might be the first one in their family to have the condition. McCann did not relish in self-pity over his diagnosis. “I spent many days in Boston Children’s Hospital with kids who had similar conditions, but were worse off than me and I felt that I wanted to help them but I didn’t know how. One day a representative from the Muscular Dystrophy Association met with me to explain the work they do and I realized this was how I could get involved.” He decided to take action by turning his senior year Capstone Project into a means of spreading awareness about the disease he, and so many others are facing. McCann’s Capstone Project proposal was to hold a muscle walk at WCS. In addition, he arranged for his peers at the school to hear a presentation by Dr. John Carulli, a senior executive from Biogen. Dr. Carulli spoke to WCS students about neuromuscular diseases and specifically, myotonic dystrophy DM1 and the research taking place to find therapies to help people like Kade. Brady Bajema, WCS Faculty member, is one of Kade’s mentors. “It has been inspiring to observe the journey Kade has taken in response to his diagnosis,” said Brady. “The time, energy, and thought Kade has put into this project is truly rooted in his deep desire to help build awareness for MD.” Kade has also been successful rallying support for this cause from many corporate sponsors throughout the greater Blackstone Valley. McCann admitted, “While I have been facing many challenges, the biggest would be having to learn to accept the changes my body is and will be going through.” He added “My family, friends, and community are my inspiration. Without the love and support of all these wonderful people in my life I wouldn’t be doing nearly as well as I am today. I definitely would not have Kade McCann, Chris Tulley, Mark Bekhet, Nick Visgatis, Andrew Schneider, Austin Orentlich Melissa Nydam and Ryder Nydam warming up on the WCS track been able to pull of my Capstone Project without their help.” McCann’s Muscle Walk included over 200 participants and volunteers, and raised over $8,000 for the Muscular Dystrophy Association. McCann said, “There were a lot of challenges to organizing the event, but the most difficult was publicizing it outside of my immediate community.” He added, “I was very pleased with how everything turned out. The whole event was amazing and went really well. I would have to say my favorite moment was when I saw people beginning to arrive and I realized how many people were going to participate.” When asked what advice he would give to a young person who may be faced with hearing a diagnosis of MD, McCann said, “First learn as much as you can about your condition and treatment options. Second if there is an organization that provides support like the MDA, for example, reach out to them because it is better to go through adversity with a community. And, lastly comma, don’t give up keep pushing yourself to be the best version of yourself don’t let your disease define you or take anything away from you. Every storm runs out of rain.” He added “My faith, my friends, and my family. The support I receive from all of them is what has helped me every day to overcome whatever challenges my disease presents.” The Northbridge Fire Department helped raise funds through their annual Boot Drive. Pictured are Lieutenant David Holmes and Firefighter Cory Flagg. Volunteers Sonia Zeyl director of enrollment at WCS, Julie Kaminski, Jakki Cloutier, and Adelaide Dykstra Suzette McCann and Dr. John Carulli WCS High School Principal, Chris VanderBaan and Kade McCann “Every Town Deserves a Good Local Newspaper” www.Stonebridgepress.com
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