Service User Member Involvement Team – SUMIT Seeing Better Together Minutes: Wednesday 28 January 2015 1. Welcome and apologies Present: Catherine Norcliffe (CN Chair), Stella Hodgson (SH), Shamaila Kauser (SK), Sheila Long (SL), Matthew Galtress (MG) and Julie Scarle (JS staff rep & Minutes). Apologies: Paul Baskcomb (PB), Neana Lawson (NL NFB), Paul Smith (PS) and Kay Dear (KD) 2. Chair for next meeting SH, JS to take minutes. 3. Minutes from November meeting The minutes were approved. Action: JS to publish Minutes on website and place on notice board. 4. Matters arising: a) SUMIT membership: Welcome to Matthew Galtress attending his first meeting. It has been suggested that Jay Roe may be interested in joining SUMIT. If Jay were interested in joining, her membership would bring the committee up to 11 members, which was its full capacity. The committee then discussed what should be done about SUMIT members who failed to attend on a regular basis. It was agreed: until such time as the committee reached 11 members and people who failed to attend regularly were blocking others from joining, to take no action, but to keep the situation under review. Action: SUMIT asked JS to speak to Jay Roe and see if she would be interested in joining the committee on a trial basis. b) Drop in/e-mails and suggestion box Spam mail on SUMIT email and the suggestion box was empty. 5. Courtesy calls JS discussed the current My Sight Notts survey, which was sent to everyone on the database in early January. She explained that the charity planned to actively call service users (especially those in the north of the county) to offer support to complete the survey over the phone. JS explained that the survey contained 21 questions and was also available online through SurveyMonkey. She asked if SUMIT members would like to get involved in the telephone surveys. Some committee members felt such a long survey would be quite challenging for them to complete with service users over the telephone. CN said she would like to get involved and asked JS to approach PS to see if he would be interested in partnering her. SK said she would check out the accessibility of the survey online and get back to her. It was agreed not to set up any new courtesy call sessions during the period of the telephone survey as this would be counter-productive and possibly confusing for service users. SUMIT asked to be kept updated with the survey findings and would keep courtesy calls under review and discuss once the My Sight Notts survey was complete. 6. Raising the profile of SUMIT SUMIT contributed an article to the magazine, asking for people to come forward and join SUMIT. JS observed that SUMIT was mentioned in three separate articles in the latest magazine. JS also passed on an observation from Lisa Jones (former SUMIT member, now a Trustee) about the SUMIT leaflet, which was a little out of date. SUMIT was also represented at the recent Christmas Fair and committee members expressed interest in attending future My Sight Notts events. Action: JS to circulate the SUMIT leaflet for discussion at the next meeting with a view to an update and re-draft. Action: JS to speak to Sarah and obtain a list of any equipment fairs or other events taking place, which SUMIT might like to attend. 7. Open Day/AGM The AGM event summary report has been drafted by JS and would be sent to the Trust Board and to the management team. It was agreed to review the date and subject of the next event at the July meeting and to begin planning for another service user discussion forum as part of the next AGM nearer to the time, possibly drawing up plans in August. 8. Membership scheme JS apologised for not sending Lisa Jones’s re-draft of the membership document for final comments. She explained that this was due to her sickness absence during the whole of December. Action: JS to circulate revised membership document with the minutes for final approval at the Feb meeting. 9. Services Martha Highton (MH), My Sight Nottinghamshire’s My Guide and Volunteer Coordinator attended the SUMIT meeting to talk about a potential new service she is hoping to develop. MH explained that the potential new service is a volunteer led peer-to-peer support group. She explained that she had the support of a visually impaired trainee counsellor, who had agreed to facilitate the proposed new group, which would be hosted at Ortzen Street and supported by Martha. Martha explained that she and her volunteer were also taking their proposal (in the form of a project plan) to the Services Subcommittee of the Trust Board for consideration and discussion. She suggested that a copy of the project plan could be circulated to SUMIT members for their comments. MG asked if the proposed group was replicating the work of the Thursday Social Group and MH said that the proposed group would be quite different. She said that the group would be facilitated by a trained counsellor and the primary objective was for people to be able to talk about sight loss, how they were coping with it and share ideas and experiences in a mutually supportive environment. This was a very different offering to the Thursday Social Group, which was primarily an activity based social gathering, rather than a sight loss peer support group. MH explained that subject to approval from the Services Subcommittee, she hoped to launch the new group in April. She explained that it should be relatively easy to get off the ground because she had a skilled volunteer facilitator, she was prepared to volunteer her time for free if required and the meeting venue and speakers would not involve a direct cost to the charity. SUMIT were supportive of the proposal and said that their courtesy calls would support the need for some kind of peer support group. CN asked where the referrals would come from and MH explained that initially the group would be made up of people known to My Sight Notts staff who had expressed the need for peer support, If the group was successful, MH hoped to recruit more counselling volunteers – possibly through Action for Blind People’s network of counsellors – and the promote the group to the wider VI community. SH asked if the group would only be open to people newly diagnosed with sight loss and MH said that she hoped the members of the group would represent a broad range of people at different stages in their sight loss journey. If everyone was newly diagnosed, it would be less likely group members could pass on their positive experiences of overcoming challenges, so to work effectively the group needed to be representative. SL asked if the group would be open to carers and family members and MH said that it would. DB said this might prevent some people from talking about how they were feeling. MH said the proposed new group was a pilot project and these sorts of issues would be ironed out as the group progressed. MH explained that a volunteer driver had been recruited to support people to get to the group and in her view the resources were in place to launch the new service is a trial pilot project, subject to approval from the Services Sub-committee and the feedback of SUMIT. My Sight Notts Trustee, Sue Bish (SB) joined the meeting and SH explained that SUMIT had been hearing about a proposed new peer-to-peer support group. She explained that as everything seemed to be in place and SUMIT’s courtesy call feedback suggested there was a need for peer support that SUMIT were in agreement with MH’s proposal. SH also asked SB if there were any developments on a proposed new shopping service, which she had brought to SUMIT some months ago and which was being considered for viability.JS confirmed that Emma Cruickshank was looking into the viability of a proposed new shopping service and SB said she believed there was a need for support with shopping and that EC might take a look at a successful shopping service operated by the Warwickshire Association for the Blind. SUMIT asked to be kept up to date with decisions about both a peerto-peer support service and a shopping service. Action: JS to circulate MH’s project plan. 10. Any other business a) SB introduced herself and asked SUMIT for their views on the charity’s plans to move from Ortzen Street. SUMIT explained that Michael Conroy had attended the SUMIT meeting in November to discuss the proposals with SUMIT. SUMIT agreed that it was in agreement with the need to move from Ortzen Street but the success of the move would be dependent on where the charity would relocate to. DB suggested that My Sight Notts should consider the old vacant fire station on North Church St as it offered a city centre location and car parking. JS said that the choice of a new base for the charity would need to provide costeffective as well as accessible accommodation and be available to rent at such a time as a tenant or buyer was found for Ortzen Street. SUMIT members thought it was very important that they should be consulted on the proposed new site before a final decision to move was made. b) Guest for next meeting. SUMIT asked if someone from My Sight Notts could attend and provide an update on the progress of the survey. c) JS said that My Sight Notts was setting up some ‘handling difficult calls’ training in March. The training would include staff and be provided by a trained counsellor. She asked if SUMIT would be interested in attending and CN, DB, SL, MG said that they would like more details and would probably be interested if the date and time were convenient. JS also said that some training courses were available through Ingues to people volunteering for eight hours or more a week, which was quite a lot of hours and more than most SUMIT members were currently required to do. CN said she would be interested and could potentially increase her volunteer hours for My Sight Notts. JS was asked to circulate the list of courses. Action: JS to circulate a list of training courses and dates for SUMIT members to consider. 11. Next meeting February 25 9:30am-12:30pm March 25 1-3pm April 29 4-6pm
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