Data Analysis of LGBT Veteran relationship quality in a study of family-supported PTSD treatment: Research challenges and implications for clinical practice Military Mental Health Initiative – 3rd Annual Spring Conference 133rd Airlift Wing, St. Paul, MN KIMBERLY STEWART, MA CENTER FOR CHRONIC DISEASE OUTCOMES RESEARCH (CCDOR) MINNEAPOLIS VA HEALTH CARE SYSTEM LAURA MEIS, PHD CENTER FOR CHRONIC DISEASE OUTCOMES RESEARCH (CCDOR) MINNEAPOLIS VA HEALTH CARE SYSTEM UNIVERSITY OF MINNESOTA, DEPARTMENT OF MEDICINE ACKNOWLEDGEMENTS MINNEAPOLIS PHOENIX Ann Bangerter Lori Burmeister Eric Baltutis Karen Kattar Emily Hagel Campbell Rebecca Sanback Andrea Cutting Kimberly Henriksen Christopher Erbes Emily Erickson PALO ALTO Siamak Noorbaloochi Afsoon Eftekhari Grace Polusny Lee Kravetz Melissa Polusny Michele Spoont Craig Rosen Tina Velasquez Numerous other volunteers… CHARLESTON Peter Tuerk Martina Radic US DEPARTMENT OF DEFENSE W81XWH-12-1-0619_Basic Award Log# PT110176 DEPARTMENT OF VETERANS AFFAIRS RRP12-229 HSR&D CDA 10-035 Work supported with CCDOR resources and use of facilities at the Minneapolis VAHCS Disclaimer: Findings and conclusions in this document are those of the authors and do not represent the views of the Department of Veterans Affairs or the United States government. No investigators have affiliations or financial involvement that conflict with material presented. WORKSHOP OBJECTIVES •Provide an overview of Project HomeFront •Review relevant literature •Discuss analysis of LGBT sample •Discuss implications for research & practice STUDY BACKGROUND • Trauma-focused psychotherapies have a larger and stronger evidence base than any other psychological treatment for PTSD (IOM, 2007) • Keeping Veterans engaged in these treatments can be difficult: 1 in 3 will drop out (Chard, 2010; Kehle-Forbes, 2015; Schnurr, 2007; Suris, 2013) FAMILIES PROVIDE A NATURAL RESOURCE • Most behavioral change theories consider social environments, yet social influences are under-investigated adherence predictors (Meis, 2010; Sayer, 2009; Spoont, 2014) • When family and friends encourage Veterans with PTSD to seek help, the odds of initiating mental health care increase by 50% (Spoont, 2014) • DoD, VA, NIMH, APA, IOM, and Congressional legislation have all called for routine family involvement in Veterans’ PTSD care • No evidence-based method for formally involving families in PE/CPT FAMILIES PROVIDE A NATURAL RESOURCE – CONT’D • LONG TERM OBJECTIVE: • Build an adherence intervention that mobilizes Veterans’ families to help Veterans get the most out of treatment • SHORT TERM OBJECTIVE: • Identify when and how to formally include family members in Prolonged Exposure (PE) and Cognitive Processing Therapy (CPT) RESEARCH AIMS 1. Determine if family factors predict adherence 2. Evaluate a family-systems model of predictors of treatment adherence 3. Obtain an in-depth understanding of the experiences of patients who adhere less to treatment Quality of Relationship 1) Relationship Distress 2) Social Support 3) Burden Greater Treatment Adherence DESIGN AND METHODOLOGY • Longitudinal, observational study of former service members naturally receiving PE/CPT across four VA hospitals • QUANTITATIVE: • Mailed surveys at treatment initiation (Time 1) and termination (Time 2) of Veterans and a nominated support person • QUALITATIVE: • Semi-structured, open-ended, interviews with • Veterans with poor adherence • Their nominated support persons • Their PE/CPT providers • To identify unmeasured factors influencing Veterans with poor adherence and the role of support persons in their treatment MIXED METHOD EMBEDDED DESIGN TIME 1 SURVEYS TIME 2 SURVEYS Support Person Veteran Veteran INTERVIEWS Support Person Therapist Veteran PE/CPT Initiation Support Person Termination VA HOSPITAL RECORDS Veteran QUANTITATIVE QUALITATIVE CASE VIGNETTE #1 - VERN CASE VIGNETTE #2 - SHIRLEY APPROACHING THE ANALYSIS • Sexual minority Veterans have unique mental health characteristics (Cochran et al, 2013) • Life after Don’t Ask, Don’t Tell (DADT) (Goldbach & Castro, 2016) • Minority stress model (Meyer, 2003) • Application to gender minorities (Hendricks & Testa, 2012) • Systemic application at the dyad level (Rostosky & Riggle, 2017) UNIQUE FACTORS REGARDING LGBT VETERANS • Don’t Ask, Don’t Tell (DADT) was not repealed until September 20, 2011; this repeal does not include transgender persons Created a culture of concealment Mistrust of providers • Added costs of seeking mental health services outside the VA, combined with a distrust of providers, are factors for clinicians to consider when working with LGBT Veterans with PTSD and their loved ones THEORETICAL ORIENTATION – MINORITY STRESS MODEL • New advancements of the minority stress model (Hendricks & Testa, 2012; Rostosky & Riggle, 2017) • LGBT civilians face societal persecution and chronic victimization, which leads to significant distress. (Goldbach & Castro, 2016) • LGB Veterans are more likely to screen positive for PTSD, depression, and alcohol use than non-LGB Veterans (Cochran et al, 2013) • Concealment of sexual identity has been linked to higher rates of depression and PTSD (Cochran et al, 2013) RESEARCH QUESTION • Research question: Does self-identification as LGBT negatively influence Veteran family involvement, relationship quality, and/or adherence to PTSD treatment? • Independent variable: Veteran self-identification as a LGBT (sort of…more on that in a minute!) • Dependent variables: (1) SP nomination rates of LGBT Veterans; (2) Responses to measures of relationship quality; and, (3) LGBT Veteran adherence to PTSD treatment in our study, relative to non-LGBT Veteran adherence LGBT SAMPLE WITHIN HOMEFRONT • TOTAL (N = 430) • LGBT (N = 29) Non-LGBT = 93.7 LGBT = 6.3 SUMMING UP THE DATA • We ran basic correlations followed by a chi-square analysis on potentially significant variables to analyze the relationship between them • For the LGBT subset, significance was found on only one item related to relationship quality: • 69.3% of non-LGBT Veterans named their significant other as the person with whom they are closest, only 50% of the LGBT sample reported the same (𝒙2 = 4.5, p < .05) • While this single finding is not enough to publish, it is important to consider POTENTIAL IMPLICATIONS • Possible reasons for LGBT Vets not reporting their significant other as the closest person in their lives: • Internalized homophobia • Minority stress – external pressures compound negative mental health outcomes and create distance in relationship • Queer kinship networks – LGBT people often create strong social groups born out of rejection from family, community, etc. CONSIDERATIONS FOR RESEARCH • Measure items are categorical in nature, whereas the LGBT population relates more fluidly to some items—identity does not fit into a category. • HomeFront’s sample of LGBT individuals changed after controlling for both gender and sexuality (n=29 to n=28). • The LGBT acronym itself is notoriously problematic • Methodology needs to be addressed, so we can better understand the differences & similarities of minority populations compared to the majority, and so we can properly address intersecting identities CONSIDERATIONS FOR CLINICAL PRACTICE For the LGBT Veteran with PTSD: EBTs are important, and they work Don’t assume special accommodations need to be made Exploration of supportive others For the family: Consider burden EBTs also exist for families (CBCT for PTSD (Monson, 2012) - Consists of three phases, and a total of 15 sessions) Help is on the way! Important dyadic research is ongoing at the VA CONCLUSIONS • Veterans are more likely to complete a trauma focused treatment for PTSD when they: Are encouraged to face things that make them anxious or uncomfortable Believe their closest someone finds the treatment credible Talk to others about treatment • LGBT Veterans face unique individual and relational factors which make all of the above indicators of PTSD treatment adherence less likely QUESTIONS MIXED METHOD EMBEDDED DESIGN TIME 1 SURVEYS Veteran N = 548 (61.0%) TIME 2 SURVEYS Support Person N = 298 (67.1% Nominated) Veteran N = 352 (65.9%) INTERVIEWS Support Person N = 230 (79.1%) Veteran N = 33 (82.1%) PE/CPT Initiation VA HOSPITAL RECORDS Veteran N = 548 Therapist N = 32 Termination Support Person N = 21 PROJECT HOMEFRONT MEASURES • Homework Compliance Items • The Credibility/Expectancy Questionnaire • The New General Self-Efficacy Scale, adapted to be specific to PTSD treatment adherence. • University of Rhode Island Change Assessment—Trauma scale • The Perceived Stigma and Barriers to Care for Psychological Problems • Stressors and Obstacles that Compete with Treatment scale from the Barriers to Treatment • • • • • • • • • Participation Scale, adapted for adults Working Alliance Inventory – Short Form Subjective Norms scale of the Adherence Determinants Questionnaire Avoidance-coping strategies of the Coping Response Inventory. The Hostility Scale from the Buss-Perry Aggression Questionnaire, adapted to refer specifically to the hostility towards the veteran Family Attitude Scale Family Relationship Index from the Family Environment Scale Tangible Support Scale of the Interpersonal Support Evaluation List Emotional Support scale from the Multidimensional Scale of Perceived Social Support PTSD Checklist
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