The case for play The importance of play for children who are deafblind and have complex needs 1 Sense is a national charity supporting and campaigning for people who are deafblind and those with sensory impairments. 2 Making the case for play Every day our specialist Children and Family Support Workers use pla y to engage with children who are deafblind and hav e complex needs. Play is a vital part of a child’s dev elopment – it helps them to learn, to understand and to grow. Being ima ginative and creative with play is particularly important for childre n with sensory impairments. It is not about specialist play; it is about making all types of play accessible and sup porting children to interact. While we understand how import ant play is, we also know that it’s not easy for families to recognise the best way to play with their child or how to find the right play settings. Many families often ask us for sup port with play. Our Children and Fam ily Support Workers are able to work with fam ilies to develop play skills and sha re ideas about accessible activities. As children get older, access to play continues to feature in our work – this is because young peo ple do not always have access to the support they need to play in their community. Deafblind Awareness Week 2015 (starting 22 June) marks the beginn ing of a year-long Sense campaign that will investiga te the barriers to play faced by dis abled children, as well as what we can do to break down those barriers. This report ma kes a start by examining the specific challenges encountered by the children and fam ilies we support. In September, we will launch an inq uiry into play and will ask and sup port families, practitioners and others in the cha rity sector to share their experience s and expertise. I hope you will join us in this import ant campaign – together we can ma ke the case for play. Gillian Morbey OBE Chief Executive, Sense and Sense International 3 Why play? Play is such a natural part of childhood that many of us take it for granted. But play is fundamentally important for every child. It is important first and foremost because it is fun. Play is joyful and gives children freedom to pretend, create and explore. It is such an essential contributor to a child’s wellbeing that it is recognised as a right by the United Nations and the UK.i Play also helps to promote children’s development, both educationally and socially. Through play, children learn how to express emotion, engage with others and feel a sense of belonging. It also fosters children’s imagination and independence. ii Why is play more difficult for children who are deafblind and for those with complex disabilities? When we talk about children who are deafblind we mean: •Children who have difficulties with sight and hearing •Children who have medical conditions that are likely to cause problems with sight and hearing as they grow older (for example, Usher syndrome). Children may: •Not be able to use more than one sense at a time •Be slow in responding to things they have seen, heard, touched or smelled •Be ‘tactile sensitive’ – unwilling to touch or be touched •Take longer to develop skills using vision, hearing or other senses •Have changing levels of sight and/or hearing – they may see an object one day, but not the next. This is highly confusing and frustrating, and can lead others to assume that they can see or hear more than they can. All children play, but children who are deafblind or have complex disabilities play in different ways to other children. They also reach key development milestones later than children who are not disabled. There are several reasons for this, including: Sensory impairments affect a child’s ability to access information or learn by watching the world around them. This lack of information makes it harder for children who are deafblind to engage with other people, including their families. A key development milestone for all children is establishing the ability to share a common focus on something (people, objects, a concept, an event) with someone else.1 iii It is not uncommon for families to find it hard to engage in this way with their child. Because of this, some parents tell us that they did not know how to use play to establish a bond with their child in their early years. Many children who are deafblind will also have a range of complex needs, including learning and physical disabilities (for instance, poor balance or limited movement) and medical needs. 1 4 This is known as ‘joint attention’. Some of these children may find it harder to make friends. Without being able to observe others, children can struggle to understand what is appropriate and how their actions – good and bad – affect their peers. Difficulties with communication and not being able to see when other children attempt to initiate play can be further barriers to children making friends and playing with others.iv, v A consequence of these various factors is that children are more likely to play on their own or with adults. vi The availability of suitable play groups and play spaces for children who are deafblind. Some families feel strongly that their child does best in groups and settings specifically for disabled children, either because their child has medical needs or the parent feels that other parents may not understand their situation.viii Others prefer for their child to take part in mainstream activities.ix Unfortunately, families can’t make the choice that is right for their child if the appropriate groups or services are not available in their community. Sensory impairments can impact on the way in which children play. Children can struggle to engage in symbolic play, or pretend play (i.e., where a block ‘becomes’ a car that the child drives around on the floor). Their attempts to initiate symbolic play may also be missed if their movements reflect their different experiences of the world. Delays in developing their concept of ‘object permanence’2 and language vii may also affect this. The presence of play groups and activities does not guarantee opportunities will be suitable for a particular child, however. Though a group leader of a mainstream activity might welcome a child, they might not know how to engage with them.x This can put parents off bringing their child to that group again. Though the barriers are numerous and sometimes complex, children want to play. Play does as much, if not more, to support their development as it does for nondisabled children. Supporting families with play activities is the most common focus of our early years interventions. The five families’ stories in this report demonstrate the challenges that children and their families experience in accessing play. They also show the many benefits of play and highlight the kinds of support families need. 2 ‘ Object permanence’ is the process of understanding that objects continue to exist even when they cannot be observed. 5 Abbie: Experimenting and exploring to find play that works Abbie Grace is five years old and has profound hearing loss and significant visual impairment. She has multiple learning difficulties, a tracheostomy to help her breathe, and she can’t walk or sit up independently. Abbie’s mum: ‘When Abbie was young she was tactile sensitive and because she didn’t see or understand the smiles, looks and speech that others might respond to, she’d withdraw when you touched her. Initially Abbie showed little interest in anything. Emotional and developmental support came from Sense. Our Children and Family Support Worker came to our house with a bag full of various things. She tried different toys, noises and colours to see what would stimulate and interest Abbie. We discovered that anything with flashing lights would gain her attention. So initially it was visual. We created a sensory tent for her and filled it with colourful lights, laser toys and fibre optics, and found that when we put Abbie into the tent she became very relaxed and contented. 6 Over time we’ve explored different objects with Abbie to stimulate her senses. One particular item that she really responded positively to is silver paper – the kind you get wrapped in after a marathon. I’d place it over her head and wave and crunch it up in front of her and she’d giggle. At first, we would have to place it in her space and play with it for her. Over the last few months, though, we’ve started to see her playing with it by herself. She will roll towards the shiny paper, grab it, place it over her head and play peek-a-boo. It’s wonderful to see. Every time we see our support worker she’ll introduce new ideas or give us new things to try to help us to share different experiences with Abbie, and support her sensory development. We now notice that Abbie will play independently. She’s touching toys she never would have shown any interest in before and is even exploring them with her hands and her mouth. We needed a specialist to support and guide us and this is what our support worker did. She has shown us how we can encourage and interact with Abbie in a beneficial way that is also fun, interesting and enjoyable for us all.’ Context each other. Abbie and her mum needed help to find out how to play with Abbie might Their support worker was able to make suggestions about what dence she like and, crucially, give Abbie’s mum the inspiration and confi needed to experiment. activities, and it Abbie was sensitive to touch and overwhelmed by ordinary ally so that was therefore important to introduce tactile experiences gradu example of an Abbie was ready to experience them. The sensory tent is one helps Abbie and environment that stimulates different sensory experiences ases creative to focus – it provides her with relaxation and enjoyment, incre sensory input and improves her communication and mobility. Benefits of play: that can •Sensory spaces provide a relaxing play environment, one ts. Play helps encourage children to share a common focus with their paren Abbie ‘tune in’ to and bond with her mum. – using touch, •Early support to help families learn how to play together help a parent vibrations, sound and visuals (depending on the child) – can to better establish a connection with their child, and understand how respond to their needs. s. • Turn-taking games are fun and help to stimulate the sense Recommendations: support from •All children and their families should have early access to ention through specialist workers. Local authorities should make early interv play a funding priority. e on how to play •Parents should have better access to information and advic . Our top tips with their child, including how to make their own toys at home can be found in on page 19. 7 Ernie: Learning and growing through play Ernie and his twin brother, Ted, are three. Ernie was born with Down’s syndrome and sight and hearing impairments. Ernie also has weak muscles, as a result of his Down’s syndrome. Ernie’s mum, Helen: ‘Ernie’s quite an entertainer. He loves drawing, arts and crafts, and any sensory play, like shaving foam, bubbles and things like that. Ted is the same; they’ve got quite similar interests – though Ted is a bit more rough and tumble! Ernie goes to nursery with Ted. They’ve got a really nice Special Educational Needs CoOrdinator worker, and the nursery is fantastic. Ernie loves it there. At nursery Ernie’s in a room with three to four year olds and they don’t think anything of him. I’m sure Ernie doesn’t think anything differently of them. He does have one-to-one sessions at nursery for areas such as fine motor skills, but the rest of the time is spent joining in and having fun – that’s what it’s all about at that age, isn’t it? Learning through play and keeping things interesting and motivating for him. Ernie started to learn how to sign from a Sense Children and Family Support Worker. He [Graham] was fun and got down onto Ernie’s level. The boys were at Sense’s Woodside 8 Family Centre in Bristol where they have a bubble tube. The support worker was using signs to describe the bubbles and you could tell Ernie was really receptive to it. Ernie likes copying things so he just loved it. Ernie has reached a few milestones at Woodside. He stood for the first time when we were doing circle time. Sometimes during circle time, if a child’s achieved something, we do a little show and tell. Ernie was sat in the middle of the circle on this particular day and stood up and it was really emotional. Some of the other mums were welling up! That’s the sort of thing we do there, celebrate new achievements, and that was one of his.’ Helen Potter, Sense Children and Family Support Worker: ‘When I first met the boys, Ted was chatting away, while Ernie would point at everything and make sounds – trying to be understood. Ernie’s weak muscles make it very hard for him to shape his mouth into words. And when he began to learn to sign, he didn’t have enough strength or coordination. I got Ernie pushing his fingers into Plasticine, pouring glitter over the tables and finger painting. I’m sure you can picture how the room looked – colourful mayhem! But during each activity I made sure Ernie was exercising the muscles he needed to sign. Ernie happily sat at messy play for hours, and with each splodge and splat he made, his hands became stronger and stronger.’ Context At Sense’s Woodsid e Family Centre, staf f created a supportiv environment and id e entified the best w ays to interest Erni his communication e in de veloping skills: bubbles and messy play. With th made significant pr is support, Ernie ogress. Messy play helps to stimulate Ernie’s cu riosity, and provides for him to explore an opportunities d learn. It encourag es a positive approa no ‘right way’ to do ch as there is messy play. It also helps to develop co problem solving sk ncentration and ills. The tactile expe rience gives Ernie th variety of textures, e experience of a stimulating his sens e of touch. Ernie’s mum identifi ed the supportive en vironment at Woods something that ha ide as s encouraged Ernie’ s development. Mak celebrate achievem in g time to ents, like they do at Woodside, is somet be done anywhere hing that can . Benefits of play: •Play helps childre n with sensory impa irments and compl to use touch to expl ex needs, like Ernie, ore the world, learn and develop comm and have a better un unication skills, derstanding of wha t is going on around •This progress will them.xi make it easier for Er nie to communicat Ted and the other ch e with his brother ildren at his nursery. •A supportive envi ronment, where a ch ild feels relaxed an his or her surroundi d more aware of ngs, can encourage development and can be used at hom build skills that e. Recommendation s: •Families, suppor t workers and teache rs should make tim successes children e to celebrate the achieve through pl ay. • Communication support for children should prioritise th e use of play. 9 Isaac: Early support matters Isaac is three-and-a-half years old. He has CHARGE syndrome3 and has cortical vision impairment, as well as significant hearing loss. Isaac doesn’t use speech, but uses gestures and facial expressions to communicate. Recently he started to use signs. He has a younger brother who is one-and-a-half and a little sister who is due in July. Isaac’s mum, Kelly: ‘We only started to receive support when Isaac was two. Before then, our paediatrician kept writing referrals to our local authority, but nothing came of them. I was trying to get speech and language therapy for Isaac and really struggled. I was lucky I was at home and had time to do some research. We bought or made sensory toys for him ourselves. Our Sense Children and Family Support Worker was the first person who spoke to us about Isaac’s multi-sensory (MSI) needs. Nobody had ever discussed this with us before. Once she got involved everything started getting easier for us. She focused on touch and brought a game with her, which is about developing senses using touch and music. When our support worker introduced us to that type of play it gave me a chance to bond with Isaac, taking into account his needs. It also enabled me to step into his world, and I think it helped us both feel less isolated from one another. When they are babies and young toddlers, children with MSI are working so hard to understand the world around them. As parents we don’t have any awareness of what they are going through; we can’t experience the world the way they do. I was quite stunned and I didn’t know how to interpret what my baby was trying to tell me. Our support worker explained how Isaac experiences things and why he behaves in certain ways. And it was like putting the pieces of a puzzle together. It is so good when someone helps you to understand. We now have a multi-sensory support worker who has been working with us since last March. She often picks Isaac up from nursery, and they’ll go to play groups, the local pool or the Plymouth Aquarium. He loves the aquarium with all the fish! Isaac is a really confident little boy. He is quite robust actually; he just gets on with it!’ 3 10 HARGE is a rare condition that can affect different C parts of the body. The most common problems are with the eyes, ears, heart, nasal passages, feeding and with growth. Many children born with CHARGE are multi-sensory impaired as a result. Context mum should have received greater Though Isaac is thriving now, Isaac and his done to identify Isaac’s needs and to support earlier on. More should have been ired. understand the types of help that were requ an Because Isaac is deafblind, he is entitled to xii with the right expertise. assessment from a professional behaviour and way of communicating Isaac’s mum found it hard to interpret his helped her to understand Isaac and when he was a baby. Their support worker in’, or being able to identify the little become more attuned to his needs. ‘Tuning make to signify they want to play, has signs that children with complex needs will xiii e children in play. been identified as critical to engaging thes Benefits of play: ren who are deafblind develop •Using touch and music in play can help child their senses. impairments can help parents bond •Toys designed for children with sensory to initiate play themselves. with their children when they are not sure how Recommendations: tify children who are deafblind as •Local authorities should do more to iden uring that relevant professionals in early as possible. They could do this by ens ived training about deafblindness education, social care and health have rece information with other agencies. and understand the importance of sharing uld receive a specialist assessment, •Once a child has been identified they sho meet their needs. and specialist support must be provided to nts need help ‘tuning in’ to their child •Early support should recognise that pare together. so that they can find the right ways to play 11 Ruby: Families supporting families Ruby is seven and has CHARGE syndrome. She attends a school for deaf children and is very determined. She has an older brother who she loves to boss around. Ruby’s mum, Lesley: ‘When Ruby was younger I wouldn’t take her to regular toddler play groups. I felt vulnerable. I couldn’t be bothered to explain to other parents what was wrong with Ruby, and I wanted to go to places where I could meet people who would understand me. I did not see what Ruby and I could get out of it. 12 We were introduced to Sense by Ruby’s Vision Impaired and Hearing Impaired teachers when Ruby was 18 months old. After getting in touch with Sense, a Children and Family Support Worker came round with all sorts of toys and equipment. She brought a big bag of toys and a resonance board, and it was great for Ruby – she used to get so much sensation and feeling from those toys. Our support worker told us about the Sense playgroup, Sparkles, in Barnet. It used to take me 40 minutes to get there, but it was worth it. I found everything I needed: we could borrow toys, Ruby could mix with other children and I became friends with the parents. You did not need to explain to anybody what was wrong; if you came along with a feeding pump and a suction machine, it was accepted.’ Context While we want children to be welcom e wherever they want to play, it is also important that they, and their families , feel safe and supported. At specialist family groups, parents can help each other and get expert support from sta ff who understand the best ways to create pla y opportunities for their children. In our view, both the child’s developm ent, and the quality of the support the ir parents receive, is of equal importance . Benefits of play: •Many parents who attend our fam ily play groups tell us that the support and information they receive from other par ents is invaluable. •This is especially needed in a child’s early years, when parents could be fee ling overwhelmed and confused. Families also tell us that the earlier they receive help, the sooner they can provide the right support to their children. Recommendations: •Every local authority should provide accessible play opportunities that me et a range of needs, including specialist and mainstream settings. •Disabled children and their families should be involved in the design of pla y spaces and sessions to ensure they me et their needs. 13 Abi: Providing understanding and support to create play opportunities Abi is five. She has vision and hearing impairments and uses a cane to find her way around. She wears hearing aids and communicates via clear speech. Abi’s mum, Tracy: ‘Abi likes anything her friends like – arts and crafts, going to the park. It is a bit more difficult for her to get involved when they play physical games, like chasing each other on a playground, or hiding. She ends up being the one who has to chase them or they hide and she can’t find them. We can’t go to most soft play places as they are too busy, too noisy and too hectic, which Abi finds overwhelming. We have missed a few birthday parties as a result. We are trying to do a mix of activities with Abi – keeping her involved in mainstream activities on the one hand, but also going to some tailored groups for disabled children. MoorVision, a local charity for children with vision impairments, runs arts and crafts groups that Abi likes to go to. She used to do gymnastics as a preschooler, which she enjoyed – it also helped her physical development. However, now she is at school age, there is so much demand for the weekend classes that selection is based on ability, so we have stopped attending. 14 A big barrier to Abi participating in mainstream activities is the attitude of people who run the groups. The desire to make activities accessible and inclusive is hugely important, but it is also important that they work in partnership with us and the intervenor to understand Abi’s needs. Our group leader at Rainbows is a SEN teacher at school, so she is on the ball. We went to story time in a library and some of the leaders ensured it worked well for Abi. They gave her a second copy of a book, so she could follow, or allowed her to come up close and have a look. But other leaders just don’t get it. Quite a lot of Abi’s friends go to an afterschool club. They do some group games and activities based on physical mobility, which can be challenging for her. Abi could take part if she had one-to-one communication support, but this isn’t possible with the number of hours she gets with her intervenor4 each week and the way intervenor service operates. She would love to be able to go more often and be with her friends.’ 4 A n intervenor provides one-to-one support to a child who has been born with sight and hearing impairments. The intervenor helps the individual to experience and join in the world around them as much as possible. They promote their personal and social development, encourage independence and support their communication. Intervenor support is usually funded by local authorities’ children’s social services. Context in is limited by Abi’s ability to take part in the play activities she is interested er of hours her the skills and knowledge of play group leaders, and the numb intervenor is available. knowledgeable While it is unrealistic to expect every play group leader to be lot about about deafblindness, if they are receptive, they can learn a individual children from their parents. parents a much Intervenors support children’s independence and give their would be able to needed break. If Abi had more hours with her intervenor she take part in more mainstream play activities. Benefits of play: hments •Through playing, children can build strong emotional attac and friendships.xiv Recommendations: plays so that •Parents should have an easy-to-use record of how their child leaders. The they can share that information with non-specialist play group to set out how ‘Play Passport’5 (see page 20) is a tool that parents can use be shared with and when their child likes to play. The Play Passport can also professionals, schools and other families. e that the •When assessing a child’s needs, local authorities should ensur able to take child is given adequate intervenor support so that they are . advantage of the play opportunities that are right for them 5 sion. D eveloped by Debby Watson PhD and shared with her permis 15 What next for Sense’s play campaign? There are many and varied barriers that make it hard for deafblind children and those with complex needs to play. This report has sought to show that these barriers can be overcome – and should be – so that children are able to experience the joy of play, as well as the developmental benefits. In our research, and through our conversations with families, more issues came up than could be covered in the scope of this report. These additional issues included: •Children being prevented from playing because some adults are risk averse •A lack of information about the number and availability of accessible play settings across the country •A lack of research about the impact of play on developmental progress for children who do not communicate with formal language. 16 There is obviously more work to be done to fully understand the barriers to play experienced by disabled children. This is why Sense is launching a wider inquiry into play in the autumn. We have made practical recommendations that can be implemented by families, professionals and local authorities. More than anything, however, we hope that this report can be used as a tool by families to ensure that they receive the right play support for their children who are deafblind. Summary of recommendations For parents: For local authorities: •Parents should have better access to information and advice on how to play with their child, including how to make their own toys at home. Our top tips can be found on page 19. •All children and their families should have early access to support from specialist workers. Local authorities should make early intervention through play a funding priority. •Parents should have an easy-to-use record of how their child plays so that they can share that information with non-specialist play group leaders. The ‘Play Passport’ is a tool that parents can use to set out how and when their child likes to play. The Play Passport can also be shared with professionals, schools and other families. •Local authorities should do more to identify children in their early years. They could do this by ensuring that relevant professionals in education, social care and health have received training about deafblindness and understand the importance of sharing information with other agencies. For practitioners: •Once a child has been identified they should receive a specialist assessment, and specialist support must be provided to help to meet their needs. •Families, support workers and teachers should make time to celebrate the successes children achieve through play. •Communication support for children should prioritise the use of play. •Early intervention should recognise that parents of deafblind children need help ‘tuning in’ to their child so that they can find the right ways to play together. •Disabled children and their families should be involved in the design of play spaces and sessions to ensure they meet their needs. •Every local authority should provide accessible play opportunities that meet a range of needs, in both specialist and mainstream settings. •Local authorities should ensure that the child is given adequate intervenor support so that they are able to take advantage of the play opportunities that are right for them. You can keep in touch with the play campaign at www.sense.org.uk/play 17 Endnotes United Nations (1990). United Nations Convention on the Rights of the Child. Available: http://www.unicef.org.uk/ Documents/Publication-pdfs/UNCRC_ PRESS200910web.pdf. Last accessed 11 May 2015. ii Lester, S & Russell, W (2008). Play for a change. Available: http://www.playengland. org.uk/media/120438/play-for-a-changelow-res.pdf. Last accessed 14 May 2015. iii Nunez, M (2014) Joint attention in deafblind children: A multi sensory path towards a shared understanding of the world. Sense: Glasgow Caledonian University iv Murdoch, H (2002) Early intervention for children who are deafblind. London: Sense. v Preisler, G. (1993) A descriptive study of blind children in nurseries with sighted children. Sweden Child: care, health and development,19, 295-315 vi Celeste, M (2006) Play Behaviors and Social Interactions of a Child Who Is Blind: In Theory and Practice Journal of Visual Impairment and Blindness, February, 75-90. vii Finn, D; Fewell, R and Vadasy, P (1988) The Play of Young Children Who Have Dual Sensory Impairments Communication development in young children with deafblindness: Literature review Oregon. i 18 See Ruby’s story. See Abi’s story. x Abi xi Pizzo, L & Bruce, S (2010) Language and Play in Students with Multiple Disabilities and Visual Impairments or Deaf-Blindness Journal of Visual Impairment & Blindness xii Department of Health (2014). Care and Support for Deafblind Children and Adults Policy Guidance. Available: https://www.gov.uk/government/uploads/ system/uploads/attachment_data/ file/388198/Care_and_Support_for_ Deafblind_Children_and_Adults_Policy_ Guidance_12_12_14_FINAL.pdf. Last accessed 14 May 2015. xiii Watson, D (2014) ‘Go-getters’ and ‘clever little cookies’: a summary of a multimethod study on playfulness and children with PMLD. Bristol: University of Bristol. xiv Lester, S & Russell, W (2008). viii ix Top tips for playing with deafblind children 1Make sure your child is comfortably positioned and as relaxed as possible. 2Some children can only use one sense at a time initially, so do not do too much too quickly – try only one or a few things at a time. 3Children need time to respond and do things for themselves. Let the child feel for things without pushing them – you can use hand under hand guidance to feel things together. 4Observation is important so as not to miss any of the child’s milestones, such as increased babbling or increased use of visual or hearing skills. 5Develop turn-taking games. These can include action rhymes, cradling, rocking and bouncing games. They provide opportunities for stimulating the use of vision, use of hearing, and toleration of touch. 6Offer play with food. Children who are developing normally will have lots of opportunities to experiment and play with their food. This is a precursor to interacting with other substances such as paint, Playdough and clay. Children who are deafblind, by contrast, may require feeding by an adult. Playing with food substances, such as instant whip or custard, will allow your child to explore through vision, touch, smell and taste at their own pace. In this way, children can learn about the properties of substances and how they can change. 7Use a resonance board. This is an aid that feeds information back to your child through vibro-tactile means. Objects can be placed on the board around your child, who feels the effects of his or her own random movements on the objects through both touch and vibration. 8Choose toys that suit your child’s needs. Plastic toys are not interesting if you cannot see the colours or hear the tunes they play. Everyday objects (such as a mirror or Christmas lights) may be better than toys, but always check for safety. For example: • Different types of brushes • Textured fabrics • Torches, preferably with different colours • A foot spa. 9There are objects ‘out there’ waiting to be discovered and played with, and we need to bring this world closer to them. Children should be supported to develop their early play and sensory skills. 10Create a ‘sensory environment’ for the child. These can range from specialist rooms that may be found in schools or day services, to an environment that has been set up for the child at home. For example, a pop-up camping tent could be used to create an indoor sensory ‘room’ that encourages a child to learn, to look and to explore. 19 Photo here 20 I feel playful if: (this could be things like: I‘m comfortable, I’m out of my chair, you’re tuned in to me, I know you well, etc.) You can tell if I’m enjoying myself by: (this could be things like: I’ll raise my eyebrows, I’ll giggle, I’ll sign ‘more’) People who make me feel playful are: (this could be names of actual people, or people who are lively, people who know me well, people who sing, etc.) I like it when people: (this could be things like: tickle my toes, sing ‘row the boat’, etc.) 21 I like to be playful with: (this could be things like: toys, objects, etc.) I like to watch: (this could be other children, things that swing, things that sparkle, etc.) Children I like to be playful with or near are: (this could be names of known children, siblings, cousins, classmates, older children, more able children, etc.) My favourite playful thing is: (this could be something like: being tickled, peep-bo, or it could be my shiny mobile, etc.) 22 If I don’t want to be playful any more I will: (this could be things like: I’ll turn my head away, I’ll close my eyes, I’ll scream, etc.) I’m not likely to feel playful if: (this could be things like: I’ve just had a seizure, I’m hungry, I’m tired, I don’t like you, etc.) I am frightened by: (this could be things like: water, balloons, loud noises, etc.) Please remember: (this could be something like: I can only see you if you are close to me, I love rough and tumble, etc.) 23 About Sense Sense is a national charity that supports and campaigns for children and adults who have sensory impairments and complex needs. We provide tailored support, advice and information to individuals, their families, carers and the professionals who work with them. We believe that each person has the right to choose the support and lifestyle that is right for them; one that takes into account their long-term hopes and aspirations. Our specialist services enable each individual to live as independently as possible, offering a range of housing, educational and leisure opportunities. Sense 101 Pentonville Road London N1 9LG Tel: 0300 330 9256 (voice) Text: 0300 330 9256 Fax: 0300 330 9251 Email: [email protected] Website: www.sense.org.uk/play #playalong Registered charity number 289868
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