Survey
PACIFHAN had its beginnings in September 2014 when, following an initial network attempt,
representatives from 6 national HAN support groups (Australia/New Zealand, Czech Republic, Italy,
Poland, United Kingdom and USA) met in Geneva and agreed to work together to “promote the
international sharing of information and resources to improve the quality of life of HAN patients” and
to achieve this through the following goals:
1. To be a trusted international reference on Home Artificial Nutrition (HAN) from the patient’s
perspective
2. To encourage exchange of peer reviewed published medical-scientific information related to
HAN
3. To assist HAN patients who wish to travel/stay abroad to seek guidance through the member
association in the destination country affiliated to the international organisation
4. To organise an Annual General Meeting (AGM) that will be attended by a representative of each
member association
5. Increase awareness of HAN
6. Improve the quality of life of HAN patients
This is a short survey for Home Artificial Nutrition (HAN) patient support groups. It is designed to
ascertain the level of interest your support group might have in joining PACIFHAN, what resources you
could contribute and what expectations your members would have from international collaboration.
1. Please confirm your involvement with HAN (please tick all that apply):
Adult on HPN
Carer for adult on HPN
Parent for paediatric on HPN
Carer for paediatric on HPN
Adult on HEN
Carer for adult on HEN
Parent for paediatric on HEN
Carer for paediatric on HEN
Other (please specify)
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2. If you are a member of an existing national HAN support group, please provide the
full name and address of the group in your own language and in English:
3. Would your national HAN support group be interested in joining PACIFHAN?
Yes
No
Other (please specify)
4. Which of the following does your group support/undertake? (Tick as many as
apply)
Adults
Children
Carers
Home Enteral (Tube) Nutrition
Home Parenteral (Intravenous) Nutrition
Underlying disease/condition
Products and/or services
Educational Workshops
Social Functions
Other (please specify)
5. Does your national HAN support group have any literature or other educational
materials which other groups may benefit from?
Yes
If yes, please list:
6. If your national HAN support group has the following, please give details.
Website
Dedicated Helpline
Facebook Page (public/private)
Twitter Account
Other (please specify)
No
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7. What would be your expectations from PACIFHAN/international collaboration?
8. Would your national HAN support group be willing to nominate an Englishspeaking representative to attend PACIFHAN meetings via Skype or other media?
Yes
No
9. Ideally, PACIFHAN would like to organise at least one meeting per annum, possibly
at the ESPEN Congress in Europe or during Clinical Nutrition Week in USA
(A.S.P.E.N.). Would someone from your national HAN support group be able to
attend?
Yes
No
Other (please specify)
10. Would your national HAN support group be prepared, and/or be able, to fund one
delegate to an annual PACIFHAN meeting?
Yes
No
Other (please specify)
11. While a handful of representatives from 7 national HAN support groups (including
Sweden) are taking this project forward, we do not want it to feel we are
unilaterally setting the agenda for an international HAN network.
Please feel free to briefly express any concerns, ideas or thoughts with us in the
box below. These will help us all benefit from this international collaboration.
12. Please state your name, position within your national HAN support group and
contact email address.
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Thank you for taking the time to complete this survey. Please send your completed
form to [email protected] . We will contact you soon.