Botox Treatment Parent/Whanāu Information Spasticity Management Clinic Your child has been referred to the Spasticity Management Clinic for help with treating spasticity (stiffness) in their muscles. There are several different treatment options and the most appropriate ones for your child will be discussed with you. This fact sheet will provide you with some information about one of the treatments commonly known as Botox. What is Botox? Botox is a brand name for a toxin (Botulinum toxin A) that is made in the laboratory from bacteria. It can be very useful for treating spasticity in some children with cerebral palsy and head injury. It is used in small doses to help stop the muscle from over-contracting (spasticity). How does Botox work? Botox works by blocking the release of the chemical messenger to the nerve that makes the muscle contract. The toxin causes a temporary paralysis of the muscle at the injection site which reduces spasticity and allows the muscle to stretch and work better. The injection usually takes effect within a few days and is then reversed naturally by the body over the next 3-6 months. The nerve then becomes active again so the spasticity returns, and further treatment may be needed. Why do we use Botox? Botox helps relax the spastic muscles so they can then begin to work differently. Botox is a temporary treatment which wears off after 3-6 CapitalDocs ID: 1.102975 | Issue date: July 2016 | Review date: July 2019 Child Development Service months. This is useful in children as they are constantly growing and changing. Every child will have different goals they want to achieve with the injections and these will be discussed with you. We may be trying to improve your child’s walking, fitting into their orthotic or encouraging them with activities such as getting dressed and washed. We look at these goals again after the injections to see if the Botox has made anything easier. Who do we use Botox with? Botox is used to treat some children with cerebral palsy or other neurological conditions. It is not suitable for all children so we need to do an assessment in clinic to choose which children will benefit. Physiotherapy (and sometimes Occupational Therapy) are very important following Botox injections to help strengthen and make the muscles work better. If you cannot commit to attending the follow up therapy sessions, the injections may need to be postponed. Are there any side effects? Possible side-effects from this treatment include bruising or bleeding at the injection site, allergic reaction, flu-like illness and temporary changes in bowel and bladder function. Botox is stabilised with human albumin which is a blood product. Sometimes muscles become weaker so your child may find it harder to walk or they might fall more frequently for a short time. Physiotherapy should help with this. Your specialist will discuss the side Page 1 of 2 [continued] effects with you prior to starting the treatment to ensure you are fully informed. It is important to know that for some children, Botox does not work. What happens at clinic? At clinic, your child will be assessed by a team which may include a Rehabilitation Paediatrician, an Orthopaedic surgeon, a Physiotherapist and an Orthotist. We will assess your child’s muscles and how they walk. We may need to take a video of your child walking. This allows us to see exactly how your child is moving. We will then discuss with you if Botox would help and which muscles we think would benefit. What happens next? If we think your child will benefit from Botox injections, they will be given a date to return for injections. These are done in the Children’s Day Ward on a Friday under general anaesthetic. Your child cannot have anything to eat after midnight and clear fluids only until 6am on the day of the injections. Your child will be admitted to the Children’s Day Ward and seen briefly by the Paediatrician before theatre. They will then go to theatre for the injections. Your child will stay a short while in the Recovery Room after the injections before returning to the Children’s Day Ward. Some older children may have the injection under a local anaesthetic however this will be discussed with you to decide which is the best option. If we don’t think that Botox will help, we may offer you an appointment in another clinic, such as the Orthopaedic clinic or ask you to come back in the future for another assessment. CapitalDocs ID: 1.102975 | Issue date: July 2016 | Review date: July 2019 Therapy Your local Physiotherapist (and sometimes Occupational Therapist) will discuss appointment times with you before your child has their injections. It is very important that you attend these. Casting Sometimes serial casting is required following the injections to help stretch out shortened muscles. This will be done by your local therapist and usually means your child has below knee plasters put on the week following the injections. Your therapist will discuss with you for how long the plasters will be put on and how often they are changed. Your child will be able to return to their usual level of walking in them and go to school/preschool. Follow up You and your child will be asked to return for a follow-up assessment 4-8 weeks after the injections to see the effect of the Botox and therapy. You will be sent an appointment for this. Further questions If you have any further questions or would like more information regarding Botox or the procedure, please contact your local therapist or CDS on 04 918 2800. This fact sheet gives general information only; please discuss the individual treatment of your child with the team at the Spasticity Management Clinic or with your local therapist. Page 2 of 2
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