Successful community placement The Great Escape Lynn Hodge Director/ Senior Case Manager Case Management Services Ltd [email protected] www.caseman.co.uk James - Background Male, late 20’s, scaffolder RTA, GCS 3, multiple fractures Traumatic subarachnoid bleeding, contusion Fronto-temporal scarring and cerebral atrophy Major, widespread cognitive deficits Later in hospital stay was showing no coherent response Presenting problem James was in a “young physically disabled ward” He had been there for 4 years Staff reported, and records indicated, declining responsiveness and engagement At least some staff thought the lack of available therapists was the cause Environment provided no stimulation – not even a TV he could see properly No outings, never left ward, no therapy Every time we saw him he was lying in bed mostly asleep Family He has been unmarried, no children Local authority have welfare guardianship and there is a professional Financial Guardian His father and other family members in contact Family were keen on discharge to community Pre-discharge reports Neuropsychologist (NHS assessment): Awake but unresponsive. Followed person with his eyes. No evident eye contact. No speech. Classifiable as “minimally responsive” Pre-discharge reports Neurologist instructed by the defender’s solicitors: “At this stage there is in my opinion no prospect of James recovering to any independence of functioning and he will remain in need of total nursing care [and tube feeding]”. Pre-discharge reports Rehab Physician instructed by pursuer’s solicitors: “In my opinion, he is likely to remain permanently severely disabled, essentially as he is at present…” Would remain disabled and dependent. Pre-discharge reports Defender’s Care Expert “On balance I consider that it is in the best interests [of James] and his care that the care should be delivered in either hospital or specialist nursing care home. I do not consider that there is any significant gain to be made by James [living] in a home of his own…” Pre-discharge reports Rehab physician instructed by the pursuer’s solicitors: “Overall as it is now past the third anniversary of this accident it is regrettably unlikely that there will be any significant change…..” “I consider that he will be able to live in his own home with an appropriately trained and supervised care team and indeed as he has some awareness of his immediate environment I consider that this move is likely to be in his best interests.” Pre-discharge reports Neuropsychiatrist instructed by the defender’s solicitors: Hard to say “if he was truly in a minimally conscious state”. He “certainly behaved as if he was for long parts of admission…..[but there seemed to be] a voluntary component to some of the lack of cooperation.” “Some minimal improvement to be expected over the next few years.” “No [clinical] barrier” to domiciliary care. Pre-discharge reports Neuropsychologist instructed by pursuer’s solicitors: “It seems that at an earlier stage post injury there was a higher level of responsiveness….. It would seem that he has been declining in responsive level for some time now. The view expressed to me [by staff] was that he has lacked stimulation. I think that he should be afforded the chance to regain the ground lost….by having him in a home of his own with a suitable support team.” The legal case Hospital consultant’s view that he was able to be discharged to the community with the right support His legal team obtained an interim award for a trial Defenders argued: 1. 2. 3. 4. He was not fit for discharge If he was a nursing home was best as there were nurses If he went to community he would not need nurses only carers and they would be hard to retain So he should have a live-in carer The practicalities To avoid missing court dates, the trial had to be set up quickly We understood this, but the trial had to be done in 3 months – ideally a longer period would be available In the event, a successful trial was achieved The steps We involved 2 CMs – one on accommodation and one on care/support Accommodation: We had to find a suitable property quickly, on rental basis, and get adaptations made We had to obtain furniture etc Lot of liaison over lease, permissions to adapt, etc Insurance/phone lines/etc all to be arranged The steps Care/support: Identified possible care providers (agencies) Shortlisted – practicalities explored We had them recruit a specific team to meet his needs and provided supplementary briefing/training re the specifics of the case Liaison with hospital to have new carers trained in the hospital Worked with hospital team as part of discharge process Registered James with local GP, met with District Nurse Sourced equipment needed Life since coming home Case Manager Care team (from a separate provider) Still has 24-hour care, 2:1 support Nursing input has reduced and most of care is provided by support workers Life since coming home Input from: Speech & Language Therapy (Community Team) Physiotherapy (Community Team) Dietician (Community Team) Progress since coming home Moved to permanent residence near family Regular visits from friends and family & social outings Comprehension greatly improved More involved with day to day decision making Actively involved in his personal care Progress since coming home No longer nil by mouth Able to take 3 meals a day by mouth Walking using frame Is now speaking; words and short phrases Much more involved in activities around home Has an active social life Future Goals Improve communication using an app for Ipad To continue to improve mobility James wants peg removed James wants catheter removed James wants to go abroad on holiday James wants to go for a night out in the Savoy Successful community placement The Great Escape Lynn Hodge Director/ Senior Case Manager Case Management Services Ltd [email protected] www.caseman.co.uk
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