Evaluating the FOCUS: A New Communication Outcome Measure for Preschoolers Thomas-Stonell, N., Robertson, B., Oddson, B., Walker, J., & Rosenbaum, P. BACKGROUND • Communication disorders are very common in children, affecting 6% of the preschool population.¹ • Evaluating the outcomes of treatment is essential for improving services in an evidence-based manner.2 • The field of speech pathology is lacking reliable and valid outcome measures that evaluate the impact of treatment for pre-school children. The FOCUS • The FOCUS 3 (Focus on the Outcomes of Communication Under Six) is a new outcome measure for preschool children, based on the WHO’s ICF-CY framework. It is designed to detect changes in communicative-participation for preschool children following speech-language therapy. • Communicative-participation is defined as communication in life situations where knowledge, information, ideas, or feelings are exchanged.4 • FOCUS items were based on prospective observations of change collected from 210 parents of preschool children receiving speech-language therapy and their clinicians. Next, the measure was tested with 165 different parents and their clinicians. It was revised according to parent/clinician feedback and item analysis. The FOCUS was reduced from 103 items to 50 items. A parent and a clinician version was developed. The FOCUS takes 10 minutes to complete and uses a 7-point Likert scale to measure communication changes. METHOD • The Ages & Stages Questionnaire – Social Emotional6 is a validated measure of social and emotional skills for children from 6 to 60 months. The ASQ-SE evaluates seven behavioural areas: adaptive functioning, self-regulation, autonomy, compliance, communication, affect, and interaction with people. • Parents completed the ASQ-SE and the FOCUS three times. Time 1 was assessment. Time 2 was start of treatment, and Time 3 was end of treatment. Communication facilitation strategies were provided to parents between Time 1 and Time 2. Nine hours of individual/group speechlanguage therapy was provided between Time 2 and Time 3. “He is not learning words or able to communicate what he wants. Very frustrating for him - tantrums.” Hypothesis 2 • Level 3: the child is an effective sender and/or receiver with familiar partners. • FOCUS significantly improved from Time 1 to Time 2. ASQ-SE scores also • Pearson correlations examined the convergence between FOCUS and ASQ-SE total scores at each time point. FOCUS and ASQ-SE change scores between Time 1 – 2 and Time 2 – 3 were also examined. RESULTS Hypothesis 1 FOCUS 1 ASQ 2 ASQ 3 r = -.41 p < .01* r = -.38 p < .01* FOCUS 2 • A previous study established the convergent validity of the FOCUS with the PEDS-Q, a paediatric health-related quality of life measure. Hypothesis 2 FOCUS ASQ-SE Time 1 – Time 2 t = 4.22, p < .001* t = 1.98, p = .053, Time 2 – Time 3 Time 1 – Time 3 t = 6.97, p < .001* t = 6.20, p < .001* t = 4.58, p < .001* t = 4.23, p < .001* • To establish convergent validity between the FOCUS and the ASQ-SE. • Hypothesis 1: A moderate correlation (r = .30 - .505) will be found between FOCUS and ASQ-SE total scores at Time 1, Time 2 and Time 3. • Hypothesis 2: Both the FOCUS and ASQ-SE will measure significant change significant change from Time 2 to Time 3. • Hypothesis 3: Scores from the ASQ-SE Communication and Interaction with People domains will be more significantly correlated with FOCUS scores than scores from the other domains. improved, but not significantly. Since communication strategies were provided to parents during this interval, positive changes in communication skills were expected. Both the FOCUS and ASQ-SE measured significant change from Time 2 to Time 3. Hypothesis 3 • FOCUS correlations were higher for the Communication and Interaction with People domains than the Autonomy, Affect and Compliance domains. FOCUS scores were also more highly correlated with the Adaptive Functioning domain, perhaps because it included several feeding questions. FOCUS shows evidence of both convergent and divergent validity. Limitation r = -.37 p = .01* FOCUS 3 Objective • Parents’ comments about their children reflect this association between socialemotional skills and communicative-participation: • The Communication Function Classification System (CFCS)7 was used to rate the severity of the communication disorder. Children’s communication skills ranged from 1 (least severe) to 5 (most severe). The median CFCS score was 3. • My child plays well with other children. • FOCUS test-retest reliability has also been established with both parents (r > .95) and clinicians (r > .90) achieving excellent reliability. Clinician inter-rater reliability was also very high (ICC = 0.93; CI = .87-.97). • As predicted, ASQ-SE and FOCUS scores were moderately correlated. A moderate correlation was expected because the ASQ-SE and the FOCUS measure similar, but not identical constructs. Specifically, the ASQ-SE measures social-emotional skills, while the FOCUS examines communicative-participation. “Socialization is compromised for lack of verbal skills. All behaviors are due to poor communication.” ASQ 1 • My child is confident communicating with adults who do NOT know my child well. Hypothesis 1 • Data from 93 participants was collected from 11 centers across Canada. There were 65 boys and 28 girls. The ages ranged from 7 months to 59 months old (M = 31.9 mo). Sample FOCUS Items • My child conveys her/his ideas with words. DISCUSSION Hypothesis 3 • Correlations between FOCUS scores and the ASQ-SE Communication, Interaction with People and Adaptive Functioning domains were significantly (p = .05) higher than those from the Affect, Autonomy and Compliance domains. • Parents and clinicians were not blind to the assessment and treatment intervals. CONCLUSION • FOCUS demonstrates construct validity and is a valid outcome measure. It measures changes in communicative-participation and the impact of these changes on children in their community. ACKNOWLEDGEMENTS We would like to thank the families and children who participated and our research partners: Alberta Health Services, Calgary; BC Centre for Ability, Vancouver; Early Years Communication Program KidsAbility, Waterloo; ErinoakKids Centre for Treatment and Development, Mississauga; Hamilton Health Sciences: Technology Access Clinic, Hamilton; Hamilton Preschool Speech and Language Service, Hamilton; Holland Bloorview Kids Rehabilitation Hospital, Toronto; Nova Scotia Hearing & Speech Centres, Halifax; Wee Talk, St. Joseph’s Health Centre, Guelph. Funded by: Canadian Institutes of Health Research (CIHR) & Bloorview Children’s Hospital Foundation. REFERENCES ¹ Law J., Boyle J, Harris F., Harkness A., Nye C. (2000). Prevalence and natural history of primary speech and language delay: findings from a systematic review of the literature. Int J Lang Commun Disord, 35, 165– 88. 2. Hammel, K., Carpenter, C. Introduction to Qualitative Research in Occupational Therapy and Physical Therapy. Using qualitative research: a practical introduction for occupational and physical therapists, 2000:112. 3Thomas-Stonell, N.L., Oddson, B., Robertson, B., Rosenbaum, P.L. (2009). Development of the FOCUS (Focus on the Outcomes of Communication Under Six), a communication outcome measure for preschool children. Developmental Medicine & Child Neurology, 52, 47-53. 4 Eadie, T.L., Yorkston, K.M., Klasner, E.R., Dudgeon, B.J., Deitz, J.C., Baylor, C.R., Miller, R.M., & Amtmann, D. (2006). Measuring communicative participation: a review of self-report instruments in speechlanguage pathology. American Journal of Speech-Language Pathology, 15 (4): 207-320. 5 Cohen, J. (1988). Statistical power analysis for the behavioral sciences. (2nd ed.). New Jersey: Lawrence Earlbaum. 6 Squires, J., Bricker, D. & Twombly, E. (2003). The ASQ-SE User’s Guide: Ages & Stages Questionnaires Social-Emotional. A Parent-Completed, Child-Monitoring System for Social-Emotional Behaviours. Paul H. Brookes Publishing Co: Baltimore, Maryland. 7 Hidecker, M.J., Paneth, N., Kent, R., Rosenbaum, P. (2008). Communication Function Classification System (CFCS) for Individuals with Cerebral Palsy. www.uca.edu/slp/facultystaff/mjchidecker.php.
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