Routes to Success:
Whole System Whole City Approach to
Improving the Cancer Journey
Macmillan Cancer Support in partnership with…
Sandra McDermott, ICJ Programme Manager
Judith Mabelis, Macmillan Evidence Officer
WiFi name: WifiLoveMCR
Password: internet
Join the conversation on Twitter
using #DrivingChange
Our strategy needs to reflect the shift in the shape
of survival patterns…2030
Why ICJ? Understanding needs
Person at the centre of the whole system
Barriers
• All from the NHS:
• HNAs were already being done in the NHS
• Patients would not accept someone from LA carrying out the HNA
• Did people with cancer want this service?
• The NHS would be swamped with unmet need
• Project Manager did not have a clinical background or professional
credibility
Whole system, whole city
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Innovations
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Data sharing ISD CRM and mobile working
GP pilot
Pharmacy pilot
Patient transport
Housing support – prevention of homelessness
Carers support
Addressing fuel poverty
Accredited SVQ training and support link officers
3 Macmillan gardens
Macmillan café – social enterprise
ICJ in numbers
• 3,012 referrals received since 2014
– 77% of clients from Glasgow’s most deprived
• 12,627 concerns identified using the HNA tool
• 8,661 onward referrals to 238 agencies (10% NHS)
• 36% of carers identified carers assessment
• £5 million in Financial gains delivered
• Vocational Rehabilitation reduction in 20 days absence for employees
• Housing (in 1st year): 172 dedicated housing support needs
23 PABC prevented from losing their home, 30 re-housed due
to medical needs, 119 supported to stay in own home
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Evidence: Service users
• 93% agreed that support from their Link Officer had
reduced their feelings of isolation
• 89% agreed they were better able to self manage
‘’The best advice that I can give
anybody who has had a diagnosis
of Cancer is to take up the
invitation to meet with the ICJ
team and see how they can
support you and your family in so
many different ways’’
‘’The work you do the hope
you give people with
cancer and the support in
the feeling you are not
facing cancer alone cannot
be measured’’
‘‘’Didn’t know how I could
continue without ICJ as I
was giving up hope of
reaching Christmas, now I
think I can
Independent Evaluation
• Napier University, Prof Austyn Snowden and Jenny Young
Does ICJ demonstrably improve quality of
life?
How ICJ is experienced by:
Patients and carers
The service providers
The wider culture
• Interim report, July 2016:
‘’ ICJ has transformed cancer care in Glasgow’’
‘’ ICJ is helping people who need it most’’
• October 2017 report: programme data, experiences of service users,
the wider culture and consideration of costs (and savings)created by ICJ
Scottish Government. Beating Cancer, Ambition
and Action (2016)
“The
Improving the Cancer Journey experience in
Glasgow is an example of how an integrated approach to
health and social care can lead to an improvement in
quality of life, person-led post-treatment rehabilitation and
ability to self-manage.”
ICJ challenges for discussion
• Any ideas as to how we can improve ICJ in Glasgow?
• How do we deal with increased demand?
• Risk stratification
• Volunteers
• Should our focus only be on cancer?
• How do we future proof ICJ?
[email protected]
[email protected]
Report on Macmillan website
@ICJGlasgow