Cultural Competence as a Quality Issue: Practical Next Steps to Improvement Technical Assistance Call 11/12/08 1 Funded by HRSA HIV/AIDS Bureau Road Map for the Call • Faculty Introductions • Getting cultural competence on the quality agenda • Making progress using the Model for Improvement Faculty real world experiences Tips and ideas Resources for more research • And your Q and A and comments throughout the call. 2 National Quality Center (NQC) Faculty Introductions • Kathleen Clanon, MD [email protected] NQC Consultant • Nancy Koughan, D.O., M.P.H. [email protected] Lead Physician, Early Care Clinic, DeKalb County Board of Health, GA • Daniel Barba, JD [email protected] Program Manager, Family Care Network, Oakland • Patricia Calloway, RN [email protected] QM Coordinator, Part A, Oakland CA • Hela Issaq, MPH [email protected] QM Coordinator, Part C and D, Oakland (ret.) • Nancy Halloran, MSW [email protected] Program Planner Part C and D, Oakland 3 National Quality Center (NQC) Name Confusion • • • • • • 4 Cultural Compentence Cultural Competency Cultural Humility Cultural Fluency Culturally Affirmative Practice Cultural Proficiency National Quality Center (NQC) HRSA Uses: “Cultural Competence” “Cultural competence is a set of attitudes, skills, behaviors, and policies that enable organizations and staff to work effectively in cross-cultural situations.” HRSA Care Action Bulletin 2002 Cross et. al. 1989 and Lavizzo-Mourney and Mackenzie 1996 as cited in Cultural Competence: A Journey, Bureau of Primary Health Care. Health Resources and Services Administration, US Department of Health and Human Services, n.d.) 5 National Quality Center (NQC) Using QI to Improve Cultural Competence • Step One: Getting Cultural Competence on the quality agenda. We know it’s a problem, but is it our problem? • Step Two: Deciding on an Aim What are we trying to accomplish? • Step Three: Defining Measures How Will We Know a Change is An Improvement? • Step Four: Planning and Testing Changes What change can we make that will result in improvement? 6 National Quality Center (NQC) Step One: Getting Cultural Competence on the Quality Agenda Panel Question: What made your organization decide that you needed to work on cultural competence? 7 National Quality Center (NQC) What might make organizations put cultural competence on the Quality Agenda? National data showing disparities in care and outcomes. Local complaints or concerns Formal baseline assessment of your organization’s cultural competence Federal requirements: National Standards for Culturally and Linguistically Appropriate Services (CLAS Standards) www.omhrc.gov/assets/pdf/checked/finalreport.pdf 8 National Quality Center (NQC) National Data: Disparities in Care Entry into Care: African-Americans and Latinos are likely to be diagnosed at a later disease stage than whites1 Starting Treatment: African-Americans in one large national sample study were 59% less likely than whites to be receiving HAART2 Success with Treatment: 63% of African-Americans had an undetectable viral load after one year of treatment vs 92% of whites. 9 See references on end slide National Quality Center (NQC) Local Complaints and Concerns patient complaints of different treatment based on race or primary language. staff complaints of culturally-based conflict. concerns about demographic mismatches between staff and clients. different rates of retention in care between groups. Have you seen any red flags like this in in your program? 10 National Quality Center (NQC) Formal Baseline Assessments of Cultural Competence • Organizational Self-Assessment Knowing the community you serve Ability to collect data on race, ethnicity and primary language Hiring and training policies Translation and interpretation services Assessing and addressing health beliefs (http://www.aidsetc.org/doc/workgroups/cc-questionbank.doc) • Patient Input Survey, focus groups, CABs 11 National Quality Center (NQC) Example: Patient Satisfaction Survey Cultural Competence Questions In the 2008 client satisfaction survey in Oakland, these questions were included: I got services in the language I wanted. The staff asked about my health beliefs during my visits. The waiting room has materials that show people from my racial or ethnic group. The staff at the clinic show respect for my religious beliefs. I was asked about my use of traditional or alternative treatments. 12 National Quality Center (NQC) Using QI to Improve Cultural Competence • Step One: Baseline Assessment We know it’s a problem, is it our problem? • Step Two: Deciding on an Aim What are we trying to accomplish? • Step Three: Defining Measures How Will We Know a Change is An Improvement? • Step Four: Planning and Testing Changes What change can we make that will result in improvement? 13 National Quality Center (NQC) Step Two: Deciding on an Aim Question for the Panel What would look different about your programs after 3 or 4 (or 20?) years of work on improving their cultural competence? 14 National Quality Center (NQC) Step Two: Deciding on an Aim What Do We Want to Accomplish? • Reduce HIV transmission in communities of color • Reduce disparities in health outcomes • Improve retention in care • Access to care • Satisfaction with care • Strengthening organizational cultural competence infrastructure 15 National Quality Center (NQC) Using QI to Improve Cultural Competence • Step One: Baseline Assessment We know it’s a problem, is it our problem? • Step Two: Deciding on an Aim What are we trying to accomplish? • Step Three: Defining Measures How Will We Know a Change is An Improvement? • Step Four: Planning and Testing Changes What change can we make that will result in improvement? 16 National Quality Center (NQC) Panel Question: Measurement • Given that many important aspects of care aren’t practical to measure, what kind of measurements would you find believable clues to how well your program is doing serving people of color? 17 National Quality Center (NQC) Step Three: Defining Measures How Will We Know a Change is An Improvement? Look for overall improvement AND narrowing of racial and ethnic gaps in: % of patients undetectable on ARVs, by race and ethnicity % of clients with broken appointments, by race and ethnicity % of patients diagnosed with AIDS within one year of HIV diagnosis % of patients satisfied with the language services they received 18 National Quality Center (NQC) Local Example: What we learned • #1 Just getting the data is hard! But worth it… • What we learned from cultural competence questions: We are doing well with language access: <1% patients report they got services in the language they wanted rarely or never. We need to look at our clinic environments: About 30% of Latinos & A/PI report they rarely or never see waiting room materials that “look like me” We need to do better asking about traditional and alternative therapies for all populations; A/PI (29%) and whites (20%) are especially unlikely to be asked about these. We especially unlikely to ask whites about their health beliefs (>35% rarely or never asked). 19 National Quality Center (NQC) Using QI to Improve Cultural Competence • Step One: Baseline Assessment We know it’s a problem, is it our problem? • Step Two: Deciding on an Aim What are we trying to accomplish? • Step Three: Defining Measures How Will We Know a Change is An Improvement? • Step Four: Planning and Testing Changes What change can we make that will result in improvement? 20 National Quality Center (NQC) Step Four: Question for the Panel What Domains for Change Are You Working In? • • • • • Outreach/getting people into services How care sites look and feel to patients How enrollment and intake are organized Involvement of families and other supporters How patients/clients are involved in their own care and in design of care, • Where care facilities are located, • Who might provide care: skill mix/experience • Who your programs would partner with. 21 National Quality Center (NQC) 22 National Quality Center (NQC) Putting it All Together: Testing and Implementation 24 National Quality Center (NQC) General Cultural Competence Resources • A Guide to Addressing Cultural Competence as a Quality Improvement Issue in HIV Care http://www.nationalqualitycenter.org/home/quality-improvementresources/conducting-quality-improvement-activities.cfm/15189 • Cultural Competence Resources for Healthcare Providers http://www.hrsa.gov/servicedelivery/default.htm • Indicators of Cultural Competence in Health Care Delivery Organizations: An Organizational Cultural Competence Assessment Profile http://www.hrsa.gov/culturalcompetence/indicators/ • AIDS Education and Training Centers, Guiding Principles for Cultural Competency http://www.aidsetc.org 25 National Quality Center (NQC) References from Slide 9 • 1. Losina E, Schackman R, Sadownik S, et al. Disparities in survival attributable to suboptimal HIV care in the US: Influence of gender and race/ethnicity [abstract 142]. Presented at: 14th Conference on Retroviruses and Opportunistic Infections; February 25-28, 2007; Los Angeles, California. • 2. Wilson Lucy, Korthuis P, Conviser R, et al. Rural Versus Urban HIV/AIDS Clinical Outcomes: A Multi-state Perspective [abstract 974]. Presented at: 14th Conference on Retroviruses and Opportunistic Infections; February 26, 2007; Los Angeles, California. • 3. Hartzell J, Spooner K, Howard R et al. Race and mental health diagnosis are risk factors for Highly Active Antiretroviral Therapy failure in military cohort despite equal access to care. Journal of Acquired Immune Deficiency Syndrome. 2007; 44(4): 411-416. 26 National Quality Center (NQC) National Quality Center (NQC) NYSDOH AIDS Institute 90 Church Street—13th Floor New York, NY 10007-2919 888-NQC-QI-TA [email protected] NationalQualityCenter.org 27 National Quality Center (NQC)
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