A Parental Look at FASD:

From the Inside and Personal
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Who am I?
 Janice Goudy
 Adoptive mother/step-grandmother of a young man with a
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diagnosis of ARND
Retired after 31 years as a school speech-language
Two years as the Family Resource Coordinator of
Northwestern Minnesota for Minnesota Organization on
Fetal Alcohol Syndrome
Fours years working as a Personal Care Attendant and
member of the Board of HaysKids
In my second year as a Direct Support Professional and
currently a Lead Direct Support Professional for adults
with Disabilities.
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My Mentor
 John Hays
 Adoptive father of 15, all who have been prenatally
exposed to alcohol. Six are currently living at home.
 Parent liaison for the adoption support network
working with at risk kids and their families
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My Teacher
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Purpose of this Teaching
 A snapshot of a few characteristics of FASD and how
they look in real life.
 A better understanding of “normal”
 Is there hope?
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Coin Flip
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Who are these individuals?
 Concrete thinkers
 Words matter
 Time is their enemy
 Need for structure
 Egocentric
 Impulsive
 Lack of common sense
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Personal Stories
 Concrete thinking
That’s the Way I Think
Soup’s On
 Words matter
In/At
But You Said
 Time is their enemy
Grand Theft Auto
 The need for structure
I Don’t Want to Go
I NEED Secure
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Personal Stories Cont.
 Egocentric
He Has Nine More
The Dress Code
But She is Your Sister
 Impulsivity
It Was Just Laying There
Will Someone Get the Phone
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 Lack of common sense
Put Out the Fire
The Car Alarm
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The Court System
 Intro to the Public Defenders Office
 I Am His Attorney
 Dad, I Don’t Know What to Do
 There Are Days
 Mom, Did You Know?
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Points to Remember
 Professional vs Parent
 Understanding “normal”
 Secondary Disabilities
 Brain research – HaysKids Radical Approach
Diet
Exercise
Functional skills
Appropriate friends and activities
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Is There Hope
Hope is
Long term consistency and structure
Realizing at times nothing works
Trying
Not shaming and blaming nor judging their heart
Forgiveness
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Is There Hope cont.
Protection
Being calm
Teaching and learning about FASD
Pushing them to help their brain develop
Unconditional love
So take your gifts of patience, calmness, forgiveness,
knowledge, and unconditional love and make things
better for everyone.
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Resources
 HaysKids www.hayskids.org
Pathways to Hope – an FASD teaching for everyone
Preparing for Their Future – a non FASD teaching for everyone with disabilities and
behavioral concerns
A Fetal Alcohol Workbook – for transitions from adolescence to adulthood and beyond
Preparing for Your Future Workbook – for transitions from adolescence to adulthood and
beyond for individuals with disabilities and behavioral concerns
BeST – behavior screening tool for FASD
Brain Health – teachings to help you understand the impact of FASD
Wheel to Success – values, body, relationships, academics, and executive functioning skills
Radical Approach to Success – a program to help develop optimal functioning using the
Wheel to Success, OT/PT exercises, computerized brain exercises, relationship parenting,
teaching about the disability and chores and charts.
“Why Won’t You Just” – working with the person who can’t get it together
Steps to Deal with Bad Behaviors
A Look at Pathways to Hope – A 30 minute PowerPoint presentation
 Minnesota Organization on Fetal Alcohol Syndrome
www.MOFAS.org
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How to contact me
Janice Goudy
[email protected]
218-244-5304
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