From the Inside and Personal 1 Who am I? Janice Goudy Adoptive mother/step-grandmother of a young man with a diagnosis of ARND Retired after 31 years as a school speech-language Two years as the Family Resource Coordinator of Northwestern Minnesota for Minnesota Organization on Fetal Alcohol Syndrome Fours years working as a Personal Care Attendant and member of the Board of HaysKids In my second year as a Direct Support Professional and currently a Lead Direct Support Professional for adults with Disabilities. 2 My Mentor John Hays Adoptive father of 15, all who have been prenatally exposed to alcohol. Six are currently living at home. Parent liaison for the adoption support network working with at risk kids and their families 3 My Teacher 4 Purpose of this Teaching A snapshot of a few characteristics of FASD and how they look in real life. A better understanding of “normal” Is there hope? 5 Coin Flip 6 Who are these individuals? Concrete thinkers Words matter Time is their enemy Need for structure Egocentric Impulsive Lack of common sense 7 Personal Stories Concrete thinking That’s the Way I Think Soup’s On Words matter In/At But You Said Time is their enemy Grand Theft Auto The need for structure I Don’t Want to Go I NEED Secure 8 Personal Stories Cont. Egocentric He Has Nine More The Dress Code But She is Your Sister Impulsivity It Was Just Laying There Will Someone Get the Phone 6hon Lack of common sense Put Out the Fire The Car Alarm 9 The Court System Intro to the Public Defenders Office I Am His Attorney Dad, I Don’t Know What to Do There Are Days Mom, Did You Know? 10 Points to Remember Professional vs Parent Understanding “normal” Secondary Disabilities Brain research – HaysKids Radical Approach Diet Exercise Functional skills Appropriate friends and activities 11 Is There Hope Hope is Long term consistency and structure Realizing at times nothing works Trying Not shaming and blaming nor judging their heart Forgiveness 12 Is There Hope cont. Protection Being calm Teaching and learning about FASD Pushing them to help their brain develop Unconditional love So take your gifts of patience, calmness, forgiveness, knowledge, and unconditional love and make things better for everyone. 13 Resources HaysKids www.hayskids.org Pathways to Hope – an FASD teaching for everyone Preparing for Their Future – a non FASD teaching for everyone with disabilities and behavioral concerns A Fetal Alcohol Workbook – for transitions from adolescence to adulthood and beyond Preparing for Your Future Workbook – for transitions from adolescence to adulthood and beyond for individuals with disabilities and behavioral concerns BeST – behavior screening tool for FASD Brain Health – teachings to help you understand the impact of FASD Wheel to Success – values, body, relationships, academics, and executive functioning skills Radical Approach to Success – a program to help develop optimal functioning using the Wheel to Success, OT/PT exercises, computerized brain exercises, relationship parenting, teaching about the disability and chores and charts. “Why Won’t You Just” – working with the person who can’t get it together Steps to Deal with Bad Behaviors A Look at Pathways to Hope – A 30 minute PowerPoint presentation Minnesota Organization on Fetal Alcohol Syndrome www.MOFAS.org 14 How to contact me Janice Goudy [email protected] 218-244-5304 15
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