/ policy vision EEN GEÏNTEGREERDE ZORGVERLENING IN DE EERSTE LIJN 16/02/2017 ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 1/77 Table of contents 1 1.1 1.2 2 2.1 2.2 2.3 2.4 2.5 3 3.1 3.1.1 Introduction Adopting one line for strong primary care Bending lines into circles Chapter 1: Why change? Who or what is Primary Care? Why reform? Paradigm shift Public authorities in one line Policy phase already undertaken Chapter 2: What do we change? The person with a care and support need at the centre Control in their own hands 3.1.1.1 3.1.1.2 3.1.1.3 3.1.2 3.1.3 3.1.4 3.1.5 3.1.6 3.1.7 3.1.8 3.1.9 3.1.10 3.1.11 3.1.12 3.1.13 3.1.14 3.1.15 Integrated approach Self-management Health skills and empowerment Informal care Framing care and support aims The informal caregiver is a fully-fledged partner in care Primary care players also have a role in prevention Signposts in care More care in the neighbourhood Local social policy The care providers in primary care The residential care players are structurally part of primary care Family care Residential care centre Social work services More mental health care in primary care Complex care 3.1.15.1 3.1.15.2 3.1.15.3 3.1.15.4 3.1.15.5 3.2 3.2.1 3.2.2 3.2.3 3.3 3.3.1 3.3.2 3.3.3 3.3.4 16 16 16 18 18 18 20 21 22 23 23 26 27 27 28 29 31 Complex Care: good digital registration and collaboration Complex care: the multidisciplinary care team and care coordination Complex care: case management in action Primary care opts for digital care coordination Primary care is the requesting party for good coordination with the hospitals 31 33 34 37 38 Support of the care providers Primary care area The regional care area (at regional-urban care region level) The Flemish level: From Partnership Platform to a Flemish Institute for Primary Care Preconditions Initial training and on-going training Care capacity in primary care Support of primary care practice forms Funding of primary care 40 40 44 46 48 48 49 50 53 3.3.4.1 3.3.4.2 3.3.4.3 3.3.5 3.3.6 3.3.7 4 4 5 8 8 9 11 12 12 16 16 16 Funding from the federal government Funding from the Government of Flanders Communicating budgets in closed barrels A digital primary care Innovation and entrepreneurship Quality policy 53 56 56 57 58 60 ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 2/77 4 4.1 4.2 4.3 5 CHAPTER 3. Transition Preparing regulations Reallocation of staff and resources Sharing ownership of the reorganisation Summary 62 62 63 64 65 6 6.1 6.2 Appendices Lexicon Division of power Flemish - federal government 71 71 76 ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 3/77 1 1.1 Introduction ADOPTING ONE LINE FOR STRONG PRIMARY CARE In this country, a lot of work has been done by many generations to create a well-founded, accessible, high-quality and affordable care system. The Flemish care landscape is still characterised by well-trained, well-intended and hard-working partners who want to alleviate, with their head, heart and hands, the suffering and needs of our fellow countrymen and women and, where possible, to prevent it inflicting them. But that takes place in a fragmented way and from too many different structures. The citizen no longer sees the wood for the trees and has insufficient grasp of the organisation of hiscare1 and support. The care providers and care workers, too, see too much of their time consumed by administration and meetings. It must become simpler, more effective and more transparent, whereby the care seeker has the maximum control over the organisation of his care. The Flemish Coalition Agreement 2014-2019 includes a simplification of the primary care structures and the strengthening of primary care. Over the years, a broad consensus has grown concerning the necessity for fundamental reforms in primary care in order both to increase the satisfaction of persons with a care need and their informal caregivers, and to improve the performance of the care as a whole. Furthermore, a unique historic momentum presents itself in which a reform of the hospital sector in this country coincides with the implementation of the sixth state reform and, in particular, with the acquisition of new levers at the level of the Government of Flanders which will facilitate a better alignment between the healthcare sector and the welfare sector. The Flemish Coalition Agreement also concurs with the principle that this also implies that the individual patient/customer must be more involved in decisions concerning his/her own care, that we recognise him/her as expert in his/her own medical condition or support need. Together, people with a care need, the healthcare providers and the healthcare practitioners, the institutes that offer care, the healthcare insurers and the government, must now grasp the opportunity to implement a broadly supported reform. In mutual respect and in a participatory and transport process, but in full realisation that we may perhaps never regain such momentum in the future. This text therefore outlines the evolutions and policy direction for primary care in Flanders between now and 2025. This will demand a process that must be evaluated at regular intervals and, if necessary, be adjusted. In this text we use the term ‘healthcare provider’2 as a collective term for healthcare providers, healthcare practitioners and services offering care, in compliance with the terminology of the primary care decree3. The GP will, in the future organisation of primary care, (continue) to play a 1 For the sake of readability, we use the masculine from throughout the text for citizens/care seekers and care providers. Obviously, we mean both male and female citizens and care providers. 2 When, in the text, the term “professional healthcare provider” or “healthcare provider” is used, we should understand that this means both the healthcare providers in the healthcare and welfare sectors. Sometimes only the term “healthcare provider” is used, sometimes both terms are used in conjunction with each other. In the first case, this is to aid readability, in the second to underline the importance of both sectors. 3 Decree of 3 March 2004 concerning primary healthcare and collaboration between the healthcare providers, art. 2:16° healthcare provider: a healthcare practitioner as intended in 19°, and also an organisation, agency or person that provides professional care or services to users and thus facilitates, enables or supports primary healthcare, with the exception of the organisation, service or person with a more specialised care provision, 19° healthcare practitioner: a pharmacist, doctor, dietician, physiotherapist, speech therapist, dentist, nurse, midwife or professional practitioner of another discipline determined by the Government of Flanders, working in primary healthcare, with the exception of a doctor-specialist, including actual or legal entities who group these in a mono- or multi-disciplinary connection. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 4/77 crucial role, although collaboration with other disciplines will be encouraged. Integrated care implies an integrated approach regarding the person with a care and support need4. A keen sense of enterprise is reflected in a large variety of independent healthcare providers, services and organisations with an extensive range of care services. The citizen has complete freedom of choice in this wide spectrum. That varied care landscape calls for a clear horizon. A clear horizon where the aim is well-defined as a collective quest by care and support users, healthcare providers, healthcare insurers and the government. That aim is the best possible quality of life for and autonomy of our citizen. The citizen must be able to dictate as far a possible that best possible quality of life. Those who are young and strong doe not lie awake at night thinking of that quality of life because it seems so self-evident to them, but they must realise that unrelenting risk behaviour can undermine that quality of life in the future. Those who are old or in need of care run the risk of a life with limitations, but nevertheless want to keep control over their care in their own hands. That is why the person with a care or support need is central in the thinking and actions of everybody who is professionally or in some other way involved in healthcare and welfare. 1.2 BENDING LINES INTO CIRCLES The Flemish care landscape with its wealth of players and organisations has thus become confusing and fragmented. And consequently, the person with a care need may not always know how to keep control of his care need in his own hands. The healthcare and welfare sectors have for too long assumed their own compartmentalised organisational system, which allows everything to be neatly allocated to primary, secondary and tertiary healthcare, or placed in the compartment of healthcare, or of welfare, each with its own models and procedures. Everybody realises that the boundaries are blurring and that the position of the person with a care need has irreversibly taken a central position in the care and support model. Let us bend the lines into circles in a concentric model. In the plans for future care and welfare provision, the objectifiable needs of our population must also take a central place in our thinking and acting. The WHO model positions the informal caregiver, the volunteers and the neighbourhood as the first protective and supporting skin around the person with a care need, who takes central place. When care needs become more complex, primary care must be activated. Considering the increasing care needs of an ageing population, it is of vital important to be able to rely on strong, well developed primary care. This can relieve the more expensive specialised care and contribute to a considerable extent to an accessible, effective and high-quality care system for everybody. Wellorganised primary care can also reduce social inequalities in the area of healthcare by optimising the accessibility of care and assuming a signal function. 4 The term ‘person with a care or support need’ signifies the person as a whole, with needs in the area of welfare, housing, work, mobility, health. In the text, the term will be shortened and we talk of ‘person with a care need’. This is deemed to cover the complete term. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 5/77 It is now time to recognise this model consistently in the policy, and to align our structures with it. In this way we will be working on simplification, integration and greater efficiency of organisations and structures. There is no international travel guide for this collective journey to that new horizon. Those journeys can vary from country to country and are of course dependent on the nature and structures of the care and welfare system already in place, and the care culture that has grown there. The World Health Organisation does, however, give us a number of tips: Make sure the journey is participatory and is developed with the stakeholders; Impose a mandatory public accountability on the players and organisations concerning the resources deployed and the quality of care and services provided; Confidence cannot grow without transparency in the operation of the organisations and services; Watch over integrity and good governance; Provide supporting arguments for policy choices and ensure capacity to take decisions based on sound data, experience and intelligence. Nobody has ever claimed that planning and undertaking this journey would be easy. Nobody will applaud spontaneously when we leave familiar things behind. Nevertheless, we have a duty to the ever-growing group of largely elderly people with a care and support need to undertake this quest for a new system of collaboration. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 6/77 In Flemish primary care, we have a tradition of socially inspired enterprise, both individually and collectively. We want to acknowledge, stimulate and appreciate the dynamism this generates. We want to support the innovation that the practical training seeks to achieve during our quest. It is certainly not our intention to impose collaborative models from above. We do, however, want to find the right balance between the very important responsibilities of the players in the field and the role of the government which wants to act in a supportive and effective way, but which can also lay down the main lines, using the WHO recommendations as a compass. We should also realise that primary care is a shared area of competence of federal, Flemish and local authorities. Without mutual collaboration and agreements, it will never work. Primary care and hospital care are also linked in terms of budget. A shift of activities and volumes from in-patient care to the home situation also implies a shift of budget from the hospitals to primary care and vice versa. For example, a shortened stay in the maternity ward will imply higher budget requirements for maternity care at home, or less in-patient psychiatric care will result in more homecare psychiatric teams. It will not be easy, but if we all roll up our sleeves and put our backs into this reorganisation, it will succeed. Thus we will turn fragmented primary care into strong primary care. You are invited to join us on our journey to convert a number of visions in the near future into change and achievements that will eventually benefit all the stakeholders, and not least the persons with care and support needs. Thank you for your contribution and interest, which is greatly appreciated. Jo Vandeurzen Flemish Minister for Welfare, Public Health and Family ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 7/77 2 Chapter 1: Why change? A primary care conference calls for a number of agreements on the terminology used in order to avoid confusion and unnecessary discussion. For this reason, we first present the terminology of ‘primary care’. The motives for embarking on a change process must be clear from the very start for every participant. 2.1 WHO OR WHAT IS PRIMARY CARE? Primary care can be defined as follows5: Refers to directly accessible, ambulatory, general care for non-specified healthcare or welfare (related) problems, whether physical, psychological or social in nature; Generally represents the first contact with professional care; Can offer diagnostic, curative, revalidation and palliative care provision for the large majority of problems; Offers prevention for individuals and risk groups in the indigent population; Takes into account the personal and social context of people; Ensures continuity of care over time and between care providers; Supports the informal care available to the patient/client. Internationally, much is changing in primary care6. The European office of the World Health Organisation published, as a sequel to the World Health Rapport ‘Primary Health Care: now more than ever!’7 , the report ‘Health 2020: European Policy Framework and Strategy for the 21st century’8, in which primary care is presented as the corner-stone of a modern healthcare policy: "The primary care must be a cornerstone in every care system in the 21st century. That remains the focus for Health 2020. How can primary care anticipate the current needs? By creating a favourable climate for partnerships and by encouraging people to participate in new ways in their care and to take better care of their own health. Better and more costeffective care is possible by making the best possible use of 21st-century instruments and innovations, such as communication technology - digital documents, telemedicine / ehealth and social media. Viewing the patients as a partner and a source for input and being able to give accountability for what it means to the patient: those too are important principles.” The academic chamber of reflection also states that primary care today must contribute to achieving the “Quadruple Aim”9. This concept formulates 4 aims for care: 1. improvement of care as it is experienced by the individual; 5 SAR WGG, Primary Care Reflection Memorandum. Contribution in response to the Flemish conference on Primary Healthcare, 4 November 2010, p. 6-7. 6 Verlinde, C., De Maeseneer, J. et.al., The reform of primary care in Flanders: we’re working on it together! Abstract of the academic chamber of reflection for the Primary Healthcare Conference of 16 February 2017. 10 January 2017 https://www.zorg-en-gezondheid.be/conferentiereorganisatie-van-de-eerstelijnszorg-in-vlaanderen 7 Anonymous. Primary Health Care: now more than ever ! Available via : http://www.who.int/whr/2008/en/ 8 Anonymous. Health 2020 : European Policy Framework and Strategy for the 21st Century. Available via: http://www.euro.who.int/en/publications/policy-documents/health-2020.-a-european-policy-framework-and-strategy-for-the-21stcentury-2013b 9 Bodenheimer T, Sinsky C. From triple to quadruple aim: care of the patient requires care of the provider. Ann Fam Med 2004 ;12:573-576. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 8/77 2. improvement of health at population level with special attention to accessibility and social justice; 3. achieving added ‘value’ for the patient in the area of health with the resources deployed; 4. ensuring that professionals in healthcare are able to do their work in a good and sustainable manner. The care providers that are active in primary care in the healthcare sector include: pharmacists, dieticians, general practitioners, physiotherapists, psychologists, dentists, speech therapists, (home care) nurses, midwives, care specialists, occupational therapists, podologists, carers, social workers (list not exhaustive)10. We consider the following players in primary care in the welfare sector to be indispensable: the residential care players (services for family care and additional residential care, services for logistic help, services for minders, services for home care [recognition], social welfare services of the health insurance fund, local service centres, services for foster care, day care centres, convalescent centres, centres for short stay, groups of assisted dwellings, residential centres and associations for users and informal caregivers), centres for general welfare (CAW) and public centres for social welfare (OCMW), community work and associations where the poor have their say. Naturally, the youth services and the persons with a disability (VAPH) sector, as well as the Child and Family Agency (K&G), play an important role in primary care. They are part of the policy council that meets monthly with the Flemish Minister for Welfare, Health and Family, where coordination and policy orientation are discussed. 2.2 WHY REFORM? The challenges that make a change process necessary are described below and are based on the abstract11 from the academic chamber of reflection, which has assisted in the preparation process for this conference: Demographic and epidemiological developments: we are getting older (in 2016, the average life expectancy for men was 84.6 years and for women 89.1 years). The prevalence of cancer is increasing, as a consequence of this ageing. Partly thanks to improved therapy, cancer is becoming a chronic disease. There is an increase in chronic conditions, with a particular rise of ‘multi-morbidity’ (having several chronic conditions): recent research shows12 that half of those older than 75 have two or more chronic conditions, while two in every five people older than 75 have four or more chronic conditions. Care processes that focus on one condition are not sufficient here. In order to care properly for the patient, there is a need for a paradigm shift from illness-oriented care to care that takes the aims and preferences of the patient as its starting point13. This means an important role for primary care in avoiding the fragmentation of healthcare. Primary care must, with the citizen and patient, adopt the role as ‘integrator’ of the care. The increase in numbers of vulnerable people sets new demands for quality and interprofessional collaboration. 10 EXPH (EXpert Panel on effective ways of investing in Health), Report on Definition of a frame of reference in relation to primary care with a special emphasis on financing systems and referral systems, 10 July 2014 11‘The reform of primary care in Flanders: we’re working on it together!’ Abstract from the academic chamber of reflection for the Primary Healthcare Conference of 16 February 2017, 10 January 2017, Brussels. 12 Barnett K, Mercer SW, Norbury M et al. Epidemiology of multi-morbidity and implications for healthcare, research, and medical education: a cross-sectional study. The Lancet 2012;380:37-43. doi:10.1016/s0140-6736. 13 Boeckxstaens P. Multimorbidity: a quantitative and qualitative exploration in primary care. Ghent, General Practice and Primary Healthcare department. Ghent University, 2014.ISBN: 9789491125089. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 9/77 A second challenge is formed by scientific and technological developments and their implications for the affordability of healthcare. Scientific progress offers the perspective of new preventive and curative possibilities in the area of genetics, cardiovascular disease, neuroscience, cancer care and mental health care. It is no longer possible to imagine daily practice in healthcare without IT and communications technology. The stay in hospital is becoming ever shorter, and hospitals are seeing an increase in out-patient admissions. More technology is finding its way into home care. A clear vision must be developed concerning this and adequate strategies for dealing with it. Primary care has a role in translating new insights into the approach to health problems, and this with attention for the ‘relevance’ of the care and avoidance of medicalisation of daily life. Many of these new technologies and pharmaceuticals have an important impact on the healthcare budget, which implies responsible scientific and social choices. Globalisation and social-cultural developments imply that diversity in society is increasing and that people now look internationally for solutions to their health problems. This means that care providers must have a broader spectrum of forms of interaction if they are to approach every person with a care demand appropriately. With higher education and increasing accessibility of medical information via the internet, some ‘patients’ are evolving more and more into ‘critical consumers’. They are well-informed and expect to enter into a dialogue with the care providers, to assess options together and to reach decisions that best suit their lives. People who belong to ethnic-cultural minorities bring considerable diversity to care situations, and we must deal appropriately with this. The changing social context (more people are working longer and seeking a new work/life balance) has an important impact on informal care (decline in the availability of volunteers, informal care, etc.). There is also a clear change in opinions on quality care at the end of life. The existential aspect of being human is growing in importance. In addition to the physical and psychological problems with which people are confronted, each of us also wants to invest in quality and significance of life and add meaning to the activities in which we are engaged14. People present themselves (in care) differently, are more assertive and are increasingly aware of the role they must and want to play - also at an existential level. Control of the care takes the individual’s right of self-determination and living situation as its starting-point, and these indicate aspects of care and welfare. In the social-economic area, there are major health differences between countries, but also within social groups in a specific country: “poverty makes you ill and illness makes you poor” remains a reality. There is a social health gap in our country. The financial and economic crisis has also had an effect on social inequality in the area of health. Primary care offers opportunities in the area of accessibility of care, and has a strong signalling function for recognising, together with other sectors, the ‘social determinants’ of health (living and work situation, education, social cohesion, etc.) and proposing corrective measures. Social-economic factors, such as unemployment, being single, having a lower level of education and a low income, increase the risk of mental disorder, depression and suicide. At the same time, factors such as unemployment, poverty and loneliness are also often the result of depression or other mental problems. The KANS study by the Support Centre WVG15 showed a strong relationship between the severity of depressive feelings and the financial problems among users of primary healthcare facilities in Flanders (CAW, social work agencies of the health insurance funds and OCMW). 14 Thomas A et al (1999). Population-based study of social and productive activities as predictors of survival among elderly Americans. BMJ 319,478-483. 15 DeSmet et al, 2010, https://steunpuntwvg.be/publicaties/rapporten/publicaties-nieuw#KANS ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 10/77 In addition to the conclusions and evolutions that science offers as important reasons why a reform is imperative, we would again like to stress the opportunity offered by both the sixth state reform through a shift of several important powers to the regions, and also the observation that at this same time a reform of the hospital landscape is presenting itself. This has already been referred to in the introduction. This momentum is a unique historic opportunity for a fundamental reform for which we must today lay out the roadmap. 2.3 PARADIGM SHIFT In order to address these challenges, a paradigm shift is necessary in the policy around the organisation of care, from supply-directed to demand-directed care. In order to be able to offer people-centred and integrated healthcare services, the World Health Organisation proposes five strategies16. 1. 2. 3. 4. 5. Empowerment and involving persons with a care need; Clear direction and accountability; Reorientation of the care model; Care provision oriented to the needs of persons; Making it possible to bring together diverse stakeholders in order to realise the reform. This paradigm shift does not only apply to the level of policy implementation, but also to that of the help and care providers in the field. The strategic Advisory Council for Welfare, Health and Family 17 “Integrated care and support takes as its starting-point the needs, demands and aims of the person with care needs (and his immediate circle). Striving for a good quality of life for and by every citizen must be the ultimate ambition of integrated care and support. It is essential that professional (care and support) systems only come into action when they are needed and only there where they are needed. In a caring society, professional care is not the solution for everything, but acts rather as support and supplement to the social network and people’s own ability. Integrated care and support focuses strongly on preventive action and on mobilising cohesive forces in society. This integrated care and support can only be achieved by strengthening accessible primary care across the sectors and policy areas. The discussion on the organisational preconditions and the inter-sectoral deployment of resources must not be confused with the aim of an integrated approach: the best possible alignment of care and support with the demands and needs of citizens who, temporarily or permanently, find themselves in a vulnerable situation. " Everybody realises that no single individual care provider is in a position to cover on its own the complexity of care and support and that collaboration has become a conditio sine qua non for providing efficient and effective care. This is reflected in multi-disciplinary collaboration: care providers look over the wall of their practice or facility and, together, adjust the care to the needs of the person with a care need. 16 WHO, WHO global strategy on people-centred and integrated health services. Interim report, 2015 17 SARWGG, Vision memo Integrated care and support in Flanders. 7 December 2012 ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 11/77 2.4 PUBLIC AUTHORITIES IN ONE LINE In Belgium and Flanders, the responsibilities concerning primary care are, as mentioned earlier, dispersed over three levels: the federal level, the level of the Government of Flanders (community) and the local administration level (cf. appendix power distribution Flemish-federal). This means that they must coordinate the policy together, in order to make it transparent for the care players and for the citizen, and to avoid counter-productive or contradictory policy measures. Ideally, a synergy will arise through good coordination of the policy measures at various public authority levels. The federal government and the Government of Flanders can also use the InterMinisterial Conference on Public Health as a forum where the ministers involved can lend each other insight into policy intentions, but can also reach agreements that translate into consensus strategies, protocol agreements or cooperation partnerships if a common legal basis appears necessary (e.g. ehealth). Since 2009, 33 protocol agreements, 18 amendments and 12 joint statements have been approved. Joint action plans, such as the eGezondheid plan18, the plan for chronic illnesses, the protocol agreement on prevention and the guide concerning the reform of mental health care, BelRAI, hospital reform, hospital emergency planning, etc., were approved in the past 2 years by inter-ministerial conferences. In Flanders, we ensure in this way that Flemish and federal initiatives complement each other to the maximum. Consultation with the federal government is also appropriate, to ensure that the powers resting with it after the Sixth State Reform in the area of care provision (reimbursement of the primary care providers and the prescribed pharmaceuticals), the performance of health professions and the continuity of care (standby duty, out-of-hours surgery) are in line with the organisation and support of primary care in Flanders. The sixth state reform has also provided the possibility of developing an Institute for the Future. Such an institute could give the policy makers a strong foundation for taking decisions that are relevant to both government levels. The autonomy of local authorities and recognition of their management role in primary care call for sound agreements between the Government of Flanders level and the representative of the local authorities, the Flemish Association of Cities and Municipalities (VVSG). Currently, this consultation is too often ad hoc. A structural dialogue between the various public authorities and primary care is important. That is why they will have a place in the future Institute for Primary Care (see later). 2.5 POLICY PHASE ALREADY UNDERTAKEN In the run-up to, during and after the previous conference for primary care in 2010, thought was given to a better operation and less fragmentation of that primary care. The aims of that conference were: To improve the quality of primary healthcare through better and more professional collaboration between the various care providers; A better guarantee of the quality of life and work of the care providers by supporting and facilitating collaboration and by organising them in such a way that the administrative burden is 18 http://www.plan-egezondheid.be/ ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 12/77 reduced for all involved. Following the example of this conference, considerable emphasis was placed on the development of ICT support for the primary care. Vitalink was set up, and the project éénlijn.be for the support of primary care in the use of ICT was started. Projects for primary care in the psychological field were also initiated. A ‘Care Ambassador’ was appointed to tackle the problem of capacity in care. The Collaboration Platform for Primary Care was set up. Thought was given to multi-disciplinary collaborations at practice level, and there is a growing awareness that the supportive, so-called meso-level needs restructuring. On 7 December 2013, an interim symposium was held on primary healthcare, reviewing the state of affairs regarding the relevant policy. The Sixth State Reform offers the possibility and opportunity to think carefully about the reorganisation of primary care, both in structure and content. In the Coalition Agreement of the Government of Flanders and the policy memorandum 2014-2019 the following was therefore stated: “The Government of Flanders is convinced that expanding and strengthening primary healthcare, certainly in light of the growing need for good chronic care, continuity of care, elderly care and mental health care, is crucial. We want to use the strengths of our care services, with their diversity of forms in which front-line care providers are active, as the starting-point. This also implies that the individual patient/customer must be involved in the decisions involving his or her care and that we also recognise him or her as an expert in his or her condition or need for support. To reinforce this we will develop a charter that clearly defines the customer/patient’s (collective) rights. Various primary care network structures are currently in operation. In consultation with the stakeholders we will work on an operational plan to strengthen, align, simplify and integrate primary care structures. The sixth state reform creates the momentum for this challenge with the transfer of the support of the health professions in primary care and the organisation of primary health care (out-of-hours surgeries, Local Multidisciplinary Networks, Integrated Service Home Care, the palliative networks and the palliative multi-disciplinary teams).” The change process must correspond with other current reforms, or those that are yet to be initiated, namely: development of Flemish Social Protection, development of a new organisational and financing model for elderly care, implementation of person-linked financing for persons with a disability, integration of the new powers, the new action plan concerning mental health care, broadening of the concept of care-strategic planning (currently limited to hospitals) and the reform process around social work. Thus the Coalition Agreement states: We will transform our health landscape into a care system that better reflects the needs of citizens and that allows it to better respond to (changing) care demands. We will do this by expanding the scope of strategic care planning for hospitals as an instrument for development (redevelopment). Obtaining a planning permit or approval will shift from an institution’s individually enforceable right to a process that is subject to collective responsibility. In this context, we will encourage the development of new/alternative forms of care (care hotels, rest homes, rehabilitation stays, etc.) ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 13/77 Due to a wave of mergers in recent decades the average Flemish hospital is characterised by significant redeployment. A framework must be created that slows down the further duplication and unnecessary diffusion of high-tech and highly specialised services. The concentration of complex pathology with a clear link between volume and outcome must be encouraged and monitored using (outcome) indicators. We will strive for networks in which cooperation between hospitals is encouraged on the one hand and horizontal networks with partners in the region involved in care and welfare are encouraged on the other. Integrated care will only be achieved if hospitals, general practitioners and also the ‘residential care’ partners in primary care involve themselves in a horizontal care continuum or ‘horizontal’ network. We will work on a new organisational and funding model for (residential) care for the elderly and thus encourage the development of innovative models. The new powers related to price control will also be embedded in this new approach. Before applying radical changes to existing financing systems, we will test concepts of person-linked financing in elderly care. We will study the possibilities of reconverting residential capacity and available previous permits to other suitable care forms.” A preparatory process was started at the end of 2016 around the future of social work, and will culminate in a conference in the autumn of 2018. Seven working groups were put together. These working groups each have social workers employed in various sectors: primary care, youth care, socially weaker persons with a disability, justice, work and integration. Using their wide range of perspectives and expertise, they jointly formulate proposals around five themes: fundamental rights, emancipation versus disciplining, the purpose of social work in networks, individual support versus structural operation, diversity in society. Considering the important task of social work in primary care, we will follow this reform closely. Integrated care must be achieved across the professional areas. That is why coordination must also be sought with the federal initiatives around the new hospital networks, the reform of hospital financing and the revision of RD 78 concerning the care providers. The federal government and the federated states will also work together to further develop the mutual plan for integrated care for the chronically ill. In implementation of action line 1 of this mutual plan, a maximum of 10 pilot projects will be launched in Flanders. These projects will develop further the various components of integrated care. ‘The aim of the pilot projects in the Plan “Integrated care for better health” is to test and develop integrated care for chronic patients within a geographically prescribed region with respect for the Triple Aim thinking and with attention for the equity principle and the life quality of the healthcare professionals.’19 To ensure that the proposed reform of primary care in Flanders is tackled with broad support, 6 working groups have been set up in preparation for this conference. Each working group had a balanced representation of, among others, players in primary care organisations and provisions, professional groups, experts from the sector, users, etc. Each working group was given a number of objectives which are briefly explained below, and, during various work sessions, they formulated answers to the questions posed: 19 Working group 1 - Task and structural integration (led by Roel Van Giel) GUIDE Pilot projects Integrated care for the chronically ill. Via http://www.integreo.be/sites/default/files/public/content/gidspp.pdf ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 14/77 The allocation of clearly defined functions and tasks necessary for achieving an integrated care approach at the levels that support the practical implementation level and drawing up a proposal for a support structure (or structures), based on the proposal from the ‘task’ exercise. Working group 2 - Geographic definition of the care regions (led by Joris Voets) Drawing up a proposal for care regions based on the results of working group 1. Working group 3 - Models for integrated care (led by Ilse Weeghmans) Developing further a Flemish model of integrated care, based on existing models, with an eye to coordination with the federal process of integrated care for the chronically ill. Working group 4 - The patient/citizen at the centre (led by Guy Tegenbos) Developing a vision and scenario to give a leading role to the citizen and the person with a care need in integrated care, in all aspects of that care in which that person must be involved. Working group 5 - Data sharing and quality of care (led by Dirk Ramaekers) Developing a model for evaluating the quality of care within an integrated care approach. Working group 6 - Innovation and entrepreneurship in care (led by Johan Hellings) Achieving solutions for rolling out those innovative and innovation projects in care that have been positively assessed. Each working group drew up a final report. The essential ideas from these final reports were bundled in an abstract. This abstract contributed to the basis for developing this policy text. The complete process is supported by a steering committee. The members of this committee were the chairs of the working groups, various members of the Minister's Office and the Care and Health Agency and the external process supervision that had been awarded to Möbius. In addition, input was also requested from academics from various disciplines, who met and entered into a dialogue with each other and with the Minister in an ‘Academic Chamber of Reflection’ (composition as appendix). ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 15/77 3 Chapter 2: What do we change? 3.1 THE PERSON WITH A CARE AND SUPPORT NEED AT THE CENTRE 3.1.1 Control in their own hands 3.1.1.1 Integrated approach Each person is entitled to care and support that allows the best possible quality of life. Every person also has a responsibility to avoid recognised risk factors in the area of health and welfare as far as possible or to reduce them. Helping people achieve the best possible quality of life they personally desire is the ultimate aim of our care and support. To achieve this goal, an integrated approach is necessary. Care and support in which lines, levels and sectors are subordinate to this aim and whereby care is offered in an integrated way. Care in which the person takes the central position and where the care providers, together with the person, map out the path to the best possible and attainable quality of life and help him achieve it. The term ‘help him achieve it’ is very important here. It suggests that the autonomy of the person is the starting point and the role of director is assumed by the person concerned, or his informal caregiver. For the time being, the care coordination will also be assumed by the person or his informal caregiver. 3.1.1.2 Self-management We call the assumption of control by the person himself self-management. The care process that is built up always take this self-management into account. If autonomy and willingness for autonomy are present, this self-management is not in question. If the person shows reduced autonomy to assume the role, the care process gives priority to regenerating that autonomy. The control can temporarily be assumed by somebody chosen by the person with a care need, such as the informal caregiver, or, if that is not possible, by a professional care provider. In an advanced stage of certain conditions or in complex situations, care coordination may be needed in additional to the role of control. The care coordination will then, for the time being, be assumed by the informal caregiver. If that is not possible, the care coordination can be assumed by a professional care provider, always as chosen by the person with a care need. 3.1.1.3 Health skills and empowerment How can we guarantee that each person can assume control when a care need arises? That is a process that must start from an early age. We are talking about a process of health literacy, or health skills. The European Commission defines health literacy as follows: “the degree to which people have the ability to obtain, process and understand fundamental services and information in the area of health, so that they can take decisions to the benefit of their health”. The knowledge, skills and attitudes that a citizen needs to approach care with the necessary confidence and control can be provided through health literacy education. The acquisition of health skills has two main areas: ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 16/77 1. Making available reliable and understandable information. Various players have a role in this: the government, knowledge and education institutes, care providers and insurers20, patient associations (i.e. prevention of illness), etc. Digitisation can play a major role here. For example, by entering reliable data in the electronic patient file, the person with a care need can obtain (scientifically founded) information. Or the person with a care need can be informed about patient associations, activities etc. in his area. 2. Acquiring basic knowledge and learning skills in order to adopt a specific behaviour. This is very loosely defined and includes, for example: the ability to read a medication leaflet, knowing where to find reliable information and how to check it, knowing which service provider you can approach for which care issue, etc. The Academic Chamber of Reflection states in its abstract that people with better health literacy arrive at the right care place faster if the right care question is asked. Investing in health skills is a social task and is a process that can best start as early as possible. This therefore forms an extremely important challenge for all care players, but also for the education system. Good health skills give the person with a care need the possibility of better coordinating his own care and becoming a fully-fledged partner in care. However, he may sometimes require coaching and encouragement (empowerment or self-encouragement). This is certainly the case if the person with a care need can continue to play an active role in his own care process when he is in a situation of care dependency. The process of empowerment contains the core elements of autonomy, support, acceptance and improvement of the living situation21 and is primarily directed at increasing control over one’s own life and promoting the capacities to undertake independent action and thus raise the quality of life. Imparting knowledge and information on the condition(s) and the course of the illness, providing insight into the social and personal functioning, providing insight into support possibilities etc., help the person with a care need to take decisions in his care himself and is thus a task for every care provider. But patient associations can also help here: via information sessions, contact with fellow sufferers, awareness campaigns etc. Gaining insight into one’s own care and support plan and being able to register and share personal data are important elements in the process of empowerment. In this way, the personal expertise and the mental and social functioning of a person with a care need can be exchanged with the care providers. But also the scientific evidence that care providers have at their disposal can be made available to the person with a care need via the electronic file. In addition, it is important that the care provider considers the person with a care need as an equal partner in the care process. But even then, the person with a care need must be behind the wheel as much as possible. Several decision and support aids already exist at the moment. These can be developed further. 20 The insurance institutes have an explicit assignment in this, described on page 10 of the federal pact of insurance institutes. This pact also points out the interlinkage of powers in this with the federated states. Policy unit Minister of Public Health and Social Affairs (2016, September). NISDI: http://www.inami.fgov.be/SiteCollectionDocuments/toekomstpact_verzekeringsinstellingen.pdf 21 (2012) Flemish Patient Forum, symposium of patient empowerment. via http://vlaamspatientenplatform.be/nieuwsbrieven/item/denkdag-patient-empowerment ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 17/77 Lastly, care providers must be familiar with the core elements of empowerment so that they can assist the person with a care need at all times. It should thus also be included in the initial and continuous training of the care providers. 3.1.2 Informal care Informal care is all care and support that is offered by non-professionals. Informal care assumes a special and important place in this, next to occasional care and support offered by volunteers. As more people express the wish to continue to live at home, even when they have a complex care need, the care provided by family members, friends, neighbours and volunteers assumes an increasingly important place. If the person with the care need cannot assume control, the informal caregiver is the next party to which control should be allocated. These informal caregivers do not only assume many practical aspects in the care process and, where necessary, take over the coordination of the care, but are also of inestimable value in the health-economic and psychological area. After all, they support the person with a care need both mentally and socially. But like everyone else, informal caregivers also occasionally reach their limits. To keep their daily care bearable, we are working on a support policy that will allow them to continue lending this care for as long as possible. The informal care holds a position in the care process that is on a par with the professional care providers. The professional care providers must acknowledge, respect and actively involve the informal caregivers in every action that is taken around the person with the care need. 3.1.3 Framing care and support aims Persons with a complex and chronic care need formulate, in consultation with the care coordinator (see later), the care and support aims22 - in the text, we refer to them from here on as “care aims”. These are attached to the analysis that has already been made of the life aims and wishes of the person with care needs. The care aims thus indicate what the desired quality of life is for this person and are, as far as possible, formulated as SMART aims and translated into specific actions and deeds that have a place in a care and support plan. For the realisation of the care aims, the person (or his informal caregiver) chooses his formal and informal care providers who are involved in this. Action: the Flemish Patients Platform is developing a user-friendly, accessible and robust instrument that enables people with a chronic condition/complex care need to help formulate life aims. 3.1.4 The informal caregiver is a fully-fledged partner in care Fully involving informal caregivers as partners in care services, as well as supporting informal caregivers, is the duty of all the care providers involved. The informal caregiver becomes a partner in the care and support plan and participates, on condition that the person with a care need agrees to this. In addition, professional care providers are being encouraged to involve informal caregivers and to respect their role in the care process and, where necessary, in care coordination. The Informal Care Plan and “the resolution of the Flemish Parliament concerning the improvement of the support of informal caregivers”, as adopted by the Flemish Parliament on 1 February 2017 focus strongly on this. It should be stated here that few people are prepared for their role as informal caregiver. 22 The plan ‘Integrated care for a better health’ (IMC 19 October 2015) used the following description: “Further, a person with a chronic condition has needs that are not purely medical (diagnostic, structured and evidence-based treatment, combating symptoms, managing pain, avoiding complications), but also psychological (need for information, emotional support), social (help in day-to-day life, integration into society) and spiritual in nature. (…) Our healthcare system must be able to satisfy these different needs. This demands a paradigm shift from illness-oriented care to care that takes the aims and preferences of the patient as its starting point.” ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 18/77 Providing essential knowledge of the care process and of the range of care forms available is important, as too is providing information on the conditions (e.g. dementia, diabetes, autism, etc.) and offering practical tips on how to deal with them. For many informal caregivers, offering informal care is an enriching experience. The vast majority of informal caregivers experience providing care as fruitful and would, in the same situation, provide informal care again. But informal care can also prove a burden and have consequences for the quality of life. It is thus essential to retain the balance between capacity and burden. Focusing on this is a social choice that is achieved across and through the policy areas and policy levels. The informal care plan implements this. The main lines of the informal care plan are: Social recognition and appreciation of informal caregivers; Supporting informal caregivers; Collaboration between informal caregivers and professional care; Specific attention for the young informal caregiver; The plan is based on a broad definition of informal care. There is no ideal informal caregiver. Many informal caregivers work together in an informal care network. Support must then be customised. We pay particular attention to vulnerable groups, such as the elderly informal caregiver, informal caregivers with a migrant background, care for people with mental health problems and underprivileged informal caregivers. The commitment of the informal caregiver in the care process demands the commitment and consent of the person with a care need. Providing information is an essential point in the support of informal caregivers. We are working with the associations involved on a Flemish expertise point for informal care where all information that concerns informal caregivers is provided in an accessible and primarily digital manner. This expertise point will be integrated into the operations of the Flemish Institute for Primary Care, as described later in the memorandum. It is also important that informal caregivers can find answers to their questions and needs locally. As described later in the memorandum, this local point of contact will be embedded in the assignments of an integrated, broad and recognisable service that will include an accessible, local reception function. A diverse group of informal caregivers demands a diverse range of support possibilities. Persons with a care need can also support their informal caregiver through the healthcare insurance. A welldeveloped professional range of care services and attention for neighbourhood-driven support should provide informal caregivers with sufficient time for themselves. The majority of informal caregivers are still of an occupationally active age. The combination of work, family and informal care is not always easy and demands the necessary attention. The relationship between the informal caregivers and the professional care has a double perspective. On the one hand we want the informal caregivers to be considered as fully-fledged care partners within a well-coordinated care plan, and on the other we expect that professional care also has an eye for the possible needs and support of the informal caregivers. We also want to give informal caregivers their rightful place in primary care. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 19/77 Specific attention is paid to young informal caregivers, primarily children and young people under the age of 24, who grow up in a family situation with special care needs. We would appeal to the care providers to recognise this group of young people, to involve them in the care context and to pay attention for their specific needs and questions. Actions: The primary care decree, the mental health care decree, the local social policy decree and the residential care decree are being amended, and the principle that the informal caregiver is a fully-fledged partner in care with specific needs and desires must be included. The implementation decrees must be amended and also the agreements with organisations must take these basic principles as their starting point and explicitly adopt them. Consultation is planned with the minister authorised for Education on the inclusion of health skills in the learning aims of primary and secondary education. In collaboration with the associations involved, a Flemish expertise point for informal care will be founded that will be incorporated into the Flemish Institute for Primary Care (see later). The intention is make this easy to access and to operate in a mainly digital way. The Flemish informal care plan, where the 4 themes are specified in actions for primary care, will be implemented. The “resolution of the Flemish Parliament concerning the improvement of support of informal caregivers”, as adopted by the Flemish Parliament on 1 February 2017 will be implemented. 3.1.5 Primary care players also have a role in prevention In aiming for the best possible quality of life, prevention takes an unmistakably important position. Initiatives and health promotion and sickness prevention in healthcare and beyond, via an intersectoral policy, can provide this. The healthcare aims acting as policy instrument. A healthcare conference took place on 16 and 17 December 2016, which was held in the light of framing a new design for healthcare aims around ‘healthy living’. These could replace the elapsing health aims around nutrition and exercise and tobacco, alcohol and drugs. One of the important decisions taken is the proposal to work via the life domains in which the citizen is active. The care and welfare life domain and the neighbourhood are, in the context of the reform of primary care, important life domains alongside family, recreation, education, work and the citizen. Helping to achieve the health aims of the preventive health policy is thus an assignment for the primary care providers. Implementing a proactive policy in care and welfare means that the care providers also take into account prevention and are supported in applying the methodologies from the preventive health policy in their practice. It is also important that there is a local translation of the Flemish health aims through the adoption of validated methods and of other objectives from the prevention policy. Both the approach by local authorities (‘Healthy Municipality’ method) and by the players who have a role in the primary care area (see later) are important. There are also policy objectives in the area of prevention which are not always explicitly stated in health aims. The Government of Flanders wishes to support dentists in preventive oral care, certainly among the target groups with substandard self-care or care use. Nurses, carers and care workers, pharmacists, physiotherapists and occupational therapists have an important role in the area of preventing falls. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 20/77 Doctors and psychologists can contribute to mental health promotion. Pharmacists have an important advisory duty concerning appropriate medication use and preventing addiction to psychotropic drugs. Doctors, midwives and Child and Family nurses make young parents aware of prevention (cot death, vaccination, breast feeding, etc.). The Huizen van het Kind (children’s centres) are an important instrument for working on prevention in respect of the target group of young or future parents and families. They connect and make accessible the services and ensure that the support of the families, deprived families in particular, is guaranteed in every life area. They have specific attention in this for social support, group operations, mental health, relationship support, practical help, etc. During the conference ‘the future is young’ on 6 October 2016, it was proposed to structure the path that parents and children from vulnerable groups take into a supervisory ‘care pathway’ that fits in with the preventive family support. It also describes the expected actions by digital means, so that it is clear for everybody what is done by whom and when. The basis of this care pathway is laid by what we now know as the pre and perinatal guidelines of the KCE and the consultation schedules as used by the Child and Family Agency and the CLBs. The scope of the care pathway is, however, made broader: not only the medical monitoring but also the following aspects are handled: mental wellbeing, (preparing for) parenthood, development, healthy nutrition and exercise, smoking and drug use, oral health, social support, practical help, health determinants, ensuring rights and support possibilities, leisure time activities and health skills. Every care provider should be sufficiently alert to health, welfare and/or social problems which the citizen himself does not (sufficiently) consider. In this way, every care provider can make his contribution to early detection and intervention by discussing them and proposing possible solutions. The forum on which representatives of primary care find themselves locally is the Care Council (see later). This Care Council must be supported by the available expertise and the network of the LOGO involved. The LOGO will be absorbed into the support structure of the regional care area with the aim, among other things, of strengthening the link with primary carers and of supporting them with recommendations and information. Actions: A new legislative framework will be written to allow the LOGOs to be absorbed into the support structure of the regional care area The Care Council will be empowered by the Flemish Institute for Primary Care and partner organisations around prevention (VIGeZ, VAD etc.) and the regional care area (see later) to monitor the local-regional progress concerning the health aims and to draw fitting conclusions. A supervisory care pathway for parents and their children from vulnerable groups is being mapped out, which to a large degree will be based on digital data sharing. 3.1.6 Signposts in care Persons with a care need or care demand, or their informal caregivers, often look for information and an appropriate answer. There is also a need for reachable, easy to access, local reception functions, both physical and digital, where help-seekers and their informal caregivers can obtain all the useful, objective information on their support demands: information about and availability of the services, their rights and possibilities for service provision and benefits and for any substantive information related to the care demand or care need. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 21/77 In Flanders, the General Welfare Centres (CAW), the Public Centres for Social Welfare (OCMW) and the social services of the health insurance funds have a reception task that has been confirmed by decree. Each of these organisations has built up specific expertise. We are bundling this expertise in a partnership for ‘integrated, broad and recognisable reception’. The overall service and social services to care seekers and their informal caregivers are embedded in the tasks of this integrated broad and recognisable reception, which means that both welfare and health aspects are approached from a generalist perspective, aimed at maximum access to care and allocation of rights. The integrated broad and recognisable reception pays specific attention to vulnerable groups (including people in poverty) and can be expanded further within the broad concept of the Social House. In every respect, the Social House is part of the integrated broad and recognisable reception. This is also one of the actions included in the Flemish Poverty Reduction Action Plan. The local administration (or collaborating administrations) assumes in this sense the director’s role and puts a lot of work into the partnership between the players involved. This reception may not be interpreted in the passive sense of the word, namely just as a front-desk function. The integrated broad reception organises the ease of access to the care services and acts with an outreaching and pro-active approach with a focus on vulnerable target groups. It contributes to the autonomy of the person to assume his self-management. Often, giving information and direction in the care services with good clarification can help the person to assume the control of his care and prevent more radical care situations. Experience teaches, however, that the way in which the reception takes place and potential barriers in the follow-up care must also be given the necessary attention. This immediately shows the importance of the link between this broad reception and the care providers. Currently, eleven integrated broad and recognisable reception pilot projects are under way. Actions: The 11 pilot projects for integrated broad reception that run until 2018 are encouraged to focus as much as possible on the link between care and welfare. For the further implementation of the integrated broad reception, as much focus as possible will be given to the link between care and welfare. Based on the evaluation of these pilot projects, we will assess how the further implementation can take shape in Flanders. 3.1.7 More care in the neighbourhood Persons with a chronic care need or reduced self-care ability generally want to stay at home longer. Achieving this wish is often made possible by a range of support from professional, but also from informal, care providers. Neighbours who help and volunteers form a valuable link between the person with a chronic care and support need and the society in which he must be able to participate for as long as possible. Growing loneliness and social isolation must be combated. Volunteers and informal caregivers must be able to rely on care and support in their vicinity that makes their effort more bearable. Local service centres, fewer mobile transport centres, centres for day care and day activities, services for family care, but also volunteer minders in the home and foster care can give the informal caregiver some respite and allow them some time for themselves. Buddy systems with motivated volunteers for people with mental health problems can facilitate their reintegration into society. Modified residential forms (such as social assistance dwellings) can have social effects because they make accommodation affordable. Initiatives in the area of occupational therapy can also be a useful addition for people with a disability who can no longer access the ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 22/77 regular job market. But other care players are also encouraged to organise themselves with a focus on the neighbourhood. Within the children's centres, the focus is on a strong collaboration between local actors and the local community to design interventions that reduce health inequality and make the services accessible. Actions: The future Flemish Institute for Primary Care will have the assignment to develop and distribute, together with the VVSG, methods based on good practices for the local administrations to facilitate initiatives around neighbourhood-driven care. 3.1.8 Local social policy The organisation of primary care cannot be viewed in isolation from the local social policy. Primary care and focusing on informal care operates, by definition, at the local or community level. The local administration’s role of director is unquestionable in this. This will be echoed in a new decree for local social policy. Local administrations will receive the assignment to include inclusive and integrated local social policy aims in their long-term plans. The existing instruments will be used for this, so that it does not involve additional planning tasks for the local administrations. In addition, we also foresee an important director’s role that translates into the best possible coordination of services with local needs. More specifically, the local government will achieve at operational level, possibly in collaboration with other authorities, the integrated broad recognisable reception. The local administrations are also the designated partners for assuming the role of director in the context of the socialisation of care. We refer here to such things as the development of initiatives in the area of community-driven care. Volunteers, neighbours, family and informal carers of persons with a care need, and players in the social, welfare and healthcare sector work together in such an environment to keep help and care accessible, affordable and available to everybody, and to promote social cohesion. 3.1.9 The care providers in primary care General practitioners, dentists, nurses, midwives, pharmacists, physiotherapists, social workers, occupational therapists, primary care psychologists, dieticians, speech therapists, podologists, care workers, etc. form the basis of primary care in Flanders. All play an essential role in the care of the person with a care need. Each from their own expertise, competencies and capacities. They provide support and advice from birth to the final days of life. The general practitioner provides medical support and advice for both acute and chronic care needs. From a relationship of trust, sometimes lifelong, with the person with a care need, he is in an excellent position to listen to the care needs of the person and to offer advice that can contribute to the prevention of conditions, to early detection and intervention, to the healing and changing of the person’s lifestyle. From his position, he is ideally placed to detect and treat physical, mental and social problems and where necessary to make referrals. The medical responsibility is with the general practitioner. There is no discussion about this. The operating area of nurses is formed by the home or alternative home environment of the person with a care need. The strain from the manipulation of less mobile persons, and the time pressure on home-care nurses caused by the many journeys in increasingly congested traffic, form risk factors. More so than the GP, the nurse enters the familiar environment of the person to perform nursing activities that are aimed at solving his problems or at least opening them up ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 23/77 for discussion, and thus to support or reactivate the daily activity. Their signalling function is vital. The midwives focus on supporting the pregnant woman and on mother and child after the birth. There role is becoming gradually more important since perinatal care is becoming less an inpatient activity. Pharmacists make an indisputable contribution to care with their support and advice concerning the correct use of medication. The polymedication of the elderly and persons with a chronic care need imposes specific challenges on them concerning therapy loyalty, having insight into the medication schedule of care users and informal caregivers, and the correct use of the prescribed medication. Their tasks also include an important social component, since they are an easily accessible link in the primary care chain. Persons with an acute or chronic care need will sometimes wish to get things off their chest. The pharmacist is often one of the first contacts when illness strikes or a point of multiple contact for a chronically ill person. In this way, they build up a relationship of trust with the person with an ongoing care need or with their informal caregiver. Dentists are the first point of contact in oral care. An increasing number of elderly people have, thanks to good dental care in the past, been able to retain their teeth until an advanced age. This demands a specific focus and approach, taking into account the limited mobility and more brittle tissue and teeth of older patients. Good oral care contributes to general health. The physiotherapists also make an important contribution to the person with a care need. Both in their own practice and in people’s homes, they increase the quality of life of persons with physical needs. The physiotherapist concentrates largely on human movement in the context of healthy functioning. Together with the patient, he tries to promote the physical possibilities and activities of that person. The physiotherapist also contributes to the preventive health aims (e.g. prevention of falls, combating a sedentary lifestyle). A role that is becoming increasingly important in an ageing society, in which people exercise less. Another profession that focuses on the maintenance or recovery of physical functioning is the ergotherapist. His support is aimed at regaining, improving or maintaining performance in the learning, living, working and leisure situations of people of various ages. Together with the person with a care need, he searches for a way of participating in day-to-day life. The social worker directs his activities at normalising, expanding and promoting action possibilities of the person with a care need in relationship to the environment. Exploring and achieving entitlements intended to increase access to provisions in all life areas is part of the core task of social workers. Today the emphasis is rightly placed on the fact that the person with a care need must take control of his own care. But there are circumstances in which this demands (not only) changes by the person himself but also from the environment and society. Social workers shape this from a social signalling function within a provision or agency, but also via community work and specific participation processes. All this with the aim of also focusing on structural changes. The primary care psychologist23 treats mild psychological complaints, provides short care (maximum 5 sessions) and works together with the general practitioner. The problem is clarified during a consultation with the person with a care need and an assessment is made as to how the 23 In Flanders there are currently 7 pilot projects in the primary care psychological function financed by the Government of Flanders. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 24/77 problems could be tackled. When more serious psychological problems are detected, the person is referred to more specialised mental health care. The primary care psychologist mainly focuses on increasing the self-reliance and resilience of the person with a care need within his or her context and close to home. He provides (early) clinical psychological, generalist and short-term support. The primary care psychologist is there for all age groups and must also be accessible for vulnerable groups. The care worker has become indispensable as the care provider who is responsible for personal care and for the person with a care need functioning well in his home or temporary home environment. The care worker is also responsible for the home environment of this person, with whom he can gradually build up a relationship of trust. He carries out the actions autonomously, in compliance with the residential care decree. A nursing care worker is specifically trained to undertake 18 nursing supportive tasks. Those tasks are delegated by a nurse. The nursing care worker performs this tasks under supervision of a nurse and is part of a structured team. In addition to the 18 tasks, a nursing care worker also performs the tasks of a care worker. In a short time, this discipline has developed onto an indispensable link in primary care. The podologists examine persons with complaints of the feet and do this in relationship to the higher body parts, such as knees, hips and back. The podologist fulfils an key role in the treatment of persons with conditions such as diabetes and rheumatism. This profession is thus indispensable in achieving care pathway contracts of persons with diabetes type 2. The correlation between exercise and nutrition has been identified for some time, for example in the preventive healthcare policy. An important profession in this area is the dietician. This care provider supervises and supports persons in adapting nutrition and living habits. They thus fulfil a role both in health promotion and in the support of persons with a medical condition. The most important characteristic of the care providers in primary care is their accessibility for the person with a care need. With their generalist view on the care needs, they deliver the most suitable care themselves, or they ensure a suitable referral within primary care or to the more specialised care. Digital data-sharing is increasingly becoming a condition for qualitative care and the evolution in this area is progressing so rapidly that the care providers must be supported in it. The project eenlijn.be attempts to close the unquestionable gap between the young and the older generations, but also between the disciplines, through adapted training courses. The Government of Flanders wishes to make eenlijn.be more sustainable and to incorporate the current, project-based operation in the Flemish Institute for Primary Care. Care providers in primary care must be supported by all levels that hold or will assume responsibility in this area (primary care area, regional care area and Flemish level), whereby good task designation for each level of support and harmonisation of the support forms are essential. Overlap in structures and tasks must absolutely be avoided. The support must be able to respond to the demand side, and for articulating the demands concerning support of primary care, an effective Care Council from the primary care area is very important. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 25/77 3.1.10 The residential care players are structurally part of primary care Based on a vision of socialisation, care is provided in the person’s own living environment where possible. Informal care and the community are of essential importance here. We can only achieve this if there are also adequate and accessible professional care services available. A wide range of customised professional care and support can be offered as soon as it becomes necessary, needless to say with a focus on the person with his care demand, but equally in support of the informal care. Residential care players include the home care provisions and residential care forms that are recognised by Flanders via the Flemish Parliament Act on Residential and Home Care.24 Family care and supplemental residential care Services for logistical help Minder services Home nursing services Foster care services Social work services of the health insurance funds Local service centres Regional service centres Associations of Care users and informal caregivers Residential care centres Short-stay centres Centres for day care Groups of assisted dwellings Convalescent centres The residential care players are a structural partner of primary care and consequently are explicitly part of the primary care area (see later). Both residential elderly care and home care are currently in flux. The draft paper ‘Flemish welfare and care policy for elderly people. Close and integrated. Vision and Agenda for Change’ outlines the future care and support policy for the elderly people in Flanders. The paper focuses attention on, among other things, the coordination and integration of assignments and tasks and avoiding overlap between the various provisions. At the same time, the demands, needs, autonomy, freedom of choice and quality of life of elderly people are given a central position. The content of this paper is complementary to the policy vision on future integrated care provision in primary care and the implementation of the future framework of operations for the services for family care and residential care centres. In carrying out this draft memorandum, an updated operational framework is being developed with the involvement of the sectors. 24 Flemish Parliament Act on Residential and Home Care of 13 March 2009, available via https://www.zorg-en-gezondheid.be/woonzorgdecreet-van-13- maart-2009 ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 26/77 3.1.11 Family care The services for family care and supplementary home care offer customised care and support to all families. At all stages of life, going from maternity care to support in the last stages of life, a claim can be made on the services for family care. Family care can only be effective if it has a place within an integrated care and support provision around the person with a care demand, with this person being in control of his own care. The services for family care work in that sense closely with all the other professional and informal care players in the care team that is put together by the person with a care need. This care team can be broader than the normal primary care services. Providing family care in a context of, say, persons with psychological problems, persons with a disability, problematic upbringing or poverty of opportunities demands close collaboration with the specialised care and welfare provisions. The aim of family care is that the person in need of care can remain as long as possible in his chosen living environment, thanks to appropriate care and support. The home environment offers a sense of security, carries a lot of memories in it, engenders rest and stability. Limits of home care must, here, be opened up to discussion. The starting point of care and support services is the careful drafting of the care, support and development objectives. These objectives arise from a needs assessment and are determined at the indication of the person with a care need. The objectives that family care aims to achieve are, in other words, objectives that the person with a care demand has in mind within an integrated, coordinated care and support plan. When developing the future vision, we want to pay attention to a more community-driven operation of family care. Making family care flexible is part of this. In addition to the individual support in the person’s own home, we want to stimulate initiatives to jointly support persons, in consultation with the person with the care demand, his informal care and surroundings, on a small scale and locally. This could be possible, from a broad range of residential forms to a centre for collective day care. We must hereby take into account the mobility of the person with a care need. 3.1.12 Residential care centre The residential care centre has, in recent decades, undergone many transformations: it has evolved from old people's home and rest home to residential care centre. The term residential care ‘centre’ refers to the fact that, in addition to 24/7 accommodation, support and care in the centre, a diversity of residential care forms can also be offered with the aim of achieving customised care and support: groups of assisted dwellings, centres for short stay and day care, local service centre, night care for the community, etc. The residential care centre has literally become the crossroads within primary care from where support and care in the community can be offered. In this context, the residential care centre is becoming increasingly important as regards support and care that is offered in the community, the neighbourhood or town, in consultation with and to reinforce the residential care. The residential care centre is part of rapidly evolving primary care. Under the influence of the large social consensus on residential care, the expansion of possibilities for supporting informal care and the increasing intensity and complexity of care and support demands, a shift can be identified in the target group of the residential care centre. Where earlier relatively self-sufficient elderly people lived in a residential care centre for several years, it now appears that the care profile of the current residents of residential care centres shows an increase in ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 27/77 the intensity of care and a shorter length of residence. Care and support is visibly multi-layered and more intensive. In addition, residential care centres are being asked to adopt the care and support of non-elderly people with a prolonged and intensive care demand (young people with dementia, persons with a mental or physical disability, persons with a stabilised chronic condition, persons with a non-congenital brain injury), whether or not in collaboration with specialised provisions (decompartmentalisation). The residential care centre secures, together with the persons with a care need and their families, the community and all other welfare and care partners, a cohesive and community-driven approach to housing, care and welfare. The residential care centre does not stand alone. It is a fully-fledged partner in a broad network of care and support forms within primary care in the region in which it is active. The coordinating, consultative doctor (CRA) and the general practitioners working in the residential care centre shape, in consultation with the management and the care staff, a suitable qualitative medical policy. An assortment of not exclusively care related activities, initiatives or organisations can be linked to the residential care centre (under its own management or otherwise), such as childcare, activities of schools, local small businesses, classrooms for associations, companies, library, exhibition space, etc. It is an integrated part of an age-friendly community, area or village. This should be made possible via a suitable framework for infrastructural norms and via spatial planning. 3.1.13 Social work services The social work services provide demand clarification, offer care and pathway counselling in complex home care situations and have built up expertise in the context of a proactive approach to various target groups. The social work services of the health insurance funds also form an important bridge for the citizen between Flemish and federal authorities.25 From their unique position, they have a good overall picture of the intertwinement of (health) care, welfare and the social administrative aspects. That is why they are a point of contact for healthcare players such as general practitioners, hospitals, paramedics, etc. To address the increasing demand for supervision by social workers, we are reviewing the possibility for reinforcement. We also conclude that much synergy is possible between the assignments of the regional service centres and the social work services of the health insurance funds. We are investigating the possibility of having the assignments and resources of Regional Service Centres absorbed by other provisions that are included in the Flemish Parliament Act on Residential and Home Care. Actions: The residential care centre works, together with the persons with a care need and their families, the community, all other relevant welfare and care partners and local authorities, on a cohesive and community-driven approach to housing, care and welfare. 25 The federal pact with the insurance institutes ‘the health insurance funds will rapidly evolve from an administrative and benefit payments institution to a model in which the members are informed, assisted and coached to become familiar with the healthcare playing field, its players, the rights and obligations of the patient, the financial modalities, etc. Minister of Public Health and Social Affairs Policy Unit (2016, September). NISDI: http://www.inami.fgov.be/SiteCollectionDocuments/toekomstpact_verzekeringsinstellingen.pdf ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 28/77 The working groups26 started will work further on updating the vision and drawing up an inventory of obstacles experienced and identified in the operational field in legal, financial and organisational areas. In the primary care area, the residential care players have representation in the Care Council of the primary care area. The primary care decree will be thoroughly rewritten. Reconversion possibilities are being worked out with the umbrella organisations to reconvert prior permits or recognitions of residential units into residential care centres or short-stay centres based on the required and desired care services in the primary care area or regional care area. Customised support for all the families by the family care services will be explicitly developed as a framework. When developing the future vision, we will pay attention to a more communitydriven operation with specific attention to greater flexibility. To address the increasing demand for supervision by social workers, we are reviewing the possibility for reinforcement. For efficiency reasons, we are investigating the possibility of having the assignments and resources of Regional Service Centres absorbed by other provisions that are included in the Flemish Parliament Act on Residential and Home Care. Investments will be made into further expansion of residential care players. In the future, this will also be supported through the study by the Support Centre WVG ‘Prognosis of care need and model for budgetary control’: In this coalition period we have already invested, within the budget of Welfare, Public health and Family, in things such as expansion of the family and supplementary home care for which a growth path is provided; the growing intensity of care in the residential care centres; additional capacity for residential care centres and short-stay centres via the recognition calendar; the growth of day care centres and local service centres; social work. 3.1.14 More mental health care in primary care We want to bend the thinking in sectors and provisions in mental health care (GGZ) into thinking in care circuits and networks for achieving (care) functions and (care) programmes linked to age categories and specific target groups. This thinking makes it necessary for a regional embedding of mental health care. Inter-sectoral thinking is essential within the GGZ networks. Within this we are empowering the role that primary care, such as General Welfare Centres, youth help, etc. should take. These networks also have second and third care partners, such as centres for mental health care, psychiatric hospitals and centres for ambulatory revalidation. Evaluation of the project ‘Psychological primary care function for adults’ and experiences from similar, not funded by the Government of Flanders, innovative practices confirm the demand for an accessible, quickly approachable generalist basic care for mental health in primary care. The psychological primary care function for persons with a psycho-social care need who are treated for a limited period of between one and five sessions, is positioned within this basic care. Evaluation of the projects also teaches that referral to specialised care is often still necessary (up to 60%) because of the severity of the problem. 26 The following groups have been or will be started: groups of assisted dwellings, convalescence centres, day care centres and collective day care for elderly people, services for logistical help, local service centres / community care, mobile local service centres and community-driven operation, the social work services of the health insurance funds, regional service centres, Under 1 roof, informal care, legal position of WZC client, future WZC profile. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 29/77 The psychological primary care function is involved after referral by e.g. the general practitioners, the OCMWs, General Welfare Centres and social work centres of the health insurance funds, with respect for the free choice of the person with a care need. Collaboration between the mental health care and other primary care providers is crucial. With the coaching and informative role of the primary care psychological function, these partners are reinforced in the recognition of psychopathological problems and are stimulated to set to work or to refer patients quicker and more focused. The primary care psychological function has the desired competence profile and the necessary expertise. The link with the specialised mental health care is vital, both for the quality of the care offered and for knowledge acquisition and dispersion. The input of the psychological primary care function should consequently also be coordinated in and with the networks of mental health care (including the network of adults ‘article 107’). The spread and expansion of specialised mental health care should also be included within the mental health care networks. For this, consultation with the federal government is necessary. The current boundaries of the mental health care networks, and also the operating areas of the mental health care provisions, will be homogenised on the basis of demarcation of the primary care areas and regional health area (see later). Collaboration with and participation of context and informal caregivers is a challenge, as too is the deployment of new methodologies, such as the organisation of a group offer, combining with online therapy. The current pilot projects in the psychological primary care function have been extended until the end of February 2019. We will also start with psychological primary care function projects for children and young people. The conclusions of the KCE study on the organisation and financing of psychological care (2016) will be included in this. This psychological primary care function for children and young people will be closely aligned with the ‘early detection and intervention’ programme for the implementation of the new mental health care policy for children and young people.27 This programme will concentrate on children, young people and young adults (0 to 23 years of age) from the first indications of a possible mental or psychological or psychiatric problem. Within this programme, particular attention will be paid to psychosis, suicide, eating disorders and addiction. Needless to say, strong links will be extended from this programme to primary care and organisations active in primary care, such as TEJO28. A broad rollout across Flanders of this psychological primary care function also necessitates consultation with the federal government concerning possible recognition and payment of clinical psychologists and special education experts for performances that are undertaken in the context of a psychological primary care function. The core assignments of the consultative mental health care platforms will be assumed by the support structure of the regional health zone (see later) and will help to support the primary care areas in the approach to mental health problems. They will have a bridging function between primary care and specialised mental health care and contribute to care-strategic planning. Actions: 27 28 www.psy0-18.be TEJO offers easily accessible, therapeutic support to young people between the ages of 10 and 20, short-term, immediate, anonymous and free. The service provision is undertaken by professional therapists on a voluntary basis. www.tejo.be . ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 30/77 We are looking for levers to increase the commitment of primary care partners in the GGZ networks. In the Flemish Mental Health Action Plan, which was submitted to the Government of Flanders on 16 December 2016, the psychological primary care function pilot projects for adults were extended until the end of February 2019 and reinforcement is provided for experimenting with a psychological primary care function for children and young people. This latter function should be closely aligned with the ‘early detection and intervention’ programme for the implementation of the new mental health care policy for children and young people. Integration with primary care remains necessary here. We will enter into consultation with the federal government on the possible recognition and payment of clinical psychologists and special education experts in the context of the psychological primary care function. The structure and core assignments of the consultative mental health care platforms will be assumed by the support structure of the regional health zone. The independent psychologists are invited to create an operational circle that corresponds with a primary care area (see above ‘The primary care area’). 3.1.15 Complex care There is no unequivocal definition of complex care. Often the link is made with a prolonged or permanent need for care that can evolve over time. Generally we can state that the complexity of care is determined by: The person with the care need: he has (a combination of) different needs in the corporal, psychological and social areas. Determining the care aims is complicated by this. The conditions of the person with a care need: social-economic problems, a variety of care providers, no informal care, care services not attuned to the care aims of the person with a care need, etc. The nature of the disorder(s): multi-morbidity, fragile elderly people, frequent (re)hospitalisation, polypharmacy etc. 3.1.15.1 Complex Care: good digital registration and collaboration At the moment, 70.1% of the Flemish population has a General Medical File in a GP’s practice29. A considerable share, but with the final aim being complete digital collaboration and data-sharing between all relevant care providers, this means we still have quite a way to go. Notwithstanding all the efforts undertaken by the care providers and the authorities in this country, we must conclude that we are not there yet. The ambitions are also high. That is why a sensible, cautious approach is necessary. We must have the courage to learn from our experiences, and state what the blocking and delaying elements are. All this should take place with a clear objective in mind. A radical digital collaboration and datasharing between care providers thus demands a clear perspective and specific ambitions that indicate the added value for the care providers and for the person with a care need. But there is also 29 IMA-Atlas: http://atlas.ima-aim.be. Since 2002, the Intermutualistisch Agentschap (IMA) has gathered data from the seven mutual insurance funds and has processed, analysed and interpreted them in the context of policy-relevant research projects. The IMA-Atlas, an initiative of the IMA, is accessible to the general public. If you have an email address, you can create a user profile online. In this way, you can access statistics and indicators - derived from the IMA databases - for Belgium, regions, provinces, districts and municipalities. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 31/77 a need for a justified, realistic approach that takes into account as far as possible the possible dependencies for the stakeholders, the levers that are available, any technological barriers, financial thresholds, etc. The most important condition that must be fully satisfied is the need for an unequivocal commitment from all the care providers and stakeholders involved. In other words: everybody must participate. That is the task of all of us. The Government of Flanders shares the ambitions concerning the aim of the federal government to achieve complete digitisation of the GPs’ medical files by 2020. Flanders also wants the multidisciplinary sharing of a care and support plan to be in place by 2020. This reflects the philosophy of the eGezondheid [eHealth] action plan to evolve into a ‘multidisciplinary patient file’ whereby relevant data are made accessible. The Government of Flanders is investing in Vitalink, since accessibility of the data and user-friendliness can increase for the care providers and citizen through mobile applications (M-health). Flanders also wants the multidisciplinary sharing of data by digital means to be a fact by 2020. It will achieve this by drawing up the demands that the electronic patient files of each professional group must meet and linking virtually the electronic patient files of the various professional groups into one shared file. The first step here is the medication schedule, a subsequent one is the journal and agenda function. These ambitions take the designated pathway in the context of the e-health plan into account as far as the approach is concerned. We will coordinate our ambitions around the digital journal, the agenda and care aims in consultation with the federal government and the stakeholders from the sector. In the process that Flanders is undertaking as part of the e-health plan, we are opting for BelRAI (screener) as a uniform grading instrument as part of the Flemish Social Protection. In this way, the care need can be measured in a uniform way. The BELRAI will be introduced gradually in the various sectors of the VSB. The needs assessments are not disconnected from the care process. This should also lead to less strain for the person with a care need and to a reduced burden on the primary care providers (residential care players, general practitioners, nurses, occupational therapists etc.). Decreasing and simplification of the administrative burden is, incidentally, a general aim of digitisation in care. The professional care providers will therefore be able to use BelRAI for in support of clarification and assessment of the care need, with a view to drawing up a care and support plan. The use of BelRAI offers other advantages, such as optimisation of continuity and quality of care, a common language for the care providers, optimisation of inter-disciplinary and inter-sectoral collaboration and a systematic monitoring of the care need in a standardised way. Actions: By 2020, Flanders will realise a digital care and support plan for the care providers. An initiative will be started to develop and test a standardised care and support plan. Vitalink is the platform for digital data-sharing in primary care in Flanders. We will provide userfriendly access for care providers and citizens. Together with the federal government, Flanders will focus on further digital data-sharing between care providers as formulated in the e-health plan. BelRAI will be gradually rolled out as the uniform grading instrument in care in the various care sectors in the context of the Flemish Social Protection. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 32/77 Initiatives will be undertaken to lend transparency of online and m-health applications that can give support in a validated way via new technology in care and welfare. Continuation of the eWZC action plan. 3.1.15.2 Complex care: the multidisciplinary care team and care coordination For a complex care problem in which multiple care providers from various disciplines are involved, a care team is created. The person with a care need and his informal caregiver form an integral part of this. The composition of the care team is made, initially, by the person with a care need and, if this is not possible, by his informal caregiver based on complete freedom of choice. This care team is thus a customised team that is composed by the person with a care need and has sufficient capacity, expertise and mutual communication possibilities in order to make adequate care and treatment possible. Based on the analysis of the care needs and the desired quality of life, the care aims are determined as suggested by and with the person with a care need. For the realisation of each care aim, care providers from different disciplines can be involved. If informal care is present, the support requirements of those persons (informal caregiver) will be clearly formulated and translated into care aims and associated acts or actions. Within the care team, the following tasks (not exhaustive) must certainly be included and designated: together with the person with a care need, investigate and evaluate what his needs and care aims are; bring the person with a care need, if necessary and desirable, into contact with additional services, or involve these directly, taking into account the freedom of choice of the person with a care need; together with the person with a care need, develop a care and support plan and assess which components of integrated care are applicable (e.g. prevention, presence and support of informal caregiver, etc.); allocate the care aims with actions to members of the care team and reach agreements together on how these will be achieved; evaluate whether the care and support matches the needs and care aims and analyse where the gaps and problems are; adjust the care aims and/or the care and support plan on the basis of the evaluation; etc. Within care teams, familiarity with each other’s way of working via clear collaboration agreements and digital data-sharing is important for the continuity, efficiency and quality of care, and this with a minimum of administrative burden. Assuming the freedom of choice to compose a care team according to the preferences of the person with a care need, the individual members of a care team can thus be expected to do everything to guarantee quality care, accessibility and efficiency of collaboration. The complexity of the care process and the number of care providers present in the care team sometimes demand a coordinating function. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 33/77 Coordination of the care is a role that is assumed - in order of preference - by the person with a care need or his informal caregiver or a professional care provider from the care team, and means that somebody in the care team is given the mandate by the other members of the care team to: monitor whether the agreements made are implemented and if necessary to take action; stimulate consultation between the care providers and, if problems arise, to initiate multidisciplinary communication (organising virtual or physical consultation); evaluate, together with the person with a care need, whether certain needs have be solved or care aims achieved; work closely with the informal caregiver and offer support to the informal caregiver; involve as much as possible the person with a care need in the care and try to recognise as much as possible his control at each step. promote care continuity by ensuring a rapid transition between the various care situations. The care coordinator is the link between the care at home and in the hospital, the mental health care, the residential care centre (incl. day care and short stay). During an admission, the care coordinator is the contact point for the in-patient care and home care. All this with respect for the freedom of choice of the person with a care need. The responsibility for the medical aspect of the care process is always with the GP. The care provider who assumes the role of care coordinator never acts in the place of another care provider from the multidisciplinary care team. Depending on the primary focus in the care aims, the person with a care need, his informal caregiver or a certain discipline can be more properly assigned this role: the GP (for primarily medical problems), the social worker (for primarily social or welfare problems), etc. The care coordinator is designated by the person with a care need or his informal caregiver. Actions: The federal government will be asked whether the reform of RD No. 78 will allow the inclusion of care coordinator in the description of the professional profiles. Suitable extra training should be provided for the care providers to allow them to perform this role properly in a qualitative manner. 3.1.15.3 Complex care: case management in action For the deployment of a case management function, we must assume an exceptional situation. Realising the care process and care coordination within the care team will be the norm. The figure below is an adaptation of the Kaiser Permanente Pyramid. In addition to the various categories of persons with a care need, it also shows the distinction between care coordination and case management: ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 34/77 This figure shows that the case management function is reserved for persons with a major and particularly complex help and care demand. The number of situations that consequently arise for case management must be restricted. The request for support through a case management function can only be made by the care coordinator from the care team after consultation with the other members of the care team. After this consultation, a decision can be reached together as to whether to invoke support through this case management function. A constant in this is that the deployment of a case management function can only be invoked for persons with a particularly complex care situation, whereby the care team is made up of a variety of care providers from various disciplines who request and initiate the case management. Which exceptional situations can justify the deployment of a case management function? Very complex care situations or persons with multiple chronic situations, whereby one or more of these conditions can lead to a severe loss of autonomy. The care team in crisis: the care team reaches the limits of its possibilities and capacities through an increasing degree of complexity in the care situation. A conflict can also arise between the person with a care need and the care providers. The refusal of care by a person with a care need. The surroundings (family or professional) ascertain that the care and support is not functioning properly and the care needs are being insufficiently addressed. For example, if the informal caregiver reaches his limits with regard to providing care, but the person with a care need still refuses all professional care and support. The case management function forms a temporary support for the care team. The care team remains fully responsible for the care process. To arrive at a reliable and permanent solution with the care team, the case management function analyses the following steps that have been taken: 1. Has an analysis of the situation taken place? 2. Is there a general multi-disciplinary evaluation (BelRAI if the person is elderly)? 3. Has a care and support plan been drawn up based on interdisciplinary consultation? ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 35/77 4. How is the implementation and coordination of this care and support plan operating? Is the plan being kept up to date? 5. How is the monitoring of the care and support of the person with a care need progressing? This analysis must show which steps should be taken by the case management function in order to tackle the problems. This can result in: 1. taking steps that have not, or have not sufficiently been taken; 2. adjusting the care and support plan; 3. supporting the care coordination. The case management function will carry out an evaluation to assess whether the intervention has resulted in optimisation of the care provision. The case management function will be undertaken by an expert, who is not a member of the care team around the person with a care need. The expertise of the case manager should reflect the main problem off the person with a care need. When developing the profile and role description of the case manager, account will be taken of experiences from care research areas, care innovation projects, chronic care pilot projects and the pilot projects from the coming appeal (see actions). Anyone wishing to fulfil a case management function will have the necessary competencies for this or will obtain training in them. The person who performs the function will have the following competencies in various areas: Knowledge of the social map; Knowledge of health and welfare care; Knowledge of the target groups; Communication skills; Interview skills; Administrative, technical and editorial skills; Organisational skills; Problem analysis and problem-solving skills. The conditions under which this function can be adopted must be developed further. Actions: The legislation concerning multi-disciplinary consultation will be thoroughly revised in close consultation with relevant experts. The use of modern communications technology (instead of physical consultations) for consultation will be enabled. In order to determine workable contours for a case management profile, an appeal will be launched for pilot projects that prepare the path for a Flemish rollout. Criteria and conditions for the introduction of a case management function will subsequently be included in legislation. Existing forms of care coordination and case management will be better attuned to each other, so that the possibilities for this become more transparent. The care team will be supported by the primary care area (see later) in the implementation of the methodology of integrated care planning (see later). ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 36/77 3.1.15.4 Primary care opts for digital care coordination In the previous sections, the need for and the tasks of a multidisciplinary team, care coordination and, where necessary, case management, was explained for complex care situations. Good communication, clear agreements on the care aims, monitoring of the care tasks included and executed, etc. are essential for the success of the care coordination and the performance of the care team. The digital revolution in care offers the possibility of facilitating consultation about the person with a care need and collaboration between the care providers. For this, a sound concept is needed, with a clear spread of responsibilities, before investments can be made in applications that allow smooth consultation via the digital highway. Below we formulate a conceptual start of a digital care and support plan that facilitates consultation around the person with a complex care need, in light of the previously formulated function of care coordination and the tasks of the care team. Together with the medication schedule, the journal function (rapid and brief communications between the members of the care team about the care given) and the agenda function (who does what, when, for this person with a care need?) are two important additional building blocks in a digital care and support plan. The intention is that the care provider can, from his own package, consult all relevant and shared data on the person with a care need via the Vitalink platform, including from the patient’s home. Mobile applications (M-health) contribute to ease of use. Ease of use for the care provider and the citizen is thereby a priority and the responsibility of all stakeholders. Integrated care provision thus very clearly demands an integrated digital system. The care providers share relevant information from their electronic (patient) file (EPD) via Vitalink with the aim of an integrated Personal Health Record (PHR). Every person with a care need, and his informal caregiver under certain conditions (e.g. permission from the person), is given access to his shared information via a user-friendly application (viewer, web portal, app etc.) and can, in time, manage and share his own personal data from his personal electronic file (PHR), communicate with his care providers, make appointments, add data, virtual consultations etc. Additionally, there is a need for decision support and integration of CEBAM modules in order to promote evidence-based decisions and advice in a way that is feasible for the care providers, and the GP in particular. With a view to realising a digital and integrated care and support plan, the Government of Flanders will, in consultation with the care players and coordinated with the e-health plan, focus even more intensively on IT support of the care providers. However, simply focusing on support by developing supportive applications and offering an intensive training to the care providers, will not be enough. Among other things, Flanders will review the existing financing mechanism for multidisciplinary consultation and possibly other subsidy flows, and use them to stimulate digital collaboration. Actions: Within the data-sharing consultation committee of the Flemish Agency for Collaboration on Data-sharing between Players in Care30 that is to be set up, in 2017 we will start developing a 30 Remit and composition of the Flemish Agency for Collaboration around Data-sharing between the Players in the Care in short VASGAZ: see appendix ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 37/77 draft digital and standardised care and support plan. This draft will consist of three main parts: administering/coordinating care within teams, performing administrative task and reporting information. With this we are aiming for the following functionalities: Care section picture of information about care user from various sources (incl. Vitalink, BelRAI); communications, possibility for making remarks or comments on the care given, registering of certain important observations concerning the care user (= journal); who provides care around the care user, the care team; which care is needed, care aims; planning, who will provide which care and when (= agenda). Administration section Invoicing Administration Reporting section Policy reporting (big data). One initial point of attention in the care block is a section for journal and agenda in order to support communications between care providers. The digital and standardised care and support plan will gradually replace the existing e-care plans. We will take the legislative initiatives as quickly as possible to use the existing funding mechanisms and subsidy flows to stimulate digital partnership. First, the legislation that applies to this will be listed by the Care and Health Agency. In the context of the Flanders’ Care 2.031 Action plan, we will focus on digitisation. We will implement these actions fully. 3.1.15.5 Primary care is the requesting party for good coordination with the hospitals Person-driven care transcends walls, departments and lines. Integrated care is increasingly the rule for persons with a chronic care need (oncology, COPD, dialysis, etc.). Specialists and general practitioners, social work in and outside the hospital, the hospital and the home nurse need each other to ensure good continuity and other aspects of quality of care. Shorter stays in the hospital also means concentrating more on communicating with each other and data sharing. The interaction between hospital and primary care will become more intense and run at a faster pace. The hinge moments between different care forms often act as the weak links in our care system. Various initiatives have already been undertaken to improve integrated care agreements between general practitioner groups and/or partnership initiatives between primary care and hospitals, discharge managers in hospitals, the safe-deposits and the hub and meta-hub systems for integrated data sharing, the care pathways for kidney deficiencies and diabetes and the local multidisciplinary networks, etc. With the needs of the local population as starting-point, we can state that there is sufficient regional dispersion of basic specialist services. The task of a base hospital consists of offering specialist care that can be provided in a safe and high-quality way in the vicinity of the place of residence of the person with a care need. The services must always be based on the needs of the local population. 31 https://www.flanderscare.be/sites/default/files/media/VR%202016%200502%20MED%20%200056%202BIS%20Actieplan%20Flanders%20Care%20-%20Actieplan_def.pdf ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 38/77 Because of the ageing population with multi-morbidity and often reduced mobility, it is, after all, important that standard care is offered as close as possible to the home environment. The base hospital should also support the primary care players in their role, in order to care for the patient for as long and as comfortably as possible in their familiar surroundings and to avoid unnecessary hospital admissions and readmissions. We will define the activities of a basis hospital further, in consultation with the federal government. Actions: Agreements between primary care and the hospital in the region should be taken at regionalurban level (i.e. the level of the regional care area, see later) on the basis of a Flemish framework (cf. Flemish Institute for Primary Care). We will enter into consultation about this with the federal government. We will monitor, within the instrument of care-strategic planning, sufficient availability and accessibility of a qualitative range of basic specialist care in each regional care area. The following issues will be mapped: the instruments necessary in the area of infrastructure, equipment, logistics, medical competencies, current obstacles in the area of funding, norms and other cross-compliance (such as non-emergency recumbent patient transport, the consequences for management of future hospital networks, etc.). The regional care area will be given the task to make clear agreements with both primary care and the hospital care from the region on the basis of the Flemish framework concerning the carestrategic planning, etc. The regional care area will be involved in the care-strategic planning of the hospitals. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 39/77 3.2 SUPPORT OF THE CARE PROVIDERS Accessible care provision assumes clarity and recognition, for the citizen but also for the care providers. That is why we are restructuring, simplifying and integrating various network and consultation structures in primary care. This means more time can be given to care and support of the players in the care and less to consultation. For the reorganisation of the primary care landscape, the starting point is the principle that support of the care players should be decentralised as much as possible and thus placed as close as possible to the person with a care need and his care team. The restructuring will be clarified in this section of the text. For continuity of the support, no abrupt change will be implemented and we will provide a transition period, so that it is possible to achieve a carefully chosen redesign of the tasks and a gradual repositioning of the staff. We will ensure a seamless transition from the current situation with its consultation structures to the new landscape with a simplification and reduction of the number of consultation structures. 3.2.1 Primary care area In the primary care area, the primary focus is on support of the practice or the service provision and on the inter-sectoral partnership of local authorities-welfare-health. The primary care area is the geographic description of the area in which the local authorities and the service providers who develop their care and service provision there (including the partners of the integrated wide admission), try to shape their partnership and assume their responsibility for the population of that primary care area. The current SELs, GDTs and LMNs will be integrated into the primary care areas. This does not, of course, detract from the freedom of choice of the person with a care need to consult and use the services of primary care players from an area other than in the area where he lives. Choosing a permanent general practitioner and opening and updating a General Medical File with this general practitioner is, of course, strongly recommended because this offers the best guarantee for continuity of care and the creation of a relationship of trust. The primary care area must, first and foremost, be seen as a level at which the care providers are organised and where the needs of the population from that are identified. The Academic Chamber of Reflection advises primary care areas to the size of a population of 75,000 to 125,000 residents, which appropriately matches the number of micropolitan care regions in the current Care Region Decree. The current Care Region Decree was developed on the basis of a social-geographic study by Prof. em. Van Hecke from 2001. To increase the consensus for the primary care areas, it is appropriate that not only the behaviour of the population is taken into account, but also the local operation of the care and welfare organisations and the collective operations of independent care providers in primary care. An appeal to the primary care players and local authorities will be made to submit a proposal for a primary care area that has gained consensus and meets a number of criteria. When demarcating the primary care areas, the primary care players and local authorities must take into account a number of admissibility criteria: ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 40/77 A primary care area encompasses one (part of a large) city or two or more municipalities with a total number of residents between 75,000 and 125,000. An exception can be made to this based on historic (already existing consortia) or social-geographic arguments. If the primary care area is too large, this reduces the chance of effective partnership between the primary care players. If the primary care area is too small, it restricts the possibilities of support. The primary care area fits into the boundaries of one regional-urban care region or regional care area. Various primary care areas together form one regional care area. To be eligible as primary care area, the scope must have consensus among the important stakeholders, such as general practitioner group practices, consortia or representatives of professions, local authorities, residential care players etc. The primary care area does not make the coherent inclusion of the whole region in primary care areas impossible or very incoherent. Currently a merger movement is taking place at municipality level in several regions. Since a division of one municipality into two different primary care areas is not appropriate (this is not realistic for local authorities), a merger of municipalities will also have an impact on the final regional demarcation. In large cities, the division of the city into different primary care areas is sometimes necessary. Here it is appropriate to follow district or borough boundaries. The Government of Flanders is authorised for the recognition of general practitioner group practices. They are an important partner in a primary care area. Initiatives are also developed in a primary care area to support collective practices from other primary care disciplines, with, among other things, a view to proper representation in the Care Council (see further). The general practitioner group practices will be encouraged to align their area of operations with the primary care areas, so that the integrated care provision can be promoted. This can, in turn, have a positive influence on the embedding by the general practitioner group practices of the (federal) out-of-hours surgeries (the locations where the general practitioners organise their standby duty). The following tasks will be implemented at the level of the primary care areas under direction of the Care Council, when a qualitative integrated care provision has achieved its maximum development: 1. Stimulate the support of group practice operation by the various professional groups and interdisciplinary cooperation between the care providers in care teams and at the level of the primary care areas. 2. Promote substantive coordination between prevention, remedies, rehabilitation, supervision, support, etc. in welfare and health, including coordination with the Child and Family Agency (via Children's Centres) and with the Centres for Pupil Supervision, occupational healthcare, environmental health care etc. 3. The signalling at regional care zone or Flemish level of problems, bottlenecks or obstacles for which a solution cannot be found or cannot be sufficiently found within the working area. 4. Preparing consultation (based on data provided by the Government of Flanders or the Flemish Institute for Primary Care) on the required and desired care services in the primary care area. The result of this consultation in the Care Council will be submitted to the regional care area for further elaboration. A methodology will be developed (by Leuven University and Deloitte) for mapping the needs and requirements of the population and setting the objectives for the care provision and an optimum development of the care services in the primary care area. For the local application and analysis of the results, the primary care area will be supervised by the Flemish Institute for Primary Care. 5. Making multi-disciplinary recommendations operational by reaching local agreements on the application of the recommendations (e.g. via care pathways). This includes support for the care pathway supervision for diabetes type 2 and chronic kidney failure patients. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 41/77 6. Helping organise educational programmes, geared to the educational needs in the primary care area and particularly directed at professional development around all aspects of integrated care provision (interdisciplinary partnership, target groups (e.g. informal caregiver, the disadvantaged, vulnerable elderly people, persons with dementia etc.), and use of ICT applications for supporting the practical operations. 7. Supporting initiatives and practices of care providers so that care providers involve informal caregivers as fully-fledged care partners. 8. Offering support during the application of the methodology (under development) around integrated care planning for the person with a care need. The methodology around care planning encompasses the formulation of care aims, drawing up a care and support plan, care coordination, where necessary involving case management and offering support in concluding and negotiating care (pathway) contracts. 9. Helping the care providers with the solution of problems, bottlenecks or obstacles in the area of practical operation. 10. Supporting participation in the development of an integrated broad and recognisable admission, under the direction of the local authorities. 11. Stimulating local partners to take initiatives around community-driven care and offering support when implementing these initiatives (without acting in the place of these local partners). Specific attention is given here to the accessibility of care to vulnerable groups. 12. Participating in designing and implementing a Flemish quality policy for primary care, based on the directives and methodologies devised for this by the Flemish Institute for the Quality of Care. Both process and outcome indicators will be developed for this. 13. Assisting in making Flemish and local objectives for primary care operational, in partnership with the local partners and care providers. 14. Handling complaints for which no solution can be found between the person with a care need and the care provider concerned. (see further under ‘Quality policy) 15. Supporting local and supra-local care-strategic planning appropriate within the Flemish framework. Under the new local social policy decree, local authorities can take a collective initiative to develop a supra-local social policy. 16. Stimulating digital data-sharing between the care providers at the level of the primary care areas and helping to put this into practice. It is clear that there is still an important process to be undertaken to achieve the rollout of such areas, provided with the necessary support. In some regions there is (still) insufficient consensus to demarcate the area in a consistent way. The realisation of all the functions also presupposes a strong area governance and, of course, the necessary resources. For this we first and foremost look at efficiency gains through integration of existing structures, such as the SELs, GDTs and LMN. That is why a clear transitional process is necessary. After all, in the initial stage after the reform of primary care, not all tasks stated above can be assumed. Not least because placing autonomy with the care providers and stakeholders has farreaching consequences and implies a change of mentality and a learning process. We are assuming a growth scenario in which the development of primary care area operation will progress in phases. The tasks that must be given priority are: 1. Encouraging interdisciplinary cooperation between the care providers in care teams and at the level of the primary care areas and supporting (the development of) group practices in the various professional groups. 2. Promoting substantive coordination between prevention, remedies, rehabilitation, supervision, support, etc. in welfare and health, including coordination with Child and Family Agency (via the ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 42/77 Children's Centres) and with the Centres for Pupil Supervision, occupational healthcare, environmental health care, etc. 3. Offering support during the application of the methodology (under development) around integrated care planning for the person with a care need. The methodology around care planning encompasses the formulation of care aims, drawing up a care and support plan, care coordination, where necessary involving case management and offering support in concluding and negotiating care (pathway) contracts. The primary care area will be directed by a Care Council. This council is composed in a pluralistic and diverse manner and consists of care providers from various disciplines and of representatives of the residential care centres, family care, social work services, CAW, and local authorities, supplemented with a representation of the care users and informal caregivers and with, preferably, a local general practitioner as chair. The regional care area will keep available experts on prevention, palliation, dementia and mental health care for the Care Council. The choice has been made for a bottom-up approach. If, in an area, there is sufficient consensus and a Care Council can be installed and recognised, it will be eligible for support. This implies that the Government of Flanders can approve the demarcation of the primary care area if it can be demonstrated that the area satisfies the following criteria concerning start-up and operation: The Care Council consists of representatives of care users, informal caregivers and welfare and health players and also representatives of local authorities. The Care Council has adopted participation methods directed at the maximum involvement of the care users. The Care Council is the only legal entity recognised and subsidised by the Government of Flanders that the representatives participate in. During the transition stage - an evaluation of which will take place in 2021 - work will be undertaken with an effective partnership. The existing and new group practices will align themselves with the primary care area. The intention is, first and foremost, to deploy gradually, in a careful way and with respect for social consultation, employees working in the SELs, GDT and LMN (local multi-disciplinary networks) in the support and expansion of recognised areas and councils. In the course of the transition stage, these employees and operational resources will be transferred to the legal entity at the level of the primary care area. The intention is to recognise and finance one legal entity per primary care area. Thus, it is not the intention to set up new structures in a specific region alongside the existing structures. A thorough evaluation of the transition process will take place in 2021. Subsequently, the Government of Flanders can choose to impose the development of primary care areas in a more imperative manner. The achievement of these tasks will be a growth process. Initially, the emphasis will mainly be on the coordination, growth towards spontaneous partnership and agreement frameworks, culture change and identifying the needs for care. The partners of the Care Council will be stimulated to think about an expansion in the number of support employees. In addition to the reorientation of resources from the Flemish policy level, thought can be given to co-funding from the organisations in the Care Council, so that support can be strengthened over time. The expansion of a primary care area does not detract from the director role that local authorities have in the area of: The best possible coordination of the services with the local needs; Direction over the expansion of integrated broad and recognisable admission; Initiatives of informal care and community care. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 43/77 On the contrary, the primary care areas are supportive of the local authorities to adopt this directing role to the full and offer at the same time the possibility of tackling needs and problems that extend beyond the local level. In regions where no primary care area meets these criteria, a minimal support will be provided from the regional care area (see later). In dialogue with the local authorities concerning accommodation, the aim will be the maximum possible use of existing infrastructure, but with the guarantee that the employees can carry out their duties independent of the structure and its operation. Action: appeal for submitting an application for recognition as primary care area in 2017. 3.2.2 The regional care area (at regional-urban care region level) In the regional care area, area-encompassing expertise must be ensured that is on a higher level than the primary care area: because the critical mass for intervention must be sufficiently large (e.g. palliation) or because care and welfare and local authorities are only two of several operational fields (e.g. prevention and ‘health in all policies’). Here again simplification and integration of the structures and the increase of efficiency is necessary. As new functions and competencies are developed at Flemish level by the Flemish Institute for Primary Care, primary care areas and councils are recognised and their support becomes effective, the functions that must be adopted at the regional urban level can be further slimmed down. We will start initially with combining the current tasks around prevention, palliation, dementia and consultation around mental health care, each time within one and the same geographically demarcated regional area. For this, the existing LOGOs (prevention networks) palliative networks and consultative platforms, multidisciplinary support teams for palliative care, regional expertise centres for dementia and the consultative platforms for mental health care will create partnership agreements so that a suitable range of services is available in each care region. A number of the current tasks (such as drawing up education packages and certain takes involving raising the awareness of the population and care providers) will shift to the Flemish Institute for Primary Care. The multidisciplinary supervision teams for palliative care are not support structures like the other structures mentioned, because they also provide care. These must be geographically aligned with the operational area of the regional care area for the sake of clarity and transparency. The collaborative form that must be given to the regional care area will, in the transition stage, gradually be given shape and this will take place in consultation with the existing organisations involved. The aim is that one support structure per regional care area is recognised and funded and that the current support structures will consequently no longer be recognised and funded by the Government of Flanders. The Government of Flanders will ensure continuity of employment of the staff members that are involved in the transition. The shared savings through partnership will, according to the needs, be used at this level or at the level of the primary care areas. The funding will take place according to the characteristics of the operating area (size, number of residents, social-demographic characteristics etc.) and a portion of the resources will be allocated and justified per task and sector operation (prevention, palliation, dementia etc.). Regional care areas can, in all openness and transparency and on the basis of consensus, pool the funding of ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 44/77 certain tasks for specific groups (cf. coordination of partnerships of specialised mental health care sectors) and themes. The acquisition of funding via alternative sources will also be permitted. Several primary care areas together will form a regional care area. With a view to good partnership between the primary and secondary line, these regional care areas should ideally coincide with the future 14 (federal) hospital networks in Flanders, which in size are at the same level as the regional urban care regions of the Care Region Decree. Coordination and partnership with coordination functions within the welfare and health areas from other authorities (cf. federal government network coordination mental health care) is necessary. Coordination with the federal government is thus necessary. These regional care areas have the following characteristics: Coordination with districts of the clinical hospital networks, a population with a size of around 400,000 residents; the regional care areas encompass the entire Flemish territory; the regional care areas consist of several primary care areas; each primary care area is part of only one regional care area. The following tasks will be allocated to this level: 1. Adopting the tasks that until now have been performed by making available the LOGOs, palliative networks and partnership platforms, multidisciplinary supervision teams for palliative care, regional expertise centres for dementia and consultative platforms for mental health care, expertise around prevention, palliation, dementia and mental health care, to the primary care areas (education, support of care coordinators and case managers, good practices etc.) based on directive and education packages developed by the Flemish Institute for Primary Care. To make the agreements concerning support very clear, an agreement will be concluded with the primary care areas that belong to the regional care area. For a description of the current tasks, please refer to the appendix. 2. Coordination of the primary care services with the services of specialised base hospital care through the development of a regional strategic care plan in which the needs for basic care at the primary and secondary care level (primary care and residential care, social care provision and support, mental health care in primary and secondary care, general base hospital care, prevention and palliation) will be documented and submitted. When drawing up this strategic care plan, the contribution and participation of both the hospitals of the regional care zone or of the clinical network as primary care players is indispensable. The regional care area will act as articulation level between primary care and the specialised care services. The Flemish Institute for Primary Care will offer the necessary support for this. This collective thinking on development of the services to the benefit of a population by both the actors of primary care and the specialised care is more than ever relevant, considering the growing importance of integrated interactions, for example the increase of ambulant specialised care and daytime hospitalisation, preparing in the hospital for a return to the home situation, forms of extended rehabilitation, respite care for the informal caregiver, etc. Since the strategic care plan indicates needs at various levels, action will be required at local, Flemish and also federal level. It has already been stated that dialogue and coordination between the authorities are necessary. A strategic care plan that meets the quality criteria specified in advance will form the framework for the Government of Flanders against which individual applications from care providers (provisions) for permits, recognition or infrastructural fixed sums are assessed and is, in that sense, an important policy instrument. 3. Support of organisations that set up pilot projects or research with regard to better organisation of the care in the regional care area. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 45/77 4. Treating problems, bottlenecks or obstacles that are identified by the primary care area and for which no solution can be found at that level. In the bilingual area Brussels-Capital, the regional care area will be supported by the House of Health in consultation with the Flemish Community Commission and the Brussels administration coordination. A study will be made with these partners as to whether new legislation should include a separate Brussels paragraph, in order to be able to take into account the specific situation of the care players in the bilingual Brussels-Capital area. 3.2.3 The Flemish level: From Partnership Platform to a Flemish Institute for Primary Care After the primary care conference held in 2010, a Partnership Platform of Primary Care was set up by a Government of Flanders Decree in which forty representatives of virtually all stakeholders in primary care became acquainted with each other and met three times a year to discuss subjects of collective interest. Working groups were set up (i.e. the ICT working group, which, among other things, gives advice on projects to be developed under Vitalink). The preparations of the primary care conference of 16 February 2017 also began in this partnership platform. The working groups that have helped prepare this conference and the academic chamber of reflection put forward the proposal to set up a Flemish Institute for Primary Care. The necessary knowledge and expertise can be brought together in such an institute, which can support the broad primary care. In order to fulfil its role properly, the Flemish Institute for Primary Care will have a strong link with the federal government and the Government of Flanders, with research and knowledge centres and with universities. The operation of such an Institute will depend on government funding and will be directed by the policy. We are assessing how existing expertise can be bundled and how existing Flemish initiatives and structures can be integrated into the institute. The project-driven funding of éénlijn.be and the Expertise Point for Informal Care (which is to be created in partnership with the associations of users and informal caregivers) will be included in this. The partnership platform for primary care will also be integrated into the operation of the Flemish institute. Coordination will be sought with the recently unified welfare support centre and the future support centre function for mental health care. Preparing and revising legislation is unquestionably a task of the government, as is assessing the accountability of the public resources that are made available from the Flemish budget. We will assign the following tasks to the Flemish institute: 1. Bundling of expertise, evidence, experiential expertise necessary for the underpinning of integrated care models. For example: developing a framework for determining care aims of the person with a care need (methodology, digital support); developing a template for local authorities and care players in primary care for the organisation of community-driven care. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 46/77 2. Making available to the public a complete, up-to-date and customer-driven overview of the care services in Flanders, based on validated databases. 3. Making available digital and easily accessed welfare and care information for the informal caregiver, the person in need of care, professional care players and other interested parties. Making available a website where knowledge, methodologies and information about informal care is centralised and provided, accessible information about local support initiatives for informal caregivers, bundling know-how, stimulating knowledge acquisition, etc. 4. Informing the citizen about and involving him in the integrated care approach (raising awareness, strengthening position, general information). 5. Supporting an education policy and developing training courses. The task of implementing ICT expertise and support also fits within this framework. The current project-based funded task of éénlijn.be will be structurally embedded in the Institute. 6. Providing support to the primary care areas in the fields of organisation, funding, planning, strategic care planning, administration, etc. 7. Setting up innovative projects, stimulating innovation and offering support in their implementation. 8. Assisting in the formulation of proposals for a research agenda, e.g. for KCE, support centre, Institute for the Future, Flanders’s Synergy, universities, around funding mechanisms (e.g. pursuant to incentive funds, case management or care coordination and consultation), inflow and outflow in care, working models etc. 9. Offering support in the definition of health and welfare objectives and indicators for primary care which are suitable and can be monitored at the level of the primary care area and regional care area. 10. Developing a transparent and uniform complaints policy in partnership with the primary care areas. Complaints are an important issue for the measurement of quality. It is about the subjective satisfaction of the persons with a care need. 11. Facilitating and supervising the strategic care planning at the level of the primary care areas and regional care areas. 12. Collaborating with the Flemish Institute for the Quality of Care in the development of quality indicators that are applicable in primary care. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 47/77 3.3 PRECONDITIONS It is clear that the authorities will also have to undertake the necessary efforts to ensure that care and social services develop further in the proper direction. We assume that the care and support will perform efficiently and well if: Each care provider has thorough knowledge of the care services, so that a targeted referral and the composition of a care team becomes clear-cut; Cooperation is undertaken in an interdisciplinary way and information is shared digitally, based on the care aims of the person with a care need; Clear task agreements and a clear allocation of tasks exist; There is sufficient digital support to ensure that the care process runs as smoothly as possible; A professional mechanism exists for the professions (group practices); Adapted funding is provided, that promotes and supports the integrated and digital operation. Reorientation of existing funding streams will be reassessed for this. There is sufficient participation by the users. The care and support will be of high quality if: There is basic and ongoing training that teaches the care providers the necessary competencies and skills concerning integrated care and support, and use of e-health services; Sufficient care capacity is available; A quality policy exists, with objectives for primary care and a complaints policy; Substantive expertise can be supplied, provided with the necessary methodologies to support practical implementation; Coordination between generalist and specialist care operates smoothly; Care and support is coordinated to the requirements and needs of the population in the working area of the care providers; Good support of the care providers is present. There is room for innovation and entrepreneurship. Below we expand on several of these elements and indicate which policy actions must be taken to achieve all this. 3.3.1 Initial training and on-going training The correct basic attitude and competencies are taught in the initial training of the care players in the most efficient way possible. This implies that the initial training assumes an integrated care approach, in which the person with a care need takes the central position. During this training, attention is needed for interviewing the person himself, the process of empowerment, framing the care needs and linking the actions performed to these aims. The training should view the multidisciplinary approach to complex care needs as self-evident. Work placements and training on interdisciplinary partnership are needed. Care providers should learn these skills in order to include care coordination as a fundamental part of the care. With regard to accessibility of the care, attention must be given to the physical, psycho-social, cultural and financial obstacles that persons with a care need can face. Care players should also be able to find their way easily to up-to-date data on the care and welfare services and the availability of those services. They are trained from a broad definition of care, going from health promotion, disease prevention (including population studies), treatment of disease, monitoring after treatment to palliation and the ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 48/77 end of life. There is sufficient training about care and welfare among diverse age categories and target groups, so that the care provider can take a whole approach to the person with a care need. It is extremely important that the training provides a broad perspective of the profiles and expertise of other care providers. In this way, the care providers learn to recognise each other’s tasks and competencies and can correctly assess the added value of each care provider. The care providers of today, who have not yet undergone the training outlined above, require on-going training coordinated to federal initiatives. Action: Consultation with the Minister for Education concerning: initial training (and permanent training) of care providers; adding health literacy as a learning aim in the education policy; The successfully acquired know-how concerning support of the care providers, the development of a training policy and elaboration of training programmes with a view to implementing ICT expertise and support of the care providers, will be embedded in a sustainable way. The current project-based funded task of éénlijn.be will become a structurally embedded task of the Flemish Institute for Primary Care. Assessing what éénlijn.be can mean in on-going training. As agreed in the action plan eGezondheid32 between the federal government and the federated states, the following actions will be undertaken in advance: An ‘e-health’ subject in each training course in healthcare (doctors, pharmacists, physiotherapists, nurses etc.) with the number of hours or study points to be determined later. Inclusion of e-health in the competence profiles of the various care professions. Specific training on the actual use of e-health services (EMD etc.) is a mandatory element in all accreditation and further training systems. 3.3.2 Care capacity in primary care In addition to supporting the care players within primary care, and building further on the ‘Action Plan 3.0 - Making work of work in the care and welfare sector’, the policy concerning care professions and ensuring the necessary influx of manpower are essential. If the quality of primary care is to be guaranteed, it is essential to have sufficient, well-trained care providers. Analyses of the available figures show that important professional groups, active in primary care, may be on the increase in total, but that the need for new care providers is still very great, considering the increasing number of care providers who will retire in the coming years. The necessary attention for on-going promotion and attention for the various professional groups may therefore certainly not weaken. The Sixth State Reform has transferred important powers concerning this to the municipal level: the recognition of healthcare professions and setting sub quotas. As far as general practitioners are concerned, the Government of Flanders will, in consultation with the deans of the medical faculties, the federal government and representatives of the doctors, ensure that the number of potential general practitioners increases in terms of the total Flemish contingency of doctors. 32 Ehealth in the training via http://www.plan-egezondheid.be/actiepunten/12-opleiding-en-ict-ondersteuning-van-zorgverstrekkers/ ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 49/77 Action: consultation with the deans of the Flemish universities, representatives of the doctors and the federal government. A well-considered organisation for training of new healthcare professions, which makes it possible to reallocate tasks via the principle of subsidiarity, is advocated. This is also important for keeping care cost-efficient and affordable, but also for coping with shortages. For example, surgery assistants could be deployed for dentists and general practitioners, or nursing care workers to relieve nurses. To cope with the shortage of dentists, it could also be considered whether the admission test for dentists could be separated from that for doctors (without in doing so paving the way for circumvention of the admission test for doctors). Action: The Royal Academy of Medicine and the Dentists’ Associations will be asked for advice on this matter. Coordination with the federal government is also essential here. The federal government is competent for the regulations of the health-care professions. The federal government has announced a thorough reform of this via the reform of RD78. The Flemish Community has framed the following positions concerning this: Develop a better, clearer and specific differentiation between nurses holding HBO5 (higher professional education level 5) and those with a Bachelor degree. Retain the profession of nursing care worker. Upgrade care workers to nursing care workers. Action: A plea for greater clarity for differentiation in the care professions will also be developed. We give further implementation to the plan ‘Making work of work in the care and welfare sector 3.0’. 3.3.3 Support of primary care practice forms It is necessary to create organisational conditions so that care and welfare providers - with the professional expertise that is theirs - can collaborate on targeted care, across the boundaries of organisations. How can teams be facilitated which have as large a responsibility as possible to achieve this targeted care? What leadership does this imply? Who assumes which role within the group? These are open, learning networks that, according to the mission and the needs, for example concerning innovation, have a changing and open composition. Multidisciplinary partnership is thus taken as starting-point in all future developments of training, funding models, digital communications etc. The administrative burden with which care providers are confronted must be given special attention by authorities that must be open to suggestions from the care providers on ways to reduce this burden. Fewer and fewer young people find a solo practice inviting and are opting to enter into group practice (whether or not in the form of a firm). The profession of independent care provider is accompanied by greater complexity in the area of taxes, social status, staff policy, etc. The starting and organisation of a group practice increases this complexity. Because of this, independent care providers require support in the area of running a practice and particularly when starting up a practice. A better legal and fiscal framework will promote the social entrepreneurship of ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 50/77 independent care providers. The Federation of Liberal Professions and the professional associations play a crucial role in this. The Federation of Liberal Professions was given the task of developing models for integrated practices for independent care providers. In an initial stage, an inventory of existing initiatives (with special attention for forms whereby integration exists between health and welfare) was drawn up. The ‘best practices’ of integrated primary care by independent care providers were analysed. Legal and deontological obstacles (also those concerning nomenclature) were mapped and also the relevant needs and requirements of the care providers. In a subsequent stage, they will develop models for integrated primary care in which the following aspects of partnership in an integrated care organisation will be handled: the legal translation, deontological, pluralistic, financial, organisational and personal aspects, quality and participation and freedom of choice by the person with a care need. Several models of partnership are possible. The Government of Flanders is not opting for one approach in which all practices in primary care must be encapsulated in strict recognition criteria. The principles that we give primary emphasis to in our policy are interdisciplinary operation and integrated care and support, whereby the person with a care need is always given the central position and has complete freedom of choice. Important aspects that the government must enable for this include: the use of a uniform indication instrument, data-sharing via use of electronic patient files, facilitating consultation, clarity of the function of care management and care coordination, use of quality indicators, administration simplicity, etc.33 We also rely here on the dynamic of the care teams and care councils. The basic conditions for socially responsible care34 must be guaranteed: quality, performance, fairness and accessibility. The aspect of ‘accessibility’ is also an important basic condition for vulnerable groups, such as people in poverty. All care providers must also bear in mind this group of people, who often postpone care because of other problems (work, housing, financial problems, growing isolation). In order to provide clarity to the person with a care need about the care providers in his region, the social services directory will be adapted and supplemented so that he obtains insight into the care providers to which he can appeal. As far as general practice is concerned, the incentive fund provides a business establishment grant, a loan or support from a (tele) secretariat. The study into how the incentive fund35 works indicated that: the Incentive Fund is used a lot by general practitioners: more than half the Flemish general practitioners makes use of the secretariat support. every general practitioner is very positive about the support he receives (whether this is a bonus, a loan or secretariat support). 33 Draft memorandum on change agenda for elderly care via: http://www.jovandeurzen.be/sites/jvandeurzen/files/160205_Conceptnota_Vlaams%20welzijns%20en%20zorgbeleid%20voor%20ouderen_0.pdf 34 Vision memorandum : Socially responsible care. Strategic Advisory Council Welfare, Health and Family. Available via: http://www.sarwgg.be/sarwgg/document/visienota-maatschappelijk-verantwoorde-zorg 35 Van Roy, K., Peersman, W., De Lepeleire, J., Mamouris, P., De Sutter, A. ,De Maeseneer, J.& Goderis, G. (2017). Evaluation Incentive Fund report UGent and KULeuven. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 51/77 the Incentive fund has made a real contribution to professionalising the performance of the general practitioners, regardless of the form of the practice. the Incentive Fund was a push to think differently about the way of running the practice. the business establishment grant is not in itself a deciding factor in determining where to locate the practice. Impulseo has no effect on the density of general practitioners. The support centres were seen as an important added value. Following recommendations were made: 1. Continued focus on the appreciation of general practitioners and the recognition of their needs. 2. The primary objective of the support must remain directed at guaranteeing accessibility of the primary health care through good dispersal of the services and attention for socially vulnerable groups. 3. The criteria for determining areas with few general practitioners or priority areas should be more refined and diversified. 4. Support in running the practice in primary care can best be extended from (tele) secretariat support to other disciplines within the practice (surgery assistant, social work, nurse etc.). 5. Greater focus on stimulating and supporting partnership (multidisciplinary working). 6. The possibility for evaluation must be included from the start. These recommendations can be transformed by a differential allocation of (a limited part of the resources of) the Incentive Fund. In 2017, this amounts to 14,786,000 euros in total. While awaiting the development of the actions below in consultation with the general practitioners, the current operation of the Incentive Fund will be continued. Actions: In consultation with the umbrella organisations of doctors and general practitioners and the Flemish Institute for Primary Care: review the conditions for determining priority areas in the context of the Incentive Fund, based on social-demographic and social-economic factors; we will explore, for the setting up of surgeries in priority areas, whether and how the existing instruments and incentives (CIPA support and incentive bonus) can be harmonised, optimised and further allocated within primary care. we will assess the possibilities and conditions for extending the current concessions for administrative support to other disciplines in the surgery and to do this with a view to facilitating more integrated care and interdisciplinary partnership. This will take place within the budgetary possibilities. we will explore how electronic data-sharing and work placement support can be stimulated via criteria for the allocation of the aforementioned concessions. The social services directory will be adapted so that the necessary clarity exists about the services of care providers and organisations. We will also focus on ICT development and support as part of Vitalink. Via the service providers of the SME portfolio. Can the supervision of startup care providers be supported in development of their own practice training will be offered as part of the needs of the target group, such as care management, and in due time, if desirable, training on multidisciplinary partnership can also be created. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 52/77 3.3.4 Funding of primary care 3.3.4.1 Funding from the federal government A glance at the federal expenditure for primary health care shows a general budget of 4.3 billion euros for Flanders in 2017. This budget is divided as follows over the various budget items: honoraria logopedisten 1% Federaal budget 2017 - Vlaanderen honoraria kinesitherapeuten 10% subsidies diensten voor thuisverpleging 1% honoraria tandartsen 13% honoraria thuisverpleegkundig en 21% honoraria vroedvrouwen 0% honoraria huisartsen (incl. wachtposten) 22% terugbetaling geneesmiddelen in officina** 32% Over a period of five calendar years, this budget rose in total from 3.9 billion euros to 4.3 billion euros. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 53/77 Federale uitgave 2012 - Vlaanderen honoraria kinesitherapeuten 9% honoraria logopedisten 1% honoraria tandartsen 12% subsidies diensten voor thuisverpleging 0% honoraria vroedvrouwen 0% honoraria huisartsen (incl. wachtposten) 20% terugbetaling geneesmiddelen in officina 39% honoraria thuisverpleegkundigen 19% The Government of Flanders had, in contrast to this, a budget of 2.77 billion euros for the same primary health care. Vlaams Budget 2017 ondersteuning € 034 thuiszorg € 685 MBE € 008 ouderenzorg € 2,052 € 000 € 500 € 1,000 € 1,500 € 2,000 Millions ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 54/77 care Multidisciplinary support teams for palliative care €8,328,659 support sector Palliative Networks support sector €1,516,341 support sector Associations concerning palliative care between care institutions and services Collaboration initiatives in Primary Healthcare support sector Integrated Services for Home Care €1,399,617 support sector Local Multidisciplinary Networks €4,950,000 support sector support sector Impulseo business establishment grants, telesecretariat and surgery support Impulseo loans Flemish expertise centre and regional centre of expertise for dementia support sector General practitioner group practices home care sector home care sector Services for family care, supplementary home care, minders and foster care Social work services home care sector Local service centres home care sector Regional service centres home care sector Associations of users and informal caregivers home care sector Personal alarm appliances, Projects care Residential care centres care/welfare alternative employment measures WZC ex-DAC and GESCOs €44,846,000 care Day care centres, short-stay centres €45,709,000 prevention Local Health Consultation €960,697 €2,512,704 €14,786,000 €3,565,000 €1,656,000 €2,351,000 €657,174,729.33 €17,186,743.92 €7,755,719.59 €1,587,273 €620,306.34 €625,000 €1,953,000,000 €6,819,000 The funding from the NISDI includes the fees for the varied professional groups of RD No. 78. A large part of the budget includes the refund of medications. The latter also includes the fees of the pharmacists. The fact that the federal government is competent for the settlement of performances of the healthcare professions influences to a large degree the way in which the reform of primary care can be achieved. An integrated care organisation demands an integrated funding of that care. Such funding focuses on the accessibility of the care, quality of care, interdisciplinary partnership, coordinating the care for the promotion or retention of autonomy and the directorship role of the person with a care need. Person-linked funding is, according to the Government of Flanders, an important lever in this. The competences in the field of primary care will remain, despite the Sixth Reform, dispersed over the communities and the federal government. Collaboration and coordination is needed to arrive at a coordinated policy. A first step is the common action plan for integrated care for the person with a prolonged and complex care need. This plan is intended to promote a more integrated policy in the area of primary care. The most important line of action is the operation of pilot projects. Throughout Belgium, a maximum of twenty pilot projects will be started in June 2017; of these, 10 will be held in Flanders. The integrated care pilot projects are currently working on bottom-up proposals for an adapted funding system. Flanders is also asking them to experiment with person-linked funding. Lessons can ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 55/77 be drawn from their experiences concerning the feasibility and desirability of specific funding mechanisms. How the care providers, primarily those stated in RD no. 78, are funded and what their job description looks like is of considerable influence on the way in which these care providers organise and provide care. The RD no. 78 is currently under review by the federal government. The RD has two sections - one section with the profiles of the care providers and another on quality. The substance of both sections will influence the Flemish reform of primary care. Here again, coordination is required. The Flemish Community submitted an opinion to the federal government on the reform, in which it clearly expressed that a unilateral reform would have negative effects on the performance of the competences of the Flemish Community. For the reform of RD No.78, coordination will also be required around the care and service providers recognised by the Government of Flanders, in the care and assistance decree. Coordination is indispensable for arriving at an integrated care model. During the reform, the federal government should ideally also take into account developments within the integrated care pilot projects. Within these projects, thought is being given within a loose framework to appropriate elaboration of the allocation of tasks to allow care to be offered as efficiently as possible. 3.3.4.2 Funding from the Government of Flanders The Government of Flanders spends an annual budget of 2.77 billion euros on primary health care (see later). It is clear that, for example, via development of the Flemish Social Protection and the benefits and person-linked funding of help and service provision connected to it, a general framework must be developed for the coming years. This must be empirically validated (support centre WVG is currently working hard on this). Because this implies fundamental budgetary choices, everything must be done so that, when the next coalition agreement is concluded, long-term agreements can be made. In the meantime, further work will be undertaken along the growth paths set out (e.g. family care, residential care for the elderly, etc.) and possibilities within the available budgetary scope of the policy area of welfare, public health and family. The financial resources allocated by the Government of Flanders to the current support structures will be redirected to the new structures. Generally speaking this is a sum of 11,598,704 euros in 2017 (SEL/GDT, LMN, resources of GDT for multidisciplinary consultation: physical, coma and psychopathological and éénlijn.be). Currently there are at least 90.20 FTEs employed in the SEL/GDT and LMNs. In the transition stage, this funding will be gradually redirected to the ‘autonomous’ primary care areas, whereby there will be proportionately less resources allocated to the current structures, which will then die out over time. As appendix you will find an overview of the number of FTEs (2015) and also the available financial resources (2017). 3.3.4.3 Communicating budgets in closed barrels The sixth state reform undoubtedly gives the Flemish Community the opportunity of adding its own dynamic to the development of care as provided in primary care. But - and this was actually no ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 56/77 different before the last state reform - intensive consultation and partnership are absolutely necessary. The special legislative body clearly states that the performances undertaken by care providers (fees and the nomenclature (the list of provisions that are fully or partly compensation by the health insurance)) is a federal operation. The admission of, for example, primary care psychologists to the care profession for which performances are eligible for repayment fall under federal competence. The subsidising of the operating costs of hospitals is also a federal competence. Subsidising infrastructure costs of hospitals in Flanders and of single-community, Flemish hospitals in Brussels is, on the other hand, a competence of the Government of Flanders. When the Government of Flanders earmarks budget to update a traditional rest home bed (ROB) to a rest and care bed (RTV-bed) for residents with demanding care needs (an increase of the subsidy per residential unit that is occupied), this means, in the current situation, that the costs of the performance of physiotherapists are borne by the Government of Flanders and no longer the federal health insurance. When the federal minister shortens the length of stay in hospital for young mothers and their newborn baby, this increases the demand for maternity care at home that is provided by family care services which are financed by the Government of Flanders. A policy measure with budgetary impact which is taken by the federal government can thus also have an impact on the expenditure of a Community (Government of Flanders). And vice versa. But the budget forecasts and the budget expenditures do not coincide. The sixth state reform does provide binding legal agreements (in the special funding act) whereby an earmarked amount for the competences that are transferred is followed from the federal to the Flemish budget. But reorganisations that take place after the transfer of the competences under the sixth state reform must be funded (or lead to savings) within the own federal or Flemish budget. Action: A clear, transparent, proactive coordination between the federal government and the federated states in the inter-ministerial conference and in the Institute of the Future (which is still to be set up) is therefore necessary in the interests of the persons with a care need and care providers. 3.3.5 A digital primary care The Government of Flanders shares the ambition of the federal government and the other regions to achieve complete digitisation of the medical files of the general practitioner by 2020, in the action plan e-Gezondheid.36 For Flanders, this means that by 2020 the multidisciplinary sharing of a care and support plan will be a fact. The Government of Flanders therefore focuses further and more specifically on the expansion of Vitalink, as essential and crucial network of data-sharing in care, which is important for an integrated care provision, such as the journal and the agenda, as soon as the concept and the context of the use is sufficiently sharply defined and other preconditions are met. It is also important to continue coordination with the other authorities, as we do today in the context of the e-health plan. The datasharing agency will be the forum where the stakeholders of the Flemish welfare and health care sector find each other and where new concepts concerning data-sharing can be developed. The 36 Action plan eGezondheid 2015-2019 via http://www.plan-egezondheid.be/ ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 57/77 monitoring of existing projects and actions, such as those included in the e-Gezondheid plan, can also take place within this agency and collective opinions can be taken and agreements reached. Vitalink will, together with the associated applications, become the forum in which the care providers can work in an interdisciplinary manner on realising the care together with the person with a care need. The crucial condition that must be met in order to achieve our ambitions for a digital and integrated primary care is the unequivocal commitment of all care providers and stakeholders involved. As stated already: everybody must participate. But the ambition goes farther: not only the care providers in healthcare but also the care providers in the welfare sector should take the path towards a digital working environment. In other words, we do not just evolve to an e-health situation, but to an e-care situation, and only then can we really talk of integrated care. During various information technology projects that Care and Health have initiated in the recent past (2013-2016), considerable practical experience was acquired concerning data-sharing in primary care and also, for example, in elderly care. Through integrated care provision, a person with a care need comes into contact with various care providers within primary care, elderly care and specialised care. An optimum exchange of the relevant care and medical data between various care players is thus elementary for care continuity. Further attention will be given to various projects that facilitate integrated communications between the various care players in the day-to-day care practice. Within the eWZC project (digitisation of files in residential care centres), for example, various technical functionalities are being developed that make the exchange of data possible between hospitals, general practitioners, pharmacists and residential care centres, and with the BelRAI platform. This answers one of the objectives from the eGezondheid action plan to promote the exchange of data with all care institutions and players from primary care and the specialised care. Eénlijn.be is a broad change project to promote the use of ICT applications in primary care through training, e-learning and a helpdesk and to promote the partnership between the primary care players. It aims, through ICT, to promote the sharing of data between primary care players by using the e-Gezondheid services, such as Vitalink medication schedule, Vitalink SUMEHR (summary of essential medical data), Recip-e (electronic prescription) and the e-HealthBox (secured communication of personal data between healthcare practitioners). Between 2013 and 2016, in total 1,509 sessions were given to 17,250 care providers. The majority of these sessions were for general practitioners (around 90%). There were 6,251 visitors to the éénlijn.be website. A second project period started at the end of 2016 and is running until the end of 2019, whereby the range of training will be expanded and will evolve from supply-driven to demand-driven training. 3.3.6 Innovation and entrepreneurship In the context of offering and providing care, also in primary care, reference is often made to the term ‘social enterprise, or socially responsible entrepreneurship’. Social entrepreneurs aim, by means of their activities, to create social added value. In other words, irrespective of the legal status of the health and social care organisation, they do not aim solely for profit. The enterprise can ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 58/77 develop both within profit and non-profit organisations and attaches importance to both social and economic value creation to ensure the financial sustainability and the economic vitality of the initiatives. Social enterprise means being primarily focused on innovative, creative and flexible ways of offering demand-driven care and support. Within a rule-free context, with sufficient room for management, social entrepreneurs can respond to changing care and support requirements. It goes without saying that agreements with regard to information and transparency concerning the quality, performance and the price are part and parcel of this, together with a good staff policy. We also conclude that in primary care there are care providers active as self-employed entrepreneurs or as part of a firm. In that sense, there is also an element of market forces present, whereby the mechanism of supply and demand plays a roles. A health market mechanism with increased objectivity and transparency offers, in combination with social enterprise, added value to primary care in the area of quality competitiveness, cost efficiency, demand-driven provision and innovation. The most important innovation for the future of primary care is in the reform of care into a more integrated care system. This involves a change in thinking and attitude and a change in care processes. Innovation projects that have been initiated in this area in recent years include the Care Testing Grounds, projects of the Government of Flanders Architect (see appendix), the care innovation projects and the starting of integrated care pilot projects. The integrated care pilot projects are being implemented in partnership with the Federal Government and the federated states and were set up for the implementation of the collective plan for integrated care for persons with a prolonged care need.37 These projects contain all the elements that should lead to more integrated care: empowerment of the person with a care need, interdisciplinary partnership, quality policy, adapted funding, care coordination and case management, training etc. The aim of the projects is to give the care providers themselves the responsibility of organising care differently. The success of Vitalink, as network for data-sharing between the players in care, depends to a large degree on the effective use by the players in care. It is equally important that these players in care can avail themselves of the necessary adapted (user-friendly) software. Currently there is no formal consultation with producers of software for players in care. The new Agency of Data Sharing is asked how consultation and partnership with a representation of software producers can be organised. This would be a strong signal towards valuing their expertise in the further evolution of, among other things, Vitalink. This should improve the dialogue between, on the one hand, the players in care about their expectations and priorities concerning software/ICT solutions, and on the other software producers about the technological possibilities and priorities. Both target groups need each other, are dependent on each other and therefore a dialogue and cooperation are essential. The Government of Flanders will continue to stimulate and support innovative initiatives. Based on Flanders' Care 2.0, where we want to ‘improve in a demonstrable way and through an innovative range of qualitative care and stimulate responsible entrepreneurship in the care economy’, we want to make use of the results of the testing grounds and other initiatives. These can make an important 37 Collective Plan for chronic diseases. Integrated care for better health. Available via: http://www.integreo.be/sites/default/files/public/content/plan_nl.pdf ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 59/77 contribution to achieving innovation and entrepreneurship within the eco-sysstem of the Flemish Institute for Primary Care and, through extension, the entire primary care. Actions: In all our actions, we will ensure that this takes place with a minimum of administrative red tape, where possible with a reduction in costs and minimisation of rules. The Flemish Institute for Primary Care and Flanders’ Care will coordinate how, in synergy, the following actions can be included for primary care: Via the participation platform Flanders’ Care, we will announce the existing care and welfare initiatives in care and welfare in general and in primary care in particular. Monitoring, announcing and adding further to the existing innovation instruments and the possible support that can be offered. Identifying and dispersing “best practices” concerning innovation and entrepreneurship in care and welfare in general and in primary care in particular. Listing success factors, insights and experiences concerning care innovations both at home and abroad. Ensuring interaction with care providers and welfare workers from the very start (already at the concept stage) and in all other stages of the innovation process. Giving preference and focus to demand-driven innovations based on the person with a care requirement/citizen, the healthcare practitioners and the welfare workers. 3.3.7 Quality policy Implementing a quality policy is an indispensable element of integrated care. To tackle this specifically, we are working on determining the objectives for primary care. For this we can will gain inspiration from the health objectives that have been formulated and achieved in the preventive healthcare policy. This will require an analysis at Flemish level and at the supportive level of the care providers and resources available and also of the needs and risks of the population: number of elderly people, persons with a chronic disease, functional condition, addiction, etc. The primary care areas will contribute to the performance of this analysis. In addition, data from studies, complaints, quality measurements, BelRAI, information from patient and user associations will be included. Based on this, and in consultation with a broad platform of experts, players involved at various support levels and the population, the objectives will be drawn up. Indicators will be attached to these objectives. These indications will form the basis for the expansion of a quality policy that is supported through the participation of the stakeholders concerned. Indicators for measuring quality will preferably first be developed for each discipline. Measuring quality also demands a major culture shift for diverse disciplines. Only when the indicator sets prove stable enough and are sufficiently underwritten by the people in the field, can thought be given to measuring interdisciplinary partnership. The reform of RD No. 78 includes expansion of the area of quality on the agenda. The Government of Flanders will enter into consultation on this with the federal government. The Flemish Institute for the Quality of Care will develop the quality policy, together with the Flemish Institute for Primary Care. Both institutes will study together how to shape a transparent and independent complaints policy. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 60/77 Complaints policy is, after all, an important component of the quality policy. The complaints settlement will be, preferably, easily accessible and organised in a simple way, for example at the level of the regional care area. Since the authorities in a complex country such as Belgium cannot expect the citizen to distinguish between Flemish and federal competence in the area of healthcare, and thus also not know to which authority he should turn with a specific complaint (see appendix), coordination with the federal government is appropriate, with a view to achieving one point of contact or desk. This entire process must be carefully prepared and discussed with all the stakeholders before a start can be made on a new regulatory framework. For the implementation, the regulations on the Consultative Platforms for Mental Health Care can prove inspirational. The Consultative Platforms have an ombudsman function at their disposal, as stipulated in the law concerning the rights of the patient. The external ombudsmen of the Consultative Platforms are autonomous and independent and focus on all patients with complaints about their treatment or supervision, cf. the law on patient rights, within the specialised mental health care, running from Centres for Mental Health Care (CGG) to Psychiatric Hospitals (PZ). The Consultative Platforms are funded by the Government of Flanders. For the ombudsman function, psychiatric hospitals can choose to involved the consultative platform as external ombudsman function. This function is then partly funded by the psychiatric hospitals. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 61/77 4 CHAPTER 3. Transition Achieving the ambitions in this plan will take several years. It requires considerable consultation with all the parties involved. The regulatory process to achieve these ambitions will be started on the day following the primary care conference. Periodic monitoring, evaluation and, where necessary, adjustment are envisaged. During this transition period, the following activities are important: 4.1 PREPARING REGULATIONS The following regulations, with specific relevance to primary care, are eligible for amendment: Decree of 3 March 2004 concerning primary health care and the partnership between the healthcare providers Care region decree of 23 May 2003 concerning categorisation in care regions and concerning the partnership and programming of healthcare provisions and welfare provisions. Decree of 18 May 1999 concerning mental health care Residential and Home Care Decree of 13 March 2009, Government of Flanders Decree of 19 December 2008 concerning the partnership initiatives for primary care Government of Flanders Decree of 26 December 2015 concerning the general practitioner group practices Government of Flanders Decree of 9 September 2011 on the establishment of the Collaborative Platform for Primary Health Care Government of Flanders Decree of 7 October 2011 containing the designation of the members of the Collaborative Platform for Primary Health Care RD of 23 March 2012 on the establishment of an incentive fund for general practice and for framing it operational rules Royal Decree of 8 July 2002 on determining the standards for the special recognition of integrated services for home care Royal Decree of 14 May 2003 on determining the provisions stated in article 34, first paragraph, sub-section 13 of the law on the mandatory insurance for medical care and benefits, coordinated on 14 July 1994 Royal Decree of 15 December 2009 on the establishment of conditions under which the mandatory insurance for medical care and benefits allocates funding to the integrated services for home care Ministerial Order of 18 November 2005 on determining the amount of and the conditions under which a concession can be allocated for the provisions stated in article 34, first paragraph, subsection 13 of the law on the mandatory insurance for medical care and benefits, coordinated on 14 July 1994 Royal Decree of 22 October 2006 on establishing the conditions under which the Insurance Committee, pursuant to article 56, par. 2, first section, 3, of the law concerning the mandatory insurance for medical care and benefits, coordinated on 14 July 1994, can conclude agreements for the funding of therapeutic projects concerning mental health care Royal Decree of 27 March 2012 on establishing the conditions under which the Insurance Committee, pursuant to article 56, par. 2, first section, 3, of the law concerning the mandatory insurance for medical care and benefits, coordinated on 14 July 1994, can conclude agreements ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 62/77 for the funding of the participation in consultation around a psychiatric patient, the organisation and coordination of this consultation and the function of a reference person Government of Flanders Decree of 3 May 1995 on the recognition and subsidising of palliative networks Coordinated law of 10 July 2008 on the hospitals and other care institutions, article 10 Royal Decree of 19 June 1997 concerning the establishment of the standards that a partnership concerning palliative care must meet in order to obtain recognition Royal Decree of 19 June 1997 whereby some provisions of the law on hospitals, coordinated on 7 August 1987, were declared applicable to the partnerships for palliative care between care institutions and services Royal Decree of 19 June 1997 concerning the establishment of the subsidy allocated to the partnerships for palliative care between care institutions and services and concerning regulation of the allocation procedure Government of Flanders Decree of 6 February 2015 on the amendment of article 1 and repealing article 2 of the Royal Decree of 19 June 1997 concerning the establishment of the subsidy allocated to the partnerships for palliative care between care institutions and services and concerning regulation of the allocation procedure Royal Decree of 19 June 1997 concerning the establishment of the standards that a partnership concerning palliative care must meet in order to obtain recognition Royal Decree of 13 October 1998 on determining the minimum criteria that agreements between the multidisciplinary support teams for palliative care and the Insurance Committee established at the Service for medical care of the NISDI must meet. Royal Decree of 15 September 2001 on the implementation of article 59 of the programme act of 2 January 2001 International treaties legislation: Regulations EC 883/2004 and 987/2009 on the coordination of social security systems, and the bilateral agreements concerning social services Ministerial Order on the allocation of a project subsidy to the initiators who organise a local multidisciplinary network Ministerial Order of 20 July 2015 concerning the general practitioner areas In the new legislation, each primary care area, each regional care area and the Flemish Institute for Primary Care (to be founded) must adopt transparent operation, with public accountability of the resources that have been made available by the community. 4.2 REALLOCATION OF STAFF AND RESOURCES First of all, the sectors will be listed which will be absorbed into the new structures of the future. This exercise will result in an overview of available resources and staff. The transition assumes a gradual reorientation of the funding of operation and staff to the simplified structures in the new landscape. The transition assumes a gradual transition to the new structures, without double funding. We will adopt these with care for the employees. From the moment that the autonomous primary care areas are recognised, they will be allocated the resources and personnel. Staff and resources will also be allocated to the Flemish Institute for Primary Care, whereby first of all a review will be held of the reorientation of existing resources. The reorganisation of primary care is not hidden austerity. The focus is a strengthening of primary care whereby the ambition of the Government of Flanders is to continue to invest in primary care. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 63/77 The Government of Flanders will, in this connection, encourage co-funding for the primary care areas. Finally, it must be absolutely clear to the employees involved that their employment is not under threat. Naturally, every care will be taken and the necessary social consultation held. The transition process will be carefully supervised. 4.3 SHARING OWNERSHIP OF THE REORGANISATION It will, no matter what, be necessary to spread the new vision on integrated care and the reorganisation of primary care this entails to everybody who works in primary care or in the supporting structures. The conference on 16/2 is a first step in an entire transition process. Commitments from the professional group practices, from the LMN and the SEL/GDT, the services for social work, the local authorities and their welfare council and social centre, the CAW, the palliative networks/partnerships, the consultative platforms for mental health care, the expertise centres for dementia and the LOGO prevention networks are essential for this reform to succeed. Particular attention will be given to the education and supervision of employees who will be asked to help sustain and flesh out these reform. Ultimately, they will implement and embody the reform in the field. A participatory process will be set out for the preparation process and also in the post process, sufficient consultation will be held with those sectors involved in primary care. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 64/77 5 Summary Various independent care providers, organisations and structures have been providing accessible, high-quality and affordable care for many years. Because of the way in which these organisations and structures have arisen, care unfortunately also takes place in a fragmented way and from too many structures. The citizen can no longer see the wood for the trees and has insufficient grasp of the organisation of his care and support. The care providers see too much of their time consumed by administration and meetings. It must become simpler, more effective and more transparent, whereby the person with a care need has the highest possible control over the organisation of his care. The Flemish Coalition Agreement 2014-2019 includes simplification of the primary care structures and the strengthening of primary care. The Sixth State Reform provides the momentum for focusing entirely on this. A participatory process with six working groups gives us sufficient information and insight for seeing the necessary evolutions clearly. This text therefore outlines the policy direction for primary care in Flanders between now and 2025. The World Health Organisation has given us an inspirational model. The WHO model positions the informal caregiver, the volunteers and the neighbourhood as the first protective and supporting skin around the person with a care need, who takes central place. When care needs become more complex, primary care must be activated. Considering the increasing care needs of an ageing population, it is of vital important to be able to rely on strong, well developed primary care. Let us try to bend the lines into circles in a concentric model. From the circles of the concentric model we review the desired changes. Person with a care need at the centre Each person is entitled to care and support that allows the best possible quality of life. Helping people achieve the best possible quality of life and which they personally desire is the ultimate aim of our care and support. And so we come automatically to an integrated approach. Care and support in which lines, levels and sectors are subordinate to this aim and whereby care is offered in an integrated way. Care in which the person takes the central position and where the care providers, together with the person, map out the path to the best possible and attainable quality of life and help him achieve it. The term ‘help him achieve it’ is very important here. It suggests that the autonomy of the person is the starting point and the role of director is assumed by the person concerned, or his informal caregiver. To improve that autonomy, lifelong efforts are needed to gain empowerment and acquire healthcare skills. When the person is confronted with a complex or prolonged care need, we assume the ideal of self-management. If a person is confronted with a reduction in autonomy, the management role of the informal caregiver as trusted person must be fully respected. Informal care providers (family, friend, neighbour, volunteer and informal caregiver) must be placed on an equal footing with professional care providers. The Flemish informal care plan aims to strengthen that position of the informal caregiver. Persons with a care need or care demand or their informal caregivers often look for information and a suitable answer. There is also a need for reachable, easy to access, local admission functions, both physical and digital, where help-seekers and their informal caregivers can obtain all useful, objective ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 65/77 information about their support demands. We will bundle the expertise of the the General Welfare Centres (CAW), the Public Centres for Social Welfare (OCMW) and the social services of the mutual insurance funds in a partnership of integrated admission that is broad and recognisable. Community-driven care Persons with a chronic care need or reduced self-care ability generally want to stay at home longer. Being able to achieve this wish is often made possible by a range of support from professional, but also from informal, care providers. Neighbours who help and volunteers form a valuable link between the person with a chronic care and support need and the society in which he must be able to participate for as long as possible. Volunteers and informal caregivers must be able to rely on care and support in their vicinity that makes their intervention more bearable. Local service centres, fewer mobile exchanges for transport, centres for day care and day activities, services for family care but also volunteer minders can provide the informal caregiver some respite and allow them some time for themselves. The organisation of primary care cannot be viewed in isolation from the local social policy. Via a new decree, local administrations will receive the assignment to include inclusive and integrated local social policy aims in their long-term plans. Professional care General practitioners, dentists, nurses, midwives, pharmacists, physiotherapists, social workers, occupational therapists, primary care psychologists, dieticians, podologists, nursing care workers, nurses, etc. form the basis of primary care in Flanders. All play an essential role in the care for the person with a care need. Each from their own expertise, competences and capacities. They provide supervision and advice from birth to the final days of life. With their generalist view on the care needs, they deliver the most suitable care themselves or they provide a targeted referral within primary care or to the more specialised care. When developing a future vision, we want to pay attention to a more community-driven operation of family care. Making family care flexible is part of this. Residential elderly care is currently in flux. The residential care centre has literally become the physical intersection within primary care from where support and care in the community can be offered. The increasing demand for supervision and support by social workers in complex home care situations implies additional investment in social work from various authorities. The current pilot projects in the primary care psychological function have been extended until the end of February 2019. We will also start with primary care psychological function projects for children and young people. The care providers also have a part to play in preventive health policy. Methodologies are available for this and the care providers are supported in applying this in practice. Composition of care team and care coordination If the care situation is complex and demands the deployment of care providers from different disciplines, a care team is formed. The person with a care need and his informal caregiver form an integral part of this. The composition of the care team is made, initially, by the person with a care need and, if this is not possible, by his informal caregiver based on complete freedom of choice. This ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 66/77 care team is thus a customised team that is composed by the person with a care need and has sufficient capacity, expertise and mutual communication possibilities in order to make adequate care and treatment possible. Based on analysis of the care needs and the desired quality of life, the care aims are determined as suggested by and with the person with a care need. For the realisation of each care aim, care providers from different disciplines can be involved. If informal care is present, the support requirements of those persons (informal caregiver) will be clearly formulated and translated into care aims and associated acts or actions. The complexity of the care process and the number of care providers that are present in the care team sometimes demand a coordinating function. Coordination of the care is a role and this can be assumed by the person with a care need or his informal caregiver or a member of the care team. Depending on where the focus lies in the care aims, a certain member of the care team or discipline can more or less be designated to adopt the role of coordinator (e.g. more social problem, more medical problem etc.). The care aims, associated operations or actions, planning and task agreements, care coordination, evaluation and adjustment. All these elements find a place in the care and support plan. This forms the instrument for shaping, implementing, monitoring and adjusting the care process. We further focus on a complete digitisation of the care process. Case management function Only an exceptional situation can justify the deployment of a case management function. Achieving the care process and the care coordination within the care team are the norm. The number of situations that arise for case management must thus be restricted. The request for support through a case management function can only be made through the care coordination of the care team after prior consultation and in consensus with the other members of the care team. The case management functions forms a temporary support for the care team. The care team remains fully responsible for the care process. Anyone wishing to fulfil a case management function will have the necessary competencies or obtains a training for this. Digitisation of the care process When we talk of digitisation of the care process, we must of course think of the care and support plan. Together with the medication schedule, the journal function (rapid and brief communication between the members of the care team) and the agenda function (who does what when) are two important additional building blocks in a digital care and support plan. The Government of Flanders shares the ambitions concerning the aim of the federal government to achieve complete digitisation of the medical files of the general practitioner by 2020. Flanders also wants the multidisciplinary sharing of a care and support plan to be realised by 2020. This reflects the philosophy of the eGezondheid [eHealth] action plan to evolve into a “multidisciplinary patient file” whereby relevant data are made accessible. Support of the care providers For the reorganisation of the primary care landscape, the starting point is the principle that the support of the care players should be decentralised as much as possible and thus placed as close as possible to the person with a care need and his care team. In the primary care area, the primary focus is on the support of the practice or the service provision and on the inter-sectoral partnership local authorities-welfare-health. The primary care area is the geographic description of an area than houses about 75,000 to 125,000 residents. Local authorities ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 67/77 and the service providers who develop their care and service provision there work together (in, among other things, integrated broad and recognisable admission) and assume responsibility for the population of that primary care area. In the initial stage of the reform of primary care, not all tasks stated above can be assumed. We are assuming a growth scenario. Development of how the primary care areas operation will be phased in. An appeal to the primary care players and local authorities will be made to submit a proposal for a primary care area that has gained consensus and meets a number of criteria. The primary care area will be directed by a Care Council. This council is composed in a pluralistic and diverse manner and consists of care providers from various disciplines and of representatives of the residential care centres, family care, social work services, CAW, and local authorities, supplemented with a representation of the care users and informal caregivers. The people employed in the SELs, GDT and LMN will gradually be deployed in the support and expansion of the primary care areas and Care Councils. The intention is eventually for one legal person per primary care area to be recognised and funded. Support for palliation, prevention, dementia and mental health care will be placed at the level of a regional care area that encompasses an area with something like 400,000 residents. The idea is that several primary care areas fit into one regional care area. First and foremost, a partnership agreement will be concluded between the Logos, palliative networks and partnerships and the multidisciplinary support teams, the expertise centres for dementia and the consultative platforms for mental health care in order to gradually arrive at integration. Ideally, the regional care areas will coincide with the clinical networks of hospitals in one region, as these are viewed by the federal government. In this way, the regional care area can become the platform where primary care and specialist care meet and work together. A Flemish Institute for Primary Care will be founded. The necessary knowledge and expertise can be brought together in such an institute, which can support the broad primary care. We are assessing how existing expertise can be bundled and how existing Flemish initiatives and structures, possibly after a certain time, can be integrated into the institute. The partnership platform for primary care will be integrated into the operation of the Flemish institute. Initial training and continuous training The correct basic attitude and competencies for integrated care are taught in the initial training of the care players in the most efficient way possible. This implies that the initial training assumes an integrated care organisation. Work placements and training about interdisciplinary partnership are needed. Care providers should learn these skills in order to include care coordination as a fundamental part of the care. Care players should also be able to find their way easily to up-to-date data on the care and welfare services and availability of those services. It is important that the training gives a broad perspective on the profiles and expertise of other care providers. In this way, the care providers learn to recognise each other’s tasks and competencies and can correctly assess the added value of each care provider. The care providers of today, who have not yet undergone the training sketched above, require on-going training coordinated with federal initiatives. Sufficient capacity We are working on the implementation of action 3.0 ‘Making work of work in the care’. A wide inflow into the study courses for care professions must remain open in the future. It is also important ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 68/77 that the share of the general practitioners in the total number of graduated doctors increases. With my colleague from Education, we can assess whether the admission test for dentists can be split from that for doctors. Task delegation by, for example, “surgery assistants” for dentists and general practitioners, nursing care workers to relieve nurses etc. must be made more possible. Support of practice forms Several models of partnership between care providers are possible. Innovative partnership forms must be supported. Funding The competences in the field of primary care remain, despite the Sixth Reform, dispersed over the communities and the federal government. This includes the funding of primary care. An integrated care organisation demands, however, an integrated funding of that care. Collaboration and coordination is needed to arrive at an aligned policy. Digitisation in primary care Vitalink will, together with the associated applications, become the digital platform where the care providers can work in an interdisciplinary manner and share data with the person with a care need and his informal caregiver. The concept and the context of the use of functions to be newly developed, such as the journal and the agenda (who does what when with this person?) must be clarified. The commitment of all care providers and stakeholders concerned is necessary to book progress in the digital area. Subsidies and support mechanism will increasingly be based on digitised files with the care providers. Innovation and entrepreneurship The action lines of Flanders’ Care concerning data sharing, mobile health, assistant technology and aids, the chronic care model, new partnership and organisational models and care for talent have a strong relationship to innovation in primary care. Quality of care Primary care may not lag behind in measuring the quality of the care provided using quality indicators. The foundation of the Flemish Institute for the Quality of Care will become the think tank and database in connection with quality indicators, also for primary care. Complaints management forms a complementary component of the quality policy. Complaints about professional conduct of care providers will, however, fall under federal competence. Complaints about care and relief workers do fall under the Flemish competence. That is also true for complaints about the organisation and operation of primary care. Start of the reform This conference is a first step in a whole process. Achieving the ambitious aims sketched here will take several years. We all realise that a radical change process costs time and energy and cannot be achieved overnight. The time frame for this reorganisation of primary care extends until 2025 and will be regularly evaluated and where necessary adjusted. A participatory process will be set out for the preparation process and, also in the post process, sufficient consultation will be held with those sectors involved in primary care. It certainly will not succeed unless everybody becomes a part-owner ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 69/77 of this reorganisation. If we want strong primary care - and the WHO strongly recommends that to us - then everybody must join us in the change process. This year, an appeal will be sent to the stakeholders to submit a collective and agreed proposal for the demarcation of the primary care area to the agency. This spring, a start will be made with a revision of the legislation in decrees and orders. This will be a participatory project. The foundation of a Flemish Institute for Primary Care must be included in this. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 70/77 6 Appendices Lexicon Division of power Flemish - federal government The appendices below can be found on https://www.zorg-en-gezondheid.be/conferentiereorganisatie-van-de-eerstelijnszorg-in-vlaanderen Description of current tasks of Logos, palliative networks and partnerships, regional expertise centres for dementia and consultative platforms for mental health care Task and composition of the Flemish Agency for Collaboration around Data sharing between the Players in the Care (abbreviated in Dutch to VASGAZ) Composition of steering group primary care conference Composition of academic chamber of reflection primary care conference Overview of number of FTEs and available resources Innovating building projects Legal context complaints policy Geographic maps of current structures 6.1 LEXICON Case management function A targeted care intervention whereby a care provider, who is not a member of the care team for the person with a care need and who is specifically trained to assume the case management function, is engaged because the content and the organisational complexity of the care process rises above the normal care and support and the ability of the person with a care need to assume control of the care and support process has been greatly diminished. Case management is an intervention with a systematic, cyclical and finite character. In partnership with the person with a care need (and his care team), all the steps of assessment, care planning and care coordination are analysed, so that the problems become visible. The care provider who assumes the function of case management then intervenes in those steps that demand a solution. Certain steps are possibly carried out (if they have not been) or repeated. The improved care and support is carried out by the care team. The case management function does not perform in the place of the care team. Evaluation of the intervention from the perspective of case management must assess whether the intervention has achieved the desired solution. Social work service General term that is used for services that offer social work, mainly as part of a larger organisation, for example a mutual insurance fund, hospital, OCMW, a residential care centre. In healthcare, social nurses often work in these services. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 71/77 Primary care The provision of universally accessible, integrated and person-driven care for welfare and health in the community by professional care providers, who are responsible for tackling the vast majority of health and welfare problems. This care provision is achieved in a sustainable partnership between these professional care providers and the persons with a care need and their informal care providers, in the context of the family and the local community, and plays a central part in the general coordination and continuity of this care provision to the population. Own control/self direction Sel- Management Integrated care Having the ability as person to have the care (both process and content) reflect the quality of life that one desires. Community care Community-driven care A future model that care and support of persons with a care need aims to organise by focusing on an active partnership at the local level. Starting point is to allow the person with a care need to live at home for as long as possible and by doing so create a community with a lot of informal care and a cohesion between care, living and welfare. It is directed at everybody in the community. Health literacy The degree to which people have the knowledge and skills to obtain, process and understand fundamental services and information in the area of health and welfare, so that they can take decisions to the benefit of their quality of life. Informal care The care that is given by persons with a social or family link with the person with a care need on a voluntary basis. This care is not performed as a professional service. Integrated care and support A care approach that starts from the person as a whole, with all his possibilities, capacities and skills. The care is shaped by taking the required quality of life, care needs and care aims of the person as starting point. Interdisciplinary The partnership of care providers from various disciplines, based on the care aims of the person with a care need. By working from these care needs, the care providers go beyond the scope of their own discipline and grow closer in the area of practice. Journal/agenda Journals contain shared information that is important for every care provider involved in the care around a person with a care need. In Vitalink, a journal/agenda will prove a means of passing on observations and signals in a multidisciplinary context of care providers and persons with a care need who enter into an interaction with each other around a specific care need. The content is free text that is structured to a limited extent, and where relevant linked to one or more data types that are shared in Vitalink (medication schedule, Sumehr etc.). Care (going from health promotion, disease prevention, intake, grading of care, diagnosis of the disease, care supervision, medical treatment, support, recuperation and care at the end of life) in which the provision, management and organisation of it are brought together into a seamless whole. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 72/77 Life aim That which a person wishes to achieve in his life and thus gives significance to life. Examples of life aims are: being happy, having a family, building up a successful career, being famous, being rich etc. Socially responsible care Socially responsible care and social services must withstand an evaluation against the principles: quality, performance, relevance, equability and accessibility. If care is to be socially responsible, it must satisfy these conditions. Each of the five conditions is equally important: there is no hierarchical link between them. The conditions are, in other words, interdependent, an indivisible whole. Social work Is one of the specialisations in the bachelor’s course in social work. Social work responds to requests for help by people who experience difficulties in the psychosocial functioning and/or in their attitude to social institutions and provisions. Interventions by social workers always have an experience-driven and social component and are directed at psychosocial relief, working on access to provisions and signalling of structural deficiencies and gaps at community level. Macro level The entirety of organisations and services that are responsible for expertise development in the integrated care and support and the development of methodologies and instruments to offer this expertise to the public, persons with a care need and care providers. Voluntary care A form of informal care that is provided to a person with a care need living at home. Informal caregiver A person who provides informal care. Meso level The entirety of organisations and services that are responsible for the support of the practical implementation by the care providers. Micro level The entirety of organisations, services and independent care providers which shape the practical implementation and are in direct contact with the person with a care need and the informal care. Multidisciplinary Bringing together care providers from various disciplines and professional groups around the person with a care need. In a multidisciplinary partnership, each care provider offers care from his own discipline and organisations, according to the professional profiles that are applicable for this. Base line This is the informal care. Performance Performing care is care that leads to increased care and quality of life and social well-being. This can be achieved by providing care in a targeted, effectual, preventive, sustainable and optional way. Person with a care need Must be read as the person with a care and support need and concerns persons with problems in the area of welfare and healthcare for whom care is appropriate. This care can be informal care or professional care. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 73/77 Welfare and Health Platform The database of the Government of Flanders in which all data about care and welfare services in Flanders are available. These data are made accessible to the general public via a website. The professional care providers can enter and update directly their data in this database. Prevention A methodology to inform, increase awareness and provide skills to the general public for following a healthy lifestyle. Prevention covers both health promotion and disease prevention. Switching moment A moment in the care process in which the person with a care need moves from one care situation to another care situation. I.e. the transition from the home situation to a residential care centre or from a home situation to admission in a hospital. At such moments, the care services change and the person runs the risk of an interruption of care continuity. Social worker Professionals who base their professional behaviour on the international definition of social work. This means that the professional behaviour promotes social change, improves problem-solving in human relationships and encourage the welfare of people by focusing on empowerment and change in structures that prevent the promotion of welfare. The bachelor course in social work, within the social welfare studies area, trains people to become professional social workers. Accessibility Care is accessible when the person with a care need can obtain this care through correct information about the care services, which is sufficient and understandable, through affordability, through ease of access, through it being adapted to his culture, language and care need. Second line These are the specialised care services. Care that is directed at a well-defined pathology. Socialisation of care A care concept whereby the aim is to allow people with an impairment (of a physical, mental or psychopathological nature), the chronic sick, vulnerable elderly people, young people with behavioural and emotional problems, people who live in poverty etc. to assume, with all their possibilities and despite the vulnerabilities, their own meaningful place in society, helping them with this and having the care undertaken as far as possible in an integrated way within the community. Empowerment Helping a person with the acquisition and improvement of the necessary knowledge, skills and attitude for taking control of and autonomy over his life and to undertake the necessary actions concerning this. Self-management The assumption of control in the care process by the person with a care need. Care provider A person who professionally provides care or services in primary care to a person with a care need. This person can provide the care independently or as an employee. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 74/77 Care need The lack of support perceived by a person to achieve the desired quality of life. This can result in a care demand. Within the Government of Flanders, we do not speak of a care requirement but of a care need. The term ‘care need’ implies a serious and difficult situation that demands a solution. Care intermediary A person, designated by the person with a care need or his informal care, who stands up for the needs and interests of the person with a care need with the care providers. Care continuity The degree to which the care process, characterised by various care providers and care provision, takes place without interruption. Care coordination This is about the coordination and continuous monitoring and evaluation of all the medical, paramedical and welfare needs that are identified on the basis of the care needs of the person. If the person with a care need assumes this coordination himself, we then talk of self-management. This self-management always forms the starting point and can possibly be supported by informal care. In cases in which the person with a care need or his informal care cannot or will not assume the coordination, the care need is complex and where the care team has care providers from various disciplines, a care provider from the care team assumes the care coordination. This person (the person with a care need, informal care or care provider) is designated as ‘care coordinator’ of the care team. Care and support aim An aim that is formulated between the person with a care need and the care providers around the desirable care that offers the best possible answer to the life aims and the quality of life which the person with a care need wishes to achieve. The care aims have an impact on the care and support plan through their translation into specific actions and operations. These are formulated as far as possible as SMART aims. Care innovation The development and putting into practice of new or innovative elements and instruments in the care processes, so that these can be adapted to the future care needs and care aims of the population. Care and support plan An instrument for expressing the agreements around the planned care for a person with a care need in writing, so that this information is accessible for the person with a care need, the informal care and the care providers, and can be monitored and adapted. The care aims of the person with a care need form the basis for determining the care and to translate this into agreements. Care agency Care team Term adopted in the RD78. Within the Government of Flanders we speak of a ‘care provider’. A group of persons, composed of the person with a care need, his informal care and the care providers, who fulfil the care needs of a person based on the formulated care aims. Healthcare practitioner Term from the Primary Care Decree. Within the Government of Flanders we speak of a ‘care provider’. ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 75/77 Healthcare insurer This term also includes ‘health insurance fund’, sometimes indicated by the term ‘mutual insurance fund’. An organisation whose members are insured against the costs of illness. Care demand See care requirement Care need Abbreviation of ‘care and support need’. A situation that has an urgent character and must be answered in the short tterm. This answer can be offered in the form of care and support based on community-driven care, informal care, primary care or specialised care. The person is viewed as a whole. Care and support also covers healthcare, welfare, living, work, mobility. Care region A geographically prescribed area, as determined in the appendix to the Care Region Decree. 6.2 DIVISION OF POWER FLEMISH - FEDERAL GOVERNMENT This is a rough sketch that does not by any means reflect all the nuances, nor is it comprehensive, but aims to sketch a general picture and takes the current exercise of powers as starting point. Flemish powers Federal powers Primary care Integrated Service Residential Care (GDT) Collaboration initiatives Primary Healthcare Local Multidisciplinary Networks General practitioner group practices Health and disability insurance Fees for healthcare practitioners Reimbursement of medication Chronic patient status Increased insurance compenstion Palliative cooperation partnerships Palliative fixed sum/statute, incontinence fixed sum (excl. residential elderly care) Care pathways Palliative networks Multidisciplinary support teams for palliative care Incentive fund for general practice Prevention including Quit smoking and exercise coaches Local Health Consultation Population studies (intestinal, breast and cervical) Vaccinations at population level Flemish Social Protection* Allowance for the Elderly* Mobility aids8 Basic support budget* Allowance Flemish Care Insurance* Medical aids/medical materials (not mobility aids) General Medical File (fees general practitioners and increase compensation) Incontinence fixed sum Maximum invoice Accreditation doctors (also accreditation feeds) Fees for medical-pharmaceutical consultation Availability fees for participation in standby duty Uniform emergency call centres (urgent medical assistance) Medical permanence (e.g. out-of-hours surgery and stanby-duty) Social statute doctors Integrated surgery premium general practice Medical houses (fixed fee repayment of medical supplies) Residential care provision Services for family care and supplementary home care* ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 76/77 Services for logistic help* Minder services Home nursing services Social work services of the mutual insurance funds Local and regional service centes Foster care services Provisions for care of the elderly Day care centre* Law on patient rights (22/8/2002) Law on palliative care (14/06/2002) Recuperation centre Short-stay centre* Groups of assisted dwellings Residential care centre* Association of users and informal caregivers Mental healthcare Consultation platforms mental health care Initiatives in sheltered Living* Centres for Mental Healthcare* Psychiatric care homes* Rehabilitation conventions for mental health care Decree on the provision of care and assistance (18/07/2008) minimum qualification demands for person who practise professionally activities for care and assistance, whether or not in recognised welfare provisions inl. nurses employed for family care Healthcare professions Recognition of the healthcare professions Setting (sub)quota, taking into account the federal general contingency Social agreements eGezondheid General, Academic and Psychiatric Hospitals Planning and recognition Recognition standards Funding infrastructure works Rehabilitation hospitals/non-affiliated hospitals* Rehabilitation conventions (“long term care” rehabilitation) Law on euthanasis (28/5/2002) Healthcare professions (law on performing healthcare professions) Setting standards for healthcare professions on which collectives are recognised Issuing visa (i.e. admission to practice a healthcare profession) Setting standards for recognising traineeships supervisor/traineeship services Recognition traineeships supervisor/traineeship services Approving permanent training (hospital pharmacists, midwives) Setting general quota for certain healthcare professions Social agreements eGezondheid General, Academic and Psychiatric Hospitals Organic legislation (basic characteristics) Programming Funding (excluding infrastructure works) Rehabilitation conventions (not “long term care” rehabilitation) ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////// 16/02/2017 Een geïntegreerde zorgverlening in de eerste lijn 77/77
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