Draft Code of Practice – initial RNIB thoughts These are our preliminary thoughts on the draft Code which we are sharing to inform discussion and to encourage responses from parents and professionals. We will be refining our views in coming weeks before we respond to the Government Consultation; we welcome any feedback that you might have via [email protected] Overall Improvements: The new draft Code offers greater clarity and reassurance on the replacement for School Action and School Action Plus. More information has been given on access to specialist support from birth at home, and how early years providers will help children with special needs. The new draft specifically mentions that QTVIs must be involved in assessments and re-assessments for the new Education, Health and Care Plans (EHC) Ongoing concerns: The proposed "local offer" requires local authorities to set out what services they ‘expect’ to be available locally for CYP with SEN. However the new Code fails to mention how the "offer" will ensure that the support people get does not depend on where they live. Support under the new Code cuts off when a young person starts university. RNIB says that all young people up to age 25 should receive support. The commitment to involving specialist services is stronger for school age CYP than for those in FE. RNIB says specialist support should be equally available from 0-25 according to need. The consultation closes on 9 December. You can contribute through the DfE website via the short URL bit.ly/1aRFoy1 RNIB – supporting blind and partially sighted people Registered charity number 226227 Individual comments Page No. Issue Chapter 3 A family centred system 21 - 23 'Impartial information, advice and support' Section 3.3 This confirms that LAs must provide impartial information, advice and support, what should be offered and how (via a single access point). Chapter 4 Working together across education, health and care 32/33 Adult social care: 'the Care Bill…makes clear Section that children's and 4.2 adult's services must work closely together. Specifically, the Bill will ensure that young adults are not left without care and support as they make the transition between rnib.org.uk RNIB Comment Parents sometimes have difficulty knowing where to look for relevant information and they are often dependent on the school to provide this. RNIB believes that parents should be made aware of their right to an assessment by a specialist in vision impairment (VI). Schools and other providers should have good links with LA support services to understand what they can offer and we believe there should be a stronger reference in the Code of Practice to the responsibilities of schools in ensuring that parents are signposted to appropriate sources of information and advice. RNIB believes that more emphasis should be placed on enabling young people who have 'dropped out' of the system to re-enter. For example, we have evidence that this affects young people with VI who move out of the home area to college or university, may have to drop out because the course fails child and adult social care and support systems'. This confirms that children and adult services should work together for young people (YP) with an EHC Plan to ensure a smooth transition. 38 Section 4.4 41 them, move back home and then become isolated as they have an unmet need for mobility and independence training. Regional collaboration: meeting the needs of children and young people with highly specialist needs: 'Partners should actively consider the economies of scale and other benefits that come with information sharing, strategic planning and commissioning across groups of authorities or at a regional level…..where there may not be enough children or YP living locally to make a service sustainable'. Vision impairment, like dual sensory loss, is a low incidence, high impact disability. Regional commissioning is very relevant to VI in the current context of VI service reviews and cuts to LA budgets. RNIB supports the government's thrust to encourage local authorities to work collaboratively on a regional basis to offer enhanced levels of provision beyond that which any of them could offer individually. However, we believe that such collaboration should be over and above a minimum standard of local offer, in order that parents enjoy genuine choice and are not forced to fight for their children to be educated outside their local authority, often in high cost, specialist school settings. 'Joint commissioning RNIB believes that young rnib.org.uk Para 2 arrangements must consider the needs of children and young people with SEN as they prepare for adult life. This includes provision to help prepare them for independent living….' Chapter 5 The local offer 42-44 This is an important section of the Code covering the nature and scope of the local offer as well as how it should be developed and reviewed 45 Para 1 'Mainstream schools and colleges, including academies and free schools, must use their best endeavours to secure the special educational provision called for by a child's or young person's rnib.org.uk people with VI, including those who do not have an EHC Plan and those entering university, should have access to mobility and independence training. Research shows that inadequate mobility support is an emerging theme and is an issue identified for many young people with VI at university. If the new legislation is to truly support the aspirations of young people, this duty must be put in place for all. RNIB welcomes the greater clarity provided on the local offer since the first draft. However, we remain concerned that there is no common framework provided which will make it difficult to compare the local offer of one LA against another. We also query why there is no mention of funding in the requirements for what is included in the local offer. RNIB welcomes this approach as it is important that schools and LAs do not have to use the EHC plan as the only statutory route to SEN support. However, we continue to have concerns about the capacity for local services to deliver effectively 47 Bullet 1 needs…They have a duty to identify, assess and make special educational provision for all children and young people with SEN, whether or not they have an EHC plan. If they can show that a child or young person with SEN requires special educational provision that costs more than a certain threshold they can ask the local authority to provide top-up funding to meet that extra cost, whether or not the child has an EHC plan.' for a population of CYP with such low incidence needs, especially at a time of drastic cuts to LA funding. Other education provision: 'Information about educational provision should also include: 'The special education provision (such as…sensory support services or specialist teachers) made available to mainstream schools, early years providers, special units, alternative provision and other settings (including home based services), whether provided by the local RNIB welcomes this reference to sensory services as a source of support to children and young people with vision impairment, wherever they are based. Parents of children and young people have said that they would like information in the local offer to be presented by type of need, so that they can see clearly what support is available for children with VI. rnib.org.uk A consistent approach to the provision of assistive technology to complete work at home also remains an issue and RNIB would welcome explicit reference to this in the local offer. authority or others.' 49 Training and apprenticeships: 'The local offer…should include information about additional support available to young people - for example….Access to Work fund…' RNIB would expect LAs to provide this information in the context of their duty to 'identify training opportunities, apprenticeships, traineeships and supported internships available to young people in the area to provide a smooth transition from education to employment.' 51 'Participating in the community….' RNIB welcomes the emphasis placed on young people's involvement in local community facilities, including social media, and the support available to enable this. We particularly welcome the 'opportunities for influencing local decision making’ as young people have told us that this is a priority for them. 53 Involving children and young people with SEN and parents Local authorities need to be aware that existing parent partnership groups may not have strong representation from parents of children and young people with vision impairment. Instead, a Local Society for Vision Impairment or LA Vision Impairment Service may be a better route to engaging with families, including blind and partially sighted parents. 55 Keeping provision See comment above on Para 2 rnib.org.uk under review: 'local First bullet authorities must keep under review the special educational and social care provision available in their area and outside their area for children and young people with SEN for whom they are responsible in consultation with: children and young people with SEN and their parents….' representation. RNIB believes that it is vital that parents of children with VI are enabled to influence future provision through the local offer. The fact that VI is a low incidence need means that LAs should be proactive in seeking parents’ views and not base their decision making on numbers alone. 56 Publishing comments about the local offer: 'Local authorities must seek and publish comments about their local offer…It is up to local authorities to decide how best to do this in consultation with…..representative organisations…' It is essential that local services have the capacity to deliver effectively for their population of CYP with low incidence needs. RNIB would welcome comments from parents and practitioners on particular aspects of their own local offer that they find helpful, or any concerns and gaps that are identified. Chapter 6 Early years, schools, colleges and other education and training providers 59 'Special educational provision is Final para educational or training provision that is additional to or different from that made generally for others of the same RNIB research has found that schools are often not in the best position to make informed decisions about the type and level of support that CYP with vision impairment should receive, because most CYP are educated in non-VI rnib.org.uk 63 Para 4 age….It may take the form of additional support from within the setting or require the involvement of specialist staff or support services…As part of its 'best endeavours', an educational setting should have arrangements in place to identify the need for and secure such provision, whether through expertise and resources available within the setting or by drawing on support from outside services…' settings which may be unfamiliar with their needs. Problems at school level include a lack of understanding by teachers of the effects of a vision impairment, poor planning by teachers and an inability of schools to fully meet children’s specialist visual impairment needs. Specialist services are therefore essential to assess how individual children may be affected by their vision impairment and to design appropriate strategies accordingly. RNIB maintains that this support must be provided by a qualified teacher who holds the mandatory qualification in vision impairment. Trained support is also needed to enable children to become proficient in specialist areas such as braille, habilitation skills (mobility and independence), all of which are central not only to their educational success but also to their longer term life chances. Cognition and learning: '[CYP] with…(PMLD) have severe and complex learning difficulties as well as significant other As many as 50 per cent of children with vision impairment may have additional disabilities and/or special educational needs, including those with very rnib.org.uk 65 difficulties such as a physical disability or a sensory impairment. They are likely to need sensory stimulation….' complex needs. RNIB therefore welcomes the reference to sensory impairment for children with PMLD. We would also like to see the same reference in relation to children with SLD, which is an omission given the high prevalence of VI in CYP with SLD. Sensory and/or physical needs: 'Some children and young people require special educational provision. It is this group that should be identified as having a SEN. Children and young people with a visual impairment (VI)…may require specialist support and equipment to access their learning…' RNIB welcomes the emphasis on specialist support and equipment to access learning. However, a recent literature review of educational approaches for children with vision impairment has highlighted the importance of independent learning to enable young people to be prepared for adult life. It was suggested that current education policy emphasises provision of accessible materials (e.g. bespoke large print) rather than teaching access skills (use of LVAs and access technology) and that key longer term independence skills (including mobility and social skills) that fall beyond the traditional curriculum may be neglected. RNIB maintains that training and support in these areas must be provided by appropriately qualified staff, including a qualified teacher who holds the mandatory qualification in rnib.org.uk vision impairment, trained habilitation specialists and TAs who hold a relevant qualification in VI. 67 Identifying needs in the early years. From birth to two: 'Many of the more complex needs, developmental and sensory, are identified at birth. Parents' early observations of their child are crucial…Health services, including….health visitors, should work with families, and support them in understanding their child's needs…' Health professionals, such as midwives and health visitors should respond to parents' concerns. Further training in childhood VI for health professionals would enable them to respond to any concerns parents may have. RNIB welcomes the specific reference to specialist teachers in VI and home based programmes to help parents support their child's early learning and development, and reference to the early Support Programme. 69 SEN support in the early years: 'Settings should draw on those with specialist expertise beyond the setting…' RNIB welcomes the involvement of specialist services, such as those for VI, for children whose need for long term support is such that an EHC Plan might be required. Schools: 'Teachers are responsible and accountable for the progress and development of the pupils in their class, even where pupils access support from teaching assistants or RNIB welcomes the confirmation that teachers are responsible for all the learners in their class, working as appropriate in partnership with specialist teachers and TAs. However, we would welcome recognition of the need for specialist training for TAs Para 4 71/72 Section 6.5 rnib.org.uk 73 Para 1 73-75 Para 1 specialist staff…The quality of teaching for pupils with SEN, and the progress made by pupils, should be a core part of the school's performance management arrangements and its approach to professional development for all teaching and support staff. SEN should not be regarded as sufficient explanation for low achievement…' supporting CYP with specific types of SEN, especially a low incidence need like VI. Identifying needs in schools: 'For higher levels of need, schools should have arrangements in place to draw on more specialised assessments from external agencies and professionals.' RNIB welcomes specific reference to the involvement of specialist support and advice, such as that provided by LA VI services and the recommendation that these arrangements 'should be agreed and set out as part of the local offer.' SEN support in schools. 'Once a potential educational need is identified, four types of action should be taken to put effective support in place….This is known as a graduated approach…' RNIB welcomes the partnership approach of working class or subject teachers together with external specialist staff, such as QTVIs. We also welcome the emphasis on evidence of effective strategies employed by staff with relevant expertise and its impact on progress. rnib.org.uk Assess. 'It should also draw on…if relevant, advice from external support services. Schools should take seriously any concerns raised by a parent. These should be recorded and compared to the setting's own assessment and information on how a child is developing…'. Plan. 'The support and evidence provided should be based on reliable evidence of effectiveness and be provided by staff with sufficient skills and knowledge.' Do. 'The class or subject teacher should remain responsible for working with the child on a daily basis. Where the interventions involve group or one-to-one teaching away from the main class or subject teacher, they should still retain responsibility for the pupil, working closely with any teaching assistants or specialist staff rnib.org.uk involved, to plan and assess the impact of interventions…The support and intervention provided should be based on reliable evidence of effectiveness and be provided by staff with sufficient skills and knowledge.' Review. 'The effectiveness of the support and the impact on the child's progress should be reviewed…' 75 Involving specialists. 'Schools may involve specialists at any point to advise them on early identification of SEN and effective support. A school should always involve a specialist where a child continues to make little or no progress over a sustained period or where they continue to work at levels substantially below those expected of children of a similar age despite wellfounded SEN support…' RNIB welcomes the opportunity for schools to involve specialists at any point as opposed to the more linear approach of SA and SA+. However, we have concerns that a low level vision impairment in conjunction with other low level needs, such as a learning difficulty may go undetected and consequently unsupported. 80-81 'The following RNIB welcomes the inclusion rnib.org.uk 82-83 organizations provide advice, information and training on specific impairments.' of specific organizations, especially the National Sensory Impairment Partnership and Early Support which have excellent resources on vision impairment for practitioners and parents. Further education Identifying SEN “Where available, (colleges) should draw on previous assessments and other information from the student’s former school or other education setting about their SEN, as well as discussing with the young person and his or her family, what needs the student has. Colleges may also want to undertake their own assessments, whether or not there is any information from the school, to assess suitability for different study programmes…. RNIB is concerned that there is no explicit reference here to involving specialist support services, who are likely to have played an important part in the education of CYP throughout their school years. Extending the scope of the Code to cover young people up to the age of 25 must include a guarantee that the same specialist support is available to them in post-16 as well as pre-16 settings. SEN support “Colleges should have access to specialist skills to support the learning of SEN students when required, either rnib.org.uk through partnerships, or by employing practitioners to help students with SEN to progress. They should also ensure that curriculum staff are able to develop their skills, keep their knowledge up to date, and are aware of effective practice.” 86 Para 3 Funding for SEN support: 'It is for schools, colleges and early years providers, as part of their normal budget planning, to determine their approach to using their resources to support the progress of CYP with SEN….This will enable schools and colleges to provide clear descriptions of the types of special educational provision that they normally provide in the local offer. This will help parents and others understand what they can normally expect the school and college to provide for children with SEN. Schools and colleges, however, are not rnib.org.uk Appropriate allocation of funding is a crucial factor in the effectiveness of support strategies. RNIB strongly recommends that settings involve LA VI services in order to 'determine their approach to using their resources to support the progress' of CYP with VI. expected to meet the costs of the more expensive support from their core funding. They are expected to provide additional support which costs up to a nationally prescribed threshold per pupil/student per year. However, where the cost of SEN provision required to meet the needs of an individual CYP exceeds the nationally prescribed threshold, the responsible LA…may provide additional top-up funding. This should…reflect the cost of providing the additional support in the setting that is in excess of the nationally prescribed threshold.' 88 Section 6.9 External support in educational settings. 'Where assessment indicates that support from specialist services is required it is important that children and young people receive it as quickly as possible. Joint commissioning rnib.org.uk RNIB considers that this information is vital for parents to understand what is available for their child. It is important, therefore, that this information is presented by type of need. arrangements should seek to ensure that there are sufficient services to meet the likely need in an area. The local offer should set out clearly what support is available from different services and how it may be accessed…' 90 Specialist support teachers or support services. 'There is a range of specialist teachers who provide advice, direct support and guidance consultation…In particular, specialist teachers for children with…visual impairment…support schools in modifying their curriculum and environment to ensure needs can be met. Professionals teaching classes of children with sensory impairments are required to have a mandatory qualification approved by the secretary of state. Specialist teachers working in advisory roles to a range of schools or other education settings rnib.org.uk RNIB welcomes the recognition of QTVIs as one of the key services for children who do not have an EHC plan. We also warmly welcome the reference to the mandatory qualification for both teachers of classes of children with VI and those working in advisory roles to a range of education settings. However, one implication of the new Code applying to learners from 0-25 is that specialist services should be available to young people with vision impairment throughout FE as well as school education. There are significant staffing implications for services here, and the remit of the MQ training course will need to be extended to include the FE context. should also have such a qualification….' Chapter 7 Assessments and Education, Health and Care plans. 100 'c. If the CYP is…visually…impaired Final para …the educational advice and information must be given after consultation with a person who is qualified to teach pupils or students with these impairments.' 102 Section 7.8 Decision not to issue an EHC plan. '…The LA should ensure that the parents or young person are aware of the resources available to meet SEN within mainstream provision and other support set out in the local offer. rnib.org.uk RNIB welcomes the retention of this statutory requirement to involve a QTVI in the assessment of a CYP with an identified vision impairment. However, CYP with severe vision impairment as a single disability may not receive the support they need. We are concerned that a broad definition of complex needs could leave these CYP ineligible for an Education, Health and Care Plan (EHCP) and, consequently, without the statutory protection that an EHCP provides. Blindness constitutes a complex need in itself. A complex need should be defined in the Code and should include all children with severe sight loss. RNIB believes that LAs should be required to provide this information and recommends that the word ‘should’ be replaced with ‘must’. The LA should on request provide feedback collected during the assessment process, such as evidence from professionals, which the parents, young person, early years provider, school or post 16 institution may find useful. This information can then inform how the outcomes for the CYP can be achieved through SEN provision already made by the early years provider, school or post 16 institution and coordinated support from other agencies.' 104 The following table sets out what to include in each section of the ECH plan. Row 2: 'All of the CYP's identified SEN must be included.' RNIB supports this as an important prerequisite for accurate data collection. We propose that the same requirement should be made for CYP without an EHC plan who receive specialist input. 111 'Parents and YP may also make representations for places in nonmaintained early years provision or at independent schools or independent specialist RNIB has concerns that CYP with vision impairment may be excluded from non-maintained and independent provision on the basis of limited understanding of the nature of vision impairment and the learning strategies needed to Para 1 rnib.org.uk providers… and the local authority must consider their request…The local authority should confirm with the independent school or ISP that it would admit the child or young person before naming it in a plan since the school or ISP is not subject to the duty to admit a child or young person even if named in their plan.' support progress, despite the general principle that children should be educated in accordance with their parents' wishes. 122/123 'For very young Final para children LAs should consider commissioning the provision of homebased programmes…or peripatetic services for children with…visual impairment…Children and their parents may also benefit from the Early Support Programme…' RNIB welcomes the recognition of the importance of home based support for babies with vision impairment under 2 years, especially in the context of the Early Support Programme. However, there are concerns about LAs’ capacity to deliver these services in the context of public sector cuts and we would welcome a further strengthening to make this support statutory. 123 See above. This would benefit children with severe VI who require high levels of intensive input from birth. If babies with a vision impairment are not identified early and intensive health and education developmental support Para 2 'Children aged below two are eligible for an EHC plan where assessment indicates that the child is likely to have an SEN when they are of compulsory school age. In these rnib.org.uk 124 Para 1 125 cases, the child is likely…. to require a high level of special educational provision which would not normally be available in mainstream settings from delegated resources. A decision to issue an EHC plan may be made because of a child's complex needs and/or to allow access to a particular service that cannot otherwise be obtained such as home-based teaching.' provided in the first two years of life, the development of the child’s social and communication skills can be seriously impeded. Blind children, in particular, require high levels of specialist input to address crucial needs in their cognitive development, communication, social and independence skills. 'The parents may also make representations in favour of an independent, private or voluntary early years setting for their child. If the local authority considers such provision appropriate, it is entitled to specify this in then plan and if it does, must fund the provision. However, it cannot require an independent, private or voluntary setting to admit a child, unless the setting agrees.' RNIB has concerns on what grounds the early years setting could refuse admission if both the parent and LA agree that the provision is appropriate. '19-25 year olds with EHC plans should RNIB is concerned that these rights do not extend to young rnib.org.uk Paras 3 and 4 have free access to further education in the same way as 16-18 year olds…Apprentices aged 19-25 with Learning Difficulty Assessments/EHC plans are fully funded on the same terms and funding rates as 16-18 year old apprentices. The local offer should include Apprenticeships for this age group….' people who have been receiving specialist provision but who do not have an EHC plan. The quality of information and service delivery in the local offer will be essential to the outcomes of these YP. 133 The re-assessment process. 'The process for re-assessment will be the same as the process for a first assessment…Reassessments must follow the same process as for the first EHC assessment and drawing up the EHC plan.' Preparing for adulthood. '…from year 9 onwards the review meeting must consider what provision is required to assist in preparing the YP for adulthood and independent living…so they are prepared when their EHC plan ends. Both providers RNIB warmly welcomes this confirmation which means that there will be a statutory requirement to involve a QTVI in the re-assessment of a CYP with an identified vision impairment. 134/135 Section 7.19 rnib.org.uk RNIB believes that this information should be available to young people without an EHC plan who receive specialist VI support. and LAs should give advice to YP and help them to understand what support is available to them after they complete their education…For participating in society, it includes understanding mobility and transport support…' 135 Higher education. ' When a YP with an EHC plan takes up a place in HE, their EHC plan will cease. LAs should plan a smooth transition to the HE institution concerned…before ceasing to maintain the YP's plan. Once the YP's place has been confirmed at the HE institution the LA must (with the YP's permission) pass a copy of their EHC plan to the relevant person in the institution…The La should make the YP aware of support available to them in HE, including the…DSA and how to claim it…' rnib.org.uk RNIB welcomes this reference to support in HE to support the aspirations of many YP with VI, but we question how the LA will do this in practice and who will take responsibility. We continue to have concerns for those with VI but without an EHC plan as RNIB's longitudinal transitions research indicates a number of problems. There is also an issue for those whose sight worsens after they start university. rnib.org.uk
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