FOSTERING THE DEVELOPMENT OF FREELY-GIVEN RELATIONSHIPS PRESENTED BY TOM DOODY OUTLINE OF TOPIC AREAS • The Problem—Why Don’t People Have Friends? • A Definition—Relationships For Today’s Presentation • Obstacles to Freely-Given Relationships • Setting the Stage • Agency Based Strategies • Studying the Ordinary • Roles and Qualities of Effective Supporters THE PROBLEM IS DEVALUATION • • • • • Different in Ways Seen as Significant Person or Group Defined by Difference Differentness is Valued Negatively Person or Group is Valued Negatively Leads to Negative Responses from Others DEVALUATION, NOT DISABILITY, IS THE PROBLEM WHAT “WORKS” FOR PEOPLE What works best for people in general also works best for people with disabilities. For example, it works best when disabled people: • Live in real homes – homes like those where most non-disabled people live. • Live, work, volunteer, learn, shop, contribute, and play in community. • Spend most time with non-disabled people— family, friends, and age peers. • Keep medical and other specialized services in the background. SOME ELEMENTS OF FRIENDSHIP • • • • • • • • Freely-Given/Unpaid Presence/Sufficient Contact Enduring Flexible Caring/Heartfelt Trust Help in Times of Need Mutually Rewarding—Perhaps Not Equal ALL KINDS OF GOOD RELATIONSHIPS ARE PART OF THE GOOD LIFE • Enduring, Good, Loving, Supportive Families Are Wonderful • Enduring, Good, Loving, Supportive Staff Are Wonderful • Enduring, Good, Loving, Supportive Disabled Friends are Wonderful ALL ARE IMPORTANT, BUT EVEN IF ALL ARE PRESENT, THEY ARE NOT ENOUGH FRIENDS ARE IMPORTANT, BUT… • Focus on More Prevalent, and Easier to Support, Relationships Drives Out Efforts to Foster FreelyGiven Relationships • Need Not Seen or Addressed • If Need Known, Not Seen as Important Priority • Usually Not an Explicit Part of Staff Role • Possibilities of Other Relationships Not Seen • Little or No Action to Foster and Support Freely-Given Relationships SOME MAJOR ELEMENTS OF CURRENT SITUATION • Societal Values Mediate Against Freely-Given Relationships—Negative Attitudes • Devaluation Continues—Rejection is Real • Long History of Segregation—Little Experience • Great Dependence on Paid, Expert Services • Lack of Consciousness of Natural Ways Relationships Begin and Develop • Lack of Experience Supporting Others’ Relationships in Background Roles SETTING THE STAGE Convenience of Contact • • • • Close to Others’ Home and Jobs Close to Places People Meet Good Transportation Good Access SETTING THE STAGE Making Impressions That Invites Contact and Interaction • Image Enhancing Physical Settings • Positively Valued Personal Associations *Staff *Others Served *Other People • Image Enhancing, Inviting Activities • Positively Valued Appearance & Mannerisms • Image Enhancing Language and Stories SETTING THE STAGE Activities Inviting Contact • • • • Others Actually Present Interaction Natural Repeated Contacts Possible Good Match for the Person *Interests *Competence *Contribution • Opportunity for Shared Participation • Opportunity for Valued Roles AGENCY-BASED STRATEGIES • • • • • • • Change the Person Stimulate Existing/Potential Network Involve Person in New Groups Agency-Based Volunteer Program Workers’ Personal Networks Urge Others to Reach Out Broker Through Specially Committed Other Person • Semi-Independent Program • Independent Program CONSIDERATIONS FOR DESIGNING & EVALUATING AGENCY APPROACHES Likely Effectiveness and Convenience of: • Recruitment • Orientation • Naturalness • Relationship Growth/Value • Support • Independence • Further Integration • Duration of Relationships CULTURALLY-VALUED ANALOGUE LESSONS FROM THE ORDINARY “A societal practice (a) which can be encountered with at least reasonable frequency in the valued sector of society, (b) with which most members of the society would be familiar, (c) of which most members of the society would hold positive expectations and images, (d) which constitutes a valued parallel to a practice performed by or with devalued people.”— PASSING: Wolf Wolfensberger & Susan Thomas BRINGING ORDINARY LESSONS ABOUT RELATIONSHIPS TO CONSCIOUSNESS • • • • • For People in General For Different Age-Groups For Different Subcultures For Different Situations For Different Kinds of Relationships Asking Ourselves—Interrogating Our Experience Asking Others—Interrogating Their Experience LESSONS FROM THE ORDINARY WHAT DO SISTERS DO? • • • • • • Shop Meals and Coffee—Home and Out Entertainment—Movies, Plays, Concerts, Etc. Support Other Family Members--Children Discuss (Complain About) Others in Family Family Celebrations and Traditions LESSONS FROM THE ORDINARY DEEPENING ROLES & RELATIONSHIPS • • • • • • • School—Classmate and School Friend Work—Coworker and Work Friend Home—Neighbor and Neighbor Friend Church—Fellow Parishioner and Church Friend Formal Group—Member and Colleague Informal Group—Presence and “Regular” Family—Weddings/Funerals and Closest Ally INTEROGATING THE ORDINARY • What Do: Neighbors, Church Members, Coworkers, Students, Club Members, and Others Do Together? • How Do: Neighbors, Church Members, Coworkers, Students, Club Members, and Others Meet? • How Do: Neighbors, Church Members, Coworkers, Students, Club Members, and Others Get to Know Each Other? INTEROGATING (CONTINUED) • How Do Neighbors, Church Members, Coworkers, Students, Club Members, and Others Grow Closer? • How Do Neighbors, Church Members, Coworkers, Students, Club Members, and Others Become Friends? • How Do Friends Become Close Friends—Even Enduring and Intimate Friends? LESSONS FROM THE ORDINARY: FROM FRIEND TO CLOSE FRIEND • Making Time for Each Other • Openness and Sharing • Genuineness and Mutual Vulnerability • Honesty and Trust • Profound Understanding and Acceptance • There for Each Other—Presence High Priority How? Time Passing, Responding in Hard Times, Making Sacrifices, Forgiveness, Acknowledging Each Other, Proving the Caring INDIVIDUALIZED SUPPORT PLANS LEVELS OF SUPPORT • • • • • • • None—Get Out of the Way Minimal—Suggestions and Encouragement Guidance—Ideas and Coaching Behind—Background Presence and Help With—Presence and Active Assistance For—Inviting, Arranging and Doing To—Create and Structure Good Opportunity PRINCIPLES OF THE SUPPORTER ROLE PREPARING ONESELF • Maintain Clarity of Purpose • High Expectations and Positive Assumptions for All Involved Parties • Consciousness of Obstacles and Facilitators • Truly Respecting and Valuing People • Modeling Desirable Patterns of Interaction • Plan and Prepare Thoughtfully for One Person PRINCIPLES OF THE SUPPORTER ROLE • • • • • • • ENGAGING WITH OTHERS Follow Image Enhancing Practices Use Natural and Typical Means as Much as Possible Act and Adapt with and for Individuals Welcome and Engage Openness Encourage Interaction Explore Possibilities for Repeat Contact Adequate Support and Minimal Presence PRINCIPLES OF THE SUPPORTER ROLE ONGOING EFFORTS • • • • • Openness to Opportunities Persisting Through Inevitable Rejection Avoiding Paralysis Sacrificing Ones Own Opportunities Learning—Always—From Experiences in Own Relationships and Supporting Others in Theirs • Maintain Consistent and Persistent Effort CONCLUSION—GETTING STARTED • Embrace Importance of Friendship & Belonging • Know Community Belonging and Freely-Given Relationships are Possible for Everyone • Know That Each of Us—No Matter Our Current Role—Can Take Positive Action • Live Inclusive Friendship & Belonging in Your Own Life First—Legitimate Invitation to Others Contact Information North Quabbin Citizen Advocacy PO Box 362, Orange, MA 01364, USA 978-544-7794 [email protected] The Doodys 94 Michael Lane, Orange, MA 01364, USA 978-575-0152 [email protected]
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